{"id":"https://openalex.org/W7212378928","doi":"https://doi.org/10.1186/s12969-026-01274-9","title":"Health-related quality of life in childhood arthritis: the impact of generic versus disease-specific instruments","display_name":"Health-related quality of life in childhood arthritis: the impact of generic versus disease-specific instruments","publication_year":2026,"publication_date":"2026-09-12","ids":{"openalex":"https://openalex.org/W7212378928","doi":"https://doi.org/10.1186/s12969-026-01274-9"},"language":"en","primary_location":{"id":"doi:10.1186/s12969-026-01274-9","doi":"https://doi.org/10.1186/s12969-026-01274-9","is_oa":true,"landing_page_url":"https://doi.org/10.1186/s12969-026-01274-9","pdf_url":null,"source":{"id":"https://openalex.org/S121831025","display_name":"Pediatric Rheumatology","issn_l":"1546-0096","issn":["1546-0096"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","dongbi-c","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-70","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320256","host_organization_name":"BioMed Central","host_organization_lineage":["https://openalex.org/P4310320256","https://openalex.org/P4310319965"],"host_organization_lineage_names":["BioMed Central","Springer Nature"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Pediatric Rheumatology","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref","doaj"],"open_access":{"is_oa":true,"oa_status":"gold","oa_url":"https://doi.org/10.1186/s12969-026-01274-9","any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5119690458","display_name":"Jelleke B. de Jonge","orcid":"https://orcid.org/0009-0009-6847-4409","observed_orcids":["https://orcid.org/0009-0009-6847-4409"]},"institutions":[{"id":"https://openalex.org/I193662353","display_name":"Utrecht University","ror":"https://ror.org/04pp8hn57","country_code":"NL","type":"education","lineage":["https://openalex.org/I193662353"]},{"id":"https://openalex.org/I3018483916","display_name":"University Medical Center Utrecht","ror":"https://ror.org/0575yy874","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I3018483916"]},{"id":"https://openalex.org/I4210162850","display_name":"Wilhelmina Children's Hospital","ror":"https://ror.org/05fqypv61","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I3018483916","https://openalex.org/I4210162850"]}],"countries":["NL"],"is_corresponding":false,"raw_author_name":"Jelleke B. de Jonge","raw_affiliation_strings":["Centre for Translational Immunology, University Medical Centre Utrecht, Utrecht University, Utrecht, The Netherlands","Department of Paediatric Rheumatology, Division of Paediatrics, Wilhelmina Children\u2019s Hospital, Faculty of Medicine, University Medical Centre Utrecht, Utrecht University, Utrecht, The Netherlands"],"raw_orcid":"https://orcid.org/0009-0009-6847-4409","affiliations":[{"raw_affiliation_string":"Centre for Translational Immunology, University Medical Centre Utrecht, Utrecht University, Utrecht, The Netherlands","institution_ids":["https://openalex.org/I193662353","https://openalex.org/I3018483916"]},{"raw_affiliation_string":"Department of Paediatric Rheumatology, Division of Paediatrics, Wilhelmina Children\u2019s Hospital, Faculty of Medicine, University Medical Centre Utrecht, Utrecht University, Utrecht, The Netherlands","institution_ids":["https://openalex.org/I193662353","https://openalex.org/I3018483916","https://openalex.org/I4210162850"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5110114270","display_name":"Sytze de Roock","orcid":"https://orcid.org/0009-0003-7281-1304","observed_orcids":["https://orcid.org/0009-0003-7281-1304"]},"institutions":[{"id":"https://openalex.org/I193662353","display_name":"Utrecht University","ror":"https://ror.org/04pp8hn57","country_code":"NL","type":"education","lineage":["https://openalex.org/I193662353"]},{"id":"https://openalex.org/I3018483916","display_name":"University Medical Center Utrecht","ror":"https://ror.org/0575yy874","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I3018483916"]},{"id":"https://openalex.org/I4210162850","display_name":"Wilhelmina Children's Hospital","ror":"https://ror.org/05fqypv61","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I3018483916","https://openalex.org/I4210162850"]}],"countries":["NL"],"is_corresponding":false,"raw_author_name":"Sytze de Roock","raw_affiliation_strings":["Department of Paediatric Rheumatology, Division of Paediatrics, Wilhelmina Children\u2019s Hospital, Faculty of Medicine, University Medical Centre Utrecht, Utrecht University, Utrecht, The Netherlands"],"raw_orcid":"https://orcid.org/0009-0003-7281-1304","affiliations":[{"raw_affiliation_string":"Department of Paediatric Rheumatology, Division of Paediatrics, Wilhelmina Children\u2019s Hospital, Faculty of Medicine, University Medical Centre Utrecht, Utrecht University, Utrecht, The Netherlands","institution_ids":["https://openalex.org/I193662353","https://openalex.org/I3018483916","https://openalex.org/I4210162850"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5093905115","display_name":"Nele Grundhoefer","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I193662353","display_name":"Utrecht University","ror":"https://ror.org/04pp8hn57","country_code":"NL","type":"education","lineage":["https://openalex.org/I193662353"]},{"id":"https://openalex.org/I3018483916","display_name":"University Medical Center Utrecht","ror":"https://ror.org/0575yy874","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I3018483916"]},{"id":"https://openalex.org/I4210162850","display_name":"Wilhelmina Children's Hospital","ror":"https://ror.org/05fqypv61","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I3018483916","https://openalex.org/I4210162850"]}],"countries":["NL"],"is_corresponding":false,"raw_author_name":"Nele Grundhoefer","raw_affiliation_strings":["Department of Paediatric Rheumatology, Division of Paediatrics, Wilhelmina Children\u2019s Hospital, Faculty of Medicine, University Medical Centre Utrecht, Utrecht University, Utrecht, The Netherlands"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Paediatric