{"id":"https://openalex.org/W4200069677","doi":"https://doi.org/10.1093/jamia/ocab260","title":"Curating a longitudinal research resource using linked primary care EHR data\u2014a UK Biobank case study","display_name":"Curating a longitudinal research resource using linked primary care EHR data\u2014a UK Biobank case study","publication_year":2021,"publication_date":"2021-11-23","ids":{"openalex":"https://openalex.org/W4200069677","doi":"https://doi.org/10.1093/jamia/ocab260","pmid":"https://pubmed.ncbi.nlm.nih.gov/34897458"},"language":"en","primary_location":{"id":"doi:10.1093/jamia/ocab260","is_oa":true,"landing_page_url":"https://doi.org/10.1093/jamia/ocab260","pdf_url":"https://academic.oup.com/jamia/article-pdf/29/3/546/42333190/ocab260.pdf","source":{"id":"https://openalex.org/S129839026","display_name":"Journal of the American Medical Informatics Association","issn_l":"1067-5027","issn":["1067-5027","1527-974X"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310311648","host_organization_name":"Oxford University Press","host_organization_lineage":["https://openalex.org/P4310311648","https://openalex.org/P4310311647"],"host_organization_lineage_names":["Oxford University Press","University of Oxford"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of the American Medical Informatics Association","raw_type":"journal-article"},"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":true,"oa_status":"hybrid","oa_url":"https://academic.oup.com/jamia/article-pdf/29/3/546/42333190/ocab260.pdf","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5015798197","display_name":"Philip Darke","orcid":"https://orcid.org/0000-0002-9033-2767"},"institutions":[{"id":"https://openalex.org/I84884186","display_name":"Newcastle University","ror":"https://ror.org/01kj2bm70","country_code":"GB","type":"education","lineage":["https://openalex.org/I84884186"]}],"countries":["GB"],"is_corresponding":true,"raw_author_name":"Philip Darke","raw_affiliation_strings":["School of Computing, Newcastle University, Newcastle upon Tyne, UK"],"raw_orcid":"https://orcid.org/0000-0002-9033-2767","affiliations":[{"raw_affiliation_string":"School of Computing, Newcastle University, Newcastle upon Tyne, UK","institution_ids":["https://openalex.org/I84884186"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5069724066","display_name":"Sophie Cassidy","orcid":"https://orcid.org/0000-0002-0228-7274"},"institutions":[{"id":"https://openalex.org/I129604602","display_name":"The University of Sydney","ror":"https://ror.org/0384j8v12","country_code":"AU","type":"education","lineage":["https://openalex.org/I129604602"]}],"countries":["AU"],"is_corresponding":false,"raw_author_name":"Sophie Cassidy","raw_affiliation_strings":["Central Clinical School, The University of Sydney, Sydney, Australia"],"raw_orcid":"https://orcid.org/0000-0002-0228-7274","affiliations":[{"raw_affiliation_string":"Central Clinical School, The University of Sydney, Sydney, Australia","institution_ids":["https://openalex.org/I129604602"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5066566335","display_name":"Michael Catt","orcid":"https://orcid.org/0000-0003-0935-7973"},"institutions":[{"id":"https://openalex.org/I84884186","display_name":"Newcastle University","ror":"https://ror.org/01kj2bm70","country_code":"GB","type":"education","lineage":["https://openalex.org/I84884186"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Michael Catt","raw_affiliation_strings":["Population Health Sciences Institute, Newcastle University, Newcastle upon Tyne, UK"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Population Health Sciences Institute, Newcastle University, Newcastle upon Tyne, UK","institution_ids":["https://openalex.org/I84884186"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5065094204","display_name":"Roy Taylor","orcid":"https://orcid.org/0000-0001-6273-0170"},"institutions":[{"id":"https://openalex.org/I84884186","display_name":"Newcastle University","ror":"https://ror.org/01kj2bm70","country_code":"GB","type":"education","lineage":["https://openalex.org/I84884186"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Roy Taylor","raw_affiliation_strings":["Translational and Clinical Research Institute, Newcastle