{"id":"https://openalex.org/W7225629757","doi":"https://doi.org/10.1590/1980-220x-reeusp-2025-0531en","title":"Feelings experienced by family members regarding palliative care for their loved ones: a meta-synthesis","display_name":"Feelings experienced by family members regarding palliative care for their loved ones: a meta-synthesis","publication_year":2026,"publication_date":"2026-01-01","ids":{"openalex":"https://openalex.org/W7225629757","doi":"https://doi.org/10.1590/1980-220x-reeusp-2025-0531en"},"language":"en","primary_location":{"id":"doi:10.1590/1980-220x-reeusp-2025-0531en","doi":"https://doi.org/10.1590/1980-220x-reeusp-2025-0531en","is_oa":true,"landing_page_url":"https://doi.org/10.1590/1980-220x-reeusp-2025-0531en","pdf_url":"https://www.scielo.br/j/reeusp/a/p54k5VNcfMnrJjLTyFLspLp/?lang=en&format=pdf","source":{"id":"https://openalex.org/S114438711","display_name":"Revista da Escola de Enfermagem da USP","issn_l":"0080-6234","issn":["0080-6234","1980-220X"],"is_oa":true,"is_in_doaj":true,"is_core":false,"listed_in":["doaj","dongbi-d","jufo-1","medline","poland-40","russia-white-list-2","scielo"],"host_organization":"https://openalex.org/P4310312331","host_organization_name":"University of S\u00e3o Paulo","host_organization_lineage":["https://openalex.org/P4310312331"],"host_organization_lineage_names":["University of S\u00e3o Paulo"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Revista da Escola de Enfermagem da USP","raw_type":"journal-article"},"volume":null,"type":"article","is_traditional":true,"indexed_in":["crossref","doaj"],"open_access":{"is_oa":true,"oa_status":"diamond","oa_url":"https://www.scielo.br/j/reeusp/a/p54k5VNcfMnrJjLTyFLspLp/?lang=en&format=pdf","any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5058647864","display_name":"Patr\u00edcia Gisele Sanches","orcid":"https://orcid.org/0009-0000-3301-1214","observed_orcids":["https://orcid.org/0009-0000-3301-1214"]},"institutions":[{"id":"https://openalex.org/I123443094","display_name":"Universidade Estadual de Maring\u00e1","ror":"https://ror.org/04bqqa360","country_code":"BR","type":"education","lineage":["https://openalex.org/I123443094"]}],"countries":["BR"],"is_corresponding":true,"raw_author_name":"Patricia Gisele Sanches","raw_affiliation_strings":["Universidade Estadual de Maring\u00e1"],"raw_orcid":"https://orcid.org/0009-0000-3301-1214","affiliations":[{"raw_affiliation_string":"Universidade Estadual de Maring\u00e1","institution_ids":["https://openalex.org/I123443094"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5034280995","display_name":"Anny Caroline Ribeiro Devechi","orcid":"https://orcid.org/0000-0001-8614-8708","observed_orcids":["https://orcid.org/0000-0001-8614-8708"]},"institutions":[{"id":"https://openalex.org/I123443094","display_name":"Universidade Estadual de Maring\u00e1","ror":"https://ror.org/04bqqa360","country_code":"BR","type":"education","lineage":["https://openalex.org/I123443094"]}],"countries":["BR"],"is_corresponding":false,"raw_author_name":"Anny Caroline Ribeiro Devechi","raw_affiliation_strings":["Universidade Estadual de Maring\u00e1"],"raw_orcid":"https://orcid.org/0000-0001-8614-8708","affiliations":[{"raw_affiliation_string":"Universidade Estadual de Maring\u00e1","institution_ids":["https://openalex.org/I123443094"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5036479714","display_name":"Ana Lu\u00edsa Serrano Lima","orcid":"https://orcid.org/0009-0008-7396-9185","observed_orcids":["https://orcid.org/0009-0008-7396-9185"]},"institutions":[{"id":"https://openalex.org/I123443094","display_name":"Universidade Estadual de Maring\u00e1","ror":"https://ror.org/04bqqa360","country_code":"BR","type":"education","lineage":["https://openalex.org/I123443094"]}],"countries":["BR"],"is_corresponding":false,"raw_author_name":"Ana Lu\u00edsa Serrano Lima","raw_affiliation_strings":["Universidade Estadual de