{"id":"https://openalex.org/W3136399630","doi":"https://doi.org/10.1109/ichi48887.2020.9374298","title":"Identifying Features That Are Predictive of Quality of Life in People With Amyotrophic Lateral Sclerosis","display_name":"Identifying Features That Are Predictive of Quality of Life in People With Amyotrophic Lateral Sclerosis","publication_year":2020,"publication_date":"2020-11-01","ids":{"openalex":"https://openalex.org/W3136399630","doi":"https://doi.org/10.1109/ichi48887.2020.9374298","mag":"3136399630"},"language":"en","primary_location":{"id":"doi:10.1109/ichi48887.2020.9374298","is_oa":false,"landing_page_url":"https://doi.org/10.1109/ichi48887.2020.9374298","pdf_url":null,"source":null,"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"2020 IEEE International Conference on Healthcare Informatics (ICHI)","raw_type":"proceedings-article"},"type":"article","indexed_in":["crossref"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5006177257","display_name":"Anna Markella Antoniadi","orcid":"https://orcid.org/0000-0002-8285-1997"},"institutions":[{"id":"https://openalex.org/I100930933","display_name":"University College Dublin","ror":"https://ror.org/05m7pjf47","country_code":"IE","type":"education","lineage":["https://openalex.org/I100930933"]}],"countries":["IE"],"is_corresponding":false,"raw_author_name":"Anna Markella Antoniadi","raw_affiliation_strings":["FutureNeuro SFI Research Centre School of Computer Science, University College Dublin, Dublin, Ireland"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"FutureNeuro SFI Research Centre School of Computer Science, University College Dublin, Dublin, Ireland","institution_ids":["https://openalex.org/I100930933"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5013567168","display_name":"Miriam Galvin","orcid":"https://orcid.org/0000-0002-8232-8020"},"institutions":[{"id":"https://openalex.org/I205274468","display_name":"Trinity College Dublin","ror":"https://ror.org/02tyrky19","country_code":"IE","type":"education","lineage":["https://openalex.org/I205274468"]}],"countries":["IE"],"is_corresponding":false,"raw_author_name":"Miriam Galvin","raw_affiliation_strings":["Academic Unit of Neurology, Trinity Biomedical Sciences Institute Trinity College Dublin, Dublin, Ireland"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Academic Unit of Neurology, Trinity Biomedical Sciences Institute Trinity College Dublin, Dublin, Ireland","institution_ids":["https://openalex.org/I205274468"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5031372738","display_name":"Mark Heverin","orcid":"https://orcid.org/0000-0002-7326-4432"},"institutions":[{"id":"https://openalex.org/I205274468","display_name":"Trinity College Dublin","ror":"https://ror.org/02tyrky19","country_code":"IE","type":"education","lineage":["https://openalex.org/I205274468"]}],"countries":["IE"],"is_corresponding":false,"raw_author_name":"Mark Heverin","raw_affiliation_strings":["Academic Unit of Neurology, Trinity Biomedical Sciences Institute Trinity College Dublin, Dublin, Ireland"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Academic Unit of Neurology, Trinity Biomedical Sciences Institute Trinity College Dublin, Dublin, Ireland","institution_ids":["https://openalex.org/I205274468"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5030609927","display_name":"Orla Hardiman","orcid":"https://orcid.org/0000-0003-2610-1291"},"institutions":[{"id":"https://openalex.org/I205274468","display_name":"Trinity College Dublin","ror":"https://ror.org/02tyrky19","country_code":"IE","type":"education","lineage":["https://openalex.org/I205274468"]}],"countries":["IE"],"is_corresponding":false,"raw_author_name":"Orla Hardiman","raw_affiliation_strings":["Academic Unit of Neurology, Trinity Biomedical Sciences Institute Trinity College Dublin, Dublin, Ireland"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Academic