{"id":"https://openalex.org/W86709659","doi":null,"title":"The nature and prevalence of eating disorders and eating disturbance in adolescents with cystic fibrosis.","display_name":"The nature and prevalence of eating disorders and eating disturbance in adolescents with cystic fibrosis.","publication_year":2004,"publication_date":"2004-01-01","ids":{"openalex":"https://openalex.org/W86709659","mag":"86709659","pmid":"https://pubmed.ncbi.nlm.nih.gov/15239292","pmcid":"https://www.ncbi.nlm.nih.gov/pmc/articles/1308797"},"language":"en","primary_location":{"id":"pmh:oai:europepmc.org:235190","doi":null,"is_oa":true,"landing_page_url":"http://europepmc.org/pmc/articles/PMC1308797","pdf_url":null,"source":{"id":"https://openalex.org/S4306400806","display_name":"Europe PMC (PubMed Central)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1303153112","host_organization_name":"European Bioinformatics Institute","host_organization_lineage":["https://openalex.org/I1303153112"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"","raw_type":"Text"},"volume":null,"type":"article","is_traditional":true,"indexed_in":["pubmed"],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"http://europepmc.org/pmc/articles/PMC1308797","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5073471192","display_name":"Joanna Shearer","orcid":"https://orcid.org/0000-0002-9836-3277","observed_orcids":["https://orcid.org/0000-0002-9836-3277"]},"institutions":[{"id":"https://openalex.org/I2800129641","display_name":"Great Ormond Street Hospital","ror":"https://ror.org/00zn2c847","country_code":"GB","type":"healthcare","lineage":["https://openalex.org/I2800129641","https://openalex.org/I2800349819"]},{"id":"https://openalex.org/I2800349819","display_name":"Great Ormond Street Hospital for Children NHS Foundation Trust","ror":"https://ror.org/03zydm450","country_code":"GB","type":"healthcare","lineage":["https://openalex.org/I2800349819"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"J E Shearer","raw_affiliation_strings":["Great Ormond Street Hospital for Children NHS Trust, Great Ormond Street, London WC1N 3JH, UK"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Great Ormond Street Hospital for Children NHS Trust, Great Ormond Street, London WC1N 3JH, UK","institution_ids":["https://openalex.org/I2800129641","https://openalex.org/I2800349819"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5085462191","display_name":"Mandy Bryon","orcid":"https://orcid.org/0000-0001-5731-8798","observed_orcids":["https://orcid.org/0000-0001-5731-8798"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"M Bryon","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":2,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":1.1748,"has_fulltext":false,"cited_by_count":33,"citation_normalized_percentile":{"value":0.79413914,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":88,"max":98},"biblio":{"volume":"97 Suppl 44","issue":null,"first_page":"36","last_page":"42"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10263","display_name":"Eating Disorders and Behaviors","score":0.9984999895095825,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T10263","display_name":"Eating Disorders and Behaviors","score":0.9984999895095825,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T13393","display_name":"Child Nutrition and Feeding Issues","score":0.00039999998989515007,"subfield":{"id":"https://openalex.org/subfields/2738","display_name":"Psychiatry and Mental health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T12873","display_name":"Nutrition, Health and Food Behavior","score":0.0003000000142492354,"subfield":{"id":"https://openalex.org/subfields/2916","display_name":"Nutrition and Dietetics"},"field":{"id":"https://openalex.org/fields/29","display_name":"Nursing"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/cystic-fibrosis","display_name":"cystic fibrosis","score":0.949999988079071},{"id":"https://openalex.org/keywords/eating-disorders","display_name":"eating disorders","score":0.9660000205039978},{"id":"https://openalex.org/keywords/disordered-eating-behaviors","display_name":"disordered