{"id":"https://openalex.org/W4411893217","doi":"https://doi.org/10.1093/jamia/ocag052","title":"Biobanking for intelligent medicine: assessment and evaluation with the SHARE principle","display_name":"Biobanking for intelligent medicine: assessment and evaluation with the SHARE principle","publication_year":2026,"publication_date":"2026-03-31","ids":{"openalex":"https://openalex.org/W4411893217","doi":"https://doi.org/10.1093/jamia/ocag052","pmid":"https://pubmed.ncbi.nlm.nih.gov/42043949"},"language":"en","primary_location":{"id":"doi:10.1093/jamia/ocag052","is_oa":false,"landing_page_url":"https://doi.org/10.1093/jamia/ocag052","pdf_url":null,"source":{"id":"https://openalex.org/S129839026","display_name":"Journal of the American Medical Informatics Association","issn_l":"1067-5027","issn":["1067-5027","1527-974X"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310311648","host_organization_name":"Oxford University Press","host_organization_lineage":["https://openalex.org/P4310311648","https://openalex.org/P4310311647"],"host_organization_lineage_names":["Oxford University Press","University of Oxford"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of the American Medical Informatics Association","raw_type":"journal-article"},"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"https://doi.org/10.2139/ssrn.5317729","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5101335390","display_name":"Yin Yang","orcid":null},"institutions":[{"id":"https://openalex.org/I24185976","display_name":"Sichuan University","ror":"https://ror.org/011ashp19","country_code":"CN","type":"education","lineage":["https://openalex.org/I24185976"]},{"id":"https://openalex.org/I4210158019","display_name":"Clinical Research Management","ror":"https://ror.org/05k7cyf48","country_code":"US","type":"other","lineage":["https://openalex.org/I4210158019"]}],"countries":["CN","US"],"is_corresponding":false,"raw_author_name":"Yin Yang","raw_affiliation_strings":["Sichuan University - Department of Clinical Research Management"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Sichuan University - Department of Clinical Research Management","institution_ids":["https://openalex.org/I24185976","https://openalex.org/I4210158019"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5103178951","display_name":"Amin Ullah","orcid":"https://orcid.org/0000-0001-7336-0064"},"institutions":[{"id":"https://openalex.org/I24185976","display_name":"Sichuan University","ror":"https://ror.org/011ashp19","country_code":"CN","type":"education","lineage":["https://openalex.org/I24185976"]}],"countries":["CN"],"is_corresponding":false,"raw_author_name":"Amin Ullah","raw_affiliation_strings":["Sichuan University - Institutes for Systems Genetics"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Sichuan University - Institutes for Systems Genetics","institution_ids":["https://openalex.org/I24185976"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5112483785","display_name":"Yingbo Zhang","orcid":"https://orcid.org/0000-0002-1172-8000"},"institutions":[{"id":"https://openalex.org/I24185976","display_name":"Sichuan University","ror":"https://ror.org/011ashp19","country_code":"CN","type":"education","lineage":["https://openalex.org/I24185976"]}],"countries":["CN"],"is_corresponding":false,"raw_author_name":"Yingbo Zhang","raw_affiliation_strings":["Sichuan University - Institutes for Systems Genetics"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Sichuan University - Institutes for Systems Genetics","institution_ids":["https://openalex.org/I24185976"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5040755577","display_name":"Hui Zong","orcid":"https://orcid.org/0000-0002-9142-5017"},"institutions":[{"id":"https://openalex.org/I24185976","display_name":"Sichuan University","ror":"https://ror.org/011ashp19","country_code":"CN","type":"education","lineage":["https://openalex.org/I24185976"]}],"countries":["CN"],"is_corresponding":false,"raw_author_name":"Hui