{"id":"https://openalex.org/W7154994268","doi":"https://doi.org/10.1007/s10916-026-02385-2","title":"Patient-Initiated Permanent Deletion of Their Electronic Health Record Data: implications for Artificial Intelligence and Big Data in Healthcare","display_name":"Patient-Initiated Permanent Deletion of Their Electronic Health Record Data: implications for Artificial Intelligence and Big Data in Healthcare","publication_year":2026,"publication_date":"2026-04-21","ids":{"openalex":"https://openalex.org/W7154994268","doi":"https://doi.org/10.1007/s10916-026-02385-2","pmid":"https://pubmed.ncbi.nlm.nih.gov/42012746"},"language":"en","primary_location":{"id":"doi:10.1007/s10916-026-02385-2","is_oa":false,"landing_page_url":"https://doi.org/10.1007/s10916-026-02385-2","pdf_url":null,"source":{"id":"https://openalex.org/S37151855","display_name":"Journal of Medical Systems","issn_l":"0148-5598","issn":["0148-5598","1573-689X"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310319900","host_organization_name":"Springer Science+Business Media","host_organization_lineage":["https://openalex.org/P4310319900","https://openalex.org/P4310319965"],"host_organization_lineage_names":["Springer Science+Business Media","Springer Nature"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Medical Systems","raw_type":"journal-article"},"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5046210046","display_name":"Clyde Matava","orcid":"https://orcid.org/0000-0002-9502-0981"},"institutions":[{"id":"https://openalex.org/I2801317318","display_name":"Hospital for Sick Children","ror":"https://ror.org/057q4rt57","country_code":"CA","type":"healthcare","lineage":["https://openalex.org/I2801317318"]},{"id":"https://openalex.org/I4210141030","display_name":"SickKids Foundation","ror":"https://ror.org/04374qe70","country_code":"CA","type":"funder","lineage":["https://openalex.org/I4210141030"]}],"countries":["CA"],"is_corresponding":true,"raw_author_name":"Clyde T. Matava","raw_affiliation_strings":["Department of Anesthesia and Pain Medicine, Hospital for Sick Children, Toronto, ON, M5G 1X8, Canada. clyde.matava@sickkids.ca"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Anesthesia and Pain Medicine, Hospital for Sick Children, Toronto, ON, M5G 1X8, Canada. clyde.matava@sickkids.ca","institution_ids":["https://openalex.org/I2801317318","https://openalex.org/I4210141030"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5117506014","display_name":"Yvonne Fahy","orcid":null},"institutions":[{"id":"https://openalex.org/I104546213","display_name":"National College of Ireland","ror":"https://ror.org/02qzs9336","country_code":"IE","type":"education","lineage":["https://openalex.org/I104546213"]}],"countries":["IE"],"is_corresponding":false,"raw_author_name":"Yvonne Fahy","raw_affiliation_strings":["College of Anaesthesiologists of Ireland, 22 Merrion Square North, Dublin, D02 X236, Ireland"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"College of Anaesthesiologists of Ireland, 22 Merrion Square North, Dublin, D02 X236, Ireland","institution_ids":["https://openalex.org/I104546213"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5088516740","display_name":"Asad Siddiqui","orcid":"https://orcid.org/0000-0001-7795-8231"},"institutions":[{"id":"https://openalex.org/I2801317318","display_name":"Hospital for Sick Children","ror":"https://ror.org/057q4rt57","country_code":"CA","type":"healthcare","lineage":["https://openalex.org/I2801317318"]}],"countries":["CA"],"is_corresponding":false,"raw_author_name":"Asad Siddiqui","raw_affiliation_strings":["Department of Anesthesia and Pain Medicine, Hospital for Sick Children, Toronto, ON, M5G 1X8, Canada"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Anesthesia and Pain Medicine, Hospital for Sick Children, Toronto, ON, M5G 1X8, Canada","institution_ids":["https://openalex.org/I2801317318"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5134075396","display_name":"Gregory Johnson","orcid":null},"institutions":[{"id":"https://openalex.org/I2801317318","display_name":"Hospital for Sick Children","ror":"https://ror.org/057q4rt57","country_code":"CA","type":"healthcare","lineage":["https://openalex.org/I2801317318"]}],"countries":["CA"],"is_corresponding":false,"raw_author_name":"Gregory Johnson","raw_affiliation_strings":["Department of Anesthesia and Pain Medicine, Hospital for Sick Children, Toronto, ON, M5G 1X8, Canada"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Anesthesia and Pain Medicine, Hospital for Sick Children, Toronto, ON, M5G 1X8, Canada","institution_ids":["https://openalex.org/I2801317318"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5134081908","display_name":"Melissa McCradden","orcid":null},"institutions":[{"id":"https://openalex.org/I2802355861","display_name":"Australian Institute of