{"id":"https://openalex.org/W7220864477","doi":"https://doi.org/10.1097/njh.0000000000001272","title":"Challenges Faced by Patients With Pancreatic Cancer and Their Caregivers","display_name":"Challenges Faced by Patients With Pancreatic Cancer and Their Caregivers","publication_year":2026,"publication_date":"2026-10-07","ids":{"openalex":"https://openalex.org/W7220864477","doi":"https://doi.org/10.1097/njh.0000000000001272","pmid":"https://pubmed.ncbi.nlm.nih.gov/42842360"},"language":"en","primary_location":{"id":"doi:10.1097/njh.0000000000001272","doi":"https://doi.org/10.1097/njh.0000000000001272","is_oa":false,"landing_page_url":"https://doi.org/10.1097/njh.0000000000001272","pdf_url":null,"source":{"id":"https://openalex.org/S82245262","display_name":"Journal of Hospice and Palliative Nursing","issn_l":"1522-2179","issn":["1522-2179","1539-0705"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-c","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-40","russia-white-list-2","vabb-shw"],"host_organization":"https://openalex.org/P4310315671","host_organization_name":"Lippincott Williams & Wilkins","host_organization_lineage":["https://openalex.org/P4310315671","https://openalex.org/P4310318547"],"host_organization_lineage_names":["Lippincott Williams & Wilkins","Wolters Kluwer"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Hospice & Palliative Nursing","raw_type":"journal-article"},"volume":null,"type":"article","is_traditional":true,"indexed_in":["crossref","pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5041404119","display_name":"Arman Bahmani","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I1293502524","display_name":"Loma Linda University Medical Center","ror":"https://ror.org/03et1qs84","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1293502524"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Arman Bahmani","raw_affiliation_strings":["Arman Bahmani, MD,is an internal medicine resident, Department of Medicine, Loma Linda University Medical Center \u2013 Murrieta, Murrieta, CA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Arman Bahmani, MD,is an internal medicine resident, Department of Medicine, Loma Linda University Medical Center \u2013 Murrieta, Murrieta, CA","institution_ids":["https://openalex.org/I1293502524"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5157832645","display_name":"Jessica Stern","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I26347476","display_name":"Loma Linda University","ror":"https://ror.org/04bj28v14","country_code":"US","type":"education","lineage":["https://openalex.org/I26347476"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Jessica Stern","raw_affiliation_strings":["Jessica Stern, BA,is a medical student, Loma Linda University School of Medicine, Loma Linda, CA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Jessica Stern, BA,is a medical student, Loma Linda University School of Medicine, Loma Linda, CA","institution_ids":["https://openalex.org/I26347476"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5035368028","display_name":"Maud Joachim-C\u00e9lestin","orcid":"https://orcid.org/0000-0001-5424-4666","observed_orcids":["https://orcid.org/0000-0001-5424-4666"]},"institutions":[{"id":"https://openalex.org/I26347476","display_name":"Loma Linda University","ror":"https://ror.org/04bj28v14","country_code":"US","type":"education","lineage":["https://openalex.org/I26347476"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Maud Joachim-C\u00e9lestin","raw_affiliation_strings":["Maud Joachim-C\u00e9lestin, DrPH, MD,is an assistant professor, Loma Linda University School of Behavioral Health, Loma Linda, CA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Maud Joachim-C\u00e9lestin, DrPH, MD,is an assistant professor, Loma Linda University School of Behavioral Health, Loma Linda, CA","institution_ids":["https://openalex.org/I26347476"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5111213504","display_name":"Lizbeth Rivas","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I26347476","display_name":"Loma Linda University","ror":"https://ror.org/04bj28v14","country_code":"US","type":"education","lineage":["https://openalex.org/I26347476"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Lizbeth Rivas","raw_affiliation_strings":["Lizbeth Rivas,is a community health worker, Loma Linda University School of Behavioral Health, Loma Linda, CA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Lizbeth Rivas,is a community health worker, Loma Linda University School of Behavioral Health, Loma