{"id":"https://openalex.org/W4413848364","doi":"https://doi.org/10.1055/a-2591-9129","title":"Patient-Driven Sharing of Health Information: A National Effort to Advance Equitable Interoperability","display_name":"Patient-Driven Sharing of Health Information: A National Effort to Advance Equitable Interoperability","publication_year":2025,"publication_date":"2025-08-01","ids":{"openalex":"https://openalex.org/W4413848364","doi":"https://doi.org/10.1055/a-2591-9129","pmid":"https://pubmed.ncbi.nlm.nih.gov/40882959"},"language":"en","primary_location":{"id":"doi:10.1055/a-2591-9129","is_oa":false,"landing_page_url":"https://doi.org/10.1055/a-2591-9129","pdf_url":null,"source":{"id":"https://openalex.org/S187139995","display_name":"Applied Clinical Informatics","issn_l":"1869-0327","issn":["1869-0327"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310320000","host_organization_name":"Thieme Medical Publishers (Germany)","host_organization_lineage":["https://openalex.org/P4310320000"],"host_organization_lineage_names":["Thieme Medical Publishers (Germany)"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Applied Clinical Informatics","raw_type":"journal-article"},"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"https://pmc.ncbi.nlm.nih.gov/articles/PMC12396901/","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5076522240","display_name":"Hannah K. Galvin","orcid":null},"institutions":[{"id":"https://openalex.org/I121934306","display_name":"Tufts University","ror":"https://ror.org/05wvpxv85","country_code":"US","type":"education","lineage":["https://openalex.org/I121934306"]},{"id":"https://openalex.org/I124574311","display_name":"Cambridge Health Alliance","ror":"https://ror.org/059c3mv67","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I124574311"]},{"id":"https://openalex.org/I136199984","display_name":"Harvard University","ror":"https://ror.org/03vek6s52","country_code":"US","type":"education","lineage":["https://openalex.org/I136199984"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Hannah K. Galvin","raw_affiliation_strings":["Department of Information Technology, Cambridge Health Alliance, Cambridge, Massachusetts, United States","Department of Medicine, Tufts University School of Medicine, Boston, Massachusetts, United States","Department of Pediatrics, Harvard Medical School, Boston, Massachusetts, United States"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Information Technology, Cambridge Health Alliance, Cambridge, Massachusetts, United States","institution_ids":["https://openalex.org/I124574311"]},{"raw_affiliation_string":"Department of Medicine, Tufts University School of Medicine, Boston, Massachusetts, United States","institution_ids":["https://openalex.org/I121934306"]},{"raw_affiliation_string":"Department of Pediatrics, Harvard Medical School, Boston, Massachusetts, United States","institution_ids":["https://openalex.org/I136199984"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5066627138","display_name":"Jeffrey L. Coughlin","orcid":"https://orcid.org/0000-0003-1634-9672"},"institutions":[{"id":"https://openalex.org/I1318720529","display_name":"Association of American Medical Colleges","ror":"https://ror.org/04q6cg820","country_code":"US","type":"funder","lineage":["https://openalex.org/I1318720529"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Jeff Coughlin","raw_affiliation_strings":["Federal Affairs, American Medical Association, Washington, District of Columbia, United States"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Federal Affairs, American Medical Association, Washington, District of Columbia, United States","institution_ids":["https://openalex.org/I1318720529"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5076426573","display_name":"Marianne Sharko","orcid":"https://orcid.org/0000-0002-1103-7525"},"institutions":[{"id":"https://openalex.org/I205783295","display_name":"Cornell University","ror":"https://ror.org/05bnh6r87","country_code":"US","type":"education","lineage":["https://openalex.org/I205783295"]},{"id":"https://openalex.org/I4387153466","display_name":"Weill Cornell Medicine","ror":"https://ror.org/02r109517","country_code":"US","type":"education","lineage":["https://openalex.org/I205783295","https://openalex.org/I4387153466"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Marianne Sharko","raw_affiliation_strings":["Department of Pediatrics, Weill Cornell Medicine, New York, New York, United States","Department of Population Health Sciences, Weill Cornell Medicine, New York, New York, United States"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Pediatrics, Weill Cornell Medicine, New York, New York, United States","institution_ids":["https://openalex.org/I205783295","https://openalex.org/I4387153466"]},{"raw_affiliation_string":"Department of Population Health Sciences, Weill Cornell Medicine, New York, New York, United States","institution_ids":["https://openalex.org/I205783295","https://openalex.org/I4387153466"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5079825697","display_name":"Adela