{"id":"https://openalex.org/W764668181","doi":null,"title":"An exploration into the experiences of Parkinson\u2019s disease and its relationship with emotional well-being","display_name":"An exploration into the experiences of Parkinson\u2019s disease and its relationship with emotional well-being","publication_year":2014,"publication_date":"2014-10-01","ids":{"openalex":"https://openalex.org/W764668181","mag":"764668181"},"language":"en","primary_location":{"id":"pmh:oai:figshare.com:article/10155638","doi":null,"is_oa":true,"landing_page_url":"https://figshare.com/articles/thesis/An_exploration_into_the_experiences_of_Parkinson_s_disease_and_its_relationship_with_emotional_well-being/10155638","pdf_url":"https://figshare.com/articles/thesis/An_exploration_into_the_experiences_of_Parkinson_s_disease_and_its_relationship_with_emotional_well-being/10155638","source":{"id":"https://openalex.org/S4377196282","display_name":"Figshare","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I4210132348","host_organization_name":"Figshare (United Kingdom)","host_organization_lineage":["https://openalex.org/I4210132348"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"Thesis"},"volume":null,"type":"dissertation","is_traditional":true,"indexed_in":[],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"https://figshare.com/articles/thesis/An_exploration_into_the_experiences_of_Parkinson_s_disease_and_its_relationship_with_emotional_well-being/10155638","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5036804921","display_name":"Jodie Goddard","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":true,"raw_author_name":"Jodie Goddard","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]}],"institutions":[],"countries_distinct_count":0,"institutions_distinct_count":0,"corresponding_author_ids":["https://openalex.org/A5036804921"],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":null,"has_fulltext":true,"cited_by_count":0,"citation_normalized_percentile":null,"cited_by_percentile_year":null,"biblio":{"volume":null,"issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10085","display_name":"Parkinson's Disease Mechanisms and Treatments","score":0.9185000061988831,"subfield":{"id":"https://openalex.org/subfields/2728","display_name":"Clinical Neurology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10085","display_name":"Parkinson's Disease Mechanisms and Treatments","score":0.9185000061988831,"subfield":{"id":"https://openalex.org/subfields/2728","display_name":"Clinical Neurology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10178","display_name":"Cancer survivorship and care","score":0.010999999940395355,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T12663","display_name":"Body Image and Dysmorphia Studies","score":0.006500000134110451,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/parkinson-s-disease","display_name":"Parkinson's disease","score":1.0},{"id":"https://openalex.org/keywords/lived-experience","display_name":"lived experience","score":0.9900000095367432},{"id":"https://openalex.org/keywords/emotional-well-being","display_name":"emotional well-being","score":0.9020000100135803},{"id":"https://openalex.org/keywords/shame","display_name":"shame","score":0.9419999718666077},{"id":"https://openalex.org/keywords/body-image-disturbance","display_name":"body image disturbance","score":0.9179999828338623},{"id":"https://openalex.org/keywords/psychological-morbidity","display_name":"psychological morbidity","score":0.878000020980835},{"id":"https://openalex.org/keywords/anxiety","display_name":"anxiety","score":0.8870000243186951},{"id":"https://openalex.org/keywords/depression","display_name":"depression","score":0.996999979019165},{"id":"https://openalex.org/keywords/social-anxiety","display_name":"social anxiety","score":0.9319999814033508},{"id":"https://openalex.org/keywords/fear-of-negative-evaluation","display_name":"fear of negative