{"id":"https://openalex.org/W7225229774","doi":"https://doi.org/10.1097/njh.0000000000001269","title":"Comparing Rural Versus Urban Pediatric Hospice Recipients, 2011 to 2022","display_name":"Comparing Rural Versus Urban Pediatric Hospice Recipients, 2011 to 2022","publication_year":2026,"publication_date":"2026-11-04","ids":{"openalex":"https://openalex.org/W7225229774","doi":"https://doi.org/10.1097/njh.0000000000001269","pmid":"https://pubmed.ncbi.nlm.nih.gov/42980057"},"language":"en","primary_location":{"id":"doi:10.1097/njh.0000000000001269","doi":"https://doi.org/10.1097/njh.0000000000001269","is_oa":false,"landing_page_url":"https://doi.org/10.1097/njh.0000000000001269","pdf_url":null,"source":{"id":"https://openalex.org/S82245262","display_name":"Journal of Hospice and Palliative Nursing","issn_l":"1522-2179","issn":["1522-2179","1539-0705"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-c","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-40","russia-white-list-2","vabb-shw"],"host_organization":"https://openalex.org/P4310315671","host_organization_name":"Lippincott Williams & Wilkins","host_organization_lineage":["https://openalex.org/P4310315671","https://openalex.org/P4310318547"],"host_organization_lineage_names":["Lippincott Williams & Wilkins","Wolters Kluwer"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Hospice & Palliative Nursing","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5057587972","display_name":"Lisa C. Lindley","orcid":"https://orcid.org/0000-0003-2960-7896","observed_orcids":["https://orcid.org/0000-0003-2960-7896"]},"institutions":[{"id":"https://openalex.org/I2802706902","display_name":"Knoxville College","ror":"https://ror.org/02bxrp522","country_code":"US","type":"education","lineage":["https://openalex.org/I2802706902"]},{"id":"https://openalex.org/I75027704","display_name":"University of Tennessee at Knoxville","ror":"https://ror.org/020f3ap87","country_code":"US","type":"education","lineage":["https://openalex.org/I75027704"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Lisa C. Lindley","raw_affiliation_strings":["Lisa C. Lindley, PhD, RN, FPCN, FAAN, is professor, College of Nursing, University of Tennessee, Knoxville"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Lisa C. Lindley, PhD, RN, FPCN, FAAN, is professor, College of Nursing, University of Tennessee, Knoxville","institution_ids":["https://openalex.org/I2802706902","https://openalex.org/I75027704"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5082942004","display_name":"Radion Svynarenko","orcid":"https://orcid.org/0000-0002-7568-529X","observed_orcids":["https://orcid.org/0000-0002-7568-529X"]},"institutions":[{"id":"https://openalex.org/I75027704","display_name":"University of Tennessee at Knoxville","ror":"https://ror.org/020f3ap87","country_code":"US","type":"education","lineage":["https://openalex.org/I75027704"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Radion Svynarenko","raw_affiliation_strings":["Radion Svynarenko, PhD, is research assistant professor, College of Nursing, University of Tennessee, Knoxville"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Radion Svynarenko, PhD, is research assistant professor, College of Nursing, University of Tennessee, Knoxville","institution_ids":["https://openalex.org/I75027704"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5124734059","display_name":"Charles Cao","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I75027704","display_name":"University of Tennessee at Knoxville","ror":"https://ror.org/020f3ap87","country_code":"US","type":"education","lineage":["https://openalex.org/I75027704"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Charles Cao","raw_affiliation_strings":["Charles Cao, PhD, is associate professor, Min H. Kao Department of Electrical Engineering and Computer Science, University of Tennessee, Knoxville"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Charles Cao, PhD, is associate professor, Min H. Kao Department of Electrical Engineering and Computer Science, University of Tennessee, Knoxville","institution_ids":["https://openalex.org/I75027704"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5074834460","display_name":"Melanie J. Cozad","orcid":"https://orcid.org/0000-0001-6023-6910","observed_orcids":["https://orcid.org/0000-0001-6023-6910"]},"institutions":[{"id":"https://openalex.org/I59130452","display_name":"University of Nebraska Medical Center","ror":"https://ror.org/00thqtb16","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I59130452"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Melanie J. Cozad","raw_affiliation_strings":["Melanie J. Cozad, PhD, is associate professor, Department of Health Services Research and Administration, University of Nebraska Medical Center, Omaha"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Melanie J. Cozad, PhD, is associate professor, Department of Health Services Research and Administration, University of Nebraska Medical