{"id":"https://openalex.org/W7225230899","doi":"https://doi.org/10.1186/s12904-026-02406-4","title":"Developing a Canadian lexicon for pediatric palliative care: a modified Delphi study","display_name":"Developing a Canadian lexicon for pediatric palliative care: a modified Delphi study","publication_year":2026,"publication_date":"2026-11-04","ids":{"openalex":"https://openalex.org/W7225230899","doi":"https://doi.org/10.1186/s12904-026-02406-4"},"language":"en","primary_location":{"id":"doi:10.1186/s12904-026-02406-4","doi":"https://doi.org/10.1186/s12904-026-02406-4","is_oa":true,"landing_page_url":"https://doi.org/10.1186/s12904-026-02406-4","pdf_url":null,"source":{"id":"https://openalex.org/S169992948","display_name":"BMC Palliative Care","issn_l":"1472-684X","issn":["1472-684X"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","dongbi-d","doyens","jufo-1","ki-jl-1","medline","norway-1","oarl","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320256","host_organization_name":"BioMed Central","host_organization_lineage":["https://openalex.org/P4310320256","https://openalex.org/P4310319965"],"host_organization_lineage_names":["BioMed Central","Springer Nature"],"type":"journal"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"BMC Palliative Care","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref","doaj"],"open_access":{"is_oa":true,"oa_status":"gold","oa_url":"https://doi.org/10.1186/s12904-026-02406-4","any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5067730222","display_name":"Liana Bailey","orcid":"https://orcid.org/0000-0001-8944-9573","observed_orcids":["https://orcid.org/0000-0001-8944-9573"]},"institutions":[{"id":"https://openalex.org/I153718931","display_name":"University of Ottawa","ror":"https://ror.org/03c4mmv16","country_code":"CA","type":"education","lineage":["https://openalex.org/I153718931"]}],"countries":["CA"],"is_corresponding":true,"raw_author_name":"Liana Bailey","raw_affiliation_strings":["Canada\u2019s Pediatric Palliative Care Alliance, Ottawa, ON, Canada","Roger Neilson Children\u2019s Hospice, Ottawa, ON, Canada","School of Nursing, Faculty of Health Sciences, University of Ottawa, Ottawa, ON, Canada"],"raw_orcid":"https://orcid.org/0000-0001-8944-9573","affiliations":[{"raw_affiliation_string":"Canada\u2019s Pediatric Palliative Care Alliance, Ottawa, ON, Canada","institution_ids":[]},{"raw_affiliation_string":"Roger Neilson Children\u2019s Hospice, Ottawa, ON, Canada","institution_ids":[]},{"raw_affiliation_string":"School of Nursing, Faculty of Health Sciences, University of Ottawa, Ottawa, ON, Canada","institution_ids":["https://openalex.org/I153718931"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5017189646","display_name":"Kira Goodman","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Kira Goodman","raw_affiliation_strings":["Canada\u2019s Pediatric Palliative Care Alliance, Ottawa, ON, Canada","Roger Neilson Children\u2019s Hospice, Ottawa, ON, Canada"],"raw_orcid":"https://orcid.org/0009-0008-0744-4436","affiliations":[{"raw_affiliation_string":"Canada\u2019s Pediatric Palliative Care Alliance, Ottawa, ON, Canada","institution_ids":[]},{"raw_affiliation_string":"Roger Neilson Children\u2019s Hospice, Ottawa, ON, Canada","institution_ids":[]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5091066551","display_name":"David L. Lysecki","orcid":"https://orcid.org/0000-0002-6059-0052","observed_orcids":["https://orcid.org/0000-0002-6059-0052"]},"institutions":[{"id":"https://openalex.org/I98251732","display_name":"McMaster University","ror":"https://ror.org/02fa3aq29","country_code":"CA","type":"education","lineage":["https://openalex.org/I98251732"]}],"countries":["CA"],"is_corresponding":false,"raw_author_name":"David L. Lysecki","raw_affiliation_strings":["Canada\u2019s Pediatric Palliative Care Alliance, Ottawa, ON, Canada","Department of Pediatrics, McMaster University, Hamilton, ON, Canada"],"raw_orcid":"https://orcid.org/0000-0002-6059-0052","affiliations":[{"raw_affiliation_string":"Canada\u2019s