Rheumatology, Division of Paediatrics, Wilhelmina Children\u2019s Hospital, Faculty of Medicine, University Medical Centre Utrecht, Utrecht University, Utrecht, The Netherlands","institution_ids":["https://openalex.org/I193662353","https://openalex.org/I3018483916","https://openalex.org/I4210162850"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5049401142","display_name":"Deborah Anne Marshall","orcid":"https://orcid.org/0000-0002-8467-8008","observed_orcids":["https://orcid.org/0000-0002-8467-8008"]},"institutions":[{"id":"https://openalex.org/I168635309","display_name":"University of Calgary","ror":"https://ror.org/03yjb2x39","country_code":"CA","type":"education","lineage":["https://openalex.org/I168635309"]},{"id":"https://openalex.org/I4389425471","display_name":"Alberta Children's Hospital Research Institute","ror":"https://ror.org/00gmyvv50","country_code":null,"type":"facility","lineage":["https://openalex.org/I168635309","https://openalex.org/I4389425471"]},{"id":"https://openalex.org/I4405268522","display_name":"O'Brien Institute for Public Health","ror":"https://ror.org/017659471","country_code":"CA","type":"facility","lineage":["https://openalex.org/I4405268522"]}],"countries":["CA"],"is_corresponding":false,"raw_author_name":"Deborah A. Marshall","raw_affiliation_strings":["Cumming School of Medicine, Alberta Children\u2019s Hospital Research Institute, University of Calgary, Calgary, AB, Canada","Departments of Community Health Services and Medicine, McCaig Institute for Bone and Joint Health, Cumming School of Medicine, O\u2019Brien Institute for Public Health, University of Calgary, Calgary, AB, Canada"],"raw_orcid":"https://orcid.org/0000-0002-8467-8008","affiliations":[{"raw_affiliation_string":"Cumming School of Medicine, Alberta Children\u2019s Hospital Research Institute, University of Calgary, Calgary, AB, Canada","institution_ids":["https://openalex.org/I168635309","https://openalex.org/I4389425471"]},{"raw_affiliation_string":"Departments of Community Health Services and Medicine, McCaig Institute for Bone and Joint Health, Cumming School of Medicine, O\u2019Brien Institute for Public Health, University of Calgary, Calgary, AB, Canada","institution_ids":["https://openalex.org/I168635309","https://openalex.org/I4405268522"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5020507966","display_name":"Sebastiaan J. Vastert","orcid":"https://orcid.org/0000-0002-4226-0949","observed_orcids":["https://orcid.org/0000-0002-4226-0949"]},"institutions":[{"id":"https://openalex.org/I193662353","display_name":"Utrecht University","ror":"https://ror.org/04pp8hn57","country_code":"NL","type":"education","lineage":["https://openalex.org/I193662353"]},{"id":"https://openalex.org/I3018483916","display_name":"University Medical Center Utrecht","ror":"https://ror.org/0575yy874","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I3018483916"]},{"id":"https://openalex.org/I4210162850","display_name":"Wilhelmina Children's Hospital","ror":"https://ror.org/05fqypv61","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I3018483916","https://openalex.org/I4210162850"]}],"countries":["NL"],"is_corresponding":false,"raw_author_name":"Sebastiaan J. Vastert","raw_affiliation_strings":["Centre for Translational Immunology, University Medical Centre Utrecht, Utrecht University, Utrecht, The Netherlands","Department of Paediatric Rheumatology, Division of Paediatrics, Wilhelmina Children\u2019s Hospital, Faculty of Medicine, University Medical Centre Utrecht, Utrecht University, Utrecht, The Netherlands"],"raw_orcid":"https://orcid.org/0000-0002-4226-0949","affiliations":[{"raw_affiliation_string":"Centre for Translational Immunology, University Medical Centre Utrecht, Utrecht University, Utrecht, The Netherlands","institution_ids":["https://openalex.org/I193662353","https://openalex.org/I3018483916"]},{"raw_affiliation_string":"Department of Paediatric Rheumatology, Division of Paediatrics, Wilhelmina Children\u2019s Hospital, Faculty of Medicine, University Medical Centre Utrecht, Utrecht University, Utrecht, The Netherlands","institution_ids":["https://openalex.org/I193662353","https://openalex.org/I3018483916","https://openalex.org/I4210162850"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5040872283","display_name":"Rae S. M. Yeung","orcid":"https://orcid.org/0000-0003-2361-725X","observed_orcids":["https://orcid.org/0000-0003-2361-725X"]},"institutions":[{"id":"https://openalex.org/I185261750","display_name":"University of Toronto","ror":"https://ror.org/03dbr7087","country_code":"CA","type":"education","lineage":["https://openalex.org/I185261750"]},{"id":"https://openalex.org/I2801317318","display_name":"Hospital for Sick Children","ror":"https://ror.org/057q4rt57","country_code":"CA","type":"healthcare","lineage":["https://openalex.org/I2801317318"]}],"countries":["CA"],"is_corresponding":false,"raw_author_name":"Rae S. M. Yeung","raw_affiliation_strings":["Division of Rheumatology, Department of Paediatrics, Immunology and Institute of Medical Science, The Hospital for Sick Children, University of Toronto, Toronto, ON, Canada"],"raw_orcid":"https://orcid.org/0000-0003-2361-725X","affiliations":[{"raw_affiliation_string":"Division of Rheumatology, Department of Paediatrics, Immunology and Institute of Medical Science, The Hospital for Sick Children, University of Toronto, Toronto, ON, Canada","institution_ids":["https://openalex.org/I185261750","https://openalex.org/I2801317318"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5038335245","display_name":"Susanne M. Benseler","orcid":"https://orcid.org/0000-0001-5756-3638","observed_orcids":["https://orcid.org/0000-0001-5756-3638","https://orcid.org/0000-0002-3543-5640","https://orcid.org/0000-0002-8754-8903"]},"institutions":[{"id":"https://openalex.org/I100930933","display_name":"University College Dublin","ror":"https://ror.org/05m7pjf47","country_code":"IE","type":"education","lineage":["https://openalex.org/I100930933"]},{"id":"https://openalex.org/I168635309","display_name":"University of