{"id":"https://openalex.org/W4200044371","doi":"https://doi.org/10.1093/jamia/ocab273","title":"Telehealth experiences of providers and patients who use augmentative and alternative communication","display_name":"Telehealth experiences of providers and patients who use augmentative and alternative communication","publication_year":2021,"publication_date":"2021-11-26","ids":{"openalex":"https://openalex.org/W4200044371","doi":"https://doi.org/10.1093/jamia/ocab273","pmid":"https://pubmed.ncbi.nlm.nih.gov/34897460"},"language":"en","primary_location":{"id":"doi:10.1093/jamia/ocab273","is_oa":false,"landing_page_url":"https://doi.org/10.1093/jamia/ocab273","pdf_url":null,"source":{"id":"https://openalex.org/S129839026","display_name":"Journal of the American Medical Informatics Association","issn_l":"1067-5027","issn":["1067-5027","1527-974X"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310311648","host_organization_name":"Oxford University Press","host_organization_lineage":["https://openalex.org/P4310311648","https://openalex.org/P4310311647"],"host_organization_lineage_names":["Oxford University Press","University of Oxford"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of the American Medical Informatics Association","raw_type":"journal-article"},"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/8800527","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5043542551","display_name":"Erin Beneteau","orcid":"https://orcid.org/0000-0003-1100-4253"},"institutions":[{"id":"https://openalex.org/I201448701","display_name":"University of Washington","ror":"https://ror.org/00cvxb145","country_code":"US","type":"education","lineage":["https://openalex.org/I201448701"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"Erin Beneteau","raw_affiliation_strings":["Information School, University of Washington, Seattle, Washington, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Information School, University of Washington, Seattle, Washington, USA","institution_ids":["https://openalex.org/I201448701"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5079618014","display_name":"Ann Paradiso","orcid":"https://orcid.org/0000-0002-5092-8603"},"institutions":[{"id":"https://openalex.org/I1290206253","display_name":"Microsoft (United States)","ror":"https://ror.org/00d0nc645","country_code":"US","type":"company","lineage":["https://openalex.org/I1290206253"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Ann Paradiso","raw_affiliation_strings":["Microsoft Research, Redmond, Washington, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Microsoft Research, Redmond, Washington, USA","institution_ids":["https://openalex.org/I1290206253"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5064800403","display_name":"Wanda Pratt","orcid":"https://orcid.org/0000-0003-4035-0198"},"institutions":[{"id":"https://openalex.org/I201448701","display_name":"University of Washington","ror":"https://ror.org/00cvxb145","country_code":"US","type":"education","lineage":["https://openalex.org/I201448701"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Wanda Pratt","raw_affiliation_strings":["Information School, University of Washington, Seattle, Washington, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Information School, University of Washington, Seattle, Washington, USA","institution_ids":["https://openalex.org/I201448701"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":2,"corresponding_author_ids":["https://openalex.org/A5043542551"],"corresponding_institution_ids":["https://openalex.org/I201448701"],"apc_list":{"value":3967,"currency":"USD","value_usd":3967},"apc_paid":null,"fwci":3.6531,"has_fulltext":false,"cited_by_count":11,"citation_normalized_percentile":{"value":0.92861234,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":96,"max":98},"biblio":{"volume":"29","issue":"3","first_page":"481","last_page":"488"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T12207","display_name":"Assistive Technology in Communication and Mobility","score":0.9952999949455261,"subfield":{"id":"https://openalex.org/subfields/3609","display_name":"Occupational Therapy"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T12207","display_name":"Assistive Technology in Communication and Mobility","score":0.9952999949455261,"subfield":{"id":"https://openalex.org/subfields/3609","display_name":"Occupational Therapy"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11977","display_name":"Technology Use by Older Adults","score":0.0007999999797903001,"subfield":{"id":"https://openalex.org/subfields/3317","display_name":"Demography"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T11097","display_name":"Cerebral Palsy and Movement Disorders","score":0.0005000000237487257,"subfield":{"id":"https://openalex.org/subfields/2738","display_name":"Psychiatry and Mental health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/telehealth","display_name":"Telehealth","score":0.9872235059738159},{"id":"https://openalex.org/keywords/health-care","display_name":"Health care","score":0.5490697622299194},{"id":"https://openalex.org/keywords/telecare","display_name":"Telecare","score":0.530117928981781},{"id":"https://openalex.org/keywords/nursing","display_name":"Nursing","score":0.5207340717315674},{"id":"https://openalex.org/keywords/telemedicine","display_name":"Telemedicine","score":0.5146930813789368},{"id":"https://openalex.org/keywords/augmentative-and-alternative-communication","display_name":"Augmentative and alternative communication","score":0.4987151622772217},{"id":"https://openalex.org/keywords/thematic-analysis","display_name":"Thematic