{"id":"https://openalex.org/W7225755880","doi":"https://doi.org/10.2196/99235","title":"Participatory Development of a Digital Self-Management Intervention for Intensive Care Recovery: Multimethod Study","display_name":"Participatory Development of a Digital Self-Management Intervention for Intensive Care Recovery: Multimethod Study","publication_year":2026,"publication_date":"2026-11-10","ids":{"openalex":"https://openalex.org/W7225755880","doi":"https://doi.org/10.2196/99235"},"language":"en","primary_location":{"id":"doi:10.2196/99235","doi":"https://doi.org/10.2196/99235","is_oa":true,"landing_page_url":"https://doi.org/10.2196/99235","pdf_url":null,"source":{"id":"https://openalex.org/S4210234749","display_name":"JMIR Formative Research","issn_l":"2561-326X","issn":["2561-326X"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","doyens","medline","norway-1","oarl","poland-20","russia-white-list-3","vabb-shw"],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"JMIR Formative Research","raw_type":"journal-article"},"volume":null,"type":"article","is_traditional":true,"indexed_in":["crossref","doaj"],"open_access":{"is_oa":true,"oa_status":"gold","oa_url":"https://doi.org/10.2196/99235","any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5096738938","display_name":"Elke Berger","orcid":"https://orcid.org/0000-0002-4742-4527","observed_orcids":["https://orcid.org/0000-0002-4742-4527"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Elke Berger","raw_affiliation_strings":[],"raw_orcid":"https://orcid.org/0000-0002-4742-4527","affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5069877583","display_name":"Julia E.W.C. van Gemert\u2010Pijnen","orcid":"https://orcid.org/0000-0001-6511-7240","observed_orcids":["https://orcid.org/0000-0001-6511-7240"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Lisette J W E C van Gemert-Pijnen","raw_affiliation_strings":[],"raw_orcid":"https://orcid.org/0000-0001-6511-7240","affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5161389095","display_name":"Mirjam S van der Veer","orcid":"https://orcid.org/0009-0004-5648-4531","observed_orcids":["https://orcid.org/0009-0004-5648-4531"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Mirjam S van der Veer","raw_affiliation_strings":[],"raw_orcid":"https://orcid.org/0009-0004-5648-4531","affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5110141777","display_name":"Marijke S. van der Steen","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Marijke S van der Steen","raw_affiliation_strings":[],"raw_orcid":"https://orcid.org/0009-0004-0118-2325","affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5161362768","display_name":"Dewy Schoonis - Spapens","orcid":"https://orcid.org/0009-0001-8588-361X","observed_orcids":["https://orcid.org/0009-0001-8588-361X"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Dewy Schoonis - Spapens","raw_affiliation_strings":[],"raw_orcid":"https://orcid.org/0009-0001-8588-361X","affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5135250413","display_name":"Daphne Bolman","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Daphne Bolman","raw_affiliation_strings":[],"raw_orcid":"https://orcid.org/0009-0001-2204-208X","affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5089595715","display_name":"Diederik A M P J Gommers","orcid":"https://orcid.org/0000-0001-6808-7702","observed_orcids":["https://orcid.org/0000-0001-6808-7702"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Diederik A M P J Gommers","raw_affiliation_strings":[],"raw_orcid":"https://orcid.org/0000-0001-6808-7702","affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5072992399","display_name":"Lilian Christina Maria Vloet","orcid":"https://orcid.org/0000-0001-5315-5397","observed_orcids":["https://orcid.org/0000-0001-5315-5397"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Lilian C M Vloet","raw_affiliation_strings":[],"raw_orcid":"https://orcid.org/0000-0001-5315-5397","affiliations":[]},{"author_position":"last","author":{"id":"https://openalex.org/A5079974274","display_name":"Margo M. C. van Mol","orcid":"https://orcid.org/0000-0002-0213-6054","observed_orcids":["https://orcid.org/0000-0002-0213-6054"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Margo van Mol","raw_affiliation_strings":[],"raw_orcid":"https://orcid.org/0000-0002-0213-6054","affiliations":[]}],"institutions":[],"countries_distinct_count":0,"institutions_distinct_count":0,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":{"value":1900,"currency":"USD","value_usd":1900},"apc_paid":{"value":1900,"currency":"USD","value_usd":1900},"fwci":0.0,"has_fulltext":false,"cited_by_count":0,"citation_normalized_percentile":{"value":0.0,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":null,"biblio":{"volume":"10","issue":null,"first_page":"e99235","last_page":"e99235"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11446","display_name":"Mobile