{"id":"https://openalex.org/W2999867149","doi":"https://doi.org/10.1109/bibe.2019.00079","title":"Using Electronic Patient Reported Outcomes to Foster Palliative Cancer Care: The MyPal Approach","display_name":"Using Electronic Patient Reported Outcomes to Foster Palliative Cancer Care: The MyPal Approach","publication_year":2019,"publication_date":"2019-10-01","ids":{"openalex":"https://openalex.org/W2999867149","doi":"https://doi.org/10.1109/bibe.2019.00079","mag":"2999867149"},"language":"en","primary_location":{"id":"doi:10.1109/bibe.2019.00079","is_oa":false,"landing_page_url":"https://doi.org/10.1109/bibe.2019.00079","pdf_url":null,"source":null,"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"2019 IEEE 19th International Conference on Bioinformatics and Bioengineering (BIBE)","raw_type":"proceedings-article"},"type":"conference-paper","indexed_in":["crossref"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":null,"display_name":"Christos Maramis","orcid":null},"institutions":[{"id":"https://openalex.org/I4210134249","display_name":"Centre for Research and Technology Hellas","ror":"https://ror.org/03bndpq63","country_code":"GR","type":"facility","lineage":["https://openalex.org/I4210134249"]}],"countries":["GR"],"is_corresponding":false,"raw_author_name":"Christos Maramis","raw_affiliation_strings":["Centre for Research & Technology Hellas"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Centre for Research & Technology Hellas","institution_ids":["https://openalex.org/I4210134249"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5033681686","display_name":"Christina Karamanidou","orcid":"https://orcid.org/0000-0002-2849-3690"},"institutions":[{"id":"https://openalex.org/I4210134249","display_name":"Centre for Research and Technology Hellas","ror":"https://ror.org/03bndpq63","country_code":"GR","type":"facility","lineage":["https://openalex.org/I4210134249"]}],"countries":["GR"],"is_corresponding":false,"raw_author_name":"Christina Karamanidou","raw_affiliation_strings":["Centre for Research and Technology Hellas","Centre for Research & Technology Hellas, Thessaloniki, Greece"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Centre for Research and Technology Hellas","institution_ids":["https://openalex.org/I4210134249"]},{"raw_affiliation_string":"Centre for Research & Technology Hellas, Thessaloniki, Greece","institution_ids":["https://openalex.org/I4210134249"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5091783417","display_name":"Fatima Schera","orcid":"https://orcid.org/0000-0001-8506-406X"},"institutions":[{"id":"https://openalex.org/I4210152467","display_name":"Fraunhofer Institute for Biomedical Engineering","ror":"https://ror.org/05tpsgh61","country_code":"DE","type":"facility","lineage":["https://openalex.org/I4210152467","https://openalex.org/I4923324"]}],"countries":["DE"],"is_corresponding":false,"raw_author_name":"Fatima Schera","raw_affiliation_strings":["Fraunhofer Institute for Biomedical Engineering","Fraunhofer Institute for Biomedical Engineering, Sulzbach, Germany"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Fraunhofer Institute for Biomedical Engineering","institution_ids":["https://openalex.org/I4210152467"]},{"raw_affiliation_string":"Fraunhofer Institute for Biomedical Engineering, Sulzbach, Germany","institution_ids":["https://openalex.org/I4210152467"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5009660597","display_name":"Stephan Kiefer","orcid":"https://orcid.org/0000-0001-6840-6240"},"institutions":[{"id":"https://openalex.org/I4210152467","display_name":"Fraunhofer Institute for Biomedical Engineering","ror":"https://ror.org/05tpsgh61","country_code":"DE","type":"facility","lineage":["https://openalex.org/I4210152467","https://openalex.org/I4923324"]}],"countries":["DE"],"is_corresponding":false,"raw_author_name":"Stephan Kiefer","raw_affiliation_strings":["Fraunhofer Institute for Biomedical Engineering","Fraunhofer Institute for Biomedical Engineering, Sulzbach, Germany"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Fraunhofer Institute for Biomedical Engineering","institution_ids":["https://openalex.org/I4210152467"]},{"raw_affiliation_string":"Fraunhofer Institute for Biomedical