{"id":"https://openalex.org/W7204452300","doi":"https://doi.org/10.21203/rs.3.rs-10808123/v1","title":"Strategic Patient Involvement in Medical AI Co-Design: A Pilot Study in Heart Failure","display_name":"Strategic Patient Involvement in Medical AI Co-Design: A Pilot Study in Heart Failure","publication_year":2026,"publication_date":"2026-08-27","ids":{"openalex":"https://openalex.org/W7204452300","doi":"https://doi.org/10.21203/rs.3.rs-10808123/v1"},"language":"en","primary_location":{"id":"doi:10.21203/rs.3.rs-10808123/v1","doi":"https://doi.org/10.21203/rs.3.rs-10808123/v1","is_oa":true,"landing_page_url":"https://doi.org/10.21203/rs.3.rs-10808123/v1","pdf_url":"https://www.researchsquare.com/article/rs-10808123/latest.pdf","source":{"id":"https://openalex.org/S4306525896","display_name":"Research Square","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"acceptedVersion","is_accepted":true,"is_published":false,"raw_source_name":"Research Square","raw_type":"posted-content"},"volume":null,"type":"preprint","indexed_in":["crossref"],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"https://www.researchsquare.com/article/rs-10808123/latest.pdf","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5031443096","display_name":"Laura Arbelaez Ossa","orcid":"https://orcid.org/0000-0002-8303-8789","observed_orcids":["https://orcid.org/0000-0002-8303-8789"]},"institutions":[{"id":"https://openalex.org/I71999127","display_name":"Universitat de Barcelona","ror":"https://ror.org/021018s57","country_code":"ES","type":"education","lineage":["https://openalex.org/I71999127"]}],"countries":["ES"],"is_corresponding":false,"raw_author_name":"Laura Arbelaez Ossa","raw_affiliation_strings":["Artificial Intelligence in Medicine Lab (BCN-AIM), Departament de Matem\u00e0tiques i Inform\u00e0tica, Universitat de Barcelona, Barcelona, Spain"],"raw_orcid":"https://orcid.org/0000-0002-8303-8789","affiliations":[{"raw_affiliation_string":"Artificial Intelligence in Medicine Lab (BCN-AIM), Departament de Matem\u00e0tiques i Inform\u00e0tica, Universitat de Barcelona, Barcelona, Spain","institution_ids":["https://openalex.org/I71999127"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5090245394","display_name":"Machteld Boonstra","orcid":"https://orcid.org/0000-0001-7550-0489","observed_orcids":["https://orcid.org/0000-0001-7550-0489"]},"institutions":[{"id":"https://openalex.org/I4210151833","display_name":"Amsterdam University Medical Centers","ror":"https://ror.org/05grdyy37","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I4210151833"]}],"countries":["NL"],"is_corresponding":false,"raw_author_name":"Machteld Boonstra","raw_affiliation_strings":["Department of Cardiology, Amsterdam University Medical Centre, Amsterdam, Netherlands"],"raw_orcid":"https://orcid.org/0000-0001-7550-0489","affiliations":[{"raw_affiliation_string":"Department of Cardiology, Amsterdam University Medical Centre, Amsterdam, Netherlands","institution_ids":["https://openalex.org/I4210151833"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5148431571","display_name":"Fleur Meijers","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I71999127","display_name":"Universitat de Barcelona","ror":"https://ror.org/021018s57","country_code":"ES","type":"education","lineage":["https://openalex.org/I71999127"]}],"countries":["ES"],"is_corresponding":false,"raw_author_name":"Fleur Meijers","raw_affiliation_strings":["Artificial Intelligence in Medicine Lab (BCN-AIM), Departament de Matem\u00e0tiques i Inform\u00e0tica, Universitat de Barcelona, Barcelona, Spain"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Artificial Intelligence in Medicine Lab (BCN-AIM), Departament de Matem\u00e0tiques i Inform\u00e0tica, Universitat de