{"id":"https://openalex.org/W4410202866","doi":"https://doi.org/10.1016/j.jbi.2025.104842","title":"Implementation of a Digital Maturity Framework for Biobanking","display_name":"Implementation of a Digital Maturity Framework for Biobanking","publication_year":2025,"publication_date":"2025-05-08","ids":{"openalex":"https://openalex.org/W4410202866","doi":"https://doi.org/10.1016/j.jbi.2025.104842","pmid":"https://pubmed.ncbi.nlm.nih.gov/40345356"},"language":"en","primary_location":{"id":"doi:10.1016/j.jbi.2025.104842","is_oa":true,"landing_page_url":"https://doi.org/10.1016/j.jbi.2025.104842","pdf_url":null,"source":{"id":"https://openalex.org/S11622463","display_name":"Journal of Biomedical Informatics","issn_l":"1532-0464","issn":["1532-0464","1532-0480"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310320990","host_organization_name":"Elsevier BV","host_organization_lineage":["https://openalex.org/P4310320990"],"host_organization_lineage_names":["Elsevier BV"],"type":"journal"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Biomedical Informatics","raw_type":"journal-article"},"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":true,"oa_status":"hybrid","oa_url":"https://doi.org/10.1016/j.jbi.2025.104842","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5011599512","display_name":"Francesco Rossi","orcid":"https://orcid.org/0009-0003-2979-0472"},"institutions":[{"id":"https://openalex.org/I4210139435","display_name":"Institute for Experimental Endocrinology and Oncology","ror":"https://ror.org/04sn06036","country_code":"IT","type":"facility","lineage":["https://openalex.org/I4210139435","https://openalex.org/I4210155236"]}],"countries":["IT"],"is_corresponding":false,"raw_author_name":"Federica Rossi","raw_affiliation_strings":["Istituto degli Endotipi in Oncologia, Metabolismo e Immunologia \"G. Salvatore\" (IEOMI), Naples, Italy"],"raw_orcid":"https://orcid.org/0009-0003-2979-0472","affiliations":[{"raw_affiliation_string":"Istituto degli Endotipi in Oncologia, Metabolismo e Immunologia \"G. Salvatore\" (IEOMI), Naples, Italy","institution_ids":["https://openalex.org/I4210139435"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5102788341","display_name":"Davide Fragnito","orcid":"https://orcid.org/0000-0003-4638-564X"},"institutions":[{"id":"https://openalex.org/I4210139435","display_name":"Institute for Experimental Endocrinology and Oncology","ror":"https://ror.org/04sn06036","country_code":"IT","type":"facility","lineage":["https://openalex.org/I4210139435","https://openalex.org/I4210155236"]}],"countries":["IT"],"is_corresponding":false,"raw_author_name":"Davide Fragnito","raw_affiliation_strings":["Istituto degli Endotipi in Oncologia, Metabolismo e Immunologia \"G. Salvatore\" (IEOMI), Naples, Italy"],"raw_orcid":"https://orcid.org/0000-0003-4638-564X","affiliations":[{"raw_affiliation_string":"Istituto degli Endotipi in Oncologia, Metabolismo e Immunologia \"G. Salvatore\" (IEOMI), Naples, Italy","institution_ids":["https://openalex.org/I4210139435"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5117479876","display_name":"Antonella Cruoglio","orcid":"https://orcid.org/0009-0001-9024-8936"},"institutions":[{"id":"https://openalex.org/I4210139435","display_name":"Institute for Experimental Endocrinology and Oncology","ror":"https://ror.org/04sn06036","country_code":"IT","type":"facility","lineage":["https://openalex.org/I4210139435","https://openalex.org/I4210155236"]}],"countries":["IT"],"is_corresponding":false,"raw_author_name":"Antonella Cruoglio","raw_affiliation_strings":["Istituto degli Endotipi in Oncologia, Metabolismo e Immunologia \"G. Salvatore\" (IEOMI), Naples, Italy"],"raw_orcid":"https://orcid.org/0009-0001-9024-8936","affiliations":[{"raw_affiliation_string":"Istituto degli Endotipi in Oncologia, Metabolismo e Immunologia \"G. Salvatore\" (IEOMI), Naples, Italy","institution_ids":["https://openalex.org/I4210139435"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5026821123","display_name":"Ramona Palombo","orcid":"https://orcid.org/0000-0001-6147-4080"},"institutions":[{"id":"https://openalex.org/I4210139435","display_name":"Institute for Experimental