{"id":"https://openalex.org/W854538554","doi":"https://doi.org/10.1007/s00520-015-2821-7","title":"Using a personalized measure (Patient Generated Index (PGI)) to identify what matters to people with cancer","display_name":"Using a personalized measure (Patient Generated Index (PGI)) to identify what matters to people with cancer","publication_year":2015,"publication_date":"2015-06-22","ids":{"openalex":"https://openalex.org/W854538554","doi":"https://doi.org/10.1007/s00520-015-2821-7","mag":"854538554","pmid":"https://pubmed.ncbi.nlm.nih.gov/26099901"},"language":"en","primary_location":{"id":"doi:10.1007/s00520-015-2821-7","doi":"https://doi.org/10.1007/s00520-015-2821-7","is_oa":false,"landing_page_url":"https://doi.org/10.1007/s00520-015-2821-7","pdf_url":null,"source":{"id":"https://openalex.org/S50055314","display_name":"Supportive Care in Cancer","issn_l":"0941-4355","issn":["0941-4355","1433-7339"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-c","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-100","russia-white-list-2","vabb-shw"],"host_organization":"https://openalex.org/P4310319900","host_organization_name":"Springer Science+Business Media","host_organization_lineage":["https://openalex.org/P4310319900","https://openalex.org/P4310319965"],"host_organization_lineage_names":["Springer Science+Business Media","Springer Nature"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Supportive Care in Cancer","raw_type":"journal-article"},"volume":null,"type":"article","is_traditional":true,"indexed_in":["crossref","pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5008067097","display_name":"Ala\u2019 S. Aburub","orcid":"https://orcid.org/0000-0003-3573-7304","observed_orcids":["https://orcid.org/0000-0003-3573-7304"]},"institutions":[{"id":"https://openalex.org/I4210088756","display_name":"Royal Victoria Hospital","ror":"https://ror.org/00arwy491","country_code":"CA","type":"healthcare","lineage":["https://openalex.org/I2801766832","https://openalex.org/I2801902503","https://openalex.org/I4210088756","https://openalex.org/I4210139015","https://openalex.org/I4405279980"]},{"id":"https://openalex.org/I5023651","display_name":"McGill University","ror":"https://ror.org/01pxwe438","country_code":"CA","type":"education","lineage":["https://openalex.org/I5023651"]}],"countries":["CA"],"is_corresponding":false,"raw_author_name":"Ala\u2019 S. Aburub","raw_affiliation_strings":["School of Physical and Occupational Therapy, Division of Clinical Epidemiology, McGill University, Royal Victoria Hospital Site, Ross Pavilion R4.29, 687, Pine Ave W., Montreal, QC, H3A 1A1, Canada"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"School of Physical and Occupational Therapy, Division of Clinical Epidemiology, McGill University, Royal Victoria Hospital Site, Ross Pavilion R4.29, 687, Pine Ave W., Montreal, QC, H3A 1A1, Canada","institution_ids":["https://openalex.org/I4210088756","https://openalex.org/I5023651"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5075368088","display_name":"Brigitte Gagnon","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I4210093650","display_name":"Centre hospitalier universitaire de Qu\u00e9bec","ror":"https://ror.org/006a7pj43","country_code":"CA","type":"healthcare","lineage":["https://openalex.org/I2801902503","https://openalex.org/I4210093650","https://openalex.org/I4210139015","https://openalex.org/I4405257837","https://openalex.org/I4405279980"]},{"id":"https://openalex.org/I43406934","display_name":"Universit\u00e9 Laval","ror":"https://ror.org/04sjchr03","country_code":"CA","type":"education","lineage":["https://openalex.org/I43406934"]},{"id":"https://openalex.org/I4405256986","display_name":"Centre de recherche du CHU de Qu\u00e9bec-Universit\u00e9 Laval","ror":"https://ror.org/04rgqcd02","country_code":"CA","type":"facility","lineage":["https://openalex.org/I2801902503","https://openalex.org/I4210139015","https://openalex.org/I4405256986","https://openalex.org/I4405257837","https://openalex.org/I4405279980"]}],"countries":["CA"],"is_corresponding":false,"raw_author_name":"B. Gagnon","raw_affiliation_strings":["D\u00e9partement de M\u00e9decine Familiale et de M\u00e9decine d'Urgence, Centre de Recherche sur le Cancer, Universite Laval, Centre de recherche du CHU de Qu\u00e9bec, 9 rue McMahon, Local 1899-6, Qu\u00e9bec, QC, G1R 2J6, Canada"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"D\u00e9partement de M\u00e9decine Familiale et de M\u00e9decine