Barcelona, Barcelona, Spain","institution_ids":["https://openalex.org/I71999127"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5148110953","display_name":"Emmah Ng'ang'a","orcid":"https://orcid.org/0009-0007-3835-521X","observed_orcids":["https://orcid.org/0009-0007-3835-521X"]},"institutions":[{"id":"https://openalex.org/I71999127","display_name":"Universitat de Barcelona","ror":"https://ror.org/021018s57","country_code":"ES","type":"education","lineage":["https://openalex.org/I71999127"]}],"countries":["ES"],"is_corresponding":false,"raw_author_name":"Emmah Ng'ang'a","raw_affiliation_strings":["Facultat de Medicina i Ci\u00e8ncies de la Salut, Universitat de Barcelona (UB), Barcelona, Spain"],"raw_orcid":"https://orcid.org/0009-0007-3835-521X","affiliations":[{"raw_affiliation_string":"Facultat de Medicina i Ci\u00e8ncies de la Salut, Universitat de Barcelona (UB), Barcelona, Spain","institution_ids":["https://openalex.org/I71999127"]}]},{"author_position":"middle","author":{"id":null,"display_name":"Richard Stephens","orcid":"https://orcid.org/0000-0002-0760-2771","observed_orcids":["https://orcid.org/0000-0002-0760-2771"]},"institutions":[{"id":"https://openalex.org/I308269434","display_name":"European Society of Cardiology","ror":"https://ror.org/02ahe3232","country_code":"FR","type":"nonprofit","lineage":["https://openalex.org/I308269434"]}],"countries":["FR"],"is_corresponding":false,"raw_author_name":"Richard Stephens","raw_affiliation_strings":["European Society of Cardiology Patient Forum, Sophia Antipolis, France"],"raw_orcid":"https://orcid.org/0000-0002-0760-2771","affiliations":[{"raw_affiliation_string":"European Society of Cardiology Patient Forum, Sophia Antipolis, France","institution_ids":["https://openalex.org/I308269434"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5042965551","display_name":"Axel Verstrael","orcid":"https://orcid.org/0000-0002-6559-0393","observed_orcids":["https://orcid.org/0000-0002-6559-0393"]},"institutions":[{"id":"https://openalex.org/I308269434","display_name":"European Society of Cardiology","ror":"https://ror.org/02ahe3232","country_code":"FR","type":"nonprofit","lineage":["https://openalex.org/I308269434"]}],"countries":["FR"],"is_corresponding":false,"raw_author_name":"Axel Verstrael","raw_affiliation_strings":["European Society of Cardiology Patient Forum, Sophia Antipolis, France"],"raw_orcid":"https://orcid.org/0000-0002-6559-0393","affiliations":[{"raw_affiliation_string":"European Society of Cardiology Patient Forum, Sophia Antipolis, France","institution_ids":["https://openalex.org/I308269434"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5007990717","display_name":"X\u00e9nia Puig-Bosch","orcid":"https://orcid.org/0009-0001-1148-7921","observed_orcids":["https://orcid.org/0009-0001-1148-7921"]},"institutions":[{"id":"https://openalex.org/I71999127","display_name":"Universitat de Barcelona","ror":"https://ror.org/021018s57","country_code":"ES","type":"education","lineage":["https://openalex.org/I71999127"]}],"countries":["ES"],"is_corresponding":false,"raw_author_name":"X\u00e8nia Puig Bosch","raw_affiliation_strings":["Artificial Intelligence in Medicine Lab (BCN-AIM), Departament de Matem\u00e0tiques i Inform\u00e0tica, Universitat de Barcelona, Barcelona, Spain"],"raw_orcid":"https://orcid.org/0009-0001-1148-7921","affiliations":[{"raw_affiliation_string":"Artificial Intelligence in Medicine Lab (BCN-AIM), Departament de Matem\u00e0tiques i Inform\u00e0tica, Universitat de Barcelona, Barcelona, Spain","institution_ids":["https://openalex.org/I71999127"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5039782389","display_name":"Folkert Wouter Asselbergs","orcid":"https://orcid.org/0000-0002-1692-8669","observed_orcids":["https://orcid.org/0000-0002-1692-8669"]},"institutions":[{"id":"https://openalex.org/I4210151833","display_name":"Amsterdam