{"id":"https://openalex.org/W4362634505","doi":"https://doi.org/10.1016/j.patter.2023.100734","title":"Doing it right: Caring for and protecting patient information for US organ donors and transplant recipients","display_name":"Doing it right: Caring for and protecting patient information for US organ donors and transplant recipients","publication_year":2023,"publication_date":"2023-04-01","ids":{"openalex":"https://openalex.org/W4362634505","doi":"https://doi.org/10.1016/j.patter.2023.100734","pmid":"https://pubmed.ncbi.nlm.nih.gov/37123437"},"language":"en","primary_location":{"id":"doi:10.1016/j.patter.2023.100734","is_oa":true,"landing_page_url":"https://doi.org/10.1016/j.patter.2023.100734","pdf_url":null,"source":{"id":"https://openalex.org/S4210198061","display_name":"Patterns","issn_l":"2666-3899","issn":["2666-3899"],"is_oa":true,"is_in_doaj":true,"is_core":true,"host_organization":"https://openalex.org/P4310320990","host_organization_name":"Elsevier BV","host_organization_lineage":["https://openalex.org/P4310320990"],"host_organization_lineage_names":["Elsevier BV"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Patterns","raw_type":"journal-article"},"type":"article","indexed_in":["crossref","doaj","pubmed"],"open_access":{"is_oa":true,"oa_status":"gold","oa_url":"https://doi.org/10.1016/j.patter.2023.100734","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5023742676","display_name":"Eric Perakslis","orcid":"https://orcid.org/0000-0003-2395-810X"},"institutions":[{"id":"https://openalex.org/I170897317","display_name":"Duke University","ror":"https://ror.org/00py81415","country_code":"US","type":"education","lineage":["https://openalex.org/I170897317"]},{"id":"https://openalex.org/I4210088741","display_name":"Clinical Research Institute","ror":"https://ror.org/009ywjj88","country_code":"US","type":"facility","lineage":["https://openalex.org/I4210088741"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"Eric D. Perakslis","raw_affiliation_strings":["Duke Clinical Research Institute, Duke University, Durham, NC 27701, USA"],"raw_orcid":"https://orcid.org/0000-0003-2395-810X","affiliations":[{"raw_affiliation_string":"Duke Clinical Research Institute, Duke University, Durham, NC 27701, USA","institution_ids":["https://openalex.org/I4210088741","https://openalex.org/I170897317"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5078530019","display_name":"Stuart J. Knechtle","orcid":"https://orcid.org/0000-0002-1625-385X"},"institutions":[{"id":"https://openalex.org/I170897317","display_name":"Duke University","ror":"https://ror.org/00py81415","country_code":"US","type":"education","lineage":["https://openalex.org/I170897317"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Stuart J. Knechtle","raw_affiliation_strings":["Department of Surgery, Duke School of Medicine, Durham, NC 27701, USA"],"raw_orcid":"https://orcid.org/0000-0002-1625-385X","affiliations":[{"raw_affiliation_string":"Department of Surgery, Duke School of Medicine, Durham, NC 27701, USA","institution_ids":["https://openalex.org/I170897317"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5041108561","display_name":"Brian McCourt","orcid":"https://orcid.org/0000-0002-5757-3024"},"institutions":[{"id":"https://openalex.org/I170897317","display_name":"Duke University","ror":"https://ror.org/00py81415","country_code":"US","type":"education","lineage":["https://openalex.org/I170897317"]},{"id":"https://openalex.org/I4210088741","display_name":"Clinical Research Institute","ror":"https://ror.org/009ywjj88","country_code":"US","type":"facility","lineage":["https://openalex.org/I4210088741"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Brian McCourt","raw_affiliation_strings":["Duke Clinical Research Institute, Duke University, Durham, NC 27701, USA"],"raw_orcid":"https://orcid.org/0000-0002-5757-3024","affiliations":[{"raw_affiliation_string":"Duke Clinical Research Institute, Duke University, Durham, NC 27701, USA","institution_ids":["https://openalex.org/I4210088741","https://openalex.org/I170897317"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5036499058","display_name":"Raymond Lynch","orcid":"https://orcid.org/0000-0001-8371-7514"},"institutions":[{"id":"https://openalex.org/I82783531","display_name":"Penn State Milton S. Hershey Medical Center","ror":"https://ror.org/01h22ap11","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I82783531"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Raymond Lynch","raw_affiliation_strings":["Departments of Surgery and Public Health, Penn State Health Milton S Hershey Medical