{"id":"https://openalex.org/W4399296428","doi":"https://doi.org/10.1007/s13222-024-00477-2","title":"Making Epidemiological and Clinical Studies FAIR Using the Example of COVID-19","display_name":"Making Epidemiological and Clinical Studies FAIR Using the Example of COVID-19","publication_year":2024,"publication_date":"2024-06-03","ids":{"openalex":"https://openalex.org/W4399296428","doi":"https://doi.org/10.1007/s13222-024-00477-2"},"language":"en","primary_location":{"id":"doi:10.1007/s13222-024-00477-2","is_oa":true,"landing_page_url":"https://doi.org/10.1007/s13222-024-00477-2","pdf_url":"https://link.springer.com/content/pdf/10.1007/s13222-024-00477-2.pdf","source":{"id":"https://openalex.org/S73012565","display_name":"Datenbank-Spektrum","issn_l":"1610-1995","issn":["1610-1995","1618-2162"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310319900","host_organization_name":"Springer Science+Business Media","host_organization_lineage":["https://openalex.org/P4310319900","https://openalex.org/P4310319965"],"host_organization_lineage_names":["Springer Science+Business Media","Springer Nature"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Datenbank-Spektrum","raw_type":"journal-article"},"type":"article","indexed_in":["crossref"],"open_access":{"is_oa":true,"oa_status":"hybrid","oa_url":"https://link.springer.com/content/pdf/10.1007/s13222-024-00477-2.pdf","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5033855594","display_name":"Iris Pigeot","orcid":"https://orcid.org/0000-0001-7483-0726"},"institutions":[{"id":"https://openalex.org/I180437899","display_name":"University of Bremen","ror":"https://ror.org/04ers2y35","country_code":"DE","type":"education","lineage":["https://openalex.org/I180437899"]},{"id":"https://openalex.org/I4210113759","display_name":"Leibniz Institute for Prevention Research and Epidemiology - BIPS","ror":"https://ror.org/02c22vc57","country_code":"DE","type":"facility","lineage":["https://openalex.org/I315704651","https://openalex.org/I4210113759"]}],"countries":["DE"],"is_corresponding":true,"raw_author_name":"Iris Pigeot","raw_affiliation_strings":["Leibniz Institute for Prevention Research and Epidemiology\u2014BIPS, Bremen, Germany","University Bremen, Department of Mathematics and Informatics, Bremen, Germany"],"raw_orcid":"https://orcid.org/0000-0001-7483-0726","affiliations":[{"raw_affiliation_string":"Leibniz Institute for Prevention Research and Epidemiology\u2014BIPS, Bremen, Germany","institution_ids":["https://openalex.org/I4210113759"]},{"raw_affiliation_string":"University Bremen, Department of Mathematics and Informatics, Bremen, Germany","institution_ids":["https://openalex.org/I180437899"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5030844189","display_name":"Wolfgang Ahrens","orcid":"https://orcid.org/0000-0003-3777-570X"},"institutions":[{"id":"https://openalex.org/I4210113759","display_name":"Leibniz Institute for Prevention Research and Epidemiology - BIPS","ror":"https://ror.org/02c22vc57","country_code":"DE","type":"facility","lineage":["https://openalex.org/I315704651","https://openalex.org/I4210113759"]}],"countries":["DE"],"is_corresponding":false,"raw_author_name":"Wolfgang Ahrens","raw_affiliation_strings":["Leibniz Institute for Prevention Research and Epidemiology\u2014BIPS, Bremen, Germany"],"raw_orcid":"https://orcid.org/0000-0003-3777-570X","affiliations":[{"raw_affiliation_string":"Leibniz Institute for Prevention Research and Epidemiology\u2014BIPS, Bremen, Germany","institution_ids":["https://openalex.org/I4210113759"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5077603419","display_name":"Johannes Darms","orcid":"https://orcid.org/0000-0001-5809-2276"},"institutions":[{"id":"https://openalex.org/I4210112663","display_name":"ZB MED - Information Centre for Life Sciences","ror":"https://ror.org/0259fwx54","country_code":"DE","type":"archive","lineage":["https://openalex.org/I4210112663"]}],"countries":["DE"],"is_corresponding":false,"raw_author_name":"Johannes Darms","raw_affiliation_strings":["German National Library of Medicine (ZB MED)\u2014Information Centre for Life Sciences, Bonn, Germany"],"raw_orcid":"https://orcid.org/0000-0001-5809-2276","affiliations":[{"raw_affiliation_string":"German