{"id":"https://openalex.org/W7212367645","doi":"https://doi.org/10.2196/91765","title":"Using Cognitive Interviewing to Assess the Feasibility and Acceptability of the Network Canvas Platform for Social Network Data Collection Among Adolescent and Young Adult Survivors of Cancer: Pilot Descriptive Study","display_name":"Using Cognitive Interviewing to Assess the Feasibility and Acceptability of the Network Canvas Platform for Social Network Data Collection Among Adolescent and Young Adult Survivors of Cancer: Pilot Descriptive Study","publication_year":2026,"publication_date":"2026-09-12","ids":{"openalex":"https://openalex.org/W7212367645","doi":"https://doi.org/10.2196/91765","pmid":"https://pubmed.ncbi.nlm.nih.gov/42962074","pmcid":"https://www.ncbi.nlm.nih.gov/pmc/articles/13722095"},"language":"en","primary_location":{"id":"doi:10.2196/91765","doi":"https://doi.org/10.2196/91765","is_oa":true,"landing_page_url":"https://doi.org/10.2196/91765","pdf_url":null,"source":{"id":"https://openalex.org/S4210234749","display_name":"JMIR Formative Research","issn_l":"2561-326X","issn":["2561-326X"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","doyens","medline","norway-1","oarl","poland-20","russia-white-list-3","vabb-shw"],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"JMIR Formative Research","raw_type":"journal-article"},"volume":null,"type":"article","is_traditional":true,"indexed_in":["crossref","doaj","pubmed"],"open_access":{"is_oa":true,"oa_status":"gold","oa_url":"https://doi.org/10.2196/91765","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5028455019","display_name":"Pooja Rao","orcid":"https://orcid.org/0000-0001-7968-3286","observed_orcids":["https://orcid.org/0000-0001-7968-3286"]},"institutions":[{"id":"https://openalex.org/I130769515","display_name":"Pennsylvania State University","ror":"https://ror.org/04p491231","country_code":"US","type":"education","lineage":["https://openalex.org/I130769515"]},{"id":"https://openalex.org/I82783531","display_name":"Penn State Milton S. Hershey Medical Center","ror":"https://ror.org/01h22ap11","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I82783531"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"Pooja Rao","raw_affiliation_strings":["Department of Pediatrics, Penn State College of Medicine, 700 HMC Crescent Road, Hershey, PA, 17033, United States, 1 7175316012"],"raw_orcid":"https://orcid.org/0000-0001-7968-3286","affiliations":[{"raw_affiliation_string":"Department of Pediatrics, Penn State College of Medicine, 700 HMC Crescent Road, Hershey, PA, 17033, United States, 1 7175316012","institution_ids":["https://openalex.org/I130769515","https://openalex.org/I82783531"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5114518987","display_name":"Ian Rowe-Nicholls","orcid":"https://orcid.org/0009-0002-7022-3624","observed_orcids":["https://orcid.org/0009-0002-7022-3624"]},"institutions":[{"id":"https://openalex.org/I130769515","display_name":"Pennsylvania State University","ror":"https://ror.org/04p491231","country_code":"US","type":"education","lineage":["https://openalex.org/I130769515"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Ian Rowe-Nicholls","raw_affiliation_strings":["Department of Sociology and Criminology, Pennsylvania State University, State College, PA, United States"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Sociology and Criminology, Pennsylvania State University, State College, PA, United States","institution_ids":["https://openalex.org/I130769515"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5108712058","display_name":"Gabrielle Lang","orcid":"https://orcid.org/0009-0006-1557-3532","observed_orcids":["https://orcid.org/0009-0006-1557-3532"]},"institutions":[{"id":"https://openalex.org/I130769515","display_name":"Pennsylvania State University","ror":"https://ror.org/04p491231","country_code":"US","type":"education","lineage":["https://openalex.org/I130769515"]},{"id":"https://openalex.org/I82783531","display_name":"Penn State Milton S. Hershey Medical Center","ror":"https://ror.org/01h22ap11","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I82783531"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Gabrielle Lang","raw_affiliation_strings":["Department