{"id":"https://openalex.org/W7225751235","doi":"https://doi.org/10.1111/jocn.70632","title":"Caregiving Challenges Across the Treatment and Recovery Trajectory of Patients Undergoing Oesophageal Cancer Surgery: A Longitudinal Qualitative Study Guided by the Timing It Right Framework","display_name":"Caregiving Challenges Across the Treatment and Recovery Trajectory of Patients Undergoing Oesophageal Cancer Surgery: A Longitudinal Qualitative Study Guided by the Timing It Right Framework","publication_year":2026,"publication_date":"2026-11-10","ids":{"openalex":"https://openalex.org/W7225751235","doi":"https://doi.org/10.1111/jocn.70632","pmid":"https://pubmed.ncbi.nlm.nih.gov/43006718"},"language":"en","primary_location":{"id":"doi:10.1111/jocn.70632","doi":"https://doi.org/10.1111/jocn.70632","is_oa":false,"landing_page_url":"https://doi.org/10.1111/jocn.70632","pdf_url":null,"source":{"id":"https://openalex.org/S180106345","display_name":"Journal of Clinical Nursing","issn_l":"0962-1067","issn":["0962-1067","1365-2702"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-b","doyens","jufo-3","ki-jl-3","medline","norway-2","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320595","host_organization_name":"Wiley","host_organization_lineage":["https://openalex.org/P4310320595"],"host_organization_lineage_names":["Wiley"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Clinical Nursing","raw_type":"journal-article"},"volume":null,"type":"article","is_traditional":true,"indexed_in":["crossref","pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5161389163","display_name":"Fan Wang","orcid":"https://orcid.org/0009-0003-9388-9637","observed_orcids":["https://orcid.org/0009-0003-9388-9637"]},"institutions":[{"id":"https://openalex.org/I78978612","display_name":"Yangzhou University","ror":"https://ror.org/03tqb8s11","country_code":"CN","type":"education","lineage":["https://openalex.org/I78978612"]}],"countries":["CN"],"is_corresponding":false,"raw_author_name":"Fan Wang","raw_affiliation_strings":["School of Nursing, Faculty of Medicine Yangzhou University  Yangzhou Jiangsu China"],"raw_orcid":"https://orcid.org/0009-0003-9388-9637","affiliations":[{"raw_affiliation_string":"School of Nursing, Faculty of Medicine Yangzhou University  Yangzhou Jiangsu China","institution_ids":["https://openalex.org/I78978612"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5009944459","display_name":"Zhie Gu","orcid":"https://orcid.org/0009-0006-4601-4127","observed_orcids":["https://orcid.org/0009-0006-4601-4127"]},"institutions":[{"id":"https://openalex.org/I4210137355","display_name":"Northern Jiangsu People's Hospital","ror":"https://ror.org/04gz17b59","country_code":"CN","type":"healthcare","lineage":["https://openalex.org/I4210137355"]}],"countries":["CN"],"is_corresponding":false,"raw_author_name":"Zhie Gu","raw_affiliation_strings":["Department of Education and Training Northern Jiangsu People's Hospital  Yangzhou Jiangsu China"],"raw_orcid":"https://orcid.org/0009-0006-4601-4127","affiliations":[{"raw_affiliation_string":"Department of Education and Training Northern Jiangsu People's Hospital  Yangzhou Jiangsu China","institution_ids":["https://openalex.org/I4210137355"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5161371953","display_name":"Xingyu Liu","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I4210137355","display_name":"Northern Jiangsu People's Hospital","ror":"https://ror.org/04gz17b59","country_code":"CN","type":"healthcare","lineage":["https://openalex.org/I4210137355"]}],"countries":["CN"],"is_corresponding":false,"raw_author_name":"Xingyu Liu","raw_affiliation_strings":["Department of Operating Room Northern Jiangsu People's Hospital  Yangzhou Jiangsu China"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Operating Room Northern Jiangsu People's Hospital  Yangzhou Jiangsu China","institution_ids":["https://openalex.org/I4210137355"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5138730755","display_name":"Yixin Jia","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I78978612","display_name":"Yangzhou University","ror":"https://ror.org/03tqb8s11","country_code":"CN","type":"education","lineage":["https://openalex.org/I78978612"]}],"countries":["CN"],"is_corresponding":false,"raw_author_name":"Yixin