{"id":"https://openalex.org/W7125798693","doi":"https://doi.org/10.5281/zenodo.18385997","title":"Navigating Adolescence: Lived Experiences and Psychological Support Needs of Individuals with Special Needs","display_name":"Navigating Adolescence: Lived Experiences and Psychological Support Needs of Individuals with Special Needs","publication_year":2025,"publication_date":"2025-01-01","ids":{"openalex":"https://openalex.org/W7125798693","doi":"https://doi.org/10.5281/zenodo.18385997"},"language":"en","primary_location":{"id":"doi:10.5281/zenodo.18385997","doi":"https://doi.org/10.5281/zenodo.18385997","is_oa":true,"landing_page_url":"https://doi.org/10.5281/zenodo.18385997","pdf_url":null,"source":{"id":"https://openalex.org/S4306400562","display_name":"Zenodo (CERN European Organization for Nuclear Research)","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I67311998","host_organization_name":"European Organization for Nuclear Research","host_organization_lineage":["https://openalex.org/I67311998"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":null,"is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"JournalArticle"},"parent_works":[],"lineage":["https://openalex.org/W7125798693"],"child_works_count":0,"type":"article","is_traditional":true,"indexed_in":["datacite"],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"https://doi.org/10.5281/zenodo.18385997","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5124040025","display_name":"Halil Uysal","orcid":"https://orcid.org/0000-0001-5900-9497","observed_orcids":["https://orcid.org/0000-0001-5900-9497"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Halil Uysal","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5076083734","display_name":"R\u0131fat \u0130\u00e7y\u00fcz","orcid":"https://orcid.org/0000-0003-1279-3936","observed_orcids":["https://orcid.org/0000-0003-1279-3936"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"R\u0131fat \u0130\u00e7y\u00fcz","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"middle","author":{"id":"https://openalex.org/A5077727248","display_name":"Z\u00fchal G\u0130Z\u0130R","orcid":"https://orcid.org/0000-0002-8014-8392","observed_orcids":["https://orcid.org/0000-0002-8014-8392"]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Zuhal Gizir","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]},{"author_position":"last","author":{"id":"https://openalex.org/A5124004823","display_name":"Ahmet Serhat U\u00e7ar","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":false,"raw_author_name":"Ahmet Serhat U\u00e7ar","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]}],"institutions":[],"countries_distinct_count":0,"institutions_distinct_count":0,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":0.0,"has_fulltext":false,"cited_by_count":0,"citation_normalized_percentile":{"value":0.0,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":null,"biblio":{"volume":null,"issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11632","display_name":"Family and Disability Support Research","score":0.9970999956130981,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T11632","display_name":"Family and Disability Support Research","score":0.9970999956130981,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T12823","display_name":"Adolescent and Pediatric Healthcare","score":0.00039999998989515007,"subfield":{"id":"https://openalex.org/subfields/2735","display_name":"Pediatrics, Perinatology and Child Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11514","display_name":"Disability Education and Employment","score":0.0003000000142492354,"subfield":{"id":"https://openalex.org/subfields/3304","display_name":"Education"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/adolescents-with-special-needs","display_name":"adolescents with special needs","score":0.8650000095367432},{"id":"https://openalex.org/keywords/parents-of-children-with-disabilities","display_name":"parents of children with disabilities","score":0.7269999980926514},{"id":"https://openalex.org/keywords/autism-spectrum-disorder","display_name":"autism