{"id":"https://openalex.org/W7225190664","doi":"https://doi.org/10.1093/rap/rkag113.023","title":"OA23 Setting up a Young Persons Rheumatology Clinic. Sharing our learning from Central Lancashire","display_name":"OA23 Setting up a Young Persons Rheumatology Clinic. Sharing our learning from Central Lancashire","publication_year":2026,"publication_date":"2026-11-01","ids":{"openalex":"https://openalex.org/W7225190664","doi":"https://doi.org/10.1093/rap/rkag113.023"},"language":"en","primary_location":{"id":"doi:10.1093/rap/rkag113.023","doi":"https://doi.org/10.1093/rap/rkag113.023","is_oa":true,"landing_page_url":"https://doi.org/10.1093/rap/rkag113.023","pdf_url":"https://academic.oup.com/rheumap/article-pdf/10/Supplement_1/rkag113.023/72371874/rkag113.023.pdf","source":{"id":"https://openalex.org/S2735938563","display_name":"Rheumatology Advances in Practice","issn_l":"2514-1775","issn":["2514-1775"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","jufo-1","ki-jl-1","norway-1","oarl","poland-20","russia-white-list-3","vabb-shw"],"host_organization":"https://openalex.org/P4310311648","host_organization_name":"Oxford University Press","host_organization_lineage":["https://openalex.org/P4310311648","https://openalex.org/P4310311647"],"host_organization_lineage_names":["Oxford University Press","University of Oxford"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Rheumatology Advances in Practice","raw_type":"journal-article"},"volume":null,"type":"conference-abstract","is_traditional":false,"indexed_in":["crossref","doaj"],"open_access":{"is_oa":true,"oa_status":"gold","oa_url":"https://academic.oup.com/rheumap/article-pdf/10/Supplement_1/rkag113.023/72371874/rkag113.023.pdf","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5035312196","display_name":"Elizabeth M MacPhie","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I4210145758","display_name":"Lancashire Care NHS Foundation Trust","ror":"https://ror.org/03zefc030","country_code":"GB","type":"healthcare","lineage":["https://openalex.org/I4210145758"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Elizabeth MacPhie","raw_affiliation_strings":["Lancashire and South Cumbria NHS Foundation Trust , Preston,"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Lancashire and South Cumbria NHS Foundation Trust , Preston,","institution_ids":["https://openalex.org/I4210145758"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5020221886","display_name":"Eleanor Heaf","orcid":"https://orcid.org/0000-0002-4016-9578","observed_orcids":["https://orcid.org/0000-0002-4016-9578"]},"institutions":[{"id":"https://openalex.org/I1293129422","display_name":"Lancashire Teaching Hospitals NHS Foundation Trust","ror":"https://ror.org/02j7n9748","country_code":"GB","type":"healthcare","lineage":["https://openalex.org/I1293129422"]}],"countries":["GB"],"is_corresponding":false,"raw_author_name":"Eleanor Heaf","raw_affiliation_strings":["Lancashire Teaching Hospitals NHS Foundation Trust , Preston,"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Lancashire Teaching Hospitals NHS Foundation Trust , Preston,","institution_ids":["https://openalex.org/I1293129422"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":2,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":{"value":2255,"currency":"GBP","value_usd":2974},"apc_paid":{"value":2255,"currency":"GBP","value_usd":2974},"fwci":null,"has_fulltext":true,"cited_by_count":0,"citation_normalized_percentile":null,"cited_by_percentile_year":null,"biblio":{"volume":"10","issue":"Supplement_1","first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T12823","display_name":"Adolescent and Pediatric Healthcare","score":0.9994999766349792,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T12823","display_name":"Adolescent and Pediatric