Calgary","ror":"https://ror.org/03yjb2x39","country_code":"CA","type":"education","lineage":["https://openalex.org/I168635309"]},{"id":"https://openalex.org/I205274468","display_name":"Trinity College Dublin","ror":"https://ror.org/02tyrky19","country_code":"IE","type":"education","lineage":["https://openalex.org/I205274468"]},{"id":"https://openalex.org/I4389425471","display_name":"Alberta Children's Hospital Research Institute","ror":"https://ror.org/00gmyvv50","country_code":null,"type":"facility","lineage":["https://openalex.org/I168635309","https://openalex.org/I4389425471"]}],"countries":["CA","IE"],"is_corresponding":true,"raw_author_name":"Susanne M. Benseler","raw_affiliation_strings":["Children\u2019s Health Ireland, University College Dublin, Trinity College Dublin, Dublin, Ireland","Cumming School of Medicine, Alberta Children\u2019s Hospital Research Institute, University of Calgary, Calgary, AB, Canada"],"raw_orcid":"https://orcid.org/0000-0001-5756-3638","affiliations":[{"raw_affiliation_string":"Children\u2019s Health Ireland, University College Dublin, Trinity College Dublin, Dublin, Ireland","institution_ids":["https://openalex.org/I100930933","https://openalex.org/I205274468"]},{"raw_affiliation_string":"Cumming School of Medicine, Alberta Children\u2019s Hospital Research Institute, University of Calgary, Calgary, AB, Canada","institution_ids":["https://openalex.org/I168635309","https://openalex.org/I4389425471"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5048041647","display_name":"Joost Frans Swart","orcid":"https://orcid.org/0000-0002-2759-2822","observed_orcids":["https://orcid.org/0000-0002-2759-2822"]},"institutions":[{"id":"https://openalex.org/I193662353","display_name":"Utrecht University","ror":"https://ror.org/04pp8hn57","country_code":"NL","type":"education","lineage":["https://openalex.org/I193662353"]},{"id":"https://openalex.org/I3018483916","display_name":"University Medical Center Utrecht","ror":"https://ror.org/0575yy874","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I3018483916"]},{"id":"https://openalex.org/I4210162850","display_name":"Wilhelmina Children's Hospital","ror":"https://ror.org/05fqypv61","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I3018483916","https://openalex.org/I4210162850"]}],"countries":["NL"],"is_corresponding":false,"raw_author_name":"Joost F. Swart","raw_affiliation_strings":["Department of Paediatric Rheumatology, Division of Paediatrics, Wilhelmina Children\u2019s Hospital, Faculty of Medicine, University Medical Centre Utrecht, Utrecht University, Utrecht, The Netherlands"],"raw_orcid":"https://orcid.org/0000-0002-2759-2822","affiliations":[{"raw_affiliation_string":"Department of Paediatric Rheumatology, Division of Paediatrics, Wilhelmina Children\u2019s Hospital, Faculty of Medicine, University Medical Centre Utrecht, Utrecht University, Utrecht, The Netherlands","institution_ids":["https://openalex.org/I193662353","https://openalex.org/I3018483916","https://openalex.org/I4210162850"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5130745974","display_name":"UCAN CURE Consortia the UCAN CAN-DU","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"UCAN CAN-DU and UCAN CURE consortia","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5108792086","display_name":"Adam Huber","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Adam Huber","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5002183437","display_name":"Bianca A. Lang","orcid":"https://orcid.org/0000-0002-5686-4276","observed_orcids":["https://orcid.org/0000-0002-5686-4276"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Bianca Lang","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5011150213","display_name":"Chelsea DeCoste","orcid":"https://orcid.org/0000-0003-4744-5210","observed_orcids":["https://orcid.org/0000-0003-4744-5210"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Chelsea DeCoste","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5144187007","display_name":"Elizabeth Stringer","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Elizabeth Stringer","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5076365982","display_name":"Suzanne Ramsey","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Suzanne Ramsey","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5137348188","display_name":"Alan M. Rosenberg","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Alan Rosenberg","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5151510703","display_name":"Kate Neufeld","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Kate Neufeld","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5135678292","display_name":"Mehul P. Jariwala","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Mehul Jariwala","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5027022574","display_name":"Tristan Kerr","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Tristan Kerr","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5119510209","display_name":"Alexander Mosoiu","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Alexander Mosoiu","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5087785318","display_name":"Alisa Rachlis","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Alisa Rachlis","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5151503093","display_name":"Amy Xu","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Amy Xu","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5065955784","display_name":"Arthur H. Cheng","orcid":"https://orcid.org/0000-0001-8214-1437","observed_orcids":["https://orcid.org/0000-0001-8214-1437"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Arthur Cheng","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5130791382","display_name":"BrenleighJebb Jebb","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Brenleigh Jebb","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5130807715","display_name":"Brian Feldman","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Brian Feldman","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5130752096","display_name":"Bruno