analysis","score":0.49112579226493835},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.47424381971359253},{"id":"https://openalex.org/keywords/business","display_name":"Business","score":0.3427964448928833},{"id":"https://openalex.org/keywords/qualitative-research","display_name":"Qualitative research","score":0.25651538372039795},{"id":"https://openalex.org/keywords/political-science","display_name":"Political science","score":0.0934557318687439},{"id":"https://openalex.org/keywords/sociology","display_name":"Sociology","score":0.09043020009994507}],"concepts":[{"id":"https://openalex.org/C2781050511","wikidata":"https://www.wikidata.org/wiki/Q46994","display_name":"Telehealth","level":4,"score":0.9872235059738159},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.5490697622299194},{"id":"https://openalex.org/C2780519836","wikidata":"https://www.wikidata.org/wiki/Q3546507","display_name":"Telecare","level":4,"score":0.530117928981781},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.5207340717315674},{"id":"https://openalex.org/C2779891985","wikidata":"https://www.wikidata.org/wiki/Q46994","display_name":"Telemedicine","level":3,"score":0.5146930813789368},{"id":"https://openalex.org/C2778121785","wikidata":"https://www.wikidata.org/wiki/Q781083","display_name":"Augmentative and alternative communication","level":2,"score":0.4987151622772217},{"id":"https://openalex.org/C74196892","wikidata":"https://www.wikidata.org/wiki/Q7781188","display_name":"Thematic analysis","level":3,"score":0.49112579226493835},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.47424381971359253},{"id":"https://openalex.org/C144133560","wikidata":"https://www.wikidata.org/wiki/Q4830453","display_name":"Business","level":0,"score":0.3427964448928833},{"id":"https://openalex.org/C190248442","wikidata":"https://www.wikidata.org/wiki/Q839486","display_name":"Qualitative research","level":2,"score":0.25651538372039795},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.0934557318687439},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.09043020009994507},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.0},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.0},{"id":"https://openalex.org/C36289849","wikidata":"https://www.wikidata.org/wiki/Q34749","display_name":"Social science","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003142","descriptor_name":"Communication","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003142","descriptor_name":"Communication","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003142","descriptor_name":"Communication","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003695","descriptor_name":"Delivery of Health Care","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003695","descriptor_name":"Delivery of Health Care","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003695","descriptor_name":"Delivery of Health Care","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006233","descriptor_name":"Persons with Disabilities","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D006233","descriptor_name":"Disabled Persons","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D006233","descriptor_name":"Persons with Disabilities","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D014481","descriptor_name":"United States","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D014481","descriptor_name":"United States","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D014481","descriptor_name":"United States","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017216","descriptor_name":"Telemedicine","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D017216","descriptor_name":"Telemedicine","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D017216","descriptor_name":"Telemedicine","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D017753","descriptor_name":"Ecosystem","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017753","descriptor_name":"Ecosystem","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017753","descriptor_name":"Ecosystem","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false}],"locations_count":3,"locations":[{"id":"doi:10.1093/jamia/ocab273","is_oa":false,"landing_page_url":"https://doi.org/10.1093/jamia/ocab273","pdf_url":null,"source":{"id":"https://openalex.org/S129839026","display_name":"Journal of the American Medical Informatics Association","issn_l":"1067-5027","issn":["1067-5027","1527-974X"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310311648","host_organization_name":"Oxford University Press","host_organization_lineage":["https://openalex.org/P4310311648","https://openalex.org/P4310311647"],"host_organization_lineage_names":["Oxford University Press","University of Oxford"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of the American Medical Informatics Association","raw_type":"journal-article"},{"id":"pmid:34897460","is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/34897460","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of the American Medical Informatics Association : JAMIA","raw_type":null},{"id":"pmh:oai:pubmedcentral.nih.gov:8800527","is_oa":true,"landing_page_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/8800527","pdf_url":null,"source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"J Am Med Inform Assoc","raw_type":"Text"}],"best_oa_location":{"id":"pmh:oai:pubmedcentral.nih.gov:8800527","is_oa":true,"landing_page_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/8800527","pdf_url":null,"source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"J Am Med Inform Assoc","raw_type":"Text"},"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/4","score":0.4099999964237213,"display_name":"Quality