Linda, CA","institution_ids":["https://openalex.org/I26347476"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5093895962","display_name":"Nishita Matangi","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I26347476","display_name":"Loma Linda University","ror":"https://ror.org/04bj28v14","country_code":"US","type":"education","lineage":["https://openalex.org/I26347476"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Nishita Matangi","raw_affiliation_strings":["Nishita Matangi, PhD,is a research assistant, Loma Linda University School of Behavioral Health, Loma Linda, CA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Nishita Matangi, PhD,is a research assistant, Loma Linda University School of Behavioral Health, Loma Linda, CA","institution_ids":["https://openalex.org/I26347476"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5078532380","display_name":"Kendrick Che","orcid":"https://orcid.org/0000-0002-3299-0227","observed_orcids":["https://orcid.org/0000-0002-3299-0227"]},"institutions":[{"id":"https://openalex.org/I26347476","display_name":"Loma Linda University","ror":"https://ror.org/04bj28v14","country_code":"US","type":"education","lineage":["https://openalex.org/I26347476"]},{"id":"https://openalex.org/I4210095401","display_name":"Loma Linda University Health Care","ror":"https://ror.org/00saxze38","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I4210095401"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Kendrick Che","raw_affiliation_strings":["Kendrick Che, DO,is an associate professor of medicine, Division of Gastroenterology and Hepatology, Loma Linda University Health, Loma Linda, CA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Kendrick Che, DO,is an associate professor of medicine, Division of Gastroenterology and Hepatology, Loma Linda University Health, Loma Linda, CA","institution_ids":["https://openalex.org/I26347476","https://openalex.org/I4210095401"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5031128522","display_name":"Paul Leonor","orcid":"https://orcid.org/0009-0005-4116-2692","observed_orcids":["https://orcid.org/0009-0005-4116-2692"]},"institutions":[{"id":"https://openalex.org/I1293502524","display_name":"Loma Linda University Medical Center","ror":"https://ror.org/03et1qs84","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1293502524"]},{"id":"https://openalex.org/I26347476","display_name":"Loma Linda University","ror":"https://ror.org/04bj28v14","country_code":"US","type":"education","lineage":["https://openalex.org/I26347476"]},{"id":"https://openalex.org/I4210095401","display_name":"Loma Linda University Health Care","ror":"https://ror.org/00saxze38","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I4210095401"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Paul Leonor","raw_affiliation_strings":["Paul Leonor, MD,is an assistant professor of medicine, Division of Gastroenterology and Hepatology, Loma Linda University Health, Loma Linda, CA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Paul Leonor, MD,is an assistant professor of medicine, Division of Gastroenterology and Hepatology, Loma Linda University Health, Loma Linda, CA","institution_ids":["https://openalex.org/I1293502524","https://openalex.org/I26347476","https://openalex.org/I4210095401"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5123552786","display_name":"Andrew Chang","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I1293502524","display_name":"Loma Linda University Medical Center","ror":"https://ror.org/03et1qs84","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1293502524"]},{"id":"https://openalex.org/I26347476","display_name":"Loma Linda University","ror":"https://ror.org/04bj28v14","country_code":"US","type":"education","lineage":["https://openalex.org/I26347476"]},{"id":"https://openalex.org/I4210095401","display_name":"Loma Linda University Health Care","ror":"https://ror.org/00saxze38","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I4210095401"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Andrew Chang","raw_affiliation_strings":["Andrew Chang, MD,is an assistant professor of medicine, Division of Gastroenterology and Hepatology, Loma Linda University Health, Loma Linda, CA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Andrew Chang, MD,is an assistant professor of medicine, Division of Gastroenterology and Hepatology, Loma Linda University Health, Loma Linda, CA","institution_ids":["https://openalex.org/I1293502524","https://openalex.org/I26347476","https://openalex.org/I4210095401"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5046703752","display_name":"Emmanuel