{"id":"https://openalex.org/W2406576954","doi":"https://doi.org/10.1007/978-3-319-23633-9_28","title":"Building on Principles: The Case for Comprehensive, Proportionate Governance of Data Access","display_name":"Building on Principles: The Case for Comprehensive, Proportionate Governance of Data Access","publication_year":2015,"publication_date":"2015-01-01","ids":{"openalex":"https://openalex.org/W2406576954","doi":"https://doi.org/10.1007/978-3-319-23633-9_28","mag":"2406576954"},"language":"en","primary_location":{"id":"doi:10.1007/978-3-319-23633-9_28","is_oa":false,"landing_page_url":"https://doi.org/10.1007/978-3-319-23633-9_28","pdf_url":null,"source":null,"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Medical Data Privacy Handbook","raw_type":"book-chapter"},"type":"book-chapter","indexed_in":["crossref"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5072134463","display_name":"Kimberlyn McGrail","orcid":"https://orcid.org/0000-0002-9349-1915"},"institutions":[{"id":"https://openalex.org/I141945490","display_name":"University of British Columbia","ror":"https://ror.org/03rmrcq20","country_code":"CA","type":"education","lineage":["https://openalex.org/I141945490"]}],"countries":["CA"],"is_corresponding":true,"raw_author_name":"Kimberlyn M. McGrail","raw_affiliation_strings":["Centre for Health Services and Policy Research, School of Population and Public Health, University of British Columbia, Vancouver, BC, Canada","Population Data BC, University of British Columbia, Vancouver, BC, Canada"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Centre for Health Services and Policy Research, School of Population and Public Health, University of British Columbia, Vancouver, BC, Canada","institution_ids":["https://openalex.org/I141945490"]},{"raw_affiliation_string":"Population Data BC, University of British Columbia, Vancouver, BC, Canada","institution_ids":["https://openalex.org/I141945490"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5018940193","display_name":"Kaitlyn Gutteridge","orcid":"https://orcid.org/0000-0001-8265-681X"},"institutions":[{"id":"https://openalex.org/I141945490","display_name":"University of British Columbia","ror":"https://ror.org/03rmrcq20","country_code":"CA","type":"education","lineage":["https://openalex.org/I141945490"]}],"countries":["CA"],"is_corresponding":false,"raw_author_name":"Kaitlyn Gutteridge","raw_affiliation_strings":["Population Data BC, University of British Columbia, Vancouver, BC, Canada"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Population Data BC, University of British Columbia, Vancouver, BC, Canada","institution_ids":["https://openalex.org/I141945490"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5042291232","display_name":"Nancy L. Meagher","orcid":null},"institutions":[{"id":"https://openalex.org/I141945490","display_name":"University of British Columbia","ror":"https://ror.org/03rmrcq20","country_code":"CA","type":"education","lineage":["https://openalex.org/I141945490"]}],"countries":["CA"],"is_corresponding":false,"raw_author_name":"Nancy L. Meagher","raw_affiliation_strings":["Population Data BC, University of British Columbia, Vancouver, BC, Canada"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Population Data BC, University of British Columbia, Vancouver, BC, Canada","institution_ids":["https://openalex.org/I141945490"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":1,"corresponding_author_ids":["https://openalex.org/A5072134463"],"corresponding_institution_ids":["https://openalex.org/I141945490"],"apc_list":null,"apc_paid":null,"fwci":2.7405,"has_fulltext":false,"cited_by_count":6,"citation_normalized_percentile":{"value":0.90847386,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":89,"max":96},"biblio":{"volume":null,"issue":null,"first_page":"737","last_page":"764"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":0.9993000030517578,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10582","display_name":"Ethics in Clinical