{"id":"https://openalex.org/W7165771069","doi":"https://doi.org/10.1188/26.onf.e26535333","title":"Patient Perspectives on Measuring Patient-Reported Outcomes in Oncology","display_name":"Patient Perspectives on Measuring Patient-Reported Outcomes in Oncology","publication_year":2026,"publication_date":"2026-06-24","ids":{"openalex":"https://openalex.org/W7165771069","doi":"https://doi.org/10.1188/26.onf.e26535333","pmid":"https://pubmed.ncbi.nlm.nih.gov/42341330"},"language":"en","primary_location":{"id":"doi:10.1188/26.onf.e26535333","doi":"https://doi.org/10.1188/26.onf.e26535333","is_oa":false,"landing_page_url":"https://doi.org/10.1188/26.onf.e26535333","pdf_url":null,"source":{"id":"https://openalex.org/S38543998","display_name":"Oncology nursing forum","issn_l":"0190-535X","issn":["0190-535X","1538-0688"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","doyens","jufo-1","medline","norway-1"],"host_organization":"https://openalex.org/P4310315848","host_organization_name":"Oncology Nursing Society","host_organization_lineage":["https://openalex.org/P4310315848"],"host_organization_lineage_names":["Oncology Nursing Society"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Oncology Nursing Forum","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref","pubmed"],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"https://pubmed.ncbi.nlm.nih.gov/42341330/","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5089401125","display_name":"Catherine Mbango","orcid":"https://orcid.org/0000-0002-4205-4168","observed_orcids":["https://orcid.org/0000-0002-4205-4168"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Catherine Mbango","raw_affiliation_strings":["Catherine Mbango"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Catherine Mbango","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5146849067","display_name":"Sanika Bedse","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Sanika Bedse","raw_affiliation_strings":["Sanika Bedse"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Sanika Bedse","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5122997347","display_name":"Loretta A. Williams","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Loretta A Williams","raw_affiliation_strings":["Loretta A. Williams"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Loretta A. Williams","institution_ids":[]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5129223882","display_name":"Charles Cleeland","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Charles Cleeland","raw_affiliation_strings":["Charles Cleeland"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Charles Cleeland","institution_ids":[]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5068492917","display_name":"Meagan Whisenant","orcid":"https://orcid.org/0000-0002-9791-1227","observed_orcids":["https://orcid.org/0000-0002-9791-1227"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Meagan Whisenant","raw_affiliation_strings":["Meagan Whisenant"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Meagan Whisenant","institution_ids":[]}]}],"institutions":[],"countries_distinct_count":0,"institutions_distinct_count":0,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":0.0,"has_fulltext":false,"cited_by_count":0,"citation_normalized_percentile":{"value":0.46187118,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":null,"biblio":{"volume":"53","issue":"4","first_page":"1","last_page":"6"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10178","display_name":"Cancer survivorship and care","score":0.9955999851226807,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10178","display_name":"Cancer survivorship and care","score":0.9955999851226807,"subfield":{"id":"https://openalex.org/subfields/2730","display_name":"Oncology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11199","display_name":"Pain Management and Opioid Use","score":0.0008999999845400453,"subfield":{"id":"https://openalex.org/subfields/2703","display_name":"Anesthesiology and Pain Medicine"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11722","display_name":"Patient Satisfaction in Healthcare","score":0.0006000000284984708,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/patient-reported-outcomes","display_name":"patient-reported outcomes","score":0.9789999723434448},{"id":"https://openalex.org/keywords/cancer-patients","display_name":"cancer patients","score":0.6039999723434448},{"id":"https://openalex.org/keywords/symptom-assessment","display_name":"symptom assessment","score":0.9319999814033508},{"id":"https://openalex.org/keywords/patient-preferences","display_name":"patient preferences","score":0.9520000219345093},{"id":"https://openalex.org/keywords/follow-up-visits","display_name":"follow-up visits","score":0.5709999799728394},{"id":"https://openalex.org/keywords/symptom-monitoring","display_name":"symptom monitoring","score":0.4749999940395355},{"id":"https://openalex.org/keywords/nurse-led-care","display_name":"nurse-led