Zong","raw_affiliation_strings":["Sichuan University - Institutes for Systems Genetics"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Sichuan University - Institutes for Systems Genetics","institution_ids":["https://openalex.org/I24185976"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5101674648","display_name":"Xingyun Liu","orcid":"https://orcid.org/0000-0002-9295-2767"},"institutions":[{"id":"https://openalex.org/I24185976","display_name":"Sichuan University","ror":"https://ror.org/011ashp19","country_code":"CN","type":"education","lineage":["https://openalex.org/I24185976"]}],"countries":["CN"],"is_corresponding":false,"raw_author_name":"Xingyun Liu","raw_affiliation_strings":["Sichuan University - Institutes for Systems Genetics"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Sichuan University - Institutes for Systems Genetics","institution_ids":["https://openalex.org/I24185976"]}]},{"author_position":"middle","author":{"id":null,"display_name":"Chi Zhang","orcid":null},"institutions":[{"id":"https://openalex.org/I24185976","display_name":"Sichuan University","ror":"https://ror.org/011ashp19","country_code":"CN","type":"education","lineage":["https://openalex.org/I24185976"]}],"countries":["CN"],"is_corresponding":false,"raw_author_name":"Chi Zhang","raw_affiliation_strings":["Sichuan University - Institutes for Systems Genetics"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Sichuan University - Institutes for Systems Genetics","institution_ids":["https://openalex.org/I24185976"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5102229927","display_name":"Shanshan Hu","orcid":null},"institutions":[{"id":"https://openalex.org/I24185976","display_name":"Sichuan University","ror":"https://ror.org/011ashp19","country_code":"CN","type":"education","lineage":["https://openalex.org/I24185976"]}],"countries":["CN"],"is_corresponding":false,"raw_author_name":"Shanshan Hu","raw_affiliation_strings":["Sichuan University - Institutes for Systems Genetics"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Sichuan University - Institutes for Systems Genetics","institution_ids":["https://openalex.org/I24185976"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5101637629","display_name":"Jiakun Li","orcid":"https://orcid.org/0000-0003-4996-9907"},"institutions":[{"id":"https://openalex.org/I24185976","display_name":"Sichuan University","ror":"https://ror.org/011ashp19","country_code":"CN","type":"education","lineage":["https://openalex.org/I24185976"]},{"id":"https://openalex.org/I4210158019","display_name":"Clinical Research Management","ror":"https://ror.org/05k7cyf48","country_code":"US","type":"other","lineage":["https://openalex.org/I4210158019"]}],"countries":["CN","US"],"is_corresponding":false,"raw_author_name":"Jiakun Li","raw_affiliation_strings":["Sichuan University - Department of Clinical Research Management"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Sichuan University - Department of Clinical Research Management","institution_ids":["https://openalex.org/I24185976","https://openalex.org/I4210158019"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5052932568","display_name":"Shumin Ren","orcid":"https://orcid.org/0000-0002-3347-7097"},"institutions":[{"id":"https://openalex.org/I24185976","display_name":"Sichuan University","ror":"https://ror.org/011ashp19","country_code":"CN","type":"education","lineage":["https://openalex.org/I24185976"]}],"countries":["CN"],"is_corresponding":false,"raw_author_name":"Shumin Ren","raw_affiliation_strings":["Sichuan University - Institutes for Systems Genetics"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Sichuan University - Institutes for Systems Genetics","institution_ids":["https://openalex.org/I24185976"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5081095213","display_name":"Bairong Shen","orcid":"https://orcid.org/0000-0003-2899-1531"},"institutions":[{"id":"https://openalex.org/I24185976","display_name":"Sichuan