Research","score":0.9993000030517578,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10764","display_name":"Privacy-Preserving Technologies in Data","score":0.9922999739646912,"subfield":{"id":"https://openalex.org/subfields/1702","display_name":"Artificial Intelligence"},"field":{"id":"https://openalex.org/fields/17","display_name":"Computer Science"},"domain":{"id":"https://openalex.org/domains/3","display_name":"Physical Sciences"}},{"id":"https://openalex.org/T10804","display_name":"Health Systems, Economic Evaluations, Quality of Life","score":0.9519000053405762,"subfield":{"id":"https://openalex.org/subfields/2002","display_name":"Economics and Econometrics"},"field":{"id":"https://openalex.org/fields/20","display_name":"Economics, Econometrics and Finance"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/corporate-governance","display_name":"Corporate governance","score":0.6499558091163635},{"id":"https://openalex.org/keywords/stakeholder","display_name":"Stakeholder","score":0.5543908476829529},{"id":"https://openalex.org/keywords/process","display_name":"Process (computing)","score":0.5332785248756409},{"id":"https://openalex.org/keywords/data-governance","display_name":"Data governance","score":0.5303726196289062},{"id":"https://openalex.org/keywords/identification","display_name":"Identification (biology)","score":0.482769638299942},{"id":"https://openalex.org/keywords/value","display_name":"Value (mathematics)","score":0.4744473695755005},{"id":"https://openalex.org/keywords/data-access","display_name":"Data access","score":0.46058931946754456},{"id":"https://openalex.org/keywords/business","display_name":"Business","score":0.4087182879447937},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.3992760479450226},{"id":"https://openalex.org/keywords/public-relations","display_name":"Public relations","score":0.3609517812728882},{"id":"https://openalex.org/keywords/knowledge-management","display_name":"Knowledge management","score":0.35345739126205444},{"id":"https://openalex.org/keywords/political-science","display_name":"Political science","score":0.351306289434433},{"id":"https://openalex.org/keywords/data-quality","display_name":"Data quality","score":0.20301753282546997},{"id":"https://openalex.org/keywords/marketing","display_name":"Marketing","score":0.12591102719306946}],"concepts":[{"id":"https://openalex.org/C39389867","wikidata":"https://www.wikidata.org/wiki/Q380767","display_name":"Corporate governance","level":2,"score":0.6499558091163635},{"id":"https://openalex.org/C201305675","wikidata":"https://www.wikidata.org/wiki/Q852998","display_name":"Stakeholder","level":2,"score":0.5543908476829529},{"id":"https://openalex.org/C98045186","wikidata":"https://www.wikidata.org/wiki/Q205663","display_name":"Process (computing)","level":2,"score":0.5332785248756409},{"id":"https://openalex.org/C196879817","wikidata":"https://www.wikidata.org/wiki/Q872685","display_name":"Data governance","level":4,"score":0.5303726196289062},{"id":"https://openalex.org/C116834253","wikidata":"https://www.wikidata.org/wiki/Q2039217","display_name":"Identification (biology)","level":2,"score":0.482769638299942},{"id":"https://openalex.org/C2776291640","wikidata":"https://www.wikidata.org/wiki/Q2912517","display_name":"Value (mathematics)","level":2,"score":0.4744473695755005},{"id":"https://openalex.org/C47487241","wikidata":"https://www.wikidata.org/wiki/Q5227230","display_name":"Data access","level":2,"score":0.46058931946754456},{"id":"https://openalex.org/C144133560","wikidata":"https://www.wikidata.org/wiki/Q4830453","display_name":"Business","level":0,"score":0.4087182879447937},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.3992760479450226},{"id":"https://openalex.org/C39549134","wikidata":"https://www.wikidata.org/wiki/Q133080","display_name":"Public relations","level":1,"score":0.3609517812728882},{"id":"https://openalex.org/C56739046","wikidata":"https://www.wikidata.org/wiki/Q192060","display_name":"Knowledge