{"id":"https://openalex.org/W4410299192","doi":"https://doi.org/10.1038/s41746-025-01680-5","title":"A sociotechnical approach to defining clinical responsibilities for patient-generated health data","display_name":"A sociotechnical approach to defining clinical responsibilities for patient-generated health data","publication_year":2025,"publication_date":"2025-05-12","ids":{"openalex":"https://openalex.org/W4410299192","doi":"https://doi.org/10.1038/s41746-025-01680-5","pmid":"https://pubmed.ncbi.nlm.nih.gov/40355597"},"language":"en","primary_location":{"id":"doi:10.1038/s41746-025-01680-5","is_oa":true,"landing_page_url":"https://doi.org/10.1038/s41746-025-01680-5","pdf_url":"https://www.nature.com/articles/s41746-025-01680-5.pdf","source":{"id":"https://openalex.org/S4210195431","display_name":"npj Digital Medicine","issn_l":"2398-6352","issn":["2398-6352"],"is_oa":true,"is_in_doaj":true,"is_core":true,"host_organization":"https://openalex.org/P4310319908","host_organization_name":"Nature Portfolio","host_organization_lineage":["https://openalex.org/P4310319908","https://openalex.org/P4310319965"],"host_organization_lineage_names":["Nature Portfolio","Springer Nature"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"npj Digital Medicine","raw_type":"journal-article"},"type":"letter","indexed_in":["crossref","doaj","pubmed"],"open_access":{"is_oa":true,"oa_status":"gold","oa_url":"https://www.nature.com/articles/s41746-025-01680-5.pdf","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5057398323","display_name":"Ashley C Griffin","orcid":"https://orcid.org/0000-0002-1535-0797"},"institutions":[],"countries":[],"is_corresponding":true,"raw_author_name":"Ashley C. Griffin","raw_affiliation_strings":["Center for Biomedical Informatics Research, Stanford University School of Medicine, Stanford, CA, USA. griffina@stanford.edu","Center for Innovation to Implementation, VA Palo Alto Health Care System, Menlo Park, CA, USA. griffina@stanford.edu"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Center for Biomedical Informatics Research, Stanford University School of Medicine, Stanford, CA, USA. griffina@stanford.edu","institution_ids":[]},{"raw_affiliation_string":"Center for Innovation to Implementation, VA Palo Alto Health Care System, Menlo Park, CA, USA. griffina@stanford.edu","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5117519538","display_name":"Meagan F Moyer","orcid":null},"institutions":[{"id":"https://openalex.org/I4210105015","display_name":"Stanford Health Care","ror":"https://ror.org/019wqcg20","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I4210105015"]},{"id":"https://openalex.org/I97018004","display_name":"Stanford University","ror":"https://ror.org/00f54p054","country_code":"US","type":"education","lineage":["https://openalex.org/I97018004"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Meagan F. Moyer","raw_affiliation_strings":["Department of Medicine, Stanford University School of Medicine, Stanford, CA, USA","Stanford Health Care, Stanford, CA, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Medicine, Stanford University School of Medicine, Stanford, CA, USA","institution_ids":["https://openalex.org/I97018004"]},{"raw_affiliation_string":"Stanford Health Care, Stanford, CA, USA","institution_ids":["https://openalex.org/I4210105015"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5018613665","display_name":"Arash Anoshiravani","orcid":null},"institutions":[{"id":"https://openalex.org/I97018004","display_name":"Stanford University","ror":"https://ror.org/00f54p054","country_code":"US","type":"education","lineage":["https://openalex.org/I97018004"]},{"id":"https://openalex.org/I4210137306","display_name":"Stanford Medicine","ror":"https://ror.org/03mtd9a03","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I4210137306","https://openalex.org/I97018004"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Arash Anoshiravani","raw_affiliation_strings":["Deparment of Pediatrics, Stanford University School of Medicine, Stanford, CA, USA","Stanford Medicine Children's Health, Stanford, CA, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Deparment of Pediatrics, Stanford University School of Medicine, Stanford, CA, USA","institution_ids":["https://openalex.org/I97018004","https://openalex.org/I4210137306"]},{"raw_affiliation_string":"Stanford Medicine Children's Health, Stanford, CA, USA","institution_ids":["https://openalex.org/I4210137306"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5117519539","display_name":"Sondra Hornsey","orcid":null},"institutions":[{"id":"https://openalex.org/I901861585","display_name":"Vanderbilt University Medical Center","ror":"https://ror.org/05dq2gs74","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I4210162197","https://openalex.org/I901861585"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Sondra Hornsey","raw_affiliation_strings":["Vanderbilt University Medical Center, Nashville, TN, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Vanderbilt University Medical