{"id":"https://openalex.org/W7225329044","doi":"https://doi.org/10.1080/15524256.2026.2754535","title":"Families\u2019 Experiences of Social Support in a Community-Based Palliative Care Initiative in Northern Ireland","display_name":"Families\u2019 Experiences of Social Support in a Community-Based Palliative Care Initiative in Northern Ireland","publication_year":2026,"publication_date":"2026-11-05","ids":{"openalex":"https://openalex.org/W7225329044","doi":"https://doi.org/10.1080/15524256.2026.2754535"},"language":"en","primary_location":{"id":"doi:10.1080/15524256.2026.2754535","doi":"https://doi.org/10.1080/15524256.2026.2754535","is_oa":true,"landing_page_url":"https://doi.org/10.1080/15524256.2026.2754535","pdf_url":"https://www.tandfonline.com/doi/pdf/10.1080/15524256.2026.2754535?needAccess=true","source":{"id":"https://openalex.org/S4210217646","display_name":"Journal of Social Work in End-of-Life & Palliative Care","issn_l":"1552-4264","issn":["1552-4264","1552-4256"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","doyens","jufo-1","ki-jl-1","medline","poland-40","russia-white-list-1"],"host_organization":"https://openalex.org/P4310320547","host_organization_name":"Taylor & Francis","host_organization_lineage":["https://openalex.org/P4310320547","https://openalex.org/P4310320449"],"host_organization_lineage_names":["Taylor & Francis","Informa"],"type":"journal"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Social Work in End-of-Life & Palliative Care","raw_type":"journal-article"},"volume":null,"type":"article","is_traditional":true,"indexed_in":["crossref"],"open_access":{"is_oa":true,"oa_status":"hybrid","oa_url":"https://www.tandfonline.com/doi/pdf/10.1080/15524256.2026.2754535?needAccess=true","any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5111716232","display_name":"Patricia Brissette Burns","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I138801177","display_name":"University of Ulster","ror":"https://ror.org/01yp9g959","country_code":"GB","type":"education","lineage":["https://openalex.org/I138801177"]},{"id":"https://openalex.org/I4405260289","display_name":"Ulster University, Derry-Londonderry Campus","ror":"https://ror.org/03hab3x36","country_code":"GB","type":"education","lineage":["https://openalex.org/I138801177","https://openalex.org/I4405260289"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Patricia Burns","raw_affiliation_strings":["Lecturer in Social Work, School of Applied Social and Policy Sciences, Ulster University"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Lecturer in Social Work, School of Applied Social and Policy Sciences, Ulster University","institution_ids":["https://openalex.org/I138801177","https://openalex.org/I4405260289"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5043259731","display_name":"Tony McGinn","orcid":"https://orcid.org/0000-0001-9465-5523","observed_orcids":["https://orcid.org/0000-0001-9465-5523"]},"institutions":[{"id":"https://openalex.org/I138801177","display_name":"University of Ulster","ror":"https://ror.org/01yp9g959","country_code":"GB","type":"education","lineage":["https://openalex.org/I138801177"]},{"id":"https://openalex.org/I4405260289","display_name":"Ulster University, Derry-Londonderry Campus","ror":"https://ror.org/03hab3x36","country_code":"GB","type":"education","lineage":["https://openalex.org/I138801177","https://openalex.org/I4405260289"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Tony McGinn","raw_affiliation_strings":["Lecturer in Social Work, School of Applied Social and Policy Sciences, Ulster University"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Lecturer in Social Work, School of Applied Social and Policy Sciences, Ulster University","institution_ids":["https://openalex.org/I138801177","https://openalex.org/I4405260289"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5137802702","display_name":"Brian Crossan","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I138801177","display_name":"University of Ulster","ror":"https://ror.org/01yp9g959","country_code":"GB","type":"education","lineage":["https://openalex.org/I138801177"]}],"countries":["GB"],"is_corresponding":true,"raw_author_name":"Brian Crossan","raw_affiliation_strings":["School of Applied Social and Policy Sciences, Ulster University"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"School of Applied Social and Policy Sciences, Ulster University","institution_ids":["https://openalex.org/I138801177"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5045477569","display_name":"Martin