d'Urgence, Centre de Recherche sur le Cancer, Universite Laval, Centre de recherche du CHU de Qu\u00e9bec, 9 rue McMahon, Local 1899-6, Qu\u00e9bec, QC, G1R 2J6, Canada","institution_ids":["https://openalex.org/I4210093650","https://openalex.org/I43406934","https://openalex.org/I4405256986"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5057890061","display_name":"Ana Mar\u00eda Rodr\u00edguez","orcid":"https://orcid.org/0000-0001-6335-3223","observed_orcids":["https://orcid.org/0000-0001-6335-3223"]},"institutions":[{"id":"https://openalex.org/I5023651","display_name":"McGill University","ror":"https://ror.org/01pxwe438","country_code":"CA","type":"education","lineage":["https://openalex.org/I5023651"]}],"countries":["CA"],"is_corresponding":false,"raw_author_name":"A. M. Rodr\u00edguez","raw_affiliation_strings":["School of Rehabilitation Sciences, McGill University, 3654 Prom Sir-William-Osler, Montr\u00e9al, Qu\u00e9bec, H3G 1Y5, Canada"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"School of Rehabilitation Sciences, McGill University, 3654 Prom Sir-William-Osler, Montr\u00e9al, Qu\u00e9bec, H3G 1Y5, Canada","institution_ids":["https://openalex.org/I5023651"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5070727871","display_name":"Nancy E. Mayo","orcid":"https://orcid.org/0000-0003-2066-7120","observed_orcids":["https://orcid.org/0000-0003-2066-7120"]},"institutions":[{"id":"https://openalex.org/I2801766832","display_name":"McGill University Health Centre","ror":"https://ror.org/04cpxjv19","country_code":"CA","type":"healthcare","lineage":["https://openalex.org/I2801766832","https://openalex.org/I2801902503","https://openalex.org/I4210139015","https://openalex.org/I4405279980"]},{"id":"https://openalex.org/I4210088756","display_name":"Royal Victoria Hospital","ror":"https://ror.org/00arwy491","country_code":"CA","type":"healthcare","lineage":["https://openalex.org/I2801766832","https://openalex.org/I2801902503","https://openalex.org/I4210088756","https://openalex.org/I4210139015","https://openalex.org/I4405279980"]},{"id":"https://openalex.org/I5023651","display_name":"McGill University","ror":"https://ror.org/01pxwe438","country_code":"CA","type":"education","lineage":["https://openalex.org/I5023651"]}],"countries":["CA"],"is_corresponding":true,"raw_author_name":"Nancy E. Mayo","raw_affiliation_strings":["Division of Clinical Epidemiology, McGill University Health Center, Ross Pavilion R4.29, Royal Victoria Hospital Site, Montreal, Quebec, H3A 1A1, Canada. nancy.mayo@mcgill.ca","McGill University, Health Center"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Division of Clinical Epidemiology, McGill University Health Center, Ross Pavilion R4.29, Royal Victoria Hospital Site, Montreal, Quebec, H3A 1A1, Canada. nancy.mayo@mcgill.ca","institution_ids":["https://openalex.org/I2801766832","https://openalex.org/I4210088756","https://openalex.org/I5023651"]},{"raw_affiliation_string":"McGill University, Health Center","institution_ids":["https://openalex.org/I2801766832","https://openalex.org/I5023651"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":6,"corresponding_author_ids":["https://openalex.org/A5070727871"],"corresponding_institution_ids":["https://openalex.org/I2801766832","https://openalex.org/I4210088756","https://openalex.org/I5023651"],"apc_list":{"value":4690,"currency":"USD","value_usd":4690},"apc_paid":null,"fwci":1.0481,"has_fulltext":false,"cited_by_count":28,"citation_normalized_percentile":{"value":0.77127361,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":88,"max":98},"biblio":{"volume":"24","issue":"1","first_page":"437","last_page":"445"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10178","display_name":"Cancer survivorship and care","score":0.9312000274658203,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10178","display_name":"Cancer survivorship and care","score":0.9312000274658203,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.022600000724196434,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11199","display_name":"Pain Management and Opioid Use","score":0.017400000244379044,"subfield":{"id":"https://openalex.org/subfields/2703","display_name":"Anesthesiology and Pain Medicine"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/patient-generated-index","display_name":"Patient Generated Index","score":0.996999979019165},{"id":"https://openalex.org/keywords/quality-of-life","display_name":"quality of