University","ror":"https://ror.org/011ashp19","country_code":"CN","type":"education","lineage":["https://openalex.org/I24185976"]}],"countries":["CN"],"is_corresponding":false,"raw_author_name":"Bairong Shen","raw_affiliation_strings":["Sichuan University - Institutes for Systems Genetics"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Sichuan University - Institutes for Systems Genetics","institution_ids":["https://openalex.org/I24185976"]}]}],"institutions":[],"countries_distinct_count":2,"institutions_distinct_count":2,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":{"value":3967,"currency":"USD","value_usd":3967},"apc_paid":null,"fwci":0.0,"has_fulltext":false,"cited_by_count":0,"citation_normalized_percentile":{"value":0.00278849,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":null,"biblio":{"volume":"33","issue":"7","first_page":"1333","last_page":"1344"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":0.8341000080108643,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":0.8341000080108643,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10804","display_name":"Health Systems, Economic Evaluations, Quality of Life","score":0.777999997138977,"subfield":{"id":"https://openalex.org/subfields/2002","display_name":"Economics and Econometrics"},"field":{"id":"https://openalex.org/fields/20","display_name":"Economics, Econometrics and Finance"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T13417","display_name":"Biomedical Ethics and Regulation","score":0.7145000100135803,"subfield":{"id":"https://openalex.org/subfields/2737","display_name":"Physiology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/biobank","display_name":"Biobank","score":0.9351518154144287},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.3981980085372925},{"id":"https://openalex.org/keywords/business","display_name":"Business","score":0.3752098083496094},{"id":"https://openalex.org/keywords/engineering-ethics","display_name":"Engineering ethics","score":0.3551347255706787},{"id":"https://openalex.org/keywords/knowledge-management","display_name":"Knowledge management","score":0.33152374625205994},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.311282753944397},{"id":"https://openalex.org/keywords/engineering","display_name":"Engineering","score":0.23164904117584229},{"id":"https://openalex.org/keywords/bioinformatics","display_name":"Bioinformatics","score":0.14749208092689514},{"id":"https://openalex.org/keywords/biology","display_name":"Biology","score":0.0801275372505188}],"concepts":[{"id":"https://openalex.org/C116567970","wikidata":"https://www.wikidata.org/wiki/Q864217","display_name":"Biobank","level":2,"score":0.9351518154144287},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.3981980085372925},{"id":"https://openalex.org/C144133560","wikidata":"https://www.wikidata.org/wiki/Q4830453","display_name":"Business","level":0,"score":0.3752098083496094},{"id":"https://openalex.org/C55587333","wikidata":"https://www.wikidata.org/wiki/Q1133029","display_name":"Engineering ethics","level":1,"score":0.3551347255706787},{"id":"https://openalex.org/C56739046","wikidata":"https://www.wikidata.org/wiki/Q192060","display_name":"Knowledge management","level":1,"score":0.33152374625205994},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.311282753944397},{"id":"https://openalex.org/C127413603","wikidata":"https://www.wikidata.org/wiki/Q11023","display_name":"Engineering","level":0,"score":0.23164904117584229},{"id":"https://openalex.org/C60644358","wikidata":"https://www.wikidata.org/wiki/Q128570","display_name":"Bioinformatics","level":1,"score":0.14749208092689514},{"id":"https://openalex.org/C86803240","wikidata":"https://www.wikidata.org/wiki/Q420","display_name":"Biology","level":0,"score":0.0801275372505188}],"mesh":[{"descriptor_ui":"D000098842","descriptor_name":"Generative Artificial Intelligence","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D001185","descriptor_name":"Artificial Intelligence","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D018070","descriptor_name":"Biological