eating","score":0.9890000224113464},{"id":"https://openalex.org/keywords/adolescents","display_name":"adolescents","score":0.9670000076293945},{"id":"https://openalex.org/keywords/anorexia-nervosa","display_name":"anorexia nervosa","score":0.9670000076293945},{"id":"https://openalex.org/keywords/bulimia-nervosa","display_name":"bulimia nervosa","score":1.0},{"id":"https://openalex.org/keywords/eating-disorder-not-otherwise-specified","display_name":"eating disorder not otherwise specified","score":0.9300000071525574},{"id":"https://openalex.org/keywords/self-esteem","display_name":"self-esteem","score":0.8859999775886536},{"id":"https://openalex.org/keywords/body-image-concern","display_name":"body image concern","score":0.7829999923706055},{"id":"https://openalex.org/keywords/weight-concern","display_name":"weight concern","score":0.8619999885559082},{"id":"https://openalex.org/keywords/puberty","display_name":"puberty","score":0.6579999923706055},{"id":"https://openalex.org/keywords/underweight","display_name":"underweight","score":0.6669999957084656},{"id":"https://openalex.org/keywords/eating-disorder-examination","display_name":"Eating Disorder Examination","score":0.640999972820282}],"concepts":[{"id":"https://openalex.org/C2776394216","wikidata":"https://www.wikidata.org/wiki/Q373822","display_name":"Eating disorders","level":2,"score":0.8216732740402222},{"id":"https://openalex.org/C2908647359","wikidata":"https://www.wikidata.org/wiki/Q2625603","display_name":"Population","level":2,"score":0.6206617951393127},{"id":"https://openalex.org/C125370674","wikidata":"https://www.wikidata.org/wiki/Q1527480","display_name":"Stressor","level":2,"score":0.5542101263999939},{"id":"https://openalex.org/C2776938444","wikidata":"https://www.wikidata.org/wiki/Q178194","display_name":"Cystic fibrosis","level":2,"score":0.5201207399368286},{"id":"https://openalex.org/C2776444855","wikidata":"https://www.wikidata.org/wiki/Q5282515","display_name":"Disordered eating","level":3,"score":0.47697219252586365},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.44902974367141724},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.4488886594772339},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.44604554772377014},{"id":"https://openalex.org/C2777031586","wikidata":"https://www.wikidata.org/wiki/Q131749","display_name":"Anorexia nervosa","level":3,"score":0.44309112429618835},{"id":"https://openalex.org/C187212893","wikidata":"https://www.wikidata.org/wiki/Q123028","display_name":"Pediatrics","level":1,"score":0.3837849795818329},{"id":"https://openalex.org/C70410870","wikidata":"https://www.wikidata.org/wiki/Q199906","display_name":"Clinical psychology","level":1,"score":0.3677693009376526},{"id":"https://openalex.org/C99454951","wikidata":"https://www.wikidata.org/wiki/Q932068","display_name":"Environmental health","level":1,"score":0.13410684466362},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.10748174786567688}],"mesh":[{"descriptor_ui":"D000293","descriptor_name":"Adolescent","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D001068","descriptor_name":"Feeding and Eating Disorders","qualifier_ui":"Q000209","qualifier_name":"etiology","is_major_topic":true},{"descriptor_ui":"D001835","descriptor_name":"Body Weight","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002648","descriptor_name":"Child","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003550","descriptor_name":"Cystic Fibrosis","qualifier_ui":"Q000150","qualifier_name":"complications","is_major_topic":true},{"descriptor_ui":"D003550","descriptor_name":"Cystic Fibrosis","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011795","descriptor_name":"Surveys and Questionnaires","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012649","descriptor_name":"Self Concept","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D015588","descriptor_name":"Observer Variation","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D015992","descriptor_name":"Body Mass Index","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false}],"locations_count":5,"locations":[{"id":"pmh:oai:europepmc.org:235190","doi":null,"is_oa":true,"landing_page_url":"http://europepmc.org/pmc/articles/PMC1308797","pdf_url":null,"source":{"id":"https://openalex.org/S4306400806","display_name":"Europe PMC (PubMed