Center, Omaha","institution_ids":["https://openalex.org/I59130452"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5060545663","display_name":"Jessica Keim\u2010Malpass","orcid":"https://orcid.org/0000-0002-7035-8556","observed_orcids":["https://orcid.org/0000-0002-7035-8556"]},"institutions":[{"id":"https://openalex.org/I51556381","display_name":"University of Virginia","ror":"https://ror.org/0153tk833","country_code":"US","type":"education","lineage":["https://openalex.org/I51556381"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Jessica Keim-Malpass","raw_affiliation_strings":["Jessica Keim-Malpass, PhD, APRN, FAAN, is M.Y. Boyd professor of nursing, School of Nursing, University of Virginia, Charlottesville"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Jessica Keim-Malpass, PhD, APRN, FAAN, is M.Y. Boyd professor of nursing, School of Nursing, University of Virginia, Charlottesville","institution_ids":["https://openalex.org/I51556381"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":4,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":0.0,"has_fulltext":false,"cited_by_count":0,"citation_normalized_percentile":{"value":0.88017495,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":null,"biblio":{"volume":null,"issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.9779999852180481,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.9779999852180481,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13340","display_name":"Palliative and Oncologic Care","score":0.0142000000923872,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10391","display_name":"Healthcare Policy and Management","score":0.0013000000035390258,"subfield":{"id":"https://openalex.org/subfields/2002","display_name":"Economics and Econometrics"},"field":{"id":"https://openalex.org/fields/20","display_name":"Economics, Econometrics and Finance"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[],"concepts":[{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.7085000276565552},{"id":"https://openalex.org/C2776534028","wikidata":"https://www.wikidata.org/wiki/Q1141363","display_name":"Medicaid","level":3,"score":0.6396999955177307},{"id":"https://openalex.org/C2776269092","wikidata":"https://www.wikidata.org/wiki/Q1611074","display_name":"Residence","level":2,"score":0.5339999794960022},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.4722999930381775},{"id":"https://openalex.org/C129047720","wikidata":"https://www.wikidata.org/wiki/Q175185","display_name":"Rural area","level":2,"score":0.4551999866962433},{"id":"https://openalex.org/C2780724011","wikidata":"https://www.wikidata.org/wiki/Q1295316","display_name":"Emergency department","level":2,"score":0.4131999909877777},{"id":"https://openalex.org/C3017577407","wikidata":"https://www.wikidata.org/wiki/Q608152","display_name":"Hospice care","level":3,"score":0.3955000042915344},{"id":"https://openalex.org/C124306116","wikidata":"https://www.wikidata.org/wiki/Q2512965","display_name":"Ambulatory care","level":3,"score":0.3564999997615814},{"id":"https://openalex.org/C134362201","wikidata":"https://www.wikidata.org/wiki/Q317309","display_name":"Mental health","level":2,"score":0.3474999964237213},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.33640000224113464},{"id":"https://openalex.org/C147077947","wikidata":"https://www.wikidata.org/wiki/Q1515895","display_name":"Socioeconomic status","level":3,"score":0.32760000228881836},{"id":"https://openalex.org/C2984752397","wikidata":"https://www.wikidata.org/wiki/Q3259956","display_name":"Primary care","level":2,"score":0.32499998807907104},{"id":"https://openalex.org/C3018838755","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Medical care","level":2,"score":0.3163999915122986},{"id":"https://openalex.org/C74909509","wikidata":"https://www.wikidata.org/wiki/Q10387","display_name":"Gerontology","level":1,"score":0.2962000072002411},{"id":"https://openalex.org/C2779473830","wikidata":"https://www.wikidata.org/wiki/Q1540899","display_name":"MEDLINE","level":2,"score":0.2953000068664551},{"id":"https://openalex.org/C3018075012","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Medical services","level":3,"score":0.2939999997615814},{"id":"https://openalex.org/C70036468","wikidata":"https://www.wikidata.org/wiki/Q131288","display_name":"Immigration","level":2,"score":0.28679999709129333},{"id":"https://openalex.org/C2779958979","wikidata":"https://www.wikidata.org/wiki/Q3473027","display_name":"Rural health","level":3,"score":0.2867000102996826},{"id":"https://openalex.org/C27415008","wikidata":"https://www.wikidata.org/wiki/Q7256382","display_name":"Psychological intervention","level":2,"score":0.2793000042438507},{"id":"https://openalex.org/C2775909303","wikidata":"https://www.wikidata.org/wiki/Q3259564","display_name":"Inpatient care","level":3,"score":0.27889999747276306},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.27320000529289246},{"id":"https://openalex.org/C2992545881","wikidata":"https://www.wikidata.org/wiki/Q6817473","display_name":"Mental