Pereira","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Bruno Pereira","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5046639777","display_name":"Deborah M. Levy","orcid":"https://orcid.org/0000-0003-1023-9499","observed_orcids":["https://orcid.org/0000-0003-1023-9499"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Deborah Levy","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5044132992","display_name":"Dilan Dissanayake","orcid":"https://orcid.org/0000-0003-4270-7015","observed_orcids":["https://orcid.org/0000-0003-4270-7015"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Dilan Dissanayake","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5058229297","display_name":"Elizaveta Limenis","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Elizaveta Limenis","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5022184692","display_name":"Evelyn Rozenblyum","orcid":"https://orcid.org/0009-0006-2458-0830","observed_orcids":["https://orcid.org/0009-0006-2458-0830"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Evelyn Rozenblyum","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5130764875","display_name":"Harper Cheng","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Harper Cheng","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5006350041","display_name":"Jennifer Ji Young Lee","orcid":"https://orcid.org/0000-0002-5300-2662","observed_orcids":["https://orcid.org/0000-0002-5300-2662"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Jennifer Ji Young Lee","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5043518902","display_name":"Lynn R. Spiegel","orcid":"https://orcid.org/0000-0003-1581-0789","observed_orcids":["https://orcid.org/0000-0003-1581-0789"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Lynn Spiegel","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5009557875","display_name":"Rayfel Schneider","orcid":"https://orcid.org/0000-0001-8636-0506","observed_orcids":["https://orcid.org/0000-0001-8636-0506"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Rayfel Schneider","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5078753446","display_name":"Ronald M. Laxer","orcid":"https://orcid.org/0000-0001-6907-5148","observed_orcids":["https://orcid.org/0000-0001-6907-5148"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Ronald Laxer","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5039541971","display_name":"Ruud H J Verstegen","orcid":"https://orcid.org/0000-0001-6638-8405","observed_orcids":["https://orcid.org/0000-0001-6638-8405"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Ruud Verstegen","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5144205823","display_name":"Shirley Tse","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Shirley Tse","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5130780018","display_name":"Trang Duong","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Trang Duong","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5022419667","display_name":"Andrea Human","orcid":"https://orcid.org/0000-0001-7888-2806","observed_orcids":["https://orcid.org/0000-0001-7888-2806"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Andrea Human","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5126644963","display_name":"David Cabral","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"David Cabral","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5058990796","display_name":"Herman H. Y. Tam","orcid":"https://orcid.org/0000-0002-5805-0639","observed_orcids":["https://orcid.org/0000-0002-5805-0639"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Herman Tam","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5074952273","display_name":"Jaime Guzm\u00e1n","orcid":"https://orcid.org/0000-0001-8977-2581","observed_orcids":["https://orcid.org/0000-0001-8977-2581"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Jaime Guzman","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5130789209","display_name":"Kim Morishita","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Kim Morishita","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5136194743","display_name":"Kristin Houghton","orcid":"https://orcid.org/0000-0001-7174-1007","observed_orcids":["https://orcid.org/0000-0001-7174-1007"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Kristin Houghton","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5130736520","display_name":"Lori Tucker","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Lori Tucker","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5144215896","display_name":"Mercedes Chan","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Mercedes Chan","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5036478834","display_name":"Ross E. Petty","orcid":"https://orcid.org/0000-0001-5774-2273","observed_orcids":["https://orcid.org/0000-0001-5774-2273"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Ross Petty","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5066459817","display_name":"Tommy Gerschman","orcid":"https://orcid.org/0000-0003-4073-0617","observed_orcids":["https://orcid.org/0000-0003-4073-0617"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Tommy Gerschman","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5056152125","display_name":"Annet van Royen\u2010Kerkhof","orcid":"https://orcid.org/0009-0009-6874-4421","observed_orcids":["https://orcid.org/0009-0009-6874-4421"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Annet van Royen-Kerkhof","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5029596727","display_name":"Berent Jan Prakken","orcid":"https://orcid.org/0000-0001-8488-4816","observed_orcids":["https://orcid.org/0000-0001-8488-4816"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Berent Prakken","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5042731682","display_name":"Erika Van Nieuwenhove","orcid":"https://orcid.org/0000-0002-7933-1800","observed_orcids":["https://orcid.org/0000-0002-7933-1800","https://orcid.org/0000-0001-9584-3198"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Erika