of Pediatrics, Penn State College of Medicine, 700 HMC Crescent Road, Hershey, PA, 17033, United States, 1 7175316012"],"raw_orcid":"https://orcid.org/0009-0006-1557-3532","affiliations":[{"raw_affiliation_string":"Department of Pediatrics, Penn State College of Medicine, 700 HMC Crescent Road, Hershey, PA, 17033, United States, 1 7175316012","institution_ids":["https://openalex.org/I130769515","https://openalex.org/I82783531"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5083355536","display_name":"Tabitha Chen","orcid":"https://orcid.org/0009-0006-1943-2788","observed_orcids":["https://orcid.org/0009-0006-1943-2788"]},"institutions":[{"id":"https://openalex.org/I130769515","display_name":"Pennsylvania State University","ror":"https://ror.org/04p491231","country_code":"US","type":"education","lineage":["https://openalex.org/I130769515"]},{"id":"https://openalex.org/I82783531","display_name":"Penn State Milton S. Hershey Medical Center","ror":"https://ror.org/01h22ap11","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I82783531"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Tabitha Chen","raw_affiliation_strings":["Department of Pediatrics, Penn State College of Medicine, 700 HMC Crescent Road, Hershey, PA, 17033, United States, 1 7175316012"],"raw_orcid":"https://orcid.org/0009-0006-1943-2788","affiliations":[{"raw_affiliation_string":"Department of Pediatrics, Penn State College of Medicine, 700 HMC Crescent Road, Hershey, PA, 17033, United States, 1 7175316012","institution_ids":["https://openalex.org/I130769515","https://openalex.org/I82783531"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5081167336","display_name":"Ashton M. Verdery","orcid":"https://orcid.org/0000-0003-1005-7580","observed_orcids":["https://orcid.org/0000-0003-1005-7580"]},"institutions":[{"id":"https://openalex.org/I130769515","display_name":"Pennsylvania State University","ror":"https://ror.org/04p491231","country_code":"US","type":"education","lineage":["https://openalex.org/I130769515"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Ashton Verdery","raw_affiliation_strings":["Department of Sociology and Criminology, Pennsylvania State University, State College, PA, United States"],"raw_orcid":"https://orcid.org/0000-0003-1005-7580","affiliations":[{"raw_affiliation_string":"Department of Sociology and Criminology, Pennsylvania State University, State College, PA, United States","institution_ids":["https://openalex.org/I130769515"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5025544540","display_name":"Laura M. Koehly","orcid":"https://orcid.org/0000-0003-4588-2898","observed_orcids":["https://orcid.org/0000-0003-4588-2898"]},"institutions":[{"id":"https://openalex.org/I1299303238","display_name":"National Institutes of Health","ror":"https://ror.org/01cwqze88","country_code":"US","type":"government","lineage":["https://openalex.org/I1299022934","https://openalex.org/I1299303238"]},{"id":"https://openalex.org/I4210090236","display_name":"National Human Genome Research Institute","ror":"https://ror.org/00baak391","country_code":"US","type":"facility","lineage":["https://openalex.org/I1299022934","https://openalex.org/I1299303238","https://openalex.org/I4210090236"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Laura Koehly","raw_affiliation_strings":["Department of Pediatrics, National Human Genome Research Institute, National Institutes of Health, Bethesda, MD, United States"],"raw_orcid":"https://orcid.org/0000-0003-4588-2898","affiliations":[{"raw_affiliation_string":"Department of Pediatrics, National Human Genome Research Institute, National Institutes of Health, Bethesda, MD, United States","institution_ids":["https://openalex.org/I1299303238","https://openalex.org/I4210090236"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5029089966","display_name":"Erika VanDyke","orcid":"https://orcid.org/0000-0001-5681-364X","observed_orcids":["https://orcid.org/0000-0001-5681-364X"]},"institutions":[{"id":"https://openalex.org/I130769515","display_name":"Pennsylvania State University","ror":"https://ror.org/04p491231","country_code":"US","type":"education","lineage":["https://openalex.org/I130769515"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Erika