{"id":"https://openalex.org/W4322719140","doi":"https://doi.org/10.1038/s41746-023-00780-4","title":"Health data justice: building new norms for health data governance","display_name":"Health data justice: building new norms for health data governance","publication_year":2023,"publication_date":"2023-02-28","ids":{"openalex":"https://openalex.org/W4322719140","doi":"https://doi.org/10.1038/s41746-023-00780-4","pmid":"https://pubmed.ncbi.nlm.nih.gov/36854964"},"language":"en","primary_location":{"id":"doi:10.1038/s41746-023-00780-4","is_oa":true,"landing_page_url":"https://doi.org/10.1038/s41746-023-00780-4","pdf_url":"https://www.nature.com/articles/s41746-023-00780-4.pdf","source":{"id":"https://openalex.org/S4210195431","display_name":"npj Digital Medicine","issn_l":"2398-6352","issn":["2398-6352"],"is_oa":true,"is_in_doaj":true,"is_core":true,"host_organization":"https://openalex.org/P4310319908","host_organization_name":"Nature Portfolio","host_organization_lineage":["https://openalex.org/P4310319908","https://openalex.org/P4310319965"],"host_organization_lineage_names":["Nature Portfolio","Springer Nature"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"npj Digital Medicine","raw_type":"journal-article"},"type":"review","indexed_in":["crossref","doaj","pubmed"],"open_access":{"is_oa":true,"oa_status":"gold","oa_url":"https://www.nature.com/articles/s41746-023-00780-4.pdf","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5091413872","display_name":"James Shaw","orcid":"https://orcid.org/0000-0002-9522-0756"},"institutions":[{"id":"https://openalex.org/I185261750","display_name":"University of Toronto","ror":"https://ror.org/03dbr7087","country_code":"CA","type":"education","lineage":["https://openalex.org/I185261750"]}],"countries":["CA"],"is_corresponding":true,"raw_author_name":"James Shaw","raw_affiliation_strings":["Department of Physical Therapy, Temerty Faculty of Medicine, University of Toronto, 500 University Avenue, Toronto, ON, M5G 1V7, Canada. Jay.shaw@utoronto.ca","Department of Physical Therapy, Temerty Faculty of Medicine, University of Toronto, 500 University Avenue, Toronto, ON, M5G 1V7, Canada"],"raw_orcid":"https://orcid.org/0000-0002-9522-0756","affiliations":[{"raw_affiliation_string":"Department of Physical Therapy, Temerty Faculty of Medicine, University of Toronto, 500 University Avenue, Toronto, ON, M5G 1V7, Canada. Jay.shaw@utoronto.ca","institution_ids":["https://openalex.org/I185261750"]},{"raw_affiliation_string":"Department of Physical Therapy, Temerty Faculty of Medicine, University of Toronto, 500 University Avenue, Toronto, ON, M5G 1V7, Canada","institution_ids":["https://openalex.org/I185261750"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5018332715","display_name":"Sharifah Sekalala","orcid":"https://orcid.org/0000-0002-5434-5245"},"institutions":[{"id":"https://openalex.org/I39555362","display_name":"University of Warwick","ror":"https://ror.org/01a77tt86","country_code":"GB","type":"education","lineage":["https://openalex.org/I39555362"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Sharifah Sekalala","raw_affiliation_strings":["School of Law, University of Warwick, Coventry, CV4 7AL, United Kingdom"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"School of Law, University of Warwick, Coventry, CV4 7AL, United Kingdom","institution_ids":["https://openalex.org/I39555362"]}]}],"institutions":[],"countries_distinct_count":2,"institutions_distinct_count":2,"corresponding_author_ids":["https://openalex.org/A5091413872"],"corresponding_institution_ids":["https://openalex.org/I185261750"],"apc_list":{"value":3060,"currency":"USD","value_usd":3060},"apc_paid":{"value":3060,"currency":"USD","value_usd":3060},"fwci":7.8973,"has_fulltext":true,"cited_by_count":28,"citation_normalized_percentile":{"value":0.97907405,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":98,"max":100},"biblio":{"volume":"6","issue":"1","first_page":"30","last_page":"30"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":0.9972000122070312,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":0.9972000122070312,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13048","display_name":"Patient