Van Nieuwenhove","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5017059645","display_name":"Marc H.A. Jansen","orcid":"https://orcid.org/0000-0001-6969-8759","observed_orcids":["https://orcid.org/0000-0001-6969-8759"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Marc Jansen","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5055180780","display_name":"Nico Martinus Wulffraat","orcid":"https://orcid.org/0000-0001-9548-5562","observed_orcids":["https://orcid.org/0000-0001-9548-5562"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Nico Wulffraat","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5112777741","display_name":"Ciaran Duffy","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Ciar\u00e1n Duffy","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5130753112","display_name":"Nadia Luca","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Nadia Luca","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5036618366","display_name":"Roman Ju\u0159en\u010d\u00e1k","orcid":"https://orcid.org/0000-0003-3374-3807","observed_orcids":["https://orcid.org/0000-0003-3374-3807"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Roman Jurencak","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5034910272","display_name":"Tala El Tal","orcid":"https://orcid.org/0000-0002-3572-5613","observed_orcids":["https://orcid.org/0000-0002-3572-5613"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Tala El Tal","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5027601453","display_name":"Claire M. A. LeBlanc","orcid":"https://orcid.org/0000-0003-1666-7945","observed_orcids":["https://orcid.org/0000-0003-1666-7945"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Claire LeBlanc","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5034783558","display_name":"Ga\u00eblle Ch\u00e9deville","orcid":"https://orcid.org/0000-0001-9702-7776","observed_orcids":["https://orcid.org/0000-0001-9702-7776"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Ga\u00eblle Ch\u00e9deville","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5054514100","display_name":"Piya Lahiry","orcid":"https://orcid.org/0000-0003-1427-4945","observed_orcids":["https://orcid.org/0000-0003-1427-4945"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Piya Lahiry","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5046365282","display_name":"Rosie Scuccimarri","orcid":"https://orcid.org/0000-0002-7491-3318","observed_orcids":["https://orcid.org/0000-0002-7491-3318"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Rosie Scuccimarri","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5060976522","display_name":"Sarah Campillo","orcid":"https://orcid.org/0000-0002-2694-8671","observed_orcids":["https://orcid.org/0000-0002-2694-8671"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Sarah Campillo","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5112027905","display_name":"Clare Hutchinson","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Clare Hutchinson","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5033161602","display_name":"Daniah Basodan","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Daniah Basodan","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5048675329","display_name":"Dax G. Rumsey","orcid":"https://orcid.org/0000-0002-9211-4640","observed_orcids":["https://orcid.org/0000-0002-9211-4640"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Dax G. Rumsey","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5102898210","display_name":"Hon Yan Ng","orcid":"https://orcid.org/0000-0001-7163-4156","observed_orcids":["https://orcid.org/0000-0001-7163-4156"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Hon Yan Ng","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5081188544","display_name":"Jeanine McColl","orcid":"https://orcid.org/0000-0003-1937-1330","observed_orcids":["https://orcid.org/0000-0003-1937-1330"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Jeanine McColl","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5002452187","display_name":"Lillian Lim","orcid":"https://orcid.org/0000-0001-7167-7690","observed_orcids":["https://orcid.org/0000-0001-7167-7690"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Lillian Lim","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5033588911","display_name":"Tara R. McGrath","orcid":"https://orcid.org/0000-0001-9553-1960","observed_orcids":["https://orcid.org/0000-0001-9553-1960"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Tara McGrath","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5130808958","display_name":"Danielle Brinkman","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Danielle Brinkman","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5063233359","display_name":"Petra Hissink Muller","orcid":"https://orcid.org/0000-0002-5572-4888","observed_orcids":["https://orcid.org/0000-0002-5572-4888"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Petra Hissink Muller","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5125388192","display_name":"Elizabeth Legger","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Elizabeth Legger","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5108608280","display_name":"Wineke Armbrust","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Wineke Armbrust","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5008316321","display_name":"Ellen J. H. Schatorj\u00e9","orcid":"https://orcid.org/0009-0004-2132-7093","observed_orcids":["https://orcid.org/0009-0004-2132-7093"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Ellen Schatorje","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5130781743","display_name":"Esther Hoppenreijs","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Esther Hoppenreijs","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5075764005","display_name":"Elodie Boudes","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Elodie Boudes","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5049041214","display_name":"Gillian