National Library of Medicine (ZB MED)\u2014Information Centre for Life Sciences, Bonn, Germany","institution_ids":["https://openalex.org/I4210112663"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5077378114","display_name":"Juliane Fluck","orcid":"https://orcid.org/0000-0003-1379-7023"},"institutions":[{"id":"https://openalex.org/I135140700","display_name":"University of Bonn","ror":"https://ror.org/041nas322","country_code":"DE","type":"education","lineage":["https://openalex.org/I135140700"]},{"id":"https://openalex.org/I4210112663","display_name":"ZB MED - Information Centre for Life Sciences","ror":"https://ror.org/0259fwx54","country_code":"DE","type":"archive","lineage":["https://openalex.org/I4210112663"]}],"countries":["DE"],"is_corresponding":false,"raw_author_name":"Juliane Fluck","raw_affiliation_strings":["German National Library of Medicine (ZB MED)\u2014Information Centre for Life Sciences, Bonn, Germany","University of Bonn, Institute of Geodesy and Geoinformation, Bonn, Germany"],"raw_orcid":"https://orcid.org/0000-0003-1379-7023","affiliations":[{"raw_affiliation_string":"German National Library of Medicine (ZB MED)\u2014Information Centre for Life Sciences, Bonn, Germany","institution_ids":["https://openalex.org/I4210112663"]},{"raw_affiliation_string":"University of Bonn, Institute of Geodesy and Geoinformation, Bonn, Germany","institution_ids":["https://openalex.org/I135140700"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5028677591","display_name":"Martin Golebiewski","orcid":"https://orcid.org/0000-0002-8683-7084"},"institutions":[{"id":"https://openalex.org/I71030271","display_name":"Heidelberg Institute for Theoretical Studies","ror":"https://ror.org/01f7bcy98","country_code":"DE","type":"facility","lineage":["https://openalex.org/I71030271"]}],"countries":["DE"],"is_corresponding":false,"raw_author_name":"Martin Golebiewski","raw_affiliation_strings":["Heidelberg Institute for Theoretical Studies (HITS), Heidelberg, Germany"],"raw_orcid":"https://orcid.org/0000-0002-8683-7084","affiliations":[{"raw_affiliation_string":"Heidelberg Institute for Theoretical Studies (HITS), Heidelberg, Germany","institution_ids":["https://openalex.org/I71030271"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5047104707","display_name":"Horst K. Hahn","orcid":"https://orcid.org/0000-0001-7512-5762"},"institutions":[{"id":"https://openalex.org/I180437899","display_name":"University of Bremen","ror":"https://ror.org/04ers2y35","country_code":"DE","type":"education","lineage":["https://openalex.org/I180437899"]},{"id":"https://openalex.org/I4210137873","display_name":"Fraunhofer Institute for Digital Medicine","ror":"https://ror.org/04farme71","country_code":"DE","type":"facility","lineage":["https://openalex.org/I4210137873","https://openalex.org/I4923324"]}],"countries":["DE"],"is_corresponding":false,"raw_author_name":"Horst K. Hahn","raw_affiliation_strings":["Fraunhofer Institute for Digital Medicine MEVIS, Bremen, Germany","University Bremen, Department of Mathematics and Informatics, Bremen, Germany"],"raw_orcid":"https://orcid.org/0000-0001-7512-5762","affiliations":[{"raw_affiliation_string":"Fraunhofer Institute for Digital Medicine MEVIS, Bremen, Germany","institution_ids":["https://openalex.org/I4210137873"]},{"raw_affiliation_string":"University Bremen, Department of Mathematics and Informatics, Bremen, Germany","institution_ids":["https://openalex.org/I180437899"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5103099113","display_name":"Xiaoming Hu","orcid":"https://orcid.org/0000-0002-8318-3222"},"institutions":[{"id":"https://openalex.org/I71030271","display_name":"Heidelberg Institute for Theoretical Studies","ror":"https://ror.org/01f7bcy98","country_code":"DE","type":"facility","lineage":["https://openalex.org/I71030271"]}],"countries":["DE"],"is_corresponding":false,"raw_author_name":"Xiaoming Hu","raw_affiliation_strings":["Heidelberg Institute for Theoretical Studies (HITS), Heidelberg, Germany"],"raw_orcid":"https://orcid.org/0000-0002-8318-3222","affiliations":[{"raw_affiliation_string":"Heidelberg Institute for Theoretical Studies (HITS), Heidelberg, Germany","institution_ids":["https://openalex.org/I71030271"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5039111160","display_name":"Timm