{"id":"https://openalex.org/W7134169986","doi":"https://doi.org/10.1111/1467-9566.70167","title":"\u2018Sweating Blood\u2019: Patients' Dirty Work in Informal Complaint Biographies","display_name":"\u2018Sweating Blood\u2019: Patients' Dirty Work in Informal Complaint Biographies","publication_year":2026,"publication_date":"2026-03-01","ids":{"openalex":"https://openalex.org/W7134169986","doi":"https://doi.org/10.1111/1467-9566.70167","pmid":"https://pubmed.ncbi.nlm.nih.gov/41795821","pmcid":"https://www.ncbi.nlm.nih.gov/pmc/articles/12967771"},"language":"en","primary_location":{"id":"doi:10.1111/1467-9566.70167","doi":"https://doi.org/10.1111/1467-9566.70167","is_oa":true,"landing_page_url":"https://doi.org/10.1111/1467-9566.70167","pdf_url":null,"source":{"id":"https://openalex.org/S123166236","display_name":"Sociology of Health & Illness","issn_l":"0141-9889","issn":["0141-9889","1467-9566"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-class-a","anvur-scientific","cwts-core","dongbi-b","doyens","jufo-3","ki-jl-1","medline","norway-2","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320595","host_organization_name":"Wiley","host_organization_lineage":["https://openalex.org/P4310320595"],"host_organization_lineage_names":["Wiley"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Sociology of Health & Illness","raw_type":"journal-article"},"volume":null,"type":"article","is_traditional":true,"indexed_in":["crossref","pubmed"],"open_access":{"is_oa":true,"oa_status":"hybrid","oa_url":"https://doi.org/10.1111/1467-9566.70167","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5035098521","display_name":"Jelmer Br\u00fcggemann","orcid":"https://orcid.org/0000-0002-1514-677X","observed_orcids":["https://orcid.org/0000-0002-1514-677X"]},"institutions":[{"id":"https://openalex.org/I102134673","display_name":"Link\u00f6ping University","ror":"https://ror.org/05ynxx418","country_code":"SE","type":"education","lineage":["https://openalex.org/I102134673"]}],"countries":["SE"],"is_corresponding":true,"raw_author_name":"Jelmer Br\u00fcggemann","raw_affiliation_strings":["Department of Thematic Studies\u2014Technology and Social Change Link\u00f6ping University  Link\u00f6ping Sweden"],"raw_orcid":"https://orcid.org/0000-0002-1514-677X","affiliations":[{"raw_affiliation_string":"Department of Thematic Studies\u2014Technology and Social Change Link\u00f6ping University  Link\u00f6ping Sweden","institution_ids":["https://openalex.org/I102134673"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5088239456","display_name":"Lisa Guntram","orcid":"https://orcid.org/0000-0001-8344-0308","observed_orcids":["https://orcid.org/0000-0001-8344-0308"]},"institutions":[{"id":"https://openalex.org/I102134673","display_name":"Link\u00f6ping University","ror":"https://ror.org/05ynxx418","country_code":"SE","type":"education","lineage":["https://openalex.org/I102134673"]}],"countries":["SE"],"is_corresponding":false,"raw_author_name":"Lisa Guntram","raw_affiliation_strings":["Department of Thematic Studies\u2014Technology and Social Change Link\u00f6ping University  Link\u00f6ping Sweden"],"raw_orcid":"https://orcid.org/0000-0001-8344-0308","affiliations":[{"raw_affiliation_string":"Department of Thematic Studies\u2014Technology and Social Change Link\u00f6ping University  Link\u00f6ping Sweden","institution_ids":["https://openalex.org/I102134673"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5019273043","display_name":"Ann\u2010Charlotte Nedlund","orcid":"https://orcid.org/0000-0003-0204-4536","observed_orcids":["https://orcid.org/0000-0003-0204-4536"]},"institutions":[{"id":"https://openalex.org/I102134673","display_name":"Link\u00f6ping University","ror":"https://ror.org/05ynxx418","country_code":"SE","type":"education","lineage":["https://openalex.org/I102134673"]}],"countries":["SE"],"is_corresponding":false,"raw_author_name":"Ann\u2010Charlotte Nedlund","raw_affiliation_strings":["Department of Health, Medicine and Caring Sciences Link\u00f6ping University  Link\u00f6ping Sweden"],"raw_orcid":"https://orcid.org/0000-0003-0204-4536","affiliations":[{"raw_affiliation_string":"Department of Health, Medicine and Caring Sciences Link\u00f6ping University  Link\u00f6ping