R. Currie","orcid":"https://orcid.org/0000-0002-4681-9893","observed_orcids":["https://orcid.org/0000-0002-4681-9893"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Gillian Currie","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5042979209","display_name":"Heinrike Schmeling","orcid":"https://orcid.org/0000-0001-8142-8946","observed_orcids":["https://orcid.org/0000-0001-8142-8946"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Heinrike Schmeling","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5090017681","display_name":"Muhammed Dhalla","orcid":"https://orcid.org/0000-0002-4544-329X","observed_orcids":["https://orcid.org/0000-0002-4544-329X"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Muhammed Dhalla","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5128401773","display_name":"Nicole Johnson","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Nicole Johnson","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5130728519","display_name":"Paivi Miettunen","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Paivi Miettunen","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5041949874","display_name":"Ravneet Kaur Sran","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Ravneet Sran","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5027270440","display_name":"Rebeka Stevenson","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Rebeka Stevenson","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5000636712","display_name":"Erkan Demirkaya","orcid":"https://orcid.org/0000-0003-4525-1789","observed_orcids":["https://orcid.org/0000-0003-4525-1789"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Erkan Demirkaya","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5130745037","display_name":"Jonathan Park","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Jonathan Park","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5129192246","display_name":"Roberta Berard","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Roberta Berard","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5085543847","display_name":"Dieneke Schonenberg\u2010Meinema","orcid":"https://orcid.org/0000-0001-9416-6631","observed_orcids":["https://orcid.org/0000-0001-9416-6631"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Dieneke Schonenberg-Meinema","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5031752232","display_name":"Giske Biesbroek","orcid":"https://orcid.org/0000-0002-5600-9587","observed_orcids":["https://orcid.org/0000-0002-5600-9587"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Giske Biesbroek","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5083281863","display_name":"Mariken P. Gruppen","orcid":"https://orcid.org/0000-0001-7698-1907","observed_orcids":["https://orcid.org/0000-0001-7698-1907"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Mariken Gruppen","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5086318752","display_name":"J. Merlijn van den Berg","orcid":"https://orcid.org/0000-0001-9431-5457","observed_orcids":["https://orcid.org/0000-0001-9431-5457","https://orcid.org/0000-0003-3026-2784","https://orcid.org/0000-0001-7896-8220"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"J. Merlijn van den Berg","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5045883359","display_name":"Gordon S. Soon","orcid":"https://orcid.org/0000-0003-1054-6245","observed_orcids":["https://orcid.org/0000-0003-1054-6245"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Gordon Soon","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5104070413","display_name":"Joseph Cafazzo","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Joseph Cafazzo","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5029596111","display_name":"Liane D. Heale","orcid":"https://orcid.org/0000-0002-1726-9917","observed_orcids":["https://orcid.org/0000-0002-1726-9917"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Liane Heale","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5037002716","display_name":"Michelle Batthish","orcid":"https://orcid.org/0000-0001-6412-1029","observed_orcids":["https://orcid.org/0000-0001-6412-1029"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Michelle Batthish","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5028137119","display_name":"Tania Cellucci","orcid":"https://orcid.org/0000-0002-6022-495X","observed_orcids":["https://orcid.org/0000-0002-6022-495X"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Tania Cellucci","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5130782335","display_name":"Lily Lim","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Lily Lim","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5005608514","display_name":"Maarten J. IJzerman","orcid":"https://orcid.org/0000-0001-5788-5805","observed_orcids":["https://orcid.org/0000-0001-5788-5805"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Maarten IJzerman","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5049436690","display_name":"Marinka Twilt","orcid":"https://orcid.org/0000-0003-1954-2822","observed_orcids":["https://orcid.org/0000-0003-1954-2822"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Marinka Twilt","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5015736957","display_name":"Marleen Verkaaik","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Marleen Verkaaik","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5024923522","display_name":"Philomine A van Pelt","orcid":"https://orcid.org/0000-0003-1687-4434","observed_orcids":["https://orcid.org/0000-0003-1687-4434"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Philomine van Pelt","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5080309109","display_name":"Sylvia Kamphuis","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Sylvia Kamphuis","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5042872671","display_name":"Michelle M. A. Kip","orcid":"https://orcid.org/0000-0002-6405-6789","observed_orcids":["https://orcid.org/0000-0002-6405-6789"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Michelle