Dignity and Privacy","score":0.98580002784729,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11531","display_name":"Healthcare Systems and Reforms","score":0.9634000062942505,"subfield":{"id":"https://openalex.org/subfields/2003","display_name":"Finance"},"field":{"id":"https://openalex.org/fields/20","display_name":"Economics, Econometrics and Finance"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/economic-justice","display_name":"Economic Justice","score":0.636407196521759},{"id":"https://openalex.org/keywords/corporate-governance","display_name":"Corporate governance","score":0.5893644094467163},{"id":"https://openalex.org/keywords/public-health","display_name":"Public health","score":0.5385260581970215},{"id":"https://openalex.org/keywords/government","display_name":"Government (linguistics)","score":0.5373754501342773},{"id":"https://openalex.org/keywords/public-relations","display_name":"Public relations","score":0.5343915820121765},{"id":"https://openalex.org/keywords/context","display_name":"Context (archaeology)","score":0.5230013728141785},{"id":"https://openalex.org/keywords/perspective","display_name":"Perspective (graphical)","score":0.5068565011024475},{"id":"https://openalex.org/keywords/data-governance","display_name":"Data governance","score":0.4709005653858185},{"id":"https://openalex.org/keywords/health-care","display_name":"Health care","score":0.4249202013015747},{"id":"https://openalex.org/keywords/health-equity","display_name":"Health equity","score":0.4149055778980255},{"id":"https://openalex.org/keywords/political-science","display_name":"Political science","score":0.38993531465530396},{"id":"https://openalex.org/keywords/sociology","display_name":"Sociology","score":0.38946419954299927},{"id":"https://openalex.org/keywords/public-administration","display_name":"Public administration","score":0.32477372884750366},{"id":"https://openalex.org/keywords/business","display_name":"Business","score":0.2933119833469391},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.2178868055343628},{"id":"https://openalex.org/keywords/data-quality","display_name":"Data quality","score":0.19778695702552795},{"id":"https://openalex.org/keywords/nursing","display_name":"Nursing","score":0.14404675364494324},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.12707185745239258},{"id":"https://openalex.org/keywords/law","display_name":"Law","score":0.11512976884841919},{"id":"https://openalex.org/keywords/geography","display_name":"Geography","score":0.06778523325920105}],"concepts":[{"id":"https://openalex.org/C139621336","wikidata":"https://www.wikidata.org/wiki/Q3190382","display_name":"Economic Justice","level":2,"score":0.636407196521759},{"id":"https://openalex.org/C39389867","wikidata":"https://www.wikidata.org/wiki/Q380767","display_name":"Corporate governance","level":2,"score":0.5893644094467163},{"id":"https://openalex.org/C138816342","wikidata":"https://www.wikidata.org/wiki/Q189603","display_name":"Public health","level":2,"score":0.5385260581970215},{"id":"https://openalex.org/C2778137410","wikidata":"https://www.wikidata.org/wiki/Q2732820","display_name":"Government (linguistics)","level":2,"score":0.5373754501342773},{"id":"https://openalex.org/C39549134","wikidata":"https://www.wikidata.org/wiki/Q133080","display_name":"Public relations","level":1,"score":0.5343915820121765},{"id":"https://openalex.org/C2779343474","wikidata":"https://www.wikidata.org/wiki/Q3109175","display_name":"Context (archaeology)","level":2,"score":0.5230013728141785},{"id":"https://openalex.org/C12713177","wikidata":"https://www.wikidata.org/wiki/Q1900281","display_name":"Perspective (graphical)","level":2,"score":0.5068565011024475},{"id":"https://openalex.org/C196879817","wikidata":"https://www.wikidata.org/wiki/Q872685","display_name":"Data