{"id":"https://openalex.org/W4317866740","doi":"https://doi.org/10.1093/jamia/ocad003","title":"Partnering with patients and families living with chronic conditions to coproduce diagnostic safety through OurDX: a previsit online engagement tool","display_name":"Partnering with patients and families living with chronic conditions to coproduce diagnostic safety through OurDX: a previsit online engagement tool","publication_year":2023,"publication_date":"2023-01-24","ids":{"openalex":"https://openalex.org/W4317866740","doi":"https://doi.org/10.1093/jamia/ocad003","pmid":"https://pubmed.ncbi.nlm.nih.gov/36692204"},"language":"en","primary_location":{"id":"doi:10.1093/jamia/ocad003","is_oa":false,"landing_page_url":"https://doi.org/10.1093/jamia/ocad003","pdf_url":null,"source":{"id":"https://openalex.org/S129839026","display_name":"Journal of the American Medical Informatics Association","issn_l":"1067-5027","issn":["1067-5027","1527-974X"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310311648","host_organization_name":"Oxford University Press","host_organization_lineage":["https://openalex.org/P4310311648","https://openalex.org/P4310311647"],"host_organization_lineage_names":["Oxford University Press","University of Oxford"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of the American Medical Informatics Association","raw_type":"journal-article"},"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"https://pmc.ncbi.nlm.nih.gov/articles/PMC10018262/pdf/ocad003.pdf","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5037631754","display_name":"Sigall K. Bell","orcid":"https://orcid.org/0000-0002-9359-6450"},"institutions":[{"id":"https://openalex.org/I1316535847","display_name":"Beth Israel Deaconess Medical Center","ror":"https://ror.org/04drvxt59","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1316535847"]},{"id":"https://openalex.org/I136199984","display_name":"Harvard University","ror":"https://ror.org/03vek6s52","country_code":"US","type":"education","lineage":["https://openalex.org/I136199984"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"Sigall K Bell","raw_affiliation_strings":["Department of Medicine, Beth Israel Deaconess Medical Center, Harvard Medical School , Boston, Massachusetts, USA"],"raw_orcid":"https://orcid.org/0000-0002-9359-6450","affiliations":[{"raw_affiliation_string":"Department of Medicine, Beth Israel Deaconess Medical Center, Harvard Medical School , Boston, Massachusetts, USA","institution_ids":["https://openalex.org/I1316535847","https://openalex.org/I136199984"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5014961366","display_name":"Zhiyong Dong","orcid":null},"institutions":[{"id":"https://openalex.org/I1316535847","display_name":"Beth Israel Deaconess Medical Center","ror":"https://ror.org/04drvxt59","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1316535847"]},{"id":"https://openalex.org/I136199984","display_name":"Harvard University","ror":"https://ror.org/03vek6s52","country_code":"US","type":"education","lineage":["https://openalex.org/I136199984"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Zhiyong J Dong","raw_affiliation_strings":["Department of Medicine, Beth Israel Deaconess Medical Center, Harvard Medical School , Boston, Massachusetts, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Medicine, Beth Israel Deaconess Medical Center, Harvard Medical School , Boston, Massachusetts, USA","institution_ids":["https://openalex.org/I1316535847","https://openalex.org/I136199984"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5018598333","display_name":"Catherine M. DesRoches","orcid":"https://orcid.org/0000-0001-5373-855X"},"institutions":[{"id":"https://openalex.org/I1316535847","display_name":"Beth Israel Deaconess Medical Center","ror":"https://ror.org/04drvxt59","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1316535847"]},{"id":"https://openalex.org/I136199984","display_name":"Harvard University","ror":"https://ror.org/03vek6s52","country_code":"US","type":"education","lineage":["https://openalex.org/I136199984"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Catherine M Desroches","raw_affiliation_strings":["Department of Medicine, Beth Israel Deaconess Medical Center, Harvard Medical School , Boston, Massachusetts, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Medicine, Beth Israel Deaconess Medical Center, Harvard Medical School , Boston, Massachusetts, USA","institution_ids":["https://openalex.org/I1316535847","https://openalex.org/I136199984"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5056781573","display_name":"Nicholas Hart","orcid":"https://orcid.org/0000-0002-6863-585X"},"institutions":[{"id":"https://openalex.org/I1288882113","display_name":"Boston