{"id":"https://openalex.org/W2512439136","doi":"https://doi.org/10.1007/978-3-319-44805-3_1","title":"An Unclear Question: Who Owns Patient Information?","display_name":"An Unclear Question: Who Owns Patient Information?","publication_year":2016,"publication_date":"2016-01-01","ids":{"openalex":"https://openalex.org/W2512439136","doi":"https://doi.org/10.1007/978-3-319-44805-3_1","mag":"2512439136"},"language":"en","primary_location":{"id":"doi:10.1007/978-3-319-44805-3_1","is_oa":false,"landing_page_url":"https://doi.org/10.1007/978-3-319-44805-3_1","pdf_url":null,"source":{"id":"https://openalex.org/S4210185096","display_name":"IFIP advances in information and communication technology","issn_l":"1868-422X","issn":["1868-422X","1868-4238"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310319900","host_organization_name":"Springer Science+Business Media","host_organization_lineage":["https://openalex.org/P4310319900","https://openalex.org/P4310319965"],"host_organization_lineage_names":["Springer Science+Business Media","Springer Nature"],"type":"book series"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"IFIP Advances in Information and Communication Technology","raw_type":"book-chapter"},"type":"book-chapter","indexed_in":["crossref"],"open_access":{"is_oa":true,"oa_status":"gold","oa_url":"https://www.utupub.fi/bitstream/10024/192782/1/An%20Unclear%20Question.pdf","any_repository_has_fulltext":null},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5044251980","display_name":"Jani Koskinen","orcid":"https://orcid.org/0000-0001-8325-9277"},"institutions":[{"id":"https://openalex.org/I155660961","display_name":"University of Turku","ror":"https://ror.org/05vghhr25","country_code":"FI","type":"education","lineage":["https://openalex.org/I155660961"]}],"countries":["FI"],"is_corresponding":true,"raw_author_name":"Jani Koskinen","raw_affiliation_strings":["Information System Science, Turku School of Economics, University of Turku, Turku, Finland"],"affiliations":[{"raw_affiliation_string":"Information System Science, Turku School of Economics, University of Turku, Turku, Finland","institution_ids":["https://openalex.org/I155660961"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5000899437","display_name":"Kai K. Kimppa","orcid":"https://orcid.org/0000-0002-7622-7629"},"institutions":[{"id":"https://openalex.org/I155660961","display_name":"University of Turku","ror":"https://ror.org/05vghhr25","country_code":"FI","type":"education","lineage":["https://openalex.org/I155660961"]}],"countries":["FI"],"is_corresponding":false,"raw_author_name":"Kai K. Kimppa","raw_affiliation_strings":["Information System Science, Turku School of Economics, University of Turku, Turku, Finland"],"affiliations":[{"raw_affiliation_string":"Information System Science, Turku School of Economics, University of Turku, Turku, Finland","institution_ids":["https://openalex.org/I155660961"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":2,"corresponding_author_ids":["https://openalex.org/A5044251980"],"corresponding_institution_ids":["https://openalex.org/I155660961"],"apc_list":null,"apc_paid":null,"fwci":16.2614,"has_fulltext":true,"cited_by_count":7,"citation_normalized_percentile":{"value":0.98768599,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":89,"max":98},"biblio":{"volume":null,"issue":null,"first_page":"3","last_page":"13"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":0.9969000220298767,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":0.9969000220298767,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11639","display_name":"Mental Health and Patient Involvement","score":0.9958999752998352,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10827","display_name":"Patient-Provider Communication in Healthcare","score":0.9934999942779541,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/legislature","display_name":"Legislature","score":0.7275378704071045},{"id":"https://openalex.org/keywords/health-care","display_name":"Health