{"id":"https://openalex.org/W7224166379","doi":"https://doi.org/10.2196/94903","title":"The Personalization-Privacy Paradox in AI-Enabled Health Care: Managing Trust and Governance Under the European Health Data Space","display_name":"The Personalization-Privacy Paradox in AI-Enabled Health Care: Managing Trust and Governance Under the European Health Data Space","publication_year":2026,"publication_date":"2026-10-27","ids":{"openalex":"https://openalex.org/W7224166379","doi":"https://doi.org/10.2196/94903","pmid":"https://pubmed.ncbi.nlm.nih.gov/42954095","pmcid":"https://www.ncbi.nlm.nih.gov/pmc/articles/13717322"},"language":"en","primary_location":{"id":"doi:10.2196/94903","doi":"https://doi.org/10.2196/94903","is_oa":true,"landing_page_url":"https://doi.org/10.2196/94903","pdf_url":null,"source":{"id":"https://openalex.org/S17147534","display_name":"Journal of Medical Internet Research","issn_l":"1438-8871","issn":["1438-8871","1439-4456"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["anvur-scientific","cwts-core","doaj","dongbi-b","doyens","fnege-4","jufo-2","ki-jl-2","medline","norway-2","oarl","poland-140","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320608","host_organization_name":"JMIR Publications","host_organization_lineage":["https://openalex.org/P4310320608"],"host_organization_lineage_names":["JMIR Publications"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Medical Internet Research","raw_type":"journal-article"},"volume":null,"type":"article","is_traditional":true,"indexed_in":["crossref","doaj","pubmed"],"open_access":{"is_oa":true,"oa_status":"gold","oa_url":"https://doi.org/10.2196/94903","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5032846123","display_name":"Maxime Ducret","orcid":"https://orcid.org/0000-0002-5462-6258","observed_orcids":["https://orcid.org/0000-0002-5462-6258"]},"institutions":[{"id":"https://openalex.org/I100532134","display_name":"Lyon 1 Universit\u00e9","ror":"https://ror.org/029brtt94","country_code":"FR","type":"education","lineage":["https://openalex.org/I100532134","https://openalex.org/I203339264"]},{"id":"https://openalex.org/I4210100596","display_name":"Hospices Civils de Lyon","ror":"https://ror.org/01502ca60","country_code":"FR","type":"healthcare","lineage":["https://openalex.org/I4210100596"]}],"countries":["FR"],"is_corresponding":true,"raw_author_name":"Maxime Ducret","raw_affiliation_strings":["Centre de soins dentaires, P\u00f4le d'Odontologie, Hospices Civils de Lyon, Lyon, France","Faculty of Dentistry, Universit\u00e9 Claude Bernard Lyon 1, 11 Rue Guillaume Paradin, Lyon, Rh\u00f4ne-Alpes, 69008, France, 33 472722619"],"raw_orcid":"https://orcid.org/0000-0002-5462-6258","affiliations":[{"raw_affiliation_string":"Centre de soins dentaires, P\u00f4le d'Odontologie, Hospices Civils de Lyon, Lyon, France","institution_ids":["https://openalex.org/I4210100596"]},{"raw_affiliation_string":"Faculty of Dentistry, Universit\u00e9 Claude Bernard Lyon 1, 11 Rue Guillaume Paradin, Lyon, Rh\u00f4ne-Alpes, 69008, France, 33 472722619","institution_ids":["https://openalex.org/I100532134"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5083697329","display_name":"Julien Cloarec","orcid":"https://orcid.org/0000-0002-9862-6137","observed_orcids":["https://orcid.org/0000-0002-9862-6137"]},"institutions":[{"id":"https://openalex.org/I874609350","display_name":"Universit\u00e9 Jean Moulin Lyon III","ror":"https://ror.org/05b5c0584","country_code":"FR","type":"education","lineage":["https://openalex.org/I203339264","https://openalex.org/I874609350"]}],"countries":["FR"],"is_corresponding":false,"raw_author_name":"Julien Cloarec","raw_affiliation_strings":["iaelyon School of Management, Universit\u00e9 Jean Moulin Lyon 3, Lyon, France"],"raw_orcid":"https://orcid.org/0000-0002-9862-6137","affiliations":[{"raw_affiliation_string":"iaelyon School of Management, Universit\u00e9 Jean Moulin Lyon 3, Lyon, France","institution_ids":["https://openalex.org/I874609350"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5047808459","display_name":"Nour Alrabie","orcid":"https://orcid.org/0000-0002-1748-6591","observed_orcids":["https://orcid.org/0000-0002-1748-6591"]},"institutions":[{"id":"https://openalex.org/I4210152422","display_name":"Universit\u00e9 Toulouse - Jean Jaur\u00e8s","ror":"https://ror.org/04ezk3x31","country_code":"FR","type":"education","lineage":["https://openalex.org/I4210152422"]},{"id":"https://openalex.org/I4210155567","display_name":"Laboratoire