management","level":1,"score":0.35345739126205444},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.351306289434433},{"id":"https://openalex.org/C24756922","wikidata":"https://www.wikidata.org/wiki/Q1757694","display_name":"Data quality","level":3,"score":0.20301753282546997},{"id":"https://openalex.org/C162853370","wikidata":"https://www.wikidata.org/wiki/Q39809","display_name":"Marketing","level":1,"score":0.12591102719306946},{"id":"https://openalex.org/C86803240","wikidata":"https://www.wikidata.org/wiki/Q420","display_name":"Biology","level":0,"score":0.0},{"id":"https://openalex.org/C119857082","wikidata":"https://www.wikidata.org/wiki/Q2539","display_name":"Machine learning","level":1,"score":0.0},{"id":"https://openalex.org/C10138342","wikidata":"https://www.wikidata.org/wiki/Q43015","display_name":"Finance","level":1,"score":0.0},{"id":"https://openalex.org/C176217482","wikidata":"https://www.wikidata.org/wiki/Q860554","display_name":"Metric (unit)","level":2,"score":0.0},{"id":"https://openalex.org/C199360897","wikidata":"https://www.wikidata.org/wiki/Q9143","display_name":"Programming language","level":1,"score":0.0},{"id":"https://openalex.org/C111919701","wikidata":"https://www.wikidata.org/wiki/Q9135","display_name":"Operating system","level":1,"score":0.0},{"id":"https://openalex.org/C59822182","wikidata":"https://www.wikidata.org/wiki/Q441","display_name":"Botany","level":1,"score":0.0}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.1007/978-3-319-23633-9_28","is_oa":false,"landing_page_url":"https://doi.org/10.1007/978-3-319-23633-9_28","pdf_url":null,"source":null,"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Medical Data Privacy Handbook","raw_type":"book-chapter"}],"best_oa_location":null,"sustainable_development_goals":[],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":44,"referenced_works":["https://openalex.org/W275746598","https://openalex.org/W1479918017","https://openalex.org/W1508760933","https://openalex.org/W1594888675","https://openalex.org/W1595765401","https://openalex.org/W1967977344","https://openalex.org/W1969700768","https://openalex.org/W1971039378","https://openalex.org/W1977046764","https://openalex.org/W1977628174","https://openalex.org/W1978423748","https://openalex.org/W2002454098","https://openalex.org/W2009677749","https://openalex.org/W2040228409","https://openalex.org/W2040263621","https://openalex.org/W2046604427","https://openalex.org/W2050230871","https://openalex.org/W2051144536","https://openalex.org/W2055684807","https://openalex.org/W2066669827","https://openalex.org/W2071480942","https://openalex.org/W2085701409","https://openalex.org/W2088913689","https://openalex.org/W2091359547","https://openalex.org/W2106281693","https://openalex.org/W2107828364","https://openalex.org/W2108510859","https://openalex.org/W2111055529","https://openalex.org/W2119394167","https://openalex.org/W2120561484","https://openalex.org/W2128476487","https://openalex.org/W2142074194","https://openalex.org/W2146927437","https://openalex.org/W2150198788","https://openalex.org/W2161598577","https://openalex.org/W2162881374","https://openalex.org/W2166445532","https://openalex.org/W2168610667","https://openalex.org/W2260263447","https://openalex.org/W2314398369","https://openalex.org/W2497721881","https://openalex.org/W3123449715","https://openalex.org/W3123601494","https://openalex.org/W4249881565"],"related_works":["https://openalex.org/W2899084033","https://openalex.org/W2748952813","https://openalex.org/W1573400912","https://openalex.org/W2801240349","https://openalex.org/W4283810550","https://openalex.org/W4205872917","https://openalex.org/W2783639182","https://openalex.org/W2351615036","https://openalex.org/W2754896151","https://openalex.org/W2779464236"],"abstract_inverted_index":null,"counts_by_year":[{"year":2024,"cited_by_count":1},{"year":2023,"cited_by_count":1},{"year":2021,"cited_by_count":1},{"year":2019,"cited_by_count":2},{"year":2018,"cited_by_count":1}],"updated_date":"2025-11-06T03:46:38.306776","created_date":"2025-10-10T00:00:00"}