Children's Hospital","ror":"https://ror.org/00dvg7y05","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1288882113"]},{"id":"https://openalex.org/I136199984","display_name":"Harvard University","ror":"https://ror.org/03vek6s52","country_code":"US","type":"education","lineage":["https://openalex.org/I136199984"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Nicholas Hart","raw_affiliation_strings":["Department of Medicine, Boston Children\u2019s Hospital, Harvard Medical School , Boston, Massachusetts, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Medicine, Boston Children\u2019s Hospital, Harvard Medical School , Boston, Massachusetts, USA","institution_ids":["https://openalex.org/I1288882113","https://openalex.org/I136199984"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5043871151","display_name":"Stephen V. Liu","orcid":"https://orcid.org/0000-0002-4852-3914"},"institutions":[{"id":"https://openalex.org/I107672454","display_name":"Dartmouth College","ror":"https://ror.org/049s0rh22","country_code":"US","type":"education","lineage":["https://openalex.org/I107672454"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Stephen Liu","raw_affiliation_strings":["Department of Medicine, Geisel School of Medicine at Dartmouth , Hanover, New Hampshire, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Medicine, Geisel School of Medicine at Dartmouth , Hanover, New Hampshire, USA","institution_ids":["https://openalex.org/I107672454"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5080317471","display_name":"Brianna Mahon","orcid":null},"institutions":[{"id":"https://openalex.org/I107672454","display_name":"Dartmouth College","ror":"https://ror.org/049s0rh22","country_code":"US","type":"education","lineage":["https://openalex.org/I107672454"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Brianna Mahon","raw_affiliation_strings":["Department of Medicine, Geisel School of Medicine at Dartmouth , Hanover, New Hampshire, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Medicine, Geisel School of Medicine at Dartmouth , Hanover, New Hampshire, USA","institution_ids":["https://openalex.org/I107672454"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5087979959","display_name":"Long Ngo","orcid":"https://orcid.org/0000-0001-9349-7981"},"institutions":[{"id":"https://openalex.org/I1316535847","display_name":"Beth Israel Deaconess Medical Center","ror":"https://ror.org/04drvxt59","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1316535847"]},{"id":"https://openalex.org/I136199984","display_name":"Harvard University","ror":"https://ror.org/03vek6s52","country_code":"US","type":"education","lineage":["https://openalex.org/I136199984"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Long H Ngo","raw_affiliation_strings":["Department of Biostatistics, Harvard T.H. Chan School of Public Health , Boston, Massachusetts, USA","Department of Medicine, Beth Israel Deaconess Medical Center, Harvard Medical School , Boston, Massachusetts, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Biostatistics, Harvard T.H. Chan School of Public Health , Boston, Massachusetts, USA","institution_ids":["https://openalex.org/I136199984"]},{"raw_affiliation_string":"Department of Medicine, Beth Israel Deaconess Medical Center, Harvard Medical School , Boston, Massachusetts, USA","institution_ids":["https://openalex.org/I1316535847","https://openalex.org/I136199984"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5026093824","display_name":"Eric J. Thomas","orcid":"https://orcid.org/0000-0002-3656-9181"},"institutions":[{"id":"https://openalex.org/I1306862143","display_name":"Memorial Hermann","ror":"https://ror.org/049d9a475","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1306862143"]},{"id":"https://openalex.org/I919571938","display_name":"The University of Texas Health Science Center at Houston","ror":"https://ror.org/03gds6c39","country_code":"US","type":"education","lineage":["https://openalex.org/I919571938"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Eric J Thomas","raw_affiliation_strings":["Department of Medicine, UT Houston\u2014Memorial Hermann Center for Healthcare Quality and Safety , Houston, Texas, USA","McGovern Medical School at the University of Texas Health Science Center , Houston, Texas, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Medicine, UT Houston\u2014Memorial Hermann Center for Healthcare Quality and Safety , Houston, Texas, USA","institution_ids":["https://openalex.org/I1306862143"]},{"raw_affiliation_string":"McGovern Medical School at the University of Texas Health Science Center , Houston, Texas, USA","institution_ids":["https://openalex.org/I919571938"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5000734879","display_name":"Fabienne Bourgeois","orcid":"https://orcid.org/0000-0003-0937-5311"},"institutions":[{"id":"https://openalex.org/I1288882113","display_name":"Boston Children's Hospital","ror":"https://ror.org/00dvg7y05","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1288882113"]},{"id":"https://openalex.org/I136199984","display_name":"Harvard University","ror":"https://ror.org/03vek6s52","country_code":"US","type":"education","lineage":["https://openalex.org/I136199984"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Fabienne Bourgeois","raw_affiliation_strings":["Department of Medicine, Boston Children\u2019s Hospital, Harvard Medical School , Boston, Massachusetts, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Medicine, Boston Children\u2019s Hospital, Harvard Medical School , Boston, Massachusetts, USA","institution_ids":["https://openalex.org/I1288882113","https://openalex.org/I136199984"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":9,"corresponding_author_ids":["https://openalex.org/A5037631754"],"corresponding_institution_ids":["https://openalex.org/I1316535847","https://openalex.org/I136199984"],"apc_list":{"value":3967,"currency":"USD","value_usd":3967},"apc_paid":null,"fwci":2.9025,"has_fulltext":true,"cited_by_count":12,"citation_normalized_percentile":{"value":0.90793103,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":96,"max":98},"biblio":{"volume":"30","issue":"4","first_page":"692","last_page":"702"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T12574","display_name":"Clinical Reasoning and Diagnostic Skills","score":0.349700003862381,"subfield":{"id":"https://openalex.org/subfields/2714","display_name":"Family Practice"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T12574","display_name":"Clinical Reasoning and Diagnostic Skills","score":0.349700003862381,"subfield":{"id":"https://openalex.org/subfields/2714","display_name":"Family Practice"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11642","display_name":"Genomics and Rare Diseases","score":0.26080000400543213,"subfield":{"id":"https://openalex.org/subfields/1311","display_name":"Genetics"},"field":{"id":"https://openalex.org/fields/13","display_name":"Biochemistry, Genetics and Molecular Biology"},"domain":{"id":"https://openalex.org/domains/1","display_name":"Life Sciences"}},{"id":"https://openalex.org/T10827","display_name":"Patient-Provider Communication in Healthcare","score":0.1031000018119812,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/subspecialty","display_name":"Subspecialty","score":0.7655235528945923},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.7359397411346436},{"id":"https://openalex.org/keywords/feeling","display_name":"Feeling","score":0.5344046354293823},{"id":"https://openalex.org/keywords/family-medicine","display_name":"Family medicine","score":0.5310431122779846},{"id":"https://openalex.org/keywords/patient-safety","display_name":"Patient safety","score":0.5155651569366455},{"id":"https://openalex.org/keywords/chart","display_name":"Chart","score":0.5062648057937622},{"id":"https://openalex.org/keywords/descriptive-statistics","display_name":"Descriptive statistics","score":0.4788532257080078},{"id":"https://openalex.org/keywords/medical-emergency","display_name":"Medical emergency","score":0.4504013955593109},{"id":"https://openalex.org/keywords/health-care","display_name":"Health care","score":0.43820449709892273},{"id":"https://openalex.org/keywords/medical-record","display_name":"Medical record","score":0.4314559996128082},{"id":"https://openalex.org/keywords/medline","display_name":"MEDLINE","score":0.4291742444038391},{"id":"https://openalex.org/keywords/psychology","display_name":"Psychology","score":0.13197433948516846}],"concepts":[{"id":"https://openalex.org/C2780642338","wikidata":"https://www.wikidata.org/wiki/Q7632042","display_name":"Subspecialty","level":2,"score":0.7655235528945923},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.7359397411346436},{"id":"https://openalex.org/C122980154","wikidata":"https://www.wikidata.org/wiki/Q205555","display_name":"Feeling","level":2,"score":0.5344046354293823},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.5310431122779846},{"id":"https://openalex.org/C2779328685","wikidata":"https://www.wikidata.org/wiki/Q1475557","display_name":"Patient safety","level":3,"score":0.5155651569366455},{"id":"https://openalex.org/C190812933","wikidata":"https://www.wikidata.org/wiki/Q28923","display_name":"Chart","level":2,"score":0.5062648057937622},{"id":"https://openalex.org/C39896193","wikidata":"https://www.wikidata.org/wiki/Q380344","display_name":"Descriptive