Grando","orcid":"https://orcid.org/0000-0002-5769-8556"},"institutions":[{"id":"https://openalex.org/I55732556","display_name":"Arizona State University","ror":"https://ror.org/03efmqc40","country_code":"US","type":"education","lineage":["https://openalex.org/I55732556"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Maria A. Grando","raw_affiliation_strings":["Biomedical Informatics, College of Health Solutions, Arizona State University, Phoenix, Arizona, United States"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Biomedical Informatics, College of Health Solutions, Arizona State University, Phoenix, Arizona, United States","institution_ids":["https://openalex.org/I55732556"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5104194358","display_name":"Mohammad Jafari","orcid":null},"institutions":[{"id":"https://openalex.org/I141945490","display_name":"University of British Columbia","ror":"https://ror.org/03rmrcq20","country_code":"CA","type":"education","lineage":["https://openalex.org/I141945490"]}],"countries":["CA"],"is_corresponding":false,"raw_author_name":"Mohammad Jafari","raw_affiliation_strings":["Independent Subject Matter Expert, Vancouver, British Columbia, Canada"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Independent Subject Matter Expert, Vancouver, British Columbia, Canada","institution_ids":["https://openalex.org/I141945490"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5062595821","display_name":"Serena Mack","orcid":null},"institutions":[{"id":"https://openalex.org/I4210125326","display_name":"Public Health Ontario","ror":"https://ror.org/025z8ah66","country_code":"CA","type":"healthcare","lineage":["https://openalex.org/I4210125326"]}],"countries":["CA"],"is_corresponding":false,"raw_author_name":"Serena Mack","raw_affiliation_strings":["Serenity Health Consulting, Toronto, Ontario, Canada"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Serenity Health Consulting, Toronto, Ontario, Canada","institution_ids":["https://openalex.org/I4210125326"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5077396078","display_name":"Abigail English","orcid":"https://orcid.org/0000-0001-8031-0997"},"institutions":[{"id":"https://openalex.org/I1333535994","display_name":"University of North Carolina Health Care","ror":"https://ror.org/00qz24g20","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1333535994"]},{"id":"https://openalex.org/I4210151657","display_name":"Department of Health","ror":"https://ror.org/05rfgws98","country_code":"ZA","type":"government","lineage":["https://openalex.org/I2800683076","https://openalex.org/I4210151657"]}],"countries":["US","ZA"],"is_corresponding":false,"raw_author_name":"Abigail English","raw_affiliation_strings":["UNC Gillings School of Global Public Health, Chapel Hill, North Carolina, United States"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"UNC Gillings School of Global Public Health, Chapel Hill, North Carolina, United States","institution_ids":["https://openalex.org/I4210151657","https://openalex.org/I1333535994"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5070502959","display_name":"Carolyn Petersen","orcid":"https://orcid.org/0000-0002-2136-1273"},"institutions":[{"id":"https://openalex.org/I4210146710","display_name":"Mayo Clinic in Florida","ror":"https://ror.org/03zzw1w08","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1330342723","https://openalex.org/I4210146710"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Carolyn Petersen","raw_affiliation_strings":["Department of Artificial Intelligence and Informatics, Mayo Clinic, Rochester, Minnesota, United States"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Artificial Intelligence and Informatics, Mayo Clinic, Rochester, Minnesota, United States","institution_ids":["https://openalex.org/I4210146710"]}]}],"institutions":[],"countries_distinct_count":3,"institutions_distinct_count":8,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":1.3144,"has_fulltext":false,"cited_by_count":1,"citation_normalized_percentile":{"value":0.82837064,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":95,"max":97},"biblio":{"volume":"16","issue":"04","first_page":"951","last_page":"960"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":0.9894999861717224,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":0.9894999861717224,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T12664","display_name":"Clinical practice guidelines implementation","score":0.9872999787330627,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10350","display_name":"Electronic Health Records Systems","score":0.9746000170707703,"subfield":{"id":"https://openalex.org/subfields/3605","display_name":"Health Information Management"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/interoperability","display_name":"Interoperability","score":0.9089224338531494},{"id":"https://openalex.org/keywords/scope","display_name":"Scope (computer science)","score":0.6096360683441162},{"id":"https://openalex.org/keywords/stakeholder","display_name":"Stakeholder","score":0.5674223899841309},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.5310497879981995},{"id":"https://openalex.org/keywords/health-care","display_name":"Health