{"id":"https://openalex.org/W2803286472","doi":"https://doi.org/10.1093/jamia/ocy040","title":"The role of ethics in data governance of large neuro-ICT projects","display_name":"The role of ethics in data governance of large neuro-ICT projects","publication_year":2018,"publication_date":"2018-04-03","ids":{"openalex":"https://openalex.org/W2803286472","doi":"https://doi.org/10.1093/jamia/ocy040","mag":"2803286472","pmid":"https://pubmed.ncbi.nlm.nih.gov/29767726"},"language":"en","primary_location":{"id":"doi:10.1093/jamia/ocy040","is_oa":true,"landing_page_url":"https://doi.org/10.1093/jamia/ocy040","pdf_url":"https://academic.oup.com/jamia/article-pdf/25/8/1099/25430794/ocy040.pdf","source":{"id":"https://openalex.org/S129839026","display_name":"Journal of the American Medical Informatics Association","issn_l":"1067-5027","issn":["1067-5027","1527-974X"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310311648","host_organization_name":"Oxford University Press","host_organization_lineage":["https://openalex.org/P4310311648","https://openalex.org/P4310311647"],"host_organization_lineage_names":["Oxford University Press","University of Oxford"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of the American Medical Informatics Association","raw_type":"journal-article"},"type":"review","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":true,"oa_status":"bronze","oa_url":"https://academic.oup.com/jamia/article-pdf/25/8/1099/25430794/ocy040.pdf","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5042194412","display_name":"Bernd Carsten Stahl","orcid":"https://orcid.org/0000-0002-4058-4456"},"institutions":[{"id":"https://openalex.org/I66943878","display_name":"De Montfort University","ror":"https://ror.org/0312pnr83","country_code":"GB","type":"education","lineage":["https://openalex.org/I66943878"]}],"countries":["GB"],"is_corresponding":true,"raw_author_name":"Bernd Carsten Stahl","raw_affiliation_strings":["Centre for Computing and Social Responsibility, De Montfort University, Leicester, UK"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Centre for Computing and Social Responsibility, De Montfort University, Leicester, UK","institution_ids":["https://openalex.org/I66943878"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5066331338","display_name":"Stephen Rainey","orcid":"https://orcid.org/0000-0002-5540-6046"},"institutions":[{"id":"https://openalex.org/I4210162189","display_name":"Wellcome Centre for Ethics and Humanities","ror":"https://ror.org/05crdvn36","country_code":"GB","type":"facility","lineage":["https://openalex.org/I40120149","https://openalex.org/I4210162189","https://openalex.org/I87048295"]},{"id":"https://openalex.org/I40120149","display_name":"University of Oxford","ror":"https://ror.org/052gg0110","country_code":"GB","type":"education","lineage":["https://openalex.org/I40120149"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Stephen Rainey","raw_affiliation_strings":["Uehiro Centre for Practical Ethics, University of Oxford, Oxford, UK"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Uehiro Centre for Practical Ethics, University of Oxford, Oxford, UK","institution_ids":["https://openalex.org/I4210162189","https://openalex.org/I40120149"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5035042508","display_name":"Emma Harris","orcid":"https://orcid.org/0000-0002-1224-6986"},"institutions":[{"id":"https://openalex.org/I205582932","display_name":"Max Delbr\u00fcck Center","ror":"https://ror.org/04p5ggc03","country_code":"DE","type":"facility","lineage":["https://openalex.org/I1305996414","https://openalex.org/I205582932"]}],"countries":["DE"],"is_corresponding":false,"raw_author_name":"Emma Harris","raw_affiliation_strings":["Communications Department, Max Delbr\u00fcck Centre for Molecular Medicine, Berlin, Germany"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Communications Department, Max Delbr\u00fcck Centre for Molecular Medicine, Berlin, Germany","institution_ids":["https://openalex.org/I205582932"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5071131050","display_name":"B. Tyr Fothergill","orcid":"https://orcid.org/0000-0002-7896-4083"},"institutions":[{"id":"https://openalex.org/I66943878","display_name":"De Montfort University","ror":"https://ror.org/0312pnr83","country_code":"GB","type":"education","lineage":["https://openalex.org/I66943878"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"B Tyr Fothergill","raw_affiliation_strings":["Centre for Computing and Social Responsibility, De