Business","ror":"https://ror.org/01wf5jq34","country_code":"AU","type":"education","lineage":["https://openalex.org/I2802355861"]}],"countries":["AU"],"is_corresponding":false,"raw_author_name":"Melissa McCradden","raw_affiliation_strings":["Australian Institute for Machine Learning (AIML), University of Adelaide, Kaurna Land 2.21A, AIML Building, Lot Fourteen, Cnr North Terrace & Frome Road, Adelaide, SA, 5000, Australia"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Australian Institute for Machine Learning (AIML), University of Adelaide, Kaurna Land 2.21A, AIML Building, Lot Fourteen, Cnr North Terrace & Frome Road, Adelaide, SA, 5000, Australia","institution_ids":["https://openalex.org/I2802355861"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5063011252","display_name":"Allan F. Simpao","orcid":"https://orcid.org/0000-0001-8871-2579"},"institutions":[{"id":"https://openalex.org/I1335321130","display_name":"Children's Hospital of Philadelphia","ror":"https://ror.org/01z7r7q48","country_code":"US","type":"funder","lineage":["https://openalex.org/I1335321130"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Allan F. Simpao","raw_affiliation_strings":["Department of Anesthesiology and Critical Care Medicine, Perelman School of Medicine at the University of Pennsylvania and the Children's Hospital of Philadelphia, Philadelphia, PA, USA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Anesthesiology and Critical Care Medicine, Perelman School of Medicine at the University of Pennsylvania and the Children's Hospital of Philadelphia, Philadelphia, PA, USA","institution_ids":["https://openalex.org/I1335321130"]}]}],"institutions":[],"countries_distinct_count":4,"institutions_distinct_count":6,"corresponding_author_ids":["https://openalex.org/A5046210046"],"corresponding_institution_ids":["https://openalex.org/I2801317318","https://openalex.org/I4210141030"],"apc_list":{"value":3390,"currency":"EUR","value_usd":4390},"apc_paid":null,"fwci":0.0,"has_fulltext":false,"cited_by_count":0,"citation_normalized_percentile":{"value":0.89808274,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":null,"biblio":{"volume":"50","issue":"1","first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11636","display_name":"Artificial Intelligence in Healthcare and Education","score":0.35530000925064087,"subfield":{"id":"https://openalex.org/subfields/2718","display_name":"Health Informatics"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T11636","display_name":"Artificial Intelligence in Healthcare and Education","score":0.35530000925064087,"subfield":{"id":"https://openalex.org/subfields/2718","display_name":"Health Informatics"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13702","display_name":"Machine Learning in Healthcare","score":0.11379999667406082,"subfield":{"id":"https://openalex.org/subfields/1702","display_name":"Artificial Intelligence"},"field":{"id":"https://openalex.org/fields/17","display_name":"Computer Science"},"domain":{"id":"https://openalex.org/domains/3","display_name":"Physical Sciences"}},{"id":"https://openalex.org/T10350","display_name":"Electronic Health Records Systems","score":0.09369999915361404,"subfield":{"id":"https://openalex.org/subfields/3605","display_name":"Health Information Management"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/big-data","display_name":"Big data","score":0.7932000160217285},{"id":"https://openalex.org/keywords/electronic-health-record","display_name":"Electronic health record","score":0.7361999750137329},{"id":"https://openalex.org/keywords/health-informatics","display_name":"Health informatics","score":0.7164000272750854},{"id":"https://openalex.org/keywords/health-care","display_name":"Health care","score":0.5465999841690063},{"id":"https://openalex.org/keywords/health-records","display_name":"Health records","score":0.5392000079154968},{"id":"https://openalex.org/keywords/patient-record","display_name":"Patient record","score":0.41760000586509705},{"id":"https://openalex.org/keywords/meaningful-use","display_name":"Meaningful use","score":0.35679998993873596},{"id":"https://openalex.org/keywords/informatics","display_name":"Informatics","score":0.3273000121116638}],"concepts":[{"id":"https://openalex.org/C75684735","wikidata":"https://www.wikidata.org/wiki/Q858810","display_name":"Big data","level":2,"score":0.7932000160217285},{"id":"https://openalex.org/C3020144179","wikidata":"https://www.wikidata.org/wiki/Q10871684","display_name":"Electronic health record","level":3,"score":0.7361999750137329},{"id":"https://openalex.org/C145642194","wikidata":"https://www.wikidata.org/wiki/Q870895","display_name":"Health informatics","level":3,"score":0.7164000272750854},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.5465999841690063},{"id":"https://openalex.org/C3019952477","wikidata":"https://www.wikidata.org/wiki/Q1324077","display_name":"Health