Intemann","orcid":"https://orcid.org/0000-0001-7836-3643"},"institutions":[{"id":"https://openalex.org/I4210113759","display_name":"Leibniz Institute for Prevention Research and Epidemiology - BIPS","ror":"https://ror.org/02c22vc57","country_code":"DE","type":"facility","lineage":["https://openalex.org/I315704651","https://openalex.org/I4210113759"]}],"countries":["DE"],"is_corresponding":false,"raw_author_name":"Timm Intemann","raw_affiliation_strings":["Leibniz Institute for Prevention Research and Epidemiology\u2014BIPS, Bremen, Germany"],"raw_orcid":"https://orcid.org/0000-0001-7836-3643","affiliations":[{"raw_affiliation_string":"Leibniz Institute for Prevention Research and Epidemiology\u2014BIPS, Bremen, Germany","institution_ids":["https://openalex.org/I4210113759"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5070342532","display_name":"Elisa Kasbohm","orcid":"https://orcid.org/0000-0001-5261-538X"},"institutions":[{"id":"https://openalex.org/I2799318839","display_name":"Universit\u00e4tsmedizin Greifswald","ror":"https://ror.org/025vngs54","country_code":"DE","type":"healthcare","lineage":["https://openalex.org/I2799318839"]}],"countries":["DE"],"is_corresponding":false,"raw_author_name":"Elisa Kasbohm","raw_affiliation_strings":["Greifswald University Medicine, Institute for Community Medicine, Greifswald, Germany"],"raw_orcid":"https://orcid.org/0000-0001-5261-538X","affiliations":[{"raw_affiliation_string":"Greifswald University Medicine, Institute for Community Medicine, Greifswald, Germany","institution_ids":["https://openalex.org/I2799318839"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5018641933","display_name":"Toralf Kirsten","orcid":"https://orcid.org/0000-0001-7117-4268"},"institutions":[{"id":"https://openalex.org/I926574661","display_name":"Leipzig University","ror":"https://ror.org/03s7gtk40","country_code":"DE","type":"education","lineage":["https://openalex.org/I926574661"]}],"countries":["DE"],"is_corresponding":false,"raw_author_name":"Toralf Kirsten","raw_affiliation_strings":["University of Leipzig, Medical Center, Institute for Medical Data Science, Leipzig, Germany"],"raw_orcid":"https://orcid.org/0000-0001-7117-4268","affiliations":[{"raw_affiliation_string":"University of Leipzig, Medical Center, Institute for Medical Data Science, Leipzig, Germany","institution_ids":["https://openalex.org/I926574661"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5062368516","display_name":"Sebastian Klammt","orcid":"https://orcid.org/0000-0001-7852-4769"},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Sebastian Klammt","raw_affiliation_strings":["Coordinating Centers for Clinical Trials (KKS)\u2014KKS-Network e.\u202fV, Berlin, Germany"],"raw_orcid":"https://orcid.org/0000-0001-7852-4769","affiliations":[{"raw_affiliation_string":"Coordinating Centers for Clinical Trials (KKS)\u2014KKS-Network e.\u202fV, Berlin, Germany","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5090859897","display_name":"Sophie Anne In\u00e8s Klopfenstein","orcid":"https://orcid.org/0000-0002-8470-2258"},"institutions":[{"id":"https://openalex.org/I4210139777","display_name":"Berlin Institute of Health at Charit\u00e9 - Universit\u00e4tsmedizin Berlin","ror":"https://ror.org/0493xsw21","country_code":"DE","type":"facility","lineage":["https://openalex.org/I4210139777","https://openalex.org/I7877124"]}],"countries":["DE"],"is_corresponding":false,"raw_author_name":"Sophie Anne Ines Klopfenstein","raw_affiliation_strings":["Berlin Institute of Health at Charit\u00e9\u2014Universit\u00e4tsmedizin Berlin, Core Unit eHealth and Interoperability, Berlin, Germany"],"raw_orcid":"https://orcid.org/0000-0002-8470-2258","affiliations":[{"raw_affiliation_string":"Berlin Institute of Health at Charit\u00e9\u2014Universit\u00e4tsmedizin Berlin, Core Unit eHealth and Interoperability, Berlin, Germany","institution_ids":["https://openalex.org/I4210139777"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5047790675","display_name":"Bianca Lassen\u2010Schmidt","orcid":"https://orcid.org/0000-0001-7888-9928"},"institutions":[{"id":"https://openalex.org/I4210137873","display_name":"Fraunhofer Institute