University, Newcastle upon Tyne, UK"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Translational and Clinical Research Institute, Newcastle University, Newcastle upon Tyne, UK","institution_ids":["https://openalex.org/I84884186"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5018918066","display_name":"Paolo Missier","orcid":"https://orcid.org/0000-0002-0978-2446"},"institutions":[{"id":"https://openalex.org/I84884186","display_name":"Newcastle University","ror":"https://ror.org/01kj2bm70","country_code":"GB","type":"education","lineage":["https://openalex.org/I84884186"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Paolo Missier","raw_affiliation_strings":["School of Computing, Newcastle University, Newcastle upon Tyne, UK"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"School of Computing, Newcastle University, Newcastle upon Tyne, UK","institution_ids":["https://openalex.org/I84884186"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5012372361","display_name":"Jaume Bacardit","orcid":"https://orcid.org/0000-0002-2692-7205"},"institutions":[{"id":"https://openalex.org/I84884186","display_name":"Newcastle University","ror":"https://ror.org/01kj2bm70","country_code":"GB","type":"education","lineage":["https://openalex.org/I84884186"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Jaume Bacardit","raw_affiliation_strings":["School of Computing, Newcastle University, Newcastle upon Tyne, UK"],"raw_orcid":"https://orcid.org/0000-0002-2692-7205","affiliations":[{"raw_affiliation_string":"School of Computing, Newcastle University, Newcastle upon Tyne, UK","institution_ids":["https://openalex.org/I84884186"]}]}],"institutions":[],"countries_distinct_count":2,"institutions_distinct_count":2,"corresponding_author_ids":["https://openalex.org/A5015798197"],"corresponding_institution_ids":["https://openalex.org/I84884186"],"apc_list":{"value":3967,"currency":"USD","value_usd":3967},"apc_paid":{"value":3967,"currency":"USD","value_usd":3967},"fwci":1.6657,"has_fulltext":false,"cited_by_count":27,"citation_normalized_percentile":{"value":0.85424811,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":89,"max":99},"biblio":{"volume":"29","issue":"3","first_page":"546","last_page":"552"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10261","display_name":"Genetic Associations and Epidemiology","score":0.9944999814033508,"subfield":{"id":"https://openalex.org/subfields/1311","display_name":"Genetics"},"field":{"id":"https://openalex.org/fields/13","display_name":"Biochemistry, Genetics and Molecular Biology"},"domain":{"id":"https://openalex.org/domains/1","display_name":"Life Sciences"}},"topics":[{"id":"https://openalex.org/T10261","display_name":"Genetic Associations and Epidemiology","score":0.9944999814033508,"subfield":{"id":"https://openalex.org/subfields/1311","display_name":"Genetics"},"field":{"id":"https://openalex.org/fields/13","display_name":"Biochemistry, Genetics and Molecular Biology"},"domain":{"id":"https://openalex.org/domains/1","display_name":"Life Sciences"}},{"id":"https://openalex.org/T12246","display_name":"Chronic Disease Management Strategies","score":0.9807999730110168,"subfield":{"id":"https://openalex.org/subfields/2713","display_name":"Epidemiology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13522","display_name":"Cardiovascular Health and Risk Factors","score":0.9760000109672546,"subfield":{"id":"https://openalex.org/subfields/2705","display_name":"Cardiology and Cardiovascular Medicine"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/biobank","display_name":"Biobank","score":0.964635968208313},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.6182748079299927},{"id":"https://openalex.org/keywords/longitudinal-data","display_name":"Longitudinal data","score":0.6000661253929138},{"id":"https://openalex.org/keywords/cohort","display_name":"Cohort","score":0.5916522741317749},{"id":"https://openalex.org/keywords/longitudinal-study","display_name":"Longitudinal study","score":0.5763661861419678},{"id":"https://openalex.org/keywords/primary-care","display_name":"Primary care","score":0.5659177899360657},{"id":"https://openalex.org/keywords/data-collection","display_name":"Data