evaluation","score":0.9990000128746033},{"id":"https://openalex.org/keywords/quality-of-life","display_name":"quality of life","score":0.7739999890327454},{"id":"https://openalex.org/keywords/chronic-disease","display_name":"chronic disease","score":0.3619999885559082}],"concepts":[{"id":"https://openalex.org/C2779734285","wikidata":"https://www.wikidata.org/wiki/Q11085","display_name":"Parkinson's disease","level":3,"score":0.6254240274429321},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.5069249272346497},{"id":"https://openalex.org/C2779718618","wikidata":"https://www.wikidata.org/wiki/Q5373802","display_name":"Emotional well-being","level":2,"score":0.4564078748226166},{"id":"https://openalex.org/C2779134260","wikidata":"https://www.wikidata.org/wiki/Q12136","display_name":"Disease","level":2,"score":0.3570329546928406},{"id":"https://openalex.org/C138496976","wikidata":"https://www.wikidata.org/wiki/Q175002","display_name":"Developmental psychology","level":1,"score":0.2997918128967285},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.27312129735946655},{"id":"https://openalex.org/C142724271","wikidata":"https://www.wikidata.org/wiki/Q7208","display_name":"Pathology","level":1,"score":0.0790402889251709}],"mesh":[],"locations_count":3,"locations":[{"id":"pmh:oai:figshare.com:article/10155638","doi":null,"is_oa":true,"landing_page_url":"https://figshare.com/articles/thesis/An_exploration_into_the_experiences_of_Parkinson_s_disease_and_its_relationship_with_emotional_well-being/10155638","pdf_url":"https://figshare.com/articles/thesis/An_exploration_into_the_experiences_of_Parkinson_s_disease_and_its_relationship_with_emotional_well-being/10155638","source":{"id":"https://openalex.org/S4377196282","display_name":"Figshare","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I4210132348","host_organization_name":"Figshare (United Kingdom)","host_organization_lineage":["https://openalex.org/I4210132348"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"Thesis"},{"id":"pmh:oai:lra.le.ac.uk:2381/31366","doi":null,"is_oa":true,"landing_page_url":"http://hdl.handle.net/2381/31366","pdf_url":"http://hdl.handle.net/2381/31366","source":{"id":"https://openalex.org/S4306402365","display_name":"Leicester Research Archive (University of Leicester)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I153648349","host_organization_name":"University of Leicester","host_organization_lineage":["https://openalex.org/I153648349"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"Thesis"},{"id":"mag:764668181","doi":null,"is_oa":false,"landing_page_url":"https://lra.le.ac.uk/bitstream/2381/31366/1/2014GoddardJDClinPsy.pdf","pdf_url":null,"source":null,"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":null}],"best_oa_location":{"id":"pmh:oai:figshare.com:article/10155638","doi":null,"is_oa":true,"landing_page_url":"https://figshare.com/articles/thesis/An_exploration_into_the_experiences_of_Parkinson_s_disease_and_its_relationship_with_emotional_well-being/10155638","pdf_url":"https://figshare.com/articles/thesis/An_exploration_into_the_experiences_of_Parkinson_s_disease_and_its_relationship_with_emotional_well-being/10155638","source":{"id":"https://openalex.org/S4377196282","display_name":"Figshare","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I4210132348","host_organization_name":"Figshare (United