Maring\u00e1"],"raw_orcid":"https://orcid.org/0009-0008-7396-9185","affiliations":[{"raw_affiliation_string":"Universidade Estadual de Maring\u00e1","institution_ids":["https://openalex.org/I123443094"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5044206391","display_name":"Graciele Cadahaiane de Oliveira","orcid":"https://orcid.org/0009-0009-8492-1926","observed_orcids":["https://orcid.org/0009-0009-8492-1926"]},"institutions":[{"id":"https://openalex.org/I123443094","display_name":"Universidade Estadual de Maring\u00e1","ror":"https://ror.org/04bqqa360","country_code":"BR","type":"education","lineage":["https://openalex.org/I123443094"]}],"countries":["BR"],"is_corresponding":false,"raw_author_name":"Graciele Cadahaiane de Oliveira","raw_affiliation_strings":["Universidade Estadual de Maring\u00e1"],"raw_orcid":"https://orcid.org/0009-0009-8492-1926","affiliations":[{"raw_affiliation_string":"Universidade Estadual de Maring\u00e1","institution_ids":["https://openalex.org/I123443094"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5161331951","display_name":"Amalia Dayane Queiroz da Cruz","orcid":"https://orcid.org/0009-0005-5645-0582","observed_orcids":["https://orcid.org/0009-0005-5645-0582"]},"institutions":[{"id":"https://openalex.org/I123443094","display_name":"Universidade Estadual de Maring\u00e1","ror":"https://ror.org/04bqqa360","country_code":"BR","type":"education","lineage":["https://openalex.org/I123443094"]}],"countries":["BR"],"is_corresponding":false,"raw_author_name":"Amalia Dayane Queiroz da Cruz","raw_affiliation_strings":["Universidade Estadual de Maring\u00e1"],"raw_orcid":"https://orcid.org/0009-0005-5645-0582","affiliations":[{"raw_affiliation_string":"Universidade Estadual de Maring\u00e1","institution_ids":["https://openalex.org/I123443094"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5093528702","display_name":"Samira Goldberg Rego Barbosa","orcid":"https://orcid.org/0009-0007-0743-4767","observed_orcids":["https://orcid.org/0009-0007-0743-4767"]},"institutions":[{"id":"https://openalex.org/I123443094","display_name":"Universidade Estadual de Maring\u00e1","ror":"https://ror.org/04bqqa360","country_code":"BR","type":"education","lineage":["https://openalex.org/I123443094"]}],"countries":["BR"],"is_corresponding":false,"raw_author_name":"Samira Goldberg Rego Barbosa","raw_affiliation_strings":["Universidade Estadual de Maring\u00e1"],"raw_orcid":"https://orcid.org/0000-0001-7179-6382","affiliations":[{"raw_affiliation_string":"Universidade Estadual de Maring\u00e1","institution_ids":["https://openalex.org/I123443094"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5052533442","display_name":"Andr\u00e9 Estevam Jaques","orcid":"https://orcid.org/0000-0001-7874-9589","observed_orcids":["https://orcid.org/0000-0001-7874-9589"]},"institutions":[{"id":"https://openalex.org/I123443094","display_name":"Universidade Estadual de Maring\u00e1","ror":"https://ror.org/04bqqa360","country_code":"BR","type":"education","lineage":["https://openalex.org/I123443094"]}],"countries":["BR"],"is_corresponding":false,"raw_author_name":"Andr\u00e9 Estevam Jaques","raw_affiliation_strings":["Universidade Estadual de Maring\u00e1"],"raw_orcid":"https://orcid.org/0000-0001-7874-9589","affiliations":[{"raw_affiliation_string":"Universidade Estadual de Maring\u00e1","institution_ids":["https://openalex.org/I123443094"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5013639568","display_name":"Mayckel da Silva Barreto","orcid":"https://orcid.org/0000-0003-2290-8418","observed_orcids":["https://orcid.org/0000-0003-2290-8418"]},"institutions":[{"id":"https://openalex.org/I123443094","display_name":"Universidade Estadual de Maring\u00e1","ror":"https://ror.org/04bqqa360","country_code":"BR","type":"education","lineage":["https://openalex.org/I123443094"]}],"countries":["BR"],"is_corresponding":false,"raw_author_name":"Mayckel da Silva Barreto","raw_affiliation_strings":["Universidade Estadual de