Center, Hershey, PA, USA"],"raw_orcid":"https://orcid.org/0000-0001-8371-7514","affiliations":[{"raw_affiliation_string":"Departments of Surgery and Public Health, Penn State Health Milton S Hershey Medical Center, Hershey, PA, USA","institution_ids":["https://openalex.org/I82783531"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5044325317","display_name":"Brianna Doby","orcid":"https://orcid.org/0000-0001-9863-3276"},"institutions":[{"id":"https://openalex.org/I10052268","display_name":"New Mexico State University","ror":"https://ror.org/00hpz7z43","country_code":"US","type":"education","lineage":["https://openalex.org/I10052268"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Brianna L. Doby","raw_affiliation_strings":["Department of Public Health Sciences, New Mexico State University, College of Health Education, and Social Transformation, Las Cruces, NM, USA"],"raw_orcid":"https://orcid.org/0000-0001-9863-3276","affiliations":[{"raw_affiliation_string":"Department of Public Health Sciences, New Mexico State University, College of Health Education, and Social Transformation, Las Cruces, NM, USA","institution_ids":["https://openalex.org/I10052268"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":5,"corresponding_author_ids":["https://openalex.org/A5023742676"],"corresponding_institution_ids":["https://openalex.org/I170897317","https://openalex.org/I4210088741"],"apc_list":{"value":5200,"currency":"USD","value_usd":5200},"apc_paid":{"value":5200,"currency":"USD","value_usd":5200},"fwci":1.1282,"has_fulltext":true,"cited_by_count":4,"citation_normalized_percentile":{"value":0.77343182,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":90,"max":96},"biblio":{"volume":"4","issue":"4","first_page":"100734","last_page":"100734"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11163","display_name":"Organ Donation and Transplantation","score":0.9993000030517578,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T11163","display_name":"Organ Donation and Transplantation","score":0.9993000030517578,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13048","display_name":"Patient Dignity and Privacy","score":0.9469000101089478,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11156","display_name":"Reproductive Health and Technologies","score":0.9307000041007996,"subfield":{"id":"https://openalex.org/subfields/2743","display_name":"Reproductive Medicine"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/organ-procurement","display_name":"Organ procurement","score":0.8563793301582336},{"id":"https://openalex.org/keywords/organ-transplantation","display_name":"Organ transplantation","score":0.7176557779312134},{"id":"https://openalex.org/keywords/autonomy","display_name":"Autonomy","score":0.6431007981300354},{"id":"https://openalex.org/keywords/transplantation","display_name":"Transplantation","score":0.5064424276351929},{"id":"https://openalex.org/keywords/business","display_name":"Business","score":0.4939876198768616},{"id":"https://openalex.org/keywords/internet-privacy","display_name":"Internet privacy","score":0.4822703003883362},{"id":"https://openalex.org/keywords/intensive-care-medicine","display_name":"Intensive care medicine","score":0.4333474338054657},{"id":"https://openalex.org/keywords/quality","display_name":"Quality (philosophy)","score":0.4264806807041168},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.42165204882621765},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.16964322328567505},{"id":"https://openalex.org/keywords/political-science","display_name":"Political science","score":0.15635859966278076},{"id":"https://openalex.org/keywords/surgery","display_name":"Surgery","score":0.12601357698440552},{"id":"https://openalex.org/keywords/law","display_name":"Law","score":0.09819290041923523}],"concepts":[{"id":"https://openalex.org/C3017901848","wikidata":"https://www.wikidata.org/wiki/Q3536444","display_name":"Organ procurement","level":3,"score":0.8563793301582336},{"id":"https://openalex.org/C168444539","wikidata":"https://www.wikidata.org/wiki/Q105196","display_name":"Organ transplantation","level":3,"score":0.7176557779312134},{"id":"https://openalex.org/C65414064","wikidata":"https://www.wikidata.org/wiki/Q484105","display_name":"Autonomy","level":2,"score":0.6431007981300354},{"id":"https://openalex.org/C2911091166","wikidata":"https://www.wikidata.org/wiki/Q106419912","display_name":"Transplantation","level":2,"score":0.5064424276351929},{"id":"https://openalex.org/C144133560","wikidata":"https://www.wikidata.org/wiki/Q4830453","display_name":"Business","level":0,"score":0.4939876198768616},{"id":"https://openalex.org/C108827166","wikidata":"https://www.wikidata.org/wiki/Q175975","display_name":"Internet