Eguia","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I1293502524","display_name":"Loma Linda University Medical Center","ror":"https://ror.org/03et1qs84","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1293502524"]},{"id":"https://openalex.org/I26347476","display_name":"Loma Linda University","ror":"https://ror.org/04bj28v14","country_code":"US","type":"education","lineage":["https://openalex.org/I26347476"]},{"id":"https://openalex.org/I4210095401","display_name":"Loma Linda University Health Care","ror":"https://ror.org/00saxze38","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I4210095401"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Emmanuel Eguia","raw_affiliation_strings":["Emmanuel Eguia, MD,is an assistant professor of surgery, Division of Surgical Oncology, Loma Linda University Health, Loma Linda, CA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Emmanuel Eguia, MD,is an assistant professor of surgery, Division of Surgical Oncology, Loma Linda University Health, Loma Linda, CA","institution_ids":["https://openalex.org/I1293502524","https://openalex.org/I26347476","https://openalex.org/I4210095401"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5137190896","display_name":"Gina Mohr","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Gina Mohr","raw_affiliation_strings":["Gina Mohr, MD,is an assistant professor of medicine, Division of Palliative Care and Hospice, Loma Linda, CA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Gina Mohr, MD,is an assistant professor of medicine, Division of Palliative Care and Hospice, Loma Linda, CA","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5022590300","display_name":"Joel M. Brothers","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I1293502524","display_name":"Loma Linda University Medical Center","ror":"https://ror.org/03et1qs84","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1293502524"]},{"id":"https://openalex.org/I26347476","display_name":"Loma Linda University","ror":"https://ror.org/04bj28v14","country_code":"US","type":"education","lineage":["https://openalex.org/I26347476"]},{"id":"https://openalex.org/I4210095401","display_name":"Loma Linda University Health Care","ror":"https://ror.org/00saxze38","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I4210095401"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Joel Brothers","raw_affiliation_strings":["Joel Brothers, MD,is an associate professor of medicine, Division of Hematology and Oncology, Loma Linda University Health, Loma Linda, CA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Joel Brothers, MD,is an associate professor of medicine, Division of Hematology and Oncology, Loma Linda University Health, Loma Linda, CA","institution_ids":["https://openalex.org/I1293502524","https://openalex.org/I26347476","https://openalex.org/I4210095401"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5056914979","display_name":"Susanne Montgomery","orcid":"https://orcid.org/0000-0003-1269-9034","observed_orcids":["https://orcid.org/0000-0003-1269-9034"]},"institutions":[{"id":"https://openalex.org/I26347476","display_name":"Loma Linda University","ror":"https://ror.org/04bj28v14","country_code":"US","type":"education","lineage":["https://openalex.org/I26347476"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Susanne B. Montgomery","raw_affiliation_strings":["Susanne B. Montgomery, PhD, MS,is a professor, Loma Linda University School of Behavioral Health, Loma Linda, CA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Susanne B. Montgomery, PhD, MS,is a professor, Loma Linda University School of Behavioral Health, Loma Linda, CA","institution_ids":["https://openalex.org/I26347476"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5010133863","display_name":"Nikhil Ravi Thiruvengadam","orcid":"https://orcid.org/0000-0002-0944-9934","observed_orcids":["https://orcid.org/0000-0002-0944-9934"]},"institutions":[{"id":"https://openalex.org/I1293502524","display_name":"Loma Linda University Medical Center","ror":"https://ror.org/03et1qs84","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I1293502524"]},{"id":"https://openalex.org/I26347476","display_name":"Loma Linda University","ror":"https://ror.org/04bj28v14","country_code":"US","type":"education","lineage":["https://openalex.org/I26347476"]},{"id":"https://openalex.org/I4210095401","display_name":"Loma Linda University Health Care","ror":"https://ror.org/00saxze38","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I4210095401"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Nikhil