life","score":0.9409999847412109},{"id":"https://openalex.org/keywords/advanced-cancer","display_name":"advanced cancer","score":0.9879999756813049},{"id":"https://openalex.org/keywords/cancer-specific-quality-of-life","display_name":"cancer-specific quality of life","score":0.6759999990463257},{"id":"https://openalex.org/keywords/sf-6d","display_name":"SF-6D","score":0.7720000147819519},{"id":"https://openalex.org/keywords/eq-5d","display_name":"EQ-5D","score":1.0},{"id":"https://openalex.org/keywords/mcgill-quality-of-life-questionnaire","display_name":"McGill Quality of Life Questionnaire","score":0.9879999756813049},{"id":"https://openalex.org/keywords/edmonton-symptom-assessment-system","display_name":"Edmonton Symptom Assessment System","score":0.9039999842643738},{"id":"https://openalex.org/keywords/fatigue","display_name":"fatigue","score":0.7429999709129333},{"id":"https://openalex.org/keywords/sleep","display_name":"sleep","score":0.7760000228881836},{"id":"https://openalex.org/keywords/pain","display_name":"pain","score":0.9670000076293945},{"id":"https://openalex.org/keywords/measurement-validity","display_name":"measurement validity","score":0.4050000011920929},{"id":"https://openalex.org/keywords/patient-reported-outcomes","display_name":"patient-reported outcomes","score":0.4860000014305115}],"concepts":[{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.8618690967559814},{"id":"https://openalex.org/C2779951463","wikidata":"https://www.wikidata.org/wiki/Q7268788","display_name":"Quality of life (healthcare)","level":2,"score":0.773179292678833},{"id":"https://openalex.org/C2991975920","wikidata":"https://www.wikidata.org/wiki/Q621261","display_name":"Pain medicine","level":3,"score":0.6195614337921143},{"id":"https://openalex.org/C518773536","wikidata":"https://www.wikidata.org/wiki/Q918533","display_name":"Nursing research","level":2,"score":0.5364177227020264},{"id":"https://openalex.org/C121608353","wikidata":"https://www.wikidata.org/wiki/Q12078","display_name":"Cancer","level":2,"score":0.4774777889251709},{"id":"https://openalex.org/C1862650","wikidata":"https://www.wikidata.org/wiki/Q186005","display_name":"Physical therapy","level":1,"score":0.4530853033065796},{"id":"https://openalex.org/C53084192","wikidata":"https://www.wikidata.org/wiki/Q1485121","display_name":"Gee","level":3,"score":0.44943392276763916},{"id":"https://openalex.org/C74909509","wikidata":"https://www.wikidata.org/wiki/Q10387","display_name":"Gerontology","level":1,"score":0.4148993194103241},{"id":"https://openalex.org/C27403532","wikidata":"https://www.wikidata.org/wiki/Q5532474","display_name":"Generalized estimating equation","level":2,"score":0.2617984116077423},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.14958414435386658},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.1447441279888153},{"id":"https://openalex.org/C105795698","wikidata":"https://www.wikidata.org/wiki/Q12483","display_name":"Statistics","level":1,"score":0.09570860862731934},{"id":"https://openalex.org/C142724271","wikidata":"https://www.wikidata.org/wiki/Q7208","display_name":"Pathology","level":1,"score":0.08528301119804382},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.08054375648498535},{"id":"https://openalex.org/C2779526319","wikidata":"https://www.wikidata.org/wiki/Q615057","display_name":"Anesthesiology","level":2,"score":0.0},{"id":"https://openalex.org/C33923547","wikidata":"https://www.wikidata.org/wiki/Q395","display_name":"Mathematics","level":0,"score":0.0}],"mesh":[{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000368","descriptor_name":"Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005221","descriptor_name":"Fatigue","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008875","descriptor_name":"Middle Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D009369","descriptor_name":"Neoplasms","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D010146","descriptor_name":"Pain","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false},{"descriptor_ui":"D010549","descriptor_name":"Personal Satisfaction","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011788","descriptor_name":"Quality of Life","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D011795","descriptor_name":"Surveys and Questionnaires","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012720","descriptor_name":"Severity of Illness Index","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012893","descriptor_name":"Sleep Wake