Engineering, Sulzbach, Germany","institution_ids":["https://openalex.org/I4210152467"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5024944038","display_name":"Lefteris Koumakis","orcid":"https://orcid.org/0000-0002-8442-4630"},"institutions":[{"id":"https://openalex.org/I8901234","display_name":"Foundation for Research and Technology Hellas","ror":"https://ror.org/052rphn09","country_code":"GR","type":"facility","lineage":["https://openalex.org/I8901234"]}],"countries":["GR"],"is_corresponding":false,"raw_author_name":"Lefteris Koumakis","raw_affiliation_strings":["Foundation for Research & Technology - Hellas","Foundation for Research & Technology - Hellas, Heraklion, Greece"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Foundation for Research & Technology - Hellas","institution_ids":["https://openalex.org/I8901234"]},{"raw_affiliation_string":"Foundation for Research & Technology - Hellas, Heraklion, Greece","institution_ids":["https://openalex.org/I8901234"]}]},{"author_position":"middle","author":{"id":null,"display_name":"Konstantinos Marias","orcid":null},"institutions":[{"id":"https://openalex.org/I8901234","display_name":"Foundation for Research and Technology Hellas","ror":"https://ror.org/052rphn09","country_code":"GR","type":"facility","lineage":["https://openalex.org/I8901234"]}],"countries":["GR"],"is_corresponding":false,"raw_author_name":"Konstantinos Marias","raw_affiliation_strings":["Foundation for Research & Technology - Hellas","Foundation for Research & Technology - Hellas, Heraklion, Greece"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Foundation for Research & Technology - Hellas","institution_ids":["https://openalex.org/I8901234"]},{"raw_affiliation_string":"Foundation for Research & Technology - Hellas, Heraklion, Greece","institution_ids":["https://openalex.org/I8901234"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5076846514","display_name":"Stefan Hoffmann","orcid":null},"institutions":[{"id":"https://openalex.org/I4210087817","display_name":"Software (Germany)","ror":"https://ror.org/004g36n56","country_code":"DE","type":"company","lineage":["https://openalex.org/I4210087817"]}],"countries":["DE"],"is_corresponding":false,"raw_author_name":"Stefan Hoffmann","raw_affiliation_strings":["Promotion Software, Germany","Promotion Software, Tubingen, Germany"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Promotion Software, Germany","institution_ids":[]},{"raw_affiliation_string":"Promotion Software, Tubingen, Germany","institution_ids":["https://openalex.org/I4210087817"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5043103946","display_name":"Heather Parker","orcid":null},"institutions":[{"id":"https://openalex.org/I4210136096","display_name":"Atlantic Healthcare (United Kingdom)","ror":"https://ror.org/03tx9h743","country_code":"GB","type":"company","lineage":["https://openalex.org/I4210136096"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Heather Parker","raw_affiliation_strings":["Atlantis Healthcare, United Kingdom"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Atlantis Healthcare, United Kingdom","institution_ids":["https://openalex.org/I4210136096"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5023243714","display_name":"Jonathan Reston","orcid":"https://orcid.org/0000-0002-5164-782X"},"institutions":[{"id":"https://openalex.org/I4210136096","display_name":"Atlantic Healthcare (United Kingdom)","ror":"https://ror.org/03tx9h743","country_code":"GB","type":"company","lineage":["https://openalex.org/I4210136096"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Jonathan Reston","raw_affiliation_strings":["Atlantis Healthcare, United Kingdom"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Atlantis Healthcare, United Kingdom","institution_ids":["https://openalex.org/I4210136096"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5085227797","display_name":"Sheila Payne","orcid":"https://orcid.org/0000-0001-6982-9181"},"institutions":[{"id":"https://openalex.org/I67415387","display_name":"Lancaster University","ror":"https://ror.org/04f2nsd36","country_code":"GB","type":"education","lineage":["https://openalex.org/I67415387"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Sheila