statistics","level":2,"score":0.4788532257080078},{"id":"https://openalex.org/C545542383","wikidata":"https://www.wikidata.org/wiki/Q2751242","display_name":"Medical emergency","level":1,"score":0.4504013955593109},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.43820449709892273},{"id":"https://openalex.org/C195910791","wikidata":"https://www.wikidata.org/wiki/Q1324077","display_name":"Medical record","level":2,"score":0.4314559996128082},{"id":"https://openalex.org/C2779473830","wikidata":"https://www.wikidata.org/wiki/Q1540899","display_name":"MEDLINE","level":2,"score":0.4291742444038391},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.13197433948516846},{"id":"https://openalex.org/C50522688","wikidata":"https://www.wikidata.org/wiki/Q189833","display_name":"Economic growth","level":1,"score":0.0},{"id":"https://openalex.org/C126838900","wikidata":"https://www.wikidata.org/wiki/Q77604","display_name":"Radiology","level":1,"score":0.0},{"id":"https://openalex.org/C162324750","wikidata":"https://www.wikidata.org/wiki/Q8134","display_name":"Economics","level":0,"score":0.0},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.0},{"id":"https://openalex.org/C105795698","wikidata":"https://www.wikidata.org/wiki/Q12483","display_name":"Statistics","level":1,"score":0.0},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.0},{"id":"https://openalex.org/C33923547","wikidata":"https://www.wikidata.org/wiki/Q395","display_name":"Mathematics","level":0,"score":0.0},{"id":"https://openalex.org/C77805123","wikidata":"https://www.wikidata.org/wiki/Q161272","display_name":"Social psychology","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002648","descriptor_name":"Child","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002648","descriptor_name":"Child","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002648","descriptor_name":"Child","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002648","descriptor_name":"Child","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002648","descriptor_name":"Child","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002648","descriptor_name":"Child","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003695","descriptor_name":"Delivery of Health Care","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D003695","descriptor_name":"Delivery of Health Care","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D003695","descriptor_name":"Delivery of Health Care","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D003695","descriptor_name":"Delivery of Health Care","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D003695","descriptor_name":"Delivery of Health Care","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D003695","descriptor_name":"Delivery of Health Care","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D004644","descriptor_name":"Emotions","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D004644","descriptor_name":"Emotions","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D004644","descriptor_name":"Emotions","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D004644","descriptor_name":"Emotions","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D004644","descriptor_name":"Emotions","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D004644","descriptor_name":"Emotions","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006268","descriptor_name":"Health Facilities","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006268","descriptor_name":"Health Facilities","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006268","descriptor_name":"Health Facilities","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006268","descriptor_name":"Health Facilities","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006268","descriptor_name":"Health Facilities","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006268","descriptor_name":"Health