Montfort University, Leicester, UK"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Centre for Computing and Social Responsibility, De Montfort University, Leicester, UK","institution_ids":["https://openalex.org/I66943878"]}]}],"institutions":[],"countries_distinct_count":2,"institutions_distinct_count":4,"corresponding_author_ids":["https://openalex.org/A5042194412"],"corresponding_institution_ids":["https://openalex.org/I66943878"],"apc_list":{"value":3967,"currency":"USD","value_usd":3967},"apc_paid":null,"fwci":1.2834,"has_fulltext":false,"cited_by_count":26,"citation_normalized_percentile":{"value":0.78424123,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":94,"max":99},"biblio":{"volume":"25","issue":"8","first_page":"1099","last_page":"1107"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11953","display_name":"Neuroethics, Human Enhancement, Biomedical Innovations","score":0.8421000242233276,"subfield":{"id":"https://openalex.org/subfields/2805","display_name":"Cognitive Neuroscience"},"field":{"id":"https://openalex.org/fields/28","display_name":"Neuroscience"},"domain":{"id":"https://openalex.org/domains/1","display_name":"Life Sciences"}},"topics":[{"id":"https://openalex.org/T11953","display_name":"Neuroethics, Human Enhancement, Biomedical Innovations","score":0.8421000242233276,"subfield":{"id":"https://openalex.org/subfields/2805","display_name":"Cognitive Neuroscience"},"field":{"id":"https://openalex.org/fields/28","display_name":"Neuroscience"},"domain":{"id":"https://openalex.org/domains/1","display_name":"Life Sciences"}},{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":0.01730000041425228,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10883","display_name":"Ethics and Social Impacts of AI","score":0.01720000058412552,"subfield":{"id":"https://openalex.org/subfields/3311","display_name":"Safety Research"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/data-governance","display_name":"Data governance","score":0.7524405717849731},{"id":"https://openalex.org/keywords/information-and-communications-technology","display_name":"Information and Communications Technology","score":0.7349225282669067},{"id":"https://openalex.org/keywords/normative","display_name":"Normative","score":0.7326355576515198},{"id":"https://openalex.org/keywords/corporate-governance","display_name":"Corporate governance","score":0.7159972190856934},{"id":"https://openalex.org/keywords/scope","display_name":"Scope (computer science)","score":0.7025589346885681},{"id":"https://openalex.org/keywords/knowledge-management","display_name":"Knowledge management","score":0.47187820076942444},{"id":"https://openalex.org/keywords/public-relations","display_name":"Public relations","score":0.4579315483570099},{"id":"https://openalex.org/keywords/set","display_name":"Set (abstract data type)","score":0.44905921816825867},{"id":"https://openalex.org/keywords/business","display_name":"Business","score":0.4421977400779724},{"id":"https://openalex.org/keywords/work","display_name":"Work (physics)","score":0.43775591254234314},{"id":"https://openalex.org/keywords/engineering-ethics","display_name":"Engineering ethics","score":0.4099684953689575},{"id":"https://openalex.org/keywords/political-science","display_name":"Political science","score":0.40084555745124817},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.30362412333488464},{"id":"https://openalex.org/keywords/marketing","display_name":"Marketing","score":0.1201494038105011},{"id":"https://openalex.org/keywords/engineering","display_name":"Engineering","score":0.1193993091583252},{"id":"https://openalex.org/keywords/law","display_name":"Law","score":0.10278737545013428}],"concepts":[{"id":"https://openalex.org/C196879817","wikidata":"https://www.wikidata.org/wiki/Q872685","display_name":"Data governance","level":4,"score":0.7524405717849731},{"id":"https://openalex.org/C67363961","wikidata":"https://www.wikidata.org/wiki/Q5268834","display_name":"Information and Communications Technology","level":2,"score":0.7349225282669067},{"id":"https://openalex.org/C44725695","wikidata":"https://www.wikidata.org/wiki/Q288156","display_name":"Normative","level":2,"score":0.7326355576515198},{"id":"https://openalex.org/C39389867","wikidata":"https://www.wikidata.org/wiki/Q380767","display_name":"Corporate governance","level":2,"score":0.7159972190856934},{"id":"https://openalex.org/C2778012447","wikidata":"https://www.wikidata.org/wiki/Q1034415","display_name":"Scope (computer