{"id":"https://openalex.org/W3092441581","doi":"https://doi.org/10.1093/jamia/ocaa193","title":"User-centered design of a longitudinal care plan for children with medical complexity","display_name":"User-centered design of a longitudinal care plan for children with medical complexity","publication_year":2020,"publication_date":"2020-08-20","ids":{"openalex":"https://openalex.org/W3092441581","doi":"https://doi.org/10.1093/jamia/ocaa193","mag":"3092441581","pmid":"https://pubmed.ncbi.nlm.nih.gov/33043368"},"language":"en","primary_location":{"id":"doi:10.1093/jamia/ocaa193","is_oa":false,"landing_page_url":"https://doi.org/10.1093/jamia/ocaa193","pdf_url":null,"source":{"id":"https://openalex.org/S129839026","display_name":"Journal of the American Medical Informatics Association","issn_l":"1067-5027","issn":["1067-5027","1527-974X"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310311648","host_organization_name":"Oxford University Press","host_organization_lineage":["https://openalex.org/P4310311648","https://openalex.org/P4310311647"],"host_organization_lineage_names":["Oxford University Press","University of Oxford"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of the American Medical Informatics Association","raw_type":"journal-article"},"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/7727350","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5052757873","display_name":"Arti D. Desai","orcid":"https://orcid.org/0000-0001-7596-8479"},"institutions":[{"id":"https://openalex.org/I201448701","display_name":"University of Washington","ror":"https://ror.org/00cvxb145","country_code":"US","type":"education","lineage":["https://openalex.org/I201448701"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"Arti D Desai","raw_affiliation_strings":["Department of Pediatrics, University of Washington, Seattle, Washington, USA","Seattle Children\u2019s Research Institute, Seattle, Washington, USA","Seattle Children's Research Institute, Seattle, Washington, USA"],"raw_orcid":"https://orcid.org/0000-0001-7596-8479","affiliations":[{"raw_affiliation_string":"Department of Pediatrics, University of Washington, Seattle, Washington, USA","institution_ids":["https://openalex.org/I201448701"]},{"raw_affiliation_string":"Seattle Children\u2019s Research Institute, Seattle, Washington, USA","institution_ids":[]},{"raw_affiliation_string":"Seattle Children's Research Institute, Seattle, Washington, USA","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5100774729","display_name":"Grace Wang","orcid":"https://orcid.org/0000-0003-2063-031X"},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Grace Wang","raw_affiliation_strings":["Seattle Children\u2019s Research Institute, Seattle, Washington, USA","Seattle Children's Research Institute, Seattle, Washington, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Seattle Children\u2019s Research Institute, Seattle, Washington, USA","institution_ids":[]},{"raw_affiliation_string":"Seattle Children's Research Institute, Seattle, Washington, USA","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5038647642","display_name":"Julia Wignall","orcid":null},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Julia Wignall","raw_affiliation_strings":["Seattle Children\u2019s Research Institute, Seattle, Washington, USA","Seattle Children's Research Institute, Seattle, Washington, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Seattle Children\u2019s Research Institute, Seattle, Washington, USA","institution_ids":[]},{"raw_affiliation_string":"Seattle Children's Research Institute, Seattle, Washington, USA","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5038827220","display_name":"Dylan Kinard","orcid":null},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Dylan Kinard","raw_affiliation_strings":["Seattle Children\u2019s Research Institute, Seattle, Washington, USA","Seattle Children's Research Institute, Seattle, Washington, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Seattle Children\u2019s Research Institute, Seattle, Washington, USA","institution_ids":[]},{"raw_affiliation_string":"Seattle Children's Research Institute, Seattle, Washington, USA","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5101400052","display_name":"Vidhi Singh","orcid":"https://orcid.org/0000-0002-3513-811X"},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Vidhi