{"id":"https://openalex.org/W4396648207","doi":"https://doi.org/10.1007/978-3-031-59080-1_19","title":"The Role of Digital Care Pathway for Epilepsy on Patients\u2019 Treatment Burden: Clinicians\u2019 Perspective","display_name":"The Role of Digital Care Pathway for Epilepsy on Patients\u2019 Treatment Burden: Clinicians\u2019 Perspective","publication_year":2024,"publication_date":"2024-01-01","ids":{"openalex":"https://openalex.org/W4396648207","doi":"https://doi.org/10.1007/978-3-031-59080-1_19"},"language":"en","primary_location":{"id":"doi:10.1007/978-3-031-59080-1_19","is_oa":true,"landing_page_url":"https://doi.org/10.1007/978-3-031-59080-1_19","pdf_url":"https://link.springer.com/content/pdf/10.1007/978-3-031-59080-1_19.pdf","source":{"id":"https://openalex.org/S2764900261","display_name":"Communications in computer and information science","issn_l":"1865-0929","issn":["1865-0929","1865-0937"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310319900","host_organization_name":"Springer Science+Business Media","host_organization_lineage":["https://openalex.org/P4310319900","https://openalex.org/P4310319965"],"host_organization_lineage_names":["Springer Science+Business Media","Springer Nature"],"type":"book series"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Communications in Computer and Information Science","raw_type":"book-chapter"},"type":"book-chapter","indexed_in":["crossref"],"open_access":{"is_oa":true,"oa_status":"hybrid","oa_url":"https://link.springer.com/content/pdf/10.1007/978-3-031-59080-1_19.pdf","any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5095844152","display_name":"Manria Polus","orcid":"https://orcid.org/0000-0002-1970-1339"},"institutions":[{"id":"https://openalex.org/I98381234","display_name":"University of Oulu","ror":"https://ror.org/03yj89h83","country_code":"FI","type":"education","lineage":["https://openalex.org/I98381234"]}],"countries":["FI"],"is_corresponding":true,"raw_author_name":"Manria Polus","raw_affiliation_strings":["Faculty of Information Technology and Electrical Engineering, University of Oulu, 90570, Oulu, Finland","Faculty of Medicine, University of Oulu, 90014, Oulu, Finland"],"raw_orcid":"https://orcid.org/0000-0002-1970-1339","affiliations":[{"raw_affiliation_string":"Faculty of Information Technology and Electrical Engineering, University of Oulu, 90570, Oulu, Finland","institution_ids":["https://openalex.org/I98381234"]},{"raw_affiliation_string":"Faculty of Medicine, University of Oulu, 90014, Oulu, Finland","institution_ids":["https://openalex.org/I98381234"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5077743519","display_name":"Pantea Keikhosrokiani","orcid":"https://orcid.org/0000-0003-4705-2732"},"institutions":[{"id":"https://openalex.org/I98381234","display_name":"University of Oulu","ror":"https://ror.org/03yj89h83","country_code":"FI","type":"education","lineage":["https://openalex.org/I98381234"]}],"countries":["FI"],"is_corresponding":false,"raw_author_name":"Pantea Keikhosrokiani","raw_affiliation_strings":["Faculty of Information Technology and Electrical Engineering, University of Oulu, 90570, Oulu, Finland","Faculty of Medicine, University of Oulu, 90014, Oulu, Finland","University of Oulu, Oulu, Finland"],"raw_orcid":"https://orcid.org/0000-0003-4705-2732","affiliations":[{"raw_affiliation_string":"Faculty of Information Technology and Electrical Engineering, University of Oulu, 90570, Oulu, Finland","institution_ids":["https://openalex.org/I98381234"]},{"raw_affiliation_string":"Faculty of Medicine, University of Oulu, 90014, Oulu, Finland","institution_ids":["https://openalex.org/I98381234"]},{"raw_affiliation_string":"University of Oulu, Oulu, Finland","institution_ids":["https://openalex.org/I98381234"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5047817864","display_name":"Johanna Uusimaa","orcid":"https://orcid.org/0000-0002-6794-209X"},"institutions":[{"id":"https://openalex.org/I2799272722","display_name":"Oulu University Hospital","ror":"https://ror.org/045ney286","country_code":"FI","type":"healthcare","lineage":["https://openalex.org/I2799272722"]},{"id":"https://openalex.org/I98381234","display_name":"University of