Disorders","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false}],"locations_count":2,"locations":[{"id":"doi:10.1007/s00520-015-2821-7","doi":"https://doi.org/10.1007/s00520-015-2821-7","is_oa":false,"landing_page_url":"https://doi.org/10.1007/s00520-015-2821-7","pdf_url":null,"source":{"id":"https://openalex.org/S50055314","display_name":"Supportive Care in Cancer","issn_l":"0941-4355","issn":["0941-4355","1433-7339"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-c","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-100","russia-white-list-2","vabb-shw"],"host_organization":"https://openalex.org/P4310319900","host_organization_name":"Springer Science+Business Media","host_organization_lineage":["https://openalex.org/P4310319900","https://openalex.org/P4310319965"],"host_organization_lineage_names":["Springer Science+Business Media","Springer Nature"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Supportive Care in Cancer","raw_type":"journal-article"},{"id":"pmid:26099901","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/26099901","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer","raw_type":"Journal Article"}],"best_oa_location":null,"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being","score":1.0}],"study_designs":[{"id":"https://openalex.org/study-designs/observational-study","display_name":"Observational Study"}],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":63,"referenced_works":["https://openalex.org/W51048260","https://openalex.org/W1480301872","https://openalex.org/W1608689417","https://openalex.org/W1752734511","https://openalex.org/W1886159674","https://openalex.org/W1894504899","https://openalex.org/W1976404276","https://openalex.org/W1977733462","https://openalex.org/W1983944710","https://openalex.org/W1988045941","https://openalex.org/W1989201634","https://openalex.org/W1994222210","https://openalex.org/W1995629742","https://openalex.org/W1996512878","https://openalex.org/W1998742701","https://openalex.org/W2004135657","https://openalex.org/W2007756939","https://openalex.org/W2008212073","https://openalex.org/W2010164057","https://openalex.org/W2011097492","https://openalex.org/W2023212883","https://openalex.org/W2027693243","https://openalex.org/W2038909771","https://openalex.org/W2039558840","https://openalex.org/W2040600171","https://openalex.org/W2041670078","https://openalex.org/W2044149209","https://openalex.org/W2047297864","https://openalex.org/W2053958871","https://openalex.org/W2062387947","https://openalex.org/W2065220464","https://openalex.org/W2069398327","https://openalex.org/W2073429174","https://openalex.org/W2075102910","https://openalex.org/W2082139959","https://openalex.org/W2088136878","https://openalex.org/W2092052931","https://openalex.org/W2095271801","https://openalex.org/W2096782143","https://openalex.org/W2097923525","https://openalex.org/W2101713088","https://openalex.org/W2103458302","https://openalex.org/W2104794656","https://openalex.org/W2105025173","https://openalex.org/W2105258029","https://openalex.org/W2113103985","https://openalex.org/W2119370514","https://openalex.org/W2119568920","https://openalex.org/W2123834329","https://openalex.org/W2129819125","https://openalex.org/W2135174860","https://openalex.org/W2139971439","https://openalex.org/W2141793102","https://openalex.org/W2146473669","https://openalex.org/W2149483306","https://openalex.org/W2166847408","https://openalex.org/W2167571044","https://openalex.org/W2319382258","https://openalex.org/W2473786944","https://openalex.org/W3188097024","https://openalex.org/W4246147341","https://openalex.org/W4285719527","https://openalex.org/W4388135339"],"related_works":["https://openalex.org/W7026553863","https://openalex.org/W2340354634","https://openalex.org/W2550192428","https://openalex.org/W2118776451","https://openalex.org/W2564091603","https://openalex.org/W1976404276","https://openalex.org/W2075102910","https://openalex.org/W2082775555","https://openalex.org/W4294682873","https://openalex.org/W3205433022"],"abstract_inverted_index":null,"counts_by_year":[{"year":2025,"cited_by_count":2},{"year":2024,"cited_by_count":1},{"year":2023,"cited_by_count":3},{"year":2022,"cited_by_count":2},{"year":2021,"cited_by_count":5},{"year":2020,"cited_by_count":4},{"year":2019,"cited_by_count":4},{"year":2018,"cited_by_count":2},{"year":2017,"cited_by_count":1},{"year":2016,"cited_by_count":4}],"updated_date":"2026-11-07T11:25:07.637180","created_date":"2016-06-24T00:00:00"}