Sweden","institution_ids":["https://openalex.org/I102134673"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":1,"corresponding_author_ids":["https://openalex.org/A5035098521"],"corresponding_institution_ids":["https://openalex.org/I102134673"],"apc_list":{"value":4330,"currency":"USD","value_usd":4330},"apc_paid":{"value":4330,"currency":"USD","value_usd":4330},"fwci":0.0,"has_fulltext":true,"cited_by_count":0,"citation_normalized_percentile":{"value":0.0,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":null,"biblio":{"volume":"48","issue":"3","first_page":"e70167","last_page":"e70167"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10827","display_name":"Patient-Provider Communication in Healthcare","score":0.4603999853134155,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10827","display_name":"Patient-Provider Communication in Healthcare","score":0.4603999853134155,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11722","display_name":"Patient Satisfaction in Healthcare","score":0.2964000105857849,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13099","display_name":"Health, Medicine and Society","score":0.0414000004529953,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/dirty-work","display_name":"dirty work","score":0.7720000147819519},{"id":"https://openalex.org/keywords/patient-complaints","display_name":"patient complaints","score":0.527999997138977},{"id":"https://openalex.org/keywords/chronic-disease","display_name":"chronic disease","score":0.8270000219345093},{"id":"https://openalex.org/keywords/patient-physician-encounters","display_name":"patient-physician encounters","score":0.5130000114440918},{"id":"https://openalex.org/keywords/indignity","display_name":"indignity","score":0.5249999761581421},{"id":"https://openalex.org/keywords/care-pathways","display_name":"care pathways","score":0.48500001430511475}],"concepts":[{"id":"https://openalex.org/C2780838233","wikidata":"https://www.wikidata.org/wiki/Q836925","display_name":"Complaint","level":2,"score":0.8841000199317932},{"id":"https://openalex.org/C2778061430","wikidata":"https://www.wikidata.org/wiki/Q188823","display_name":"Scholarship","level":2,"score":0.5838000178337097},{"id":"https://openalex.org/C18762648","wikidata":"https://www.wikidata.org/wiki/Q42213","display_name":"Work (physics)","level":2,"score":0.5795000195503235},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.5394999980926514},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.5320000052452087},{"id":"https://openalex.org/C39549134","wikidata":"https://www.wikidata.org/wiki/Q133080","display_name":"Public relations","level":1,"score":0.4957999885082245},{"id":"https://openalex.org/C2778582501","wikidata":"https://www.wikidata.org/wiki/Q555882","display_name":"Dirt","level":2,"score":0.4603999853134155},{"id":"https://openalex.org/C56995899","wikidata":"https://www.wikidata.org/wiki/Q1126687","display_name":"Focus group","level":2,"score":0.4025999903678894},{"id":"https://openalex.org/C102003337","wikidata":"https://www.wikidata.org/wiki/Q5038877","display_name":"Care work","level":3,"score":0.40139999985694885},{"id":"https://openalex.org/C9719361","wikidata":"https://www.wikidata.org/wiki/Q7928967","display_name":"Vignette","level":2,"score":0.38580000400543213},{"id":"https://openalex.org/C2780791683","wikidata":"https://www.wikidata.org/wiki/Q846785","display_name":"Action (physics)","level":2,"score":0.3625999987125397},{"id":"https://openalex.org/C192209626","wikidata":"https://www.wikidata.org/wiki/Q190909","display_name":"Focus (optics)","level":2,"score":0.3610000014305115},{"id":"https://openalex.org/C2781466463","wikidata":"https://www.wikidata.org/wiki/Q621695","display_name":"Blame","level":2,"score":0.3416999876499176},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.3310000002384186},{"id":"https://openalex.org/C194943564","wikidata":"https://www.wikidata.org/wiki/Q1129049","display_name":"Participant observation","level":2,"score":0.33000001311302185},{"id":"https://openalex.org/C77805123","wikidata":"https://www.wikidata.org/wiki/Q161272","display_name":"Social psychology","level":1,"score":0.3084000051021576},{"id":"https://openalex.org/C190248442","wikidata":"https://www.wikidata.org/wiki/Q839486","display_name":"Qualitative research","level":2,"score":0.29820001125335693},{"id":"https://openalex.org/C148609458","wikidata":"https://www.wikidata.org/wiki/Q7021281","display_name":"Nexus (standard)","level":2,"score":0.2969000041484833},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.2840999960899353},{"id":"https://openalex.org/C2776007630","wikidata":"https://www.wikidata.org/wiki/Q2798912","display_name":"Accountability","level":2,"score":0.2797999978065491},{"id":"https://openalex.org/C2781460075","wikidata":"https://www.wikidata.org/wiki/Q1399332","display_name":"Compliance (psychology)","level":2,"score":0.27900001406669617},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.2581999897956848},{"id":"https://openalex.org/C31957729","wikidata":"https://www.wikidata.org/wiki/Q5282877","display_name":"Distancing","level":5,"score":0.2500999867916107}],"mesh":[{"descriptor_ui":"D000328","descriptor_name":"Adult","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D000368","descriptor_name":"Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D002908","descriptor_name":"Chronic Disease","qualifier_ui":"Q000523","qualifier_name":"psychology","is_major_topic":false},{"descriptor_ui":"D005260","descriptor_name":"Female","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D007407","descriptor_name":"Interviews as Topic","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008297","descriptor_name":"Male","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D008875","descriptor_name":"Middle Aged","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D011369","descriptor_name":"Professional-Patient Relations","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D013548","descriptor_name":"Sweden","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D017060","descriptor_name":"Patient Satisfaction","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D036301","descriptor_name":"Qualitative Research","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false}],"locations_count":3,"locations":[{"id":"doi:10.1111/1467-9566.70167","doi":"https://doi.org/10.1111/1467-9566.70167","is_oa":true,"landing_page_url":"https://doi.org/10.1111/1467-9566.70167","pdf_url":null,"source":{"id":"https://openalex.org/S123166236","display_name":"Sociology of Health & Illness","issn_l":"0141-9889","issn":["0141-9889","1467-9566"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-class-a","anvur-scientific","cwts-core","dongbi-b","doyens","jufo-3","ki-jl-1","medline","norway-2","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320595","host_organization_name":"Wiley","host_organization_lineage":["https://openalex.org/P4310320595"],"host_organization_lineage_names":["Wiley"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Sociology of Health & Illness","raw_type":"journal-article"},{"id":"pmh:oai:pubmedcentral.nih.gov:12967771","doi":null,"is_oa":true,"landing_page_url":"https://pmc.ncbi.nlm.nih.gov/articles/PMC12967771/","pdf_url":"https://pmc.ncbi.nlm.nih.gov/articles/PMC12967771/pdf/SHIL-48-0.pdf","source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Sociol Health Illn","raw_type":"Text"},{"id":"pmid:41795821","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/41795821","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Sociology of health & illness","raw_type":"Journal Article"}],"best_oa_location":{"id":"doi:10.1111/1467-9566.70167","doi":"https://doi.org/10.1111/1467-9566.70167","is_oa":true,"landing_page_url":"https://doi.org/10.1111/1467-9566.70167","pdf_url":null,"source":{"id":"https://openalex.org/S123166236","display_name":"Sociology of Health & Illness","issn_l":"0141-9889","issn":["0141-9889","1467-9566"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-class-a","anvur-scientific","cwts-core","dongbi-b","doyens","jufo-3","ki-jl-1","medline","norway-2","poland-100","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310320595","host_organization_name":"Wiley","host_organization_lineage":["https://openalex.org/P4310320595"],"host_organization_lineage_names":["Wiley"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Sociology of Health & Illness","raw_type":"journal-article"},"sustainable_development_goals":[],"study_designs":[],"awards":[{"id":"https://openalex.org/G7768842408","display_name":"\u201cWhat are you complaining about?