R. Thiruvengadam","raw_affiliation_strings":["Nikhil R. Thiruvengadam, MD,is an assistant professor of medicine, Division of Gastroenterology and Hepatology, Loma Linda University Health, Loma Linda, CA"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Nikhil R. Thiruvengadam, MD,is an assistant professor of medicine, Division of Gastroenterology and Hepatology, Loma Linda University Health, Loma Linda, CA","institution_ids":["https://openalex.org/I1293502524","https://openalex.org/I26347476","https://openalex.org/I4210095401"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":3,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":0.0,"has_fulltext":false,"cited_by_count":0,"citation_normalized_percentile":{"value":0.73539845,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":null,"biblio":{"volume":null,"issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10178","display_name":"Cancer survivorship and care","score":0.823199987411499,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10178","display_name":"Cancer survivorship and care","score":0.823199987411499,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10231","display_name":"Pancreatic and Hepatic Oncology Research","score":0.08460000157356262,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13340","display_name":"Palliative and Oncologic Care","score":0.02969999983906746,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/pancreatic-ductal-adenocarcinoma","display_name":"pancreatic ductal adenocarcinoma","score":0.9959999918937683},{"id":"https://openalex.org/keywords/quality-of-life","display_name":"quality of life","score":0.6940000057220459},{"id":"https://openalex.org/keywords/family-caregivers","display_name":"family caregivers","score":0.7559999823570251},{"id":"https://openalex.org/keywords/patient-experience","display_name":"patient experience","score":0.7350000143051147},{"id":"https://openalex.org/keywords/health-care-navigation","display_name":"health care navigation","score":0.7020000219345093},{"id":"https://openalex.org/keywords/treatment-delay","display_name":"treatment delay","score":0.7419999837875366},{"id":"https://openalex.org/keywords/financial-stress","display_name":"financial stress","score":0.8429999947547913},{"id":"https://openalex.org/keywords/end-of-life-discussions","display_name":"end-of-life discussions","score":0.824999988079071},{"id":"https://openalex.org/keywords/palliative-care","display_name":"palliative care","score":0.9919999837875366},{"id":"https://openalex.org/keywords/hispanic-patients","display_name":"Hispanic patients","score":0.6740000247955322},{"id":"https://openalex.org/keywords/culturally-responsive-care","display_name":"culturally responsive care","score":0.8899999856948853},{"id":"https://openalex.org/keywords/patient-centered-care","display_name":"patient-centered care","score":0.8610000014305115},{"id":"https://openalex.org/keywords/covid-19","display_name":"COVID-19 pandemic","score":0.6650000214576721},{"id":"https://openalex.org/keywords/spiritual-support","display_name":"spiritual support","score":0.39800000190734863},{"id":"https://openalex.org/keywords/southern-california","display_name":"Southern California","score":0.6600000262260437}],"concepts":[{"id":"https://openalex.org/C150966472","wikidata":"https://www.wikidata.org/wiki/Q3410145","display_name":"Psychosocial","level":2,"score":0.7418000102043152},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.6798999905586243},{"id":"https://openalex.org/C190248442","wikidata":"https://www.wikidata.org/wiki/Q839486","display_name":"Qualitative research","level":2,"score":0.5468999743461609},{"id":"https://openalex.org/C2994186709","wikidata":"https://www.wikidata.org/wiki/Q29483","display_name":"Palliative care","level":2,"score":0.5454999804496765},{"id":"https://openalex.org/C2779951463","wikidata":"https://www.wikidata.org/wiki/Q7268788","display_name":"Quality of life (healthcare)","level":2,"score":0.5371999740600586},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.5033000111579895},{"id":"https://openalex.org/C85973986","wikidata":"https://www.wikidata.org/wiki/Q1091731","display_name":"Exploratory research","level":2,"score":0.4805999994277954},{"id":"https://openalex.org/C156325361","wikidata":"https://www.wikidata.org/wiki/Q1152864","display_name":"Grounded theory","level":3,"score":0.4699999988079071},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.46050000190734863},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.44209998846054077},{"id":"https://openalex.org/C2779134260","wikidata":"https://www.wikidata.org/wiki/Q12136","display_name":"Disease","level":2,"score":0.4244999885559082},{"id":"https://openalex.org/C2777896191","wikidata":"https://www.wikidata.org/wiki/Q22907655","display_name":"Patient