d\u2019\u00c9tude et de Recherche sur l\u2019\u00c9conomie, les Politiques et les Syst\u00e8mes Sociaux","ror":"https://ror.org/05tcnbj64","country_code":"FR","type":"facility","lineage":["https://openalex.org/I4210112425","https://openalex.org/I4210128193","https://openalex.org/I4210152422","https://openalex.org/I4210155567","https://openalex.org/I4405258862","https://openalex.org/I4405259414","https://openalex.org/I4405260803"]}],"countries":["FR"],"is_corresponding":false,"raw_author_name":"Nour Alrabie","raw_affiliation_strings":["LEREPS, Universit\u00e9 Toulouse Jean Jaur\u00e8s, Toulouse, France"],"raw_orcid":"https://orcid.org/0000-0002-1748-6591","affiliations":[{"raw_affiliation_string":"LEREPS, Universit\u00e9 Toulouse Jean Jaur\u00e8s, Toulouse, France","institution_ids":["https://openalex.org/I4210152422","https://openalex.org/I4210155567"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5044352677","display_name":"Mouna Mouncif-Moungache","orcid":"https://orcid.org/0000-0003-1558-2026","observed_orcids":["https://orcid.org/0000-0003-1558-2026"]},"institutions":[{"id":"https://openalex.org/I4405259976","display_name":"Universit\u00e9 Jean Monnet","ror":"https://ror.org/030bahv93","country_code":"FR","type":"education","lineage":["https://openalex.org/I203339264","https://openalex.org/I4405259976"]},{"id":"https://openalex.org/I86767153","display_name":"Universit\u00e9 Jean Monnet","ror":"https://ror.org/04yznqr36","country_code":"FR","type":"education","lineage":["https://openalex.org/I203339264","https://openalex.org/I4405259976","https://openalex.org/I86767153"]}],"countries":["FR"],"is_corresponding":false,"raw_author_name":"Mouna Mouncif-Moungache","raw_affiliation_strings":["Department of Public Law, Universit\u00e9 Jean Monnet, Saint-\u00c9tienne, France"],"raw_orcid":"https://orcid.org/0000-0003-1558-2026","affiliations":[{"raw_affiliation_string":"Department of Public Law, Universit\u00e9 Jean Monnet, Saint-\u00c9tienne, France","institution_ids":["https://openalex.org/I4405259976","https://openalex.org/I86767153"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":7,"corresponding_author_ids":["https://openalex.org/A5032846123"],"corresponding_institution_ids":["https://openalex.org/I100532134","https://openalex.org/I4210100596"],"apc_list":{"value":2950,"currency":"USD","value_usd":2950},"apc_paid":{"value":2950,"currency":"USD","value_usd":2950},"fwci":0.0,"has_fulltext":true,"cited_by_count":0,"citation_normalized_percentile":{"value":0.0,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":null,"biblio":{"volume":"28","issue":null,"first_page":"e94903","last_page":"e94903"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11636","display_name":"Artificial Intelligence in Healthcare and Education","score":0.4961000084877014,"subfield":{"id":"https://openalex.org/subfields/2718","display_name":"Health Informatics"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T11636","display_name":"Artificial Intelligence in Healthcare and Education","score":0.4961000084877014,"subfield":{"id":"https://openalex.org/subfields/2718","display_name":"Health Informatics"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T14029","display_name":"Thoreau and American Literature","score":0.16820000112056732,"subfield":{"id":"https://openalex.org/subfields/3605","display_name":"Health Information Management"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13364","display_name":"Digitalization, Law, and Regulation","score":0.1527000069618225,"subfield":{"id":"https://openalex.org/subfields/3308","display_name":"Law"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/personalization-privacy-paradox","display_name":"personalization-privacy paradox","score":0.9279999732971191},{"id":"https://openalex.org/keywords/european-health-data-space","display_name":"European Health Data Space","score":0.9110000133514404},{"id":"https://openalex.org/keywords/health-data-governance","display_name":"health data governance","score":0.7680000066757202},{"id":"https://openalex.org/keywords/privacy-calculus","display_name":"privacy calculus","score":0.7080000042915344},{"id":"https://openalex.org/keywords/secondary-use-of-health-data","display_name":"secondary use of health data","score":0.871999979019165},{"id":"https://openalex.org/keywords/patient-trust","display_name":"patient