science)","level":2,"score":0.7025589346885681},{"id":"https://openalex.org/C56739046","wikidata":"https://www.wikidata.org/wiki/Q192060","display_name":"Knowledge management","level":1,"score":0.47187820076942444},{"id":"https://openalex.org/C39549134","wikidata":"https://www.wikidata.org/wiki/Q133080","display_name":"Public relations","level":1,"score":0.4579315483570099},{"id":"https://openalex.org/C177264268","wikidata":"https://www.wikidata.org/wiki/Q1514741","display_name":"Set (abstract data type)","level":2,"score":0.44905921816825867},{"id":"https://openalex.org/C144133560","wikidata":"https://www.wikidata.org/wiki/Q4830453","display_name":"Business","level":0,"score":0.4421977400779724},{"id":"https://openalex.org/C18762648","wikidata":"https://www.wikidata.org/wiki/Q42213","display_name":"Work (physics)","level":2,"score":0.43775591254234314},{"id":"https://openalex.org/C55587333","wikidata":"https://www.wikidata.org/wiki/Q1133029","display_name":"Engineering ethics","level":1,"score":0.4099684953689575},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.40084555745124817},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.30362412333488464},{"id":"https://openalex.org/C162853370","wikidata":"https://www.wikidata.org/wiki/Q39809","display_name":"Marketing","level":1,"score":0.1201494038105011},{"id":"https://openalex.org/C127413603","wikidata":"https://www.wikidata.org/wiki/Q11023","display_name":"Engineering","level":0,"score":0.1193993091583252},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.10278737545013428},{"id":"https://openalex.org/C176217482","wikidata":"https://www.wikidata.org/wiki/Q860554","display_name":"Metric (unit)","level":2,"score":0.0},{"id":"https://openalex.org/C10138342","wikidata":"https://www.wikidata.org/wiki/Q43015","display_name":"Finance","level":1,"score":0.0},{"id":"https://openalex.org/C78519656","wikidata":"https://www.wikidata.org/wiki/Q101333","display_name":"Mechanical engineering","level":1,"score":0.0},{"id":"https://openalex.org/C24756922","wikidata":"https://www.wikidata.org/wiki/Q1757694","display_name":"Data quality","level":3,"score":0.0},{"id":"https://openalex.org/C199360897","wikidata":"https://www.wikidata.org/wiki/Q9143","display_name":"Programming language","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D000073256","descriptor_name":"Information Technology","qualifier_ui":"Q000941","qualifier_name":"ethics","is_major_topic":false},{"descriptor_ui":"D000073256","descriptor_name":"Information Technology","qualifier_ui":"Q000941","qualifier_name":"ethics","is_major_topic":false},{"descriptor_ui":"D000073256","descriptor_name":"Information Technology","qualifier_ui":"Q000941","qualifier_name":"ethics","is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008490","descriptor_name":"Medical Informatics","qualifier_ui":"Q000941","qualifier_name":"ethics","is_major_topic":false},{"descriptor_ui":"D008490","descriptor_name":"Medical Informatics","qualifier_ui":"Q000941","qualifier_name":"ethics","is_major_topic":false},{"descriptor_ui":"D008490","descriptor_name":"Medical Informatics","qualifier_ui":"Q000941","qualifier_name":"ethics","is_major_topic":false},{"descriptor_ui":"D009488","descriptor_name":"Neurosciences","qualifier_ui":"Q000941","qualifier_name":"ethics","is_major_topic":false},{"descriptor_ui":"D009488","descriptor_name":"Neurosciences","qualifier_ui":"Q000941","qualifier_name":"ethics","is_major_topic":false},{"descriptor_ui":"D009488","descriptor_name":"Neurosciences","qualifier_ui":"Q000941","qualifier_name":"ethics","is_major_topic":false},{"descriptor_ui":"D016494","descriptor_name":"Computer Security","qualifier_ui":"Q000941","qualifier_name":"ethics","is_major_topic":false},{"descriptor_ui":"D016494","descriptor_name":"Computer Security","qualifier_ui":"Q000941","qualifier_name":"ethics","is_major_topic":false},{"descriptor_ui":"D016494","descriptor_name":"Computer Security","qualifier_ui":"Q000941","qualifier_name":"ethics","is_major_topic":false},{"descriptor_ui":"D032984","descriptor_name":"Ethics, Research","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D032984","descriptor_name":"Ethics, Research","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D032984","descriptor_name":"Ethics, Research","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true}],"locations_count":6,"locations":[{"id":"doi:10.1093/jamia/ocy040","is_oa":true,"landing_page_url":"https://doi.org/10.1093/jamia/ocy040","pdf_url":"https://academic.oup.com/jamia/article-pdf/25/8/1099/25430794/ocy040.pdf","source":{"id":"https://openalex.org/S129839026","display_name":"Journal