Oulu","ror":"https://ror.org/03yj89h83","country_code":"FI","type":"education","lineage":["https://openalex.org/I98381234"]}],"countries":["FI"],"is_corresponding":false,"raw_author_name":"Johanna Uusimaa","raw_affiliation_strings":["Department of Children and Adolescents, Division of Pediatric Neurology, Oulu University Hospital, 90029, Oulu, Finland","Research Unit of Clinical Medicine and Medical Research Center, Oulu University Hospital and University of Oulu, 90014, Oulu, Finland"],"raw_orcid":"https://orcid.org/0000-0002-6794-209X","affiliations":[{"raw_affiliation_string":"Department of Children and Adolescents, Division of Pediatric Neurology, Oulu University Hospital, 90029, Oulu, Finland","institution_ids":["https://openalex.org/I2799272722"]},{"raw_affiliation_string":"Research Unit of Clinical Medicine and Medical Research Center, Oulu University Hospital and University of Oulu, 90014, Oulu, Finland","institution_ids":["https://openalex.org/I2799272722","https://openalex.org/I98381234"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5044853613","display_name":"Jonna Komulainen\u2010Ebrahim","orcid":"https://orcid.org/0000-0002-3876-9830"},"institutions":[{"id":"https://openalex.org/I2799272722","display_name":"Oulu University Hospital","ror":"https://ror.org/045ney286","country_code":"FI","type":"healthcare","lineage":["https://openalex.org/I2799272722"]},{"id":"https://openalex.org/I98381234","display_name":"University of Oulu","ror":"https://ror.org/03yj89h83","country_code":"FI","type":"education","lineage":["https://openalex.org/I98381234"]}],"countries":["FI"],"is_corresponding":false,"raw_author_name":"Jonna Komulainen-Ebrahim","raw_affiliation_strings":["Department of Children and Adolescents, Division of Pediatric Neurology, Oulu University Hospital, 90029, Oulu, Finland","Research Unit of Clinical Medicine and Medical Research Center, Oulu University Hospital and University of Oulu, 90014, Oulu, Finland"],"raw_orcid":"https://orcid.org/0000-0002-3876-9830","affiliations":[{"raw_affiliation_string":"Department of Children and Adolescents, Division of Pediatric Neurology, Oulu University Hospital, 90029, Oulu, Finland","institution_ids":["https://openalex.org/I2799272722"]},{"raw_affiliation_string":"Research Unit of Clinical Medicine and Medical Research Center, Oulu University Hospital and University of Oulu, 90014, Oulu, Finland","institution_ids":["https://openalex.org/I2799272722","https://openalex.org/I98381234"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5052547288","display_name":"Johanna Annunen","orcid":"https://orcid.org/0000-0001-6513-7081"},"institutions":[{"id":"https://openalex.org/I2799272722","display_name":"Oulu University Hospital","ror":"https://ror.org/045ney286","country_code":"FI","type":"healthcare","lineage":["https://openalex.org/I2799272722"]},{"id":"https://openalex.org/I98381234","display_name":"University of Oulu","ror":"https://ror.org/03yj89h83","country_code":"FI","type":"education","lineage":["https://openalex.org/I98381234"]}],"countries":["FI"],"is_corresponding":false,"raw_author_name":"Johanna Annunen","raw_affiliation_strings":["Member of ERN-Epicare, Oulu University Hospital, 90029, Oulu, Finland","Neurocenter, Neurology, Oulu University Hospital, 90029, Oulu, Finland","Research Unit of Clinical Medicine and Medical Research Center, Oulu University Hospital and University of Oulu, 90014, Oulu, Finland"],"raw_orcid":"https://orcid.org/0000-0001-6513-7081","affiliations":[{"raw_affiliation_string":"Member of ERN-Epicare, Oulu University Hospital, 90029, Oulu, Finland","institution_ids":["https://openalex.org/I2799272722"]},{"raw_affiliation_string":"Neurocenter, Neurology, Oulu University Hospital, 90029, Oulu, Finland","institution_ids":["https://openalex.org/I2799272722"]},{"raw_affiliation_string":"Research Unit of Clinical Medicine and Medical Research Center, Oulu University Hospital and University of Oulu, 90014, Oulu, Finland","institution_ids":["https://openalex.org/I2799272722","https://openalex.org/I98381234"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5047487641","display_name":"Sehrish Khan","orcid":"https://orcid.org/0009-0009-8429-8644"},"institutions":[{"id":"https://openalex.org/I98381234","display_name":"University of