for Digital Medicine","ror":"https://ror.org/04farme71","country_code":"DE","type":"facility","lineage":["https://openalex.org/I4210137873","https://openalex.org/I4923324"]}],"countries":["DE"],"is_corresponding":false,"raw_author_name":"Bianca Lassen-Schmidt","raw_affiliation_strings":["Fraunhofer Institute for Digital Medicine MEVIS, Bremen, Germany"],"raw_orcid":"https://orcid.org/0000-0001-7888-9928","affiliations":[{"raw_affiliation_string":"Fraunhofer Institute for Digital Medicine MEVIS, Bremen, Germany","institution_ids":["https://openalex.org/I4210137873"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5019422085","display_name":"Manuela Peters","orcid":"https://orcid.org/0000-0001-6012-1654"},"institutions":[{"id":"https://openalex.org/I4210113759","display_name":"Leibniz Institute for Prevention Research and Epidemiology - BIPS","ror":"https://ror.org/02c22vc57","country_code":"DE","type":"facility","lineage":["https://openalex.org/I315704651","https://openalex.org/I4210113759"]}],"countries":["DE"],"is_corresponding":false,"raw_author_name":"Manuela Peters","raw_affiliation_strings":["Leibniz Institute for Prevention Research and Epidemiology\u2014BIPS, Bremen, Germany"],"raw_orcid":"https://orcid.org/0000-0001-6012-1654","affiliations":[{"raw_affiliation_string":"Leibniz Institute for Prevention Research and Epidemiology\u2014BIPS, Bremen, Germany","institution_ids":["https://openalex.org/I4210113759"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5013507281","display_name":"Ulrich Sax","orcid":"https://orcid.org/0000-0002-8188-3495"},"institutions":[{"id":"https://openalex.org/I4210116730","display_name":"Universit\u00e4tsmedizin G\u00f6ttingen","ror":"https://ror.org/021ft0n22","country_code":"DE","type":"healthcare","lineage":["https://openalex.org/I4210116730"]}],"countries":["DE"],"is_corresponding":false,"raw_author_name":"Ulrich Sax","raw_affiliation_strings":["University Medical Center G\u00f6ttingen, Department of Medical Informatics, G\u00f6ttingen, Germany"],"raw_orcid":"https://orcid.org/0000-0002-8188-3495","affiliations":[{"raw_affiliation_string":"University Medical Center G\u00f6ttingen, Department of Medical Informatics, G\u00f6ttingen, Germany","institution_ids":["https://openalex.org/I4210116730"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5103188993","display_name":"Dagmar Waltemath","orcid":"https://orcid.org/0000-0002-5886-5563"},"institutions":[{"id":"https://openalex.org/I2799318839","display_name":"Universit\u00e4tsmedizin Greifswald","ror":"https://ror.org/025vngs54","country_code":"DE","type":"healthcare","lineage":["https://openalex.org/I2799318839"]}],"countries":["DE"],"is_corresponding":false,"raw_author_name":"Dagmar Waltemath","raw_affiliation_strings":["Greifswald University Medicine, Department of Medical Informatics, Greifswald, Germany"],"raw_orcid":"https://orcid.org/0000-0002-5886-5563","affiliations":[{"raw_affiliation_string":"Greifswald University Medicine, Department of Medical Informatics, Greifswald, Germany","institution_ids":["https://openalex.org/I2799318839"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5029358528","display_name":"Carsten Oliver Schmidt","orcid":"https://orcid.org/0000-0001-5266-9396"},"institutions":[{"id":"https://openalex.org/I2799318839","display_name":"Universit\u00e4tsmedizin Greifswald","ror":"https://ror.org/025vngs54","country_code":"DE","type":"healthcare","lineage":["https://openalex.org/I2799318839"]}],"countries":["DE"],"is_corresponding":false,"raw_author_name":"Carsten Oliver Schmidt","raw_affiliation_strings":["Greifswald University Medicine, Institute for Community Medicine, Greifswald, Germany"],"raw_orcid":"https://orcid.org/0000-0001-5266-9396","affiliations":[{"raw_affiliation_string":"Greifswald University Medicine, Institute for Community Medicine, Greifswald, Germany","institution_ids":["https://openalex.org/I2799318839"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":17,"corresponding_author_ids":["https://openalex.org/A5033855594"],"corresponding_institution_ids":["https://openalex.org/I180437899","https://openalex.org/I4210113759"],"apc_list":{"value":2380,"currency":"EUR","value_usd":2890},"apc_paid":{"value":2380,"currency":"EUR","value_usd":2890},"fwci":5.4369,"has_fulltext":true,"cited_by_count":8,"citation_normalized_percentile":{"value":0.95767638,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":90,"max":99},"biblio":{"volume":"24","issue":"2","first_page":"117","last_page":"128"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11937","display_name":"Research