health care","level":3,"score":0.26739999651908875},{"id":"https://openalex.org/C545542383","wikidata":"https://www.wikidata.org/wiki/Q2751242","display_name":"Medical emergency","level":1,"score":0.26089999079704285},{"id":"https://openalex.org/C2780877353","wikidata":"https://www.wikidata.org/wiki/Q2518253","display_name":"Health services research","level":3,"score":0.25949999690055847},{"id":"https://openalex.org/C3020486378","wikidata":"https://www.wikidata.org/wiki/Q5188450","display_name":"Culturally appropriate","level":2,"score":0.2572000026702881},{"id":"https://openalex.org/C149923435","wikidata":"https://www.wikidata.org/wiki/Q37732","display_name":"Demography","level":1,"score":0.2517000138759613}],"mesh":[],"locations_count":2,"locations":[{"id":"doi:10.1097/njh.0000000000001269","doi":"https://doi.org/10.1097/njh.0000000000001269","is_oa":false,"landing_page_url":"https://doi.org/10.1097/njh.0000000000001269","pdf_url":null,"source":{"id":"https://openalex.org/S82245262","display_name":"Journal of Hospice and Palliative Nursing","issn_l":"1522-2179","issn":["1522-2179","1539-0705"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-c","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-40","russia-white-list-2","vabb-shw"],"host_organization":"https://openalex.org/P4310315671","host_organization_name":"Lippincott Williams & Wilkins","host_organization_lineage":["https://openalex.org/P4310315671","https://openalex.org/P4310318547"],"host_organization_lineage_names":["Lippincott Williams & Wilkins","Wolters Kluwer"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Hospice & Palliative Nursing","raw_type":"journal-article"},{"id":"pmid:42980057","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/42980057","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association","raw_type":"Journal Article"}],"best_oa_location":null,"sustainable_development_goals":[],"study_designs":[],"awards":[],"funders":[],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":18,"referenced_works":["https://openalex.org/W2620510816","https://openalex.org/W3144882511","https://openalex.org/W3146635918","https://openalex.org/W3164088740","https://openalex.org/W3164573660","https://openalex.org/W3214982362","https://openalex.org/W3215115531","https://openalex.org/W3216014721","https://openalex.org/W4214867503","https://openalex.org/W4281775508","https://openalex.org/W4296705197","https://openalex.org/W4367309638","https://openalex.org/W4393359032","https://openalex.org/W4400983649","https://openalex.org/W4404276887","https://openalex.org/W4413039809","https://openalex.org/W4413420417","https://openalex.org/W4414188379"],"related_works":[],"abstract_inverted_index":{"Pediatric":[0],"hospice":[1,44,74,168],"care":[2,117,130,149],"is":[3,22],"essential":[4],"in":[5,76,135,156],"supporting":[6],"children":[7,32,66,86,115],"with":[8],"life-limiting":[9],"conditions":[10],"and":[11,41,70,79,96,102,110,124,128,151,158,177],"their":[12],"families":[13],"during":[14],"the":[15,29,58,77],"last":[16],"year":[17],"of":[18,31,94,107,154,173],"life,":[19],"yet":[20],"little":[21],"known":[23],"about":[24],"how":[25],"geographic":[26],"location":[27],"influences":[28],"characteristics":[30],"receiving":[33],"care.":[34,181],"This":[35],"study":[36],"examined":[37],"differences":[38],"between":[39],"rural":[40,114,166],"urban":[42],"pediatric":[43,167],"recipients":[45,169],"using":[46],"a":[47,171],"pooled":[48],"cross-sectional":[49],"Medicaid":[50],"dataset":[51],"from":[52,62,118],"2011":[53],"to":[54,147,180],"2022.":[55],"Guided":[56],"by":[57,138],"socioecological":[59],"framework,":[60],"data":[61],"17,134":[63],"deceased":[64],"Medicaid-enrolled":[65],"aged":[67],"20":[68],"years":[69],"younger":[71],"who":[72],"received":[73,116],"services":[75],"Midwest":[78],"Southern":[80],"United":[81],"States":[82],"were":[83],"analyzed.":[84],"Rural":[85],"demonstrated":[87],"greater":[88,139],"clinical":[89],"complexity,":[90],"including":[91],"higher":[92,126,152],"rates":[93,106,153],"physical":[95],"mental":[97],"health":[98,148],"multimorbidity,":[99],"technology":[100],"dependence,":[101],"polypharmacy.":[103],"Despite":[104],"lower":[105,142],"inpatient":[108],"admissions":[109],"emergency":[111],"department":[112],"visits,":[113],"larger":[119],"medical":[120,175],"teams,":[121],"more":[122],"subspecialists,":[123],"incurred":[125],"outpatient":[127],"primary":[129],"costs.":[131],"They":[132],"also":[133],"lived":[134],"communities":[136],"characterized":[137],"economic":[140],"disadvantage,":[141],"internet":[143],"connectivity,":[144],"longer":[145],"distances":[146],"resources,":[150],"residence":[155],"Appalachian":[157],"medically":[159],"underserved":[160],"areas.":[161],"These":[162],"findings":[163],"suggest":[164],"that":[165],"experience":[170],"convergence":[172],"heightened":[174],"complexity":[176],"structural":[178],"barriers":[179]},"counts_by_year":[],"updated_date":"2026-11-05T12:25:35.769452","created_date":"2026-11-05T00:00:00"}