Oulu","ror":"https://ror.org/03yj89h83","country_code":"FI","type":"education","lineage":["https://openalex.org/I98381234"]}],"countries":["FI"],"is_corresponding":false,"raw_author_name":"Sehrish Khan","raw_affiliation_strings":["Faculty of Information Technology and Electrical Engineering, University of Oulu, 90570, Oulu, Finland"],"raw_orcid":"https://orcid.org/0009-0009-8429-8644","affiliations":[{"raw_affiliation_string":"Faculty of Information Technology and Electrical Engineering, University of Oulu, 90570, Oulu, Finland","institution_ids":["https://openalex.org/I98381234"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5009486221","display_name":"Woubshet Behutiye","orcid":"https://orcid.org/0000-0002-9015-9941"},"institutions":[{"id":"https://openalex.org/I98381234","display_name":"University of Oulu","ror":"https://ror.org/03yj89h83","country_code":"FI","type":"education","lineage":["https://openalex.org/I98381234"]}],"countries":["FI"],"is_corresponding":false,"raw_author_name":"Woubshet Behutiye","raw_affiliation_strings":["Faculty of Information Technology and Electrical Engineering, University of Oulu, 90570, Oulu, Finland"],"raw_orcid":"https://orcid.org/0000-0002-9015-9941","affiliations":[{"raw_affiliation_string":"Faculty of Information Technology and Electrical Engineering, University of Oulu, 90570, Oulu, Finland","institution_ids":["https://openalex.org/I98381234"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5081514191","display_name":"P\u00e4ivi Vieira","orcid":"https://orcid.org/0000-0002-0796-8706"},"institutions":[{"id":"https://openalex.org/I2799272722","display_name":"Oulu University Hospital","ror":"https://ror.org/045ney286","country_code":"FI","type":"healthcare","lineage":["https://openalex.org/I2799272722"]},{"id":"https://openalex.org/I98381234","display_name":"University of Oulu","ror":"https://ror.org/03yj89h83","country_code":"FI","type":"education","lineage":["https://openalex.org/I98381234"]}],"countries":["FI"],"is_corresponding":false,"raw_author_name":"P\u00e4ivi Vieira","raw_affiliation_strings":["Department of Children and Adolescents, Division of Pediatric Neurology, Oulu University Hospital, 90029, Oulu, Finland","Member of ERN-Epicare, Oulu University Hospital, 90029, Oulu, Finland","Research Unit of Clinical Medicine and Medical Research Center, Oulu University Hospital and University of Oulu, 90014, Oulu, Finland"],"raw_orcid":"https://orcid.org/0000-0002-0796-8706","affiliations":[{"raw_affiliation_string":"Department of Children and Adolescents, Division of Pediatric Neurology, Oulu University Hospital, 90029, Oulu, Finland","institution_ids":["https://openalex.org/I2799272722"]},{"raw_affiliation_string":"Member of ERN-Epicare, Oulu University Hospital, 90029, Oulu, Finland","institution_ids":["https://openalex.org/I2799272722"]},{"raw_affiliation_string":"Research Unit of Clinical Medicine and Medical Research Center, Oulu University Hospital and University of Oulu, 90014, Oulu, Finland","institution_ids":["https://openalex.org/I2799272722","https://openalex.org/I98381234"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5034153908","display_name":"Minna Isomursu","orcid":"https://orcid.org/0000-0002-0161-1837"},"institutions":[{"id":"https://openalex.org/I98381234","display_name":"University of Oulu","ror":"https://ror.org/03yj89h83","country_code":"FI","type":"education","lineage":["https://openalex.org/I98381234"]}],"countries":["FI"],"is_corresponding":false,"raw_author_name":"Minna Isomursu","raw_affiliation_strings":["Faculty of Information Technology and Electrical Engineering, University of Oulu, 90570, Oulu, Finland","Faculty of Medicine, University of Oulu, 90014, Oulu, Finland","University of Oulu, Oulu, Finland"],"raw_orcid":"https://orcid.org/0000-0002-0161-1837","affiliations":[{"raw_affiliation_string":"Faculty of Information Technology and Electrical Engineering, University of Oulu, 90570, Oulu, Finland","institution_ids":["https://openalex.org/I98381234"]},{"raw_affiliation_string":"Faculty of Medicine, University of Oulu, 90014, Oulu, Finland","institution_ids":["https://openalex.org/I98381234"]},{"raw_affiliation_string":"University of