experience","level":3,"score":0.38670000433921814},{"id":"https://openalex.org/C2779473830","wikidata":"https://www.wikidata.org/wiki/Q1540899","display_name":"MEDLINE","level":2,"score":0.3431999981403351},{"id":"https://openalex.org/C162446236","wikidata":"https://www.wikidata.org/wiki/Q653137","display_name":"Content analysis","level":2,"score":0.3384999930858612},{"id":"https://openalex.org/C2779974597","wikidata":"https://www.wikidata.org/wiki/Q28448986","display_name":"Clinical Practice","level":2,"score":0.3382999897003174},{"id":"https://openalex.org/C2780210213","wikidata":"https://www.wikidata.org/wiki/Q212961","display_name":"Pancreatic cancer","level":3,"score":0.33559998869895935},{"id":"https://openalex.org/C2778652608","wikidata":"https://www.wikidata.org/wiki/Q1752840","display_name":"Salutogenesis","level":4,"score":0.31380000710487366},{"id":"https://openalex.org/C2250968","wikidata":"https://www.wikidata.org/wiki/Q1512929","display_name":"Health equity","level":3,"score":0.31150001287460327},{"id":"https://openalex.org/C2780879335","wikidata":"https://www.wikidata.org/wiki/Q2045105","display_name":"End-of-life care","level":3,"score":0.31029999256134033},{"id":"https://openalex.org/C3019806175","wikidata":"https://www.wikidata.org/wiki/Q11974939","display_name":"Health professionals","level":3,"score":0.30959999561309814},{"id":"https://openalex.org/C26760741","wikidata":"https://www.wikidata.org/wiki/Q160402","display_name":"Perception","level":2,"score":0.3070000112056732},{"id":"https://openalex.org/C2992026798","wikidata":"https://www.wikidata.org/wiki/Q212961","display_name":"Pancreatic ductal adenocarcinoma","level":4,"score":0.30149999260902405},{"id":"https://openalex.org/C121608353","wikidata":"https://www.wikidata.org/wiki/Q12078","display_name":"Cancer","level":2,"score":0.2922999858856201},{"id":"https://openalex.org/C2778900529","wikidata":"https://www.wikidata.org/wiki/Q2827779","display_name":"Family caregivers","level":2,"score":0.28679999709129333},{"id":"https://openalex.org/C3018149544","wikidata":"https://www.wikidata.org/wiki/Q5188450","display_name":"Culturally sensitive","level":2,"score":0.27469998598098755},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.25769999623298645},{"id":"https://openalex.org/C74909509","wikidata":"https://www.wikidata.org/wiki/Q10387","display_name":"Gerontology","level":1,"score":0.25679999589920044}],"mesh":[],"locations_count":2,"locations":[{"id":"doi:10.1097/njh.0000000000001272","doi":"https://doi.org/10.1097/njh.0000000000001272","is_oa":false,"landing_page_url":"https://doi.org/10.1097/njh.0000000000001272","pdf_url":null,"source":{"id":"https://openalex.org/S82245262","display_name":"Journal of Hospice and Palliative Nursing","issn_l":"1522-2179","issn":["1522-2179","1539-0705"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","dongbi-c","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-40","russia-white-list-2","vabb-shw"],"host_organization":"https://openalex.org/P4310315671","host_organization_name":"Lippincott Williams & Wilkins","host_organization_lineage":["https://openalex.org/P4310315671","https://openalex.org/P4310318547"],"host_organization_lineage_names":["Lippincott Williams & Wilkins","Wolters Kluwer"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of Hospice & Palliative Nursing","raw_type":"journal-article"},{"id":"pmid:42842360","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/42842360","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association","raw_type":"Journal Article"}],"best_oa_location":null,"sustainable_development_goals":[{"display_name":"Good health and well-being","score":1.0,"id":"https://metadata.un.org/sdg/3"},{"display_name":"Reduced inequalities","score":0.5676000118255615,"id":"https://metadata.un.org/sdg/10"}],"study_designs":[],"awards":[],"funders":[],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":36,"referenced_works":["https://openalex.org/W586849473","https://openalex.org/W2056729166","https://openalex.org/W2138664283","https://openalex.org/W2616317278","https://openalex.org/W2756245626","https://openalex.org/W2920071870","https://openalex.org/W2946094105","https://openalex.org/W2985478314","https://openalex.org/W3097878812","https://openalex.org/W3124796741","https://openalex.org/W3161611269","https://openalex.org/W3197559541","https://openalex.org/W4200267749","https://openalex.org/W4207042002","https://openalex.org/W4220829089","https://openalex.org/W4224252429","https://openalex.org/W4318053897","https://openalex.org/W4376638580","https://openalex.org/W4387518599","https://openalex.org/W4388127548","https://openalex.org/W4390031450","https://openalex.org/W4394012744","https://openalex.org/W4394852677","https://openalex.org/W4396853775","https://openalex.org/W4396867009","https://openalex.org/W4396939189","https://openalex.org/W4399032513","https://openalex.org/W4405167849","https://openalex.org/W4405205068","https://openalex.org/W4407341261","https://openalex.org/W4408672355","https://openalex.org/W4409148340","https://openalex.org/W4410600256","https://openalex.org/W4412570373","https://openalex.org/W4412708429","https://openalex.org/W4413012505"],"related_works":["https://openalex.org/W4415007424","https://openalex.org/W4389486645","https://openalex.org/W7135917784","https://openalex.org/W4206508142","https://openalex.org/W4408759368","https://openalex.org/W4415002305","https://openalex.org/W3029101916","https://openalex.org/W2790771128","https://openalex.org/W4406937033","https://openalex.org/W4386645440"],"abstract_inverted_index":{"Patients":[0,242],"with":[1,85,91,117,123,131,201,250,260],"advanced":[2,251],"pancreatic":[3],"ductal":[4],"adenocarcinoma":[5],"(PDAC)":[6],"and":[7,22,46,67,69,97,112,125,133,139,148,152,177,185,192,198,208,227,262,274],"their":[8,47,98,129],"families":[9],"encounter":[10],"challenges":[11],"that":[12],"extend":[13],"beyond":[14],"disease":[15],"management,":[16],"encompassing":[17],"informational":[18],"gaps,":[19],"cultural":[20],"barriers,":[21],"unmet":[23],"psychosocial":[24],"needs.":[25],"Despite":[26],"interest":[27],"in":[28,94,106,247],"improved":[29],"quality":[30],"of":[31,43,77,160,238,243],"life":[32],"(QoL)":[33],"for":[34,216,223],"cancer":[35],"patients,":[36],"few":[37],"studies":[38],"have":[39],"examined":[40],"the":[41,57,161,221,239,265],"perspectives":[42],"PDAC":[44,92,124,252],"patients":[45,89,121],"caregivers":[48],"on":[49],"what":[50],"constitutes":[51],"effective,":[52],"compassionate":[53],"care,":[54],"especially":[55],"following":[56],"COVID-19":[58],"global":[59],"pandemic,":[60],"a":[61,224],"period":[62],"characterized":[63,180],"by":[64,181],"delayed":[65],"screening":[66],"treatments":[68],"an":[70,236],"overburdened":[71],"health":[72,202,217],"care":[73,190,203,210,218,258],"system.":[74],"The":[75,168,230],"purpose":[76],"this":[78],"study":[79,103],"was":[80,104,150],"to":[81,108,144,158],"explore":[82],"factors":[83],"associated":[84],"perceived":[86],"QoL":[87],"among":[88],"diagnosed":[90,122],"living":[93,246],"Southern":[95,248],"California":[96,249],"caregivers.":[99],"This":[100],"exploratory":[101],"qualitative":[102],"conducted":[105],"2024":[107],"2025":[109],"using":[110],"theming":[111],"content":[113],"analysis.":[114],"Semistructured":[115],"interviews":[116],"21":[118],"adults,":[119],"including":[120],"family":[126,183],"caregivers,":[127],"explored":[128],"experiences":[130,273],"diagnosis":[132],"treatment.":[134],"Interviews":[135],"were":[136,156,211],"audio-recorded,":[137],"transcribed,":[138],"analyzed.":[140],"Constant":[141],"comparative":[142],"analysis":[143,169],"identify":[145],"major":[146,172],"themes":[147,232],"subthemes":[149],"used,":[151],"inductively":[153],"derived":[154],"codes":[155],"matched":[157],"components":[159],"ARC":[162,240],"(Adversity,":[163],"Restoration,":[164],"Compatibility)":[165],"conceptual":[166,267],"framework.":[167,241],"yielded":[170],"four":[171],"themes:":[173],"(1)":[174],"Patient":[175],"experience":[176],"medical":[178],"journey":[179],"delays,":[182,195],"support":[184],"spiritual":[186],"insights;":[187],"(2)":[188],"Health":[189],"navigation":[191],"barriers":[193],"included":[194],"financial":[196],"strain,":[197],"challenging":[199],"interactions":[200],"personnel;":[204],"(3)":[205],"End-of-life":[206],"conversations":[207],"palliative":[209],"often":[212],"misunderstood;":[213],"(4)":[214],"Suggestions":[215],"providers":[219,269],"emphasized":[220],"need":[222],"holistic":[225],"approach":[226],"practical":[228],"resources.":[229],"resulting":[231],"fit":[233],"well":[234],"into":[235],"adaptation":[237],"Latino":[244],"background":[245],"desire":[253],"holistic,":[254],"culturally":[255],"responsive,":[256],"patient-centered":[257],"delivered":[259],"clarity":[261],"compassion.":[263],"Using":[264],"suggested":[266],"model,":[268],"may":[270],"improve":[271],"patient":[272],"QoL.":[275]},"counts_by_year":[],"updated_date":"2026-10-26T11:51:55.731654","created_date":"2026-10-08T00:00:00"}