Data Management Practices","score":0.991599977016449,"subfield":{"id":"https://openalex.org/subfields/1710","display_name":"Information Systems"},"field":{"id":"https://openalex.org/fields/17","display_name":"Computer Science"},"domain":{"id":"https://openalex.org/domains/3","display_name":"Physical Sciences"}},"topics":[{"id":"https://openalex.org/T11937","display_name":"Research Data Management Practices","score":0.991599977016449,"subfield":{"id":"https://openalex.org/subfields/1710","display_name":"Information Systems"},"field":{"id":"https://openalex.org/fields/17","display_name":"Computer Science"},"domain":{"id":"https://openalex.org/domains/3","display_name":"Physical Sciences"}},{"id":"https://openalex.org/T11819","display_name":"Data-Driven Disease Surveillance","score":0.987500011920929,"subfield":{"id":"https://openalex.org/subfields/2713","display_name":"Epidemiology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11986","display_name":"Scientific Computing and Data Management","score":0.9793999791145325,"subfield":{"id":"https://openalex.org/subfields/1802","display_name":"Information Systems and Management"},"field":{"id":"https://openalex.org/fields/18","display_name":"Decision Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/public-health","display_name":"Public health","score":0.6152294278144836},{"id":"https://openalex.org/keywords/task","display_name":"Task (project management)","score":0.5764265060424805},{"id":"https://openalex.org/keywords/interoperability","display_name":"Interoperability","score":0.5433533787727356},{"id":"https://openalex.org/keywords/german","display_name":"German","score":0.5229433178901672},{"id":"https://openalex.org/keywords/public-relations","display_name":"Public relations","score":0.4884254038333893},{"id":"https://openalex.org/keywords/pandemic","display_name":"Pandemic","score":0.4633081257343292},{"id":"https://openalex.org/keywords/data-science","display_name":"Data science","score":0.4595246911048889},{"id":"https://openalex.org/keywords/work","display_name":"Work (physics)","score":0.42110562324523926},{"id":"https://openalex.org/keywords/workflow","display_name":"Workflow","score":0.4105977416038513},{"id":"https://openalex.org/keywords/coronavirus-disease-2019","display_name":"Coronavirus disease 2019 (COVID-19)","score":0.38406604528427124},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.3630937933921814},{"id":"https://openalex.org/keywords/political-science","display_name":"Political science","score":0.30619996786117554},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.297762393951416},{"id":"https://openalex.org/keywords/world-wide-web","display_name":"World Wide Web","score":0.15108028054237366},{"id":"https://openalex.org/keywords/engineering","display_name":"Engineering","score":0.13904324173927307},{"id":"https://openalex.org/keywords/geography","display_name":"Geography","score":0.13133427500724792},{"id":"https://openalex.org/keywords/disease","display_name":"Disease","score":0.12507978081703186},{"id":"https://openalex.org/keywords/infectious-disease","display_name":"Infectious disease (medical specialty)","score":0.11560171842575073},{"id":"https://openalex.org/keywords/nursing","display_name":"Nursing","score":0.09805044531822205}],"concepts":[{"id":"https://openalex.org/C138816342","wikidata":"https://www.wikidata.org/wiki/Q189603","display_name":"Public health","level":2,"score":0.6152294278144836},{"id":"https://openalex.org/C2780451532","wikidata":"https://www.wikidata.org/wiki/Q759676","display_name":"Task (project management)","level":2,"score":0.5764265060424805},{"id":"https://openalex.org/C20136886","wikidata":"https://www.wikidata.org/wiki/Q749647","display_name":"Interoperability","level":2,"score":0.5433533787727356},{"id":"https://openalex.org/C154775046","wikidata":"https://www.wikidata.org/wiki/Q188","display_name":"German","level":2,"score":0.5229433178901672},{"id":"https://openalex.org/C39549134","wikidata":"https://www.wikidata.org/wiki/Q133080","display_name":"Public