Singh","raw_affiliation_strings":["Seattle Children\u2019s Research Institute, Seattle, Washington, USA","Seattle Children's Research Institute, Seattle, Washington, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Seattle Children\u2019s Research Institute, Seattle, Washington, USA","institution_ids":[]},{"raw_affiliation_string":"Seattle Children's Research Institute, Seattle, Washington, USA","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5025802958","display_name":"Sherri Adams","orcid":"https://orcid.org/0000-0002-1095-0101"},"institutions":[{"id":"https://openalex.org/I185261750","display_name":"University of Toronto","ror":"https://ror.org/03dbr7087","country_code":"CA","type":"education","lineage":["https://openalex.org/I185261750"]},{"id":"https://openalex.org/I4210141030","display_name":"SickKids Foundation","ror":"https://ror.org/04374qe70","country_code":"CA","type":"funder","lineage":["https://openalex.org/I4210141030"]}],"countries":["CA"],"is_corresponding":false,"raw_author_name":"Sherri Adams","raw_affiliation_strings":["Division of Paediatric Medicine, SickKids, Toronto, Canada","Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, Toronto, Canada","SickKids Research Institute, Toronto, Canada"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Division of Paediatric Medicine, SickKids, Toronto, Canada","institution_ids":["https://openalex.org/I4210141030"]},{"raw_affiliation_string":"Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, Toronto, Canada","institution_ids":["https://openalex.org/I185261750"]},{"raw_affiliation_string":"SickKids Research Institute, Toronto, Canada","institution_ids":["https://openalex.org/I4210141030"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5064800403","display_name":"Wanda Pratt","orcid":"https://orcid.org/0000-0003-4035-0198"},"institutions":[{"id":"https://openalex.org/I201448701","display_name":"University of Washington","ror":"https://ror.org/00cvxb145","country_code":"US","type":"education","lineage":["https://openalex.org/I201448701"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Wanda Pratt","raw_affiliation_strings":["Biomedical and Health Informatics, University of Washington, Seattle, Washington, USA","The Information School, University of Washington, Seattle, Washington, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Biomedical and Health Informatics, University of Washington, Seattle, Washington, USA","institution_ids":["https://openalex.org/I201448701"]},{"raw_affiliation_string":"The Information School, University of Washington, Seattle, Washington, USA","institution_ids":["https://openalex.org/I201448701"]}]}],"institutions":[],"countries_distinct_count":2,"institutions_distinct_count":7,"corresponding_author_ids":["https://openalex.org/A5052757873"],"corresponding_institution_ids":["https://openalex.org/I201448701"],"apc_list":{"value":3967,"currency":"USD","value_usd":3967},"apc_paid":null,"fwci":4.0368,"has_fulltext":false,"cited_by_count":24,"citation_normalized_percentile":{"value":0.95336293,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":89,"max":100},"biblio":{"volume":"27","issue":"12","first_page":"1860","last_page":"1870"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10391","display_name":"Healthcare Policy and Management","score":0.20900000631809235,"subfield":{"id":"https://openalex.org/subfields/2002","display_name":"Economics and Econometrics"},"field":{"id":"https://openalex.org/fields/20","display_name":"Economics, Econometrics and Finance"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T10391","display_name":"Healthcare Policy and Management","score":0.20900000631809235,"subfield":{"id":"https://openalex.org/subfields/2002","display_name":"Economics and Econometrics"},"field":{"id":"https://openalex.org/fields/20","display_name":"Economics, Econometrics and Finance"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T12246","display_name":"Chronic Disease Management Strategies","score":0.14790000021457672,"subfield":{"id":"https://openalex.org/subfields/2713","display_name":"Epidemiology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11590","display_name":"Primary Care and Health