Payne","raw_affiliation_strings":["Lancaster University","Lancaster University, Lancaster, UK"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Lancaster University","institution_ids":["https://openalex.org/I67415387"]},{"raw_affiliation_string":"Lancaster University, Lancaster, UK","institution_ids":["https://openalex.org/I67415387"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5071015212","display_name":"\u0160\u00e1rka Posp\u0131\u0301\u0161ilov\u00e1","orcid":"https://orcid.org/0000-0001-7136-2680"},"institutions":[{"id":"https://openalex.org/I21449261","display_name":"Masaryk University","ror":"https://ror.org/02j46qs45","country_code":"CZ","type":"education","lineage":["https://openalex.org/I21449261"]}],"countries":["CZ"],"is_corresponding":false,"raw_author_name":"Sarka Pospisilova","raw_affiliation_strings":["Masaryk University","Masaryk University, Brno, Czech Republic"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Masaryk University","institution_ids":["https://openalex.org/I21449261"]},{"raw_affiliation_string":"Masaryk University, Brno, Czech Republic","institution_ids":["https://openalex.org/I21449261"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5018989565","display_name":"Richard Rosenquist","orcid":"https://orcid.org/0000-0002-0211-8788"},"institutions":[{"id":"https://openalex.org/I28166907","display_name":"Karolinska Institutet","ror":"https://ror.org/056d84691","country_code":"SE","type":"education","lineage":["https://openalex.org/I28166907"]}],"countries":["SE"],"is_corresponding":false,"raw_author_name":"Richard Rosenquist","raw_affiliation_strings":["Karolinska Institute, Sweden","Karolinska Institute, Stockholm, Sweden"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Karolinska Institute, Sweden","institution_ids":["https://openalex.org/I28166907"]},{"raw_affiliation_string":"Karolinska Institute, Stockholm, Sweden","institution_ids":["https://openalex.org/I28166907"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5087770514","display_name":"Paolo Ghia","orcid":"https://orcid.org/0000-0003-3750-7342"},"institutions":[{"id":"https://openalex.org/I154387261","display_name":"Vita-Salute San Raffaele University","ror":"https://ror.org/01gmqr298","country_code":"IT","type":"education","lineage":["https://openalex.org/I154387261"]}],"countries":["IT"],"is_corresponding":false,"raw_author_name":"Paolo Ghia","raw_affiliation_strings":["Vita-Salute San Raffaele University, Italy","Vita-Salute San Raffaele University, Milan, Italy"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Vita-Salute San Raffaele University, Italy","institution_ids":["https://openalex.org/I154387261"]},{"raw_affiliation_string":"Vita-Salute San Raffaele University, Milan, Italy","institution_ids":["https://openalex.org/I154387261"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5048068750","display_name":"Charalampos Pontikoglou","orcid":"https://orcid.org/0009-0002-7198-3887"},"institutions":[{"id":"https://openalex.org/I4210134249","display_name":"Centre for Research and Technology Hellas","ror":"https://ror.org/03bndpq63","country_code":"GR","type":"facility","lineage":["https://openalex.org/I4210134249"]},{"id":"https://openalex.org/I4210138654","display_name":"University Hospital of Heraklion","ror":"https://ror.org/0312m2266","country_code":"GR","type":"healthcare","lineage":["https://openalex.org/I4210138654"]}],"countries":["GR"],"is_corresponding":false,"raw_author_name":"Charalampos Pontikoglou","raw_affiliation_strings":["University General Hospital of Heraklion","Centre for Research & Technology Hellas, Thessaloniki, Greece; University General Hospital of Heraklion, Heraklion, Greece"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University General Hospital of Heraklion","institution_ids":["https://openalex.org/I4210138654"]},{"raw_affiliation_string":"Centre for Research & Technology Hellas, Thessaloniki, Greece; University General Hospital of Heraklion, Heraklion, Greece","institution_ids":["https://openalex.org/I4210134249","https://openalex.org/I4210138654"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5045824611","display_name":"Annette