of the American Medical Informatics Association","issn_l":"1067-5027","issn":["1067-5027","1527-974X"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310311648","host_organization_name":"Oxford University Press","host_organization_lineage":["https://openalex.org/P4310311648","https://openalex.org/P4310311647"],"host_organization_lineage_names":["Oxford University Press","University of Oxford"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of the American Medical Informatics Association","raw_type":"journal-article"},{"id":"pmid:29767726","is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/29767726","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of the American Medical Informatics Association : JAMIA","raw_type":null},{"id":"pmh:oai:edoc.mdc-berlin.de:17423","is_oa":false,"landing_page_url":null,"pdf_url":null,"source":{"id":"https://openalex.org/S4306400224","display_name":"MDC Repository (Max-Delbrueck-Center for Molecular Medicine)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I149899117","host_organization_name":"Max Planck Society","host_organization_lineage":["https://openalex.org/I149899117"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"acceptedVersion","is_accepted":true,"is_published":false,"raw_source_name":"","raw_type":"Review"},{"id":"pmh:oai:www.dora.dmu.ac.uk:2086/16100","is_oa":false,"landing_page_url":"http://hdl.handle.net/2086/16100","pdf_url":null,"source":{"id":"https://openalex.org/S4306400394","display_name":"DMU Open Research Archive (De Montfort University)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I66943878","host_organization_name":"De Montfort University","host_organization_lineage":["https://openalex.org/I66943878"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"acceptedVersion","is_accepted":true,"is_published":false,"raw_source_name":"","raw_type":"Article"},{"id":"pmh:oai:europepmc.org:5032743","is_oa":false,"landing_page_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/6077829","pdf_url":null,"source":{"id":"https://openalex.org/S4306400806","display_name":"Europe PMC (PubMed Central)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1303153112","host_organization_name":"European Bioinformatics Institute","host_organization_lineage":["https://openalex.org/I1303153112"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"Text"},{"id":"pmh:oai:ora.ox.ac.uk:uuid:beb2946a-44d3-4ed3-86b9-ca39eaa08dec","is_oa":true,"landing_page_url":"https://ora.ox.ac.uk/objects/uuid:beb2946a-44d3-4ed3-86b9-ca39eaa08dec","pdf_url":null,"source":{"id":"https://openalex.org/S4306402636","display_name":"Oxford University Research Archive (ORA) (University of Oxford)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I40120149","host_organization_name":"University of Oxford","host_organization_lineage":["https://openalex.org/I40120149"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"Journal article"}],"best_oa_location":{"id":"doi:10.1093/jamia/ocy040","is_oa":true,"landing_page_url":"https://doi.org/10.1093/jamia/ocy040","pdf_url":"https://academic.oup.com/jamia/article-pdf/25/8/1099/25430794/ocy040.pdf","source":{"id":"https://openalex.org/S129839026","display_name":"Journal of the American Medical Informatics Association","issn_l":"1067-5027","issn":["1067-5027","1527-974X"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310311648","host_organization_name":"Oxford University Press","host_organization_lineage":["https://openalex.org/P4310311648","https://openalex.org/P4310311647"],"host_organization_lineage_names":["Oxford University Press","University of Oxford"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of the American Medical Informatics Association","raw_type":"journal-article"},"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/17","display_name":"Partnerships for the goals","score":0.5199999809265137}],"awards":[],"funders":[{"id":"https://openalex.org/F4320320300","display_name":"European