{"id":"https://openalex.org/W826558654","doi":null,"title":"Building the Science of Healthcare Public Reporting: Integrating Anecdotal Information to Enhance Sensemaking","display_name":"Building the Science of Healthcare Public Reporting: Integrating Anecdotal Information to Enhance Sensemaking","publication_year":2013,"publication_date":"2013-01-01","ids":{"openalex":"https://openalex.org/W826558654","mag":"826558654"},"language":"en","primary_location":{"id":"pmh:oai:tigerprints.clemson.edu:all_dissertations-2247","doi":null,"is_oa":true,"landing_page_url":"https://tigerprints.clemson.edu/all_dissertations/1247","pdf_url":"https://tigerprints.clemson.edu/cgi/viewcontent.cgi?article=2247&context=all_dissertations","source":{"id":"https://openalex.org/S4377196397","display_name":"TigerPrints (Clemson University)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I8078737","host_organization_name":"Clemson University","host_organization_lineage":["https://openalex.org/I8078737"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"All Dissertations","raw_type":"text"},"volume":null,"type":"dissertation","is_traditional":true,"indexed_in":[],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"https://tigerprints.clemson.edu/cgi/viewcontent.cgi?article=2247&context=all_dissertations","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5002660274","display_name":"Kapil Chalil Madathil","orcid":"https://orcid.org/0000-0001-8938-9793","observed_orcids":["https://orcid.org/0000-0001-8938-9793"]},"institutions":[],"countries":[],"is_corresponding":true,"raw_author_name":"Kapil Chalil Madathil","raw_affiliation_strings":[],"raw_orcid":"https://orcid.org/0000-0001-8938-9793","affiliations":[]}],"institutions":[],"countries_distinct_count":0,"institutions_distinct_count":0,"corresponding_author_ids":["https://openalex.org/A5002660274"],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":null,"has_fulltext":true,"cited_by_count":0,"citation_normalized_percentile":null,"cited_by_percentile_year":null,"biblio":{"volume":null,"issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10737","display_name":"Health Literacy and Information Accessibility","score":0.4984999895095825,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10737","display_name":"Health Literacy and Information Accessibility","score":0.4984999895095825,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11722","display_name":"Patient Satisfaction in Healthcare","score":0.4724000096321106,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T12027","display_name":"Social Media in Health Education","score":0.013199999928474426,"subfield":{"id":"https://openalex.org/subfields/3306","display_name":"Health"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/youtube-videos","display_name":"YouTube videos","score":0.5580000281333923},{"id":"https://openalex.org/keywords/peer-support-groups","display_name":"peer support groups","score":0.8420000076293945},{"id":"https://openalex.org/keywords/ovarian-cancer","display_name":"ovarian cancer","score":0.6579999923706055},{"id":"https://openalex.org/keywords/sensemaking","display_name":"sensemaking","score":0.8679999709129333},{"id":"https://openalex.org/keywords/health-information-seeking","display_name":"health information seeking","score":0.5389999747276306},{"id":"https://openalex.org/keywords/information-presentation-order","display_name":"information presentation order","score":0.5580000281333923},{"id":"https://openalex.org/keywords/quality-measures","display_name":"quality metrics","score":0.5690000057220459},{"id":"https://openalex.org/keywords/hospital-choice","display_name":"hospital choice","score":0.5590000152587891},{"id":"https://openalex.org/keywords/patient-information-needs","display_name":"patient information needs","score":0.3499999940395355},{"id":"https://openalex.org/keywords/treatment-information","display_name":"treatment information","score":0.6710000038146973},{"id":"https://openalex.org/keywords/information-credibility","display_name":"information credibility","score":0.46799999475479126}],"concepts":[{"id":"https://openalex.org/C2780554381","wikidata":"https://www.wikidata.org/wiki/Q2063340","display_name":"Sensemaking","level":2,"score":0.7454121112823486},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.5545635223388672},{"id":"https://openalex.org/C39549134","wikidata":"https://www.wikidata.org/wiki/Q133080","display_name":"Public