collection","score":0.529571533203125},{"id":"https://openalex.org/keywords/cohort-study","display_name":"Cohort study","score":0.5260971784591675},{"id":"https://openalex.org/keywords/medical-record","display_name":"Medical record","score":0.4630885720252991},{"id":"https://openalex.org/keywords/medline","display_name":"MEDLINE","score":0.41783392429351807},{"id":"https://openalex.org/keywords/data-science","display_name":"Data science","score":0.38868239521980286},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.3461969196796417},{"id":"https://openalex.org/keywords/family-medicine","display_name":"Family medicine","score":0.3115524351596832},{"id":"https://openalex.org/keywords/data-mining","display_name":"Data mining","score":0.2496069371700287},{"id":"https://openalex.org/keywords/bioinformatics","display_name":"Bioinformatics","score":0.139841228723526},{"id":"https://openalex.org/keywords/statistics","display_name":"Statistics","score":0.13159659504890442},{"id":"https://openalex.org/keywords/pathology","display_name":"Pathology","score":0.08641490340232849}],"concepts":[{"id":"https://openalex.org/C116567970","wikidata":"https://www.wikidata.org/wiki/Q864217","display_name":"Biobank","level":2,"score":0.964635968208313},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.6182748079299927},{"id":"https://openalex.org/C3020672099","wikidata":"https://www.wikidata.org/wiki/Q857354","display_name":"Longitudinal data","level":2,"score":0.6000661253929138},{"id":"https://openalex.org/C72563966","wikidata":"https://www.wikidata.org/wiki/Q1303415","display_name":"Cohort","level":2,"score":0.5916522741317749},{"id":"https://openalex.org/C2777895361","wikidata":"https://www.wikidata.org/wiki/Q1758614","display_name":"Longitudinal study","level":2,"score":0.5763661861419678},{"id":"https://openalex.org/C2984752397","wikidata":"https://www.wikidata.org/wiki/Q3259956","display_name":"Primary care","level":2,"score":0.5659177899360657},{"id":"https://openalex.org/C133462117","wikidata":"https://www.wikidata.org/wiki/Q4929239","display_name":"Data collection","level":2,"score":0.529571533203125},{"id":"https://openalex.org/C201903717","wikidata":"https://www.wikidata.org/wiki/Q1778788","display_name":"Cohort study","level":2,"score":0.5260971784591675},{"id":"https://openalex.org/C195910791","wikidata":"https://www.wikidata.org/wiki/Q1324077","display_name":"Medical record","level":2,"score":0.4630885720252991},{"id":"https://openalex.org/C2779473830","wikidata":"https://www.wikidata.org/wiki/Q1540899","display_name":"MEDLINE","level":2,"score":0.41783392429351807},{"id":"https://openalex.org/C2522767166","wikidata":"https://www.wikidata.org/wiki/Q2374463","display_name":"Data science","level":1,"score":0.38868239521980286},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.3461969196796417},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.3115524351596832},{"id":"https://openalex.org/C124101348","wikidata":"https://www.wikidata.org/wiki/Q172491","display_name":"Data mining","level":1,"score":0.2496069371700287},{"id":"https://openalex.org/C60644358","wikidata":"https://www.wikidata.org/wiki/Q128570","display_name":"Bioinformatics","level":1,"score":0.139841228723526},{"id":"https://openalex.org/C105795698","wikidata":"https://www.wikidata.org/wiki/Q12483","display_name":"Statistics","level":1,"score":0.13159659504890442},{"id":"https://openalex.org/C142724271","wikidata":"https://www.wikidata.org/wiki/Q7208","display_name":"Pathology","level":1,"score":0.08641490340232849},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.0},{"id":"https://openalex.org/C126838900","wikidata":"https://www.wikidata.org/wiki/Q77604","display_name":"Radiology","level":1,"score":0.0},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.0},{"id":"https://openalex.org/C33923547","wikidata":"https://www.wikidata.org/wiki/Q395","display_name":"Mathematics","level":0,"score":0.0},{"id":"https://openalex.org/C86803240","wikidata":"https://www.wikidata.org/wiki/Q420","display_name":"Biology","level":0,"score":0.0}],"mesh":[{"descriptor_ui":"D006113","descriptor_name":"United Kingdom","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006113","descriptor_name":"United