privacy","level":1,"score":0.4822703003883362},{"id":"https://openalex.org/C177713679","wikidata":"https://www.wikidata.org/wiki/Q679690","display_name":"Intensive care medicine","level":1,"score":0.4333474338054657},{"id":"https://openalex.org/C2779530757","wikidata":"https://www.wikidata.org/wiki/Q1207505","display_name":"Quality (philosophy)","level":2,"score":0.4264806807041168},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.42165204882621765},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.16964322328567505},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.15635859966278076},{"id":"https://openalex.org/C141071460","wikidata":"https://www.wikidata.org/wiki/Q40821","display_name":"Surgery","level":1,"score":0.12601357698440552},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.09819290041923523},{"id":"https://openalex.org/C138885662","wikidata":"https://www.wikidata.org/wiki/Q5891","display_name":"Philosophy","level":0,"score":0.0},{"id":"https://openalex.org/C111472728","wikidata":"https://www.wikidata.org/wiki/Q9471","display_name":"Epistemology","level":1,"score":0.0}],"mesh":[],"locations_count":3,"locations":[{"id":"doi:10.1016/j.patter.2023.100734","is_oa":true,"landing_page_url":"https://doi.org/10.1016/j.patter.2023.100734","pdf_url":null,"source":{"id":"https://openalex.org/S4210198061","display_name":"Patterns","issn_l":"2666-3899","issn":["2666-3899"],"is_oa":true,"is_in_doaj":true,"is_core":true,"host_organization":"https://openalex.org/P4310320990","host_organization_name":"Elsevier BV","host_organization_lineage":["https://openalex.org/P4310320990"],"host_organization_lineage_names":["Elsevier BV"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Patterns","raw_type":"journal-article"},{"id":"pmid:37123437","is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/37123437","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Patterns (New York, N.Y.)","raw_type":null},{"id":"pmh:oai:pubmedcentral.nih.gov:10140603","is_oa":true,"landing_page_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/10140603","pdf_url":"https://pmc.ncbi.nlm.nih.gov/articles/PMC10140603/pdf/main.pdf","source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Patterns (N Y)","raw_type":"Text"}],"best_oa_location":{"id":"doi:10.1016/j.patter.2023.100734","is_oa":true,"landing_page_url":"https://doi.org/10.1016/j.patter.2023.100734","pdf_url":null,"source":{"id":"https://openalex.org/S4210198061","display_name":"Patterns","issn_l":"2666-3899","issn":["2666-3899"],"is_oa":true,"is_in_doaj":true,"is_core":true,"host_organization":"https://openalex.org/P4310320990","host_organization_name":"Elsevier BV","host_organization_lineage":["https://openalex.org/P4310320990"],"host_organization_lineage_names":["Elsevier BV"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Patterns","raw_type":"journal-article"},"sustainable_development_goals":[],"awards":[],"funders":[],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":5,"referenced_works":["https://openalex.org/W2339864272","https://openalex.org/W2998180785","https://openalex.org/W4255494417","https://openalex.org/W4293322299","https://openalex.org/W4315630489"],"related_works":["https://openalex.org/W2418232721","https://openalex.org/W2162896058","https://openalex.org/W4298255269","https://openalex.org/W2122444209","https://openalex.org/W2261253551","https://openalex.org/W2360419293","https://openalex.org/W2051682554","https://openalex.org/W2398151650","https://openalex.org/W4253456829","https://openalex.org/W2401892826"],"abstract_inverted_index":{"In":[0,28],"the":[1,22,31,39,55,61],"current":[2],"US":[3,40],"organ":[4,13],"transplantation":[5,41],"system,":[6,42],"there":[7],"are":[8],"no":[9],"regulations":[10],"defining":[11],"how":[12],"procurement":[14],"organizations":[15],"must":[16],"manage":[17],"personal":[18],"data":[19,51],"and":[20,26,53],"protect":[21],"privacy":[23],"of":[24,34,38,57],"donors":[25],"recipients.":[27],"response":[29],"to":[30,48],"recent":[32],"announcement":[33],"a":[35,45],"major":[36],"overhaul":[37],"we":[43],"describe":[44],"practical":[46],"approach":[47],"improving":[49],"transplant":[50],"quality":[52],"protecting":[54],"autonomy":[56],"patients":[58],"interacting":[59],"with":[60],"system.":[62]},"counts_by_year":[{"year":2025,"cited_by_count":2},{"year":2024,"cited_by_count":1},{"year":2023,"cited_by_count":1}],"updated_date":"2026-03-27T05:58:40.876381","created_date":"2025-10-10T00:00:00"}