Specimen Banks","qualifier_ui":"Q000145","qualifier_name":"classification","is_major_topic":true},{"descriptor_ui":"D018070","descriptor_name":"Biological Specimen Banks","qualifier_ui":"Q000592","qualifier_name":"standards","is_major_topic":true}],"locations_count":4,"locations":[{"id":"doi:10.1093/jamia/ocag052","is_oa":false,"landing_page_url":"https://doi.org/10.1093/jamia/ocag052","pdf_url":null,"source":{"id":"https://openalex.org/S129839026","display_name":"Journal of the American Medical Informatics Association","issn_l":"1067-5027","issn":["1067-5027","1527-974X"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310311648","host_organization_name":"Oxford University Press","host_organization_lineage":["https://openalex.org/P4310311648","https://openalex.org/P4310311647"],"host_organization_lineage_names":["Oxford University Press","University of Oxford"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of the American Medical Informatics Association","raw_type":"journal-article"},{"id":"doi:10.2139/ssrn.5317729","is_oa":true,"landing_page_url":"https://doi.org/10.2139/ssrn.5317729","pdf_url":null,"source":{"id":"https://openalex.org/S4210172589","display_name":"SSRN Electronic Journal","issn_l":"1556-5068","issn":["1556-5068"],"is_oa":true,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1318003438","host_organization_name":"RELX Group (Netherlands)","host_organization_lineage":["https://openalex.org/I1318003438"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"acceptedVersion","is_accepted":true,"is_published":false,"raw_source_name":null,"raw_type":"posted-content"},{"id":"pmid:42043949","is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/42043949","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of the American Medical Informatics Association : JAMIA","raw_type":null},{"id":"pmh:oai:pubmedcentral.nih.gov:13317985","is_oa":true,"landing_page_url":"https://pmc.ncbi.nlm.nih.gov/articles/PMC13317985/","pdf_url":null,"source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"J Am Med Inform Assoc","raw_type":"Text"}],"best_oa_location":{"id":"doi:10.2139/ssrn.5317729","is_oa":true,"landing_page_url":"https://doi.org/10.2139/ssrn.5317729","pdf_url":null,"source":{"id":"https://openalex.org/S4210172589","display_name":"SSRN Electronic Journal","issn_l":"1556-5068","issn":["1556-5068"],"is_oa":true,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1318003438","host_organization_name":"RELX Group (Netherlands)","host_organization_lineage":["https://openalex.org/I1318003438"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"acceptedVersion","is_accepted":true,"is_published":false,"raw_source_name":null,"raw_type":"posted-content"},"sustainable_development_goals":[],"awards":[{"id":"https://openalex.org/G4808893844","display_name":null,"funder_award_id":"32270690","funder_id":"https://openalex.org/F4320321001","funder_display_name":"National Natural Science Foundation of China"},{"id":"https://openalex.org/G7337332868","display_name":null,"funder_award_id":"32570773","funder_id":"https://openalex.org/F4320321001","funder_display_name":"National Natural Science Foundation of China"},{"id":"https://openalex.org/G8127580845","display_name":null,"funder_award_id":"Grant No. 32270690 and 32570773","funder_id":"https://openalex.org/F4320321001","funder_display_name":"National Natural Science Foundation of China"}],"funders":[{"id":"https://openalex.org/F4320321001","display_name":"National Natural Science Foundation of