Healthcare","score":0.9994999766349792,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13883","display_name":"Child and Adolescent Health","score":9.999999747378752e-05,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11616","display_name":"Autoimmune and Inflammatory Disorders Research","score":0.0,"subfield":{"id":"https://openalex.org/subfields/2720","display_name":"Hematology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/care-transitions","display_name":"care transitions","score":0.6000000238418579},{"id":"https://openalex.org/keywords/juvenile-idiopathic-arthritis","display_name":"juvenile idiopathic arthritis","score":0.8569999933242798},{"id":"https://openalex.org/keywords/connective-tissue-diseases","display_name":"connective tissue diseases","score":0.8190000057220459},{"id":"https://openalex.org/keywords/behcet-s-disease","display_name":"Beh\u00e7et's disease","score":0.8579999804496765},{"id":"https://openalex.org/keywords/appointment-scheduling","display_name":"appointment scheduling","score":0.47099998593330383},{"id":"https://openalex.org/keywords/drug-education","display_name":"drug education","score":0.5450000166893005},{"id":"https://openalex.org/keywords/disease-modifying-agents","display_name":"disease-modifying agents","score":0.6019999980926514},{"id":"https://openalex.org/keywords/high-cost-drugs","display_name":"high-cost medicines","score":0.6970000267028809},{"id":"https://openalex.org/keywords/continuity-of-care","display_name":"continuity of care","score":0.7179999947547913},{"id":"https://openalex.org/keywords/preston","display_name":"Preston","score":0.36800000071525574},{"id":"https://openalex.org/keywords/loss-to-follow-up","display_name":"loss to follow-up","score":0.5600000023841858}],"concepts":[{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.8661999702453613},{"id":"https://openalex.org/C198451711","wikidata":"https://www.wikidata.org/wiki/Q327657","display_name":"Rheumatology","level":2,"score":0.5491999983787537},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.5152000188827515},{"id":"https://openalex.org/C2780378061","wikidata":"https://www.wikidata.org/wiki/Q25351891","display_name":"Service (business)","level":2,"score":0.44690001010894775},{"id":"https://openalex.org/C2909537177","wikidata":"https://www.wikidata.org/wiki/Q4685925","display_name":"Adult care","level":3,"score":0.40689998865127563},{"id":"https://openalex.org/C205545832","wikidata":"https://www.wikidata.org/wiki/Q17156455","display_name":"Young adult","level":2,"score":0.3456000089645386},{"id":"https://openalex.org/C187212893","wikidata":"https://www.wikidata.org/wiki/Q123028","display_name":"Pediatrics","level":1,"score":0.34540000557899475},{"id":"https://openalex.org/C2779134260","wikidata":"https://www.wikidata.org/wiki/Q12136","display_name":"Disease","level":2,"score":0.33160001039505005},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.32510000467300415},{"id":"https://openalex.org/C2984752397","wikidata":"https://www.wikidata.org/wiki/Q3259956","display_name":"Primary care","level":2,"score":0.3021000027656555},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.29789999127388},{"id":"https://openalex.org/C2991770673","wikidata":"https://www.wikidata.org/wiki/Q190007","display_name":"Young person","level":2,"score":0.275299996137619},{"id":"https://openalex.org/C2989236134","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Patient care","level":2,"score":0.2651999890804291},{"id":"https://openalex.org/C2987480172","wikidata":"https://www.wikidata.org/wiki/Q7834462","display_name":"Continuity of care","level":3,"score":0.26249998807907104},{"id":"https://openalex.org/C2426938","wikidata":"https://www.wikidata.org/wiki/Q3355478","display_name":"Medical