relations","level":1,"score":0.4884254038333893},{"id":"https://openalex.org/C89623803","wikidata":"https://www.wikidata.org/wiki/Q12184","display_name":"Pandemic","level":5,"score":0.4633081257343292},{"id":"https://openalex.org/C2522767166","wikidata":"https://www.wikidata.org/wiki/Q2374463","display_name":"Data science","level":1,"score":0.4595246911048889},{"id":"https://openalex.org/C18762648","wikidata":"https://www.wikidata.org/wiki/Q42213","display_name":"Work (physics)","level":2,"score":0.42110562324523926},{"id":"https://openalex.org/C177212765","wikidata":"https://www.wikidata.org/wiki/Q627335","display_name":"Workflow","level":2,"score":0.4105977416038513},{"id":"https://openalex.org/C3008058167","wikidata":"https://www.wikidata.org/wiki/Q84263196","display_name":"Coronavirus disease 2019 (COVID-19)","level":4,"score":0.38406604528427124},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.3630937933921814},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.30619996786117554},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.297762393951416},{"id":"https://openalex.org/C136764020","wikidata":"https://www.wikidata.org/wiki/Q466","display_name":"World Wide Web","level":1,"score":0.15108028054237366},{"id":"https://openalex.org/C127413603","wikidata":"https://www.wikidata.org/wiki/Q11023","display_name":"Engineering","level":0,"score":0.13904324173927307},{"id":"https://openalex.org/C205649164","wikidata":"https://www.wikidata.org/wiki/Q1071","display_name":"Geography","level":0,"score":0.13133427500724792},{"id":"https://openalex.org/C2779134260","wikidata":"https://www.wikidata.org/wiki/Q12136","display_name":"Disease","level":2,"score":0.12507978081703186},{"id":"https://openalex.org/C524204448","wikidata":"https://www.wikidata.org/wiki/Q788926","display_name":"Infectious disease (medical specialty)","level":3,"score":0.11560171842575073},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.09805044531822205},{"id":"https://openalex.org/C201995342","wikidata":"https://www.wikidata.org/wiki/Q682496","display_name":"Systems engineering","level":1,"score":0.0},{"id":"https://openalex.org/C142724271","wikidata":"https://www.wikidata.org/wiki/Q7208","display_name":"Pathology","level":1,"score":0.0},{"id":"https://openalex.org/C78519656","wikidata":"https://www.wikidata.org/wiki/Q101333","display_name":"Mechanical engineering","level":1,"score":0.0},{"id":"https://openalex.org/C166957645","wikidata":"https://www.wikidata.org/wiki/Q23498","display_name":"Archaeology","level":1,"score":0.0},{"id":"https://openalex.org/C77088390","wikidata":"https://www.wikidata.org/wiki/Q8513","display_name":"Database","level":1,"score":0.0}],"mesh":[],"locations_count":3,"locations":[{"id":"doi:10.1007/s13222-024-00477-2","is_oa":true,"landing_page_url":"https://doi.org/10.1007/s13222-024-00477-2","pdf_url":"https://link.springer.com/content/pdf/10.1007/s13222-024-00477-2.pdf","source":{"id":"https://openalex.org/S73012565","display_name":"Datenbank-Spektrum","issn_l":"1610-1995","issn":["1610-1995","1618-2162"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310319900","host_organization_name":"Springer Science+Business Media","host_organization_lineage":["https://openalex.org/P4310319900","https://openalex.org/P4310319965"],"host_organization_lineage_names":["Springer Science+Business Media","Springer Nature"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Datenbank-Spektrum","raw_type":"journal-article"},{"id":"pmh:oai:frl.publisso.de:frl:6489499","is_oa":true,"landing_page_url":"https://repository.publisso.de/resource/frl:6489499","pdf_url":"https://repository.publisso.de/resource/frl:6489500/data","source":{"id":"https://openalex.org/S4377196269","display_name":"PUBLISSO (German National Library of Medicine)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I4210112663","host_organization_name":"ZB MED - Information Centre for Life Sciences","host_organization_lineage":["https://openalex.org/I4210112663"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"http://lobid.org/resources/990143035970206441#!, 