Endocrinology and Oncology","ror":"https://ror.org/04sn06036","country_code":"IT","type":"facility","lineage":["https://openalex.org/I4210139435","https://openalex.org/I4210155236"]}],"countries":["IT"],"is_corresponding":false,"raw_author_name":"Ramona Palombo","raw_affiliation_strings":["Istituto degli Endotipi in Oncologia, Metabolismo e Immunologia \"G. Salvatore\" (IEOMI), Naples, Italy"],"raw_orcid":"https://orcid.org/0000-0001-6147-4080","affiliations":[{"raw_affiliation_string":"Istituto degli Endotipi in Oncologia, Metabolismo e Immunologia \"G. Salvatore\" (IEOMI), Naples, Italy","institution_ids":["https://openalex.org/I4210139435"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5046032709","display_name":"Alice Massacci","orcid":"https://orcid.org/0000-0001-7780-809X"},"institutions":[{"id":"https://openalex.org/I4210139435","display_name":"Institute for Experimental Endocrinology and Oncology","ror":"https://ror.org/04sn06036","country_code":"IT","type":"facility","lineage":["https://openalex.org/I4210139435","https://openalex.org/I4210155236"]}],"countries":["IT"],"is_corresponding":false,"raw_author_name":"Alice Massacci","raw_affiliation_strings":["Istituto degli Endotipi in Oncologia, Metabolismo e Immunologia \"G. Salvatore\" (IEOMI), Naples, Italy"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Istituto degli Endotipi in Oncologia, Metabolismo e Immunologia \"G. Salvatore\" (IEOMI), Naples, Italy","institution_ids":["https://openalex.org/I4210139435"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5067223109","display_name":"Alessandro Sulis","orcid":"https://orcid.org/0000-0002-5110-2950"},"institutions":[{"id":"https://openalex.org/I2800759272","display_name":"Center for Advanced Studies Research and Development in Sardinia","ror":"https://ror.org/03jdxdk20","country_code":"IT","type":"facility","lineage":["https://openalex.org/I2800759272"]}],"countries":["IT"],"is_corresponding":false,"raw_author_name":"Alessandro Sulis","raw_affiliation_strings":["CRS4, Center for Advanced Studies, Research and Development in Sardinia, 09050 PULA, CA, Italy"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"CRS4, Center for Advanced Studies, Research and Development in Sardinia, 09050 PULA, CA, Italy","institution_ids":["https://openalex.org/I2800759272"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5081350532","display_name":"Vittorio Meloni","orcid":"https://orcid.org/0000-0002-5978-2954"},"institutions":[{"id":"https://openalex.org/I2800759272","display_name":"Center for Advanced Studies Research and Development in Sardinia","ror":"https://ror.org/03jdxdk20","country_code":"IT","type":"facility","lineage":["https://openalex.org/I2800759272"]}],"countries":["IT"],"is_corresponding":false,"raw_author_name":"Vittorio Meloni","raw_affiliation_strings":["CRS4, Center for Advanced Studies, Research and Development in Sardinia, 09050 PULA, CA, Italy"],"raw_orcid":"https://orcid.org/0000-0002-5978-2954","affiliations":[{"raw_affiliation_string":"CRS4, Center for Advanced Studies, Research and Development in Sardinia, 09050 PULA, CA, Italy","institution_ids":["https://openalex.org/I2800759272"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5061696925","display_name":"Sara Casati","orcid":"https://orcid.org/0000-0002-9971-9706"},"institutions":[{"id":"https://openalex.org/I4210139435","display_name":"Institute for Experimental Endocrinology and Oncology","ror":"https://ror.org/04sn06036","country_code":"IT","type":"facility","lineage":["https://openalex.org/I4210139435","https://openalex.org/I4210155236"]}],"countries":["IT"],"is_corresponding":false,"raw_author_name":"Sara Casati","raw_affiliation_strings":["Istituto degli Endotipi in Oncologia, Metabolismo e Immunologia \"G. Salvatore\" (IEOMI), Naples, Italy"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Istituto degli Endotipi in Oncologia, Metabolismo e Immunologia \"G. Salvatore\" (IEOMI), Naples, Italy","institution_ids":["https://openalex.org/I4210139435"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5008636181","display_name":"Antonella Mirabile","orcid":"https://orcid.org/0000-0002-5824-9277"},"institutions":[{"id":"https://openalex.org/I4210139435","display_name":"Institute