University Medical Centers","ror":"https://ror.org/05grdyy37","country_code":"NL","type":"healthcare","lineage":["https://openalex.org/I4210151833"]}],"countries":["NL"],"is_corresponding":false,"raw_author_name":"Folkert W. Asselbergs","raw_affiliation_strings":["Department of Cardiology, Amsterdam University Medical Centre, Amsterdam, Netherlands"],"raw_orcid":"https://orcid.org/0000-0002-1692-8669","affiliations":[{"raw_affiliation_string":"Department of Cardiology, Amsterdam University Medical Centre, Amsterdam, Netherlands","institution_ids":["https://openalex.org/I4210151833"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5006382071","display_name":"Mar\u00eda Maixenchs","orcid":"https://orcid.org/0000-0002-5782-8197","observed_orcids":["https://orcid.org/0000-0002-5782-8197"]},"institutions":[{"id":"https://openalex.org/I4210148332","display_name":"Barcelona Institute for Global Health","ror":"https://ror.org/03hjgt059","country_code":"ES","type":"healthcare","lineage":["https://openalex.org/I4210148332","https://openalex.org/I4387153040"]}],"countries":["ES"],"is_corresponding":false,"raw_author_name":"Maria Maixenchs","raw_affiliation_strings":["ISGlobal, Barcelona, Spain"],"raw_orcid":"https://orcid.org/0000-0002-5782-8197","affiliations":[{"raw_affiliation_string":"ISGlobal, Barcelona, Spain","institution_ids":["https://openalex.org/I4210148332"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5078391768","display_name":"Karim Lekadir","orcid":"https://orcid.org/0000-0002-9456-1612","observed_orcids":["https://orcid.org/0000-0002-9456-1612"]},"institutions":[{"id":"https://openalex.org/I71999127","display_name":"Universitat de Barcelona","ror":"https://ror.org/021018s57","country_code":"ES","type":"education","lineage":["https://openalex.org/I71999127"]}],"countries":["ES"],"is_corresponding":false,"raw_author_name":"Karim Lekadir","raw_affiliation_strings":["Artificial Intelligence in Medicine Lab (BCN-AIM), Departament de Matem\u00e0tiques i Inform\u00e0tica, Universitat de Barcelona, Barcelona, Spain"],"raw_orcid":"https://orcid.org/0000-0002-9456-1612","affiliations":[{"raw_affiliation_string":"Artificial Intelligence in Medicine Lab (BCN-AIM), Departament de Matem\u00e0tiques i Inform\u00e0tica, Universitat de Barcelona, Barcelona, Spain","institution_ids":["https://openalex.org/I71999127"]}]}],"institutions":[],"countries_distinct_count":3,"institutions_distinct_count":4,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":null,"has_fulltext":true,"cited_by_count":0,"citation_normalized_percentile":null,"cited_by_percentile_year":null,"biblio":{"volume":null,"issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11636","display_name":"Artificial Intelligence in Healthcare and Education","score":0.8281000256538391,"subfield":{"id":"https://openalex.org/subfields/2718","display_name":"Health Informatics"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T11636","display_name":"Artificial Intelligence in Healthcare and Education","score":0.8281000256538391,"subfield":{"id":"https://openalex.org/subfields/2718","display_name":"Health Informatics"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11639","display_name":"Mental Health and Patient Involvement","score":0.07069999724626541,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10883","display_name":"Ethics and Social Impacts of AI","score":0.027699999511241913,"subfield":{"id":"https://openalex.org/subfields/3311","display_name":"Safety Research"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/patient-co-design","display_name":"patient co-design","score":0.8709999918937683},{"id":"https://openalex.org/keywords/artificial-intelligence-in-healthcare","display_name":"artificial