Jia","raw_affiliation_strings":["School of Nursing, Faculty of Medicine Yangzhou University  Yangzhou Jiangsu China"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"School of Nursing, Faculty of Medicine Yangzhou University  Yangzhou Jiangsu China","institution_ids":["https://openalex.org/I78978612"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5138735325","display_name":"Quan Mao","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I78978612","display_name":"Yangzhou University","ror":"https://ror.org/03tqb8s11","country_code":"CN","type":"education","lineage":["https://openalex.org/I78978612"]}],"countries":["CN"],"is_corresponding":false,"raw_author_name":"Quan Mao","raw_affiliation_strings":["School of Nursing, Faculty of Medicine Yangzhou University  Yangzhou Jiangsu China"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"School of Nursing, Faculty of Medicine Yangzhou University  Yangzhou Jiangsu China","institution_ids":["https://openalex.org/I78978612"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5077305383","display_name":"Yusheng Shu","orcid":"https://orcid.org/0000-0001-7270-0012","observed_orcids":["https://orcid.org/0000-0001-7270-0012"]},"institutions":[{"id":"https://openalex.org/I4210137355","display_name":"Northern Jiangsu People's Hospital","ror":"https://ror.org/04gz17b59","country_code":"CN","type":"healthcare","lineage":["https://openalex.org/I4210137355"]}],"countries":["CN"],"is_corresponding":true,"raw_author_name":"Yusheng Shu","raw_affiliation_strings":["Department of Thoracic Surgery Northern Jiangsu People's Hospital  Yangzhou Jiangsu China"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Thoracic Surgery Northern Jiangsu People's Hospital  Yangzhou Jiangsu China","institution_ids":["https://openalex.org/I4210137355"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":2,"corresponding_author_ids":["https://openalex.org/A5077305383"],"corresponding_institution_ids":["https://openalex.org/I4210137355"],"apc_list":{"value":5450,"currency":"USD","value_usd":5450},"apc_paid":null,"fwci":0.0,"has_fulltext":false,"cited_by_count":0,"citation_normalized_percentile":{"value":0.0,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":null,"biblio":{"volume":null,"issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T13111","display_name":"Nursing care and research","score":0.9901999831199646,"subfield":{"id":"https://openalex.org/subfields/2922","display_name":"Research and Theory"},"field":{"id":"https://openalex.org/fields/29","display_name":"Nursing"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T13111","display_name":"Nursing care and research","score":0.9901999831199646,"subfield":{"id":"https://openalex.org/subfields/2922","display_name":"Research and Theory"},"field":{"id":"https://openalex.org/fields/29","display_name":"Nursing"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10178","display_name":"Cancer survivorship and care","score":0.0032999999821186066,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T12980","display_name":"Family Caregiving in Mental Illness","score":0.002199999988079071,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[],"concepts":[{"id":"https://openalex.org/C150966472","wikidata":"https://www.wikidata.org/wiki/Q3410145","display_name":"Psychosocial","level":2,"score":0.7831000089645386},{"id":"https://openalex.org/C74196892","wikidata":"https://www.wikidata.org/wiki/Q7781188","display_name":"Thematic analysis","level":3,"score":0.7020000219345093},{"id":"https://openalex.org/C190248442","wikidata":"https://www.wikidata.org/wiki/Q839486","display_name":"Qualitative research","level":2,"score":0.6888999938964844},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.5791000127792358},{"id":"https://openalex.org/C2777895361","wikidata":"https://www.wikidata.org/wiki/Q1758614","display_name":"Longitudinal study","level":2,"score":0.48980000615119934},{"id":"https://openalex.org/C2778087770","wikidata":"https://www.wikidata.org/wiki/Q2297111","display_name":"Social