{"id":"https://openalex.org/W7165843315","doi":"https://doi.org/10.1186/s12904-026-02207-9","title":"Advance care planning with patients of Islamic migration background: a qualitative study identifying the need for relational autonomy and hope-sustaining communication","display_name":"Advance care planning with patients of Islamic migration background: a qualitative study identifying the need for relational autonomy and hope-sustaining communication","publication_year":2026,"publication_date":"2026-06-26","ids":{"openalex":"https://openalex.org/W7165843315","doi":"https://doi.org/10.1186/s12904-026-02207-9","pmid":"https://pubmed.ncbi.nlm.nih.gov/42351146"},"language":"en","primary_location":{"id":"doi:10.1186/s12904-026-02207-9","doi":"https://doi.org/10.1186/s12904-026-02207-9","is_oa":true,"landing_page_url":"https://doi.org/10.1186/s12904-026-02207-9","pdf_url":null,"source":{"id":"https://openalex.org/S169992948","display_name":"BMC Palliative Care","issn_l":"1472-684X","issn":["1472-684X"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","dongbi-d","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320256","host_organization_name":"BioMed Central","host_organization_lineage":["https://openalex.org/P4310320256","https://openalex.org/P4310319965"],"host_organization_lineage_names":["BioMed Central","Springer Nature"],"type":"journal"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"BMC Palliative Care","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref","doaj","pubmed"],"open_access":{"is_oa":true,"oa_status":"gold","oa_url":"https://doi.org/10.1186/s12904-026-02207-9","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5093098845","display_name":"Anouk E Putker","orcid":"https://orcid.org/0009-0007-8933-3344","observed_orcids":["https://orcid.org/0009-0007-8933-3344"]},"institutions":[{"id":"https://openalex.org/I2802934949","display_name":"Radboud University Medical Center","ror":"https://ror.org/05wg1m734","country_code":"NL","type":"funder","lineage":["https://openalex.org/I2802934949"]}],"countries":["NL"],"is_corresponding":true,"raw_author_name":"Anouk Putker","raw_affiliation_strings":["Department of Medical Oncology, Geert Grooteplein Zuid 10, Nijmegen, 6525 GA, The Netherlands. anouk.putker@radboudumc.nl"],"raw_orcid":"https://orcid.org/0009-0007-8933-3344","affiliations":[{"raw_affiliation_string":"Department of Medical Oncology, Geert Grooteplein Zuid 10, Nijmegen, 6525 GA, The Netherlands. anouk.putker@radboudumc.nl","institution_ids":["https://openalex.org/I2802934949"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5135586915","display_name":"Amine Haddane","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Amine Haddane","raw_affiliation_strings":["Department of Medical Oncology, Geert Grooteplein Zuid 10, Nijmegen, 6525 GA, The Netherlands"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Medical Oncology, Geert Grooteplein Zuid 10, Nijmegen, 6525 GA, The Netherlands","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5088524772","display_name":"Yvonne Engels","orcid":"https://orcid.org/0000-0002-7669-1018","observed_orcids":["https://orcid.org/0000-0002-7669-1018"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Yvonne Engels","raw_affiliation_strings":["Department of Medical Oncology, Geert Grooteplein Zuid 10, Nijmegen, 6525 GA, The Netherlands"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Medical Oncology, Geert Grooteplein Zuid 10, Nijmegen, 6525 GA, The Netherlands","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5025373164","display_name":"Evelien J. M. Kuip","orcid":"https://orcid.org/0000-0002-9114-643X","observed_orcids":["https://orcid.org/0000-0002-9114-643X"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Evelien Kuip","raw_affiliation_strings":["Department of Medical Oncology, Geert Grooteplein Zuid 10, Nijmegen, 6525 GA, The Netherlands"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Medical Oncology, Geert Grooteplein Zuid 10, Nijmegen, 6525 GA, The Netherlands","institution_ids":[]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5062494839","display_name":"Marieke Perry","orcid":"https://orcid.org/0000-0003-0675-9678","observed_orcids":["https://orcid.org/0000-0003-0675-9678"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Marieke Perry","raw_affiliation_strings":["Department of Medical Oncology, Geert Grooteplein Zuid 10, Nijmegen, 6525 GA, The Netherlands"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Department of Medical Oncology, Geert Grooteplein Zuid 10, Nijmegen, 6525 GA, The