Outcomes","score":0.09080000221729279,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/categorization","display_name":"Categorization","score":0.6307895183563232},{"id":"https://openalex.org/keywords/content-analysis","display_name":"Content analysis","score":0.5342677235603333},{"id":"https://openalex.org/keywords/health-care","display_name":"Health care","score":0.4639195203781128},{"id":"https://openalex.org/keywords/schema","display_name":"Schema (genetic algorithms)","score":0.44892945885658264},{"id":"https://openalex.org/keywords/emergency-department","display_name":"Emergency department","score":0.4320938289165497},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.38418763875961304},{"id":"https://openalex.org/keywords/nursing","display_name":"Nursing","score":0.3747446835041046},{"id":"https://openalex.org/keywords/psychology","display_name":"Psychology","score":0.339476615190506},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.2822704017162323},{"id":"https://openalex.org/keywords/information-retrieval","display_name":"Information retrieval","score":0.10912594199180603}],"concepts":[{"id":"https://openalex.org/C94124525","wikidata":"https://www.wikidata.org/wiki/Q912550","display_name":"Categorization","level":2,"score":0.6307895183563232},{"id":"https://openalex.org/C162446236","wikidata":"https://www.wikidata.org/wiki/Q653137","display_name":"Content analysis","level":2,"score":0.5342677235603333},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.4639195203781128},{"id":"https://openalex.org/C52146309","wikidata":"https://www.wikidata.org/wiki/Q7431116","display_name":"Schema (genetic algorithms)","level":2,"score":0.44892945885658264},{"id":"https://openalex.org/C2780724011","wikidata":"https://www.wikidata.org/wiki/Q1295316","display_name":"Emergency department","level":2,"score":0.4320938289165497},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.38418763875961304},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.3747446835041046},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.339476615190506},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.2822704017162323},{"id":"https://openalex.org/C23123220","wikidata":"https://www.wikidata.org/wiki/Q816826","display_name":"Information retrieval","level":1,"score":0.10912594199180603},{"id":"https://openalex.org/C36289849","wikidata":"https://www.wikidata.org/wiki/Q34749","display_name":"Social science","level":1,"score":0.0},{"id":"https://openalex.org/C154945302","wikidata":"https://www.wikidata.org/wiki/Q11660","display_name":"Artificial intelligence","level":1,"score":0.0},{"id":"https://openalex.org/C162324750","wikidata":"https://www.wikidata.org/wiki/Q8134","display_name":"Economics","level":0,"score":0.0},{"id":"https://openalex.org/C50522688","wikidata":"https://www.wikidata.org/wiki/Q189833","display_name":"Economic growth","level":1,"score":0.0},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.0}],"mesh":[{"descriptor_ui":"D000086825","descriptor_name":"User-Centered Design","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D000086825","descriptor_name":"User-Centered Design","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D000086825","descriptor_name":"User-Centered Design","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D002648","descriptor_name":"Child","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002648","descriptor_name":"Child","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002648","descriptor_name":"Child","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002908","descriptor_name":"Chronic Disease","qualifier_ui":"Q000628","qualifier_name":"therapy","is_major_topic":false},{"descriptor_ui":"D002908","descriptor_name":"Chronic Disease","qualifier_ui":"Q000628","qualifier_name":"therapy","is_major_topic":false},{"descriptor_ui":"D002908","descriptor_name":"Chronic Disease","qualifier_ui":"Q000628","qualifier_name":"therapy","is_major_topic":false},{"descriptor_ui":"D006282","descriptor_name":"Health Personnel","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006282","descriptor_name":"Health Personnel","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006282","descriptor_name":"Health Personnel","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007872","descriptor_name":"Legal Guardians","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007872","descriptor_name":"Legal Guardians","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007872","descriptor_name":"Legal