Sander","orcid":"https://orcid.org/0000-0001-8937-7485"},"institutions":[{"id":"https://openalex.org/I34809795","display_name":"Medizinische Hochschule Hannover","ror":"https://ror.org/00f2yqf98","country_code":"DE","type":"education","lineage":["https://openalex.org/I34809795"]},{"id":"https://openalex.org/I4210134249","display_name":"Centre for Research and Technology Hellas","ror":"https://ror.org/03bndpq63","country_code":"GR","type":"facility","lineage":["https://openalex.org/I4210134249"]}],"countries":["DE","GR"],"is_corresponding":false,"raw_author_name":"Annette Sander","raw_affiliation_strings":["Hannover Medical School, Germany","Centre for Research & Technology Hellas, Thessaloniki, Greece; Medical School, Hannover University, Hannover, Germany"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Hannover Medical School, Germany","institution_ids":["https://openalex.org/I34809795"]},{"raw_affiliation_string":"Centre for Research & Technology Hellas, Thessaloniki, Greece; Medical School, Hannover University, Hannover, Germany","institution_ids":["https://openalex.org/I4210134249"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5042672780","display_name":"Michael Doubek","orcid":"https://orcid.org/0000-0002-1269-6282"},"institutions":[{"id":"https://openalex.org/I4210102302","display_name":"University Hospital Brno","ror":"https://ror.org/00qq1fp34","country_code":"CZ","type":"healthcare","lineage":["https://openalex.org/I4210102302"]},{"id":"https://openalex.org/I4210134249","display_name":"Centre for Research and Technology Hellas","ror":"https://ror.org/03bndpq63","country_code":"GR","type":"facility","lineage":["https://openalex.org/I4210134249"]}],"countries":["CZ","GR"],"is_corresponding":false,"raw_author_name":"Michael Doubek","raw_affiliation_strings":["University Hospital Brno","Centre for Research & Technology Hellas, Thessaloniki, Greece; University Hospital Brno, Brno, Czech Republic"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University Hospital Brno","institution_ids":["https://openalex.org/I4210102302"]},{"raw_affiliation_string":"Centre for Research & Technology Hellas, Thessaloniki, Greece; University Hospital Brno, Brno, Czech Republic","institution_ids":["https://openalex.org/I4210102302","https://openalex.org/I4210134249"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5029830172","display_name":"Norbert Graf","orcid":"https://orcid.org/0000-0002-2248-323X"},"institutions":[{"id":"https://openalex.org/I4210134249","display_name":"Centre for Research and Technology Hellas","ror":"https://ror.org/03bndpq63","country_code":"GR","type":"facility","lineage":["https://openalex.org/I4210134249"]},{"id":"https://openalex.org/I91712215","display_name":"Saarland University","ror":"https://ror.org/01jdpyv68","country_code":"DE","type":"education","lineage":["https://openalex.org/I91712215"]}],"countries":["DE","GR"],"is_corresponding":false,"raw_author_name":"Norbert Graf","raw_affiliation_strings":["Saarland University","Centre for Research & Technology Hellas, Thessaloniki, Greece; Saarland University, Saarbrucken, Germany"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Saarland University","institution_ids":["https://openalex.org/I91712215"]},{"raw_affiliation_string":"Centre for Research & Technology Hellas, Thessaloniki, Greece; Saarland University, Saarbrucken, Germany","institution_ids":["https://openalex.org/I4210134249","https://openalex.org/I91712215"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5038941166","display_name":"Julie Ling","orcid":"https://orcid.org/0000-0001-6187-8253"},"institutions":[{"id":"https://openalex.org/I4210134249","display_name":"Centre for Research and Technology Hellas","ror":"https://ror.org/03bndpq63","country_code":"GR","type":"facility","lineage":["https://openalex.org/I4210134249"]},{"id":"https://openalex.org/I4210156108","display_name":"European Association for Palliative Care","ror":"https://ror.org/042jjy888","country_code":"BE","type":"nonprofit","lineage":["https://openalex.org/I4210156108"]}],"countries":["BE","GR"],"is_corresponding":false,"raw_author_name":"Julie Ling","raw_affiliation_strings":["European Association for Palliative Care, Belgium","Centre for Research & Technology Hellas, Thessaloniki, Greece; European