Netherlands","institution_ids":[]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":1,"corresponding_author_ids":["https://openalex.org/A5093098845"],"corresponding_institution_ids":["https://openalex.org/I2802934949"],"apc_list":{"value":2990,"currency":"USD","value_usd":2990},"apc_paid":{"value":2990,"currency":"USD","value_usd":2990},"fwci":6.1552,"has_fulltext":true,"cited_by_count":1,"citation_normalized_percentile":{"value":0.96008073,"is_in_top_1_percent":false,"is_in_top_10_percent":true},"cited_by_percentile_year":{"min":93,"max":96},"biblio":{"volume":"25","issue":"1","first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.9994999766349792,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.9994999766349792,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13147","display_name":"Ethics and bioethics in healthcare","score":0.00019999999494757503,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13340","display_name":"Palliative and Oncologic Care","score":9.999999747378752e-05,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/advance-care-planning","display_name":"advance care planning","score":1.0},{"id":"https://openalex.org/keywords/cultural-competence","display_name":"cultural competence","score":0.5260000228881836},{"id":"https://openalex.org/keywords/relational-autonomy","display_name":"relational autonomy","score":0.8330000042915344},{"id":"https://openalex.org/keywords/family-decision-making","display_name":"family decision-making","score":0.7229999899864197},{"id":"https://openalex.org/keywords/palliative-cancer-care","display_name":"cancer palliative care","score":0.7900000214576721},{"id":"https://openalex.org/keywords/end-of-life-decision-making","display_name":"end-of-life decisions","score":0.628000020980835},{"id":"https://openalex.org/keywords/patient-clinician-communication","display_name":"patient-clinician communication","score":0.6539999842643738},{"id":"https://openalex.org/keywords/trust-in-healthcare","display_name":"trust in healthcare","score":0.6790000200271606},{"id":"https://openalex.org/keywords/cultural-beliefs-about-death","display_name":"cultural beliefs about death","score":0.30399999022483826}],"concepts":[{"id":"https://openalex.org/C2777995714","wikidata":"https://www.wikidata.org/wiki/Q18209059","display_name":"Advance care planning","level":3,"score":0.7710999846458435},{"id":"https://openalex.org/C190248442","wikidata":"https://www.wikidata.org/wiki/Q839486","display_name":"Qualitative research","level":2,"score":0.7285000085830688},{"id":"https://openalex.org/C4445939","wikidata":"https://www.wikidata.org/wiki/Q432","display_name":"Islam","level":2,"score":0.6416000127792358},{"id":"https://openalex.org/C65414064","wikidata":"https://www.wikidata.org/wiki/Q484105","display_name":"Autonomy","level":2,"score":0.6388000249862671},{"id":"https://openalex.org/C2994186709","wikidata":"https://www.wikidata.org/wiki/Q29483","display_name":"Palliative care","level":2,"score":0.49880000948905945},{"id":"https://openalex.org/C2991975920","wikidata":"https://www.wikidata.org/wiki/Q621261","display_name":"Pain medicine","level":3,"score":0.45559999346733093},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.45179998874664307},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.4269999861717224},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.38339999318122864},{"id":"https://openalex.org/C39549134","wikidata":"https://www.wikidata.org/wiki/Q133080","display_name":"Public relations","level":1,"score":0.35370001196861267},{"id":"https://openalex.org/C12713177","wikidata":"https://www.wikidata.org/wiki/Q1900281","display_name":"Perspective (graphical)","level":2,"score":0.3513999879360199},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.34049999713897705},{"id":"https://openalex.org/C3018587665","wikidata":"https://www.wikidata.org/wiki/Q7268696","display_name":"Qualitative analysis","level":3,"score":0.2919999957084656},{"id":"https://openalex.org/C509550671","wikidata":"https://www.wikidata.org/wiki/Q126945","display_name":"Medical education","level":1,"score":0.28439998626708984},{"id":"https://openalex.org/C2779473830","wikidata":"https://www.wikidata.org/wiki/Q1540899","display_name":"MEDLINE","level":2,"score":0.28130000829696655},{"id":"https://openalex.org/C2992231428","wikidata":"https://www.wikidata.org/wiki/Q19927678","display_name":"Personal autonomy","level":3,"score":0.2791999876499176},{"id":"https://openalex.org/C55587333","wikidata":"https://www.wikidata.org/wiki/Q1133029","display_name":"Engineering ethics","level":1,"score":0.2768999934196472},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.27469998598098755},{"id":"https://openalex.org/C156325361","wikidata":"https://www.wikidata.org/wiki/Q1152864","display_name":"Grounded