care","score":0.6211572289466858},{"id":"https://openalex.org/keywords/healthcare-system","display_name":"Healthcare system","score":0.6147838830947876},{"id":"https://openalex.org/keywords/function","display_name":"Function (biology)","score":0.6032865047454834},{"id":"https://openalex.org/keywords/information-system","display_name":"Information system","score":0.5027382373809814},{"id":"https://openalex.org/keywords/business","display_name":"Business","score":0.37594762444496155},{"id":"https://openalex.org/keywords/public-relations","display_name":"Public relations","score":0.3481597304344177},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.3469640612602234},{"id":"https://openalex.org/keywords/political-science","display_name":"Political science","score":0.3262888789176941},{"id":"https://openalex.org/keywords/law","display_name":"Law","score":0.1671428680419922}],"concepts":[{"id":"https://openalex.org/C83009810","wikidata":"https://www.wikidata.org/wiki/Q11204","display_name":"Legislature","level":2,"score":0.7275378704071045},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.6211572289466858},{"id":"https://openalex.org/C2988170871","wikidata":"https://www.wikidata.org/wiki/Q11000047","display_name":"Healthcare system","level":3,"score":0.6147838830947876},{"id":"https://openalex.org/C14036430","wikidata":"https://www.wikidata.org/wiki/Q3736076","display_name":"Function (biology)","level":2,"score":0.6032865047454834},{"id":"https://openalex.org/C180198813","wikidata":"https://www.wikidata.org/wiki/Q121182","display_name":"Information system","level":2,"score":0.5027382373809814},{"id":"https://openalex.org/C144133560","wikidata":"https://www.wikidata.org/wiki/Q4830453","display_name":"Business","level":0,"score":0.37594762444496155},{"id":"https://openalex.org/C39549134","wikidata":"https://www.wikidata.org/wiki/Q133080","display_name":"Public relations","level":1,"score":0.3481597304344177},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.3469640612602234},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.3262888789176941},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.1671428680419922},{"id":"https://openalex.org/C78458016","wikidata":"https://www.wikidata.org/wiki/Q840400","display_name":"Evolutionary biology","level":1,"score":0.0},{"id":"https://openalex.org/C86803240","wikidata":"https://www.wikidata.org/wiki/Q420","display_name":"Biology","level":0,"score":0.0}],"mesh":[],"locations_count":3,"locations":[{"id":"doi:10.1007/978-3-319-44805-3_1","is_oa":false,"landing_page_url":"https://doi.org/10.1007/978-3-319-44805-3_1","pdf_url":null,"source":{"id":"https://openalex.org/S4210185096","display_name":"IFIP advances in information and communication technology","issn_l":"1868-422X","issn":["1868-422X","1868-4238"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310319900","host_organization_name":"Springer Science+Business Media","host_organization_lineage":["https://openalex.org/P4310319900","https://openalex.org/P4310319965"],"host_organization_lineage_names":["Springer Science+Business Media","Springer Nature"],"type":"book series"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"IFIP Advances in Information and Communication Technology","raw_type":"book-chapter"},{"id":"pmh:oai:www.utupub.fi:10024/192782","is_oa":true,"landing_page_url":"https://www.utupub.fi/handle/10024/192782","pdf_url":"https://www.utupub.fi/bitstream/10024/192782/1/An%20Unclear%20Question.pdf","source":null,"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":null},{"id":"pmh:oai:HAL:hal-01449438v1","is_oa":true,"landing_page_url":"https://inria.hal.science/hal-01449438","pdf_url":null,"source":null,"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"12th IFIP International Conference on Human Choice and Computers (HCC), Sep 2016, Salford, United