Association for Palliative Care, Vilvoorde, Belgium"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"European Association for Palliative Care, Belgium","institution_ids":["https://openalex.org/I4210156108"]},{"raw_affiliation_string":"Centre for Research & Technology Hellas, Thessaloniki, Greece; European Association for Palliative Care, Vilvoorde, Belgium","institution_ids":["https://openalex.org/I4210134249","https://openalex.org/I4210156108"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5058318117","display_name":"Julia Downing","orcid":"https://orcid.org/0000-0002-3450-785X"},"institutions":[{"id":"https://openalex.org/I4210134249","display_name":"Centre for Research and Technology Hellas","ror":"https://ror.org/03bndpq63","country_code":"GR","type":"facility","lineage":["https://openalex.org/I4210134249"]}],"countries":["GR"],"is_corresponding":false,"raw_author_name":"Julia Downing","raw_affiliation_strings":["International Children's Palliative Care Network, United Kingdom","Centre for Research & Technology Hellas, Thessaloniki, Greece; International Children's Palliative Care Network, United Kingdom"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"International Children's Palliative Care Network, United Kingdom","institution_ids":[]},{"raw_affiliation_string":"Centre for Research & Technology Hellas, Thessaloniki, Greece; International Children's Palliative Care Network, United Kingdom","institution_ids":["https://openalex.org/I4210134249"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5088323388","display_name":"Elpida Pavi","orcid":null},"institutions":[{"id":"https://openalex.org/I4210094138","display_name":"University of West Attica","ror":"https://ror.org/00r2r5k05","country_code":"GR","type":"education","lineage":["https://openalex.org/I4210094138"]},{"id":"https://openalex.org/I4210134249","display_name":"Centre for Research and Technology Hellas","ror":"https://ror.org/03bndpq63","country_code":"GR","type":"facility","lineage":["https://openalex.org/I4210134249"]}],"countries":["GR"],"is_corresponding":false,"raw_author_name":"Elpida Pavi","raw_affiliation_strings":["University of West Attica","Centre for Research & Technology Hellas, Thessaloniki, Greece; University of West Attica, Athens, Greece"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"University of West Attica","institution_ids":["https://openalex.org/I4210094138"]},{"raw_affiliation_string":"Centre for Research & Technology Hellas, Thessaloniki, Greece; University of West Attica, Athens, Greece","institution_ids":["https://openalex.org/I4210094138","https://openalex.org/I4210134249"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5079365908","display_name":"Vassilis Koutkias","orcid":"https://orcid.org/0000-0003-4154-850X"},"institutions":[{"id":"https://openalex.org/I4210134249","display_name":"Centre for Research and Technology Hellas","ror":"https://ror.org/03bndpq63","country_code":"GR","type":"facility","lineage":["https://openalex.org/I4210134249"]}],"countries":["GR"],"is_corresponding":false,"raw_author_name":"Vassilis Koutkias","raw_affiliation_strings":["Centre for Research & Technology Hellas","Centre for Research & Technology Hellas, Thessaloniki, Greece"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Centre for Research & Technology Hellas","institution_ids":["https://openalex.org/I4210134249"]},{"raw_affiliation_string":"Centre for Research & Technology Hellas, Thessaloniki, Greece","institution_ids":["https://openalex.org/I4210134249"]}]}],"institutions":[],"countries_distinct_count":7,"institutions_distinct_count":15,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":2.4745,"has_fulltext":false,"cited_by_count":14,"citation_normalized_percentile":{"value":0.90473301,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":89,"max":97},"biblio":{"volume":null,"issue":null,"first_page":"405","last_page":"409"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10178","display_name":"Cancer survivorship and care","score":0.9968000054359436,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10178","display_name":"Cancer survivorship and care","score":0.9968000054359436,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T12172","display_name":"Neutropenia