records","level":3,"score":0.5392000079154968},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.5054000020027161},{"id":"https://openalex.org/C2522767166","wikidata":"https://www.wikidata.org/wiki/Q2374463","display_name":"Data science","level":1,"score":0.492900013923645},{"id":"https://openalex.org/C2993731853","wikidata":"https://www.wikidata.org/wiki/Q1324077","display_name":"Patient record","level":2,"score":0.41760000586509705},{"id":"https://openalex.org/C3019659195","wikidata":"https://www.wikidata.org/wiki/Q5690566","display_name":"Meaningful use","level":3,"score":0.35679998993873596},{"id":"https://openalex.org/C191630685","wikidata":"https://www.wikidata.org/wiki/Q4027615","display_name":"Informatics","level":2,"score":0.3273000121116638},{"id":"https://openalex.org/C2988170871","wikidata":"https://www.wikidata.org/wiki/Q11000047","display_name":"Healthcare system","level":3,"score":0.3197000026702881},{"id":"https://openalex.org/C195910791","wikidata":"https://www.wikidata.org/wiki/Q1324077","display_name":"Medical record","level":2,"score":0.3124000132083893},{"id":"https://openalex.org/C3018060332","wikidata":"https://www.wikidata.org/wiki/Q10871684","display_name":"Electronic medical record","level":2,"score":0.3109000027179718},{"id":"https://openalex.org/C2776354556","wikidata":"https://www.wikidata.org/wiki/Q10910281","display_name":"Health information technology","level":3,"score":0.3102000057697296},{"id":"https://openalex.org/C108827166","wikidata":"https://www.wikidata.org/wiki/Q175975","display_name":"Internet privacy","level":1,"score":0.3034999966621399},{"id":"https://openalex.org/C3017977704","wikidata":"https://www.wikidata.org/wiki/Q18745135","display_name":"Health data","level":3,"score":0.30230000615119934},{"id":"https://openalex.org/C2779473830","wikidata":"https://www.wikidata.org/wiki/Q1540899","display_name":"MEDLINE","level":2,"score":0.299699991941452},{"id":"https://openalex.org/C154945302","wikidata":"https://www.wikidata.org/wiki/Q11660","display_name":"Artificial intelligence","level":1,"score":0.29589998722076416},{"id":"https://openalex.org/C202645933","wikidata":"https://www.wikidata.org/wiki/Q4930","display_name":"eHealth","level":3,"score":0.2892000079154968},{"id":"https://openalex.org/C2989236134","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Patient care","level":2,"score":0.2856000065803528},{"id":"https://openalex.org/C136764020","wikidata":"https://www.wikidata.org/wiki/Q466","display_name":"World Wide Web","level":1,"score":0.2825999855995178},{"id":"https://openalex.org/C121017731","wikidata":"https://www.wikidata.org/wiki/Q11661","display_name":"Information technology","level":2,"score":0.2824999988079071},{"id":"https://openalex.org/C2987381348","wikidata":"https://www.wikidata.org/wiki/Q517656","display_name":"Electronic records","level":2,"score":0.25600001215934753}],"mesh":[],"locations_count":2,"locations":[{"id":"doi:10.1007/s10916-026-02385-2","is_oa":false,"landing_page_url":"https://doi.org/10.1007/s10916-026-02385-2","pdf_url":null,"source":{"id":"https://openalex.org/S37151855","display_name":"Journal of Medical Systems","issn_l":"0148-5598","issn":["0148-5598","1573-689X"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310319900","host_organization_name":"Springer Science+Business Media","host_organization_lineage":["https://openalex.org/P4310319900","https://openalex.org/P4310319965"],"host_organization_lineage_names":["Springer Science+Business Media","Springer Nature"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Medical Systems","raw_type":"journal-article"},{"id":"pmid:42012746","is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/42012746","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of medical systems","raw_type":null}],"best_oa_location":null,"sustainable_development_goals":[],"awards":[],"funders":[],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":21,"referenced_works":["https://openalex.org/W1978116440","https://openalex.org/W2032594557","https://openalex.org/W2037283500","https://openalex.org/W2099578445","https://openalex.org/W2139075905","https://openalex.org/W2277986107","https://openalex.org/W2343562430","https://openalex.org/W2581753189","https://openalex.org/W3155492943","https://openalex.org/W4205690261","https://openalex.org/W4367601255","https://openalex.org/W4394009485","https://openalex.org/W4405775248","https://openalex.org/W4408537788","https://openalex.org/W4409752444","https://openalex.org/W4410019347","https://openalex.org/W4410265564","https://openalex.org/W4411034393","https://openalex.org/W4412521550","https://openalex.org/W4414431917","https://openalex.org/W4417064628"],"related_works":[],"abstract_inverted_index":null,"counts_by_year":[],"updated_date":"2026-04-23T06:14:38.165362","created_date":"2026-04-21T00:00:00"}