Kip","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5130810423","display_name":"Nickolas Blanchette","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Nickolas Blanchette","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5004228996","display_name":"Paul Dancey","orcid":"https://orcid.org/0000-0001-5998-9608","observed_orcids":["https://orcid.org/0000-0001-5998-9608"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Paul Dancey","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"last","author":{"id":"https://openalex.org/A5130776542","display_name":"Regina de Geus","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Regina de Geus","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]}],"institutions":[],"countries_distinct_count":3,"institutions_distinct_count":10,"corresponding_author_ids":["https://openalex.org/A5038335245"],"corresponding_institution_ids":["https://openalex.org/I100930933","https://openalex.org/I168635309","https://openalex.org/I205274468","https://openalex.org/I4389425471"],"apc_list":{"value":3090,"currency":"USD","value_usd":3090},"apc_paid":{"value":3090,"currency":"USD","value_usd":3090},"fwci":0.0,"has_fulltext":false,"cited_by_count":0,"citation_normalized_percentile":{"value":0.70799898,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":null,"biblio":{"volume":null,"issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10804","display_name":"Health Systems, Economic Evaluations, Quality of Life","score":0.9291999936103821,"subfield":{"id":"https://openalex.org/subfields/2002","display_name":"Economics and Econometrics"},"field":{"id":"https://openalex.org/fields/20","display_name":"Economics, Econometrics and Finance"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T10804","display_name":"Health Systems, Economic Evaluations, Quality of Life","score":0.9291999936103821,"subfield":{"id":"https://openalex.org/subfields/2002","display_name":"Economics and Econometrics"},"field":{"id":"https://openalex.org/fields/20","display_name":"Economics, Econometrics and Finance"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T11616","display_name":"Autoimmune and Inflammatory Disorders Research","score":0.055799998342990875,"subfield":{"id":"https://openalex.org/subfields/2720","display_name":"Hematology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11141","display_name":"Childhood Cancer Survivors' Quality of Life","score":0.0038999998942017555,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/health-related-quality-of-life","display_name":"health-related quality of life","score":0.9549999833106995},{"id":"https://openalex.org/keywords/childhood-arthritis","display_name":"pediatric arthritis","score":0.968999981880188},{"id":"https://openalex.org/keywords/juvenile-idiopathic-arthritis","display_name":"juvenile idiopathic arthritis","score":0.9459999799728394},{"id":"https://openalex.org/keywords/jamar","display_name":"JAMAR","score":0.8999999761581421},{"id":"https://openalex.org/keywords/eq-5d-y-5l","display_name":"EQ-5D-Y-5L","score":0.9929999709129333},{"id":"https://openalex.org/keywords/disease-activity","display_name":"disease activity","score":0.781000018119812},{"id":"https://openalex.org/keywords/pain-and-discomfort","display_name":"pain and discomfort","score":0.6539999842643738},{"id":"https://openalex.org/keywords/mobility-physical-function","display_name":"mobility (physical function)","score":0.7820000052452087}],"concepts":[{"id":"https://openalex.org/C160798450","wikidata":"https://www.wikidata.org/wiki/Q4230870","display_name":"Concordance","level":2,"score":0.871999979019165},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.8374999761581421},{"id":"https://openalex.org/C2779951463","wikidata":"https://www.wikidata.org/wiki/Q7268788","display_name":"Quality of life (healthcare)","level":2,"score":0.6725000143051147},{"id":"https://openalex.org/C117220453","wikidata":"https://www.wikidata.org/wiki/Q5172842","display_name":"Correlation","level":2,"score":0.5077000260353088},{"id":"https://openalex.org/C74909509","wikidata":"https://www.wikidata.org/wiki/Q10387","display_name":"Gerontology","level":1,"score":0.4526999890804291},{"id":"https://openalex.org/C3019006561","wikidata":"https://www.wikidata.org/wiki/Q7268788","display_name":"Health related quality of life","level":3,"score":0.37599998712539673},{"id":"https://openalex.org/C1862650","wikidata":"https://www.wikidata.org/wiki/Q186005","display_name":"Physical therapy","level":1,"score":0.32339999079704285},{"id":"https://openalex.org/C2779134260","wikidata":"https://www.wikidata.org/wiki/Q12136","display_name":"Disease","level":2,"score":0.32179999351501465},{"id":"https://openalex.org/C30036603","wikidata":"https://www.wikidata.org/wiki/Q17125150","display_name":"Severity of illness","level":2,"score":0.32170000672340393},{"id":"https://openalex.org/C2779473830","wikidata":"https://www.wikidata.org/wiki/Q1540899","display_name":"MEDLINE","level":2,"score":0.2858000099658966},{"id":"https://openalex.org/C2986115478","wikidata":"https://www.wikidata.org/wiki/Q186290","display_name":"Positive correlation","level":2,"score":0.2793999910354614},{"id":"https://openalex.org/C198451711","wikidata":"https://www.wikidata.org/wiki/Q327657","display_name":"Rheumatology","level":2,"score":0.27889999747276306},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.273499995470047},{"id":"https://openalex.org/C70410870","wikidata":"https://www.wikidata.org/wiki/Q199906","display_name":"Clinical psychology","level":1,"score":0.25459998846054077}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.1186/s12969-026-01274-9","doi":"https://doi.org/10.1186/s12969-026-01274-9","is_oa":true,"landing_page_url":"https://doi.org/10.1186/s12969-026-01274-9","pdf_url":null,"source":{"id":"https://openalex.org/S121831025","display_name":"Pediatric Rheumatology","issn_l":"1546-0096","issn":["1546-0096"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","dongbi-c","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-70","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320256","host_organization_name":"BioMed