Center, Nashville, TN, USA","institution_ids":["https://openalex.org/I901861585"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5024394615","display_name":"Christopher Sharp","orcid":"https://orcid.org/0000-0001-7169-6904"},"institutions":[{"id":"https://openalex.org/I97018004","display_name":"Stanford University","ror":"https://ror.org/00f54p054","country_code":"US","type":"education","lineage":["https://openalex.org/I97018004"]},{"id":"https://openalex.org/I4210105015","display_name":"Stanford Health Care","ror":"https://ror.org/019wqcg20","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I4210105015"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Christopher D. Sharp","raw_affiliation_strings":["Department of Medicine, Stanford University School of Medicine, Stanford, CA, USA","Stanford Health Care, Stanford, CA, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Medicine, Stanford University School of Medicine, Stanford, CA, USA","institution_ids":["https://openalex.org/I97018004"]},{"raw_affiliation_string":"Stanford Health Care, Stanford, CA, USA","institution_ids":["https://openalex.org/I4210105015"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":5,"corresponding_author_ids":["https://openalex.org/A5057398323"],"corresponding_institution_ids":[],"apc_list":{"value":3060,"currency":"USD","value_usd":3060},"apc_paid":{"value":3060,"currency":"USD","value_usd":3060},"fwci":2.5159,"has_fulltext":true,"cited_by_count":1,"citation_normalized_percentile":{"value":0.9021402,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":96,"max":98},"biblio":{"volume":"8","issue":"1","first_page":"270","last_page":"270"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10350","display_name":"Electronic Health Records Systems","score":0.9914000034332275,"subfield":{"id":"https://openalex.org/subfields/3605","display_name":"Health Information Management"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10350","display_name":"Electronic Health Records Systems","score":0.9914000034332275,"subfield":{"id":"https://openalex.org/subfields/3605","display_name":"Health Information Management"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T12308","display_name":"Mental Health and Psychiatry","score":0.9883000254631042,"subfield":{"id":"https://openalex.org/subfields/1211","display_name":"Philosophy"},"field":{"id":"https://openalex.org/fields/12","display_name":"Arts and Humanities"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T11710","display_name":"Biomedical Text Mining and Ontologies","score":0.953000009059906,"subfield":{"id":"https://openalex.org/subfields/1312","display_name":"Molecular Biology"},"field":{"id":"https://openalex.org/fields/13","display_name":"Biochemistry, Genetics and Molecular Biology"},"domain":{"id":"https://openalex.org/domains/1","display_name":"Life Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/sociotechnical-system","display_name":"Sociotechnical system","score":0.9685641527175903},{"id":"https://openalex.org/keywords/psychology","display_name":"Psychology","score":0.38935649394989014},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.38904207944869995},{"id":"https://openalex.org/keywords/process-management","display_name":"Process management","score":0.36778414249420166},{"id":"https://openalex.org/keywords/knowledge-management","display_name":"Knowledge management","score":0.35033345222473145},{"id":"https://openalex.org/keywords/data-science","display_name":"Data science","score":0.3361133337020874},{"id":"https://openalex.org/keywords/risk-analysis","display_name":"Risk analysis (engineering)","score":0.3242550492286682},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.2917752265930176},{"id":"https://openalex.org/keywords/business","display_name":"Business","score":0.2856988310813904}],"concepts":[{"id":"https://openalex.org/C127627568","wikidata":"https://www.wikidata.org/wiki/Q1639361","display_name":"Sociotechnical system","level":2,"score":0.9685641527175903},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.38935649394989014},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.38904207944869995},{"id":"https://openalex.org/C195094911","wikidata":"https://www.wikidata.org/wiki/Q14167904","display_name":"Process management","level":1,"score":0.36778414249420166},{"id":"https://openalex.org/C56739046","wikidata":"https://www.wikidata.org/wiki/Q192060","display_name":"Knowledge management","level":1,"score":0.35033345222473145},{"id":"https://openalex.org/C2522767166","wikidata":"https://www.wikidata.org/wiki/Q2374463","display_name":"Data science","level":1,"score":0.3361133337020874},{"id":"https://openalex.org/C112930515","wikidata":"https://www.wikidata.org/wiki/Q4389547","display_name":"Risk analysis (engineering)","level":1,"score":0.3242550492286682},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.2917752265930176},{"id":"https://openalex.org/C144133560","wikidata":"https://www.wikidata.org/wiki/Q4830453","display_name":"Business","level":0,"score":0.2856988310813904}],"mesh":[],"locations_count":4,"locations":[{"id":"doi:10.1038/s41746-025-01680-5","is_oa":true,"landing_page_url":"https://doi.org/10.1038/s41746-025-01680-5","pdf_url":"https://www.nature.com/articles/s41746-025-01680-5.pdf","source":{"id":"https://openalex.org/S4210195431","display_name":"npj