Guardians","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010290","descriptor_name":"Parents","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010290","descriptor_name":"Parents","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010290","descriptor_name":"Parents","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010347","descriptor_name":"Patient Care Planning","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D010347","descriptor_name":"Patient Care Planning","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D010347","descriptor_name":"Patient Care Planning","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D010372","descriptor_name":"Pediatrics","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010372","descriptor_name":"Pediatrics","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010372","descriptor_name":"Pediatrics","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D014584","descriptor_name":"User-Computer Interface","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D014584","descriptor_name":"User-Computer Interface","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D014584","descriptor_name":"User-Computer Interface","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D017028","descriptor_name":"Caregivers","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D017028","descriptor_name":"Caregivers","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D017028","descriptor_name":"Caregivers","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D057286","descriptor_name":"Electronic Health Records","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D057286","descriptor_name":"Electronic Health Records","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D057286","descriptor_name":"Electronic Health Records","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true}],"locations_count":4,"locations":[{"id":"doi:10.1093/jamia/ocaa193","is_oa":false,"landing_page_url":"https://doi.org/10.1093/jamia/ocaa193","pdf_url":null,"source":{"id":"https://openalex.org/S129839026","display_name":"Journal of the American Medical Informatics Association","issn_l":"1067-5027","issn":["1067-5027","1527-974X"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310311648","host_organization_name":"Oxford University Press","host_organization_lineage":["https://openalex.org/P4310311648","https://openalex.org/P4310311647"],"host_organization_lineage_names":["Oxford University Press","University of Oxford"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of the American Medical Informatics Association","raw_type":"journal-article"},{"id":"pmid:33043368","is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/33043368","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of the American Medical Informatics Association : JAMIA","raw_type":null},{"id":"pmh:oai:europepmc.org:7393972","is_oa":false,"landing_page_url":"http://europepmc.org/pmc/articles/PMC7727350","pdf_url":null,"source":{"id":"https://openalex.org/S4306400806","display_name":"Europe PMC (PubMed Central)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1303153112","host_organization_name":"European Bioinformatics Institute","host_organization_lineage":["https://openalex.org/I1303153112"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"Text"},{"id":"pmh:oai:pubmedcentral.nih.gov:7727350","is_oa":true,"landing_page_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/7727350","pdf_url":null,"source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"J Am Med Inform Assoc","raw_type":"Text"}],"best_oa_location":{"id":"pmh:oai:pubmedcentral.nih.gov:7727350","is_oa":true,"landing_page_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/7727350","pdf_url":null,"source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"J Am Med Inform