Pediatric Palliative Care Alliance, Ottawa, ON, Canada","institution_ids":[]},{"raw_affiliation_string":"Department of Pediatrics, McMaster University, Hamilton, ON, Canada","institution_ids":["https://openalex.org/I98251732"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":2,"corresponding_author_ids":["https://openalex.org/A5067730222"],"corresponding_institution_ids":["https://openalex.org/I153718931"],"apc_list":{"value":2990,"currency":"USD","value_usd":2990},"apc_paid":{"value":2990,"currency":"USD","value_usd":2990},"fwci":0.0,"has_fulltext":false,"cited_by_count":0,"citation_normalized_percentile":{"value":0.88023313,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":null,"biblio":{"volume":null,"issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.48730000853538513,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.48730000853538513,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13340","display_name":"Palliative and Oncologic Care","score":0.4562999904155731,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T12443","display_name":"Delphi Technique in Research","score":0.008200000040233135,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[],"concepts":[{"id":"https://openalex.org/C547195049","wikidata":"https://www.wikidata.org/wiki/Q1725664","display_name":"Terminology","level":2,"score":0.8662999868392944},{"id":"https://openalex.org/C2778121359","wikidata":"https://www.wikidata.org/wiki/Q8096","display_name":"Lexicon","level":2,"score":0.8294000029563904},{"id":"https://openalex.org/C109359841","wikidata":"https://www.wikidata.org/wiki/Q728944","display_name":"Inclusion (mineral)","level":2,"score":0.7455000281333923},{"id":"https://openalex.org/C60641444","wikidata":"https://www.wikidata.org/wiki/Q841602","display_name":"Delphi method","level":2,"score":0.7109000086784363},{"id":"https://openalex.org/C2779495148","wikidata":"https://www.wikidata.org/wiki/Q487378","display_name":"Delphi","level":2,"score":0.6330000162124634},{"id":"https://openalex.org/C2994186709","wikidata":"https://www.wikidata.org/wiki/Q29483","display_name":"Palliative care","level":2,"score":0.5928000211715698},{"id":"https://openalex.org/C2777855551","wikidata":"https://www.wikidata.org/wiki/Q12310021","display_name":"Subject (documents)","level":2,"score":0.4700999855995178},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.43130001425743103},{"id":"https://openalex.org/C509550671","wikidata":"https://www.wikidata.org/wiki/Q126945","display_name":"Medical education","level":1,"score":0.4268999993801117},{"id":"https://openalex.org/C2991975920","wikidata":"https://www.wikidata.org/wiki/Q621261","display_name":"Pain medicine","level":3,"score":0.40070000290870667},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.39890000224113464},{"id":"https://openalex.org/C2779473830","wikidata":"https://www.wikidata.org/wiki/Q1540899","display_name":"MEDLINE","level":2,"score":0.3732999861240387},{"id":"https://openalex.org/C206497026","wikidata":"https://www.wikidata.org/wiki/Q1753883","display_name":"SNOMED CT","level":3,"score":0.31869998574256897},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.31630000472068787},{"id":"https://openalex.org/C61797465","wikidata":"https://www.wikidata.org/wiki/Q1188986","display_name":"Term (time)","level":2,"score":0.2919999957084656},{"id":"https://openalex.org/C9652623","wikidata":"https://www.wikidata.org/wiki/Q190109","display_name":"Field (mathematics)","level":2,"score":0.2696000039577484}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.1186/s12904-026-02406-4","doi":"https://doi.org/10.1186/s12904-026-02406-4","is_oa":true,"landing_page_url":"https://doi.org/10.1186/s12904-026-02406-4","pdf_url":null,"source":{"id":"https://openalex.org/S169992948","display_name":"BMC Palliative Care","issn_l":"1472-684X","issn":["1472-684X"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","dongbi-d","doyens","jufo-1","ki-jl-1","medline","norway-1","oarl","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320256","host_organization_name":"BioMed