intelligence in healthcare","score":0.7300000190734863},{"id":"https://openalex.org/keywords/heart-failure","display_name":"heart failure","score":0.9850000143051147},{"id":"https://openalex.org/keywords/cardiovascular-risk-prediction","display_name":"cardiovascular risk prediction","score":0.9649999737739563},{"id":"https://openalex.org/keywords/trustworthy-ai","display_name":"trustworthy AI","score":0.8859999775886536},{"id":"https://openalex.org/keywords/participatory-design","display_name":"participatory design","score":0.7860000133514404}],"concepts":[{"id":"https://openalex.org/C74196892","wikidata":"https://www.wikidata.org/wiki/Q7781188","display_name":"Thematic analysis","level":3,"score":0.5455999970436096},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.5248000025749207},{"id":"https://openalex.org/C13200473","wikidata":"https://www.wikidata.org/wiki/Q2747831","display_name":"Reflexivity","level":2,"score":0.48410001397132874},{"id":"https://openalex.org/C12174686","wikidata":"https://www.wikidata.org/wiki/Q1058438","display_name":"Risk assessment","level":2,"score":0.42289999127388},{"id":"https://openalex.org/C545542383","wikidata":"https://www.wikidata.org/wiki/Q2751242","display_name":"Medical emergency","level":1,"score":0.4023999869823456},{"id":"https://openalex.org/C2778198053","wikidata":"https://www.wikidata.org/wiki/Q181754","display_name":"Heart failure","level":2,"score":0.3962000012397766},{"id":"https://openalex.org/C2780724011","wikidata":"https://www.wikidata.org/wiki/Q1295316","display_name":"Emergency department","level":2,"score":0.36899998784065247},{"id":"https://openalex.org/C203663800","wikidata":"https://www.wikidata.org/wiki/Q848979","display_name":"Citizen journalism","level":2,"score":0.3418999910354614},{"id":"https://openalex.org/C2777455480","wikidata":"https://www.wikidata.org/wiki/Q1038171","display_name":"Participatory design","level":3,"score":0.3328000009059906},{"id":"https://openalex.org/C2779473830","wikidata":"https://www.wikidata.org/wiki/Q1540899","display_name":"MEDLINE","level":2,"score":0.3061000108718872},{"id":"https://openalex.org/C32896092","wikidata":"https://www.wikidata.org/wiki/Q189447","display_name":"Risk management","level":2,"score":0.2992999851703644},{"id":"https://openalex.org/C3017997152","wikidata":"https://www.wikidata.org/wiki/Q814610","display_name":"Emergency response","level":2,"score":0.2937000095844269},{"id":"https://openalex.org/C133462117","wikidata":"https://www.wikidata.org/wiki/Q4929239","display_name":"Data collection","level":2,"score":0.2628999948501587},{"id":"https://openalex.org/C2777896191","wikidata":"https://www.wikidata.org/wiki/Q22907655","display_name":"Patient experience","level":3,"score":0.262800008058548},{"id":"https://openalex.org/C112930515","wikidata":"https://www.wikidata.org/wiki/Q4389547","display_name":"Risk analysis (engineering)","level":1,"score":0.2581000030040741},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.2547999918460846},{"id":"https://openalex.org/C107327155","wikidata":"https://www.wikidata.org/wiki/Q330268","display_name":"Decision support system","level":2,"score":0.2533999979496002},{"id":"https://openalex.org/C2779328685","wikidata":"https://www.wikidata.org/wiki/Q1475557","display_name":"Patient safety","level":3,"score":0.25099998712539673}],"mesh":[],"locations_count":1,"locations":[{"id":"doi:10.21203/rs.3.rs-10808123/v1","doi":"https://doi.org/10.21203/rs.3.rs-10808123/v1","is_oa":true,"landing_page_url":"https://doi.org/10.21203/rs.3.rs-10808123/v1","pdf_url":"https://www.researchsquare.com/article/rs-10808123/latest.pdf","source":{"id":"https://openalex.org/S4306525896","display_name":"Research