governance","level":4,"score":0.4709005653858185},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.4249202013015747},{"id":"https://openalex.org/C2250968","wikidata":"https://www.wikidata.org/wiki/Q1512929","display_name":"Health equity","level":3,"score":0.4149055778980255},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.38993531465530396},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.38946419954299927},{"id":"https://openalex.org/C3116431","wikidata":"https://www.wikidata.org/wiki/Q31728","display_name":"Public administration","level":1,"score":0.32477372884750366},{"id":"https://openalex.org/C144133560","wikidata":"https://www.wikidata.org/wiki/Q4830453","display_name":"Business","level":0,"score":0.2933119833469391},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.2178868055343628},{"id":"https://openalex.org/C24756922","wikidata":"https://www.wikidata.org/wiki/Q1757694","display_name":"Data quality","level":3,"score":0.19778695702552795},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.14404675364494324},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.12707185745239258},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.11512976884841919},{"id":"https://openalex.org/C205649164","wikidata":"https://www.wikidata.org/wiki/Q1071","display_name":"Geography","level":0,"score":0.06778523325920105},{"id":"https://openalex.org/C138885662","wikidata":"https://www.wikidata.org/wiki/Q5891","display_name":"Philosophy","level":0,"score":0.0},{"id":"https://openalex.org/C176217482","wikidata":"https://www.wikidata.org/wiki/Q860554","display_name":"Metric (unit)","level":2,"score":0.0},{"id":"https://openalex.org/C154945302","wikidata":"https://www.wikidata.org/wiki/Q11660","display_name":"Artificial intelligence","level":1,"score":0.0},{"id":"https://openalex.org/C41895202","wikidata":"https://www.wikidata.org/wiki/Q8162","display_name":"Linguistics","level":1,"score":0.0},{"id":"https://openalex.org/C166957645","wikidata":"https://www.wikidata.org/wiki/Q23498","display_name":"Archaeology","level":1,"score":0.0},{"id":"https://openalex.org/C162853370","wikidata":"https://www.wikidata.org/wiki/Q39809","display_name":"Marketing","level":1,"score":0.0},{"id":"https://openalex.org/C10138342","wikidata":"https://www.wikidata.org/wiki/Q43015","display_name":"Finance","level":1,"score":0.0}],"mesh":[],"locations_count":4,"locations":[{"id":"doi:10.1038/s41746-023-00780-4","is_oa":true,"landing_page_url":"https://doi.org/10.1038/s41746-023-00780-4","pdf_url":"https://www.nature.com/articles/s41746-023-00780-4.pdf","source":{"id":"https://openalex.org/S4210195431","display_name":"npj Digital Medicine","issn_l":"2398-6352","issn":["2398-6352"],"is_oa":true,"is_in_doaj":true,"is_core":true,"host_organization":"https://openalex.org/P4310319908","host_organization_name":"Nature Portfolio","host_organization_lineage":["https://openalex.org/P4310319908","https://openalex.org/P4310319965"],"host_organization_lineage_names":["Nature Portfolio","Springer Nature"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"npj Digital Medicine","raw_type":"journal-article"},{"id":"pmid:36854964","is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/36854964","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"NPJ digital medicine","raw_type":null},{"id":"pmh:oai:pubmedcentral.nih.gov:9972302","is_oa":true,"landing_page_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/9972302","pdf_url":"https://pmc.ncbi.nlm.nih.gov/articles/PMC9972302/pdf/41746_2023_Article_780.pdf","source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"NPJ Digit Med","raw_type":"Text"},{"id":"pmh:oai:doaj.org/article:5a452d601a94416e828454d4c0562d25","is_oa":true,"landing_page_url":"https://doaj.org/article/5a452d601a94416e828454d4c0562d25","pdf_url":null,"source":{"id":"https://openalex.org/S112646816","display_name":"SHILAP Revista de