Facilities","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010361","descriptor_name":"Patients","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D010361","descriptor_name":"Patients","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D010361","descriptor_name":"Patients","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D010361","descriptor_name":"Patients","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D010361","descriptor_name":"Patients","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D010361","descriptor_name":"Patients","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D011336","descriptor_name":"Probability","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011336","descriptor_name":"Probability","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011336","descriptor_name":"Probability","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011336","descriptor_name":"Probability","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011336","descriptor_name":"Probability","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011336","descriptor_name":"Probability","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false}],"locations_count":4,"locations":[{"id":"doi:10.1093/jamia/ocad003","is_oa":false,"landing_page_url":"https://doi.org/10.1093/jamia/ocad003","pdf_url":null,"source":{"id":"https://openalex.org/S129839026","display_name":"Journal of the American Medical Informatics Association","issn_l":"1067-5027","issn":["1067-5027","1527-974X"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310311648","host_organization_name":"Oxford University Press","host_organization_lineage":["https://openalex.org/P4310311648","https://openalex.org/P4310311647"],"host_organization_lineage_names":["Oxford University Press","University of Oxford"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of the American Medical Informatics Association","raw_type":"journal-article"},{"id":"pmid:36692204","is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/36692204","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of the American Medical Informatics Association : JAMIA","raw_type":null},{"id":"pmh:oai:pubmedcentral.nih.gov:10018262","is_oa":true,"landing_page_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/10018262","pdf_url":"https://pmc.ncbi.nlm.nih.gov/articles/PMC10018262/pdf/ocad003.pdf","source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"J Am Med Inform Assoc","raw_type":"Text"},{"id":"pmh:oai:digitalcommons.library.tmc.edu:uthmed_docs-1457","is_oa":false,"landing_page_url":"https://digitalcommons.library.tmc.edu/uthmed_docs/458","pdf_url":null,"source":{"id":"https://openalex.org/S4377196655","display_name":"Digital Commons-TMC (Texas Medical Center)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1337852284","host_organization_name":"Texas Medical Center","host_organization_lineage":["https://openalex.org/I1337852284"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Journal Articles","raw_type":"text"}],"best_oa_location":{"id":"pmh:oai:pubmedcentral.nih.gov:10018262","is_oa":true,"landing_page_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/10018262","pdf_url":"https://pmc.ncbi.nlm.nih.gov/articles/PMC10018262/pdf/ocad003.pdf","source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"J Am Med Inform Assoc","raw_type":"Text"},"sustainable_development_goals":[],"awards":[{"id":"https://openalex.org/G1639070098","display_name":null,"funder_award_id":"5R01HS27367-03","funder_id":"https://openalex.org/F4320332177","funder_display_name":"Agency for Healthcare Research and Quality"}],"funders":[{"id":"https://openalex.org/F4320332177","display_name":"Agency for Healthcare Research and Quality","ror":"https://ror.org/03jmfdf59"}],"has_content":{"pdf":true,"grobid_xml":false},"content_urls":{"pdf":"https://content.openalex.org/works/W4317866740.pdf"},"referenced_works_count":74,"referenced_works":["https://openalex.org/W1884436451","https://openalex.org/W1971130848","https://openalex.org/W1986935973","https://openalex.org/W2010206471","https://openalex.org/W2029907219","https://openalex.org/W2053510603","https://openalex.org/W2054702419","https://openalex.org/W2062108694","https://openalex.org/W2083848520","https://openalex.org/W2093274439","https://openalex.org/W2109787391","https://openalex.org/W2110850040","https://openalex.org/W2113759759","https://openalex.org/W2139234290","https://openalex.org/W2147261579","https://openalex.org/W2160943915","https://openalex.org/W2162820522","https://openalex.org/W2168490582","https://openalex.org/W2277370197","https://openalex.org/W2292646496","https://openalex.org/W2401142198","https://openalex.org/W2411436621","https://openalex.org/W2474034296","https://openalex.org/W2592458205","https://openalex.org/W2596665553","https://openalex.org/W2725184657","https://openalex.org/W2734750185","https://openalex.org/W2769351375","https://openalex.org/W2786475392","https://openalex.org/W2799444738","https://openalex.org/W2803239485","https://openalex.org/W2811239494","https://openalex.org/W2891667745","https://openalex.org/W2895457576","https://openalex.org/W2899930800","https://openalex.org/W2901717100","https://openalex.org/W2902783684","https://openalex.org/W2904931225","https://openalex.org/W2926000164","https://openalex.org/W2943089688","https://openalex.org/W2944434778","https://openalex.org/W2963515244","https://openalex.org/W2972223492","https://openalex.org/W2995036084","https://openalex.org/W3014053655","https://openalex.org/W3034019787","https://openalex.org/W3127756254","https://openalex.org/W3163415475","https://openalex.org/W3184808400","https://openalex.org/W3194284981","https://openalex.org/W3205177261","https://openalex.org/W3205599378","https://openalex.org/W3207327852","https://openalex.org/W4210307292","https://openalex.org/W4213266071","https://openalex.org/W4214850966","https://openalex.org/W4220853825","https://openalex.org/W4221022372","https://openalex.org/W4224228112","https://openalex.org/W4226390791","https://openalex.org/W4226461635","https://openalex.org/W4229022912","https://openalex.org/W4233794181","https://openalex.org/W4283319891","https://openalex.org/W4288066108","https://openalex.org/W4298109384","https://openalex.org/W4312033028","https://openalex.org/W6713153563","https://openalex.org/W6751665405","https://openalex.org/W6768274923","https://openalex.org/W6802692800","https://openalex.org/W6808478160","https://openalex.org/W6847321424","https://openalex.org/W7073961390"],"related_works":["https://openalex.org/W2072576341","https://openalex.org/W2592240296","https://openalex.org/W1966353974","https://openalex.org/W2011155774","https://openalex.org/W2539348875","https://openalex.org/W3010777382","https://openalex.org/W2403007714","https://openalex.org/W2062087734","https://openalex.org/W4210831801","https://openalex.org/W1986009681"],"abstract_inverted_index":{"OBJECTIVE:":[0],"Patients":[1],"and":[2,43,49,62,95,108,140,161,194,218,237,246,259],"families":[3,247],"are":[4,18],"key":[5],"partners":[6],"in":[7,15,149,253,267],"diagnosis,":[8],"but":[9],"methods":[10],"to":[11,24,45,81,106,119,133],"routinely":[12],"engage":[13,244],"them":[14],"diagnostic":[16,98,104,110,176],"safety":[17,53,111],"lacking.":[19],"Policy":[20],"mandating":[21],"patient":[22,122],"access":[23],"electronic":[25],"health":[26,60,199,251],"information":[27],"presents":[28],"new":[29,34],"opportunities.":[30],"We":[31,114,129],"tested":[32],"a":[33,116],"online":[35,85],"tool":[36],"(\"OurDX\")":[37],"that":[38],"was":[39],"codesigned":[40],"with":[41,58,197,214,220,249],"patients":[42,174,245],"families,":[44],"determine":[46,120],"the":[47,69,127,268],"types":[48,205],"frequencies":[50],"of":[51,138,151,163,192,206,261],"potential":[52,97],"issues":[54],"identified":[55,189,257],"by":[56,190],"patients/families":[57,196,209,256],"chronic":[59,250],"conditions":[61,252],"whether":[63,121],"their":[64,262],"contributions":[65,123,264],"were":[66,79,124,179,188,208,265],"integrated":[67,125],"into":[68,126],"visit":[70,89,269],"note.":[71,128,270],"METHODS:":[72],"Patients/families":[73],"at":[74],"2":[75],"US":[76],"healthcare":[77],"sites":[78],"invited":[80],"contribute,":[82],"through":[83],"an":[84],"previsit":[86],"survey:":[87],"(1)":[88],"priorities,":[90],"(2)":[91],"recent":[92],"medical":[93],"history/symptoms,":[94],"(3)":[96],"concerns.":[99],"Two":[100],"physicians":[101],"reviewed":[102],"patient-reported":[103,238],"concerns":[105],"verify":[107],"categorize":[109],"opportunities":[112],"(DSOs).":[113],"conducted":[115],"chart":[117,141,226],"review":[118,142],"used":[130],"descriptive":[131],"statistics":[132],"report":[134],"implementation":[135],"outcomes,":[136],"verification":[137],"DSOs,":[139],"findings.":[143],"RESULTS:":[144],"Participants":[145],"completed":[146],"OurDX":[147,241,263],"reports":[148],"7075":[150],"18":[152],"129":[153],"(39%)":[154],"eligible":[155,166],"pediatric":[156,193],"subspecialty":[157],"visits":[158,170],"(site":[159,171],"1),":[160],"460":[162],"706":[164],"(65%)":[165],"adult":[167,195],"primary":[168],"care":[169],"2).":[172],"Among":[173],"reporting":[175],"concerns,":[177],"63%":[178],"verified":[180],"as":[181],"probable":[182,186],"DSOs.":[183],"In":[184,225],"total,":[185],"DSOs":[187,207,258],"7.5%":[191],"underlying":[198],"conditions,":[200],"respectively.":[201],"The":[202],"most":[203,228,260],"common":[204],"not":[210],"feeling":[211],"heard;":[212],"problems/delays":[213,219],"tests":[215],"or":[216,222,233],"referrals;":[217],"explanation":[221],"next":[223],"steps.":[224],"review,":[227],"clinician":[229],"notes":[230],"included":[231,266],"all":[232],"some":[234],"patient/family":[235],"priorities":[236],"histories.":[239],"CONCLUSIONS:":[240],"can":[242],"help":[243],"living":[248],"diagnosis.":[254],"Participating":[255]},"counts_by_year":[{"year":2025,"cited_by_count":4},{"year":2024,"cited_by_count":5},{"year":2023,"cited_by_count":3}],"updated_date":"2026-04-29T09:16:38.111599","created_date":"2025-10-10T00:00:00"}