Maring\u00e1"],"raw_orcid":"https://orcid.org/0000-0003-2290-8418","affiliations":[{"raw_affiliation_string":"Universidade Estadual de Maring\u00e1","institution_ids":["https://openalex.org/I123443094"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5028121265","display_name":"Gabriel Zanin Sanguino","orcid":"https://orcid.org/0000-0002-3273-5496","observed_orcids":["https://orcid.org/0000-0002-3273-5496"]},"institutions":[{"id":"https://openalex.org/I123443094","display_name":"Universidade Estadual de Maring\u00e1","ror":"https://ror.org/04bqqa360","country_code":"BR","type":"education","lineage":["https://openalex.org/I123443094"]}],"countries":["BR"],"is_corresponding":false,"raw_author_name":"Gabriel Zanin Sanguino","raw_affiliation_strings":["Universidade Estadual de Maring\u00e1"],"raw_orcid":"https://orcid.org/0000-0002-3273-5496","affiliations":[{"raw_affiliation_string":"Universidade Estadual de Maring\u00e1","institution_ids":["https://openalex.org/I123443094"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5064371001","display_name":"Marcelle Paiano","orcid":"https://orcid.org/0000-0002-7597-784X","observed_orcids":["https://orcid.org/0000-0002-7597-784X"]},"institutions":[{"id":"https://openalex.org/I123443094","display_name":"Universidade Estadual de Maring\u00e1","ror":"https://ror.org/04bqqa360","country_code":"BR","type":"education","lineage":["https://openalex.org/I123443094"]}],"countries":["BR"],"is_corresponding":false,"raw_author_name":"Marcelle Paiano","raw_affiliation_strings":["Universidade Estadual de Maring\u00e1"],"raw_orcid":"https://orcid.org/0000-0002-7597-784X","affiliations":[{"raw_affiliation_string":"Universidade Estadual de Maring\u00e1","institution_ids":["https://openalex.org/I123443094"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":1,"corresponding_author_ids":["https://openalex.org/A5058647864"],"corresponding_institution_ids":["https://openalex.org/I123443094"],"apc_list":null,"apc_paid":null,"fwci":0.0,"has_fulltext":true,"cited_by_count":0,"citation_normalized_percentile":{"value":0.0,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":null,"biblio":{"volume":"60","issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.5468999743461609,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.5468999743461609,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13340","display_name":"Palliative and Oncologic Care","score":0.4375,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11388","display_name":"Grief, Bereavement, and Mental Health","score":0.006000000052154064,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/palliative-care","display_name":"palliative care","score":0.9240000247955322},{"id":"https://openalex.org/keywords/family-caregivers","display_name":"family caregivers","score":0.9980000257492065},{"id":"https://openalex.org/keywords/caregiver-experiences","display_name":"caregiver experiences","score":0.6639999747276306},{"id":"https://openalex.org/keywords/emotional-ambivalence","display_name":"emotional ambivalence","score":0.8679999709129333},{"id":"https://openalex.org/keywords/coping-strategies","display_name":"coping strategies","score":0.6690000295639038},{"id":"https://openalex.org/keywords/caregiver-burden","display_name":"caregiver burden","score":0.9089999794960022},{"id":"https://openalex.org/keywords/psychosocial-support","display_name":"psychosocial support","score":0.7950000166893005},{"id":"https://openalex.org/keywords/family-ties","display_name":"family ties","score":0.4490000009536743}],"concepts":[{"id":"https://openalex.org/C122980154","wikidata":"https://www.wikidata.org/wiki/Q205555","display_name":"Feeling","level":2,"score":0.8429999947547913},{"id":"https://openalex.org/C150966472","wikidata":"https://www.wikidata.org/wiki/Q3410145","display_name":"Psychosocial","level":2,"score":0.6557999849319458},{"id":"https://openalex.org/C2994186709","wikidata":"https://www.wikidata.org/wiki/Q29483","display_name":"Palliative