care","score":0.5169945955276489},{"id":"https://openalex.org/keywords/data-sharing","display_name":"Data sharing","score":0.5066660046577454},{"id":"https://openalex.org/keywords/quality","display_name":"Quality (philosophy)","score":0.42706114053726196},{"id":"https://openalex.org/keywords/business","display_name":"Business","score":0.40494629740715027},{"id":"https://openalex.org/keywords/knowledge-management","display_name":"Knowledge management","score":0.3690876364707947},{"id":"https://openalex.org/keywords/process-management","display_name":"Process management","score":0.3499841094017029},{"id":"https://openalex.org/keywords/data-science","display_name":"Data science","score":0.3213258385658264},{"id":"https://openalex.org/keywords/world-wide-web","display_name":"World Wide Web","score":0.2167557179927826},{"id":"https://openalex.org/keywords/public-relations","display_name":"Public relations","score":0.21531158685684204},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.1839989423751831},{"id":"https://openalex.org/keywords/political-science","display_name":"Political science","score":0.09624719619750977}],"concepts":[{"id":"https://openalex.org/C20136886","wikidata":"https://www.wikidata.org/wiki/Q749647","display_name":"Interoperability","level":2,"score":0.9089224338531494},{"id":"https://openalex.org/C2778012447","wikidata":"https://www.wikidata.org/wiki/Q1034415","display_name":"Scope (computer science)","level":2,"score":0.6096360683441162},{"id":"https://openalex.org/C201305675","wikidata":"https://www.wikidata.org/wiki/Q852998","display_name":"Stakeholder","level":2,"score":0.5674223899841309},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.5310497879981995},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.5169945955276489},{"id":"https://openalex.org/C2779965156","wikidata":"https://www.wikidata.org/wiki/Q5227350","display_name":"Data sharing","level":3,"score":0.5066660046577454},{"id":"https://openalex.org/C2779530757","wikidata":"https://www.wikidata.org/wiki/Q1207505","display_name":"Quality (philosophy)","level":2,"score":0.42706114053726196},{"id":"https://openalex.org/C144133560","wikidata":"https://www.wikidata.org/wiki/Q4830453","display_name":"Business","level":0,"score":0.40494629740715027},{"id":"https://openalex.org/C56739046","wikidata":"https://www.wikidata.org/wiki/Q192060","display_name":"Knowledge management","level":1,"score":0.3690876364707947},{"id":"https://openalex.org/C195094911","wikidata":"https://www.wikidata.org/wiki/Q14167904","display_name":"Process management","level":1,"score":0.3499841094017029},{"id":"https://openalex.org/C2522767166","wikidata":"https://www.wikidata.org/wiki/Q2374463","display_name":"Data science","level":1,"score":0.3213258385658264},{"id":"https://openalex.org/C136764020","wikidata":"https://www.wikidata.org/wiki/Q466","display_name":"World Wide Web","level":1,"score":0.2167557179927826},{"id":"https://openalex.org/C39549134","wikidata":"https://www.wikidata.org/wiki/Q133080","display_name":"Public relations","level":1,"score":0.21531158685684204},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.1839989423751831},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.09624719619750977},{"id":"https://openalex.org/C111472728","wikidata":"https://www.wikidata.org/wiki/Q9471","display_name":"Epistemology","level":1,"score":0.0},{"id":"https://openalex.org/C142724271","wikidata":"https://www.wikidata.org/wiki/Q7208","display_name":"Pathology","level":1,"score":0.0},{"id":"https://openalex.org/C204787440","wikidata":"https://www.wikidata.org/wiki/Q188504","display_name":"Alternative medicine","level":2,"score":0.0},{"id":"https://openalex.org/C199360897","wikidata":"https://www.wikidata.org/wiki/Q9143","display_name":"Programming language","level":1,"score":0.0},{"id":"https://openalex.org/C138885662","wikidata":"https://www.wikidata.org/wiki/Q5891","display_name":"Philosophy","level":0,"score":0.0},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D000073892","descriptor_name":"Health Information Interoperability","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D000073892","descriptor_name":"Health Information Interoperability","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D000073892","descriptor_name":"Health Information Interoperability","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D000073892","descriptor_name":"Health Information Interoperability","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D000073892","descriptor_name":"Health Information Interoperability","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D033181","descriptor_name":"Information Dissemination","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D033181","descriptor_name":"Information Dissemination","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D033181","descriptor_name":"Information Dissemination","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D033181","descriptor_name":"Information