Unit of Neurology, Trinity Biomedical Sciences Institute Trinity College Dublin, Dublin, Ireland","institution_ids":["https://openalex.org/I205274468"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5061456583","display_name":"Catherine Mooney","orcid":"https://orcid.org/0000-0002-7696-1364"},"institutions":[{"id":"https://openalex.org/I100930933","display_name":"University College Dublin","ror":"https://ror.org/05m7pjf47","country_code":"IE","type":"education","lineage":["https://openalex.org/I100930933"]}],"countries":["IE"],"is_corresponding":false,"raw_author_name":"Catherine Mooney","raw_affiliation_strings":["FutureNeuro SFI Research Centre School of Computer Science, University College Dublin, Dublin, Ireland"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"FutureNeuro SFI Research Centre School of Computer Science, University College Dublin, Dublin, Ireland","institution_ids":["https://openalex.org/I100930933"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":5,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":0.3506,"has_fulltext":false,"cited_by_count":5,"citation_normalized_percentile":{"value":0.66268178,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":90,"max":97},"biblio":{"volume":null,"issue":null,"first_page":"1","last_page":"2"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10855","display_name":"Amyotrophic Lateral Sclerosis Research","score":0.9998999834060669,"subfield":{"id":"https://openalex.org/subfields/2728","display_name":"Neurology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10855","display_name":"Amyotrophic Lateral Sclerosis Research","score":0.9998999834060669,"subfield":{"id":"https://openalex.org/subfields/2728","display_name":"Neurology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T12400","display_name":"Neurogenetic and Muscular Disorders Research","score":0.9380999803543091,"subfield":{"id":"https://openalex.org/subfields/2716","display_name":"Genetics"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10085","display_name":"Parkinson's Disease Mechanisms and Treatments","score":0.9031000137329102,"subfield":{"id":"https://openalex.org/subfields/2728","display_name":"Neurology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/amyotrophic-lateral-sclerosis","display_name":"Amyotrophic lateral sclerosis","score":0.9517546892166138},{"id":"https://openalex.org/keywords/quality-of-life","display_name":"Quality of life (healthcare)","score":0.7095205783843994},{"id":"https://openalex.org/keywords/disease","display_name":"Disease","score":0.501875638961792},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.49023324251174927},{"id":"https://openalex.org/keywords/palliative-care","display_name":"Palliative care","score":0.420126736164093},{"id":"https://openalex.org/keywords/physical-medicine-and-rehabilitation","display_name":"Physical medicine and rehabilitation","score":0.4003062844276428},{"id":"https://openalex.org/keywords/psychology","display_name":"Psychology","score":0.3482391834259033},{"id":"https://openalex.org/keywords/gerontology","display_name":"Gerontology","score":0.33686304092407227},{"id":"https://openalex.org/keywords/pathology","display_name":"Pathology","score":0.09631907939910889},{"id":"https://openalex.org/keywords/nursing","display_name":"Nursing","score":0.07580643892288208}],"concepts":[{"id":"https://openalex.org/C2780596555","wikidata":"https://www.wikidata.org/wiki/Q206901","display_name":"Amyotrophic lateral sclerosis","level":3,"score":0.9517546892166138},{"id":"https://openalex.org/C2779951463","wikidata":"https://www.wikidata.org/wiki/Q7268788","display_name":"Quality of life (healthcare)","level":2,"score":0.7095205783843994},{"id":"https://openalex.org/C2779134260","wikidata":"https://www.wikidata.org/wiki/Q12136","display_name":"Disease","level":2,"score":0.501875638961792},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.49023324251174927},{"id":"https://openalex.org/C2994186709","wikidata":"https://www.wikidata.org/wiki/Q29483","display_name":"Palliative