{"id":"https://openalex.org/W2077899463","doi":"https://doi.org/10.1109/embc.2012.6347332","title":"Improvement of surveillance of hemophilia treatment through ICTs","display_name":"Improvement of surveillance of hemophilia treatment through ICTs","publication_year":2012,"publication_date":"2012-08-01","ids":{"openalex":"https://openalex.org/W2077899463","doi":"https://doi.org/10.1109/embc.2012.6347332","mag":"2077899463","pmid":"https://pubmed.ncbi.nlm.nih.gov/23367267"},"language":"en","primary_location":{"id":"doi:10.1109/embc.2012.6347332","is_oa":false,"landing_page_url":"https://doi.org/10.1109/embc.2012.6347332","pdf_url":null,"source":null,"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"2012 Annual International Conference of the IEEE Engineering in Medicine and Biology Society","raw_type":"proceedings-article"},"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5031788880","display_name":"Leonor Teixeira","orcid":"https://orcid.org/0000-0002-7791-1932"},"institutions":[{"id":"https://openalex.org/I60858718","display_name":"University of Aveiro","ror":"https://ror.org/00nt41z93","country_code":"PT","type":"education","lineage":["https://openalex.org/I60858718"]}],"countries":["PT"],"is_corresponding":true,"raw_author_name":"L. Teixeira","raw_affiliation_strings":["Department of Economics, Management and Industrial Engineering, and Governance, Competitiveness and Public Politics (GOVCOPP), Aveiro University, Portugal. lteixeira@ua.pt","Department of Economics, Management and Industrial Engineering and Governance, Competitiveness and Public Politics (GOVCOPP), the Institute of Electronics and Telematics Engineering of Aveiro (IEETA), Aveiro University, Portugal"],"affiliations":[{"raw_affiliation_string":"Department of Economics, Management and Industrial Engineering, and Governance, Competitiveness and Public Politics (GOVCOPP), Aveiro University, Portugal. lteixeira@ua.pt","institution_ids":["https://openalex.org/I60858718"]},{"raw_affiliation_string":"Department of Economics, Management and Industrial Engineering and Governance, Competitiveness and Public Politics (GOVCOPP), the Institute of Electronics and Telematics Engineering of Aveiro (IEETA), Aveiro University, Portugal","institution_ids":["https://openalex.org/I60858718"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5038706231","display_name":"Vasco Saavedra","orcid":"https://orcid.org/0000-0002-1302-8286"},"institutions":[{"id":"https://openalex.org/I60858718","display_name":"University of Aveiro","ror":"https://ror.org/00nt41z93","country_code":"PT","type":"education","lineage":["https://openalex.org/I60858718"]}],"countries":["PT"],"is_corresponding":false,"raw_author_name":"V. Saavedra","raw_affiliation_strings":["Department of Economics, Management and Industrial Engineering, Aveiro University, Portugal"],"affiliations":[{"raw_affiliation_string":"Department of Economics, Management and Industrial Engineering, Aveiro University, Portugal","institution_ids":["https://openalex.org/I60858718"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5107171727","display_name":"Carlos Ferreira","orcid":"https://orcid.org/0000-0002-2799-643X"},"institutions":[{"id":"https://openalex.org/I60858718","display_name":"University of Aveiro","ror":"https://ror.org/00nt41z93","country_code":"PT","type":"education","lineage":["https://openalex.org/I60858718"]}],"countries":["PT"],"is_corresponding":false,"raw_author_name":"C. Ferreira","raw_affiliation_strings":["Department of Economics, Management and Industrial Engineering, Aveiro University, Aveiro, Portugal","Operational Research Centre (CIO), Lisbon University, Portugal"],"affiliations":[{"raw_affiliation_string":"Department of Economics, Management and Industrial Engineering, Aveiro University, Aveiro, Portugal","institution_ids":["https://openalex.org/I60858718"]},{"raw_affiliation_string":"Operational Research Centre (CIO), Lisbon University, Portugal","institution_ids":[]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5026656653","display_name":"Beatriz Sousa Santos","orcid":"https://orcid.org/0000-0002-2219-2731"},"institutions":[{"id":"https://openalex.org/I60858718","display_name":"University of