theory","level":3,"score":0.2531000077724457}],"mesh":[{"descriptor_ui":"D000080105","descriptor_name":"Relational Autonomy","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D000080105","descriptor_name":"Relational Autonomy","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D000080105","descriptor_name":"Relational Autonomy","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000368","descriptor_name":"Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000368","descriptor_name":"Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000368","descriptor_name":"Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003142","descriptor_name":"Communication","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D003142","descriptor_name":"Communication","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D003142","descriptor_name":"Communication","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D003657","descriptor_name":"Decision Making","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003657","descriptor_name":"Decision Making","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D003657","descriptor_name":"Decision Making","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007514","descriptor_name":"Islam","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D007514","descriptor_name":"Islam","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D007514","descriptor_name":"Islam","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008875","descriptor_name":"Middle Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008875","descriptor_name":"Middle Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008875","descriptor_name":"Middle Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D009426","descriptor_name":"Netherlands","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D009426","descriptor_name":"Netherlands","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D009426","descriptor_name":"Netherlands","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017144","descriptor_name":"Focus Groups","qualifier_ui":"Q000379","qualifier_name":"methods","is_major_topic":false},{"descriptor_ui":"D017144","descriptor_name":"Focus Groups","qualifier_ui":"Q000379","qualifier_name":"methods","is_major_topic":false},{"descriptor_ui":"D017144","descriptor_name":"Focus Groups","qualifier_ui":"Q000379","qualifier_name":"methods","is_major_topic":false},{"descriptor_ui":"D032722","descriptor_name":"Advance Care Planning","qualifier_ui":"Q000592","qualifier_name":"standards","is_major_topic":true},{"descriptor_ui":"D032722","descriptor_name":"Advance Care Planning","qualifier_ui":"Q000592","qualifier_name":"standards","is_major_topic":true},{"descriptor_ui":"D032722","descriptor_name":"Advance Care Planning","qualifier_ui":"Q000592","qualifier_name":"standards","is_major_topic":true},{"descriptor_ui":"D036301","descriptor_name":"Qualitative Research","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D036301","descriptor_name":"Qualitative Research","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D036301","descriptor_name":"Qualitative Research","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D065026","descriptor_name":"Hope","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D065026","descriptor_name":"Hope","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D065026","descriptor_name":"Hope","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false}],"locations_count":6,"locations":[{"id":"doi:10.1186/s12904-026-02207-9","doi":"https://doi.org/10.1186/s12904-026-02207-9","is_oa":true,"landing_page_url":"https://doi.org/10.1186/s12904-026-02207-9","pdf_url":null,"source":{"id":"https://openalex.org/S169992948","display_name":"BMC Palliative Care","issn_l":"1472-684X","issn":["1472-684X"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","dongbi-d","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320256","host_organization_name":"BioMed Central","host_organization_lineage":["https://openalex.org/P4310320256","https://openalex.org/P4310319965"],"host_organization_lineage_names":["BioMed Central","Springer Nature"],"type":"journal"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"BMC Palliative Care","raw_type":"journal-article"},{"id":"doi:10.21203/rs.3.rs-9476461/v1","doi":"https://doi.org/10.21203/rs.3.rs-9476461/v1","is_oa":true,"landing_page_url":"https://doi.org/10.21203/rs.3.rs-9476461/v1","pdf_url":"https://www.researchsquare.com/article/rs-9476461/latest.pdf","source":{"id":"https://openalex.org/S4306525896","display_name":"Research