McGinn","orcid":"https://orcid.org/0000-0002-2909-7200","observed_orcids":["https://orcid.org/0000-0002-2909-7200"]},"institutions":[{"id":"https://openalex.org/I138801177","display_name":"University of Ulster","ror":"https://ror.org/01yp9g959","country_code":"GB","type":"education","lineage":["https://openalex.org/I138801177"]},{"id":"https://openalex.org/I4405260289","display_name":"Ulster University, Derry-Londonderry Campus","ror":"https://ror.org/03hab3x36","country_code":"GB","type":"education","lineage":["https://openalex.org/I138801177","https://openalex.org/I4405260289"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Martin McGinn","raw_affiliation_strings":["Lecturer in Design, Ulster University"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Lecturer in Design, Ulster University","institution_ids":["https://openalex.org/I138801177","https://openalex.org/I4405260289"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5021690125","display_name":"Henry McLaughlin","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Henry McLaughlin","raw_affiliation_strings":["Life & Time, Rostrevor"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Life & Time, Rostrevor","institution_ids":[]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":2,"corresponding_author_ids":["https://openalex.org/A5137802702"],"corresponding_institution_ids":["https://openalex.org/I138801177"],"apc_list":null,"apc_paid":null,"fwci":0.0,"has_fulltext":true,"cited_by_count":0,"citation_normalized_percentile":{"value":0.0,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":null,"biblio":{"volume":null,"issue":null,"first_page":"1","last_page":"17"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.9345999956130981,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.9345999956130981,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13340","display_name":"Palliative and Oncologic Care","score":0.060499999672174454,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11388","display_name":"Grief, Bereavement, and Mental Health","score":0.002099999925121665,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/community-based-palliative-care","display_name":"community-based palliative care","score":0.9660000205039978},{"id":"https://openalex.org/keywords/family-experiences","display_name":"family experiences","score":0.8180000185966492},{"id":"https://openalex.org/keywords/social-support","display_name":"social support","score":0.9390000104904175},{"id":"https://openalex.org/keywords/bereavement","display_name":"bereavement","score":0.6589999794960022},{"id":"https://openalex.org/keywords/person-centred-care","display_name":"person-centred care","score":0.6520000100135803},{"id":"https://openalex.org/keywords/relationship-centered-care","display_name":"relationship-centered care","score":0.753000020980835},{"id":"https://openalex.org/keywords/home-death","display_name":"home death","score":0.5070000290870667},{"id":"https://openalex.org/keywords/northern-ireland","display_name":"Northern Ireland","score":0.7400000095367432},{"id":"https://openalex.org/keywords/multidisciplinary-services","display_name":"multidisciplinary services","score":0.593999981880188}],"concepts":[{"id":"https://openalex.org/C2994186709","wikidata":"https://www.wikidata.org/wiki/Q29483","display_name":"Palliative care","level":2,"score":0.7730000019073486},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.7682999968528748},{"id":"https://openalex.org/C74196892","wikidata":"https://www.wikidata.org/wiki/Q7781188","display_name":"Thematic analysis","level":3,"score":0.6313999891281128},{"id":"https://openalex.org/C16920402","wikidata":"https://www.wikidata.org/wiki/Q205398","display_name":"Social work","level":2,"score":0.6166999936103821},{"id":"https://openalex.org/C2778087770","wikidata":"https://www.wikidata.org/wiki/Q2297111","display_name":"Social support","level":2,"score":0.5871000289916992},{"id":"https://openalex.org/C22467394","wikidata":"https://www.wikidata.org/wiki/Q849359","display_name":"Multidisciplinary approach","level":2,"score":0.5680000185966492},{"id":"https://openalex.org/C73282008","wikidata":"https://www.wikidata.org/wiki/Q1759895","display_name":"Coping (psychology)","level":2,"score":0.5006999969482422},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.4526999890804291},{"id":"https://openalex.org/C18762648","wikidata":"https://www.wikidata.org/wiki/Q42213","display_name":"Work (physics)","level":2,"score":0.38920000195503235},{"id":"https://openalex.org/C2780665704","wikidata":"https://www.wikidata.org/wiki/Q959298","display_name":"Intervention (counseling)","level":2,"score":0.3840000033378601},{"id":"https://openalex.org/C2780378061","wikidata":"https://www.wikidata.org/wiki/Q25351891","display_name":"Service (business)","level":2,"score":0.33340001106262207},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.32600000500679016},{"id":"https://openalex.org/C2779017400","wikidata":"https://www.wikidata.org/wiki/Q5433390","display_name":"Family support","level":2,"score":0.32589998841285706},{"id":"https://openalex.org/C3018916638","wikidata":"https://www.wikidata.org/wiki/Q752118","display_name":"Emotional support","level":3,"score":0.3248000144958496},{"id":"https://openalex.org/C3019011928","wikidata":"https://www.wikidata.org/wiki/Q26","display_name":"Northern ireland","level":2,"score":0.3221000134944916},{"id":"https://openalex.org/C190248442","wikidata":"https://www.wikidata.org/wiki/Q839486","display_name":"Qualitative research","level":2,"score":0.3138999938964844},{"id":"https://openalex.org/C116537","wikidata":"https://www.wikidata.org/wiki/Q2169973","display_name":"Service provider","level":3,"score":0.3093000054359436},{"id":"https://openalex.org/C56995899","wikidata":"https://www.wikidata.org/wiki/Q1126687","display_name":"Focus group","level":2,"score":0.30169999599456787},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.298799991607666},{"id":"https://openalex.org/C2778900529","wikidata":"https://www.wikidata.org/wiki/Q2827779","display_name":"Family caregivers","level":2,"score":0.2962000072002411},{"id":"https://openalex.org/C28718268","wikidata":"https://www.wikidata.org/wiki/Q4118620","display_name":"Needs assessment","level":2,"score":0.289900004863739},{"id":"https://openalex.org/C199033989","wikidata":"https://www.wikidata.org/wiki/Q1318295","display_name":"Narrative","level":2,"score":0.2791000008583069},{"id":"https://openalex.org/C536738050","wikidata":"https://www.wikidata.org/wiki/Q3249071","display_name":"Social Welfare","level":2,"score":0.2752000093460083},{"id":"https://openalex.org/C2994130222","wikidata":"https://www.wikidata.org/wiki/Q205398","display_name":"Social care","level":2,"score":0.26899999380111694},{"id":"https://openalex.org/C2779473830","wikidata":"https://www.wikidata.org/wiki/Q1540899","display_name":"MEDLINE","level":2,"score":0.2556000053882599},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.25290000438690186},{"id":"https://openalex.org/C2993365623","wikidata":"https://www.wikidata.org/wiki/Q2043121","display_name":"Community service","level":2,"score":0.25130000710487366}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.1080/15524256.2026.2754535","doi":"https://doi.org/10.1080/15524256.2026.2754535","is_oa":true,"landing_page_url":"https://doi.org/10.1080/15524256.2026.2754535","pdf_url":"https://www.tandfonline.com/doi/pdf/10.1080/15524256.2026.2754535?needAccess=true","source":{"id":"https://openalex.org/S4210217646","display_name":"Journal of Social Work in End-of-Life & Palliative Care","issn_l":"1552-4264","issn":["1552-4264","1552-4256"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","doyens","jufo-1","ki-jl-1","medline","poland-40","russia-white-list-1"],"host_organization":"https://openalex.org/P4310320547","host_organization_name":"Taylor & Francis","host_organization_lineage":["https://openalex.org/P4310320547","https://openalex.org/P4310320449"],"host_organization_lineage_names":["Taylor & Francis","Informa"],"type":"journal"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Social Work in End-of-Life & Palliative Care","raw_type":"journal-article"}],"best_oa_location":{"id":"doi:10.1080/15524256.2026.2754535","doi":"https://doi.org/10.1080/15524256.2026.2754535","is_oa":true,"landing_page_url":"https://doi.org/10.1080/15524256.2026.2754535","pdf_url":"https://www.tandfonline.com/doi/pdf/10.1080/15524256.2026.2754535?needAccess=true","source":{"id":"https://openalex.org/S4210217646","display_name":"Journal of Social Work in End-of-Life & Palliative Care","issn_l":"1552-4264","issn":["1552-4264","1552-4256"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","doyens","jufo-1","ki-jl-1","medline","poland-40","russia-white-list-1"],"host_organization":"https://openalex.org/P4310320547","host_organization_name":"Taylor & Francis","host_organization_lineage":["https://openalex.org/P4310320547","https://openalex.org/P4310320449"],"host_organization_lineage_names":["Taylor & Francis","Informa"],"type":"journal"},"license":"cc-by-nc","license_id":"https://openalex.org/licenses/cc-by-nc","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Social Work in End-of-Life & Palliative Care","raw_type":"journal-article"},"sustainable_development_goals":[{"score":0.8371999859809875,"display_name":"Good health and well-being","id":"https://metadata.un.org/sdg/3"}],"study_designs":[],"awards":[],"funders":[{"id":"https://openalex.org/F4320314204","display_name":"Invest Northern Ireland","ror":"https://ror.org/00qnrsq87"},{"id":"https://openalex.org/F4320320859","display_name":"Ulster University","ror":"https://ror.org/01yp9g959"}],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W7225329044.pdf","grobid_xml":"https://content.openalex.org/works/W7225329044.grobid-xml"},"referenced_works_count":18,"referenced_works":["https://openalex.org/W1979290264","https://openalex.org/W2018864948","https://openalex.org/W2079142293","https://openalex.org/W2123337715","https://openalex.org/W2495102571","https://openalex.org/W2612970249","https://openalex.org/W2762413879","https://openalex.org/W2921302310","https://openalex.org/W2982253103","https://openalex.org/W3011377517","https://openalex.org/W3033319365","https://openalex.org/W3132295231","https://openalex.org/W3171738022","https://openalex.org/W3212744870","https://openalex.org/W3216085686","https://openalex.org/W4285891506","https://openalex.org/W4313066591","https://openalex.org/W4385289125"],"related_works":["https://openalex.org/W2050838028","https://openalex.org/W2152294213","https://openalex.org/W4306970092","https://openalex.org/W2967831941","https://openalex.org/W7134152207","https://openalex.org/W2809694152","https://openalex.org/W2071850225","https://openalex.org/W2626972127","https://openalex.org/W7131619729","https://openalex.org/W2006792184"],"abstract_inverted_index":{"Growing":[0],"demand":[1],"for":[2,8,36,94,120],"community-based":[3,52],"palliative":[4,53,85,175],"care":[5,12,54],"presents":[6],"challenges":[7],"health":[9],"and":[10,38,97,118,124,140,144,169,189,196],"social":[11,87,159,183],"services":[13,193],"across":[14],"the":[15,46,136,157,164],"United":[16],"Kingdom.":[17],"In":[18],"Northern":[19],"Ireland,":[20],"more":[21],"people":[22],"want":[23],"to":[24,60,63],"remain":[25],"at":[26,65,198],"home":[27],"during":[28],"life\u2019s":[29],"final":[30],"stages,":[31],"requiring":[32],"responsive,":[33,132,167],"personalized":[34],"support":[35,59,155,172],"patients":[37,195],"families.":[39,145],"This":[40],"study":[41],"explored":[42],"family":[43,74,86],"experiences":[44],"of":[45,115,166],"\u2018Life":[47],"&":[48],"Time\u2019":[49],"initiative,":[50],"a":[51,83],"service":[55],"providing":[56],"overnight":[57,78],"nursing":[58,79,154],"individuals":[61],"wishing":[62],"die":[64],"home.":[66,199],"Semi-structured":[67],"interviews":[68],"were":[69,100],"conducted":[70],"with":[71],"17":[72],"bereaved":[73],"members":[75],"who":[76],"received":[77],"alone":[80],"or":[81],"alongside":[82],"brief":[84],"work":[88,160,184],"intervention":[89],"addressing":[90],"emotional":[91],"support,":[92],"preparation":[93],"loss,":[95],"coping":[96],"bereavement.":[98],"Data":[99],"analyzed":[101],"using":[102],"an":[103],"inductive":[104],"thematic":[105],"approach.":[106],"Five":[107],"themes":[108],"emerged:":[109],"Reliably":[110],"Responsive":[111],"Care,":[112],"A":[113,125],"Culture":[114],"Kindness,":[116],"Reassurance":[117],"Preparation":[119],"Loss,":[121],"Community":[122],"Matters,":[123],"System":[126],"Under":[127],"Pressure.":[128],"Participants":[129],"described":[130],"compassionate,":[131],"person-centered":[133],"care,":[134,176],"valuing":[135],"service\u2019s":[137],"local":[138],"nature":[139],"relationships":[141],"between":[142],"staff":[143],"However,":[146],"there":[147],"was":[148],"limited":[149],"evidence":[150],"that":[151],"families":[152,197],"distinguished":[153],"from":[156],"additional":[158],"intervention.":[161],"Findings":[162],"highlight":[163],"importance":[165],"relationship-based":[168],"locally":[170],"embedded":[171],"within":[173,191],"community":[174],"while":[177],"raising":[178],"questions":[179],"about":[180],"how":[181],"specialist":[182],"contributions":[185],"are":[186],"recognized,":[187],"defined":[188],"integrated":[190],"multidisciplinary":[192],"supporting":[194]},"counts_by_year":[],"updated_date":"2026-11-07T11:25:07.637180","created_date":"2026-11-06T00:00:00"}