Kingdom)","host_organization_lineage":["https://openalex.org/I4210132348"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"Thesis"},"sustainable_development_goals":[{"score":0.9940000176429749,"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being"}],"study_designs":[],"awards":[],"funders":[],"has_content":{"pdf":true,"grobid_xml":true},"content_urls":{"pdf":"https://content.openalex.org/works/W764668181.pdf","grobid_xml":"https://content.openalex.org/works/W764668181.grobid-xml"},"referenced_works_count":112,"referenced_works":["https://openalex.org/W2671557","https://openalex.org/W1484864026","https://openalex.org/W1506736245","https://openalex.org/W1546205360","https://openalex.org/W1709583701","https://openalex.org/W1720468794","https://openalex.org/W1830481607","https://openalex.org/W1966392768","https://openalex.org/W1970817476","https://openalex.org/W1970887283","https://openalex.org/W1970933573","https://openalex.org/W1970982717","https://openalex.org/W1972012166","https://openalex.org/W1972795616","https://openalex.org/W1972905613","https://openalex.org/W1978457869","https://openalex.org/W1981058655","https://openalex.org/W1981741586","https://openalex.org/W1983172065","https://openalex.org/W1984742214","https://openalex.org/W1987786913","https://openalex.org/W1990544636","https://openalex.org/W1991221617","https://openalex.org/W1991246155","https://openalex.org/W1994187817","https://openalex.org/W1997673086","https://openalex.org/W1998745743","https://openalex.org/W1999409338","https://openalex.org/W2000465322","https://openalex.org/W2002352684","https://openalex.org/W2002394960","https://openalex.org/W2002463920","https://openalex.org/W2009580834","https://openalex.org/W2013348270","https://openalex.org/W2014718757","https://openalex.org/W2021708774","https://openalex.org/W2022962833","https://openalex.org/W2023381277","https://openalex.org/W2024178125","https://openalex.org/W2027127607","https://openalex.org/W2030412870","https://openalex.org/W2030899206","https://openalex.org/W2033623894","https://openalex.org/W2036508773","https://openalex.org/W2037352553","https://openalex.org/W2039807951","https://openalex.org/W2041434669","https://openalex.org/W2043293474","https://openalex.org/W2044353347","https://openalex.org/W2045745485","https://openalex.org/W2046592645","https://openalex.org/W2047101234","https://openalex.org/W2052426255","https://openalex.org/W2054342364","https://openalex.org/W2055409313","https://openalex.org/W2056087700","https://openalex.org/W2059312807","https://openalex.org/W2060902775","https://openalex.org/W2064996887","https://openalex.org/W2065589549","https://openalex.org/W2066491170","https://openalex.org/W2066792768","https://openalex.org/W2067644418","https://openalex.org/W2068058468","https://openalex.org/W2068080552","https://openalex.org/W2071500476","https://openalex.org/W2071709052","https://openalex.org/W2074874370","https://openalex.org/W2078208735","https://openalex.org/W2080029987","https://openalex.org/W2080095098","https://openalex.org/W2081395550","https://openalex.org/W2084116627","https://openalex.org/W2088487981","https://openalex.org/W2090714490","https://openalex.org/W2091884120","https://openalex.org/W2091925457","https://openalex.org/W2095986428","https://openalex.org/W2100947793","https://openalex.org/W2105422294","https://openalex.org/W2105588782","https://openalex.org/W2112254680","https://openalex.org/W2112795497","https://openalex.org/W2115407488","https://openalex.org/W2116126344","https://openalex.org/W2117752331","https://openalex.org/W2119171400","https://openalex.org/W2119553561","https://openalex.org/W2124601235","https://openalex.org/W2134799259","https://openalex.org/W2136735226","https://openalex.org/W2141783795","https://openalex.org/W2146324302","https://openalex.org/W2147082585","https://openalex.org/W2152883395","https://openalex.org/W2158342248","https://openalex.org/W2159268882","https://openalex.org/W2159543558","https://openalex.org/W2165155944","https://openalex.org/W2166281097","https://openalex.org/W2167040660","https://openalex.org/W2167185059","https://openalex.org/W2168306935","https://openalex.org/W2169729888","https://openalex.org/W2169737091","https://openalex.org/W2284991703","https://openalex.org/W2320085775","https://openalex.org/W2398575724","https://openalex.org/W2416650448","https://openalex.org/W2418069106","https://openalex.org/W2894434311","https://openalex.org/W4241650702"],"related_works":["https://openalex.org/W2944677961","https://openalex.org/W7125569