Square","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"acceptedVersion","is_accepted":true,"is_published":false,"raw_source_name":"Research Square","raw_type":"posted-content"},{"id":"pmid:42351146","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/42351146","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"BMC palliative care","raw_type":"Journal Article"},{"id":"pmh:oai:pubmedcentral.nih.gov:13560162","doi":null,"is_oa":true,"landing_page_url":"https://pmc.ncbi.nlm.nih.gov/articles/PMC13560162/","pdf_url":"https://pmc.ncbi.nlm.nih.gov/articles/PMC13560162/pdf/12904_2026_Article_2207.pdf","source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"BMC Palliat Care","raw_type":"Text"},{"id":"pmh:oai:repository.ubn.ru.nl:2066/335385","doi":null,"is_oa":true,"landing_page_url":"https://hdl.handle.net/2066/335385","pdf_url":"https://repository.ubn.ru.nl//bitstream/handle/2066/335385/335385.pdf","source":{"id":"https://openalex.org/S4306401067","display_name":"Radboud Repository (Radboud University)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I145872427","host_organization_name":"Radboud University Nijmegen","host_organization_lineage":["https://openalex.org/I145872427"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"Article / Letter to editor"},{"id":"pmh:oai:doaj.org/article:b907cd6fb07f4348a5fc4e5f53839db2","doi":null,"is_oa":false,"landing_page_url":"https://doaj.org/article/b907cd6fb07f4348a5fc4e5f53839db2","pdf_url":null,"source":{"id":"https://openalex.org/S4306401280","display_name":"DOAJ (DOAJ: Directory of Open Access Journals)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":null,"host_organization_name":null,"host_organization_lineage":[],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"BMC Palliative Care, Vol 25, Iss 1 (2026)","raw_type":"article"}],"best_oa_location":{"id":"doi:10.1186/s12904-026-02207-9","doi":"https://doi.org/10.1186/s12904-026-02207-9","is_oa":true,"landing_page_url":"https://doi.org/10.1186/s12904-026-02207-9","pdf_url":null,"source":{"id":"https://openalex.org/S169992948","display_name":"BMC Palliative Care","issn_l":"1472-684X","issn":["1472-684X"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","dongbi-d","doyens","jufo-1","ki-jl-1","medline","norway-1","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320256","host_organization_name":"BioMed Central","host_organization_lineage":["https://openalex.org/P4310320256","https://openalex.org/P4310319965"],"host_organization_lineage_names":["BioMed Central","Springer Nature"],"type":"journal"},"license":"cc-by-nc-nd","license_id":"https://openalex.org/licenses/cc-by-nc-nd","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"BMC Palliative Care","raw_type":"journal-article"},"sustainable_development_goals":[{"display_name":"Good health and well-being","score":0.98580002784729,"id":"https://metadata.un.org/sdg/3"}],"sustainable_development_goals_aurora":[{"display_name":"Reduced inequalities","score":0.8035621643066406,"id":"https://metadata.un.org/sdg/10"}],"study_designs":[],"awards":[],"funders":[{"id":"https://openalex.org/F4320321013","display_name":"Radboud Universiteit","ror":"https://ror.org/016xsfp80"},{"id":"https://openalex.org/F4320323698","display_name":"Radboud Universitair Medisch Centrum","ror":"https://ror.org/05wg1m734"}],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":45,"referenced_works":["https://openalex.org/W1970440678","https://openalex.org/W1984595860","https://openalex.org/W2010135302","https://openalex.org/W2089597006","https://openalex.org/W2104424709","https://openalex.org/W2109122591","https://openalex.org/W2138502782","https://openalex.org/W2138664283","https://openalex.org/W2172211224","https://openalex.org/W2212041493","https://openalex.org/W2271965701","https://openalex.org/W2344152210","https://openalex.org/W2397234729","https://openalex.org/W2571458453","https://openalex.org/W2583968134","https://openalex.org/W2753659610","https://openalex.org/W2785127689","https://openalex.org/W2892271194","https://openalex.org/W2906319702","https://openalex.org/W2945170989","https://openalex.org/W2969908380","https://openalex.org/W2996660747","https://openalex.org/W3043694359","https://openalex.org/W3089898468","https://openalex.org/W3091938428","https://openalex.org/W3129552156","https://openalex.org/W3153431508","https://openalex.org/W3156787892","https://openalex.org/W3202165366","https://openalex.org/W3210787405","https://openalex.org/W3215214788","https://openalex.org/W4309672875","https://openalex.org/W4312113500","https://openalex.org/W