24(2):117-128","raw_type":"Zeitschriftenartikel"},{"id":"pmh:oai:publications.goettingen-research-online.de:2/161452","is_oa":true,"landing_page_url":"https://resolver.sub.uni-goettingen.de/purl?gro-2/154859","pdf_url":null,"source":{"id":"https://openalex.org/S4306401634","display_name":"GoeScholar  The Publication Server of the Georg-August-Universit\u00e4t G\u00f6ttingen (Georg-August-Universit\u00e4t G\u00f6ttingen)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I4210122495","host_organization_name":"Asklepios Klinik St. Georg","host_organization_lineage":["https://openalex.org/I4210122495"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"yes"}],"best_oa_location":{"id":"doi:10.1007/s13222-024-00477-2","is_oa":true,"landing_page_url":"https://doi.org/10.1007/s13222-024-00477-2","pdf_url":"https://link.springer.com/content/pdf/10.1007/s13222-024-00477-2.pdf","source":{"id":"https://openalex.org/S73012565","display_name":"Datenbank-Spektrum","issn_l":"1610-1995","issn":["1610-1995","1618-2162"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310319900","host_organization_name":"Springer Science+Business Media","host_organization_lineage":["https://openalex.org/P4310319900","https://openalex.org/P4310319965"],"host_organization_lineage_names":["Springer Science+Business Media","Springer Nature"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Datenbank-Spektrum","raw_type":"journal-article"},"sustainable_development_goals":[],"awards":[{"id":"https://openalex.org/G1940979405","display_name":null,"funder_award_id":"SCHM 2744/9-1","funder_id":"https://openalex.org/F4320320879","funder_display_name":"Deutsche Forschungsgemeinschaft"},{"id":"https://openalex.org/G1944072801","display_name":"NFDI4Health \u2013 Task Force COVID19: Integration und Harmonisierung von Forschungsanstrengungen zum besseren Verst\u00e4ndnis von COVID19 und seinen Folgen","funder_award_id":"451265285","funder_id":"https://openalex.org/F4320320879","funder_display_name":"Deutsche Forschungsgemeinschaft"},{"id":"https://openalex.org/G270736745","display_name":null,"funder_award_id":"SA 1009/8-1","funder_id":"https://openalex.org/F4320320879","funder_display_name":"Deutsche Forschungsgemeinschaft"},{"id":"https://openalex.org/G3226517789","display_name":null,"funder_award_id":"FL 398/2-1","funder_id":"https://openalex.org/F4320320879","funder_display_name":"Deutsche Forschungsgemeinschaft"},{"id":"https://openalex.org/G3332328881","display_name":null,"funder_award_id":"MU 3099/5-1","funder_id":"https://openalex.org/F4320320879","funder_display_name":"Deutsche Forschungsgemeinschaft"},{"id":"https://openalex.org/G5570549085","display_name":null,"funder_award_id":"LO 342/17-1","funder_id":"https://openalex.org/F4320320879","funder_display_name":"Deutsche Forschungsgemeinschaft"},{"id":"https://openalex.org/G5963063492","display_name":null,"funder_award_id":"HA 5611/9-1","funder_id":"https://openalex.org/F4320320879","funder_display_name":"Deutsche Forschungsgemeinschaft"},{"id":"https://openalex.org/G6273473896","display_name":null,"funder_award_id":"GR 4686/3-1","funder_id":"https://openalex.org/F4320320879","funder_display_name":"Deutsche Forschungsgemeinschaft"},{"id":"https://openalex.org/G7089016754","display_name":null,"funder_award_id":"KL 3409/1-1","funder_id":"https://openalex.org/F4320320879","funder_display_name":"Deutsche Forschungsgemeinschaft"},{"id":"https://openalex.org/G7655486867","display_name":"NFDI4Health \u2013 Nationale Forschungsdateninfrastruktur f\u00fcr personenbezogene Gesundheitsdaten","funder_award_id":"442326535","funder_id":"https://openalex.org/F4320320879","funder_display_name":"Deutsche Forschungsgemeinschaft"},{"id":"https://openalex.org/G7983335750","display_name":null,"funder_award_id":"TH 2503/1-1","funder_id":"https://openalex.org/F4320320879","funder_display_name":"Deutsche Forschungsgemeinschaft"},{"id":"https://openalex.org/G8315331433","display_name":null,"funder_award_id":"3409/1-1","funder_id":"https://openalex.org/F4320320879","funder_display_name":"Deutsche Forschungsgemeinschaft"},{"id":"https://openalex.org/G8819040419","display_name":null,"funder_award_id":"PI 345/17-1","funder_id":"https://openalex.org/F4320320879","funder_display_name":"Deutsche