trust","score":0.6690000295639038},{"id":"https://openalex.org/keywords/opt-out-rights","display_name":"opt-out rights","score":0.9190000295639038},{"id":"https://openalex.org/keywords/privacy-preserving-techniques","display_name":"privacy-preserving techniques","score":0.8730000257492065},{"id":"https://openalex.org/keywords/patient-practitioner-relationship","display_name":"patient-practitioner relationship","score":0.8949999809265137},{"id":"https://openalex.org/keywords/independent-oversight","display_name":"independent oversight","score":0.6539999842643738},{"id":"https://openalex.org/keywords/patient-engagement","display_name":"patient engagement","score":0.8579999804496765}],"concepts":[{"id":"https://openalex.org/C39389867","wikidata":"https://www.wikidata.org/wiki/Q380767","display_name":"Corporate governance","level":2,"score":0.7612000107765198},{"id":"https://openalex.org/C196879817","wikidata":"https://www.wikidata.org/wiki/Q872685","display_name":"Data governance","level":4,"score":0.7172999978065491},{"id":"https://openalex.org/C3017977704","wikidata":"https://www.wikidata.org/wiki/Q18745135","display_name":"Health data","level":3,"score":0.6126999855041504},{"id":"https://openalex.org/C2778572836","wikidata":"https://www.wikidata.org/wiki/Q380933","display_name":"Space (punctuation)","level":2,"score":0.5634999871253967},{"id":"https://openalex.org/C189922023","wikidata":"https://www.wikidata.org/wiki/Q17056348","display_name":"Information governance","level":4,"score":0.5569000244140625},{"id":"https://openalex.org/C2779530757","wikidata":"https://www.wikidata.org/wiki/Q1207505","display_name":"Quality (philosophy)","level":2,"score":0.48579999804496765},{"id":"https://openalex.org/C144133560","wikidata":"https://www.wikidata.org/wiki/Q4830453","display_name":"Business","level":0,"score":0.46380001306533813},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.45980000495910645},{"id":"https://openalex.org/C39549134","wikidata":"https://www.wikidata.org/wiki/Q133080","display_name":"Public relations","level":1,"score":0.45730000734329224},{"id":"https://openalex.org/C24756922","wikidata":"https://www.wikidata.org/wiki/Q1757694","display_name":"Data quality","level":3,"score":0.4235000014305115},{"id":"https://openalex.org/C123201435","wikidata":"https://www.wikidata.org/wiki/Q456632","display_name":"Information privacy","level":2,"score":0.35850000381469727},{"id":"https://openalex.org/C108827166","wikidata":"https://www.wikidata.org/wiki/Q175975","display_name":"Internet privacy","level":1,"score":0.35600000619888306},{"id":"https://openalex.org/C56739046","wikidata":"https://www.wikidata.org/wiki/Q192060","display_name":"Knowledge management","level":1,"score":0.3447999954223633},{"id":"https://openalex.org/C123657996","wikidata":"https://www.wikidata.org/wiki/Q12271","display_name":"Architecture","level":2,"score":0.3434999883174896},{"id":"https://openalex.org/C47344431","wikidata":"https://www.wikidata.org/wiki/Q1519812","display_name":"Health policy","level":3,"score":0.3361000120639801},{"id":"https://openalex.org/C3116431","wikidata":"https://www.wikidata.org/wiki/Q31728","display_name":"Public administration","level":1,"score":0.3174999952316284},{"id":"https://openalex.org/C69360830","wikidata":"https://www.wikidata.org/wiki/Q1172237","display_name":"Data Protection Act 1998","level":2,"score":0.3158000111579895},{"id":"https://openalex.org/C2777896688","wikidata":"https://www.wikidata.org/wiki/Q3773715","display_name":"Clinical governance","level":3,"score":0.3100000023841858},{"id":"https://openalex.org/C2910001868","wikidata":"https://www.wikidata.org/wiki/Q458","display_name":"European union","level":2,"score":0.2987000048160553},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.29429998993873596},{"id":"https://openalex.org/C2780433410","wikidata":"https://www.wikidata.org/wiki/Q5276090","display_name":"Digital health","level":3,"score":0.29269999265670776},{"id":"https://openalex.org/C2779965156","wikidata":"https://www.wikidata.org/wiki/Q5227350","display_name":"Data sharing","level":3,"score":0.2922999858856201},{"id":"https://openalex.org/C17744445","wikidata":"https://www.wikidata.org/wiki/Q36442","display_name":"Political science","level":0,"score":0.28119999170303345},{"id":"https://openalex.org/C189261614","wikidata":"https://www.wikidata.org/wiki/Q1459305","display_name":"Multi-level