4377940750","https://openalex.org/W4384944782","https://openalex.org/W4392542027","https://openalex.org/W4403070991","https://openalex.org/W4404723582","https://openalex.org/W4409150411","https://openalex.org/W4416808105","https://openalex.org/W7122441614","https://openalex.org/W7124135025","https://openalex.org/W7125426242","https://openalex.org/W7125767458","https://openalex.org/W7154493895"],"related_works":[],"abstract_inverted_index":{"BACKGROUND:":[0],"Advance":[1],"Care":[2],"Planning":[3],"(ACP)":[4],"is":[5,135,242,302,330],"largely":[6],"based":[7],"on":[8,43,140,308],"ideas":[9],"of":[10,26,37,68,157,162,176,187,198,207,230,318,324],"individual":[11,148,177],"autonomy":[12,142,309],"and":[13,23,51,75,81,103,113,173,184,189,217,237,263,277,281,297,305,320,342],"direct":[14],"communication,":[15,253],"which":[16,52],"may":[17,55,310,339],"conflict":[18],"with":[19,28,39,72,83,85,286,288,313],"the":[20,35,98,155,163,180,196,228,232],"relational,":[21,295],"cultural":[22,73,282],"religious":[24,185],"perspectives":[25,36,307],"patients":[27,38,84,138,194,214,287],"an":[29,40,86,104,289],"Islamic":[30,41,87,290],"migration":[31,88,291],"background.":[32],"We":[33],"explored":[34],"background":[42,89,292],"ACP":[44,105,133,171,250,285,349],"conversations":[45],"within":[46],"a":[47,243,294],"Dutch":[48],"healthcare":[49,76],"system":[50],"communication":[53,269,335],"strategies":[54,345],"support":[56,347],"more":[57],"culturally":[58,298],"appropriate":[59,348],"ACP.":[60],"METHODS:":[61],"A":[62],"qualitative":[63],"study":[64],"was":[65,121,221,259],"conducted":[66],"consisting":[67],"two":[69],"focus":[70],"groups":[71],"experts":[74],"professionals":[77],"(N":[78,94],"=":[79,95],"14)":[80],"interviews":[82],"receiving":[90],"palliative":[91,325],"cancer":[92],"treatment":[93],"6)":[96],"in":[97,115,165,170,249],"Netherlands.":[99],"Semi-structured":[100],"interview":[101,125],"guides":[102],"introduction":[106],"video":[107],"were":[108],"used":[109],"to":[110,123,265,346],"initiate":[111],"discussion":[112],"reflection":[114],"both":[116],"settings.":[117],"Inductive":[118],"thematic":[119],"analysis":[120],"applied":[122],"all":[124,257],"transcripts.":[126],"RESULTS:":[127],"Three":[128],"main":[129],"themes":[130],"emerged:":[131],"(1)":[132],"decision-making":[134,178],"predominantly":[136],"family-driven:":[137],"rely":[139],"relational":[141],"through":[143],"their":[144,274],"family":[145,164,168],"network,":[146],"although":[147],"preferences":[149],"vary":[150],"across":[151],"generations.":[152],"This":[153],"highlights":[154],"importance":[156,229],"exploring":[158],"patients'":[159],"preferred":[160],"role":[161],"decision-making,":[166],"facilitating":[167],"involvement":[169],"conversations,":[172],"avoiding":[174],"assumptions":[175],"as":[179,205,224,261],"default.":[181],"(2)":[182],"Cultural":[183],"meaning":[186,216],"illness":[188,319],"suffering":[190,321],"strongly":[191],"shapes":[192],"how":[193],"interpret":[195],"end":[197],"life.":[199,239],"Rather":[200],"than":[201],"using":[202],"concepts":[203],"such":[204],"\"quality":[206],"life\",":[208],"clinicians":[209],"should":[210],"explore":[211],"what":[212],"gives":[213],"(spiritual)":[215],"hope.":[218],"Palliative":[219],"care":[220],"sometimes":[222],"misunderstood":[223],"hastening":[225],"death,":[226],"highlighting":[227],"explaining":[231],"difference":[233],"between":[234],"symptom":[235],"management":[236],"ending":[238],"(3)":[240],"Hope":[241],"crucial":[244],"determinant":[245],"for":[246,332],"maintaining":[247,328],"engagement":[248],"discussions.":[251],"Direct":[252],"especially":[254],"statements":[255],"removing":[256],"hope,":[258,272],"experienced":[260],"distressing":[262],"damaging":[264],"trust.":[266],"Patients":[267],"valued":[268],"that":[270],"preserved":[271],"matched":[273],"emotional":[275],"readiness,":[276],"showed":[278],"genuine":[279],"personal":[280],"interest.":[283],"CONCLUSION:":[284],"requires":[293],"hope-sustaining":[296],"sensitive":[299],"approach.":[300],"Decision-making":[301],"often":[303],"family-driven,":[304],"individualistic":[306],"not":[311],"align":[312],"patient":[314],"preferences.":[315],"Religious":[316],"meanings":[317],"influence":[322],"perceptions":[323],"care,":[326],"while":[327],"hope":[329,338],"essential":[331],"engagement.":[333],"Adapting":[334],"including":[336],"preserving":[337],"enhance":[340],"trust":[341],"offers":[343],"concrete":[344],"conservations.":[350]},"counts_by_year":[{"year":2026,"cited_by_count":1}],"updated_date":"2026-10-13T10:08:12.033832","created_date":"2026-06-26T00:00:00"}