Square","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"acceptedVersion","is_accepted":true,"is_published":false,"raw_source_name":"Research Square","raw_type":"posted-content"}],"best_oa_location":{"id":"doi:10.21203/rs.3.rs-10808123/v1","doi":"https://doi.org/10.21203/rs.3.rs-10808123/v1","is_oa":true,"landing_page_url":"https://doi.org/10.21203/rs.3.rs-10808123/v1","pdf_url":"https://www.researchsquare.com/article/rs-10808123/latest.pdf","source":{"id":"https://openalex.org/S4306525896","display_name":"Research Square","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"acceptedVersion","is_accepted":true,"is_published":false,"raw_source_name":"Research Square","raw_type":"posted-content"},"sustainable_development_goals":[{"score":0.9940000176429749,"display_name":"Good health and well-being","id":"https://metadata.un.org/sdg/3"}],"study_designs":[],"awards":[{"id":"https://openalex.org/G4020825985","display_name":null,"funder_award_id":"Grant Agreement No. 101057849 (DataTools4Heart project).","funder_id":"https://openalex.org/F4320332999","funder_display_name":"Horizon 2020 Framework Programme"},{"id":"https://openalex.org/G4680206264","display_name":"A European Health Data Toolbox for Enhancing Cardiology Data Interoperability, Reusability and Privacy","funder_award_id":"101057849","funder_id":"https://openalex.org/F4320320300","funder_display_name":"European Commission"},{"id":"https://openalex.org/G5123314498","display_name":null,"funder_award_id":"101057849","funder_id":"https://openalex.org/F4320334322","funder_display_name":"HORIZON EUROPE Framework Programme"}],"funders":[{"id":"https://openalex.org/F4320320300","display_name":"European Commission","ror":"https://ror.org/00k4n6c32"},{"id":"https://openalex.org/F4320332999","display_name":"Horizon 2020 Framework Programme","ror":"https://ror.org/00k4n6c32"},{"id":"https://openalex.org/F4320334322","display_name":"HORIZON EUROPE Framework Programme","ror":null}],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W7204452300.pdf","grobid_xml":"https://content.openalex.org/works/W7204452300.grobid-xml"},"referenced_works_count":32,"referenced_works":["https://openalex.org/W2112728637","https://openalex.org/W2147641120","https://openalex.org/W2794258710","https://openalex.org/W2947309400","https://openalex.org/W3051124794","https://openalex.org/W3092428367","https://openalex.org/W3156046035","https://openalex.org/W3175218581","https://openalex.org/W4210605645","https://openalex.org/W4232698832","https://openalex.org/W4281682519","https://openalex.org/W4282978483","https://openalex.org/W4296460964","https://openalex.org/W4307217168","https://openalex.org/W4308738998","https://openalex.org/W4365811446","https://openalex.org/W4379230991","https://openalex.org/W4393098686","https://openalex.org/W4399170097","https://openalex.org/W4399503296","https://openalex.org/W4407173730","https://openalex.org/W4410080321","https://openalex.org/W4410734138","https://openalex.org/W4412094394","https://openalex.org/W4413312160","https://openalex.org/W4415665861","https://openalex.org/W4415938358","https://openalex.org/W4416230990","https://openalex.org/W4416784217","https://openalex.org/W7119493048","https://openalex.org/W7154705480","https://openalex.org/W7160549894"],"related_works":["https://openalex.org/W7101446375","https://openalex.org/W4281682519","https://openalex.org/W7152422943","https://openalex.org/W7134927367","https://openalex.org/W4399170097","https://openalex.org/W7164320040","https://openalex.org/W7223064082","https://openalex.org/W4382278211","https://openalex.org/W7153796821","https://openalex.org/W4283797934"],"abstract_inverted_index":{"Abstract":[0],"Background":[1],"Artificial":[2],"intelligence":[3],"(AI)":[4],"is":[5,71],"increasingly":[6],"promising":[7],"to":[8,19,48,207],"support