care","level":2,"score":0.420126736164093},{"id":"https://openalex.org/C99508421","wikidata":"https://www.wikidata.org/wiki/Q2678675","display_name":"Physical medicine and rehabilitation","level":1,"score":0.4003062844276428},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.3482391834259033},{"id":"https://openalex.org/C74909509","wikidata":"https://www.wikidata.org/wiki/Q10387","display_name":"Gerontology","level":1,"score":0.33686304092407227},{"id":"https://openalex.org/C142724271","wikidata":"https://www.wikidata.org/wiki/Q7208","display_name":"Pathology","level":1,"score":0.09631907939910889},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.07580643892288208}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.1109/ichi48887.2020.9374298","is_oa":false,"landing_page_url":"https://doi.org/10.1109/ichi48887.2020.9374298","pdf_url":null,"source":null,"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"2020 IEEE International Conference on Healthcare Informatics (ICHI)","raw_type":"proceedings-article"}],"best_oa_location":null,"sustainable_development_goals":[{"display_name":"Peace, Justice and strong institutions","score":0.46000000834465027,"id":"https://metadata.un.org/sdg/16"}],"awards":[],"funders":[{"id":"https://openalex.org/F4320320847","display_name":"Science Foundation Ireland","ror":"https://ror.org/0271asj38"}],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":6,"referenced_works":["https://openalex.org/W2113481412","https://openalex.org/W2518689955","https://openalex.org/W2550614318","https://openalex.org/W2911964244","https://openalex.org/W2914729175","https://openalex.org/W4256260097"],"related_works":["https://openalex.org/W2070831599","https://openalex.org/W4206749202","https://openalex.org/W2048256717","https://openalex.org/W2393752460","https://openalex.org/W4292226083","https://openalex.org/W2938751847","https://openalex.org/W4387118726","https://openalex.org/W2059706093","https://openalex.org/W4213128270","https://openalex.org/W4390108853"],"abstract_inverted_index":{"Amyotrophic":[0],"Lateral":[1],"Sclerosis":[2],"(ALS)":[3],"is":[4,12,44],"a":[5,60,115],"fatal":[6],"and":[7,15],"currently":[8],"incurable":[9],"disease.":[10],"Treatment":[11],"mostly":[13],"palliative":[14],"focuses":[16],"on":[17,36],"improving":[18],"the":[19,28,65,86,89,100,112,121,129],"quality":[20],"of":[21,24,27,30,41,59,73,88,95,114,123],"life":[22],"(QoL)":[23],"patients;":[25],"knowledge":[26],"determinants":[29],"QoL":[31,52,63,67,124],"can":[32],"have":[33],"an":[34,71],"impact":[35],"their":[37],"care.":[38],"The":[39],"aim":[40],"this":[42,134],"work":[43,109],"to":[45,51,79],"identify":[46],"which":[47],"factors":[48],"are":[49],"related":[50],"in":[53,77,85,104,125],"ALS":[54,126],"using":[55,128],"two":[56,90],"different":[57],"metrics":[58],"person's":[61],"overall":[62],"from":[64,133],"McGill":[66],"questionnaire.":[68],"We":[69,82],"used":[70],"ensemble":[72],"feature":[74],"selection":[75],"methods":[76],"order":[78],"reduce":[80],"bias.":[81],"found":[83],"differences":[84],"predictors":[87],"scores,":[91],"but":[92],"caregiving":[93],"duties":[94],"informal":[96],"caregivers":[97],"were":[98],"among":[99],"most":[101,130],"significant":[102],"ones":[103],"both":[105],"cases.":[106],"Our":[107],"future":[108],"will":[110],"be":[111],"development":[113],"Clinical":[116],"Decision":[117],"Support":[118],"System":[119],"for":[120],"prediction":[122],"patients":[127],"important":[131],"features":[132],"study.":[135]},"counts_by_year":[{"year":2025,"cited_by_count":1},{"year":2022,"cited_by_count":1},{"year":2021,"cited_by_count":3}],"updated_date":"2026-06-11T09:08:48.828518","created_date":"2025-10-10T00:00:00"}