{"id":"https://openalex.org/W75624433","doi":null,"title":"Struggling While Managing Chronic Illness","display_name":"Struggling While Managing Chronic Illness","publication_year":2012,"publication_date":"2012-01-01","ids":{"openalex":"https://openalex.org/W75624433","mag":"75624433"},"language":"en","primary_location":{"id":"pmh:oai:cornerstone.lib.mnsu.edu:etds-1209","doi":null,"is_oa":true,"landing_page_url":"https://cornerstone.lib.mnsu.edu/etds/210","pdf_url":null,"source":{"id":"https://openalex.org/S4377196646","display_name":"Cornerstone (Minnesota State University, Mankato)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I152014189","host_organization_name":"Minnesota State University, Mankato","host_organization_lineage":["https://openalex.org/I152014189"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"All Graduate Theses, Dissertations, and Other Capstone Projects","raw_type":"text"},"volume":null,"type":"article","is_traditional":true,"indexed_in":[],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"https://cornerstone.lib.mnsu.edu/etds/210","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5056846095","display_name":"Amy M. Perkins","orcid":"https://orcid.org/0000-0001-9052-3558","observed_orcids":["https://orcid.org/0000-0001-9052-3558"]},"institutions":[],"countries":[],"is_corresponding":true,"raw_author_name":"Amy M. Perkins","raw_affiliation_strings":[],"raw_orcid":"https://orcid.org/0000-0001-9052-3558","affiliations":[]}],"institutions":[],"countries_distinct_count":0,"institutions_distinct_count":0,"corresponding_author_ids":["https://openalex.org/A5056846095"],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":0.0,"has_fulltext":false,"cited_by_count":0,"citation_normalized_percentile":{"value":0.0,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":null,"biblio":{"volume":null,"issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T13111","display_name":"Nursing care and research","score":0.9423999786376953,"subfield":{"id":"https://openalex.org/subfields/2922","display_name":"Research and Theory"},"field":{"id":"https://openalex.org/fields/29","display_name":"Nursing"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T13111","display_name":"Nursing care and research","score":0.9423999786376953,"subfield":{"id":"https://openalex.org/subfields/2922","display_name":"Research and Theory"},"field":{"id":"https://openalex.org/fields/29","display_name":"Nursing"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13574","display_name":"Family Support in Illness","score":0.03099999949336052,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T11761","display_name":"Resilience and Mental Health","score":0.003700000001117587,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/chronic-disease","display_name":"chronic disease","score":0.9229999780654907},{"id":"https://openalex.org/keywords/family-caregivers","display_name":"family caregivers","score":0.6470000147819519},{"id":"https://openalex.org/keywords/rural-households","display_name":"rural households","score":0.9679999947547913},{"id":"https://openalex.org/keywords/illness-perception","display_name":"illness perception","score":0.4790000021457672},{"id":"https://openalex.org/keywords/uncertainty","display_name":"uncertainty","score":0.5649999976158142},{"id":"https://openalex.org/keywords/vulnerability","display_name":"vulnerability","score":0.9210000038146973},{"id":"https://openalex.org/keywords/spiritual-beliefs","display_name":"spiritual beliefs","score":0.6069999933242798},{"id":"https://openalex.org/keywords/existential-coping","display_name":"existential coping","score":0.42500001192092896},{"id":"https://openalex.org/keywords/mind-body-spirit","display_name":"mind-body-spirit","score":0.7120000123977661},{"id":"https://openalex.org/keywords/coping-strategies","display_name":"coping strategies","score":0.8180000185966492},{"id":"https://openalex.org/keywords/meaning-making","display_name":"meaning-making","score":0.5540000200271606},{"id":"https://openalex.org/keywords/family-nursing","display_name":"family