{"id":"https://openalex.org/W7214101232","doi":"https://doi.org/10.6224/jn.26514","title":"[End-of-Life Nursing Experience Providing Care to a Father With Terminal Rectal Cancer With Dependent Children].","display_name":"[End-of-Life Nursing Experience Providing Care to a Father With Terminal Rectal Cancer With Dependent Children].","publication_year":2026,"publication_date":"2026-10-01","ids":{"openalex":"https://openalex.org/W7214101232","doi":"https://doi.org/10.6224/jn.26514","pmid":"https://pubmed.ncbi.nlm.nih.gov/42772918"},"language":"zh","primary_location":{"id":"pmid:42772918","doi":"https://doi.org/10.6224/jn.26514","is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/42772918","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Hu li za zhi The journal of nursing","raw_type":"Journal Article"},"volume":null,"type":"article","indexed_in":["pubmed"],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5014064395","display_name":"Huei-Shiuan Wang","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I4210131804","display_name":"National Taiwan University Hospital","ror":"https://ror.org/03nteze27","country_code":"TW","type":"healthcare","lineage":["https://openalex.org/I4210131804"]}],"countries":["TW"],"is_corresponding":true,"raw_author_name":"Huei-Shiuan Wang","raw_affiliation_strings":["Department of Nursing, National Taiwan University Hospital, Taiwan, ROC. 100656@ntuh.gov.tw"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Nursing, National Taiwan University Hospital, Taiwan, ROC. 100656@ntuh.gov.tw","institution_ids":["https://openalex.org/I4210131804"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":1,"corresponding_author_ids":["https://openalex.org/A5014064395"],"corresponding_institution_ids":["https://openalex.org/I4210131804"],"apc_list":null,"apc_paid":null,"fwci":0.0,"has_fulltext":false,"cited_by_count":0,"citation_normalized_percentile":{"value":0.72321887,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":null,"biblio":{"volume":"73","issue":"5","first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T13340","display_name":"Palliative and Oncologic Care","score":0.8970000147819519,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T13340","display_name":"Palliative and Oncologic Care","score":0.8970000147819519,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.06909999996423721,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13574","display_name":"Family Support in Illness","score":0.027000000700354576,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/end-of-life-care","display_name":"end-of-life care","score":0.8730000257492065},{"id":"https://openalex.org/keywords/dependent-children","display_name":"dependent children","score":0.8650000095367432},{"id":"https://openalex.org/keywords/caregiver-role-strain","display_name":"caregiver role strain","score":0.9610000252723694},{"id":"https://openalex.org/keywords/decisional-conflict","display_name":"decisional conflict","score":0.9100000262260437},{"id":"https://openalex.org/keywords/family-functioning","display_name":"family functioning","score":0.7609999775886536},{"id":"https://openalex.org/keywords/patient-and-family-centered-care","display_name":"patient- and family-centered care","score":0.7929999828338623},{"id":"https://openalex.org/keywords/pain-management","display_name":"pain management","score":0.5680000185966492},{"id":"https://openalex.org/keywords/grief-counseling","display_name":"grief counseling","score":0.675000011920929},{"id":"https://openalex.org/keywords/illness-disclosure","display_name":"disclosure of illness","score":0.718999981880188},{"id":"https://openalex.org/keywords/interdisciplinary-collaboration","display_name":"interdisciplinary collaboration","score":0.8209999799728394},{"id":"https://openalex.org/keywords/hospice-care","display_name":"hospice care","score":0.6620000004768372},{"id":"https://openalex.org/keywords/pediatric-oncology","display_name":"pediatric oncology","score":0.4909999966621399}],"concepts":[{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.7351999878883362},{"id":"https://openalex.org/C2777495918","wikidata":"https://www.wikidata.org/wiki/Q1196129","display_name":"Spouse","level":2,"score":0.7056999802589417},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.6467000246047974},{"id":"https://openalex.org/C2779134260","wikidata":"https://www.wikidata.org/wiki/Q12136","display_name":"Disease","level":2,"score":0.531000018119812},{"id":"https://openalex.org/C3017709941","wikidata":"https://www.wikidata.org/wiki/Q1364787","display_name":"Terminal cancer","level":3,"score":0.5084999799728394},{"id":"https://openalex.org/C2778900529","wikidata":"https://www.wikidata.org/wiki/Q2827779","display_name":"Family caregivers","level":2,"score":0.46320000290870667},{"id":"https://openalex.org/C2984889486","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing care","level":2,"score":0.4410000145435333},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.4088999927043915},{"id":"https://openalex.org/C526805850","wikidata":"https://www.wikidata.org/wiki/Q188874","display_name":"Colorectal cancer","level":3,"score":0.4043999910354614},{"id":"https://openalex.org/C121608353","wikidata":"https://www.wikidata.org/wiki/Q12078","display_name":"Cancer","level":2,"score":0.362199991941452},{"id":"https://openalex.org/C518773536","wikidata":"https://www.wikidata.org/wiki/Q918533","display_name":"Nursing research","level":2,"score":0.362199991941452},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.33239999413490295},{"id":"https://openalex.org/C2993797112","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing practice","level":2,"score":0.31779998540878296},{"id":"https://openalex.org/C105913360","wikidata":"https://www.wikidata.org/wiki/Q7243152","display_name":"Primary nursing","level":3,"score":0.3052999973297119},{"id":"https://openalex.org/C85866746","wikidata":"https://www.wikidata.org/wiki/Q1590997","display_name":"Nursing theory","level":3,"score":0.290800005197525},{"id":"https://openalex.org/C2775936607","wikidata":"https://www.wikidata.org/wiki/Q466845","display_name":"Tracking (education)","level":2,"score":0.28360000252723694},{"id":"https://openalex.org/C2779664074","wikidata":"https://www.wikidata.org/wiki/Q3518405","display_name":"Terminal (telecommunication)","level":2,"score":0.27889999747276306},{"id":"https://openalex.org/C2779473830","wikidata":"https://www.wikidata.org/wiki/Q1540899","display_name":"MEDLINE","level":2,"score":0.26489999890327454},{"id":"https://openalex.org/C2777896191","wikidata":"https://www.wikidata.org/wiki/Q22907655","display_name":"Patient experience","level":3,"score":0.2549999952316284}],"mesh":[{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005220","descriptor_name":"Fathers","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012004","descriptor_name":"Rectal Neoplasms","qualifier_ui":"Q000451","qualifier_name":"nursing","is_major_topic":true},{"descriptor_ui":"D012004","descriptor_name":"Rectal Neoplasms","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D013727","descriptor_name":"Terminal Care","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true}],"locations_count":1,"locations":[{"id":"pmid:42772918","doi":"https://doi.org/10.6224/jn.26514","is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/42772918","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Hu li za zhi The journal of nursing","raw_type":"Journal Article"}],"best_oa_location":null,"sustainable_development_goals":[{"score":1.0,"display_name":"Good health and well-being","id":"https://metadata.un.org/sdg/3"}],"sustainable_development_goals_aurora":[{"score":0.5742368698120117,"display_name":"No poverty","id":"https://metadata.un.org/sdg/1"}],"study_designs":[{"display_name":"Case Report","id":"https://openalex.org/study-designs/case-report"}],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":0,"referenced_works":[],"related_works":["https://openalex.org/W1993933540","https://openalex.org/W7207854039","https://openalex.org/W2743101228","https://openalex.org/W2102594978","https://openalex.org/W2311924816","https://openalex.org/W2781431458","https://openalex.org/W2030960264","https://openalex.org/W7220017641","https://openalex.org/W4380272453","https://openalex.org/W2117959105"],"abstract_inverted_index":{"This":[0],"report":[1,67],"describes":[2],"the":[3,8,35,46,70,86,103,114,141,194,200,217],"end-of-life":[4,74],"nursing":[5,87,160],"experience":[6],"of":[7,196],"author":[9],"in":[10,26],"providing":[11,247],"care":[12,75,248],"to":[13,50,92,119,164,189,221,249],"a":[14,96,211],"44-year-old":[15],"father":[16],"with":[17,21,29,78,204,216],"terminal":[18,47],"rectal":[19,30],"cancer":[20,31,80,206],"two":[22],"dependent":[23,83,201],"children.":[24,202],"Diagnosed":[25],"young":[27],"adulthood":[28],"and":[32,56,81,108,132,144,154,170,186,193,207,213,227,239],"multiple":[33],"metastases,":[34],"patient":[36],"initially":[37],"pursued":[38],"aggressive":[39],"treatment.":[40],"However,":[41],"rapid":[42],"disease":[43],"progression":[44],"during":[45,167],"stage":[48],"led":[49],"disrupted":[51],"family":[52,150,172,225],"processes,":[53,151],"role":[54,59,156],"conflict,":[55,153],"significant":[57],"caregiver":[58,155],"strain.":[60,157],"The":[61,111,136],"author's":[62],"motivation":[63],"for":[64,76,140,199,242,246],"compiling":[65],"this":[66,178,234,250],"stemmed":[68],"from":[69,89,219],"limited":[71],"research":[72],"addressing":[73],"\"parents":[77],"advanced":[79,205],"their":[82,208],"children\".":[84],"During":[85],"period":[88],"April":[90,93],"3":[91],"13,":[94],"2025,":[95],"holistic":[97],"assessment":[98],"was":[99,162],"conducted":[100],"that":[101,233],"covered":[102],"patient's":[104,115,142],"physical,":[105],"psychological,":[106,185],"social,":[107],"spiritual":[109],"dimensions.":[110],"results":[112],"indicated":[113],"primary":[116,137],"health":[117,138],"problems":[118,139],"be":[120],"pain,":[121],"ineffective":[122],"breathing":[123],"pattern,":[124],"imbalanced":[125],"nutrition,":[126],"disturbed":[127],"sleep":[128],"patterns,":[129],"self-care":[130],"deficit,":[131],"increased":[133],"fall":[134],"risk.":[135],"spouse":[143],"children":[145],"were":[146],"identified":[147],"as":[148],"interrupted":[149],"decisional":[152,168],"A":[158],"patient-and-family-centered":[159],"strategy":[161,179],"employed":[163],"facilitate":[165],"consensus":[166],"conflicts":[169],"restore":[171],"functioning":[173],"through":[174],"enhanced":[175],"communications.":[176],"Moreover,":[177],"facilitated":[180],"interdisciplinary":[181],"collaboration":[182],"among":[183],"pediatric,":[184],"hospice":[187],"teams":[188],"ensure":[190],"illness":[191],"disclosure":[192],"provision":[195],"bereavement":[197],"counseling":[198],"Parents":[203],"families":[209],"represent":[210],"unique":[212],"vulnerable":[214],"population,":[215],"trajectory":[218],"diagnosis":[220],"death":[222],"profoundly":[223],"impacting":[224],"structures":[226],"psychological":[228],"well-being.":[229],"It":[230],"is":[231],"hoped":[232],"case":[235],"provides":[236],"an":[237],"insightful":[238],"practical":[240],"reference":[241],"clinical":[243],"nurses":[244],"responsible":[245],"population.":[251]},"counts_by_year":[],"updated_date":"2026-10-31T12:09:11.096373","created_date":"2026-09-24T00:00:00"}