relations","level":1,"score":0.5115900635719299},{"id":"https://openalex.org/C2986711855","wikidata":"https://www.wikidata.org/wiki/Q294308","display_name":"Public healthcare","level":3,"score":0.4271465539932251},{"id":"https://openalex.org/C144133560","wikidata":"https://www.wikidata.org/wiki/Q4830453","display_name":"Business","level":0,"score":0.42384225130081177},{"id":"https://openalex.org/C56739046","wikidata":"https://www.wikidata.org/wiki/Q192060","display_name":"Knowledge management","level":1,"score":0.40947675704956055},{"id":"https://openalex.org/C138816342","wikidata":"https://www.wikidata.org/wiki/Q189603","display_name":"Public health","level":2,"score":0.38737571239471436},{"id":"https://openalex.org/C55587333","wikidata":"https://www.wikidata.org/wiki/Q1133029","display_name":"Engineering ethics","level":1,"score":0.3303467333316803},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.2820677161216736},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.2703387439250946},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.26772943139076233},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.1966000199317932},{"id":"https://openalex.org/C127413603","wikidata":"https://www.wikidata.org/wiki/Q11023","display_name":"Engineering","level":0,"score":0.1699967086315155},{"id":"https://openalex.org/C199539241","wikidata":"https://www.wikidata.org/wiki/Q7748","display_name":"Law","level":1,"score":0.0}],"mesh":[],"locations_count":3,"locations":[{"id":"pmh:oai:tigerprints.clemson.edu:all_dissertations-2247","doi":null,"is_oa":true,"landing_page_url":"https://tigerprints.clemson.edu/all_dissertations/1247","pdf_url":"https://tigerprints.clemson.edu/cgi/viewcontent.cgi?article=2247&context=all_dissertations","source":{"id":"https://openalex.org/S4377196397","display_name":"TigerPrints (Clemson University)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I8078737","host_organization_name":"Clemson University","host_organization_lineage":["https://openalex.org/I8078737"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"All Dissertations","raw_type":"text"},{"id":"pmh:oai:open.clemson.edu:all_dissertations-2247","doi":null,"is_oa":false,"landing_page_url":"https://open.clemson.edu/all_dissertations/1247","pdf_url":null,"source":{"id":"https://openalex.org/S4377196397","display_name":"TigerPrints (Clemson University)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I8078737","host_organization_name":"Clemson University","host_organization_lineage":["https://openalex.org/I8078737"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"All Dissertations","raw_type":"text"},{"id":"mag:826558654","doi":null,"is_oa":false,"landing_page_url":"https://tigerprints.clemson.edu/all_dissertations/1247/","pdf_url":null,"source":null,"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":null}],"best_oa_location":{"id":"pmh:oai:tigerprints.clemson.edu:all_dissertations-2247","doi":null,"is_oa":true,"landing_page_url":"https://tigerprints.clemson.edu/all_dissertations/1247","pdf_url":"https://tigerprints.clemson.edu/cgi/viewcontent.cgi?article=2247&context=all_dissertations","source":{"id":"https://openalex.org/S4377196397","display_name":"TigerPrints (Clemson University)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I8078737","host_organization_name":"Clemson University","host_organization_lineage":["https://openalex.org/I8078737"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"All Dissertations","raw_type":"text"},"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","score":0.9391000270843506,"display_name":"Good health and well-being"}],"study_designs":[],"awards":[],"funders":[],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W826558654.pdf","grobid_xml":"https://content.openalex.org/works/W826558654.grobid-xml"},"referenced_works_count":87,"referenced_works":["https://openalex.org/W37037991","https://openalex.org/W55114640","https://openalex.org/W158167438","https://openalex.org/W201578715","https://openalex.org/W1542800831","https://openalex.org/W1548447188","https://openalex.org/W1889081040","https://openalex.org/W1964716780","https://openalex.org/W1965734764","https://openalex.org/W1966951973","https://openalex.org/W1972258819","https://openalex.org/W1982266526","https://openalex.org/W1989462999","https://openalex.org/W1990637701","https://openalex.org/W1991032455","https://openalex.org/W1991688020","https://openalex.org/W1994180505","https://openalex.org/W1999943693","https://openalex.org/W2001208895","https://openalex.org/W2008934541","https://openalex.org/W2011