nursing","score":0.44200000166893005}],"concepts":[{"id":"https://openalex.org/C144133560","wikidata":"https://www.wikidata.org/wiki/Q4830453","display_name":"Business","level":0,"score":0.37564876675605774},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.36094164848327637}],"mesh":[],"locations_count":2,"locations":[{"id":"pmh:oai:cornerstone.lib.mnsu.edu:etds-1209","doi":null,"is_oa":true,"landing_page_url":"https://cornerstone.lib.mnsu.edu/etds/210","pdf_url":null,"source":{"id":"https://openalex.org/S4377196646","display_name":"Cornerstone (Minnesota State University, Mankato)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I152014189","host_organization_name":"Minnesota State University, Mankato","host_organization_lineage":["https://openalex.org/I152014189"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"All Graduate Theses, Dissertations, and Other Capstone Projects","raw_type":"text"},{"id":"mag:75624433","doi":null,"is_oa":false,"landing_page_url":"https://cornerstone.lib.mnsu.edu/cgi/viewcontent.cgi?article=1209&context=etds","pdf_url":null,"source":null,"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":null}],"best_oa_location":{"id":"pmh:oai:cornerstone.lib.mnsu.edu:etds-1209","doi":null,"is_oa":true,"landing_page_url":"https://cornerstone.lib.mnsu.edu/etds/210","pdf_url":null,"source":{"id":"https://openalex.org/S4377196646","display_name":"Cornerstone (Minnesota State University, Mankato)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I152014189","host_organization_name":"Minnesota State University, Mankato","host_organization_lineage":["https://openalex.org/I152014189"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"All Graduate Theses, Dissertations, and Other Capstone Projects","raw_type":"text"},"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being","score":0.9537000060081482}],"study_designs":[],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":60,"referenced_works":["https://openalex.org/W65628262","https://openalex.org/W77218423","https://openalex.org/W560694846","https://openalex.org/W1459057447","https://openalex.org/W1482707767","https://openalex.org/W1603882355","https://openalex.org/W1696963342","https://openalex.org/W1833445980","https://openalex.org/W1891670770","https://openalex.org/W1966800662","https://openalex.org/W1971494989","https://openalex.org/W1973378264","https://openalex.org/W1973527461","https://openalex.org/W1974015562","https://openalex.org/W1986594546","https://openalex.org/W1986737589","https://openalex.org/W1995554393","https://openalex.org/W1997313409","https://openalex.org/W2000117884","https://openalex.org/W2005904405","https://openalex.org/W2026419733","https://openalex.org/W2029455937","https://openalex.org/W2029915954","https://openalex.org/W2033090463","https://openalex.org/W2043704245","https://openalex.org/W2045640427","https://openalex.org/W2046045841","https://openalex.org/W2051917704","https://openalex.org/W2051956517","https://openalex.org/W2061445335","https://openalex.org/W2064059708","https://openalex.org/W2064301229","https://openalex.org/W2065230736","https://openalex.org/W2077319066","https://openalex.org/W2080182413","https://openalex.org/W2090722087","https://openalex.org/W2095775008","https://openalex.org/W2096641681","https://openalex.org/W2103477933","https://openalex.org/W2107615476","https://openalex.org/W2119324195","https://openalex.org/W2122193925","https://openalex.org/W2123706009","https://openalex.org/W2130339864","https://openalex.org/W2131423789","https://openalex.org/W2134286714","https://openalex.org/W2134625828","https://openalex.org/W2135723202","https://openalex.org/W2147520268","https://openalex.org/W2148055394","https://openalex.org/W2152707468","https://openalex.org/W2153041398","https://openalex.org/W2154083171","https://openalex.org/W2160992977","https://openalex.org/W2164724276","https://openalex.org/W2169612163","https://openalex.org/W2230949597","https://openalex.org/W2316079581","https://openalex.org/W