{"id":"https://openalex.org/W7206002652","doi":null,"title":"A Philosophical Approach to Rare Diseases","display_name":"A Philosophical Approach to Rare Diseases","publication_year":2026,"publication_date":"2026-07-15","ids":{"openalex":"https://openalex.org/W7206002652"},"language":"en","primary_location":{"id":"pmh:oai:HAL:hal-05697928v1","doi":null,"is_oa":true,"landing_page_url":"https://hal.science/hal-05697928v1","pdf_url":null,"source":{"id":"https://openalex.org/S4306402512","display_name":"HAL","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I4405252976","host_organization_name":"Centre pour la Communication Scientifique Directe","host_organization_lineage":["https://openalex.org/I4405252976"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Society for Philosophy of Science in Practice 2026 Conference, Jul 2026, Cambridge (Angleterre), United Kingdom","raw_type":"info:eu-repo/semantics/conferenceObject"},"volume":null,"type":"conference-paper","is_traditional":true,"indexed_in":[],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"https://hal.science/hal-05697928v1","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5033579653","display_name":"Anne Fenoy","orcid":"https://orcid.org/0009-0005-2634-9870","observed_orcids":["https://orcid.org/0009-0005-2634-9870"]},"institutions":[{"id":"https://openalex.org/I4387154129","display_name":"Institut de recherches philosophiques de Lyon","ror":"https://ror.org/01k6ebg12","country_code":"FR","type":"facility","lineage":["https://openalex.org/I203339264","https://openalex.org/I4387154129","https://openalex.org/I874609350"]},{"id":"https://openalex.org/I874609350","display_name":"Universit\u00e9 Jean Moulin Lyon III","ror":"https://ror.org/05b5c0584","country_code":"FR","type":"education","lineage":["https://openalex.org/I203339264","https://openalex.org/I874609350"]}],"countries":["FR"],"is_corresponding":true,"raw_author_name":"Fenoy, Anne","raw_affiliation_strings":["IRPhiL - Institut de recherches philosophiques de Lyon (Universit\u00e9 Jean Moulin - Lyon 3 18, rue Chevreul 69007 Lyon - France)"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"IRPhiL - Institut de recherches philosophiques de Lyon (Universit\u00e9 Jean Moulin - Lyon 3 18, rue Chevreul 69007 Lyon - France)","institution_ids":["https://openalex.org/I4387154129","https://openalex.org/I874609350"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":2,"corresponding_author_ids":["https://openalex.org/A5033579653"],"corresponding_institution_ids":["https://openalex.org/I4387154129","https://openalex.org/I874609350"],"apc_list":null,"apc_paid":null,"fwci":0.0,"has_fulltext":false,"cited_by_count":0,"citation_normalized_percentile":{"value":0.0,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":null,"biblio":{"volume":null,"issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T14511","display_name":"Medicine, History, and Philosophy","score":0.8574000000953674,"subfield":{"id":"https://openalex.org/subfields/1207","display_name":"History and Philosophy of Science"},"field":{"id":"https://openalex.org/fields/12","display_name":"Arts and Humanities"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T14511","display_name":"Medicine, History, and Philosophy","score":0.8574000000953674,"subfield":{"id":"https://openalex.org/subfields/1207","display_name":"History and Philosophy of Science"},"field":{"id":"https://openalex.org/fields/12","display_name":"Arts and Humanities"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T11642","display_name":"Genomics and Rare Diseases","score":0.049300000071525574,"subfield":{"id":"https://openalex.org/subfields/1311","display_name":"Genetics"},"field":{"id":"https://openalex.org/fields/13","display_name":"Biochemistry, Genetics and Molecular Biology"},"domain":{"id":"https://openalex.org/domains/1","display_name":"Life Sciences"}},{"id":"https://openalex.org/T10778","display_name":"Philosophy of Biology and Scientific Explanation","score":0.012199999764561653,"subfield":{"id":"https://openalex.org/subfields/1207","display_name":"History and Philosophy of Science"},"field":{"id":"https://openalex.org/fields/12","display_name":"Arts and Humanities"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/rare-diseases","display_name":"rare diseases","score":0.9860000014305115},{"id":"https://openalex.org/keywords/philosophy-of-medicine","display_name":"philosophy of medicine","score":0.9409999847412109},{"id":"https://openalex.org/keywords/bioethics","display_name":"bioethics","score":0.6549999713897705}],"concepts":[],"mesh":[],"locations_count":1,"locations":[{"id":"pmh:oai:HAL:hal-05697928v1","doi":null,"is_oa":true,"landing_page_url":"https://hal.science/hal-05697928v1","pdf_url":null,"source":{"id":"https://openalex.org/S4306402512","display_name":"HAL","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I4405252976","host_organization_name":"Centre pour la Communication Scientifique Directe","host_organization_lineage":["https://openalex.org/I4405252976"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Society for Philosophy of Science in Practice 2026 Conference, Jul 2026, Cambridge (Angleterre), United Kingdom","raw_type":"info:eu-repo/semantics/conferenceObject"}],"best_oa_location":{"id":"pmh:oai:HAL:hal-05697928v1","doi":null,"is_oa":true,"landing_page_url":"https://hal.science/hal-05697928v1","pdf_url":null,"source":{"id":"https://openalex.org/S4306402512","display_name":"HAL","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I4405252976","host_organization_name":"Centre pour la Communication Scientifique Directe","host_organization_lineage":["https://openalex.org/I4405252976"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Society for Philosophy of Science in Practice 2026 Conference, Jul 2026, Cambridge (Angleterre), United Kingdom","raw_type":"info:eu-repo/semantics/conferenceObject"},"sustainable_development_goals":[],"study_designs":[],"awards":[],"funders":[],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":0,"referenced_works":[],"related_works":["https://openalex.org/W4244710997","https://openalex.org/W4317781357","https://openalex.org/W4212998905","https://openalex.org/W2409430456","https://openalex.org/W4293025177","https://openalex.org/W4299714444","https://openalex.org/W2415780690","https://openalex.org/W7042994811","https://openalex.org/W4399313579","https://openalex.org/W4293401089"],"abstract_inverted_index":null,"counts_by_year":[],"updated_date":"2026-11-08T12:12:28.789561","created_date":"2026-09-02T00:00:00"}