and Cancer Infections","score":0.995199978351593,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11141","display_name":"Childhood Cancer Survivors' Quality of Life","score":0.994700014591217,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/psychological-intervention","display_name":"Psychological intervention","score":0.7869546413421631},{"id":"https://openalex.org/keywords/palliative-care","display_name":"Palliative care","score":0.7653707265853882},{"id":"https://openalex.org/keywords/ehealth","display_name":"eHealth","score":0.7031683921813965},{"id":"https://openalex.org/keywords/observational-study","display_name":"Observational study","score":0.6886888742446899},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.6677225828170776},{"id":"https://openalex.org/keywords/quality-of-life","display_name":"Quality of life (healthcare)","score":0.5714496970176697},{"id":"https://openalex.org/keywords/randomized-controlled-trial","display_name":"Randomized controlled trial","score":0.5470867156982422},{"id":"https://openalex.org/keywords/cancer","display_name":"Cancer","score":0.44738131761550903},{"id":"https://openalex.org/keywords/family-medicine","display_name":"Family medicine","score":0.39716023206710815},{"id":"https://openalex.org/keywords/health-care","display_name":"Health care","score":0.3387860357761383},{"id":"https://openalex.org/keywords/nursing","display_name":"Nursing","score":0.22817298769950867},{"id":"https://openalex.org/keywords/internal-medicine","display_name":"Internal medicine","score":0.09986034035682678}],"concepts":[{"id":"https://openalex.org/C27415008","wikidata":"https://www.wikidata.org/wiki/Q7256382","display_name":"Psychological intervention","level":2,"score":0.7869546413421631},{"id":"https://openalex.org/C2994186709","wikidata":"https://www.wikidata.org/wiki/Q29483","display_name":"Palliative care","level":2,"score":0.7653707265853882},{"id":"https://openalex.org/C202645933","wikidata":"https://www.wikidata.org/wiki/Q4930","display_name":"eHealth","level":3,"score":0.7031683921813965},{"id":"https://openalex.org/C23131810","wikidata":"https://www.wikidata.org/wiki/Q818574","display_name":"Observational study","level":2,"score":0.6886888742446899},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.6677225828170776},{"id":"https://openalex.org/C2779951463","wikidata":"https://www.wikidata.org/wiki/Q7268788","display_name":"Quality of life (healthcare)","level":2,"score":0.5714496970176697},{"id":"https://openalex.org/C168563851","wikidata":"https://www.wikidata.org/wiki/Q1436668","display_name":"Randomized controlled trial","level":2,"score":0.5470867156982422},{"id":"https://openalex.org/C121608353","wikidata":"https://www.wikidata.org/wiki/Q12078","display_name":"Cancer","level":2,"score":0.44738131761550903},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.39716023206710815},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.3387860357761383},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.22817298769950867},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.09986034035682678},{"id":"https://openalex.org/C162324750","wikidata":"https://www.wikidata.org/wiki/Q8134","display_name":"Economics","level":0,"score":0.0},{"id":"https://openalex.org/C50522688","wikidata":"https://www.wikidata.org/wiki/Q189833","display_name":"Economic growth","level":1,"score":0.0}],"mesh":[],"locations_count":3,"locations":[{"id":"doi:10.1109/bibe.2019.00079","is_oa":false,"landing_page_url":"https://doi.org/10.1109/bibe.2019.00079","pdf_url":null,"source":null,"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"2019 IEEE 19th International Conference on Bioinformatics and Bioengineering (BIBE)","raw_type":"proceedings-article"},{"id":"pmh:oai:fraunhofer.de:N-629235","is_oa":false,"landing_page_url":"http://publica.fraunhofer.de/documents/N-629235.html","pdf_url":null,"source":{"id":"https://openalex.org/S4306400801","display_name":"Publikationsdatenbank der Fraunhofer-Gesellschaft (Fraunhofer-Gesellschaft)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I4923324","host_organization_name":"Fraunhofer-Gesellschaft","host_organization_lineage":["https://openalex.org/I4923324"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Fraunhofer