care","score":0.3400000035762787}],"concepts":[{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.9631999731063843},{"id":"https://openalex.org/C2779473830","wikidata":"https://www.wikidata.org/wiki/Q1540899","display_name":"MEDLINE","level":2,"score":0.4230000078678131},{"id":"https://openalex.org/C177713679","wikidata":"https://www.wikidata.org/wiki/Q679690","display_name":"Intensive care medicine","level":1,"score":0.39239999651908875},{"id":"https://openalex.org/C19527891","wikidata":"https://www.wikidata.org/wiki/Q1120908","display_name":"Medical physics","level":1,"score":0.37059998512268066},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.34200000762939453},{"id":"https://openalex.org/C143998085","wikidata":"https://www.wikidata.org/wiki/Q162555","display_name":"Oncology","level":1,"score":0.3418000042438507},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.29910001158714294},{"id":"https://openalex.org/C2776598537","wikidata":"https://www.wikidata.org/wiki/Q1812651","display_name":"Clinical Oncology","level":3,"score":0.28619998693466187},{"id":"https://openalex.org/C114200698","wikidata":"https://www.wikidata.org/wiki/Q1886303","display_name":"Oncology nursing","level":3,"score":0.2660999894142151},{"id":"https://openalex.org/C2992520072","wikidata":"https://www.wikidata.org/wiki/Q180507","display_name":"Radiation oncology","level":3,"score":0.2475000023841858}],"mesh":[{"descriptor_ui":"D000071066","descriptor_name":"Patient Reported Outcome Measures","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D000071066","descriptor_name":"Patient Reported Outcome Measures","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D000071066","descriptor_name":"Patient Reported Outcome Measures","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D000071066","descriptor_name":"Patient Reported Outcome Measures","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000368","descriptor_name":"Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000368","descriptor_name":"Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000368","descriptor_name":"Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000368","descriptor_name":"Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000369","descriptor_name":"Aged, 80 and over","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000369","descriptor_name":"Aged, 80 and over","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000369","descriptor_name":"Aged, 80 and over","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000369","descriptor_name":"Aged, 80 and over","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008875","descriptor_name":"Middle Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008875","descriptor_name":"Middle Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008875","descriptor_name":"Middle Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008875","descriptor_name":"Middle Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D009369","descriptor_name":"Neoplasms","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D009369","descriptor_name":"Neoplasms","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D009369","descriptor_name":"Neoplasms","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D009369","descriptor_name":"Neoplasms","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":true},{"descriptor_ui":"D009369","descriptor_name":"Neoplasms","qualifier_ui":"Q000628","qualifier_name":"therapy","is_major_topic":true},{"descriptor_ui":"D009369","descriptor_name":"Neoplasms","qualifier_ui":"Q000628","qualifier_name":"therapy","is_major_topic":true},{"descriptor_ui":"D009369","descriptor_name":"Neoplasms","qualifier_ui":"Q000628","qualifier_name":"therapy","is_major_topic":true},{"descriptor_ui":"D009369","descriptor_name":"Neoplasms","qualifier_ui":"Q000628","qualifier_name":"therapy","is_major_topic":true},{"descriptor_ui":"D011795","descriptor_name":"Surveys and Questionnaires","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011795","descriptor_name":"Surveys and Questionnaires","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011795","descriptor_name":"Surveys and Questionnaires","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011795","descriptor_name":"Surveys and Questionnaires","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D013781","descriptor_name":"Texas","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D013781","descriptor_name":"Texas","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D013781","descriptor_name":"Texas","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D013781","descriptor_name":"Texas","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D057240","descriptor_name":"Patient Preference","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D057240","descriptor_name":"Patient Preference","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D057240","descriptor_name":"Patient Preference","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D057240","descriptor_name":"Patient