Central)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1303153112","host_organization_name":"European Bioinformatics Institute","host_organization_lineage":["https://openalex.org/I1303153112"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"","raw_type":"Text"},{"id":"pmh:oai:pubmedcentral.nih.gov:1308797","doi":null,"is_oa":true,"landing_page_url":"https://www.ncbi.nlm.nih.gov/pmc/articles/1308797","pdf_url":null,"source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"J R Soc Med","raw_type":"Text"},{"id":"pmid:15239292","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/15239292","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of the Royal Society of Medicine","raw_type":"Journal Article"},{"id":"pmh:oai:eprints.ucl.ac.uk.OAI2:10099353","doi":null,"is_oa":false,"landing_page_url":"https://discovery.ucl.ac.uk/id/eprint/10099353/","pdf_url":null,"source":{"id":"https://openalex.org/S4306400024","display_name":"UCL Discovery (University College London)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I45129253","host_organization_name":"University College London","host_organization_lineage":["https://openalex.org/I45129253"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Doctoral thesis, UCL (University College London).","raw_type":"Thesis"},{"id":"mag:86709659","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/15239292","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":"PubMed","raw_type":null}],"best_oa_location":{"id":"pmh:oai:europepmc.org:235190","doi":null,"is_oa":true,"landing_page_url":"http://europepmc.org/pmc/articles/PMC1308797","pdf_url":null,"source":{"id":"https://openalex.org/S4306400806","display_name":"Europe PMC (PubMed Central)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1303153112","host_organization_name":"European Bioinformatics Institute","host_organization_lineage":["https://openalex.org/I1303153112"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"","raw_type":"Text"},"sustainable_development_goals":[{"score":1.0,"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being"}],"study_designs":[{"id":"https://openalex.org/study-designs/observational-study","display_name":"Observational Study"}],"awards":[],"funders":[],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":20,"referenced_works":["https://openalex.org/W1507537285","https://openalex.org/W1552413776","https://openalex.org/W1698052943","https://openalex.org/W1973458855","https://openalex.org/W1980592962","https://openalex.org/W1992526191","https://openalex.org/W1997078032","https://openalex.org/W2003481853","https://openalex.org/W2006860615","https://openalex.org/W2009452901","https://openalex.org/W2039154815","https://openalex.org/W2044211581","https://openalex.org/W2054692733","https://openalex.org/W2055911357","https://openalex.org/W2097317451","https://openalex.org/W2103244699","https://openalex.org/W2128175866","https://openalex.org/W2142685071","https://openalex.org/W3048464664","https://openalex.org/W4285719527"],"related_works":["https://openalex.org/W2015062093","https://openalex.org/W4290048141","https://openalex.org/W4211121669","https://openalex.org/W2103244699","https://openalex.org/W2003481853","https://openalex.org/W7213298707","https://openalex.org/W4410975778","https://openalex.org/W7155890419","https://openalex.org/W14913605","https://openalex.org/W6991002784"],"abstract_inverted_index":{"This":[0,176,383],"study":[1,177],"surveyed":[2],"the":[3,59,71,93,106,120,149,157,210,215,219,247,252,266,311,314,394],"nature":[4],"and":[5,10,30,33,37,102,161,193,206,214,224,233,349,352,360,364,402,438],"prevalence":[6],"of":[7,95,116,122,148,218,246,251,284,293,296,313,389],"eating":[8,11,66,79,82,100,103,158,163,195,340,370,391,404,417,436],"disorders":[9,80,104,164,196,392],"disturbance":[12,83,101,341,418],"in":[13,58,70,84,105,197,330,347,350,393,440],"adolescents":[14,85,141,366],"with":[15,28,86,142,337,367],"Cystic":[16],"Fibrosis":[17],"(CF).":[18],"CF":[19,60,143,368,426],"is":[20,26,42,405],"an":[21,198,443],"incurable,":[22],"genetic":[23],"disorder":[24,159],"that":[25,152,244,357,425],"associated":[27],"respiratory":[29],"digestive":[31],"problems":[32],"consequently":[34],"inadequate":[35],"nutrition":[36,41],"poor":[38],"growth.":[39],"Good