IBMT","raw_type":"Conference Paper"},{"id":"pmh:oai:publica.fraunhofer.de:publica/411118","is_oa":false,"landing_page_url":"https://publica.fraunhofer.de/handle/publica/411118","pdf_url":null,"source":{"id":"https://openalex.org/S4306400318","display_name":"Fraunhofer-Publica (Fraunhofer-Gesellschaft)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I4923324","host_organization_name":"Fraunhofer-Gesellschaft","host_organization_lineage":["https://openalex.org/I4923324"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"conference paper"}],"best_oa_location":null,"sustainable_development_goals":[{"score":0.4300000071525574,"id":"https://metadata.un.org/sdg/17","display_name":"Partnerships for the goals"}],"awards":[],"funders":[],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":8,"referenced_works":["https://openalex.org/W19399978","https://openalex.org/W1967008538","https://openalex.org/W1979144446","https://openalex.org/W2068366821","https://openalex.org/W2604093837","https://openalex.org/W2770850391","https://openalex.org/W2888640271","https://openalex.org/W6600808634"],"related_works":["https://openalex.org/W1967947002","https://openalex.org/W2318707379","https://openalex.org/W2616141209","https://openalex.org/W2550575390","https://openalex.org/W2091031254","https://openalex.org/W4312214387","https://openalex.org/W2108965305","https://openalex.org/W4210484722","https://openalex.org/W2898310148","https://openalex.org/W4214506880"],"abstract_inverted_index":{"Palliative":[0],"care":[1,35,86,113],"is":[2,36],"offered":[3],"along":[4],"with":[5,147],"primary":[6],"treatment":[7],"to":[8,99,104,179],"improve":[9],"the":[10,15,19,46,50,63,120,130,153,159,163,168,174],"quality":[11],"of":[12,14,23,45,49,83,127],"life":[13],"patient":[16],"by":[17,62],"relieving":[18],"symptoms":[20],"and":[21,41,68,106,145,172,192,198],"stress":[22],"a":[24,124,187],"serious":[25],"illness":[26],"such":[27],"as":[28,80],"cancer.":[29],"As":[30],"per":[31],"modern":[32],"definitions,":[33],"palliative":[34,85,112],"appropriate":[37],"at":[38,42],"any":[39,43],"age":[40],"stage":[44],"illness,":[47],"regardless":[48],"eventual":[51],"outcome.":[52],"Patient-reported":[53],"outcomes":[54],"(PRO),":[55],"i.e.,":[56,133,186],"health":[57],"status":[58],"measurements":[59],"reported":[60],"directly":[61],"patients":[64],"or":[65,141,149],"their":[66,70],"proxies,":[67],"especially":[69],"availability":[71],"in":[72],"electronic":[73],"form":[74],"(ePROs),":[75],"are":[76],"gradually":[77],"gaining":[78],"popularity":[79],"building":[81],"blocks":[82],"innovative":[84],"interventions.":[87],"This":[88],"paper":[89,121],"presents":[90],"MyPal,":[91],"an":[92,193],"EC-funded":[93],"collaborative":[94],"research":[95],"project":[96],"that":[97],"aims":[98],"exploit":[100],"advanced":[101],"eHealth":[102,164],"technologies":[103],"develop":[105],"evaluate":[107],"two":[108],"novel":[109],"ePRO-based":[110,154],"general":[111],"interventions":[114,155,169],"for":[115,158,166,182,196],"cancer":[116],"patients.":[117],"In":[118],"particular,":[119],"presents:":[122],"(1)":[123],"short":[125],"overview":[126],"MyPal;":[128],"(2)":[129],"target":[131,160],"populations,":[132,161],"adults":[134,197],"suffering":[135],"from":[136],"chronic":[137],"lymphocytic":[138],"leukemia":[139],"(CLL)":[140],"myelodysplastic":[142],"syndromes":[143],"(MDS),":[144],"children":[146],"solid":[148],"hematologic":[150],"malignancies;":[151],"(3)":[152],"being":[156],"designed":[157],"(4)":[162],"platform":[165],"delivering":[167],"under":[170],"development,":[171],"(5)":[173],"international,":[175],"multi-center":[176],"clinical":[177],"studies":[178],"be":[180],"conducted":[181],"assessing":[183],"these":[184],"interventions,":[185],"randomized":[188],"controlled":[189],"trial":[190],"(RCT)":[191],"observational":[194],"study":[195],"children,":[199],"respectively.":[200]},"counts_by_year":[{"year":2025,"cited_by_count":3},{"year":2024,"cited_by_count":3},{"year":2023,"cited_by_count":3},{"year":2022,"cited_by_count":1},{"year":2021,"cited_by_count":1},{"year":2020,"cited_by_count":3}],"updated_date":"2026-07-29T14:22:42.915294","created_date":"2025-10-10T00:00:00"}