Education"}],"awards":[],"funders":[],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":61,"referenced_works":["https://openalex.org/W204327157","https://openalex.org/W409344806","https://openalex.org/W561751346","https://openalex.org/W626439884","https://openalex.org/W1480414464","https://openalex.org/W1482460708","https://openalex.org/W1489859426","https://openalex.org/W1557323062","https://openalex.org/W1569268909","https://openalex.org/W1658665046","https://openalex.org/W1971220606","https://openalex.org/W1975832678","https://openalex.org/W1992909138","https://openalex.org/W2019466658","https://openalex.org/W2022133263","https://openalex.org/W2026150550","https://openalex.org/W2064740997","https://openalex.org/W2082669346","https://openalex.org/W2095191031","https://openalex.org/W2109919609","https://openalex.org/W2131649092","https://openalex.org/W2141099158","https://openalex.org/W2143962951","https://openalex.org/W2171369183","https://openalex.org/W2342801528","https://openalex.org/W2408196857","https://openalex.org/W2470343548","https://openalex.org/W2528259719","https://openalex.org/W2529137305","https://openalex.org/W2559680680","https://openalex.org/W2582663318","https://openalex.org/W2606613250","https://openalex.org/W2620756173","https://openalex.org/W2748175587","https://openalex.org/W2793085243","https://openalex.org/W2803820580","https://openalex.org/W2804851507","https://openalex.org/W2888535658","https://openalex.org/W2898853671","https://openalex.org/W2903139160","https://openalex.org/W2906641003","https://openalex.org/W2936218731","https://openalex.org/W2981689850","https://openalex.org/W3016597700","https://openalex.org/W3029350712","https://openalex.org/W3036641899","https://openalex.org/W3041795737","https://openalex.org/W3092246734","https://openalex.org/W3104067078","https://openalex.org/W3123418239","https://openalex.org/W3135715545","https://openalex.org/W3142415468","https://openalex.org/W3145190647","https://openalex.org/W3167622435","https://openalex.org/W3194923185","https://openalex.org/W4210724217","https://openalex.org/W4234168833","https://openalex.org/W6629160635","https://openalex.org/W6636843479","https://openalex.org/W6662729565","https://openalex.org/W6738878770"],"related_works":["https://openalex.org/W2088570195","https://openalex.org/W2464555726","https://openalex.org/W4301931849","https://openalex.org/W2025505375","https://openalex.org/W4200099218","https://openalex.org/W418576221","https://openalex.org/W2995395315","https://openalex.org/W2069449365","https://openalex.org/W2342948970","https://openalex.org/W2560609707"],"abstract_inverted_index":{"OBJECTIVE:":[0],"We":[1,26,80,157],"explore":[2],"the":[3,58,62,76,88,119,149,164,205,241],"telehealth":[4,42,73,97,174,187,208,217],"experiences":[5],"of":[6,163,173,186,207,220],"adults":[7,33],"who":[8,17,34,40,46,190],"use":[9,35,47,148,191],"augmentative":[10],"and":[11,15,37,51,61,113,195,229,243,255],"alternative":[12],"communication":[13,150],"(AAC)":[14],"clinicians":[16,39],"work":[18],"with":[19,31],"people":[20,45,189],"using":[21],"AAC.":[22],"MATERIALS":[23],"AND":[24],"METHODS:":[25],"conducted":[27],"semistructured,":[28],"online":[29],"interviews":[30],"6":[32,78],"AAC":[36,48,192,238],"8":[38],"provide":[41,134],"services":[43],"to":[44,86,109,121,137,144,147,178,211,252],"between":[49],"July":[50],"September":[52],"2020.":[53],"Participants":[54],"were":[55],"located":[56],"in":[57,69,75,176,240],"United":[59,63],"States":[60],"Kingdom.":[64],"All":[65],"participants":[66],"had":[67],"engaged":[68],"2":[70],"or":[71],"more":[72],"visits":[74],"past":[77],"months.":[79],"used":[81],"an":[82,99,198],"inductive,":[83],"thematic":[84],"approach":[85],"analyze":[87],"interview":[89],"data.":[90],"RESULTS:":[91],"Our":[92],"findings":[93],"reveal":[94],"that":[95,152,159],"(1)":[96],"is":[98],"essential":[100],"service,":[101],"(2)":[102],"technology":[103],"causes":[104],"barriers,":[105],"(3)":[106],"policies":[107,247],"meant":[108],"protect":[110],"actually":[111],"inhibit,":[112],"(4)":[114],"remote":[115,230],"monitoring":[116,232],"devices":[117],"have":[118],"potential":[120],"mitigate":[122],"risks.":[123],"DISCUSSION:":[124],"Telehealth":[125,139,246],"systems":[126,161],"created":[127],"for":[128,188,200],"persons":[129],"without":[130],"disabilities":[131],"do":[132],"not":[133],"equitable":[135],"access":[136,251],"everyone.":[138],"should":[140,196,215,235,248],"be":[141,197,212],"flexible":[142],"enough":[143],"allow":[145],"patients":[146],"modality":[151],"best":[153],"meets":[154],"their":[155],"needs.":[156],"suggest":[158],"healthcare":[160,165,223],"think":[162],"ecosystem":[166],"as":[167,218],"one":[168],"which":[169,225],"includes":[170,226],"a":[171,221],"variety":[172],"options":[175],"addition":[177],"traditional":[179],"in-person":[180],"clinical":[181],"visits.":[182],"CONCLUSIONS:":[183],"The":[184],"benefits":[185],"are":[193],"substantial":[194],"option":[199],"ongoing":[201],"health":[202,231,253],"care.":[203],"However,":[204],"accessibility":[206],"technologies":[209],"needs":[210],"improved.":[213],"Designers":[214,234],"view":[216],"part":[219],"broad":[222],"ecosystem,":[224],"in-person,":[227],"telehealth,":[228],"technologies.":[233],"also":[236],"include":[237],"users":[239],"design":[242],"development":[244],"process.":[245],"encourage":[249],"multimodality":[250],"care":[254],"address":[256],"funding":[257],"concerns.":[258]},"counts_by_year":[{"year":2025,"cited_by_count":3},{"year":2024,"cited_by_count":5},{"year":2023,"cited_by_count":3}],"updated_date":"2026-06-29T08:53:18.405633","created_date":"2025-10-10T00:00:00"}