for Experimental Endocrinology and Oncology","ror":"https://ror.org/04sn06036","country_code":"IT","type":"facility","lineage":["https://openalex.org/I4210139435","https://openalex.org/I4210155236"]}],"countries":["IT"],"is_corresponding":false,"raw_author_name":"Antonella Mirabile","raw_affiliation_strings":["Istituto degli Endotipi in Oncologia, Metabolismo e Immunologia \"G. Salvatore\" (IEOMI), Naples, Italy"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Istituto degli Endotipi in Oncologia, Metabolismo e Immunologia \"G. Salvatore\" (IEOMI), Naples, Italy","institution_ids":["https://openalex.org/I4210139435"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5103106094","display_name":"Andrea Manconi","orcid":"https://orcid.org/0000-0002-1287-2768"},"institutions":[{"id":"https://openalex.org/I4210154278","display_name":"Institute of Biomedical Technologies","ror":"https://ror.org/04ehykb85","country_code":"IT","type":"facility","lineage":["https://openalex.org/I4210154278","https://openalex.org/I4210155236"]}],"countries":["IT"],"is_corresponding":false,"raw_author_name":"Andrea Manconi","raw_affiliation_strings":["Institute of Biochemical Technologies, National Research Council (CNR), 20054 Segrate, Milan, Italy"],"raw_orcid":"https://orcid.org/0000-0002-1287-2768","affiliations":[{"raw_affiliation_string":"Institute of Biochemical Technologies, National Research Council (CNR), 20054 Segrate, Milan, Italy","institution_ids":["https://openalex.org/I4210154278"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5088629765","display_name":"Luciano Milanesi","orcid":"https://orcid.org/0000-0002-1201-3939"},"institutions":[{"id":"https://openalex.org/I4210154278","display_name":"Institute of Biomedical Technologies","ror":"https://ror.org/04ehykb85","country_code":"IT","type":"facility","lineage":["https://openalex.org/I4210154278","https://openalex.org/I4210155236"]}],"countries":["IT"],"is_corresponding":false,"raw_author_name":"Luciano Milanesi","raw_affiliation_strings":["Institute of Biochemical Technologies, National Research Council (CNR), 20054 Segrate, Milan, Italy"],"raw_orcid":"https://orcid.org/0000-0002-1201-3939","affiliations":[{"raw_affiliation_string":"Institute of Biochemical Technologies, National Research Council (CNR), 20054 Segrate, Milan, Italy","institution_ids":["https://openalex.org/I4210154278"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5052593572","display_name":"Gennaro Ciliberto","orcid":"https://orcid.org/0000-0003-2851-8605"},"institutions":[{"id":"https://openalex.org/I4210153126","display_name":"Istituti di Ricovero e Cura a Carattere Scientifico","ror":"https://ror.org/04tfzc498","country_code":"IT","type":"healthcare","lineage":["https://openalex.org/I4210153126"]}],"countries":["IT"],"is_corresponding":false,"raw_author_name":"Gennaro Ciliberto","raw_affiliation_strings":["Scientific Direction, IRCCS Regina Elena National Cancer Institute, 00144 Rome, Italy"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Scientific Direction, IRCCS Regina Elena National Cancer Institute, 00144 Rome, Italy","institution_ids":["https://openalex.org/I4210153126"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5090242551","display_name":"Monica Forni","orcid":"https://orcid.org/0000-0003-1310-6202"},"institutions":[{"id":"https://openalex.org/I9360294","display_name":"University of Bologna","ror":"https://ror.org/01111rn36","country_code":"IT","type":"education","lineage":["https://openalex.org/I9360294"]}],"countries":["IT"],"is_corresponding":false,"raw_author_name":"Monica Forni","raw_affiliation_strings":["Department of Medical and Surgical Sciences (DIMEC), Interdepartmental Center for Industrial Research in Health Sciences and Technologies (CIRI-SDV), University of Bologna (UniBo), 40126 Bologna, Italy"],"raw_orcid":"https://orcid.org/0000-0003-1310-6202","affiliations":[{"raw_affiliation_string":"Department of Medical and Surgical Sciences (DIMEC), Interdepartmental Center for Industrial Research in Health Sciences and Technologies (CIRI-SDV), University of Bologna (UniBo), 40126 