Forschungsgemeinschaft"}],"funders":[{"id":"https://openalex.org/F4320320879","display_name":"Deutsche Forschungsgemeinschaft","ror":"https://ror.org/018mejw64"},{"id":"https://openalex.org/F4320324316","display_name":"Klaus Tschira Stiftung","ror":"https://ror.org/052jep661"}],"has_content":{"pdf":true,"grobid_xml":false},"content_urls":{"pdf":"https://content.openalex.org/works/W4399296428.pdf"},"referenced_works_count":27,"referenced_works":["https://openalex.org/W1572313459","https://openalex.org/W2093274439","https://openalex.org/W2302501749","https://openalex.org/W2417519983","https://openalex.org/W2751398136","https://openalex.org/W2883849461","https://openalex.org/W2944434778","https://openalex.org/W3113069995","https://openalex.org/W3113352959","https://openalex.org/W3160028463","https://openalex.org/W3164742453","https://openalex.org/W3165450499","https://openalex.org/W4214687994","https://openalex.org/W4281481986","https://openalex.org/W4285315819","https://openalex.org/W4288086738","https://openalex.org/W4293235292","https://openalex.org/W4293567583","https://openalex.org/W4321643651","https://openalex.org/W4375840928","https://openalex.org/W4377094837","https://openalex.org/W4386115598","https://openalex.org/W4386744561","https://openalex.org/W4389982375","https://openalex.org/W4390153996","https://openalex.org/W6910174029","https://openalex.org/W6925014139"],"related_works":["https://openalex.org/W2315527029","https://openalex.org/W2065387230","https://openalex.org/W2323937687","https://openalex.org/W2093262417","https://openalex.org/W648995381","https://openalex.org/W3033791384","https://openalex.org/W2141885522","https://openalex.org/W2776312268","https://openalex.org/W4246315097","https://openalex.org/W346029495"],"abstract_inverted_index":{"Abstract":[0],"FAIRification":[1,110],"of":[2,7,28,53,79,111,182,206],"personal":[3],"health":[4,12,27,51,95,149,190],"data":[5],"is":[6,55,71],"utmost":[8],"importance":[9],"to":[10,24,57,62,107,125,177,201],"improve":[11,202],"research":[13,48,150,185],"and":[14,46,65,88,96,134,156,184,191],"political":[15],"as":[16,18,42,84,86],"well":[17,85],"medical":[19,97],"decision-making,":[20],"which":[21],"ultimately":[22],"contributes":[23],"a":[25,76,179],"better":[26,77],"the":[29,33,50,72,80,100,109,118,144,152,165,197,203],"general":[30],"population.":[31],"Despite":[32],"many":[34],"advances":[35],"in":[36,132,187],"information":[37],"technology,":[38],"several":[39],"obstacles":[40],"such":[41],"interoperability":[43],"problems":[44],"remain":[45],"relevant":[47],"on":[49,143],"topic":[52],"interest":[54],"likely":[56],"be":[58],"missed":[59],"out":[60],"due":[61],"time-consuming":[63],"search":[64],"access":[66],"processes.":[67],"A":[68],"recent":[69],"example":[70],"COVID-19":[73,104,113,137,155],"pandemic,":[74],"where":[75],"understanding":[78],"virus\u2019":[81],"transmission":[82],"dynamics":[83],"preventive":[87],"therapeutic":[89],"options":[90],"would":[91],"have":[92,122],"improved":[93],"public":[94,189],"decision-making.":[98],"Consequently,":[99],"NFDI4Health":[101],"Task":[102,153,198],"Force":[103,154,199],"was":[105,161],"established":[106],"foster":[108],"German":[112,136,166],"studies.":[114],"This":[115],"paper":[116],"describes":[117],"various":[119],"steps":[120],"that":[121],"been":[123],"taken":[124],"create":[126],"low":[127],"barrier":[128],"workflows":[129],"for":[130,147,172],"scientists":[131],"finding":[133],"accessing":[135],"research.":[138,193],"It":[139],"provides":[140],"an":[141],"overview":[142],"building":[145],"blocks":[146],"FAIR":[148],"within":[151],"how":[157],"this":[158],"initial":[159],"work":[160],"subsequently":[162],"expanded":[163],"by":[164],"consortium":[167],"National":[168],"Research":[169],"Data":[170,175],"Infrastructure":[171],"Personal":[173],"Health":[174],"(NFDI4Health)":[176],"cover":[178],"wider":[180],"range":[181],"studies":[183],"areas":[186],"epidemiological,":[188],"clinical":[192],"Lessons":[194],"learned":[195],"from":[196],"helped":[200],"respective":[204],"tasks":[205],"NFDI4Health.":[207]},"counts_by_year":[{"year":2026,"cited_by_count":1},{"year":2025,"cited_by_count":6},{"year":2024,"cited_by_count":1}],"updated_date":"2026-06-22T08:00:12.763002","created_date":"2025-10-10T00:00:00"}