VanDyke","raw_affiliation_strings":["Department of Medicine, Penn State College of Medicine, Hershey, PA, United States"],"raw_orcid":"https://orcid.org/0000-0001-5681-364X","affiliations":[{"raw_affiliation_string":"Department of Medicine, Penn State College of Medicine, Hershey, PA, United States","institution_ids":["https://openalex.org/I130769515"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5000204581","display_name":"Heather J. Costigan","orcid":"https://orcid.org/0000-0002-2009-277X","observed_orcids":["https://orcid.org/0000-0002-2009-277X"]},"institutions":[{"id":"https://openalex.org/I130769515","display_name":"Pennsylvania State University","ror":"https://ror.org/04p491231","country_code":"US","type":"education","lineage":["https://openalex.org/I130769515"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Heather Costigan","raw_affiliation_strings":["Department of Medicine, Penn State College of Medicine, Hershey, PA, United States"],"raw_orcid":"https://orcid.org/0000-0002-2009-277X","affiliations":[{"raw_affiliation_string":"Department of Medicine, Penn State College of Medicine, Hershey, PA, United States","institution_ids":["https://openalex.org/I130769515"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5055972524","display_name":"Deepa L. Sekhar","orcid":"https://orcid.org/0000-0002-5784-7216","observed_orcids":["https://orcid.org/0000-0002-5784-7216"]},"institutions":[{"id":"https://openalex.org/I130769515","display_name":"Pennsylvania State University","ror":"https://ror.org/04p491231","country_code":"US","type":"education","lineage":["https://openalex.org/I130769515"]},{"id":"https://openalex.org/I82783531","display_name":"Penn State Milton S. Hershey Medical Center","ror":"https://ror.org/01h22ap11","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I82783531"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Deepa Sekhar","raw_affiliation_strings":["Department of Pediatrics, Penn State College of Medicine, 700 HMC Crescent Road, Hershey, PA, 17033, United States, 1 7175316012"],"raw_orcid":"https://orcid.org/0000-0002-5784-7216","affiliations":[{"raw_affiliation_string":"Department of Pediatrics, Penn State College of Medicine, 700 HMC Crescent Road, Hershey, PA, 17033, United States, 1 7175316012","institution_ids":["https://openalex.org/I130769515","https://openalex.org/I82783531"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5033691464","display_name":"Kristin M. Bingen","orcid":"https://orcid.org/0000-0002-2481-2826","observed_orcids":["https://orcid.org/0000-0002-2481-2826"]},"institutions":[{"id":"https://openalex.org/I204308271","display_name":"Medical College of Wisconsin","ror":"https://ror.org/00qqv6244","country_code":"US","type":"education","lineage":["https://openalex.org/I204308271"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Kristin Bingen","raw_affiliation_strings":["Department of Pediatrics, Medical College of Wisconsin, Milwaukee, WI, United States"],"raw_orcid":"https://orcid.org/0000-0002-2481-2826","affiliations":[{"raw_affiliation_string":"Department of Pediatrics, Medical College of Wisconsin, Milwaukee, WI, United States","institution_ids":["https://openalex.org/I204308271"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5058496033","display_name":"Smita C. Dandekar","orcid":"https://orcid.org/0000-0001-9410-1248","observed_orcids":["https://orcid.org/0000-0001-9410-1248"]},"institutions":[{"id":"https://openalex.org/I130769515","display_name":"Pennsylvania State University","ror":"https://ror.org/04p491231","country_code":"US","type":"education","lineage":["https://openalex.org/I130769515"]},{"id":"https://openalex.org/I82783531","display_name":"Penn State Milton S. Hershey Medical Center","ror":"https://ror.org/01h22ap11","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I82783531"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Smita Dandekar","raw_affiliation_strings":["Department of Pediatrics, Penn State College of Medicine, 700 HMC Crescent Road, Hershey, PA, 17033, United States, 1 7175316012"],"raw_orcid":"https://orcid.org/0000-0001-9410-1248","affiliations":[{"raw_affiliation_string":"Department of Pediatrics, Penn State College of Medicine, 700 HMC Crescent