Kingdom","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006113","descriptor_name":"United Kingdom","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008137","descriptor_name":"Longitudinal Studies","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008137","descriptor_name":"Longitudinal Studies","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008137","descriptor_name":"Longitudinal Studies","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011320","descriptor_name":"Primary Health Care","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011320","descriptor_name":"Primary Health Care","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011320","descriptor_name":"Primary Health Care","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D018070","descriptor_name":"Biological Specimen Banks","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D018070","descriptor_name":"Biological Specimen Banks","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D018070","descriptor_name":"Biological Specimen Banks","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D057286","descriptor_name":"Electronic Health Records","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D057286","descriptor_name":"Electronic Health Records","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D057286","descriptor_name":"Electronic Health Records","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true}],"locations_count":5,"locations":[{"id":"doi:10.1093/jamia/ocab260","is_oa":true,"landing_page_url":"https://doi.org/10.1093/jamia/ocab260","pdf_url":"https://academic.oup.com/jamia/article-pdf/29/3/546/42333190/ocab260.pdf","source":{"id":"https://openalex.org/S129839026","display_name":"Journal of the American Medical Informatics Association","issn_l":"1067-5027","issn":["1067-5027","1527-974X"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310311648","host_organization_name":"Oxford University Press","host_organization_lineage":["https://openalex.org/P4310311648","https://openalex.org/P4310311647"],"host_organization_lineage_names":["Oxford University Press","University of Oxford"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of the American Medical Informatics Association","raw_type":"journal-article"},{"id":"pmid:34897458","is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/34897458","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of the American Medical Informatics Association : JAMIA","raw_type":null},{"id":"pmh:oai:eprints.ncl.ac.uk:280223","is_oa":true,"landing_page_url":"https://eprints.ncl.ac.uk/280223","pdf_url":null,"source":{"id":"https://openalex.org/S4306402485","display_name":"Newcastle University ePrints (Newcastle Univesity)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I84884186","host_organization_name":"Newcastle University","host_organization_lineage":["https://openalex.org/I84884186"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":""},{"id":"pmh:oai:pubmedcentral.nih.gov:8800530","is_oa":true,"landing_page_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/8800530","pdf_url":null,"source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"J Am Med Inform Assoc","raw_type":"Text"},{"id":"pmh:oai:pure.atira.dk:openaire_cris_publications/63a1dddf-7cc7-4894-b398-0c11d834bb80","is_oa":true,"landing_page_url":"https://research.birmingham.ac.uk/en/publications/63a1dddf-7cc7-4894-b398-0c11d834bb80","pdf_url":null,"source":{"id":"https://openalex.org/S4306402634","display_name":"University of Birmingham Research Portal (University of Birmingham)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I79619799","host_organization_name":"University of Birmingham","host_organization_lineage":["https://openalex.org/I79619799"],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Darke , P , Cassidy , S , Catt , M , Taylor , R , Missier , P & Bacardit , J 2022 , ' Curating a longitudinal research resource using linked primary care EHR data - a UK Biobank case study ' , Journal of the American Medical Informatics Association , vol. 29 , no. 3 , pp. 546-552 . https://doi.org/10.1093/jamia/ocab260","raw_type":"article"}],"best_oa_location":{"id":"doi:10.1093/jamia/ocab260","is_oa":true,"landing_page_url":"https://doi.org/10.1093/jamia/ocab260","pdf_url":"https://academic.oup.com/jamia/article-pdf/29/3/546/42333190/ocab260.pdf","source":{"id":"https://openalex.org/S129839026","display_name":"Journal