Oulu, Oulu, Finland","institution_ids":["https://openalex.org/I98381234"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":9,"corresponding_author_ids":["https://openalex.org/A5095844152"],"corresponding_institution_ids":["https://openalex.org/I98381234"],"apc_list":null,"apc_paid":null,"fwci":18.4474,"has_fulltext":false,"cited_by_count":4,"citation_normalized_percentile":{"value":0.99011365,"is_in_top_1_percent":true,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":90,"max":98},"biblio":{"volume":null,"issue":null,"first_page":"257","last_page":"268"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10912","display_name":"Telemedicine and Telehealth Implementation","score":0.9970999956130981,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10912","display_name":"Telemedicine and Telehealth Implementation","score":0.9970999956130981,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11446","display_name":"Mobile Health and mHealth Applications","score":0.9965000152587891,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11519","display_name":"Digital Mental Health Interventions","score":0.9839000105857849,"subfield":{"id":"https://openalex.org/subfields/3202","display_name":"Applied Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/perspective","display_name":"Perspective (graphical)","score":0.828406035900116},{"id":"https://openalex.org/keywords/epilepsy","display_name":"Epilepsy","score":0.678264319896698},{"id":"https://openalex.org/keywords/medicine","display_name":"Medicine","score":0.41911688446998596},{"id":"https://openalex.org/keywords/intensive-care-medicine","display_name":"Intensive care medicine","score":0.3688702881336212},{"id":"https://openalex.org/keywords/psychiatry","display_name":"Psychiatry","score":0.299502432346344},{"id":"https://openalex.org/keywords/computer-science","display_name":"Computer science","score":0.2175087034702301},{"id":"https://openalex.org/keywords/artificial-intelligence","display_name":"Artificial intelligence","score":0.09317174553871155}],"concepts":[{"id":"https://openalex.org/C12713177","wikidata":"https://www.wikidata.org/wiki/Q1900281","display_name":"Perspective (graphical)","level":2,"score":0.828406035900116},{"id":"https://openalex.org/C2778186239","wikidata":"https://www.wikidata.org/wiki/Q41571","display_name":"Epilepsy","level":2,"score":0.678264319896698},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.41911688446998596},{"id":"https://openalex.org/C177713679","wikidata":"https://www.wikidata.org/wiki/Q679690","display_name":"Intensive care medicine","level":1,"score":0.3688702881336212},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.299502432346344},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.2175087034702301},{"id":"https://openalex.org/C154945302","wikidata":"https://www.wikidata.org/wiki/Q11660","display_name":"Artificial intelligence","level":1,"score":0.09317174553871155}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.1007/978-3-031-59080-1_19","is_oa":true,"landing_page_url":"https://doi.org/10.1007/978-3-031-59080-1_19","pdf_url":"https://link.springer.com/content/pdf/10.1007/978-3-031-59080-1_19.pdf","source":{"id":"https://openalex.org/S2764900261","display_name":"Communications in computer and information science","issn_l":"1865-0929","issn":["1865-0929","1865-0937"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310319900","host_organization_name":"Springer Science+Business Media","host_organization_lineage":["https://openalex.org/P4310319900","https://openalex.org/P4310319965"],"host_organization_lineage_names":["Springer Science+Business Media","Springer Nature"],"type":"book series"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Communications in Computer and Information Science","raw_type":"book-chapter"}],"best_oa_location":{"id":"doi:10.1007/978-3-031-59080-1_19","is_oa":true,"landing_page_url":"https://doi.org/10.1007/978-3-031-59080-1_19","pdf_url":"https://link.springer.com/content/pdf/10.1007/978-3-031-59080-1_19.pdf","source":{"id":"https://openalex.org/S2764900261","display_name":"Communications in computer and information science","issn_l":"1865-0929","issn":["1865-0929","1865-0937"],"is_oa":false,"is_in_doaj":false,"is_core":true,"host_organization":"https://openalex.org/P4310319900","host_organization_name":"Springer Science+Business Media","host_organization_lineage":["https://openalex.org/P4310319900","https://openalex.org/P4310319965"],"host_organization_lineage_names":["Springer