support","level":2,"score":0.48030000925064087},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.4422000050544739},{"id":"https://openalex.org/C2779134260","wikidata":"https://www.wikidata.org/wiki/Q12136","display_name":"Disease","level":2,"score":0.4043999910354614},{"id":"https://openalex.org/C2779473830","wikidata":"https://www.wikidata.org/wiki/Q1540899","display_name":"MEDLINE","level":2,"score":0.3864000141620636},{"id":"https://openalex.org/C2778900529","wikidata":"https://www.wikidata.org/wiki/Q2827779","display_name":"Family caregivers","level":2,"score":0.3855000138282776},{"id":"https://openalex.org/C121608353","wikidata":"https://www.wikidata.org/wiki/Q12078","display_name":"Cancer","level":2,"score":0.3750999867916107},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.3100000023841858},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.30570000410079956},{"id":"https://openalex.org/C138816342","wikidata":"https://www.wikidata.org/wiki/Q189603","display_name":"Public health","level":2,"score":0.29350000619888306},{"id":"https://openalex.org/C2982889124","wikidata":"https://www.wikidata.org/wiki/Q107439039","display_name":"Disease management","level":4,"score":0.28290000557899475},{"id":"https://openalex.org/C70410870","wikidata":"https://www.wikidata.org/wiki/Q199906","display_name":"Clinical psychology","level":1,"score":0.26589998602867126},{"id":"https://openalex.org/C156325361","wikidata":"https://www.wikidata.org/wiki/Q1152864","display_name":"Grounded theory","level":3,"score":0.26030001044273376},{"id":"https://openalex.org/C3019816032","wikidata":"https://www.wikidata.org/wiki/Q2575340","display_name":"Cancer treatment","level":3,"score":0.2596000134944916},{"id":"https://openalex.org/C74909509","wikidata":"https://www.wikidata.org/wiki/Q10387","display_name":"Gerontology","level":1,"score":0.25870001316070557},{"id":"https://openalex.org/C558461103","wikidata":"https://www.wikidata.org/wiki/Q154430","display_name":"Anxiety","level":2,"score":0.2540999948978424},{"id":"https://openalex.org/C87156501","wikidata":"https://www.wikidata.org/wiki/Q7268708","display_name":"Qualitative property","level":2,"score":0.25360000133514404},{"id":"https://openalex.org/C2991678472","wikidata":"https://www.wikidata.org/wiki/Q108872574","display_name":"Cancer recurrence","level":3,"score":0.2533999979496002},{"id":"https://openalex.org/C110379092","wikidata":"https://www.wikidata.org/wiki/Q1571836","display_name":"Social environment","level":2,"score":0.251800000667572}],"mesh":[],"locations_count":2,"locations":[{"id":"doi:10.1111/jocn.70632","doi":"https://doi.org/10.1111/jocn.70632","is_oa":false,"landing_page_url":"https://doi.org/10.1111/jocn.70632","pdf_url":null,"source":{"id":"https://openalex.org/S180106345","display_name":"Journal of Clinical Nursing","issn_l":"0962-1067","issn":["0962-1067","1365-2702"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","dongbi-b","doyens","jufo-3","ki-jl-3","medline","norway-2","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320595","host_organization_name":"Wiley","host_organization_lineage":["https://openalex.org/P4310320595"],"host_organization_lineage_names":["Wiley"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Clinical Nursing","raw_type":"journal-article"},{"id":"pmid:43006718","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/43006718","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of clinical nursing","raw_type":"Journal Article"}],"best_oa_location":null,"sustainable_development_goals":[],"study_designs":[],"awards":[],"funders":[],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":60,"referenced_works":["https://openalex.org/W1979290264","https://openalex.org/W2004051647","https://openalex.org/W2138664283","https://openalex.org/W2524597629","https://openalex.org/W2894674184","https://openalex.org/W3081713217","https://openalex.org/W3118223737","https://openalex.org/W3193507744","https://openalex.org/W3202676133","https://openalex.org/W3205496360","https://openalex.org/W4220745051","https://openalex.org/W4224260244","https://openalex.org/W4285390610","https://openalex.org/W4286669369","https://openalex.org/W4295292700","https://openalex.org/W4309034972","https://openalex.org/W4318926208","https://openalex.org/W4320491609","https://openalex.org/W4322743768","https://openalex.org/W4323035166","https://openalex.org/W4365811073","https://openalex.org/W4367551165","https://openalex.org/W4380263728","https://openalex.org/W4382919010","https://openalex.org/W4385336526","https://openalex.org/W4388851138