283558","https://openalex.org/W2012083969","https://openalex.org/W2012354473","https://openalex.org/W2022943142","https://openalex.org/W2024378172","https://openalex.org/W2025581057","https://openalex.org/W2027025688","https://openalex.org/W2030748499","https://openalex.org/W2031363520","https://openalex.org/W2035064389","https://openalex.org/W2039087324","https://openalex.org/W2044103440","https://openalex.org/W2047356238","https://openalex.org/W2049148676","https://openalex.org/W2050640900","https://openalex.org/W2052255184","https://openalex.org/W2052332422","https://openalex.org/W2058399165","https://openalex.org/W2059968551","https://openalex.org/W2060775465","https://openalex.org/W2060775707","https://openalex.org/W2061474427","https://openalex.org/W2069654254","https://openalex.org/W2070105802","https://openalex.org/W2082497324","https://openalex.org/W2085244444","https://openalex.org/W2086305182","https://openalex.org/W2091700841","https://openalex.org/W2092582371","https://openalex.org/W2096452841","https://openalex.org/W2106805186","https://openalex.org/W2108467412","https://openalex.org/W2112231061","https://openalex.org/W2112468969","https://openalex.org/W2112665591","https://openalex.org/W2114014041","https://openalex.org/W2120036872","https://openalex.org/W2126395049","https://openalex.org/W2130598194","https://openalex.org/W2130657603","https://openalex.org/W2131066945","https://openalex.org/W2135880665","https://openalex.org/W2137555678","https://openalex.org/W2138550232","https://openalex.org/W2139286668","https://openalex.org/W2140840587","https://openalex.org/W2141085468","https://openalex.org/W2141708418","https://openalex.org/W2142225512","https://openalex.org/W2142298633","https://openalex.org/W2142898400","https://openalex.org/W2146192977","https://openalex.org/W2146948159","https://openalex.org/W2156308377","https://openalex.org/W2157289187","https://openalex.org/W2158361939","https://openalex.org/W2161601567","https://openalex.org/W2162641914","https://openalex.org/W2163531112","https://openalex.org/W2168992605","https://openalex.org/W2170722669","https://openalex.org/W2175268987","https://openalex.org/W2324050977","https://openalex.org/W2341308249","https://openalex.org/W2905851110","https://openalex.org/W3027109149","https://openalex.org/W3122078363"],"related_works":["https://openalex.org/W6922492772","https://openalex.org/W2567939328","https://openalex.org/W7162137737","https://openalex.org/W2809658497","https://openalex.org/W655458757","https://openalex.org/W2942881253","https://openalex.org/W2942496003","https://openalex.org/W7112817883","https://openalex.org/W2271473841","https://openalex.org/W4394799207"],"abstract_inverted_index":{"Anecdotal":[0],"information":[1,36,74,89,118,156,220,238,246,260,265,279,290,294,318,340,346,380,390,431,445,479,498,540,573,592,601],"about":[2],"a":[3,64,125,138,209,334,343,494,544,575,586,651],"healthcare":[4,119],"consumers'":[5],"interaction":[6],"with":[7,98,457,477,511,548,577],"care":[8,69,77],"providers":[9],"and":[10,26,95,163,248,316,341,351,386,446,593,631,647],"hospital":[11],"facilities":[12],"is":[13,70],"becoming":[14],"increasingly":[15],"available":[16,79,132,172],"to":[17,101,106,213,284,384,405,423,450,468,537,644,653,657],"the":[18,21,40,76,86,103,115,130,134,144,153,190,215,218,223,226,230,232,237,241,245,249,252,257,278,302,305,308,325,331,374,388,392,395,399,411,435,458,501,523,527,531,549,559,583,609,616,625,628,636,642,662,668],"public":[19,108,313,353,393,436,461,551,571,671],"in":[20,235,276,310,488,500,608,615,624,635],"form":[22,34],"of":[23,35,42,58,68,88,117,137,155,189,217,225,244,251,304,307,333,359,361,376,378,397,409,522,529,562,585,627,633,664,670],"YouTube":[24],"videos":[25,349,565],"as":[27,48,93,348],"discussion":[28,183,203],"posts":[29,273],"on":[30,75,80,124,133,175,222,442],"peer-support":[31,126],"groups.":[32],"This":[33,60,82,491],"can":[37],"potentially":[38,50],"jeopardize":[39],"utility":[41],"reports":[43],"generated":[44],"by":[45,72,179,261,269,321,416,472,569],"Federal":[46],"entities":[47],"it":[49,448],"diverts":[51],"consumer":[52,470],"attention":[53],"from":[54,382,403,421,535],"more":[55,282,417,459],"reliable":[56,460],"measures":[57],"quality.":[59],"dissertation":[61],"investigates":[62,85],"how":[63],"health":[65,322,338],"consumer's":[66,104],"choice":[67,626,646],"influenced":[71],"anecdotal":[73,317,362,379,389,430,478,564,600],"process":[78],"YouTube.":[81],"research":[83],"then":[84],"effect":[87,303],