of the American Medical Informatics Association","issn_l":"1067-5027","issn":["1067-5027","1527-974X"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310311648","host_organization_name":"Oxford University Press","host_organization_lineage":["https://openalex.org/P4310311648","https://openalex.org/P4310311647"],"host_organization_lineage_names":["Oxford University Press","University of Oxford"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of the American Medical Informatics Association","raw_type":"journal-article"},"sustainable_development_goals":[],"awards":[{"id":"https://openalex.org/G1491816656","display_name":null,"funder_award_id":"2130321","funder_id":"https://openalex.org/F4320334627","funder_display_name":"Engineering and Physical Sciences Research Council"}],"funders":[{"id":"https://openalex.org/F4320334627","display_name":"Engineering and Physical Sciences Research Council","ror":"https://ror.org/0439y7842"}],"has_content":{"grobid_xml":false,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W4200069677.pdf"},"referenced_works_count":15,"referenced_works":["https://openalex.org/W2082704080","https://openalex.org/W2084695544","https://openalex.org/W2101364543","https://openalex.org/W2139609011","https://openalex.org/W2395172628","https://openalex.org/W2515789121","https://openalex.org/W2520572981","https://openalex.org/W2606183901","https://openalex.org/W2723723801","https://openalex.org/W2769291786","https://openalex.org/W2952675817","https://openalex.org/W2971216694","https://openalex.org/W3006266257","https://openalex.org/W3107276381","https://openalex.org/W3149026346"],"related_works":["https://openalex.org/W2125371786","https://openalex.org/W3128808981","https://openalex.org/W2239640831","https://openalex.org/W2902727542","https://openalex.org/W2244622617","https://openalex.org/W2896073317","https://openalex.org/W2249905794","https://openalex.org/W2143509157","https://openalex.org/W2012880756","https://openalex.org/W2013007541"],"abstract_inverted_index":{"Primary":[0],"care":[1],"EHR":[2,24,111],"data":[3,25,66],"are":[4,29],"often":[5],"of":[6,65,82,90],"clinical":[7],"importance":[8],"to":[9,43,61],"cohort":[10,40],"studies":[11,41,146],"however":[12],"they":[13,33],"require":[14],"careful":[15],"handling.":[16],"Challenges":[17],"include":[18],"determining":[19],"the":[20,94,120,136],"periods":[21,64],"during":[22],"which":[23],"were":[26],"collected.":[27],"Participants":[28],"typically":[30],"censored":[31],"when":[32,105],"deregister":[34],"from":[35,93],"a":[36],"medical":[37],"practice,":[38],"however,":[39,135],"wish":[42],"follow":[44],"participants":[45,83],"longitudinally":[46],"including":[47],"those":[48],"that":[49],"change":[50],"practice.":[51],"Using":[52],"UK":[53,132],"Biobank":[54,133],"as":[55],"an":[56],"exemplar,":[57],"we":[58],"developed":[59],"methodology":[60],"infer":[62],"continuous":[63],"collection":[67],"and":[68,110,126,145],"maximize":[69],"follow-up":[70,78],"in":[71,76],"longitudinal":[72,123],"studies.":[73],"This":[74],"resulted":[75],"longer":[77],"for":[79,142],"around":[80],"40%":[81],"with":[84,147],"multiple":[85],"registration":[86],"records":[87],"(mean":[88],"increase":[89],"3.8":[91],"years":[92],"first":[95],"study":[96,117,124],"visit).":[97],"The":[98],"approach":[99],"did":[100],"not":[101],"sacrifice":[102],"phenotyping":[103],"accuracy":[104],"comparing":[106],"agreement":[107],"between":[108],"self-reported":[109],"data.":[112],"A":[113],"diabetes":[114],"mellitus":[115],"case":[116],"illustrates":[118],"how":[119],"algorithm":[121],"supports":[122],"design":[125],"provides":[127],"further":[128],"validation.":[129],"We":[130],"use":[131],"data,":[134],"tools":[137],"provided":[138],"can":[139],"be":[140],"used":[141],"other":[143],"conditions":[144],"minimal":[148],"alteration.":[149]},"counts_by_year":[{"year":2026,"cited_by_count":6},{"year":2025,"cited_by_count":10},{"year":2024,"cited_by_count":5},{"year":2023,"cited_by_count":5},{"year":2022,"cited_by_count":1}],"updated_date":"2026-08-02T14:50:37.381335","created_date":"2025-10-10T00:00:00"}