","https://openalex.org/W4389043024","https://openalex.org/W4391648431","https://openalex.org/W4391671392","https://openalex.org/W4392184808","https://openalex.org/W4392465170","https://openalex.org/W4394568931","https://openalex.org/W4394835388","https://openalex.org/W4401336395","https://openalex.org/W4401359267","https://openalex.org/W4403694732","https://openalex.org/W4403964824","https://openalex.org/W4404803198","https://openalex.org/W4404917707","https://openalex.org/W4404977851","https://openalex.org/W4405895826","https://openalex.org/W4406602313","https://openalex.org/W4410039064","https://openalex.org/W4410430979","https://openalex.org/W4410556643","https://openalex.org/W4410708772","https://openalex.org/W4410760853","https://openalex.org/W4411040426","https://openalex.org/W4411046845","https://openalex.org/W4412456350","https://openalex.org/W4412488499","https://openalex.org/W4412595179","https://openalex.org/W4413849443","https://openalex.org/W4416815536","https://openalex.org/W7134246023","https://openalex.org/W7160230717","https://openalex.org/W7161155187","https://openalex.org/W7163997464","https://openalex.org/W7167267187","https://openalex.org/W7204564093"],"related_works":[],"abstract_inverted_index":{"AIMS:":[0],"To":[1],"explore":[2],"caregiving":[3,116,215],"challenges":[4,27,77,159,216],"experienced":[5],"by":[6,37,45],"family":[7,61],"caregivers":[8,62],"of":[9,18,63,152,214],"patients":[10,64],"undergoing":[11,65],"oesophageal":[12,66,219],"cancer":[13,67,201,220],"surgery":[14],"across":[15,79,217],"different":[16],"stages":[17,80],"the":[19,38,46,162,209,218],"treatment":[20,97,202,221],"and":[21,24,81,90,96,107,118,120,122,134,140,143,154,178,191,203,211,222],"recovery":[22,223],"trajectory":[23],"how":[25],"these":[26],"evolve":[28],"over":[29],"time.":[30],"DESIGN:":[31],"A":[32],"longitudinal":[33],"qualitative":[34,53],"study":[35,54,207],"guided":[36],"timing":[39],"it":[40],"right":[41],"framework.":[42],"METHODS:":[43],"Guided":[44],"Timing":[47],"It":[48],"Right":[49],"Framework,":[50],"this":[51],"descriptive":[52],"used":[55],"semi-structured":[56],"interviews":[57],"with":[58],"17":[59],"primary":[60],"surgery.":[68],"Data":[69],"were":[70,87],"analysed":[71],"using":[72],"thematic":[73],"analysis.":[74],"RESULTS:":[75],"Caregiving":[76,158],"varied":[78],"evolved":[82],"dynamically.":[83],"Five":[84],"stage-specific":[85,169,210],"patterns":[86],"identified:":[88],"admission":[89],"treatment-planning,":[91],"emotional":[92],"shock,":[93],"disclosure":[94],"challenges,":[95,133],"decision-making":[98],"difficulties;":[99],"preoperative,":[100],"concerns":[101],"about":[102],"surgical":[103,108],"tolerance,":[104],"psychological":[105],"burden,":[106],"safety;":[109],"postoperative,":[110],"difficulties":[111,127,135],"meeting":[112],"care":[113,129],"needs,":[114],"limited":[115],"knowledge":[117],"skills,":[119],"physical":[121],"psychosocial":[123],"strain;":[124],"hospital-to-home":[125],"transition,":[126],"obtaining":[128],"knowledge,":[130],"nutritional":[131],"management":[132],"responding":[136],"to":[137],"negative":[138],"emotions":[139],"social":[141,179],"withdrawal;":[142],"longer-term":[144],"adjustment,":[145],"increasing":[146],"time":[147],"commitment,":[148],"financial":[149],"pressure,":[150],"fear":[151],"recurrence,":[153],"anticipatory":[155],"grief.":[156],"CONCLUSION:":[157],"change":[160],"throughout":[161],"disease":[163],"trajectory.":[164,224],"Nurses":[165],"should":[166],"provide":[167],"continuous,":[168],"support":[170,192],"that":[171],"addresses":[172],"caregivers'":[173,197],"evolving":[174],"informational,":[175],"practical,":[176],"psychological,":[177],"needs.":[180],"IMPLICATIONS":[181],"FOR":[182],"THE":[183],"PROFESSION":[184],"AND/OR":[185],"PATIENT":[186,225],"CARE:":[187],"Stage-specific":[188],"assessment,":[189],"education,":[190],"may":[193],"help":[194],"nurses":[195],"address":[196],"changing":[198],"needs":[199],"during":[200],"recovery.":[204],"IMPACT:":[205],"This":[206],"highlights":[208],"dynamic":[212],"nature":[213],"OR":[226],"PUBLIC":[227],"CONTRIBUTION:":[228],"No":[229],"patient":[230],"or":[231],"public":[232],"involvement.":[233]},"counts_by_year":[],"updated_date":"2026-11-11T12:16:26.678958","created_date":"2026-11-11T00:00:00"}