prescription","level":2,"score":0.258899986743927},{"id":"https://openalex.org/C2779685841","wikidata":"https://www.wikidata.org/wiki/Q7834462","display_name":"Transitional care","level":3,"score":0.2574999928474426},{"id":"https://openalex.org/C204787440","wikidata":"https://www.wikidata.org/wiki/Q188504","display_name":"Alternative medicine","level":2,"score":0.257099986076355},{"id":"https://openalex.org/C2985357376","wikidata":"https://www.wikidata.org/wiki/Q437458","display_name":"Aged care","level":2,"score":0.2531000077724457},{"id":"https://openalex.org/C2779473830","wikidata":"https://www.wikidata.org/wiki/Q1540899","display_name":"MEDLINE","level":2,"score":0.25049999356269836}],"mesh":[],"locations_count":2,"locations":[{"id":"doi:10.1093/rap/rkag113.023","doi":"https://doi.org/10.1093/rap/rkag113.023","is_oa":true,"landing_page_url":"https://doi.org/10.1093/rap/rkag113.023","pdf_url":"https://academic.oup.com/rheumap/article-pdf/10/Supplement_1/rkag113.023/72371874/rkag113.023.pdf","source":{"id":"https://openalex.org/S2735938563","display_name":"Rheumatology Advances in Practice","issn_l":"2514-1775","issn":["2514-1775"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","jufo-1","ki-jl-1","norway-1","oarl","poland-20","russia-white-list-3","vabb-shw"],"host_organization":"https://openalex.org/P4310311648","host_organization_name":"Oxford University Press","host_organization_lineage":["https://openalex.org/P4310311648","https://openalex.org/P4310311647"],"host_organization_lineage_names":["Oxford University Press","University of Oxford"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Rheumatology Advances in Practice","raw_type":"journal-article"},{"id":"pmh:oai:pubmedcentral.nih.gov:13728595","doi":null,"is_oa":true,"landing_page_url":"https://pmc.ncbi.nlm.nih.gov/articles/PMC13728595/","pdf_url":"https://pmc.ncbi.nlm.nih.gov/articles/PMC13728595/pdf/rkag113.023.pdf","source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Rheumatol Adv Pract","raw_type":"Text"}],"best_oa_location":{"id":"doi:10.1093/rap/rkag113.023","doi":"https://doi.org/10.1093/rap/rkag113.023","is_oa":true,"landing_page_url":"https://doi.org/10.1093/rap/rkag113.023","pdf_url":"https://academic.oup.com/rheumap/article-pdf/10/Supplement_1/rkag113.023/72371874/rkag113.023.pdf","source":{"id":"https://openalex.org/S2735938563","display_name":"Rheumatology Advances in Practice","issn_l":"2514-1775","issn":["2514-1775"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","jufo-1","ki-jl-1","norway-1","oarl","poland-20","russia-white-list-3","vabb-shw"],"host_organization":"https://openalex.org/P4310311648","host_organization_name":"Oxford University Press","host_organization_lineage":["https://openalex.org/P4310311648","https://openalex.org/P4310311647"],"host_organization_lineage_names":["Oxford University Press","University of Oxford"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Rheumatology Advances in Practice","raw_type":"journal-article"},"sustainable_development_goals":[{"score":0.9922999739646912,"display_name":"Good health and well-being","id":"https://metadata.un.org/sdg/3"}],"study_designs":[],"awards":[],"funders":[],"has_content":{"pdf":true,"grobid_xml":true},"content_urls":{"pdf":"https://content.openalex.org/works/W7225190664.pdf","grobid_xml":"https://content.openalex.org/works/W7225190664.grobid-xml"},"referenced_works_count":0,"referenced_works":[],"related_works":["https://openalex.org/W7172128397","https://openalex.org/W3214856527","https://openalex.org/W4398144332","https://openalex.org/W3007198335","https://openalex.org/W6957915176","https://openalex.org/W4297546241","https://openalex.org/W4399482158","https://openalex.org/W7163958614","https://openalex.org/W2124658593","https://openalex.org/W2416363177"],"abstract_inverted_index":{"Abstract":[0],"Introduction":[1],"Transition":[2],"care":[3,40,123,359],"from":[4,65,146