Science+Business Media","Springer Nature"],"type":"book series"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Communications in Computer and Information Science","raw_type":"book-chapter"},"sustainable_development_goals":[],"awards":[],"funders":[],"has_content":{"pdf":true,"grobid_xml":false},"content_urls":{"pdf":"https://content.openalex.org/works/W4396648207.pdf"},"referenced_works_count":21,"referenced_works":["https://openalex.org/W1832399255","https://openalex.org/W1853486234","https://openalex.org/W1979290264","https://openalex.org/W1980168003","https://openalex.org/W2067404301","https://openalex.org/W2069363844","https://openalex.org/W2114056240","https://openalex.org/W2122615311","https://openalex.org/W2791281264","https://openalex.org/W2794036909","https://openalex.org/W2917622645","https://openalex.org/W2971998890","https://openalex.org/W3012600720","https://openalex.org/W3041199590","https://openalex.org/W3047954551","https://openalex.org/W3127883458","https://openalex.org/W3135626372","https://openalex.org/W3165585352","https://openalex.org/W3202863382","https://openalex.org/W3215472021","https://openalex.org/W4205132659"],"related_works":["https://openalex.org/W2748952813","https://openalex.org/W3031052312","https://openalex.org/W4389568370","https://openalex.org/W3032375762","https://openalex.org/W1995515455","https://openalex.org/W2080531066","https://openalex.org/W3108674512","https://openalex.org/W1506200166","https://openalex.org/W1489783725","https://openalex.org/W2148612803"],"abstract_inverted_index":{"Abstract":[0],"Epilepsy":[1],"is":[2,50],"a":[3,17,68,91],"chronic":[4],"neurological":[5],"disorder,":[6],"requiring":[7],"long-term":[8],"treatment.":[9,236],"The":[10,45,95,107,133,145,183],"workload":[11],"and":[12,120,126,129,138,175,204,209],"impact":[13],"of":[14,38,47,55,84,93,104,114,192,201,211,228],"treatment":[15,30,60,115,156,198],"causes":[16],"significant":[18],"burden":[19,40,61,157],"to":[20,51,178],"patients.":[21],"Digital":[22],"care":[23,57,75,151,194],"pathways":[24],"may":[25,35],"have":[26],"potential":[27],"for":[28,62,77,158,169,235],"reducing":[29],"burden,":[31,118,122,124,128],"but":[32],"there":[33],"also":[34],"be":[36],"concerns":[37,185],"additional":[39],"caused":[41],"by":[42,99],"digital":[43,56,74,150,193,214],"healthcare.":[44],"aim":[46],"this":[48],"study":[49,71],"investigate":[52],"the":[53,73,80,142,149,160,190,213,221,226],"role":[54],"pathway":[58,76,152,195],"on":[59,110,141],"patients":[63,154,229],"with":[64,72,155,230,232],"epilepsy.":[65],"This":[66],"was":[67,97,135,188],"single":[69],"case":[70],"epilepsy":[78,231],"in":[79,88],"Wellbeing":[81],"Services":[82],"County":[83],"North":[85],"Ostrobothnia":[86],"(Pohde),":[87],"Finland,":[89],"as":[90],"unit":[92],"analysis.":[94],"data":[96,134],"collected":[98],"observing":[100],"an":[101],"expert":[102],"meeting":[103,108],"three":[105],"clinicians.":[106],"focused":[109],"five":[111],"pre-defined":[112,143,161],"domains":[113],"burden:":[116],"Medication":[117],"Time":[119],"travel":[121],"Financial":[123],"Social":[125],"emotional":[127],"Healthcare":[130],"access":[131],"burden.":[132],"analyzed":[136],"qualitatively":[137],"organized":[139],"based":[140],"categories.":[144],"results":[146],"suggest":[147],"that":[148],"supports":[153],"all":[159],"domains.":[162],"Reported":[163],"benefits":[164],"include":[165],"reduced":[166],"travel,":[167],"options":[168],"remote":[170],"appointments,":[171],"providing":[172],"informational":[173],"support":[174,206],"easier":[176],"ways":[177],"contact":[179],"healthcare":[180],"professionals":[181],"(HCPs).":[182],"main":[184],"clinicians":[186],"had":[187],"could":[189],"use":[191],"cause":[196],"rushed":[197],"decisions,":[199],"difficulties":[200,210],"building":[202],"trust":[203],"seeking":[205],"from":[207,220],"HCPs,":[208],"using":[212],"systems.":[215],"A":[216],"new":[217],"theme":[218],"emerged":[219],"data,":[222],"Diverse":[223],"burdens,":[224],"highlighting":[225],"variety":[227],"differing":[233],"needs":[234]},"counts_by_year":[{"year":2026,"cited_by_count":1},{"year":2025,"cited_by_count":2},{"year":2024,"cited_by_count":1}],"updated_date":"2026-03-27T05:58:40.876381","created_date":"2025-10-10T00:00:00"}