":[40],"considered":[43],"vital":[44],"as":[45,408],"low":[46],"weight":[47,305,308,353,378],"has":[48,63],"a":[49,96,114,166,187,420],"detrimental":[50],"aid":[51],"potentially":[52],"fatal":[53],"impact":[54],"upon":[55],"health":[56,225,333,381],"status":[57,226,334],"population.":[61,108,200],"Research":[62],"consistently":[64],"revealed":[65,243],"difficulties":[67],"throughout":[68],"childhood":[69],"population":[72],"but":[73,342],"few":[74],"studies":[75,110],"have":[76,113,153,369],"examined":[77],"formal":[78,130],"or":[81,258,286,306,323,332,338,379],"CF,":[87],"despite":[88],"clear":[89],"evidence":[90],"to":[91,112,128,135,145,169,179,191,240,277,303,319,415,430,433],"support":[92],"notion":[94],"developmental":[97],"continuum":[98],"between":[99,204,335],"general":[107],"Previous":[109],"appear":[111,144,414],"number":[115],"methodological":[117],"limitations,":[118],"particularly":[119,396],"use":[121],"self-report":[123],"measures,":[124],"which":[125,372,423],"are":[126],"unable":[127],"provide":[129],"diagnoses,":[131],"making":[132],"it":[133],"difficult":[134],"draw":[136],"any":[137],"firm":[138],"conclusions.":[139],"Because":[140],"experience":[146],"many":[147],"risk":[150,388],"factors":[151],"been":[154,290],"documented":[155],"within":[156,280],"literature":[160],"because":[162],"pose":[165],"particular":[167],"threat":[168],"their":[170,320,377,380,403,411],"longevity,":[171],"this":[172,281],"issue":[173],"requires":[174],"clarification.":[175],"aimed":[178],"improve":[180],"on":[181],"previous":[182],"research":[183],"designs":[184],"by":[185,410],"utilising":[186],"semi-structured":[188],"interview":[189],"designed":[190],"assess":[192],"diagnose":[194],"adolescent":[199],"55":[201],"participants":[202,232,248],"aged":[203],"11":[205],"17":[207],"years":[208],"completed":[209],"Harter/Hoare":[211],"Self-Esteem":[212],"Questionnaire":[213],"Child":[216],"Version":[217],"Eating":[220,269,274],"Disorder":[221,270],"Examination.":[222],"Demographic":[223],"information":[227],"were":[228,298,301,326,344],"obtained":[229],"for":[230,234,254,268],"all":[231,250],"those":[235,336],"who":[236],"did":[237],"not":[238,287,374,406],"wish":[239],"participate.":[241],"Results":[242,355],"none":[245],"met":[249,265],"criteria":[253],"either":[255],"Anorexia":[256],"Nervosa":[257],"Bulimia":[259],"Nervosa.":[260],"However":[261],"one":[262],"male":[263,363],"participant":[264],"diagnosis":[267],"Not":[271],"Otherwise":[272],"Specified.":[273],"Disturbance":[275],"appeared":[276],"be":[278,386],"prevalent":[279],"sample,":[282],"irrespective":[283],"whether":[285],"puberty":[288],"had":[289],"reached.":[291],"16%":[292],"participants,":[294],"some":[295],"whom":[297],"under":[299],"weight,":[300],"attempting":[302],"lose":[304],"avoid":[307],"gain":[309,399],"whilst":[310],"majority":[312],"sample":[315,384],"described":[316],"concerns":[317],"relating":[318],"body":[321],"shape":[322,351],"weight.":[324],"There":[325],"no":[327],"significant":[328,345],"differences":[329,346],"gender":[331],"without":[339],"there":[343],"self-esteem":[348],"concerns.":[354],"reveal":[356],"both":[358],"pre":[359],"post":[361],"pubertal":[362],"female":[365],"disturbance,":[371],"does":[373],"necessarily":[375],"reflect":[376],"status.":[382],"may":[385],"at":[387],"developing":[390],"future,":[395],"when":[397],"they":[398],"more":[400],"independence":[401],"monitored":[407],"closely":[409],"parents.":[412],"Patients":[413],"develop":[416],"from":[419,442],"young":[421],"age,":[422],"suggests":[424],"centres":[427],"should":[428],"attempt":[429],"work":[431],"systemically":[432],"facilitate":[434],"healthy":[435],"attitudes":[437],"behaviours":[439],"patients":[441],"early":[444],"age.":[445]},"counts_by_year":[{"year":2025,"cited_by_count":1},{"year":2024,"cited_by_count":2},{"year":2023,"cited_by_count":1},{"year":2022,"cited_by_count":5},{"year":2021,"cited_by_count":3},{"year":2020,"cited_by_count":3},{"year":2018,"cited_by_count":1},{"year":2017,"cited_by_count":1},{"year":2016,"cited_by_count":1},{"year":2015,"cited_by_count":1},{"year":2014,"cited_by_count":3},{"year":2013,"cited_by_count":2}],"updated_date":"2026-11-04T10:54:05.112534","created_date":"2016-06-24T00:00:00"}