Road, Hershey, PA, 17033, United States, 1 7175316012","institution_ids":["https://openalex.org/I130769515","https://openalex.org/I82783531"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5012102661","display_name":"Christina Toepke","orcid":"https://orcid.org/0000-0002-6604-1767","observed_orcids":["https://orcid.org/0000-0002-6604-1767"]},"institutions":[{"id":"https://openalex.org/I130769515","display_name":"Pennsylvania State University","ror":"https://ror.org/04p491231","country_code":"US","type":"education","lineage":["https://openalex.org/I130769515"]},{"id":"https://openalex.org/I82783531","display_name":"Penn State Milton S. Hershey Medical Center","ror":"https://ror.org/01h22ap11","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I82783531"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Christina Toepke","raw_affiliation_strings":["Department of Pediatrics, Penn State College of Medicine, 700 HMC Crescent Road, Hershey, PA, 17033, United States, 1 7175316012"],"raw_orcid":"https://orcid.org/0000-0002-6604-1767","affiliations":[{"raw_affiliation_string":"Department of Pediatrics, Penn State College of Medicine, 700 HMC Crescent Road, Hershey, PA, 17033, United States, 1 7175316012","institution_ids":["https://openalex.org/I130769515","https://openalex.org/I82783531"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5026031816","display_name":"Tonya Sharp King","orcid":"https://orcid.org/0000-0003-4989-5653","observed_orcids":["https://orcid.org/0000-0003-4989-5653"]},"institutions":[{"id":"https://openalex.org/I4210090886","display_name":"Sarasota Memorial Health Care System","ror":"https://ror.org/00dpx2d03","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I4210090886"]},{"id":"https://openalex.org/I4210119911","display_name":"Sarasota Memorial Hospital","ror":"https://ror.org/02atdvd89","country_code":"US","type":"healthcare","lineage":["https://openalex.org/I4210090886","https://openalex.org/I4210119911"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Tonya King","raw_affiliation_strings":["Kolschowsky Research & Education Institute, Sarasota Memorial Health Care System, Sarasota, FL, United States"],"raw_orcid":"https://orcid.org/0000-0003-4989-5653","affiliations":[{"raw_affiliation_string":"Kolschowsky Research & Education Institute, Sarasota Memorial Health Care System, Sarasota, FL, United States","institution_ids":["https://openalex.org/I4210090886","https://openalex.org/I4210119911"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5059012785","display_name":"Michelle A. Birkett","orcid":"https://orcid.org/0000-0003-0960-6327","observed_orcids":["https://orcid.org/0000-0003-0960-6327"]},"institutions":[{"id":"https://openalex.org/I111979921","display_name":"Northwestern University","ror":"https://ror.org/000e0be47","country_code":"US","type":"education","lineage":["https://openalex.org/I111979921"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Michelle Birkett","raw_affiliation_strings":["Center for Computational and Social Sciences in Health, Feinberg School of Medicine, Northwestern University, Chicago, IL, United States"],"raw_orcid":"https://orcid.org/0000-0003-0960-6327","affiliations":[{"raw_affiliation_string":"Center for Computational and Social Sciences in Health, Feinberg School of Medicine, Northwestern University, Chicago, IL, United States","institution_ids":["https://openalex.org/I111979921"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5069892206","display_name":"Lauren J. Van Scoy","orcid":"https://orcid.org/0000-0003-0984-1474","observed_orcids":["https://orcid.org/0000-0003-0984-1474"]},"institutions":[{"id":"https://openalex.org/I130769515","display_name":"Pennsylvania State University","ror":"https://ror.org/04p491231","country_code":"US","type":"education","lineage":["https://openalex.org/I130769515"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Lauren Van Scoy","raw_affiliation_strings":["Department of Medicine, Penn State College of Medicine, Hershey, PA, United States"],"raw_orcid":"https://orcid.org/0000-0003-0984-1474","affiliations":[{"raw_affiliation_string":"Department of Medicine, Penn State College of Medicine, Hershey, PA, United