spectrum disorder","score":0.9380000233650208},{"id":"https://openalex.org/keywords/hearing-loss","display_name":"hearing loss","score":0.8069999814033508},{"id":"https://openalex.org/keywords/intellectual-disability","display_name":"intellectual disability","score":1.0},{"id":"https://openalex.org/keywords/physical-disability","display_name":"physical disability","score":0.9959999918937683},{"id":"https://openalex.org/keywords/parental-support-needs","display_name":"parental support needs","score":0.6449999809265137},{"id":"https://openalex.org/keywords/social-support","display_name":"social support","score":0.6669999957084656},{"id":"https://openalex.org/keywords/developmental-transitions","display_name":"developmental transitions","score":0.527999997138977},{"id":"https://openalex.org/keywords/lived-experience","display_name":"lived experience","score":0.4009999930858612}],"concepts":[{"id":"https://openalex.org/C74196892","wikidata":"https://www.wikidata.org/wiki/Q7781188","display_name":"Thematic analysis","level":3,"score":0.7261000275611877},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.6894999742507935},{"id":"https://openalex.org/C2776206778","wikidata":"https://www.wikidata.org/wiki/Q7761689","display_name":"Special needs","level":2,"score":0.6439999938011169},{"id":"https://openalex.org/C138496976","wikidata":"https://www.wikidata.org/wiki/Q175002","display_name":"Developmental psychology","level":1,"score":0.5651999711990356},{"id":"https://openalex.org/C2778087770","wikidata":"https://www.wikidata.org/wiki/Q2297111","display_name":"Social support","level":2,"score":0.5435000061988831},{"id":"https://openalex.org/C190248442","wikidata":"https://www.wikidata.org/wiki/Q839486","display_name":"Qualitative research","level":2,"score":0.48829999566078186},{"id":"https://openalex.org/C2778538070","wikidata":"https://www.wikidata.org/wiki/Q1436063","display_name":"Autism spectrum disorder","level":3,"score":0.4399000108242035},{"id":"https://openalex.org/C205778803","wikidata":"https://www.wikidata.org/wiki/Q38404","display_name":"Autism","level":2,"score":0.43799999356269836},{"id":"https://openalex.org/C113470044","wikidata":"https://www.wikidata.org/wiki/Q6056506","display_name":"Interpretative phenomenological analysis","level":3,"score":0.41019999980926514},{"id":"https://openalex.org/C78999398","wikidata":"https://www.wikidata.org/wiki/Q2899888","display_name":"Information needs","level":2,"score":0.3921000063419342},{"id":"https://openalex.org/C3019221131","wikidata":"https://www.wikidata.org/wiki/Q55621107","display_name":"Lived experience","level":2,"score":0.376800000667572},{"id":"https://openalex.org/C22467394","wikidata":"https://www.wikidata.org/wiki/Q849359","display_name":"Multidisciplinary approach","level":2,"score":0.37560001015663147},{"id":"https://openalex.org/C28718268","wikidata":"https://www.wikidata.org/wiki/Q4118620","display_name":"Needs assessment","level":2,"score":0.3626999855041504},{"id":"https://openalex.org/C28858896","wikidata":"https://www.wikidata.org/wiki/Q212105","display_name":"Special education","level":2,"score":0.3481999933719635},{"id":"https://openalex.org/C154482161","wikidata":"https://www.wikidata.org/wiki/Q2251268","display_name":"Mainstreaming","level":3,"score":0.33149999380111694},{"id":"https://openalex.org/C2985829316","wikidata":"https://www.wikidata.org/wiki/Q26084","display_name":"Access to information","level":3,"score":0.3206999897956848},{"id":"https://openalex.org/C109359841","wikidata":"https://www.wikidata.org/wiki/Q728944","display_name":"Inclusion (mineral)","level":2,"score":0.3197999894618988},{"id":"https://openalex.org/C75630572","wikidata":"https://www.wikidata.org/wiki/Q538904","display_name":"Applied psychology","level":1,"score":0.31779998540878296},{"id":"https://openalex.org/C80245801","wikidata":"https://www.wikidata.org/wiki/Q1477475","display_name":"Semi-structured interview","level":3,"score":0.31310001015663147},{"id":"https://openalex.org/C551499885","wikidata":"https://www.wikidata.org/wiki/Q183560","display_name":"Intellectual