2329395632","https://openalex.org/W2802288200"],"related_works":["https://openalex.org/W2404611001","https://openalex.org/W2407797347","https://openalex.org/W3061794336","https://openalex.org/W2405764126","https://openalex.org/W3012019302","https://openalex.org/W1994091828","https://openalex.org/W2277025362","https://openalex.org/W2245609570","https://openalex.org/W1879796476","https://openalex.org/W2169275920"],"abstract_inverted_index":{"Although":[0],"research":[1,27,38],"documenting":[2],"the":[3,19,31,43,50,69,137,150,167,201,222,268],"struggling":[4,24,54,138,176,186,214,283],"response":[5],"to":[6,41,92,161,197,258,290],"chronic":[7,57,78,86,171,217,238,259,318],"illness":[8,87,162,218,260,302,319],"would":[9],"assist":[10],"nurses":[11],"in":[12,18,30,327],"understanding":[13,281],"their":[14],"patients":[15],"and":[16,21,48,61,65,99,102,108,114,117,157,180,195,206,296,311,324],"potentially":[17],"assessment":[20],"support":[22],"of":[23,36,45,52,128,136,169,200,210,224,242,250,273,278,282,299],"patients,":[25],"such":[26,308],"is":[28,219,245,330],"only":[29,301],"infancy":[32],"stage.":[33],"The":[34,80,140,240,262,280],"purpose":[35],"this":[37,211],"study":[39],"was":[40,132,144,147],"address":[42],"rarity":[44],"literature":[46,292],"describing":[47],"defining":[49],"concept":[51],"families":[53,76,84],"while":[55,215,236],"managing":[56,77,85,170,216,237,317],"illness.":[58,79,172,239],"Using":[59],"Strauss":[60],"Corbin's":[62],"paradigm":[63],"model":[64],"grounded":[66],"theory":[67],"methodology,":[68],"researcher":[70],"analyzed":[71],"interviews":[72],"with":[73,89,96,100],"nine":[74],"rural":[75],"analysis":[81],"revealed":[82],"that":[83],"struggled":[88],"everyday":[90],"living,":[91],"obtain":[93],"a":[94,133,225,229,274,285],"diagnosis,":[95],"spiritual":[97],"beliefs,":[98],"cognitive":[101],"existential":[103],"thoughts,":[104],"encompassing":[105],"mind,":[106,270],"body":[107],"spirit":[109,272],"struggles.":[110],"Struggling":[111,164],"occurred":[112,165],"within":[113,166,267],"between":[115],"individuals":[116],"groups.":[118],"A":[119],"thought":[120],"process,":[121],"more":[122],"specifically,":[123],"an":[124],"awareness,":[125],"interpretation,":[126],"deciphering":[127],"meaning,":[129],"or":[130,234,252,271,276],"perception":[131,223,241,249,286],"strong":[134],"component":[135],"experience.":[139],"core":[141],"phenomenon":[142],"identified":[143],"struggling,":[145],"which":[146,326],"preceded":[148,247],"by":[149,248],"causal":[151],"conditions":[152,174],"perceiving":[153],"uncertainty":[154,253],"and/or":[155,254],"vulnerability":[156,251],"ascribing":[158,255],"negative":[159,256],"meaning":[160,257],"management.":[163,261],"context":[168],"Intervening":[173],"for":[175,185],"were":[177,187,204],"ineffective":[178],"adapting":[179],"adapting.":[181],"Action/":[182],"interaction":[183],"strategies":[184,203],"denying,":[188],"emphasizing":[189],"loss,":[190],"fostering":[191],"independence,":[192],"strengthening":[193],"relationships,":[194],"turning":[196],"faith.":[198],"Consequences":[199],"action/interaction":[202],"stagnating":[205],"reintegrating.":[207],"In":[208],"light":[209],"study's":[212],"findings,":[213],"defined":[220],"as":[221,284,309],"difficult":[226,263],"process":[227,264],"(e.g.,":[228],"battle,":[230],"conflict,":[231],"strenuous":[232],"effort,":[233],"task)":[235],"great":[243],"difficulty":[244],"often":[246],"can":[265,314],"occur":[266],"body,":[269],"person":[275],"group":[277],"persons.":[279],"makes":[287],"it":[288],"relatable":[289],"other":[291,306],"exploring":[293],"perceptions,":[294],"representations,":[295,325],"ascribed":[297],"meanings":[298],"not":[300],"experiences,":[303,307],"but":[304],"also":[305],"pain":[310],"treatments.":[312],"Nurses":[313],"help":[315],"those":[316],"identify":[320],"its":[321],"associated":[322],"perceptions":[323],"some":[328],"cases":[329],"struggling.":[331]},"counts_by_year":[],"updated_date":"2026-08-18T07:49:30.821534","created_date":"2016-06-24T00:00:00"}