Dissemination","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D033181","descriptor_name":"Information Dissemination","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true}],"locations_count":3,"locations":[{"id":"doi:10.1055/a-2591-9129","is_oa":false,"landing_page_url":"https://doi.org/10.1055/a-2591-9129","pdf_url":null,"source":{"id":"https://openalex.org/S187139995","display_name":"Applied Clinical Informatics","issn_l":"1869-0327","issn":["1869-0327"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310320000","host_organization_name":"Thieme Medical Publishers (Germany)","host_organization_lineage":["https://openalex.org/P4310320000"],"host_organization_lineage_names":["Thieme Medical Publishers (Germany)"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Applied Clinical Informatics","raw_type":"journal-article"},{"id":"pmid:40882959","is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/40882959","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Applied clinical informatics","raw_type":null},{"id":"pmh:oai:pubmedcentral.nih.gov:12396901","is_oa":true,"landing_page_url":"https://pmc.ncbi.nlm.nih.gov/articles/PMC12396901/","pdf_url":null,"source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Appl Clin Inform","raw_type":"Text"}],"best_oa_location":{"id":"pmh:oai:pubmedcentral.nih.gov:12396901","is_oa":true,"landing_page_url":"https://pmc.ncbi.nlm.nih.gov/articles/PMC12396901/","pdf_url":null,"source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Appl Clin Inform","raw_type":"Text"},"sustainable_development_goals":[],"awards":[{"id":"https://openalex.org/G4947842798","display_name":null,"funder_award_id":"R01 DA056984","funder_id":"https://openalex.org/F4320337347","funder_display_name":"National Institute on Drug Abuse"}],"funders":[{"id":"https://openalex.org/F4320337347","display_name":"National Institute on Drug Abuse","ror":"https://ror.org/00fq5cm18"}],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":31,"referenced_works":["https://openalex.org/W149929402","https://openalex.org/W1919322217","https://openalex.org/W1980175070","https://openalex.org/W1985309497","https://openalex.org/W2059584340","https://openalex.org/W2115883395","https://openalex.org/W2134258571","https://openalex.org/W2145172939","https://openalex.org/W2336651237","https://openalex.org/W2401126488","https://openalex.org/W2463234858","https://openalex.org/W2594519269","https://openalex.org/W2893443580","https://openalex.org/W2902070274","https://openalex.org/W2914048482","https://openalex.org/W3006405313","https://openalex.org/W3011839916","https://openalex.org/W3097297978","https://openalex.org/W3111163773","https://openalex.org/W3122609186","https://openalex.org/W3185797914","https://openalex.org/W4293029444","https://openalex.org/W4319294324","https://openalex.org/W4321180728","https://openalex.org/W4387116208","https://openalex.org/W4392366819","https://openalex.org/W4394761015","https://openalex.org/W4401170523","https://openalex.org/W4403186308","https://openalex.org/W4403941724","https://openalex.org/W4407727256"],"related_works":["https://openalex.org/W2093262417","https://openalex.org/W4312626803","https://openalex.org/W2123131699","https://openalex.org/W4241523039","https://openalex.org/W650116260","https://openalex.org/W2378329187","https://openalex.org/W2360028903","https://openalex.org/W4390790060","https://openalex.org/W4280543773","https://openalex.org/W2134191509"],"abstract_inverted_index":{"The":[0],"goal":[1],"of":[2,27,45],"national":[3],"interoperability":[4],"is":[5],"to":[6,38,54,67,82,99,117],"improve":[7],"care":[8],"quality":[9],"and":[10,14,18,51,61,86,105,113],"decrease":[11],"administrative":[12],"burden":[13],"costs.":[15],"Patients,":[16],"providers,":[17],"other":[19],"stakeholders":[20],"are":[21,91],"increasingly":[22],"concerned":[23],"that":[24],"indiscriminate":[25],"sharing":[26,44,70],"data":[28,69,103],"may":[29],"have":[30,56],"deleterious,":[31],"permanent":[32],"consequences,":[33],"as":[34,36,115],"well":[35],"fail":[37],"provide":[39],"granular":[40],"control":[41],"over":[42],"the":[43],"individual":[46],"health":[47],"data.":[48],"Data":[49],"segmentation":[50,104],"consent":[52,106],"standards":[53],"date":[55],"been":[57,80],"limited":[58],"in":[59],"scope":[60],"implementation,":[62],"which":[63,90],"has":[64,79],"hindered":[65],"efforts":[66],"scale":[68],"preferences.":[71],"Shift,":[72],"an":[73],"independent":[74],"expert":[75],"stakeholder":[76],"task":[77],"force,":[78],"convened":[81],"mature":[83],"standards,":[84],"terminologies,":[85],"consensus-driven":[87],"implementation":[88],"guidance,":[89],"prerequisites":[92],"for":[93],"more":[94],"robust":[95],"policy":[96],"drivers":[97],"needed":[98],"support":[100],"nationwide":[101],"sensitive":[102],"capabilities.":[107],"This":[108],"paper":[109],"describes":[110],"Shift's":[111],"framework":[112],"processes":[114],"means":[116],"advance":[118],"equitable":[119],"interoperability.":[120]},"counts_by_year":[{"year":2026,"cited_by_count":1}],"updated_date":"2026-06-24T13:16:06.693445","created_date":"2025-10-10T00:00:00"}