China","ror":"https://ror.org/01h0zpd94"}],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":35,"referenced_works":["https://openalex.org/W1989875003","https://openalex.org/W2035621956","https://openalex.org/W2043994334","https://openalex.org/W2114215427","https://openalex.org/W2792657571","https://openalex.org/W2801253434","https://openalex.org/W3153565604","https://openalex.org/W3175577406","https://openalex.org/W4224250711","https://openalex.org/W4313313146","https://openalex.org/W4386814574","https://openalex.org/W4389827858","https://openalex.org/W4390114353","https://openalex.org/W4391543515","https://openalex.org/W4391649285","https://openalex.org/W4392851477","https://openalex.org/W4392906094","https://openalex.org/W4393392255","https://openalex.org/W4399572424","https://openalex.org/W4400986297","https://openalex.org/W4401675683","https://openalex.org/W4402131081","https://openalex.org/W4402270182","https://openalex.org/W4403603535","https://openalex.org/W4404536308","https://openalex.org/W4404821966","https://openalex.org/W4405996936","https://openalex.org/W4406406079","https://openalex.org/W4407182034","https://openalex.org/W4407407427","https://openalex.org/W4408110706","https://openalex.org/W4408236019","https://openalex.org/W4409517029","https://openalex.org/W4409860671","https://openalex.org/W4410246008"],"related_works":["https://openalex.org/W4391375266","https://openalex.org/W2899084033","https://openalex.org/W2748952813","https://openalex.org/W4285087457","https://openalex.org/W3031052312","https://openalex.org/W4389568370","https://openalex.org/W3032375762","https://openalex.org/W1995515455","https://openalex.org/W2080531066","https://openalex.org/W3113746618"],"abstract_inverted_index":{"BACKGROUND:":[0],"Biobanks":[1,118],"are":[2],"essential":[3],"for":[4,16,140,165,177,194],"intelligent":[5,195],"medicine":[6],"but":[7],"face":[8],"fragmentation":[9],"and":[10,43,86,96,106,130,132,159,163,187],"heterogeneity.":[11],"No":[12],"standardized":[13,175],"framework":[14],"exists":[15],"assessing":[17,178],"biobank":[18,179,183],"data":[19,45,180],"value":[20],"using":[21],"public":[22,154],"information;":[23],"this":[24,27],"study":[25],"addresses":[26],"gap.":[28],"MATERIALS":[29],"AND":[30],"METHODS:":[31],"We":[32,144],"systematically":[33],"evaluated":[34],"94":[35,101],"global":[36],"biobanks":[37,102],"(2010-2024)":[38],"through":[39,87],"a":[40,72,97,173],"literature":[41],"review":[42],"structured":[44],"extraction.":[46],"Based":[47],"on":[48,153],"12":[49],"international":[50],"standards,":[51],"we":[52],"developed":[53],"the":[54,146,151,188],"5-dimensional":[55],"SHARE":[56,94,170],"principle":[57,95,171],"(Standardization,":[58],"Hierarchical":[59],"structuring,":[60],"Analytical":[61],"compatibility,":[62],"Regulatory":[63],"compliance,":[64],"Evolutionary":[65],"adaptability),":[66],"operationalized":[67],"into":[68,121],"10":[69,84],"indicators":[70],"with":[71],"4-tier":[73],"scoring":[74,108],"system.":[75],"GPT-4o":[76],"provided":[77],"AI-supported":[78],"prescoring,":[79],"which":[80],"was":[81],"validated":[82],"by":[83],"experts":[85],"case":[88],"studies,":[89],"including":[90],"RARPKB.":[91],"RESULTS:":[92],"The":[93,169],"classification":[98],"map":[99],"of":[100,190],"were":[103,119],"generated.":[104],"AI":[105],"expert":[107],"showed":[109],"substantial":[110],"consistency":[111],"(\u03ba":[112],"=":[113],"0.62;":[114],"95%":[115],"CI,":[116],"0.54-0.70).":[117],"categorized":[120],"4":[122],"tiers:":[123],"Traditional":[124],"(60-69),":[125],"Data-Driven":[126],"(70-79),":[127],"Knowledge-Guided":[128],"(80-89),":[129],"Generative":[131],"Reasoning-oriented":[133],"Biobank":[134],"(90-100).":[135],"Case":[136],"validation":[137],"confirmed":[138],"utility":[139],"disease-specific":[141],"biobanks.":[142],"DISCUSSION:":[143],"highlight":[145],"principal":[147],"findings,":[148],"critically":[149],"examine":[150],"reliance":[152],"documentation,":[155],"propose":[156],"mitigation":[157],"strategies,":[158],"discuss":[160],"indicator":[161],"weighting":[162],"implications":[164],"translational":[166],"informatics.":[167],"CONCLUSIONS:":[168],"provides":[172],"scalable,":[174],"method":[176],"value,":[181],"supporting":[182],"development,":[184],"resource":[185],"discovery,":[186],"development":[189],"AI-driven":[191],"biomedical":[192],"ecosystems":[193],"medicine.":[196]},"counts_by_year":[],"updated_date":"2026-07-22T07:51:19.307946","created_date":"2025-10-10T00:00:00"}