Health and mHealth Applications","score":0.8960000276565552,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T11446","display_name":"Mobile Health and mHealth Applications","score":0.8960000276565552,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11519","display_name":"Digital Mental Health Interventions","score":0.07779999822378159,"subfield":{"id":"https://openalex.org/subfields/3202","display_name":"Applied Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10912","display_name":"Telemedicine and Telehealth Implementation","score":0.004699999932199717,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[],"concepts":[{"id":"https://openalex.org/C170130773","wikidata":"https://www.wikidata.org/wiki/Q216378","display_name":"Usability","level":2,"score":0.7896999716758728},{"id":"https://openalex.org/C202645933","wikidata":"https://www.wikidata.org/wiki/Q4930","display_name":"eHealth","level":3,"score":0.5795999765396118},{"id":"https://openalex.org/C27415008","wikidata":"https://www.wikidata.org/wiki/Q7256382","display_name":"Psychological intervention","level":2,"score":0.5569000244140625},{"id":"https://openalex.org/C2779343474","wikidata":"https://www.wikidata.org/wiki/Q3109175","display_name":"Context (archaeology)","level":2,"score":0.52920001745224},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.4943999946117401},{"id":"https://openalex.org/C2780433410","wikidata":"https://www.wikidata.org/wiki/Q5276090","display_name":"Digital health","level":3,"score":0.4749999940395355},{"id":"https://openalex.org/C190248442","wikidata":"https://www.wikidata.org/wiki/Q839486","display_name":"Qualitative research","level":2,"score":0.45820000767707825},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.4099999964237213},{"id":"https://openalex.org/C195094911","wikidata":"https://www.wikidata.org/wiki/Q14167904","display_name":"Process management","level":1,"score":0.4047999978065491},{"id":"https://openalex.org/C133462117","wikidata":"https://www.wikidata.org/wiki/Q4929239","display_name":"Data collection","level":2,"score":0.4034000039100647},{"id":"https://openalex.org/C509550671","wikidata":"https://www.wikidata.org/wiki/Q126945","display_name":"Medical education","level":1,"score":0.39480000734329224},{"id":"https://openalex.org/C201305675","wikidata":"https://www.wikidata.org/wiki/Q852998","display_name":"Stakeholder","level":2,"score":0.39410001039505005},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.38749998807907104},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.384799987077713},{"id":"https://openalex.org/C2777455480","wikidata":"https://www.wikidata.org/wiki/Q1038171","display_name":"Participatory design","level":3,"score":0.3846000134944916},{"id":"https://openalex.org/C2780665704","wikidata":"https://www.wikidata.org/wiki/Q959298","display_name":"Intervention (counseling)","level":2,"score":0.3815999925136566},{"id":"https://openalex.org/C56739046","wikidata":"https://www.wikidata.org/wiki/Q192060","display_name":"Knowledge management","level":1,"score":0.37940001487731934},{"id":"https://openalex.org/C2987404301","wikidata":"https://www.wikidata.org/wiki/Q679690","display_name":"Intensive care","level":2,"score":0.3596000075340271},{"id":"https://openalex.org/C140988679","wikidata":"https://www.wikidata.org/wiki/Q7140444","display_name":"Participatory action research","level":2,"score":0.35670000314712524},{"id":"https://openalex.org/C145642194","wikidata":"https://www.wikidata.org/wiki/Q870895","display_name":"Health informatics","level":3,"score":0.3506999909877777},{"id":"https://openalex.org/C56995899","wikidata":"https://www.wikidata.org/wiki/Q1126687","display_name":"Focus group","level":2,"score":0.3447999954223633},{"id":"https://openalex.org/C2779318504","wikidata":"https://www.wikidata.org/wiki/Q1438035","display_name":"Research design","level":2,"score":0.31450000405311584},{"id":"https://openalex.org/C87156501","wikidata":"https://www.wikidata.org/wiki/Q7268708","display_name":"Qualitative property","level":2,"score":0.314300000667572},{"id":"https://openalex.org/C162446236","wikidata":"https://www.wikidata.org/wiki/Q653137","display_name":"Content analysis","level":2,"score":0.30640000104904175},{"id":"https://openalex.org/C98045186","wikidata":"https://www.wikidata.org/wiki/Q205663","display_name":"Process (computing)","level":2,"score":0.2980000078678131},{"id":"https://openalex.org/C194943564","wikidata":"https://www.wikidata.org/wiki/Q1129049","display_name":"Participant observation","level":2,"score":0.29750001430511475},{"id":"https://openalex.org/C2779909229","wikidata":"https://www.wikidata.org/wiki/Q5154595","display_name":"Community-based participatory research","level":3,"score":0.2892000079154968},{"id":"https://openalex.org/C75630572","wikidata":"https://www.wikidata.org/wiki/Q538904","display_name":"Applied psychology","level":1,"score":0.2879999876022339},{"id":"https://openalex.org/C2776376669","wikidata":"https://www.wikidata.org/wiki/Q5094647","display_name":"Intensive care unit","level":2,"score":0.2854999899864197},{"id":"https://openalex.org/C203663800","wikidata":"https://www.wikidata.org/wiki/Q848979","display_name":"Citizen journalism","level":2,"score":0.26510000228881836},{"id":"https://openalex.org/C3255780","wikidata":"https://www.wikidata.org/wiki/Q1616517","display_name":"Heuristic evaluation","level":3,"score":0.2599000036716461}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.2196/99235","doi":"https://doi.org/10.2196/99235","is_oa":true,"landing_page_url":"https://doi.org/10.2196/99235","pdf_url":null,"source":{"id":"https://openalex.org/S4210234749","display_name":"JMIR Formative Research","issn_l":"2561-326X","issn":["2561-326X"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","doyens","medline","norway-1","oarl","poland-20","russia-white-list-3","vabb-shw"],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"JMIR Formative Research","raw_type":"journal-article"}],"best_oa_location":{"id":"doi:10.2196/99235","doi":"https://doi.org/10.2196/99235","is_oa":true,"landing_page_url":"https://doi.org/10.2196/99235","pdf_url":null,"source":{"id":"https://openalex.org/S4210234749","display_name":"JMIR Formative Research","issn_l":"2561-326X","issn":["2561-326X"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","doyens","medline","norway-1","oarl","poland-20","russia-white-list-3","vabb-shw"],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"JMIR Formative Research","raw_type":"journal-article"},"sustainable_development_goals":[],"study_designs":[],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":66,"referenced_works":["https://openalex.org/W1986943801","https://openalex.org/W2098361068","https://openalex.org/W2149010029","https://openalex.org/W2708075489","https://openalex.org/W2761994998","https://openalex.org/W2940064345","https://openalex.org/W2951102140","https://openalex.org/W2967916686","https://openalex.org/W2970088145","https://openalex.org/W2995399708","https://openalex.org/W3010677662","https://openalex.org/W3015227974","https://openalex.org/W3042273353","https://openalex.org/W3152139307","https://openalex.org/W3160962278","https://openalex.org/W3203522739","https://openalex.org/W3211836221","https://openalex.org/W3213720648","https://openalex.org/W4206427654","https://openalex.org/W4210547802","https://openalex.org/W4214864397","https://openalex.org/W4231340387","https://openalex.org/W4303427357","https://openalex.org/W4313554839","https://openalex.org/W4317935068","https://openalex.org/W4319660632","https://openalex.org/W4323531663","https://openalex.org/W4361269678","https://openalex.org/W4368404680","https://openalex.org/W4380576980","https://openalex.org/W4382313050","https://openalex.org/W4385429312","https://openalex.org/W4386009547","https://openalex.org/W4386119835","https://openalex.org/W4386507716","https://openalex.org/W4388656337","https://openalex.org/W4389052569","https://openalex.org/W4392712543","https://openalex.org/W4392928095","https://openalex.org/W4394849344","https://openalex.org/W4396606797","https://openalex.org/W4400802589","https://openalex.org/W4402906483","https://openalex.org/W4403063228","https://openalex.org/W4404318652","https://openalex.org/W4404885913","https://openalex.org/W4406055114","https://openalex.org/W4407169999","https://openalex.org/W4407869716","https://openalex.org/W4408997171","https://openalex.org/W4410204565","https://openalex.org/W4411078738","https://openalex.org/W4411500188","https://openalex.org/W4413034833","https://openalex.org/W4413054700","https://openalex.org/W4413105205","https://openalex.org/W4414853726","https://openalex.org/W4414867269","https://openalex.org/W4415129194","https://openalex.org/W4416225517","https://openalex.org/W4416453271","https://openalex.org/W7119497150","https://openalex.org/W7124289141","https://openalex.org/W7125378124","https://openalex.org/W7130706647","https://openalex.org/W7133695085"],"related_works":[],"abstract_inverted_index":{"Abstract":[0],"Background":[1],"Despite":[2],"promising":[3],"developments":[4],"in":[5,11,35,96,208,293],"eHealth,":[6],"a":[7,50,269,275,335],"critical":[8],"gap":[9],"remains":[10],"understanding":[12],"how":[13],"to":[14,45,59],"design":[15],"and":[16,27,47,58,64,88,91,102,112,126,133,141,155,166,178,187,206,220,262,273,337,354,362],"implement":[17],"digital":[18,51,212,329],"self-management":[19,52,213,330],"interventions":[20],"that":[21,317],"effectively":[22],"align":[23],"with":[24,68,82,136,233,244,268,289,303,343],"users\u2019":[25],"needs":[26],"the":[28,36,107,151,164,170,215,221,234,280,283,298,313,321,325,348,367],"complex":[29],"context":[30],"of":[31,117,169,185,237],"recovery":[32,57,201,260,349],"after":[33],"treatment":[34],"intensive":[37],"care":[38,56,93],"unit":[39],"(ICU).":[40],"Objective":[41],"This":[42],"study":[43,161],"aimed":[44],"develop":[46],"iteratively":[48],"refine":[49],"intervention":[53],"for":[54,109,217,223,247,369],"post\u2013intensive":[55],"explore":[60],"related":[61],"user":[62,352],"experiences":[63,353],"usability":[65,131,186,361],"among":[66],"individuals":[67,81,342],"lived":[69,83,344],"ICU":[70,84,97,218,238,345],"experience.":[71],"Methods":[72],"A":[73],"multimethod":[74],"participatory":[75,336],"development":[76,153,339],"process":[77],"was":[78,309],"used":[79],"including":[80,199],"experience":[85,346],"(both":[86],"survivors":[87,219],"family":[89,224],"members)":[90],"health":[92],"professionals":[94],"involved":[95],"recovery.":[98],"Between":[99],"April":[100],"2022":[101],"July":[103],"2026,":[104],"guided":[105],"by":[106,182],"Center":[108],"eHealth":[110],"Research":[111],"Disease":[113],"Management":[114],"Roadmap":[115],"consisting":[116],"5":[118],"phases,":[119],"data":[120,138,143,356],"were":[121,156,197,226,332],"collected":[122],"through":[123,334],"inspiration":[124],"sessions":[125],"feedback":[127],"rounds,":[128],"individual":[129],"interviews,":[130],"testing,":[132],"pilot":[134,281],"use,":[135],"qualitative":[137],"analyzed":[139,144],"thematically":[140],"quantitative":[142],"descriptively.":[145],"Findings":[146],"from":[147],"each":[148],"phase":[149],"informed":[150],"subsequent":[152],"steps":[154],"revisited":[157],"when":[158],"necessary.":[159],"The":[160],"focused":[162],"on":[163,175,312],"specification":[165],"iterative":[167,338],"refinement":[168],"intervention\u2019s":[171],"core":[172],"components":[173],"based":[174],"identified":[176],"values":[177],"contextual":[179],"requirements,":[180],"complemented":[181],"preliminary":[183],"indicators":[184],"descriptive":[188],"usage":[189,355],"metrics.":[190],"Results":[191],"Through":[192],"stakeholder":[193],"engagement,":[194,363],"key":[195],"functionalities":[196],"defined,":[198],"structured":[200,230],"information,":[202,251],"easy":[203],"24-7":[204],"access,":[205],"guidance":[207],"navigating":[209],"care.":[210],"Two":[211,328],"modules,":[214],"ICU-RecoveryPointer":[216,284],"ICU-FamilyCoach":[222,299],"members,":[225],"developed":[227],"comprising":[228],"(1)":[229],"information":[231,242,314],"aligned":[232],"different":[235],"phases":[236],"recovery,":[239],"(2)":[240],"concise":[241],"tiles":[243],"layered":[245],"content":[246,277,323],"more":[248],"in-depth":[249],"background":[250],"(3)":[252],"patient-reported":[253],"e-monitoring":[254],"features,":[255],"(4)":[256],"tailored":[257],"suggestions":[258],"addressing":[259],"challenges":[261],"emotional":[263],"processing,":[264],"(5)":[265],"an":[266],"e-diary":[267],"timeline":[270],"summary":[271],"function,":[272],"(6)":[274],"comprehensive":[276],"library.":[278],"During":[279],"phase,":[282],"reached":[285,300],"33":[286],"linked":[287],"accounts,":[288,302],"27":[290],"users":[291,318],"logging":[292],"at":[294],"least":[295],"once,":[296],"whereas":[297],"66":[301],"90":[304],"monthly":[305],"unique-user":[306],"observations.":[307],"Usage":[308],"primarily":[310],"concentrated":[311],"tiles,":[315],"suggesting":[316],"mainly":[319],"accessed":[320],"informational":[322],"within":[324],"modules.":[326],"Conclusions":[327],"modules":[331],"designed":[333],"process,":[340],"supporting":[341],"during":[347],"trajectory.":[350],"Preliminary":[351],"provided":[357],"initial":[358],"insights":[359],"into":[360],"while":[364],"also":[365],"highlighting":[366],"need":[368],"further":[370],"evaluation":[371],"before":[372],"broader":[373],"implementation.":[374]},"counts_by_year":[],"updated_date":"2026-11-11T12:16:26.678958","created_date":"2026-11-11T00:00:00"}