"presentation":[90,663],"methods":[91],"such":[92,312],"narratives":[94,640,665],"active":[96,578],"engagement":[97],"quality":[99,475,513],"metrics":[100,476],"support":[102,135,142,667],"ability":[105],"comprehend":[107],"report":[109,314,354,497,552,572,672],"information.":[110,201,297,673],"An":[111],"initial":[112,444,453],"study":[113,151,300,329,465,492,524,556,581],"investigated":[114,152,301,466],"characteristics":[116],"consumers":[120,323],"are":[121,319],"searching":[122],"for":[123,229,287,337,589,661],"group.":[127],"By":[128],"analyzing":[129],"discussions":[131,173],"community":[136],"major":[139],"ovarian":[140,160,196,288],"cancer":[141,161],"group,":[143],"Ovarian":[145],"Cancer":[146],"National":[147],"Alliance":[148],"(OCNA),":[149],"this":[150,443,489],"type":[154,216],"that":[157,194,372,526,639,666],"newly":[158],"diagnosed":[159],"patients":[162],"their":[164,452],"supporters":[165],"seek.":[166],"Using":[167],"content":[168],"analysis,":[169],"206":[170],"publicly":[171],"exchanged":[174],"OCNA":[176],"were":[177,205,274,281],"analyzed":[178,207],"two":[180],"researchers.":[181],"Each":[182],"point":[184],"was":[185,239,256,266,414,432,541,602],"classified":[186],"into":[187],"one":[188],"three":[191],"broad":[192],"themes":[193],"emerged:":[195],"cancer-specific,":[197],"treatment-related,":[198],"or":[199,295,606],"coping":[200,264,296],"The":[202,298,328,369,407,463,520,580,618],"points":[204],"further":[206,655],"using":[208,480],"multinomial":[210],"logit":[211],"model":[212],"predict":[214],"desired":[219],"based":[221],"role":[224,306],"person":[227],"looking":[228,286,336,588],"information,":[231],"disease":[233],"phase":[234,375],"which":[236,311],"sought,":[240],"emotional":[242],"status":[243],"seeker,":[247],"stage":[250],"cancer.":[253],"Treatment-related":[254],"material":[255],"most":[258,267],"sought-after":[259],"patients,":[262],"while":[263],"sought":[268],"supporters.":[270],"When":[271],"forum":[272],"negative":[275],"tone,":[277],"seekers":[280],"likely":[283],"be":[285,567],"cancer-specific":[289],"than":[291,418,428,547],"either":[292,604],"treatment-related":[293],"second":[299],"sequence":[309],"statistics":[315],"viewed":[320],"during":[324],"sensemaking":[326,610],"process.":[327,611],"used":[330,582],"scenario":[332,584],"patient":[335,587],"facility-related":[339,591],"employed":[342,493,594],"2":[344,357,495,509],"(anecdotal":[345],"presented":[347,433,456,499,504,542,603],"supporting":[350],"contradicting":[352],"information)":[355],"*":[356,508],"(phase":[358],"introduction":[360,377],"information:":[363],"early,":[364],"late)":[365],"between-subjects":[366,517,595],"experimental":[367,518,596],"design.":[368,519],"results":[370,521,619],"found":[371,447,525,620],"when":[373,387,425,455,539],"changed":[381,402],"early":[383,605],"late,":[385],"contradicted":[391],"reports,":[394],"probability":[396,408,528],"choosing":[398,410,530],"correct":[400,412,532],"facility":[401,413,533,630],"0.41":[404],"0.69.":[406],"reduced":[415],"half,":[419],"changing":[420],"0.85":[422],"0.41,":[424],"contradicting,":[426],"rather":[427,546],"supporting,":[429],"before":[434],"reports.":[437,462],"Participants":[438],"placed":[439],"significant":[440,622],"emphasis":[441],"difficult":[449],"change":[451],"perceptions":[454],"third":[464],"ways":[467],"enhance":[469],"understanding":[471],"integrating":[473],"standardized":[474],"user":[481],"experience":[482],"design":[483,597],"methodologies.":[484],"Two-hundred":[485],"individuals":[486,613],"participated":[487,614],"study.":[490,617],"(public":[496],"standard":[502,550],"way,":[503],"within":[505,543,574],"an":[506],"anecdote)":[507],"(engagement":[510],"each":[512],"metric:":[514],"none,":[515],"active)":[516],"changes":[534],"0.71":[536],"0.88":[538],"narrative":[545,576],"format.":[553],"A":[554],"final":[555],"evaluated":[557],"whether":[558],"influential":[560],"nature":[561],"inaccurate":[563,599],"could":[566],"attenuated":[568],"presenting":[570],"engagement.":[579],"dialysis":[590,629],"-":[598],"late":[607],"Ninety-eight":[612],"no":[621],"differences":[623],"level":[632],"confidence":[634],"choice.":[637],"Given":[638],"have":[641],"power":[643],"impact":[645],"comprehension,":[648],"there":[649],"exists":[650],"need":[652],"conduct":[654],"investigation":[656],"develop":[658],"comprehensive":[659],"guidelines":[660],"use":[669]},"counts_by_year":[],"updated_date":"2026-11-08T12:12:28.789561","created_date":"2016-06-24T00:00:00"}