disability","level":2,"score":0.31029999256134033},{"id":"https://openalex.org/C2991770496","wikidata":"https://www.wikidata.org/wiki/Q179515","display_name":"Social needs","level":3,"score":0.3098999857902527},{"id":"https://openalex.org/C2778121785","wikidata":"https://www.wikidata.org/wiki/Q781083","display_name":"Augmentative and alternative communication","level":2,"score":0.30250000953674316},{"id":"https://openalex.org/C2781390853","wikidata":"https://www.wikidata.org/wiki/Q4354389","display_name":"Challenging behaviour","level":3,"score":0.2906999886035919},{"id":"https://openalex.org/C509550671","wikidata":"https://www.wikidata.org/wiki/Q126945","display_name":"Medical education","level":1,"score":0.2791999876499176},{"id":"https://openalex.org/C70410870","wikidata":"https://www.wikidata.org/wiki/Q199906","display_name":"Clinical psychology","level":1,"score":0.27900001406669617},{"id":"https://openalex.org/C77805123","wikidata":"https://www.wikidata.org/wiki/Q161272","display_name":"Social psychology","level":1,"score":0.2718000113964081},{"id":"https://openalex.org/C2988635931","wikidata":"https://www.wikidata.org/wiki/Q7761689","display_name":"Special educational needs","level":3,"score":0.26030001044273376},{"id":"https://openalex.org/C2779534595","wikidata":"https://www.wikidata.org/wiki/Q1640064","display_name":"Social model of disability","level":2,"score":0.25760000944137573}],"mesh":[],"locations_count":4,"locations":[{"id":"doi:10.5281/zenodo.18385997","doi":"https://doi.org/10.5281/zenodo.18385997","is_oa":true,"landing_page_url":"https://doi.org/10.5281/zenodo.18385997","pdf_url":null,"source":{"id":"https://openalex.org/S4306400562","display_name":"Zenodo (CERN European Organization for Nuclear Research)","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I67311998","host_organization_name":"European Organization for Nuclear Research","host_organization_lineage":["https://openalex.org/I67311998"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":null,"is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"JournalArticle"},{"id":"doi:10.5281/zenodo.18385998","doi":"https://doi.org/10.5281/zenodo.18385998","is_oa":true,"landing_page_url":"https://doi.org/10.5281/zenodo.18385998","pdf_url":null,"source":{"id":"https://openalex.org/S4306400562","display_name":"Zenodo (CERN European Organization for Nuclear Research)","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I67311998","host_organization_name":"European Organization for Nuclear Research","host_organization_lineage":["https://openalex.org/I67311998"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":null,"is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"JournalArticle"},{"id":"doi:10.5281/zenodo.18417379","doi":"https://doi.org/10.5281/zenodo.18417379","is_oa":true,"landing_page_url":"https://doi.org/10.5281/zenodo.18417379","pdf_url":null,"source":{"id":"https://openalex.org/S4306400562","display_name":"Zenodo (CERN European Organization for Nuclear Research)","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I67311998","host_organization_name":"European Organization for Nuclear Research","host_organization_lineage":["https://openalex.org/I67311998"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":null,"is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"JournalArticle"},{"id":"doi:10.5281/zenodo.18417453","doi":"https://doi.org/10.5281/zenodo.18417453","is_oa":true,"landing_page_url":"https://doi.org/10.5281/zenodo.18417453","pdf_url":null,"source":{"id":"https://openalex.org/S4306400562","display_name":"Zenodo (CERN European Organization for Nuclear Research)","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I67311998","host_organization_name":"European Organization for Nuclear Research","host_organization_lineage":["https://openalex.org/I67311998"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":null,"is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"JournalArticle"}],"best_oa_location":{"id":"doi:10.5281/zenodo.18385997","doi":"https://doi.org/10.5281/zenodo.18385997","is_oa":true,"landing_page_url":"https://doi.org/10.5281/zenodo.18385997","pdf_url":null,"source":{"id":"https://openalex.org/S4306400562","display_name":"Zenodo (CERN European Organization for Nuclear Research)","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I67311998","host_organization_name":"European Organization for Nuclear Research","host_organization_lineage":["https://openalex.org/I67311998"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":null,"is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"JournalArticle"},"sustainable_development_goals":[{"score":0.5676000118255615,"display_name":"Reduced inequalities","id":"https://metadata.un.org/sdg/10"},{"score":0.504800021648407,"display_name":"Good health and well-being","id":"https://metadata.un.org/sdg/3"}],"study_designs":[],"awards":[],"funders":[],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":0,"referenced_works":[],"related_works":["https://openalex.org/W4403998036","https://openalex.org/W1999065591","https://openalex.org/W2324902759","https://openalex.org/W4280531626","https://openalex.org/W2214043501","https://openalex.org/W2106650784","https://openalex.org/W4313489283","https://openalex.org/W7162846016","https://openalex.org/W2168384195","https://openalex.org/W2518977293"],"abstract_inverted_index":{"This":[0],"study":[1],"aims":[2],"to":[3,117,161,189],"explore":[4],"the":[5,79,85,123,152],"experiences":[6],"and":[7,36,59,96,99,114,136,164,185,193,216],"support":[8,100,167,196],"needs":[9,16,109,212],"of":[10,31,39,81,157],"parents":[11,33],"raising":[12],"adolescents":[13,106,209],"with":[14,42,107,210],"special":[15,108,211],"during":[17],"adolescence.":[18],"The":[19,28,102,177],"research":[20],"was":[21],"designed":[22],"within":[23],"a":[24,62,202,214],"phenomenological":[25],"qualitative":[26],"framework.":[27],"participants":[29],"consisted":[30],"12":[32],"eight":[34],"mothers":[35],"four":[37],"fathers":[38],"children":[40],"diagnosed":[41],"autism":[43],"spectrum":[44],"disorder,":[45],"hearing":[46],"impairment,":[47],"intellectual":[48],"disability,":[49],"or":[50,150],"physical":[51],"disability.":[52,154],"Data":[53],"were":[54,69],"collected":[55],"through":[56],"semistructured":[57],"interviews":[58],"analyzed":[60],"using":[61],"thematic":[63],"analysis":[64],"approach.":[65],"Five":[66],"main":[67],"themes":[68],"identified:":[70],"(1)":[71],"parents\u2019":[72,180],"perspectives":[73],"on":[74,84,131],"their":[75,118],"children\u2019s":[76],"adolescence,":[77],"(2)":[78],"impact":[80],"disability":[82,132],"type":[83],"adolescent":[86],"experience,":[87],"(3)":[88],"parental":[89,94,199],"reactions,":[90],"(4)":[91],"transformations":[92],"in":[93,142,172,206],"roles,":[95],"(5)":[97],"information":[98,184],"needs.":[101],"findings":[103],"indicate":[104],"that":[105,208],"undergo":[110],"similar":[111],"physical,":[112],"emotional,":[113],"behavioral":[115],"changes":[116,126],"typically":[119],"developing":[120],"peers;":[121],"however,":[122],"ways":[124],"these":[125],"are":[127],"expressed":[128],"vary":[129],"depending":[130],"type,":[133],"communication":[134],"skills,":[135],"social":[137,166,195],"context.":[138],"Parents":[139],"reported":[140],"difficulties":[141],"distinguishing":[143],"whether":[144],"certain":[145],"behaviors":[146],"stemmed":[147],"from":[148,151],"adolescence":[149],"child\u2019s":[153],"Additionally,":[155],"lack":[156],"information,":[158],"limited":[159],"access":[160,188],"professional":[162,191],"support,":[163],"insufficient":[165],"emerged":[168],"as":[169],"significant":[170],"challenges":[171],"managing":[173],"this":[174],"developmental":[175,218],"period.":[176],"results":[178],"highlight":[179],"need":[181],"for":[182],"systematic":[183],"training":[186],"programs,":[187],"multidisciplinary":[190],"guidance,":[192],"robust":[194],"networks.":[197],"Strengthening":[198],"guidance":[200],"plays":[201],"critical":[203],"protective":[204],"role":[205],"ensuring":[207],"experience":[213],"safe":[215],"healthy":[217],"transition.":[219]},"counts_by_year":[],"updated_date":"2026-10-28T10:33:24.094632","created_date":"2026-01-28T00:00:00"}