332","https://openalex.org/W4410479610","https://openalex.org/W3046570458","https://openalex.org/W4316084388","https://openalex.org/W6930690113","https://openalex.org/W2125978520","https://openalex.org/W7169080883","https://openalex.org/W4414527066","https://openalex.org/W3113249347"],"abstract_inverted_index":{"Parkinson's":[0,296],"disease":[1,103,297],"(PD)":[2],"is":[3,13],"estimated":[4],"to":[5,203,249,261,267,269],"affect":[6],"one":[7],"person":[8],"in":[9,81,112,184,247,265,286],"every":[10],"800,":[11],"it":[12],"a":[14,24,53],"condition":[15],"that":[16,142,190,218,254],"affects":[17],"physical":[18],"appearance":[19],"and":[20,83,85,99,115,129,149,164,172,180,198,206,211,227,233,241,244,279],"individuals":[21,185],"can":[22],"experience":[23,126],"wide":[25],"range":[26],"of":[27,66,89,94,123,127,134,145,174,178,195,224,230,274,291,295],"psychological":[28,39,132,166,212],"symptoms.No":[29],"previous":[30],"research":[31,44,283],"has":[32],"directly":[33],"explored":[34,160],"visible":[35],"difference":[36],"or":[37],"associated":[38,86,242],"difficulties":[40],"within":[41],"PD,":[42],"despite":[43],"existing":[45],"for":[46,153,281],"other":[47],"chronic":[48],"health":[49],"conditions.":[50],"Literature":[51],"ReviewUsing":[52],"meta-ethnographic":[54],"approach,":[55],"the":[56,102,124,131,137,151,275,292],"literature":[57],"review":[58,119,139],"examined":[59],"twelve":[60],"qualitative":[61],"studies":[62],"exploring":[63],"individuals'":[64],"experiences":[65,144,264,294],"PD.Seven":[67],"third":[68],"order":[69],"constructs,":[70],"grouped":[71],"under":[72],"four":[73],"overarching":[74],"main":[75],"themes":[76],"were":[77,147,214,284],"identified.Individuals":[78],"experienced":[79,192],"uncertainty":[80],"adjustment":[82],"coping,":[84],"emotional":[87],"challenges":[88],"living":[90,100,135],"with":[91,101,136,186],"PD.A":[92],"sense":[93],"being":[95],"trapped":[96],"was":[97,108,216,252],"reported":[98,221],"undermined":[104],"spontaneity,":[105],"as":[106],"life":[107,179],"constrained":[109],"by":[110],"routines":[111],"drug":[113],"regimens":[114],"relentlessly":[116],"planned":[117],"activities.The":[118],"demonstrated":[120,189],"an":[121],"understanding":[122],"lived":[125,293],"PD":[128,146,250],"highlighted":[130,150],"demands":[133],"disease.The":[138],"also":[140],"indicated":[141],"specific":[143],"under-reported":[148],"need":[152],"further":[154],"research.":[155],"Empirical":[156],"studyThe":[157],"empirical":[158],"study":[159],"shame":[161,197,210,225],"(general,":[162],"external":[163],"body),":[165,228],"morbidity":[167,213],"(anxiety,":[168],"depression,":[169],"social":[170,234],"anxiety":[171,235],"fear":[173,229],"negative":[175,231],"evaluation),":[176],"quality":[177],"body":[181,199],"image":[182,200],"disturbance":[183],"PD.The":[187],"findings":[188],"participants":[191,219,260],"higher":[193],"levels":[194,223],"general":[196],"disturbances":[201],"compared":[202],"nonclinical":[204],"populations":[205],"significant":[207],"associations":[208],"between":[209],"found.It":[215],"found":[217],"quantitatively":[220],"low":[222],"(external":[226],"evaluation":[232],"but":[236],"qualitatively":[237],"expressed":[238],"embarrassment,":[239],"self-consciousness":[240],"concealment":[243],"avoidance":[245],"behaviours":[246],"relation":[248],"symptoms.It":[251],"suggested":[253],"open-ended":[255],"questions":[256],"may":[257],"have":[258],"facilitated":[259],"share":[262],"their":[263],"comparison":[266],"responding":[268],"quantitative":[270],"self-report":[271],"measures":[272],"alone.Interpretations":[273],"findings,":[276],"clinical":[277],"implications":[278],"suggestions":[280],"future":[282],"discussed.'Locked":[285],"confinement.No":[287],"release'":[288],"A":[289],"meta-synthesis":[290],"Jodie":[298],"Goddard":[299],"1.0":[300]},"counts_by_year":[],"updated_date":"2026-11-07T11:25:07.637180","created_date":"2016-06-24T00:00:00"}