States","institution_ids":["https://openalex.org/I130769515"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":8,"corresponding_author_ids":["https://openalex.org/A5028455019"],"corresponding_institution_ids":["https://openalex.org/I130769515","https://openalex.org/I82783531"],"apc_list":{"value":1900,"currency":"USD","value_usd":1900},"apc_paid":{"value":1900,"currency":"USD","value_usd":1900},"fwci":0.0,"has_fulltext":true,"cited_by_count":0,"citation_normalized_percentile":{"value":0.0,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":null,"biblio":{"volume":"10","issue":null,"first_page":"e91765","last_page":"e91765"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11141","display_name":"Childhood Cancer Survivors' Quality of Life","score":0.7871000170707703,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T11141","display_name":"Childhood Cancer Survivors' Quality of Life","score":0.7871000170707703,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11539","display_name":"Survey Methodology and Nonresponse","score":0.10729999840259552,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10178","display_name":"Cancer survivorship and care","score":0.03680000081658363,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/social-network-data-collection","display_name":"social network data collection","score":0.8679999709129333},{"id":"https://openalex.org/keywords/adolescent-and-young-adult-cancer-survivors","display_name":"adolescent and young adult cancer survivors","score":0.9039999842643738},{"id":"https://openalex.org/keywords/pediatric-cancer-survivors","display_name":"childhood cancer survivors","score":0.9629999995231628},{"id":"https://openalex.org/keywords/social-networks","display_name":"social networks","score":0.6620000004768372},{"id":"https://openalex.org/keywords/social-health","display_name":"social health","score":0.7310000061988831},{"id":"https://openalex.org/keywords/personal-networks","display_name":"personal networks","score":0.8100000023841858},{"id":"https://openalex.org/keywords/feasibility","display_name":"feasibility","score":0.3659999966621399},{"id":"https://openalex.org/keywords/acceptability","display_name":"acceptability","score":0.9959999918937683},{"id":"https://openalex.org/keywords/cognitive-interviewing","display_name":"cognitive interviewing","score":0.8529999852180481},{"id":"https://openalex.org/keywords/survey-usability","display_name":"survey usability","score":0.6610000133514404},{"id":"https://openalex.org/keywords/social-support","display_name":"social support","score":0.5}],"concepts":[{"id":"https://openalex.org/C133462117","wikidata":"https://www.wikidata.org/wiki/Q4929239","display_name":"Data collection","level":2,"score":0.6606000065803528},{"id":"https://openalex.org/C24845683","wikidata":"https://www.wikidata.org/wiki/Q178651","display_name":"Interview","level":2,"score":0.5889999866485596},{"id":"https://openalex.org/C75969862","wikidata":"https://www.wikidata.org/wiki/Q5141215","display_name":"Cognitive interview","level":3,"score":0.5504999756813049},{"id":"https://openalex.org/C4727928","wikidata":"https://www.wikidata.org/wiki/Q17164759","display_name":"Social network (sociolinguistics)","level":3,"score":0.5472999811172485},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.4918999969959259},{"id":"https://openalex.org/C169900460","wikidata":"https://www.wikidata.org/wiki/Q2200417","display_name":"Cognition","level":2,"score":0.43939998745918274},{"id":"https://openalex.org/C75630572","wikidata":"https://www.wikidata.org/wiki/Q538904","display_name":"Applied psychology","level":1,"score":0.43299999833106995},{"id":"https://openalex.org/C121608353","wikidata":"https://www.wikidata.org/wiki/Q12078","display_name":"Cancer","level":2,"score":0.3589000105857849},{"id":"https://openalex.org/C14564219","wikidata":"https://www.wikidata.org/wiki/Q383646","display_name":"Social cognitive theory","level":2,"score":0.3562000095844269},{"id":"https://openalex.org/C74909509","wikidata":"https://www.wikidata.org/wiki/Q10387","display_name":"Gerontology","level":1,"score":0.3301999866962433},{"id":"https://openalex.org/C114713312","wikidata":"https://www.wikidata.org/wiki/Q7551269","display_name":"Social network