Central","host_organization_lineage":["https://openalex.org/P4310320256","https://openalex.org/P4310319965"],"host_organization_lineage_names":["BioMed Central","Springer Nature"],"type":"journal"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"BMC Palliative Care","raw_type":"journal-article"}],"best_oa_location":{"id":"doi:10.1186/s12904-026-02406-4","doi":"https://doi.org/10.1186/s12904-026-02406-4","is_oa":true,"landing_page_url":"https://doi.org/10.1186/s12904-026-02406-4","pdf_url":null,"source":{"id":"https://openalex.org/S169992948","display_name":"BMC Palliative Care","issn_l":"1472-684X","issn":["1472-684X"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","dongbi-d","doyens","jufo-1","ki-jl-1","medline","norway-1","oarl","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320256","host_organization_name":"BioMed Central","host_organization_lineage":["https://openalex.org/P4310320256","https://openalex.org/P4310319965"],"host_organization_lineage_names":["BioMed Central","Springer Nature"],"type":"journal"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"BMC Palliative Care","raw_type":"journal-article"},"sustainable_development_goals":[],"study_designs":[],"awards":[],"funders":[],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":0,"referenced_works":[],"related_works":[],"abstract_inverted_index":{"Pediatric":[0],"Palliative":[1],"Care":[2],"(PPC)":[3],"has":[4,21],"long":[5],"been":[6],"subject":[7],"to":[8,24,55,95,115,148,156,187,201],"various":[9],"misconceptions":[10],"about":[11],"its":[12],"purpose,":[13],"potential,":[14],"and":[15,18,27,47,87,111,122,139,168,173,180,203,220],"integration.":[16],"Clear":[17],"agreed-upon":[19],"language":[20,41],"the":[22,43,100,116,126,149,225],"potential":[23],"help":[25],"demystify":[26],"improve":[28],"awareness":[29],"of":[30,32,36,61,77,83,93,119,151,159,185,197,227],"tenets":[31],"PPC.":[33],"Variable":[34],"use":[35,226],"terminology":[37,98],"suggests":[38],"that":[39],"current":[40,97],"in":[42,63,229,231],"field":[44],"is":[45],"shifting":[46],"would":[48],"benefit":[49],"from":[50],"consensus-finding.":[51],"This":[52,214],"study":[53],"aimed":[54],"refine":[56],"an":[57,106],"up-to-date":[58],"Canadian":[59,79,193],"lexicon":[60,215],"terms":[62,121,133,141,172,199,228],"PPC":[64,80,202,230],"using":[65],"a":[66,88,157,183,189],"consensus-based":[67],"modified":[68,211],"Delphi":[69,128,145,212],"approach":[70],"with":[71,130],"key":[72],"interest-holders.":[73],"A":[74,195],"small":[75],"panel":[76],"ten":[78],"experts,":[81,131],"comprised":[82],"multiple":[84],"disciplines,":[85],"locations,":[86],"parent":[89],"partner,":[90],"completed":[91],"rounds":[92],"consultation":[94,112],"define":[96],"for":[99,192,224],"field.":[101],"The":[102,143],"research":[103],"team":[104],"conducted":[105],"environmental":[107],"scan,":[108],"literature":[109],"review,":[110],"meeting":[113],"leading":[114,155],"initial":[117],"inclusion":[118,150],"50":[120],"their":[123,174,204,232],"definitions.":[124],"Following":[125],"first":[127],"round":[129,146],"47":[132],"were":[134,176,207],"included,":[135],"one":[136],"term":[137],"excluded,":[138],"two":[140],"revised.":[142],"second":[144],"led":[147],"both":[152],"revised":[153],"terms,":[154,162],"total":[158,196],"49":[160,198],"included":[161],"defined,":[163],"as":[164,166,222],"well":[165],"endorsed":[167],"denounced":[169],"language.":[170],"These":[171],"definitions":[175,206],"translated":[177],"into":[178],"French":[179],"peer-reviewed":[181],"by":[182],"subset":[184],"participants":[186],"develop":[188],"bilingual":[190],"version":[191],"use.":[194],"related":[200],"respective":[205],"produced":[208],"through":[209],"this":[210],"study.":[213],"can":[216],"serve":[217],"clinicians,":[218],"educators,":[219],"researchers":[221],"standard":[223],"work.":[233]},"counts_by_year":[],"updated_date":"2026-11-05T12:25:35.769452","created_date":"2026-11-05T00:00:00"}