Kingdom. pp.3-13, ⟨10.1007/978-3-319-44805-3_1⟩","raw_type":"Conference papers"}],"best_oa_location":{"id":"pmh:oai:www.utupub.fi:10024/192782","is_oa":true,"landing_page_url":"https://www.utupub.fi/handle/10024/192782","pdf_url":"https://www.utupub.fi/bitstream/10024/192782/1/An%20Unclear%20Question.pdf","source":null,"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":null},"sustainable_development_goals":[{"display_name":"Peace, Justice and strong institutions","score":0.4000000059604645,"id":"https://metadata.un.org/sdg/16"}],"awards":[],"funders":[],"has_content":{"pdf":true,"grobid_xml":true},"content_urls":{"pdf":"https://content.openalex.org/works/W2512439136.pdf","grobid_xml":"https://content.openalex.org/works/W2512439136.grobid-xml"},"referenced_works_count":28,"referenced_works":["https://openalex.org/W151713482","https://openalex.org/W1965481668","https://openalex.org/W1966693455","https://openalex.org/W2007720112","https://openalex.org/W2008251578","https://openalex.org/W2016939320","https://openalex.org/W2028770837","https://openalex.org/W2029921729","https://openalex.org/W2035497862","https://openalex.org/W2051826802","https://openalex.org/W2064092984","https://openalex.org/W2077885309","https://openalex.org/W2088264741","https://openalex.org/W2096868672","https://openalex.org/W2099177646","https://openalex.org/W2105098455","https://openalex.org/W2106618426","https://openalex.org/W2130491597","https://openalex.org/W2139715078","https://openalex.org/W2148269973","https://openalex.org/W2148712477","https://openalex.org/W2154874075","https://openalex.org/W2176287437","https://openalex.org/W2262888054","https://openalex.org/W2291172311","https://openalex.org/W2322071351","https://openalex.org/W3124060981","https://openalex.org/W3125601647"],"related_works":["https://openalex.org/W1159694101","https://openalex.org/W4312778074","https://openalex.org/W2797427871","https://openalex.org/W2323984853","https://openalex.org/W3024114128","https://openalex.org/W3214957520","https://openalex.org/W2932738180","https://openalex.org/W4380151695","https://openalex.org/W4309373223","https://openalex.org/W1965298590"],"abstract_inverted_index":{"Patient":[0],"information":[1,24,40,53],"systems":[2,12,25],"are":[3,20],"critical":[4,79],"instruments":[5],"in":[6,27,46,51,58,80],"modern":[7,10],"healthcare;":[8],"thus,":[9],"healthcare":[11,47],"cannot":[13],"function":[14],"properly":[15],"without":[16],"them.":[17],"While":[18],"there":[19,29],"countless":[21],"varieties":[22],"of":[23,85,110,113],"used":[26],"healthcare,":[28],"is":[30,78],"one":[31],"overarching":[32],"commonality":[33],"among":[34],"them":[35],"\u2013":[36],"they":[37],"all":[38],"contain":[39],"about":[41],"patients.":[42],"Different":[43],"groups":[44],"involved":[45],"have":[48],"an":[49,106],"interest":[50],"patients\u2019":[52],"for":[54],"different":[55],"reasons.":[56],"However,":[57],"many":[59],"countries,":[60],"it":[61,122],"remains":[62],"unclear":[63],"who":[64],"exactly":[65],"owns":[66],"the":[67,82,111,129],"data.":[68],"This":[69],"issue":[70],"thus":[71],"needs":[72],"to":[73,91,95],"be":[74,96,124],"resolved.":[75],"As":[76],"ethics":[77],"determining":[81],"justifiable":[83],"owner":[84],"patient":[86,114],"information,":[87],"any":[88],"legislative":[89],"solution":[90],"competing":[92],"interests":[93],"ought":[94],"ethically":[97,107],"well":[98],"justified.":[99],"In":[100],"this":[101],"paper,":[102],"we":[103],"argue":[104],"that":[105,121],"acceptable":[108],"formulation":[109],"ownership":[112],"data":[115],"has":[116],"already":[117],"been":[118],"suggested":[119],"and":[120],"can":[123],"further":[125],"justified":[126],"also":[127],"through":[128],"Kantian":[130],"tradition.":[131]},"counts_by_year":[{"year":2022,"cited_by_count":1},{"year":2019,"cited_by_count":4},{"year":2017,"cited_by_count":2}],"updated_date":"2026-03-20T23:20:44.827607","created_date":"2025-10-10T00:00:00"}