governance","level":3,"score":0.28029999136924744},{"id":"https://openalex.org/C75684735","wikidata":"https://www.wikidata.org/wiki/Q858810","display_name":"Big data","level":2,"score":0.2797999978065491},{"id":"https://openalex.org/C47487241","wikidata":"https://www.wikidata.org/wiki/Q5227230","display_name":"Data access","level":2,"score":0.2741999924182892},{"id":"https://openalex.org/C138816342","wikidata":"https://www.wikidata.org/wiki/Q189603","display_name":"Public health","level":2,"score":0.2727999985218048},{"id":"https://openalex.org/C13255150","wikidata":"https://www.wikidata.org/wiki/Q530962","display_name":"Health law","level":5,"score":0.2632000148296356},{"id":"https://openalex.org/C145642194","wikidata":"https://www.wikidata.org/wiki/Q870895","display_name":"Health informatics","level":3,"score":0.25929999351501465},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.2538999915122986}],"mesh":[{"descriptor_ui":"D000097103","descriptor_name":"Digital Health","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D001185","descriptor_name":"Artificial Intelligence","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D003219","descriptor_name":"Confidentiality","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D003695","descriptor_name":"Delivery of Health Care","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D005060","descriptor_name":"Europe","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D018907","descriptor_name":"Privacy","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D035502","descriptor_name":"Trust","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true}],"locations_count":4,"locations":[{"id":"doi:10.2196/94903","doi":"https://doi.org/10.2196/94903","is_oa":true,"landing_page_url":"https://doi.org/10.2196/94903","pdf_url":null,"source":{"id":"https://openalex.org/S17147534","display_name":"Journal of Medical Internet Research","issn_l":"1438-8871","issn":["1438-8871","1439-4456"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["anvur-scientific","cwts-core","doaj","dongbi-b","doyens","fnege-4","jufo-2","ki-jl-2","medline","norway-2","oarl","poland-140","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320608","host_organization_name":"JMIR Publications","host_organization_lineage":["https://openalex.org/P4310320608"],"host_organization_lineage_names":["JMIR Publications"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Medical Internet Research","raw_type":"journal-article"},{"id":"pmh:oai:pubmedcentral.nih.gov:13717322","doi":null,"is_oa":true,"landing_page_url":"https://pmc.ncbi.nlm.nih.gov/articles/PMC13717322/","pdf_url":"https://pmc.ncbi.nlm.nih.gov/articles/PMC13717322/pdf/jmir-v28-e94903.pdf","source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"J Med Internet Res","raw_type":"Text"},{"id":"pmid:42954095","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/42954095","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of medical Internet research","raw_type":"Journal Article"},{"id":"pmh:oai:doaj.org/article:dce4dbcc19414a448776baad173c4ed7","doi":null,"is_oa":false,"landing_page_url":"https://doaj.org/article/dce4dbcc19414a448776baad173c4ed7","pdf_url":null,"source":{"id":"https://openalex.org/S4306401280","display_name":"DOAJ (DOAJ: Directory of Open Access Journals)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Journal of Medical Internet Research, Vol 28, Pp e94903-e94903 (2026)","raw_type":"article"}],"best_oa_location":{"id":"doi:10.2196/94903","doi":"https://doi.org/10.2196/94903","is_oa":true,"landing_page_url":"https://doi.org/10.2196/94903","pdf_url":null,"source":{"id":"https://openalex.org/S17147534","display_name":"Journal of Medical Internet Research","issn_l":"1438-8871","issn":["1438-8871","1439-4456"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["anvur-scientific","cwts-core","doaj","dongbi-b","doyens","fnege-4","jufo-2","ki-jl-2","medline","norway-2","oarl","poland-140","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320608","host_organization_name":"JMIR Publications","host_organization_lineage":["https://openalex.org/P4310320608"],"host_organization_lineage_names":["JMIR Publications"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Medical Internet Research","raw_type":"journal-article"},"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","score":0.8560000061988831,"display_name":"Good