care","level":2,"score":0.6557000279426575},{"id":"https://openalex.org/C2779356329","wikidata":"https://www.wikidata.org/wiki/Q922625","display_name":"Checklist","level":2,"score":0.5981000065803528},{"id":"https://openalex.org/C73282008","wikidata":"https://www.wikidata.org/wiki/Q1759895","display_name":"Coping (psychology)","level":2,"score":0.5748999714851379},{"id":"https://openalex.org/C190248442","wikidata":"https://www.wikidata.org/wiki/Q839486","display_name":"Qualitative research","level":2,"score":0.5541999936103821},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.4796999990940094},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.4666000008583069},{"id":"https://openalex.org/C2778900529","wikidata":"https://www.wikidata.org/wiki/Q2827779","display_name":"Family caregivers","level":2,"score":0.3788999915122986},{"id":"https://openalex.org/C2779473830","wikidata":"https://www.wikidata.org/wiki/Q1540899","display_name":"MEDLINE","level":2,"score":0.35519999265670776},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.3330000042915344},{"id":"https://openalex.org/C542102704","wikidata":"https://www.wikidata.org/wiki/Q183257","display_name":"Psychotherapist","level":1,"score":0.3068999946117401},{"id":"https://openalex.org/C3018587665","wikidata":"https://www.wikidata.org/wiki/Q7268696","display_name":"Qualitative analysis","level":3,"score":0.30149999260902405},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.2915000021457672},{"id":"https://openalex.org/C152541439","wikidata":"https://www.wikidata.org/wiki/Q5186693","display_name":"Critical appraisal","level":3,"score":0.28450000286102295},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.25380000472068787},{"id":"https://openalex.org/C3018916638","wikidata":"https://www.wikidata.org/wiki/Q752118","display_name":"Emotional support","level":3,"score":0.25110000371932983}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.1590/1980-220x-reeusp-2025-0531en","doi":"https://doi.org/10.1590/1980-220x-reeusp-2025-0531en","is_oa":true,"landing_page_url":"https://doi.org/10.1590/1980-220x-reeusp-2025-0531en","pdf_url":"https://www.scielo.br/j/reeusp/a/p54k5VNcfMnrJjLTyFLspLp/?lang=en&format=pdf","source":{"id":"https://openalex.org/S114438711","display_name":"Revista da Escola de Enfermagem da USP","issn_l":"0080-6234","issn":["0080-6234","1980-220X"],"is_oa":true,"is_in_doaj":true,"is_core":false,"listed_in":["doaj","dongbi-d","jufo-1","medline","poland-40","russia-white-list-2","scielo"],"host_organization":"https://openalex.org/P4310312331","host_organization_name":"University of S\u00e3o Paulo","host_organization_lineage":["https://openalex.org/P4310312331"],"host_organization_lineage_names":["University of S\u00e3o Paulo"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Revista da Escola de Enfermagem da USP","raw_type":"journal-article"}],"best_oa_location":{"id":"doi:10.1590/1980-220x-reeusp-2025-0531en","doi":"https://doi.org/10.1590/1980-220x-reeusp-2025-0531en","is_oa":true,"landing_page_url":"https://doi.org/10.1590/1980-220x-reeusp-2025-0531en","pdf_url":"https://www.scielo.br/j/reeusp/a/p54k5VNcfMnrJjLTyFLspLp/?lang=en&format=pdf","source":{"id":"https://openalex.org/S114438711","display_name":"Revista da Escola de Enfermagem da USP","issn_l":"0080-6234","issn":["0080-6234","1980-220X"],"is_oa":true,"is_in_doaj":true,"is_core":false,"listed_in":["doaj","dongbi-d","jufo-1","medline","poland-40","russia-white-list-2","scielo"],"host_organization":"https://openalex.org/P4310312331","host_organization_name":"University of S\u00e3o Paulo","host_organization_lineage":["https://openalex.org/P4310312331"],"host_organization_lineage_names":["University of S\u00e3o Paulo"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Revista da Escola de Enfermagem da USP","raw_type":"journal-article"},"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","score":0.9537000060081482,"display_name":"Good health and