Preference","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D063189","descriptor_name":"Symptom Assessment","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D063189","descriptor_name":"Symptom Assessment","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D063189","descriptor_name":"Symptom Assessment","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D063189","descriptor_name":"Symptom Assessment","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true}],"locations_count":3,"locations":[{"id":"doi:10.1188/26.onf.e26535333","doi":"https://doi.org/10.1188/26.onf.e26535333","is_oa":false,"landing_page_url":"https://doi.org/10.1188/26.onf.e26535333","pdf_url":null,"source":{"id":"https://openalex.org/S38543998","display_name":"Oncology nursing forum","issn_l":"0190-535X","issn":["0190-535X","1538-0688"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["cwts-core","doyens","jufo-1","medline","norway-1"],"host_organization":"https://openalex.org/P4310315848","host_organization_name":"Oncology Nursing Society","host_organization_lineage":["https://openalex.org/P4310315848"],"host_organization_lineage_names":["Oncology Nursing Society"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Oncology Nursing Forum","raw_type":"journal-article"},{"id":"pmid:42341330","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/42341330","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Oncology nursing forum","raw_type":"Journal Article"},{"id":"pmh:oai:pubmedcentral.nih.gov:13309153","doi":null,"is_oa":true,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/42341330/","pdf_url":null,"source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Oncol Nurs Forum","raw_type":"Text"}],"best_oa_location":{"id":"pmh:oai:pubmedcentral.nih.gov:13309153","doi":null,"is_oa":true,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/42341330/","pdf_url":null,"source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Oncol Nurs Forum","raw_type":"Text"},"sustainable_development_goals":[{"score":1.0,"display_name":"Good health and well-being","id":"https://metadata.un.org/sdg/3"}],"sustainable_development_goals_aurora":[],"study_designs":[{"display_name":"Observational Study","id":"https://openalex.org/study-designs/observational-study"}],"awards":[],"funders":[],"has_content":{"pdf":false,"grobid_xml":false},"content_urls":null,"referenced_works_count":0,"referenced_works":[],"related_works":[],"abstract_inverted_index":{"OBJECTIVES:":[0],"To":[1],"provide":[2],"patient":[3],"perspectives":[4],"for":[5,62,168,196,207],"completing":[6],"symptom":[7,63,104,212],"assessment":[8],"patient-reported":[9],"outcome":[10],"(PRO)":[11],"measures.":[12],"SAMPLE":[13],"&":[14,35],"SETTING:":[15],"192":[16],"patients":[17],"diagnosed":[18],"with":[19,75],"cancer":[20],"in":[21,32,53,92,98,106,113],"follow-up":[22,161],"at":[23,126,159],"the":[24,44,49,107,130,132],"University":[25],"of":[26,59],"Texas":[27],"MD":[28],"Anderson":[29],"Cancer":[30],"Center":[31],"Houston.":[33],"METHODS":[34],"VARIABLES:":[36],"Participants":[37,100,152],"responded":[38],"to":[39,102,154],"a":[40,117,124,138,147,177,188],"questionnaire,":[41],"developed":[42],"by":[43,144],"authors":[45],"and":[46,51,80,95,140,164,201],"derived":[47],"from":[48,187],"literature":[50],"experts":[52],"PRO":[54,60,211],"measure":[55,158,167],"development,":[56],"about":[57],"use":[58],"measures":[61],"assessment.":[64],"RESULTS:":[65],"Participants'":[66],"mean":[67],"age":[68],"was":[69,136],"57.5":[70],"years":[71],"(SD":[72],"=":[73],"13),":[74],"49%":[76],"self-reporting":[77],"as":[78,82],"female":[79],"75%":[81],"White.":[83],"In":[84,129],"addition,":[85],"77%":[86,90],"had":[87],"solid":[88],"tumors,":[89],"were":[91,97],"active":[93],"treatment,":[94],"22%":[96],"survivorship.":[99],"preferred":[101,133,153,182],"complete":[103,155],"assessments":[105],"clinic":[108],"waiting":[109],"room":[110],"when":[111,208],"checking":[112],"(38%),":[114],"electronically":[115,122,145],"on":[116,123,146],"home":[118,127],"computer":[119,150],"(28%),":[120,142],"or":[121,149],"smartphone":[125],"(26%).":[128],"clinic,":[131],"completion":[134],"method":[135],"using":[137],"paper":[139],"pen":[141],"followed":[143],"tablet":[148],"(17%).":[151],"only":[156,165],"one":[157,166],"each":[160,169],"visit":[162],"(79%)":[163],"week":[170],"while":[171],"receiving":[172],"treatment":[173],"(81%).":[174],"If":[175],"reporting":[176],"highly":[178],"serious":[179],"symptom,":[180],"participants":[181],"an":[183],"immediate":[184],"telephone":[185],"call":[186],"provider":[189,202],"(52%).":[190],"IMPLICATIONS":[191],"FOR":[192],"NURSING:":[193],"Patient":[194],"preferences":[195],"location,":[197],"administration":[198],"method,":[199],"cadence,":[200],"response":[203],"should":[204],"be":[205],"accounted":[206],"planning":[209],"systematic":[210],"monitoring.":[213]},"counts_by_year":[],"updated_date":"2026-09-29T14:09:16.559479","created_date":"2026-06-25T00:00:00"}