analysis","level":3,"score":0.3292999863624573},{"id":"https://openalex.org/C2779713723","wikidata":"https://www.wikidata.org/wiki/Q17088139","display_name":"Photo elicitation","level":2,"score":0.31949999928474426},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.3127000033855438},{"id":"https://openalex.org/C2778087770","wikidata":"https://www.wikidata.org/wiki/Q2297111","display_name":"Social support","level":2,"score":0.3050999939441681},{"id":"https://openalex.org/C509550671","wikidata":"https://www.wikidata.org/wiki/Q126945","display_name":"Medical education","level":1,"score":0.30300000309944153},{"id":"https://openalex.org/C190248442","wikidata":"https://www.wikidata.org/wiki/Q839486","display_name":"Qualitative research","level":2,"score":0.2782000005245209},{"id":"https://openalex.org/C56995899","wikidata":"https://www.wikidata.org/wiki/Q1126687","display_name":"Focus group","level":2,"score":0.2775999903678894},{"id":"https://openalex.org/C70410870","wikidata":"https://www.wikidata.org/wiki/Q199906","display_name":"Clinical psychology","level":1,"score":0.265500009059906},{"id":"https://openalex.org/C2779951463","wikidata":"https://www.wikidata.org/wiki/Q7268788","display_name":"Quality of life (healthcare)","level":2,"score":0.2587999999523163},{"id":"https://openalex.org/C41008148","wikidata":"https://www.wikidata.org/wiki/Q21198","display_name":"Computer science","level":0,"score":0.2529999911785126}],"mesh":[{"descriptor_ui":"D000073116","descriptor_name":"Cancer Survivors","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D000073116","descriptor_name":"Cancer Survivors","qualifier_ui":"Q000706","qualifier_name":"statistics & numerical data","is_major_topic":true},{"descriptor_ui":"D000293","descriptor_name":"Adolescent","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003625","descriptor_name":"Data Collection","qualifier_ui":"Q000379","qualifier_name":"methods","is_major_topic":true},{"descriptor_ui":"D003625","descriptor_name":"Data Collection","qualifier_ui":"Q000592","qualifier_name":"standards","is_major_topic":true},{"descriptor_ui":"D005240","descriptor_name":"Feasibility Studies","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007407","descriptor_name":"Interviews as Topic","qualifier_ui":"Q000379","qualifier_name":"methods","is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D009369","descriptor_name":"Neoplasms","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D010865","descriptor_name":"Pilot Projects","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011795","descriptor_name":"Surveys and Questionnaires","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D012944","descriptor_name":"Social Support","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D036301","descriptor_name":"Qualitative Research","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D055815","descriptor_name":"Young Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D060756","descriptor_name":"Social Networking","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true}],"locations_count":5,"locations":[{"id":"doi:10.2196/91765","doi":"https://doi.org/10.2196/91765","is_oa":true,"landing_page_url":"https://doi.org/10.2196/91765","pdf_url":null,"source":{"id":"https://openalex.org/S4210234749","display_name":"JMIR Formative Research","issn_l":"2561-326X","issn":["2561-326X"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","doyens","medline","norway-1","oarl","poland-20","russia-white-list-3","vabb-shw"],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"JMIR Formative Research","raw_type":"journal-article"},{"id":"doi:10.2196/preprints.91765","doi":"https://doi.org/10.2196/preprints.91765","is_oa":true,"landing_page_url":"https://doi.org/10.2196/preprints.91765","pdf_url":null,"source":null,"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"posted-content"},{"id":"pmh:oai:pubmedcentral.nih.gov:13722095","doi":null,"is_oa":true,"landing_page_url":"https://pmc.ncbi.nlm.nih.gov/articles/PMC13722095/","pdf_url":"https://pmc.ncbi.nlm.nih.gov/articles/PMC13722095/pdf/formative-v10-e91765.pdf","source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"JMIR Form Res","raw_type":"Text"},{"id":"pmid:42962074","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/42962074","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"JMIR