health and well-being"}],"study_designs":[],"awards":[],"funders":[],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W7224166379.pdf","grobid_xml":"https://content.openalex.org/works/W7224166379.grobid-xml"},"referenced_works_count":44,"referenced_works":["https://openalex.org/W1971916001","https://openalex.org/W1991246983","https://openalex.org/W2028930346","https://openalex.org/W2030729543","https://openalex.org/W2083384763","https://openalex.org/W2083579134","https://openalex.org/W2100767128","https://openalex.org/W2120751691","https://openalex.org/W2282781689","https://openalex.org/W2293477631","https://openalex.org/W2585632805","https://openalex.org/W2903777941","https://openalex.org/W2908201961","https://openalex.org/W2963693643","https://openalex.org/W2996741354","https://openalex.org/W3023069697","https://openalex.org/W3032004606","https://openalex.org/W3107396745","https://openalex.org/W3120639414","https://openalex.org/W3175714049","https://openalex.org/W3198513634","https://openalex.org/W4212943061","https://openalex.org/W4286656504","https://openalex.org/W4317938604","https://openalex.org/W4381550265","https://openalex.org/W4382051452","https://openalex.org/W4385360666","https://openalex.org/W4389896630","https://openalex.org/W4390032047","https://openalex.org/W4391541316","https://openalex.org/W4392213556","https://openalex.org/W4392547002","https://openalex.org/W4392839363","https://openalex.org/W4393042591","https://openalex.org/W4402336116","https://openalex.org/W4402533780","https://openalex.org/W4402564190","https://openalex.org/W4407181623","https://openalex.org/W4407578358","https://openalex.org/W4409217943","https://openalex.org/W4409730061","https://openalex.org/W4411977838","https://openalex.org/W4412986009","https://openalex.org/W4415396315"],"related_works":["https://openalex.org/W4409568722","https://openalex.org/W4403656261","https://openalex.org/W7215128439","https://openalex.org/W4396935494","https://openalex.org/W7168330435","https://openalex.org/W7120147255","https://openalex.org/W7217258377","https://openalex.org/W4386914808","https://openalex.org/W7167411072","https://openalex.org/W7159956938"],"abstract_inverted_index":{"Unlabelled:":[0],"AI":[1],"enables":[2],"increasingly":[3],"personalized":[4],"health":[5,33,47],"care,":[6],"but":[7,145],"the":[8,20,27,39,42,68,71,81,127,138,143,164,167],"data":[9,74,90,93],"required":[10],"intensifies":[11],"long-standing":[12],"concerns":[13],"about":[14],"privacy,":[15],"confidentiality,":[16],"and":[17,29,49,80,98,115,159],"trust":[18,131],"as":[19],"European":[21],"Health":[22],"Data":[23],"Space":[24],"(EHDS)":[25],"expands":[26],"primary":[28,76],"secondary":[30,78,119],"use":[31,120],"of":[32,73,118,166],"data.":[34],"This":[35],"viewpoint":[36],"examines":[37],"how":[38],"EHDS":[40,128,139],"reshapes":[41],"personalization-privacy":[43],"paradox":[44,144],"in":[45],"AI-enabled":[46],"care":[48],"under":[50],"what":[51],"conditions":[52,124],"it":[53],"can":[54,129,146],"manage,":[55],"rather":[56],"than":[57,162],"resolve,":[58],"this":[59],"paradox.":[60],"Drawing":[61],"on":[62,156,163],"privacy":[63],"calculus":[64],"theory,":[65],"we":[66],"analyze":[67],"patient-practitioner":[69],"relationship,":[70],"flow":[72],"from":[75],"to":[77,151],"use,":[79],"governance":[82,104,149],"mechanisms":[83],"introduced":[84],"by":[85],"Regulation":[86],"(EU)":[87],"2025/327,":[88],"including":[89],"access":[91],"bodies,":[92],"permits,":[94],"differentiated":[95],"opt-out":[96,109],"rights,":[97],"privacy-preserving":[99,113],"technologies.":[100],"We":[101,135],"identify":[102],"5":[103],"conditions:":[105],"purpose-specific":[106],"governance,":[107],"accessible":[108],"design,":[110],"practitioner-mediated":[111],"transparency,":[112],"infrastructure,":[114],"independent":[116],"oversight":[117],"actors.":[121],"When":[122],"these":[123],"are":[125],"met,":[126],"sustain":[130],"while":[132],"enabling":[133],"personalization.":[134],"conclude":[136],"that":[137],"does":[140],"not":[141],"eliminate":[142],"provide":[147],"a":[148],"architecture":[150],"manage":[152],"it,":[153],"depending":[154],"more":[155],"implementation":[157],"quality":[158],"patient":[160],"engagement":[161],"ambition":[165],"framework":[168],"itself.":[169]},"counts_by_year":[],"updated_date":"2026-11-08T12:12:28.789561","created_date":"2026-10-30T00:00:00"}