well-being"}],"study_designs":[{"id":"https://openalex.org/study-designs/systematic-review","display_name":"Systematic Review"}],"awards":[],"funders":[],"has_content":{"pdf":true,"grobid_xml":true},"content_urls":{"pdf":"https://content.openalex.org/works/W7225629757.pdf","grobid_xml":"https://content.openalex.org/works/W7225629757.grobid-xml"},"referenced_works_count":28,"referenced_works":["https://openalex.org/W1591709114","https://openalex.org/W1593466289","https://openalex.org/W1780212935","https://openalex.org/W2086620752","https://openalex.org/W2095949118","https://openalex.org/W2125168608","https://openalex.org/W2587498364","https://openalex.org/W2778631746","https://openalex.org/W2782328651","https://openalex.org/W2788062360","https://openalex.org/W2914298715","https://openalex.org/W2981502767","https://openalex.org/W3028617834","https://openalex.org/W3033819552","https://openalex.org/W3037465594","https://openalex.org/W3042063729","https://openalex.org/W3107993053","https://openalex.org/W3118362700","https://openalex.org/W3118615836","https://openalex.org/W3198833130","https://openalex.org/W3207245022","https://openalex.org/W3216364026","https://openalex.org/W4291020893","https://openalex.org/W4306175801","https://openalex.org/W4379600664","https://openalex.org/W4386208509","https://openalex.org/W4388923894","https://openalex.org/W4389133389"],"related_works":["https://openalex.org/W7225619132","https://openalex.org/W7225640648","https://openalex.org/W7154868840","https://openalex.org/W7165114742","https://openalex.org/W3121618580","https://openalex.org/W2753419941","https://openalex.org/W2787245030","https://openalex.org/W4401827195","https://openalex.org/W4388302441","https://openalex.org/W7154995698"],"abstract_inverted_index":{"ABSTRACT":[0],"Objective:":[1],"To":[2],"synthesize":[3],"qualitative":[4,71],"evidence":[5],"on":[6],"the":[7,41,80,86,110,121,124,129,156],"feelings":[8,115,127],"experienced":[9,108],"by":[10,109,139],"family":[11,75,111],"caregivers":[12],"regarding":[13],"palliative":[14,130],"care":[15,131],"for":[16,88,158],"their":[17],"loved":[18],"ones.":[19],"Method:":[20],"A":[21],"systematic":[22],"review":[23],"with":[24,149],"meta-synthesis,":[25],"conducted":[26,39],"according":[27],"to":[28],"JBI":[29],"guidelines":[30],"and":[31,61,67,83,98,106,113,116,146,152],"registered":[32],"in":[33,40,120,142],"PROSPERO":[34],"(CRD42024595313).":[35],"The":[36,77,134],"search":[37],"was":[38],"Scopus,":[42],"Web":[43],"of":[44,65,126],"Science,":[45],"PubMed,":[46],"Virtual":[47],"Health":[48],"Library,":[49],"Excerpta":[50],"Medica":[51],"dataBASE,":[52],"PsycINFO,":[53],"Biblioteca":[54],"Digital":[55,63],"Brazileira":[56],"de":[57],"Teses":[58],"e":[59],"Disserta\u00e7\u00f5es,":[60],"Networked":[62],"Library":[64],"Theses":[66],"Dissertations":[68],"databases,":[69],"including":[70],"studies":[72,93],"involving":[73],"adult":[74],"members.":[76],"analysis":[78],"followed":[79],"meta-aggregation":[81],"approach":[82],"appraisal":[84],"using":[85],"Checklist":[87],"Qualitative":[89],"Research.":[90],"Results:":[91],"Thirty":[92],"were":[94],"included.":[95],"Six":[96],"subthemes":[97],"two":[99],"main":[100],"themes":[101],"emerged:":[102],"\u201cNegative":[103],"feelings,":[104],"challenges,":[105],"difficulties":[107],"caregiver\u201d":[112],"\u201cPositive":[114],"coping":[117],"strategies\u201d,":[118],"culminating":[119],"metatheme":[122],"\u201cExperiencing":[123],"duality":[125],"during":[128],"process\u201d.":[132],"Conclusion:":[133],"caregiver\u2019s":[135],"experience":[136],"is":[137],"marked":[138],"emotional":[140],"ambivalence,":[141],"which":[143],"suffering,":[144],"fear,":[145],"burden":[147],"coexist":[148],"affection,":[150],"resilience,":[151],"strengthened":[153],"bonds,":[154],"highlighting":[155],"need":[157],"multidimensional":[159],"psychosocial":[160],"support.":[161]},"counts_by_year":[],"updated_date":"2026-11-12T12:28:57.059296","created_date":"2026-11-10T00:00:00"}