Bologna, Italy","institution_ids":["https://openalex.org/I9360294"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5038081503","display_name":"Valentina Adami","orcid":"https://orcid.org/0000-0002-0617-9393"},"institutions":[{"id":"https://openalex.org/I193223587","display_name":"University of Trento","ror":"https://ror.org/05trd4x28","country_code":"IT","type":"education","lineage":["https://openalex.org/I193223587"]}],"countries":["IT"],"is_corresponding":false,"raw_author_name":"Valentina Adami","raw_affiliation_strings":["CIBIO - Department of Cellular, Computational and Integrative Biology, University of Trento 38123 Trento, Italy"],"raw_orcid":"https://orcid.org/0000-0002-0617-9393","affiliations":[{"raw_affiliation_string":"CIBIO - Department of Cellular, Computational and Integrative Biology, University of Trento 38123 Trento, Italy","institution_ids":["https://openalex.org/I193223587"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5038518409","display_name":"Massimiliano Borsani","orcid":"https://orcid.org/0000-0002-6566-2844"},"institutions":[{"id":"https://openalex.org/I4210139435","display_name":"Institute for Experimental Endocrinology and Oncology","ror":"https://ror.org/04sn06036","country_code":"IT","type":"facility","lineage":["https://openalex.org/I4210139435","https://openalex.org/I4210155236"]}],"countries":["IT"],"is_corresponding":false,"raw_author_name":"Massimiliano Borsani","raw_affiliation_strings":["Istituto degli Endotipi in Oncologia, Metabolismo e Immunologia \"G. Salvatore\" (IEOMI), Naples, Italy"],"raw_orcid":"https://orcid.org/0000-0002-6566-2844","affiliations":[{"raw_affiliation_string":"Istituto degli Endotipi in Oncologia, Metabolismo e Immunologia \"G. Salvatore\" (IEOMI), Naples, Italy","institution_ids":["https://openalex.org/I4210139435"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5103240716","display_name":"Claudia Miele","orcid":"https://orcid.org/0000-0002-2666-3019"},"institutions":[{"id":"https://openalex.org/I4210139435","display_name":"Institute for Experimental Endocrinology and Oncology","ror":"https://ror.org/04sn06036","country_code":"IT","type":"facility","lineage":["https://openalex.org/I4210139435","https://openalex.org/I4210155236"]}],"countries":["IT"],"is_corresponding":false,"raw_author_name":"Claudia Miele","raw_affiliation_strings":["Istituto degli Endotipi in Oncologia, Metabolismo e Immunologia \"G. Salvatore\" (IEOMI), Naples, Italy"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Istituto degli Endotipi in Oncologia, Metabolismo e Immunologia \"G. Salvatore\" (IEOMI), Naples, Italy","institution_ids":["https://openalex.org/I4210139435"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5035159128","display_name":"Marialuisa Lavitrano","orcid":"https://orcid.org/0000-0003-4852-1318"},"institutions":[{"id":"https://openalex.org/I66752286","display_name":"University of Milano-Bicocca","ror":"https://ror.org/01ynf4891","country_code":"IT","type":"education","lineage":["https://openalex.org/I66752286"]}],"countries":["IT"],"is_corresponding":false,"raw_author_name":"Marialuisa Lavitrano","raw_affiliation_strings":["School of Medicine and Surgery, University of Milano-Bicocca, 20900 Monza, Italy"],"raw_orcid":"https://orcid.org/0000-0003-4852-1318","affiliations":[{"raw_affiliation_string":"School of Medicine and Surgery, University of Milano-Bicocca, 20900 Monza, Italy","institution_ids":["https://openalex.org/I66752286"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5066981430","display_name":"Matteo Pallocca","orcid":"https://orcid.org/0000-0002-7756-3579"},"institutions":[{"id":"https://openalex.org/I4210139435","display_name":"Institute for Experimental Endocrinology and Oncology","ror":"https://ror.org/04sn06036","country_code":"IT","type":"facility","lineage":["https://openalex.org/I4210139435","https://openalex.org/I4210155236"]}],"countries":["IT"],"is_corresponding":true,"raw_author_name":"Matteo Pallocca","raw_affiliation_strings":["Istituto degli Endotipi in Oncologia, Metabolismo e Immunologia \"G. Salvatore\" (IEOMI), Naples, Italy. Electronic address: matteo.pallocca@cnr.it"],"raw_orcid":"https://orcid.org/0000-0002-7756-3579","affiliations":[{"raw_affiliation_string":"Istituto