Central","host_organization_lineage":["https://openalex.org/P4310320256","https://openalex.org/P4310319965"],"host_organization_lineage_names":["BioMed Central","Springer Nature"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Pediatric Rheumatology","raw_type":"journal-article"}],"best_oa_location":{"id":"doi:10.1186/s12969-026-01274-9","doi":"https://doi.org/10.1186/s12969-026-01274-9","is_oa":true,"landing_page_url":"https://doi.org/10.1186/s12969-026-01274-9","pdf_url":null,"source":{"id":"https://openalex.org/S121831025","display_name":"Pediatric Rheumatology","issn_l":"1546-0096","issn":["1546-0096"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","dongbi-c","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-70","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320256","host_organization_name":"BioMed Central","host_organization_lineage":["https://openalex.org/P4310320256","https://openalex.org/P4310319965"],"host_organization_lineage_names":["BioMed Central","Springer Nature"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Pediatric Rheumatology","raw_type":"journal-article"},"sustainable_development_goals":[{"display_name":"Good health and well-being","id":"https://metadata.un.org/sdg/3","score":1.0}],"sustainable_development_goals_aurora":[{"display_name":"Peace, justice, and strong institutions","id":"https://metadata.un.org/sdg/16","score":0.7380580902099609}],"study_designs":[{"display_name":"Observational Study","id":"https://openalex.org/study-designs/observational-study"}],"awards":[{"id":"https://openalex.org/G1565335","display_name":null,"funder_award_id":"grant number 381,280","funder_id":"https://openalex.org/F4320334506","funder_display_name":"Canadian Institutes of Health Research"},{"id":"https://openalex.org/G398962009","display_name":null,"funder_award_id":"grant number OGI-150","funder_id":"https://openalex.org/F4320310787","funder_display_name":"Genome Canada"},{"id":"https://openalex.org/G4382663270","display_name":null,"funder_award_id":"grant number 848,006,001","funder_id":"https://openalex.org/F4320321007","funder_display_name":"ZonMw"}],"funders":[{"id":"https://openalex.org/F4320310787","display_name":"Genome Canada","ror":"https://ror.org/029s29983"},{"id":"https://openalex.org/F4320314024","display_name":"Ontario Genomics","ror":null},{"id":"https://openalex.org/F4320321007","display_name":"ZonMw","ror":"https://ror.org/01yaj9a77"},{"id":"https://openalex.org/F4320326646","display_name":"Genome Alberta","ror":"https://ror.org/0008rqs82"},{"id":"https://openalex.org/F4320334506","display_name":"Canadian Institutes of Health Research","ror":"https://ror.org/01gavpb45"}],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":0,"referenced_works":[],"related_works":[],"abstract_inverted_index":{"Abstract":[0],"Background":[1],"Health-related":[2],"quality":[3],"of":[4,22,55,107,136,188,212,227,286],"life":[5],"(HRQoL)":[6],"data":[7],"provided":[8,253],"by":[9,98,113],"children":[10,73,160,273],"with":[11,74,161],"arthritis":[12,75],"and":[13,24,42,58,78,89,152,181,198,205,216,238,251,258,284],"their":[14,103],"parents":[15,252],"is":[16,30,36],"critically":[17],"important":[18],"to":[19,51,118,124,256],"enable":[20],"co-design":[21],"care":[23],"shared":[25],"decision":[26],"making.":[27],"However,":[28],"there":[29],"significant":[31],"heterogeneity":[32],"in":[33,61,85,186,266],"how":[34],"HRQoL":[35,260,287],"captured,":[37],"as":[38],"both":[39],"generic":[40,215,257],"(EQ-5D-Y-5L)":[41],"disease-specific":[43,217,259],"instruments":[44,218],"(JAMAR)":[45],"are":[46],"available.":[47],"This":[48,81],"study":[49,69,82,157],"aimed":[50],"examine":[52],"the":[53,56,79,95,100,108,115,125,144,150,153,166,189,236,239,280],"concordance":[54,106,263],"JAMAR":[57,88,121,151,180,240],"EQ-5D-Y-5L":[59,90,126,182,237],"questionnaires":[60,91],"childhood":[62],"arthritis.":[63],"Methods":[64],"The":[65,105,134,156,262],"international":[66],"UCAN":[67],"CAN-DU":[68],"prospectively":[70],"enrolled":[71],"consecutive":[72],"across":[76,191,220],"Canada":[77],"Netherlands.":[80],"included":[83,158],"patients":[84,101],"whom":[86],"corresponding":[87,123],"were":[92,164,184,274],"completed":[93],"on":[94],"same":[96],"date":[97],"either":[99],"or":[102],"parents.":[104],"questionnaire":[109,171],"responses":[110,183,255],"was":[111,139,172,264],"measured":[112],"comparing":[114],"answers":[116],"given":[117],"five":[119],"specific":[120],"domains":[122,193,222,268],"dimensions":[127],"(anxiety/depression;":[128],"mobility;":[129],"pain/discomfort;":[130],"self-care;":[131],"usual":[132,206],"activities).":[133],"impact":[135],"disease":[137,277],"activity":[138],"assessed.":[140],"Spearman\u2019s":[141],"correlation":[142,234],"explored":[143],"association":[145],"between":[146,179,235],"global":[147,228],"scales":[148,230],"from":[149],"EQ-5D-Y-5L.":[154],"Results":[155],"678":[159],"JIA;":[162],"63%":[163],"female;":[165],"median":[167],"age":[168],"at":[169],"first":[170],"11.9":[173],"years":[174],"(interquartile":[175],"range:":[176],"6.2\u201315.1).":[177],"Concordances":[178],"found":[185],"84%":[187],"questions":[190],"all":[192,221,267],"(84%,":[194],"82%,":[195],"85%,":[196],"87%,":[197],"82%":[199],"for":[200,224,270],"anxiety/depression,":[201],"mobility,":[202],"pain/discomfort,":[203],"self-care,":[204],"activities,":[207],"respectively).":[208],"In":[209],"a":[210,232],"state":[211],"inactive":[213],"disease,":[214],"converged":[219],"except":[223,269],"pain/discomfort.":[225],"Comparison":[226],"assessment":[229],"revealed":[231],"high":[233,276],"(Spearman\u2019s":[241],"correlation:":[242],"R":[243],"=":[244],"-0.72,":[245],"p":[246],"<":[247],"0.001).":[248],"Conclusions":[249],"Patients":[250],"different":[254],"instruments.":[261,288],"reduced":[265],"pain/discomfort":[271],"when":[272],"experiencing":[275],"activity,":[278],"highlighting":[279],"perceived":[281],"conceptual":[282],"differences":[283],"limitations":[285]},"counts_by_year":[],"updated_date":"2026-10-16T09:59:22.235173","created_date":"2026-09-13T00:00:00"}