":[9],"decisions":[10],"in":[11,35,42,103,192],"acute":[12,214],"cardiovascular":[13,86,123],"care,":[14],"including":[15],"whether":[16],"patients":[17,34,62,78,105,278],"presenting":[18],"the":[20,203,226,230,240,253,283],"emergency":[21],"department":[22],"can":[23],"be":[24],"safely":[25],"discharged.":[26],"Ethical":[27],"and":[28,52,73,137,170,209,218,235,291],"trustworthy-AI":[29,163],"frameworks":[30],"call":[31],"for":[32,72,279],"involving":[33],"designing":[36],"such":[37],"tools,":[38],"yet":[39],"patient":[40,296],"involvement":[41],"AI":[43],"has":[44,90],"largely":[45,59],"been":[46,92],"limited":[47],"gathering":[49],"views,":[50],"acceptability,":[51],"interface":[53],"preferences.":[54],"This":[55],"consultative":[56,184],"role":[57,185],"leaves":[58],"untested":[60],"what":[61,68],"contribute":[63,79],"when":[64,80],"involved":[65,257],"strategically,":[66],"shaping":[67],"a":[69,84,97,101,117,130,143,182,223,267],"tool":[70,89,204],"how":[74],"it":[75],"works.":[76],"What":[77],"they":[81],"help":[82],"design":[83,159,189,264],"high-stakes":[85],"risk":[87,124,220,245],"prediction":[88,125,241],"rarely":[91],"examined.":[93],"Methods":[94],"We":[95],"conducted":[96],"co-design":[98,168,280],"workshop":[99,146,152],"as":[100,258,287],"pilot":[102],"which":[104,295],"with":[106],"lived":[107],"experience":[108],"of":[109,147,228,246],"heart":[110],"failure":[111],"(n":[112],"=":[113],"11)":[114],"participated,":[115],"within":[116],"European":[118],"project":[119],"developing":[120],"an":[121,138,187,288],"AI-enabled":[122],"tool.":[126],"The":[127,151],"study":[128],"used":[129],"two-stage":[131],"process:":[132],"preparatory":[133],"capacity-building":[134],"through":[135],"e-learning":[136],"online":[139],"webinar,":[140],"followed":[141],"by":[142,294],"two-day":[144],"in-person":[145],"5":[148],"facilitated":[149,155],"sessions.":[150],"comprised":[153],"five":[154],"sessions":[156],"using":[157,174],"participatory":[158],"activities":[160],"structured":[161],"around":[162],"(FUTURE-AI)":[164],"design-phase":[165],"principles.":[166],"Recordings,":[167],"artefacts,":[169],"surveys":[171],"were":[172],"analysed":[173],"reflexive":[175],"thematic":[176],"analysis.":[177],"Results":[178],"Patients":[179,256],"shifted":[180],"from":[181,205],"familiar":[183],"into":[186,252],"active":[188],"role.":[190],"Working":[191],"two":[193],"independent":[194],"groups,":[195],"participants":[196,248],"converged":[197],"on":[198],"similar":[199],"designs.":[200],"Both":[201],"reframed":[202],"clinician-facing":[206],"patient-facing":[208],"specified:":[210],"whole-person":[211],"inputs":[212],"beyond":[213],"clinical":[215],"variables;":[216],"qualitative,":[217],"actionable":[219],"rather":[221],"than":[222],"numerical":[224],"output;":[225],"withholding":[227],"predictions":[229],"model":[231],"cannot":[232],"make":[233],"reliably;":[234],"layered,":[236],"patient-controlled":[237],"explanation.":[238],"Because":[239],"concerned":[242],"their":[243],"own":[244],"death,":[247],"built":[249],"emotional":[250],"safeguards":[251],"design.":[254],"Conclusion":[255],"strategic":[259],"partners":[260],"produce":[261],"coherent,":[262],"concrete":[263],"specifications":[265],"that":[266],"purely":[268],"technical":[269],"process":[270],"would":[271],"miss.":[272],"Realising":[273],"this":[274],"contribution":[275],"requires":[276],"preparing":[277],"methods,":[281],"treating":[282],"tool's":[284],"intended":[285],"beneficiary":[286],"open":[289],"question,":[290],"building":[292],"routes":[293],"input":[297],"reaches":[298],"development.":[299],"Trial":[300],"Registration":[301],"Not":[302],"applicable.":[303]},"counts_by_year":[],"updated_date":"2026-10-31T12:09:11.096373","created_date":"2026-08-28T00:00:00"}