\u201d \u2013 Patients\u2019 critique in care encounters and its potential to improve quality of care","funder_award_id":"2020-01594","funder_id":"https://openalex.org/F4320322581","funder_display_name":"Vetenskapsr\u00e5det"}],"funders":[{"id":"https://openalex.org/F4320322581","display_name":"Vetenskapsr\u00e5det","ror":"https://ror.org/03zttf063"}],"has_content":{"pdf":true,"grobid_xml":true},"content_urls":{"pdf":"https://content.openalex.org/works/W7134169986.pdf","grobid_xml":"https://content.openalex.org/works/W7134169986.grobid-xml"},"referenced_works_count":37,"referenced_works":["https://openalex.org/W882957394","https://openalex.org/W1979290264","https://openalex.org/W1996713490","https://openalex.org/W2010140255","https://openalex.org/W2011136750","https://openalex.org/W2014991480","https://openalex.org/W2022559253","https://openalex.org/W2031240902","https://openalex.org/W2035253106","https://openalex.org/W2044115095","https://openalex.org/W2068057917","https://openalex.org/W2118330673","https://openalex.org/W2124854249","https://openalex.org/W2144395594","https://openalex.org/W2171927296","https://openalex.org/W2343074621","https://openalex.org/W2408877899","https://openalex.org/W2496199663","https://openalex.org/W2748022110","https://openalex.org/W2761218563","https://openalex.org/W2782481508","https://openalex.org/W2799467100","https://openalex.org/W3014053655","https://openalex.org/W3160281862","https://openalex.org/W3212917181","https://openalex.org/W4244383376","https://openalex.org/W4292461706","https://openalex.org/W4296182667","https://openalex.org/W4311622244","https://openalex.org/W4318567042","https://openalex.org/W4319985462","https://openalex.org/W4386578783","https://openalex.org/W4393004625","https://openalex.org/W4394687300","https://openalex.org/W4400951717","https://openalex.org/W4407551324","https://openalex.org/W4409563515"],"related_works":["https://openalex.org/W4409563515","https://openalex.org/W2119168387","https://openalex.org/W2884663406","https://openalex.org/W2748022110","https://openalex.org/W2124854249","https://openalex.org/W2086965284","https://openalex.org/W2094125872","https://openalex.org/W4416006362","https://openalex.org/W2068057917","https://openalex.org/W2906952892"],"abstract_inverted_index":{"Every":[0],"day":[1],"patients":[2,34],"make":[3,112],"informal":[4,25,70,130],"complaints":[5,26,45],"directly":[6],"to":[7,68,96,111,170,185],"care":[8,13,61],"professionals.":[9],"Although":[10],"common":[11],"in":[12,35,179],"encounters,":[14],"the":[15,103,144,154],"practice":[16],"remains":[17],"understudied.":[18],"In":[19],"this":[20,72,159],"study,":[21],"we":[22],"focus":[23],"on":[24,163],"through":[27,66],"an":[28],"analysis":[29,127],"of":[30,91,136,198],"interviews":[31],"with":[32,39,56,98,102],"19":[33],"Sweden,":[36],"many":[37],"living":[38],"chronic":[40],"illness.":[41],"We":[42,86],"conceptualise":[43],"these":[44],"as":[46],"'informal":[47],"complaint":[48,145],"biographies':":[49],"not":[50],"merely":[51],"verbal":[52],"expressions,":[53],"but":[54],"interwoven":[55],"people's":[57],"lives,":[58],"identities":[59],"and":[60,181,188],"trajectories.":[62],"As":[63],"a":[64,81,123],"lens":[65],"which":[67,190],"examine":[69],"complaining,":[71],"study":[73,160,167],"investigates":[74],"'dirty":[75],"work':":[76],"work":[77,97,118,138,149,173],"that":[78,119,139],"is":[79,174,191],"considered":[80],"nuisance":[82],"or":[83],"even":[84],"humiliating.":[85],"identify":[87],"three":[88],"different":[89],"kinds":[90],"dirty":[92,164,172],"work.":[93,165],"'Disgusting'":[94],"refers":[95],"physical":[99],"dirt":[100],"entangled":[101],"complaint.":[104],"'Drudging'":[105],"describes":[106],"patients'":[107],"persistence,":[108],"their":[109],"effort":[110],"healthcare":[113,180],"function.":[114],"Finally,":[115],"'disrupting'":[116],"characterises":[117],"challenges":[120],"expertise":[121],"from":[122,143,195],"vulnerable":[124],"position.":[125],"Our":[126],"shows":[128],"how":[129,171],"complaining":[131],"can":[132],"involve":[133],"various":[134],"types":[135],"undignifying":[137],"cannot":[140],"be":[141],"separated":[142],"itself.":[146],"By":[147],"including":[148],"done":[150],"by":[151,176],"others":[152],"than":[153],"traditional":[155],"'worker',":[156],"namely":[157],"patients,":[158],"expands":[161],"scholarship":[162],"The":[166],"calls":[168],"attention":[169],"shaped":[175],"systemic":[177],"inefficiencies":[178],"contributes":[182],"new":[183],"perspectives":[184],"complaints,":[186],"research":[187],"policy,":[189],"often":[192],"wiped":[193],"clean":[194],"any":[196],"kind":[197],"dirt.":[199]},"counts_by_year":[],"updated_date":"2026-11-10T11:39:43.021295","created_date":"2026-03-09T00:00:00"}