degli Endotipi in Oncologia, Metabolismo e Immunologia \"G. Salvatore\" (IEOMI), Naples, Italy. Electronic address: matteo.pallocca@cnr.it","institution_ids":["https://openalex.org/I4210139435"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":18,"corresponding_author_ids":["https://openalex.org/A5066981430"],"corresponding_institution_ids":["https://openalex.org/I4210139435"],"apc_list":{"value":2980,"currency":"USD","value_usd":2980},"apc_paid":{"value":2980,"currency":"USD","value_usd":2980},"fwci":1.6337,"has_fulltext":false,"cited_by_count":1,"citation_normalized_percentile":{"value":0.82064388,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":91,"max":95},"biblio":{"volume":"166","issue":null,"first_page":"104842","last_page":"104842"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":0.9521999955177307,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":0.9521999955177307,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11642","display_name":"Genomics and Rare Diseases","score":0.005799999926239252,"subfield":{"id":"https://openalex.org/subfields/1311","display_name":"Genetics"},"field":{"id":"https://openalex.org/fields/13","display_name":"Biochemistry, Genetics and Molecular Biology"},"domain":{"id":"https://openalex.org/domains/1","display_name":"Life Sciences"}},{"id":"https://openalex.org/T10769","display_name":"BRCA gene mutations in cancer","score":0.005100000184029341,"subfield":{"id":"https://openalex.org/subfields/1311","display_name":"Genetics"},"field":{"id":"https://openalex.org/fields/13","display_name":"Biochemistry, Genetics and Molecular Biology"},"domain":{"id":"https://openalex.org/domains/1","display_name":"Life Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/biobank","display_name":"Biobank","score":0.9176366329193115},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.623845100402832},{"id":"https://openalex.org/keywords/maturity","display_name":"Maturity (psychological)","score":0.6032509207725525},{"id":"https://openalex.org/keywords/capability-maturity-model","display_name":"Capability Maturity Model","score":0.4287432134151459},{"id":"https://openalex.org/keywords/data-science","display_name":"Data science","score":0.4077174961566925},{"id":"https://openalex.org/keywords/world-wide-web","display_name":"World Wide Web","score":0.3654367923736572},{"id":"https://openalex.org/keywords/bioinformatics","display_name":"Bioinformatics","score":0.21690842509269714},{"id":"https://openalex.org/keywords/psychology","display_name":"Psychology","score":0.12796854972839355},{"id":"https://openalex.org/keywords/biology","display_name":"Biology","score":0.12179386615753174},{"id":"https://openalex.org/keywords/software","display_name":"Software","score":0.11302253603935242},{"id":"https://openalex.org/keywords/programming-language","display_name":"Programming language","score":0.10256028175354004}],"concepts":[{"id":"https://openalex.org/C116567970","wikidata":"https://www.wikidata.org/wiki/Q864217","display_name":"Biobank","level":2,"score":0.9176366329193115},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.623845100402832},{"id":"https://openalex.org/C101433766","wikidata":"https://www.wikidata.org/wiki/Q3543263","display_name":"Maturity (psychological)","level":2,"score":0.6032509207725525},{"id":"https://openalex.org/C85890633","wikidata":"https://www.wikidata.org/wiki/Q929673","display_name":"Capability Maturity Model","level":3,"score":0.4287432134151459},{"id":"https://openalex.org/C2522767166","wikidata":"https://www.wikidata.org/wiki/Q2374463","display_name":"Data science","level":1,"score":0.4077174961566925},{"id":"https://openalex.org/C136764020","wikidata":"https://www.wikidata.org/wiki/Q466","display_name":"World Wide Web","level":1,"score":0.3654367923736572},{"id":"https://openalex.org/C60644358","wikidata":"https://www.wikidata.org/wiki/Q128570","display_name":"Bioinformatics","level":1,"score":0.21690842509269714},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.12796854972839355},{"id":"https://openalex.org/C86803240","wikidata":"https://www.wikidata.org/wiki/Q420","display_name":"Biology","level":0,"score":0.12179386615753174},{"id":"https://openalex.org/C2777904410","wikidata":"https://www.wikidata.org/wiki/Q7397","display_name":"Software","level":2,"score":0.11302253603935242},{"id":"https://openalex.org/C199360897","wikidata":"https://www.wikidata.org/wiki/Q9143","display_name":"Programming