Assoc","raw_type":"Text"},"sustainable_development_goals":[],"awards":[],"funders":[],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":33,"referenced_works":["https://openalex.org/W1499121368","https://openalex.org/W1838430538","https://openalex.org/W1882199819","https://openalex.org/W1884436451","https://openalex.org/W1931861466","https://openalex.org/W2016816371","https://openalex.org/W2027623762","https://openalex.org/W2073852781","https://openalex.org/W2092751924","https://openalex.org/W2113326913","https://openalex.org/W2142225512","https://openalex.org/W2158109620","https://openalex.org/W2166465639","https://openalex.org/W2261187303","https://openalex.org/W2312529384","https://openalex.org/W2466369342","https://openalex.org/W2496192500","https://openalex.org/W2598524058","https://openalex.org/W2599323748","https://openalex.org/W2651524855","https://openalex.org/W2760993679","https://openalex.org/W2787152495","https://openalex.org/W2787502529","https://openalex.org/W2791000721","https://openalex.org/W2792425832","https://openalex.org/W2803946275","https://openalex.org/W2810030849","https://openalex.org/W2897964538","https://openalex.org/W2940891837","https://openalex.org/W2948205315","https://openalex.org/W6719724421","https://openalex.org/W6748444400","https://openalex.org/W6762095020"],"related_works":["https://openalex.org/W2165912799","https://openalex.org/W2735662278","https://openalex.org/W2382615723","https://openalex.org/W4311804456","https://openalex.org/W1987484445","https://openalex.org/W2623658258","https://openalex.org/W2143413548","https://openalex.org/W1969219540","https://openalex.org/W2370459448","https://openalex.org/W2105067402"],"abstract_inverted_index":{"OBJECTIVE:":[0],"To":[1],"determine":[2],"the":[3,128,187,232],"content":[4,65,81,88,119,131,151,210],"priorities":[5,89,120,132,211],"and":[6,17,47,59,70,90,164,168,186,193,208,237],"design":[7,39,91,104,139,196,224],"preferences":[8,92,197,225],"for":[9,22,157,203,240],"a":[10,141,146,154,160,201,214],"longitudinal":[11],"care":[12,21,30,60,244],"plan":[13],"(LCP)":[14],"among":[15,133],"caregivers":[16,43,236],"healthcare":[18],"providers":[19,48,126,238],"who":[20],"children":[23],"with":[24,41,107,110],"medical":[25],"complexity":[26],"(CMC)":[27],"in":[28,117,242],"acute":[29,243],"settings.":[31,245],"MATERIALS":[32],"AND":[33],"METHODS:":[34],"We":[35,78,101,135],"conducted":[36,102],"iterative":[37,97],"one-on-one":[38],"sessions":[40,63,105],"CMC":[42,241],"(ie,":[44],"parents/legal":[45],"guardians)":[46],"from":[49,175],"5":[50],"groups:":[51],"complex":[52],"care,":[53,55,58],"primary":[54],"subspecialists,":[56],"emergency":[57],"coordinators.":[61],"Audio-recorded":[62],"included":[64],"categorization":[66],"activities,":[67],"drawing":[68],"exercises,":[69],"scenario-based":[71],"testing":[72],"of":[73,83,170,181,189,206,235],"an":[74],"electronic":[75,182,227],"LCP":[76,191],"prototype.":[77],"applied":[79],"inductive":[80],"analysis":[82],"session":[84],"materials":[85],"to":[86,122],"elicit":[87],"between":[93,152,162],"sessions.":[94],"Analysis":[95],"informed":[96],"prototype":[98],"revisions.":[99],"RESULTS:":[100],"30":[103],"(10":[106],"caregivers,":[108],"20":[109],"providers).":[111],"Caregivers":[112],"expressed":[113],"high":[114],"within-group":[115],"variability":[116],"their":[118],"compared":[121],"provider":[123,209],"groups.":[124],"Emergency":[125],"had":[127],"most":[129,158],"unique":[130],"clinicians.":[134],"identified":[136,199],"6":[137],"key":[138],"preferences:":[140],"familiar":[142],"yet":[143],"customizable":[144],"layout,":[145],"problem-based":[147],"organization":[148],"schema,":[149],"linked":[150],"sections,":[153,159],"table":[155],"layout":[156],"balance":[161],"unstructured":[163],"structured":[165],"data":[166],"fields,":[167],"use":[169],"family-centered":[171],"terminology.":[172],"DISCUSSION:":[173],"Findings":[174],"this":[176],"study":[177],"will":[178,229],"inform":[179],"enhancements":[180],"health":[183],"record-embedded":[184],"LCPs":[185,228],"development":[188],"new":[190],"tools":[192],"applications.":[194],"The":[195],"we":[198],"provide":[200],"framework":[202],"optimizing":[204],"integration":[205],"family":[207],"while":[212],"maintaining":[213],"user-tailored":[215],"experience.":[216],"CONCLUSION:":[217],"Health":[218],"information":[219,233],"platforms":[220],"that":[221],"incorporate":[222],"these":[223],"into":[226],"help":[230],"meet":[231],"needs":[234],"caring":[239]},"counts_by_year":[{"year":2026,"cited_by_count":4},{"year":2025,"cited_by_count":6},{"year":2024,"cited_by_count":1},{"year":2023,"cited_by_count":2},{"year":2022,"cited_by_count":5},{"year":2021,"cited_by_count":5},{"year":2020,"cited_by_count":1}],"updated_date":"2026-04-29T09:16:38.111599","created_date":"2025-10-10T00:00:00"}