Aveiro","ror":"https://ror.org/00nt41z93","country_code":"PT","type":"education","lineage":["https://openalex.org/I60858718"]}],"countries":["PT"],"is_corresponding":false,"raw_author_name":"Beatriz Sousa Santos","raw_affiliation_strings":["Department of Electronics, Telecommunications and Informatics and the Institute of Electronics andTelematics Engineering of Aveiro (IEETA), Aveiro University, Portugal"],"affiliations":[{"raw_affiliation_string":"Department of Electronics, Telecommunications and Informatics and the Institute of Electronics andTelematics Engineering of Aveiro (IEETA), Aveiro University, Portugal","institution_ids":["https://openalex.org/I60858718"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":4,"corresponding_author_ids":["https://openalex.org/A5031788880"],"corresponding_institution_ids":["https://openalex.org/I60858718"],"apc_list":null,"apc_paid":null,"fwci":0.0,"has_fulltext":false,"cited_by_count":2,"citation_normalized_percentile":{"value":0.10463707,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":89,"max":94},"biblio":{"volume":"15","issue":null,"first_page":"5883","last_page":"5886"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11280","display_name":"Hemophilia Treatment and Research","score":0.9919999837875366,"subfield":{"id":"https://openalex.org/subfields/2720","display_name":"Hematology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T11280","display_name":"Hemophilia Treatment and Research","score":0.9919999837875366,"subfield":{"id":"https://openalex.org/subfields/2720","display_name":"Hematology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.6096127033233643},{"id":"https://openalex.org/keywords/disease","display_name":"Disease","score":0.54288649559021},{"id":"https://openalex.org/keywords/clotting-factor","display_name":"Clotting factor","score":0.5129532217979431},{"id":"https://openalex.org/keywords/intensive-care-medicine","display_name":"Intensive care medicine","score":0.4939928650856018},{"id":"https://openalex.org/keywords/disease-management","display_name":"Disease management","score":0.4416777193546295},{"id":"https://openalex.org/keywords/medical-emergency","display_name":"Medical emergency","score":0.3803367614746094},{"id":"https://openalex.org/keywords/internal-medicine","display_name":"Internal medicine","score":0.0937904417514801}],"concepts":[{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.6096127033233643},{"id":"https://openalex.org/C2779134260","wikidata":"https://www.wikidata.org/wiki/Q12136","display_name":"Disease","level":2,"score":0.54288649559021},{"id":"https://openalex.org/C2992139802","wikidata":"https://www.wikidata.org/wiki/Q179217","display_name":"Clotting factor","level":2,"score":0.5129532217979431},{"id":"https://openalex.org/C177713679","wikidata":"https://www.wikidata.org/wiki/Q679690","display_name":"Intensive care medicine","level":1,"score":0.4939928650856018},{"id":"https://openalex.org/C2982889124","wikidata":"https://www.wikidata.org/wiki/Q107439039","display_name":"Disease management","level":4,"score":0.4416777193546295},{"id":"https://openalex.org/C545542383","wikidata":"https://www.wikidata.org/wiki/Q2751242","display_name":"Medical emergency","level":1,"score":0.3803367614746094},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.0937904417514801},{"id":"https://openalex.org/C2779734285","wikidata":"https://www.wikidata.org/wiki/Q11085","display_name":"Parkinson's disease","level":3,"score":0.0}],"mesh":[{"descriptor_ui":"D003142","descriptor_name":"Communication","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D003142","descriptor_name":"Communication","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D003142","descriptor_name":"Communication","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D006467","descriptor_name":"Hemophilia A","qualifier_ui":"Q000628","qualifier_name":"therapy","is_major_topic":false},{"descriptor_ui":"D006467","descriptor_name":"Hemophilia A","qualifier_ui":"Q000628","qualifier_name":"therapy","is_major_topic":false},{"descriptor_ui":"D006467","descriptor_name":"Hemophilia A","qualifier_ui":"Q000628","qualifier_name":"therapy","is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007255","descriptor_name":"Information