language","level":1,"score":0.10256028175354004},{"id":"https://openalex.org/C138496976","wikidata":"https://www.wikidata.org/wiki/Q175002","display_name":"Developmental psychology","level":1,"score":0.0}],"mesh":[{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007558","descriptor_name":"Italy","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007558","descriptor_name":"Italy","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011795","descriptor_name":"Surveys and Questionnaires","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011795","descriptor_name":"Surveys and Questionnaires","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D018070","descriptor_name":"Biological Specimen Banks","qualifier_ui":"Q000458","qualifier_name":"organization & administration","is_major_topic":true},{"descriptor_ui":"D018070","descriptor_name":"Biological Specimen Banks","qualifier_ui":"Q000458","qualifier_name":"organization & administration","is_major_topic":true}],"locations_count":4,"locations":[{"id":"doi:10.1016/j.jbi.2025.104842","is_oa":true,"landing_page_url":"https://doi.org/10.1016/j.jbi.2025.104842","pdf_url":null,"source":{"id":"https://openalex.org/S11622463","display_name":"Journal of Biomedical Informatics","issn_l":"1532-0464","issn":["1532-0464","1532-0480"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310320990","host_organization_name":"Elsevier BV","host_organization_lineage":["https://openalex.org/P4310320990"],"host_organization_lineage_names":["Elsevier BV"],"type":"journal"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Biomedical Informatics","raw_type":"journal-article"},{"id":"pmid:40345356","is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/40345356","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of biomedical informatics","raw_type":null},{"id":"pmh:oai:boa.unimib.it:10281/553941","is_oa":true,"landing_page_url":"https://hdl.handle.net/10281/553941","pdf_url":null,"source":{"id":"https://openalex.org/S4306401259","display_name":"BOA (University of Milano-Bicocca)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I66752286","host_organization_name":"University of Milano-Bicocca","host_organization_lineage":["https://openalex.org/I66752286"],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"info:eu-repo/semantics/article"},{"id":"pmh:oai:cris.unibo.it:11585/1019110","is_oa":true,"landing_page_url":"https://www.sciencedirect.com/science/article/pii/S1532046425000711","pdf_url":null,"source":{"id":"https://openalex.org/S4306402579","display_name":"Archivio istituzionale della ricerca (Alma Mater Studiorum Universit\u00e0 di Bologna)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I4210117483","host_organization_name":"Istituto di Ematologia di Bologna","host_organization_lineage":["https://openalex.org/I4210117483"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"info:eu-repo/semantics/article"}],"best_oa_location":{"id":"doi:10.1016/j.jbi.2025.104842","is_oa":true,"landing_page_url":"https://doi.org/10.1016/j.jbi.2025.104842","pdf_url":null,"source":{"id":"https://openalex.org/S11622463","display_name":"Journal of Biomedical Informatics","issn_l":"1532-0464","issn":["1532-0464","1532-0480"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310320990","host_organization_name":"Elsevier BV","host_organization_lineage":["https://openalex.org/P4310320990"],"host_organization_lineage_names":["Elsevier BV"],"type":"journal"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Biomedical Informatics","raw_type":"journal-article"},"sustainable_development_goals":[],"awards":[],"funders":[{"id":"https://openalex.org/F4320320300","display_name":"European Commission","ror":"https://ror.org/00k4n6c32"},{"id":"https://openalex.org/F4320322278","display_name":"Istituto Superiore di Sanit\u00e0","ror":"https://ror.org/02hssy432"}],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":12,"referenced_works":["https://openalex.org/W2121745450","https://openalex.org/W2302501749","https://openalex.org/W2595123806","https://openalex.org/W2903839037","https://openalex.org/W2904503814","https://openalex.org/W3179831752","https://openalex.org/W4226173403","https://openalex.org/W4286497134","https://openalex.org/W4293109707","https://openalex.org/W4302307777","https://openalex.org/W4377096557","https://openalex.org/W6734970236"],"related_works":["https://openalex.org/W4283172224","https://openalex.org/W2992877076","https://openalex.org/W2563825355","https://openalex.org/W4382725623","https://openalex.org/W2888066950","https://openalex.org/W2889844859","https://openalex.org/W3217511980","https://openalex.org/W2806063704","https://openalex.org/W4384822944","https://openalex.org/W2912268755"],"abstract_inverted_index":{"OBJECTIVE:":[0],"Digitalization":[1],"is":[2,33,45,200],"a":[3,9,18,60,68,155,168,224],"pillar":[4],"of":[5,39,55,123,141,145,197,252],"reproducible":[6],"research":[7],"and":[8,21,52,79,94,152,154,231,245],"mandatory":[10],"requirement":[11],"for":[12,189,208,227],"Research":[13],"Infrastructures.":[14],"Biobanks":[15],"must":[16],"ensure":[17],"fully":[19],"engineered":[20],"digitalized":[22],"process":[23],"towards":[24],"data":[25,80,97,160,217,233],"FAIRification.":[26],"To":[27],"this":[28],"aim,":[29],"the":[30,36,49,101,112,121,138,146,185,195,206,237,250,253],"first":[31],"step":[32],"to":[34,90,187,214],"assess":[35],"current":[37],"level":[38],"digitalization":[40,196,213],"using":[41],"quantitative":[42],"metrics,":[43],"which":[44],"particularly":[46],"challenging":[47],"given":[48],"multi-faceted":[50],"regulatory":[51],"logistical":[53],"nature":[54],"biobanking.":[56],"METHODS:":[57],"We":[58,99],"developed":[59],"Biobanking":[61],"digital":[62,124],"assessment":[63,133],"maturity":[64],"framework,":[65],"BB4FAIR,":[66],"comprising":[67],"survey":[69,92,221],"divided":[70],"into":[71],"three":[72,139],"macro":[73],"areas,":[74],"namely":[75],"IT":[76,150,170,229],"infrastructure,":[77],"personnel,":[78,153],"annotation":[81,161,234],"richness.":[82],"Furthermore,":[83],"we":[84],"implemented":[85],"an":[86,175],"automated":[87],"R/Shiny":[88],"system":[89],"analyse":[91],"responses":[93],"generate":[95],"visual":[96],"representations.":[98],"piloted":[100],"tool":[102],"on":[103,241],"46":[104],"Italian":[105],"biobanks":[106,147,165],"that":[107,177],"in":[108,192,211,249],"2023":[109],"had":[110],"signed":[111],"partner":[113],"charter":[114],"with":[115],"BBMRI.":[116],"A":[117],"scoring":[118],"table":[119],"facilitated":[120],"tiering":[122],"maturity,":[125],"highlighting":[126],"areas":[127],"requiring":[128],"corrective":[129],"action.":[130],"RESULTS:":[131],"The":[132,220],"revealed":[134],"significant":[135],"heterogeneity":[136],"across":[137],"macro-areas":[140],"digitalization:":[142],"almost":[143],"half":[144],"feature":[148],"adequate":[149],"infrastructure":[151],"smaller":[156],"proportion":[157],"have":[158],"robust":[159],"capabilities.":[162],"Notably,":[163],"most":[164],"reported":[166],"having":[167],"Biobank":[169,212],"Management":[171],"System":[172],"(BIMS)":[173],"or":[174],"alternative":[176],"serves":[178],"their":[179],"purposes,":[180],"yet":[181],"they":[182],"still":[183],"collect":[184],"consent":[186,199],"biobanking":[188],"future":[190],"purposes":[191],"paper":[193],"format;":[194],"informed":[198],"generally":[201],"lacking.":[202],"These":[203],"findings":[204],"highlight":[205],"need":[207,226],"targeted":[209],"improvements":[210],"enhance":[215],"overall":[216],"FAIRness.":[218],"CONCLUSION:":[219],"results":[222],"underscore":[223],"pressing":[225],"enhanced":[228],"training":[230],"improved":[232],"resources":[235],"within":[236],"BBMRI.it.":[238],"Corrective":[239],"actions":[240],"many":[242],"lacking":[243],"features":[244],"desiderata":[246],"are":[247],"ongoing":[248],"context":[251],"#NextGenerationEu":[254],"\"Strengthening":[255],"BBMRI.it\"":[256],"project.":[257]},"counts_by_year":[{"year":2025,"cited_by_count":1}],"updated_date":"2026-05-05T08:41:31.759640","created_date":"2025-10-10T00:00:00"}