formative research","raw_type":"Journal Article"},{"id":"pmh:oai:doaj.org/article:ae5814e94699464ab6710064acf19f26","doi":null,"is_oa":false,"landing_page_url":"https://doaj.org/article/ae5814e94699464ab6710064acf19f26","pdf_url":null,"source":{"id":"https://openalex.org/S4306401280","display_name":"DOAJ (DOAJ: Directory of Open Access Journals)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"JMIR Formative Research, Vol 10, Pp e91765-e91765 (2026)","raw_type":"article"}],"best_oa_location":{"id":"doi:10.2196/91765","doi":"https://doi.org/10.2196/91765","is_oa":true,"landing_page_url":"https://doi.org/10.2196/91765","pdf_url":null,"source":{"id":"https://openalex.org/S4210234749","display_name":"JMIR Formative Research","issn_l":"2561-326X","issn":["2561-326X"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","doyens","medline","norway-1","oarl","poland-20","russia-white-list-3","vabb-shw"],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"JMIR Formative Research","raw_type":"journal-article"},"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","score":0.9763000011444092,"display_name":"Good health and well-being"}],"study_designs":[],"awards":[],"funders":[{"id":"https://openalex.org/F4320306085","display_name":"U.S. Department of Health and Human Services","ror":"https://ror.org/033jnv181"},{"id":"https://openalex.org/F4320308109","display_name":"Pennsylvania Department of Health","ror":"https://ror.org/00ra1fg11"},{"id":"https://openalex.org/F4320319057","display_name":"Four Diamonds","ror":null},{"id":"https://openalex.org/F4320332161","display_name":"National Institutes of Health","ror":"https://ror.org/01cwqze88"}],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W7212367645.pdf","grobid_xml":"https://content.openalex.org/works/W7212367645.grobid-xml"},"referenced_works_count":63,"referenced_works":["https://openalex.org/W772517852","https://openalex.org/W1507170835","https://openalex.org/W1789324018","https://openalex.org/W1884921019","https://openalex.org/W1897212544","https://openalex.org/W1944393435","https://openalex.org/W1970390984","https://openalex.org/W1984697227","https://openalex.org/W2012186625","https://openalex.org/W2040735881","https://openalex.org/W2053942216","https://openalex.org/W2060166384","https://openalex.org/W2084445156","https://openalex.org/W2088425185","https://openalex.org/W2118411973","https://openalex.org/W2118745042","https://openalex.org/W2123474987","https://openalex.org/W2137036188","https://openalex.org/W2138081378","https://openalex.org/W2147076142","https://openalex.org/W2148386842","https://openalex.org/W2156212268","https://openalex.org/W2158505514","https://openalex.org/W2163497429","https://openalex.org/W2168743925","https://openalex.org/W2256895324","https://openalex.org/W2282238288","https://openalex.org/W2298617406","https://openalex.org/W2400139010","https://openalex.org/W2427911958","https://openalex.org/W2589090458","https://openalex.org/W2781623962","https://openalex.org/W2888757093","https://openalex.org/W2894724202","https://openalex.org/W2896780584","https://openalex.org/W2897403026","https://openalex.org/W2949816107","https://openalex.org/W2969797712","https://openalex.org/W2971582141","https://openalex.org/W2979526377","https://openalex.org/W2980000353","https://openalex.org/W2980411259","https://openalex.org/W2990427812","https://openalex.org/W2999222283","https://openalex.org/W3015962962","https://openalex.org/W3092376919","https://openalex.org/W3116137223","https://openalex.org/W3126003151","https://openalex.org/W3133127147","https://openalex.org/W3135900734","https://openalex.org/W3196261481","https://openalex.org/W4200307303","https://openalex.org/W4212942297","https://openalex.org/W4248785825","https://openalex.org/W4253648564","https://openalex.org/W4280523482","https://openalex.org/W4285275805","https://openalex.org/W4403465899","https://openalex.org/W4406056329","https://openalex.org/W4407031806","https://openalex.org/W4408324175","https://openalex.org/W6931328604","https://openalex.org/W7167031318"],"related_works":["https://openalex.org/W7133238090","https://openalex.org/W6920813206","https://openalex.org/W7134025