Services","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D007255","descriptor_name":"Information Services","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D007255","descriptor_name":"Information Services","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D013222","descriptor_name":"State Medicine","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D013222","descriptor_name":"State Medicine","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D013222","descriptor_name":"State Medicine","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false}],"locations_count":2,"locations":[{"id":"doi:10.1109/embc.2012.6347332","is_oa":false,"landing_page_url":"https://doi.org/10.1109/embc.2012.6347332","pdf_url":null,"source":null,"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"2012 Annual International Conference of the IEEE Engineering in Medicine and Biology Society","raw_type":"proceedings-article"},{"id":"pmid:23367267","is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/23367267","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Annual International Conference of the IEEE Engineering in Medicine and Biology Society. IEEE Engineering in Medicine and Biology Society. Annual International Conference","raw_type":null}],"best_oa_location":null,"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","score":0.46000000834465027,"display_name":"Good health and well-being"}],"awards":[],"funders":[],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":14,"referenced_works":["https://openalex.org/W1581778438","https://openalex.org/W1968520195","https://openalex.org/W1991167523","https://openalex.org/W2009908952","https://openalex.org/W2013406302","https://openalex.org/W2024663414","https://openalex.org/W2039129977","https://openalex.org/W2044978727","https://openalex.org/W2048717298","https://openalex.org/W2051453205","https://openalex.org/W2052579771","https://openalex.org/W2055531892","https://openalex.org/W2076774655","https://openalex.org/W2153177348"],"related_works":["https://openalex.org/W3189478107","https://openalex.org/W4377093630","https://openalex.org/W2385644071","https://openalex.org/W2800471940","https://openalex.org/W2319405020","https://openalex.org/W2045618964","https://openalex.org/W2610428298","https://openalex.org/W2005139390","https://openalex.org/W2585563299","https://openalex.org/W1592960738"],"abstract_inverted_index":{"Hemophilia,":[0],"in":[1,33,123],"addition":[2],"of":[3,49,52,81,103,116,126,137],"being":[4],"a":[5,10,117,141],"chronic":[6],"disease,":[7,12,83],"is":[8,55],"also":[9,98],"rare":[11],"and":[13,101,129,146],"as":[14,131,133],"such,":[15,77],"quite":[16],"expensive":[17],"for":[18,72,87],"the":[19,26,30,41,46,63,69,99,105,135],"National":[20],"Health":[21],"Service":[22],"(NHS)":[23],"due":[24,44],"to":[25,45,57,68,111],"cost":[27],"associated":[28,106],"with":[29,84],"drugs":[31],"used":[32],"treatments":[34,64],"(Clotting":[35],"Factor":[36],"Concentrate":[37],"-":[38],"CFC).":[39],"On":[40],"other":[42],"hand,":[43],"specific":[47,114,142],"characteristics":[48],"this":[50,82],"type":[51],"disorder,":[53],"it":[54],"necessary":[56],"ensure":[58],"that":[59,120],"data":[60],"generated":[61],"during":[62],"are":[65],"quickly":[66],"communicated":[67],"clinicians":[70],"responsible":[71],"monitoring":[73],"those":[74],"patients.":[75],"As":[76],"an":[78,92],"effective":[79],"management":[80,95,102],"maximum":[85],"safety":[86],"patients,":[88,127],"involves":[89],"not":[90],"only":[91],"efficient":[93],"information":[94],"process,":[96],"but":[97],"coordination":[100],"all":[104],"resources.":[107],"This":[108],"article":[109],"aims":[110],"present":[112],"one":[113],"component":[115],"technological":[118],"solution":[119],"can":[121],"help":[122],"coordinate":[124],"actions":[125],"physicians":[128],"nurses,":[130],"well":[132],"improve":[134],"surveillance":[136],"hemophilia":[138],"treatment,":[139],"within":[140],"Comprehensive":[143],"Hemophilia":[144],"Diagnostic":[145],"Treatment":[147],"Center":[148],"(HTC).":[149]},"counts_by_year":[{"year":2020,"cited_by_count":1},{"year":2019,"cited_by_count":1}],"updated_date":"2026-01-13T01:12:25.745995","created_date":"2025-10-10T00:00:00"}