Commission","ror":"https://ror.org/00k4n6c32"}],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W2803286472.pdf","grobid_xml":"https://content.openalex.org/works/W2803286472.grobid-xml"},"referenced_works_count":65,"referenced_works":["https://openalex.org/W15778447","https://openalex.org/W144183681","https://openalex.org/W191545709","https://openalex.org/W320587423","https://openalex.org/W596127071","https://openalex.org/W652151652","https://openalex.org/W1500693574","https://openalex.org/W1557001362","https://openalex.org/W1576089456","https://openalex.org/W1593555249","https://openalex.org/W1602619638","https://openalex.org/W1605691217","https://openalex.org/W1908302460","https://openalex.org/W1909384837","https://openalex.org/W1923687271","https://openalex.org/W1965631677","https://openalex.org/W1974171388","https://openalex.org/W1979290264","https://openalex.org/W1980188659","https://openalex.org/W1999546769","https://openalex.org/W1999994122","https://openalex.org/W2001306967","https://openalex.org/W2007027431","https://openalex.org/W2007227619","https://openalex.org/W2008631172","https://openalex.org/W2025328578","https://openalex.org/W2038970520","https://openalex.org/W2070217449","https://openalex.org/W2091359547","https://openalex.org/W2097238474","https://openalex.org/W2100380478","https://openalex.org/W2119928686","https://openalex.org/W2125028729","https://openalex.org/W2143635824","https://openalex.org/W2144269887","https://openalex.org/W2157583800","https://openalex.org/W2164364358","https://openalex.org/W2166445532","https://openalex.org/W2174421297","https://openalex.org/W2204505768","https://openalex.org/W2269816967","https://openalex.org/W2271428389","https://openalex.org/W2278496307","https://openalex.org/W2287086391","https://openalex.org/W2303336601","https://openalex.org/W2310459082","https://openalex.org/W2319960733","https://openalex.org/W2461281748","https://openalex.org/W2499012676","https://openalex.org/W2510527296","https://openalex.org/W2530942129","https://openalex.org/W2539850208","https://openalex.org/W2546528177","https://openalex.org/W2547924490","https://openalex.org/W2550583800","https://openalex.org/W2553212897","https://openalex.org/W2554467860","https://openalex.org/W2573660794","https://openalex.org/W2588468213","https://openalex.org/W2764072425","https://openalex.org/W4205344678","https://openalex.org/W4233203298","https://openalex.org/W4242430523","https://openalex.org/W4251928661","https://openalex.org/W6633398628"],"related_works":["https://openalex.org/W4241523039","https://openalex.org/W2360028903","https://openalex.org/W4280543773","https://openalex.org/W178231042","https://openalex.org/W2366083136","https://openalex.org/W1989297139","https://openalex.org/W2342143608","https://openalex.org/W2387622493","https://openalex.org/W2496755843","https://openalex.org/W4213090964"],"abstract_inverted_index":{"Objective:":[0],"We":[1,34],"describe":[2],"current":[3,16,57],"practices":[4],"of":[5,38,41,44,56,73,81,87,107],"ethics-related":[6],"data":[7,42,58,70,77,113,147,172],"governance":[8,43,59,71,114,148],"in":[9,15,27,68,133,146,156,171],"large":[10,45],"neuro-ICT":[11,46,74,121,153],"projects,":[12,75],"identify":[13],"gaps":[14],"practice,":[17],"and":[18,30,79,105,127,159,169],"put":[19],"forward":[20],"recommendations":[21],"on":[22],"how":[23],"to":[24,52,90],"collaborate":[25],"ethically":[26],"complex":[28],"regulatory":[29],"normative":[31,54],"contexts.":[32],"Methods:":[33],"undertake":[35],"a":[36,53,85],"survey":[37],"published":[39],"principles":[40],"projects.":[47],"This":[48,136],"grounds":[49],"an":[50],"approach":[51],"analysis":[55],"approaches.":[60],"Results:":[61],"Several":[62],"ethical":[63,97,140],"issues":[64,98,141],"are":[65,99,131,142],"well":[66],"covered":[67,101],"the":[69,120],"policies":[72,89,108,115,149],"notably":[76],"protection":[78],"attribution":[80],"work.":[82],"Projects":[83],"use":[84],"set":[86],"similar":[88],"ensure":[91],"users":[92],"behave":[93],"appropriately.":[94],"However,":[95],"many":[96,139],"not":[100,143],"at":[102,150],"all.":[103],"Implementation":[104],"enforcement":[106],"remain":[109],"vague.":[110],"Conclusions:":[111],"The":[112],"we":[116],"investigated":[117],"indicate":[118],"that":[119,128],"research":[122,154],"community":[123],"is":[124],"currently":[125],"close-knit":[126],"shared":[129,163],"assumptions":[130,164],"reflected":[132,170],"infrastructural":[134],"aspects.":[135],"explains":[137],"why":[138],"explicitly":[144],"included":[145],"present.":[151],"With":[152],"growing":[155],"scale,":[157],"scope,":[158],"international":[160],"involvement,":[161],"these":[162],"should":[165],"be":[166],"made":[167],"explicit":[168],"governance.":[173]},"counts_by_year":[{"year":2025,"cited_by_count":2},{"year":2024,"cited_by_count":4},{"year":2023,"cited_by_count":7},{"year":2022,"cited_by_count":3},{"year":2021,"cited_by_count":5},{"year":2020,"cited_by_count":2},{"year":2019,"cited_by_count":3}],"updated_date":"2026-04-29T09:16:38.111599","created_date":"2025-10-10T00:00:00"}