lepidopterolog\u00eda","issn_l":"0300-5267","issn":["0300-5267","2340-4078"],"is_oa":true,"is_in_doaj":true,"is_core":false,"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"npj Digital Medicine, Vol 6, Iss 1, Pp 1-4 (2023)","raw_type":"article"}],"best_oa_location":{"id":"doi:10.1038/s41746-023-00780-4","is_oa":true,"landing_page_url":"https://doi.org/10.1038/s41746-023-00780-4","pdf_url":"https://www.nature.com/articles/s41746-023-00780-4.pdf","source":{"id":"https://openalex.org/S4210195431","display_name":"npj Digital Medicine","issn_l":"2398-6352","issn":["2398-6352"],"is_oa":true,"is_in_doaj":true,"is_core":true,"host_organization":"https://openalex.org/P4310319908","host_organization_name":"Nature Portfolio","host_organization_lineage":["https://openalex.org/P4310319908","https://openalex.org/P4310319965"],"host_organization_lineage_names":["Nature Portfolio","Springer Nature"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"npj Digital Medicine","raw_type":"journal-article"},"sustainable_development_goals":[],"awards":[{"id":"https://openalex.org/G1104196130","display_name":null,"funder_award_id":"102862","funder_id":"https://openalex.org/F4320334506","funder_display_name":"Canadian Institutes of Health Research"}],"funders":[{"id":"https://openalex.org/F4320334506","display_name":"Canadian Institutes of Health Research","ror":"https://ror.org/01gavpb45"}],"has_content":{"grobid_xml":false,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W4322719140.pdf"},"referenced_works_count":24,"referenced_works":["https://openalex.org/W2148974647","https://openalex.org/W2337002970","https://openalex.org/W2590124083","https://openalex.org/W2596192549","https://openalex.org/W2749657780","https://openalex.org/W2784070037","https://openalex.org/W2885437164","https://openalex.org/W2898970033","https://openalex.org/W2906233720","https://openalex.org/W2945268660","https://openalex.org/W2963300406","https://openalex.org/W2996844929","https://openalex.org/W3006483158","https://openalex.org/W3013908145","https://openalex.org/W3087513247","https://openalex.org/W3124556767","https://openalex.org/W3131940966","https://openalex.org/W3166919630","https://openalex.org/W3203140867","https://openalex.org/W3209598779","https://openalex.org/W4206457636","https://openalex.org/W4211176385","https://openalex.org/W4226111916","https://openalex.org/W4283698574"],"related_works":["https://openalex.org/W2617513755","https://openalex.org/W2376072061","https://openalex.org/W4367303911","https://openalex.org/W409584353","https://openalex.org/W1550308580","https://openalex.org/W2884584982","https://openalex.org/W1605519360","https://openalex.org/W4236035384","https://openalex.org/W1970630452","https://openalex.org/W4321429420"],"abstract_inverted_index":{"The":[0],"retention":[1],"and":[2,10,27,85],"use":[3],"of":[4,18,21,33,55,74],"health-related":[5,56],"data":[6,39,46,57,76,94],"by":[7,82],"government,":[8],"corporate,":[9],"health":[11,25,29,61,75,93],"professional":[12],"actors":[13],"risk":[14],"exacerbating":[15],"the":[16,34,64,72],"harms":[17],"colonial":[19],"systems":[20],"inequality":[22],"in":[23],"which":[24],"care":[26],"public":[28],"are":[30,40],"situated,":[31],"regardless":[32],"intentions":[35],"about":[36],"how":[37],"those":[38],"used.":[41],"In":[42,67],"this":[43,68,83],"context,":[44],"a":[45,92],"justice":[47,62,95],"perspective":[48],"presents":[49],"opportunities":[50],"to":[51,89],"develop":[52],"new":[53],"norms":[54],"governance":[58],"that":[59],"hold":[60],"as":[63],"primary":[65],"objective.":[66],"perspective,":[69],"we":[70],"define":[71],"concept":[73],"justice,":[77],"outline":[78],"urgent":[79],"issues":[80],"informed":[81],"approach,":[84],"propose":[86],"five":[87],"calls":[88],"action":[90],"from":[91],"perspective.":[96]},"counts_by_year":[{"year":2026,"cited_by_count":3},{"year":2025,"cited_by_count":13},{"year":2024,"cited_by_count":6},{"year":2023,"cited_by_count":6}],"updated_date":"2026-01-24T23:23:39.755997","created_date":"2025-10-10T00:00:00"}