185","https://openalex.org/W7110600261","https://openalex.org/W3170774758","https://openalex.org/W3159942576","https://openalex.org/W7160989604","https://openalex.org/W6901775870","https://openalex.org/W4360814502","https://openalex.org/W6901989192"],"abstract_inverted_index":{"Background:":[0],"Little":[1],"is":[2],"known":[3],"about":[4,157],"the":[5,10,22,85,97,129,135,181,187,216,234,260,269,344,354],"composition":[6],"and":[7,15,29,35,50,72,87,91,106,125,131,146,169,200,202,243,311,319,328,374],"function":[8],"of":[9,13,19,24,39,48,70,78,89,104,110,133,150,183,195,205,218,233,236,254,271,287,309,315,330,376,380],"social":[11,25,41,55,60,93,138,331,369,381],"networks":[12,42,61,163],"adolescent":[14,28,34,105,145,310],"young":[16,30,36,107,147,312],"adult":[17,31,37,108,148,313],"survivors":[18,38,109,149,314],"cancer,":[20,40],"despite":[21],"importance":[23],"health":[26,56,71,370],"for":[27,367],"development.":[32],"For":[33],"may":[43],"be":[44],"particularly":[45],"important":[46],"sources":[47],"support":[49,215],"coping.":[51],"Understanding":[52],"this":[53,79,323,340],"group's":[54],"through":[57,223,230],"understanding":[58],"their":[59,162],"can":[62],"inform":[63],"intervention":[64],"development":[65],"to":[66,83,121,127,214,238,281],"improve":[67,282],"various":[68],"facets":[69],"life":[73],"productivity.":[74],"Objective:":[75],"The":[76,326],"objective":[77],"descriptive":[80,225],"study":[81],"was":[82,175,228,317,337],"explore":[84],"feasibility":[86,130],"acceptability":[88,132],"collecting":[90],"analyzing":[92],"network":[94,139,221,332],"data":[95,140,211,333],"using":[96,134,248,272,334],"Network":[98,136,189,240,249,261,273,295,303,335,355],"Canvas":[99,137,190,241,262,274,296,304,336,356],"platform":[100,142],"among":[101,143,306],"a":[102,118,364],"subset":[103],"childhood":[111],"cancer.":[112,151],"Methods:":[113],"We":[114],"used":[115],"cognitive":[116,196],"interviewing,":[117],"qualitative":[119,193,231,265],"method":[120],"assess":[122,128],"survey":[123,357],"comprehension":[124],"usability,":[126],"collection":[141,327],"10":[144,257],"Participants":[152],"(ie,":[153,159],"egos)":[154],"were":[155],"asked":[156,290],"people":[158],"alters)":[160],"in":[161,177,339],"before":[164],"cancer":[165,172,316],"diagnosis":[166],"(via":[167],"recall)":[168],"currently":[170],"(after":[171],"diagnosis).":[173],"Feasibility":[174],"explored":[176,229],"three":[178],"ways:":[179],"(1)":[180],"proportion":[182],"participants":[184,237,258,267,298,351],"who":[185],"completed":[186,259],"full":[188],"survey;":[191],"(2)":[192],"analysis":[194,232,329],"interviews":[197],"addressing":[198],"usability":[199],"comprehension;":[201],"(3)":[203],"demonstration":[204],"whether":[206],"self-administered,":[207],"role-anonymized":[208],"responses":[209],"yielded":[210],"complete":[212],"enough":[213],"creation":[217],"standard":[219],"egocentric":[220],"measures":[222],"preliminary":[224],"statistics.":[226],"Acceptability":[227],"desire":[235],"use":[239,294,305],"again":[242],"features":[244],"they":[245,292],"liked":[246],"when":[247,289],"Canvas.":[250],"Results:":[251],"In":[252,264,285],"terms":[253,286],"feasibility,":[255],"all":[256],"survey.":[263],"analysis,":[266],"described":[268],"ease":[270],"(including":[275],"engagement)":[276],"while":[277],"also":[278],"describing":[279],"ways":[280],"its":[283],"usability.":[284],"acceptability,":[288],"if":[291],"would":[293],"again,":[297],"overall":[299],"answered":[300],"positively.":[301],"Conclusions:":[302],"our":[307],"sample":[308],"feasible":[318,338],"acceptable":[320],"based":[321],"on":[322],"exploratory":[324],"analysis.":[325],"pilot":[341],"study.":[342],"Additionally,":[343],"potentially":[345],"therapeutic":[346],"experience":[347],"reported":[348],"by":[349],"some":[350],"after":[352],"completing":[353],"deserves":[358],"further":[359],"exploration.":[360],"This":[361],"work":[362],"provides":[363],"starting":[365],"point":[366],"future":[368],"studies,":[371],"psychosocial":[372],"programming,":[373],"identification":[375],"those":[377],"at":[378],"risk":[379],"disconnect.":[382]},"counts_by_year":[],"updated_date":"2026-11-10T11:39:43.021295","created_date":"2026-09-13T00:00:00"}