,393,768],"paediatrics":[5],"to":[6,21,30,73,89,229,231,239,256,266,323,345,406,424,463,514,548,572,588,611,644,660,679,730,752,782,785,814,829],"an":[7,533,633],"adult":[8,48,115,152,233,347,534,566,803],"clinic":[9,101,143,175,206,348,535,646,736,741,792,818],"is":[10,144,154,168,207,223,254,401,455,499,530,536,581,793],"crucial":[11],"for":[12,160,165,176,194,540,564,626,669,711,798],"improving":[13],"long-term":[14],"health":[15],"outcomes":[16],"by":[17,107],"empowering":[18],"young":[19,56],"people":[20,57],"manage":[22],"their":[23,109,122,662,674],"conditions,":[24],"reduce":[25],"the":[26,81,86,114,147,151,172,179,195,202,205,213,232,242,267,279,293,300,346,367,404,425,434,437,441,461,483,490,558,565,608,613,616,620,638,645,666,683,686,701,732,735,769,772,789,800,820,839],"risk":[27],"of":[28,39,174,187,204,244,246,261,269,292,299,306,326,358,366,399,436,485,492,525,554,557,607,685,734,771],"loss":[29],"follow-up":[31],"and":[32,36,113,138,162,191,209,249,271,285,297,319,360,383,403,410,414,428,450,465,469,489,508,528,543,552,563,641,656,704,727,746,761,780,802,831,835],"treatment":[33,505,596],"being":[34,60,63],"interrupted,":[35],"ensuring":[37],"continuity":[38],"during":[41],"a":[42,76,91,99,210,373,467,476,479,537,598,654,709,712,794,817],"significant":[43],"life":[44],"change.":[45],"The":[46,69,142,523],"community-based":[47],"rheumatology":[49,67,567,773],"service":[50,153],"in":[51,264,532,682,819],"Preston":[52],"recognised":[53],"that":[54,98,182,444,471,502,705,719,807],"many":[55,220,503],"(YP)":[58],"were":[59,140,295,302,343,698,716],"lost":[61],"after":[62,349],"referred":[64],"paediatric":[66,82,111,801],"clinics.":[68],"opportunity":[70,797],"was":[71,129,133,721,737],"identified":[72,190,418],"set":[74,815],"up":[75,395,816],"Young":[77],"Persons":[78],"Clinic":[79],"with":[80,597,649],"rheumatologist":[83],"based":[84],"at":[85,171,282],"acute":[87],"trust":[88],"enable":[90],"smoother":[92],"transition.":[93],"Case":[94],"description":[95],"Managers":[96],"acknowledged":[97],"joint":[100],"where":[102,150],"YP":[103,184,216,258,321,342,462,542,559,578,617,651,681],"could":[104,763],"be":[105,119,511,624,708,812],"seen":[106,218],"both":[108,799],"known":[110],"consultant":[112,116],"who":[117],"would":[118],"taking":[120],"over":[121,278,371],"avoided":[124],"duplication.":[125],"No":[126],"business":[127,713],"case":[128],"needed":[130],"as":[131,219,222,419,475,579,665],"there":[132,509,706,720],"no":[134,722],"additional":[135,783],"funding":[136,723],"required":[137,353],"estates":[139],"available.":[141,724],"delivered":[145],"community":[148],"setting":[149,394],"based.":[155],"Appointments":[156],"are":[157,189,217,227,236,259,593,631,678],"45":[158],"minutes":[159,164],"new":[161],"30":[163],"follow-up.":[166],"There":[167,235,273,388],"time":[169,755],"assigned":[170],"start":[173],"discussion":[177],"about":[178,700],"patients":[180,287,294,368,592,630],"attending":[181],"day.":[183],"turning":[185],"16yrs":[186],"age":[188],"put":[192],"forward":[193],"next":[196],"clinic.":[197,234,397,438,687,790],"An":[198,494],"appointment":[199,426,442,614],"letter":[200,427],"explaining":[201],"purpose":[203],"sent":[208],"text":[211,429,670],"reminder":[212],"week":[214,435],"before.":[215],"times":[221],"necessary":[224],"until":[225],"they":[226,622],"ready":[228],"transfer":[230],"clear":[237],"instructions":[238],"all":[240],"regarding":[241],"handover":[243,357,491],"prescribing":[245,529],"disease":[247],"modifying":[248],"high-cost":[250,601],"drugs.":[251],"Drug":[252],"education":[253,449,498],"revisited":[255],"ensure":[257],"reminded":[260],"key":[262],"messaging,":[263],"addition":[265,423],"practicalities":[268,524],"prescriptions":[270],"monitoring.":[272],"have":[274,288,312,369,416,519,545,560,570,585,661,743,824],