Digital Medicine","issn_l":"2398-6352","issn":["2398-6352"],"is_oa":true,"is_in_doaj":true,"is_core":true,"host_organization":"https://openalex.org/P4310319908","host_organization_name":"Nature Portfolio","host_organization_lineage":["https://openalex.org/P4310319908","https://openalex.org/P4310319965"],"host_organization_lineage_names":["Nature Portfolio","Springer Nature"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"npj Digital Medicine","raw_type":"journal-article"},{"id":"pmid:40355597","is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/40355597","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"NPJ digital medicine","raw_type":null},{"id":"pmh:oai:doaj.org/article:d388ad81e5f3457d909922603383c177","is_oa":true,"landing_page_url":"https://doaj.org/article/d388ad81e5f3457d909922603383c177","pdf_url":null,"source":{"id":"https://openalex.org/S4306401280","display_name":"DOAJ (DOAJ: Directory of Open Access Journals)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by-sa","license_id":"https://openalex.org/licenses/cc-by-sa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"npj Digital Medicine, Vol 8, Iss 1, Pp 1-7 (2025)","raw_type":"article"},{"id":"pmh:oai:pubmedcentral.nih.gov:12069522","is_oa":true,"landing_page_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/12069522","pdf_url":null,"source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"NPJ Digit Med","raw_type":"Text"}],"best_oa_location":{"id":"doi:10.1038/s41746-025-01680-5","is_oa":true,"landing_page_url":"https://doi.org/10.1038/s41746-025-01680-5","pdf_url":"https://www.nature.com/articles/s41746-025-01680-5.pdf","source":{"id":"https://openalex.org/S4210195431","display_name":"npj Digital Medicine","issn_l":"2398-6352","issn":["2398-6352"],"is_oa":true,"is_in_doaj":true,"is_core":true,"host_organization":"https://openalex.org/P4310319908","host_organization_name":"Nature Portfolio","host_organization_lineage":["https://openalex.org/P4310319908","https://openalex.org/P4310319965"],"host_organization_lineage_names":["Nature Portfolio","Springer Nature"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"npj Digital Medicine","raw_type":"journal-article"},"sustainable_development_goals":[],"awards":[],"funders":[{"id":"https://openalex.org/F4320309151","display_name":"Vanderbilt University","ror":"https://ror.org/02vm5rt34"},{"id":"https://openalex.org/F4320313998","display_name":"Vanderbilt University Medical Center","ror":"https://ror.org/05dq2gs74"},{"id":"https://openalex.org/F4320332427","display_name":"School of Medicine, Stanford University","ror":"https://ror.org/00f54p054"},{"id":"https://openalex.org/F4320333063","display_name":"Stanford Bio-X","ror":"https://ror.org/00f54p054"}],"has_content":{"pdf":true,"grobid_xml":true},"content_urls":{"pdf":"https://content.openalex.org/works/W4410299192.pdf","grobid_xml":"https://content.openalex.org/works/W4410299192.grobid-xml"},"referenced_works_count":14,"referenced_works":["https://openalex.org/W2051806884","https://openalex.org/W2110034024","https://openalex.org/W2537935735","https://openalex.org/W2611659823","https://openalex.org/W2808816741","https://openalex.org/W2896391874","https://openalex.org/W2941605359","https://openalex.org/W2974262067","https://openalex.org/W2998548486","https://openalex.org/W3109446994","https://openalex.org/W3134076070","https://openalex.org/W3135185730","https://openalex.org/W3163088900","https://openalex.org/W4205723508"],"related_works":["https://openalex.org/W1980714815","https://openalex.org/W3133630643","https://openalex.org/W608490485","https://openalex.org/W2481729736","https://openalex.org/W4389636114","https://openalex.org/W2236208621","https://openalex.org/W2967475239","https://openalex.org/W4308919250","https://openalex.org/W2545074387","https://openalex.org/W3203106571"],"abstract_inverted_index":{"The":[0],"proliferation":[1],"of":[2,12,43,68],"health":[3,14,29,65],"devices":[4],"and":[5,55,61],"apps":[6],"has":[7,18],"led":[8],"to":[9,39],"an":[10],"abundance":[11],"patient-generated":[13],"data":[15],"(PGHD),":[16],"which":[17],"raised":[19],"concerns":[20],"about":[21],"integration":[22],"within":[23],"clinical":[24,41],"settings.":[25],"We":[26],"describe":[27],"one":[28],"system\u2019s":[30],"sequential":[31],"focus":[32],"group":[33],"approach":[34],"for":[35,64],"developing":[36],"guiding":[37],"principles":[38,46],"inform":[40],"responsibilities":[42],"PGHD.":[44,69],"These":[45],"center":[47],"around":[48],"(1)":[49],"setting":[50],"expectations;":[51],"(2)":[52],"preparing":[53],"staffing":[54],"workflows;":[56],"(3)":[57],"delivering":[58],"high-quality":[59],"experiences;":[60],"(4)":[62],"considerations":[63],"information":[66],"management":[67]},"counts_by_year":[{"year":2026,"cited_by_count":1}],"updated_date":"2026-05-06T08:25:59.206177","created_date":"2025-10-10T00:00:00"}