"been":[275,289,313,390,417,521,586,653,749,777],"6":[276,298],"clinics":[277,400],"2":[280,320],"years":[281,305,506],"6-monthly":[283],"intervals":[284],"15":[286],"seen.":[290],"12":[291],"female":[296],"patient":[301],"under":[303],"10":[304,341],"age.":[307],"when":[308],"diagnosis.":[309],"22":[310],"appointments":[311,355],"offered":[314],"(17":[315],"new,":[316],"5":[317],"follow-up)":[318],"failed":[322],"attend.":[324],"Diagnoses":[325],"those":[327],"seen:":[328],"JIA":[329],"(n":[330,334,338],"=":[331,335,339],"9),":[332],"CTD":[333],"5),":[336],"Behcets":[337],"1.)":[340],"transferred":[344,370],"one":[350,361,606],"appointment,":[351],"3":[352],"two":[354],"before":[356],"had":[362,571],"three":[363],"appointments.":[364],"9":[365],"on":[372,380,385,448,595,632,694,756],"DMARD":[374,599],"or":[375,453,600],"high":[376],"cost":[377],"drug,":[378],"4":[379,384],"combination":[381],"therapy":[382],"infusions.":[386],"Discussion":[387],"has":[389,652,748,758,776],"considerable":[391],"learning":[392,689,796,834],"this":[396,459,580,695],"Timing":[398],"imperative":[402],"need":[405],"avoid":[407],"exams":[408],"periods":[409],"school":[411,452],"holidays,":[412],"March":[413],"October":[415],"optimum":[420],"months.":[421],"In":[422],"reminders":[430,671],"we":[431,445,472,544,569,575,584,603,635,657,697,742,764,787,823,827],"also":[432],"phone":[433],"We":[439,457,481,715,805],"structure":[440],"so":[443,615],"focus":[446],"first":[447],"how":[451,526,574,786],"college":[454],"going.":[456],"recognise":[458,482,806],"helps":[460],"relax":[464],"build":[466],"rapport":[468],"understand":[470,573],"see":[473,731],"them":[474,637,643,659,729],"person":[477],"not":[478,518,582,808],"patient.":[480],"importance":[484],"discussions":[486],"around":[487,496,550],"medications":[488],"prescribing.":[493],"update":[495],"drug":[497,602,627],"essential":[500],"recognising":[501],"started":[504],"previously":[507,520],"will":[510,623,811],"other":[512],"factors":[513],"consider":[515],"which":[516],"may":[517,707],"discussed.":[522],"monitoring":[527],"undertaken":[531],"big":[538],"change":[539],"our":[541,577,650,833],"become":[546],"alert":[547],"issues":[549],"compliance":[551],"stockpiling":[553],"medication.":[555],"Many":[556],"needle":[561],"phobias":[562],"team":[568,775],"support":[576],"something":[583],"used":[587],"dealing":[589],"with.":[590],"If":[591,629],"continuing":[594],"now":[604],"invite":[605],"specialist":[609],"nurses":[610],"join":[612],"can":[618],"meet":[619],"nurse":[621],"seeing":[625],"education.":[628],"infusion":[634,639],"show":[636],"room":[640],"introduce":[642],"nurses.":[647],"Communicating":[648],"challenge":[655],"encourage":[658],"mobile":[663],"number":[664],"main":[667],"contact":[668],"rather":[672],"than":[673],"parents.":[675],"Next":[676],"steps":[677],"involve":[680],"evaluation":[684],"Key":[688],"points":[690],"\u2022":[691],"Setting":[692],"out":[693],"venture":[696],"concerned":[699],"red":[702,840],"tape":[703],"requirement":[710],"case.":[714],"very":[717],"aware":[718],"Onboarding":[725],"managers":[726],"supporting":[728],"benefits":[733],"imperative.":[738],"After":[739],"every":[740,809],"made":[744],"changes":[745,784],"it":[747],"really":[750],"important":[751],"reflect":[753],"each":[754],"what":[757,762],"gone":[759],"well":[760],"do":[765],"better.":[766],"Input":[767],"rest":[770],"multi-disciplinary":[774],"hugely":[778],"beneficial":[779],"led":[781],"run":[788],"Every":[791],"fantastic":[795],"rheumatologist.":[804],"hospital":[810],"able":[813],"same":[821],"way":[822],"done":[825],"but":[826],"hope":[828],"enthuse":[830],"share":[832],"help":[836],"others":[837],"navigate":[838],"tape.":[841]},"counts_by_year":[],"updated_date":"2026-11-07T11:25:07.637180","created_date":"2026-11-04T00:00:00"}
