{"id":"https://openalex.org/W7118069865","doi":"https://doi.org/10.1093/geroni/igaf122.3568","title":"DId I Do the Right Thing? Moral and Ethical Dilemmas in Oncology Family Caregiving","display_name":"DId I Do the Right Thing? Moral and Ethical Dilemmas in Oncology Family Caregiving","publication_year":2025,"publication_date":"2025-12-01","ids":{"openalex":"https://openalex.org/W7118069865","doi":"https://doi.org/10.1093/geroni/igaf122.3568"},"language":"en","primary_location":{"id":"doi:10.1093/geroni/igaf122.3568","doi":"https://doi.org/10.1093/geroni/igaf122.3568","is_oa":true,"landing_page_url":"https://doi.org/10.1093/geroni/igaf122.3568","pdf_url":"https://academic.oup.com/innovateage/article-pdf/9/Supplement_2/igaf122.3568/66249262/igaf122.3568.pdf","source":{"id":"https://openalex.org/S2735557189","display_name":"Innovation in Aging","issn_l":"2399-5300","issn":["2399-5300"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","dongbi-c","jufo-1","ki-jl-1","norway-1","poland-20","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310311647","host_organization_name":"University of Oxford","host_organization_lineage":["https://openalex.org/P4310311647"],"host_organization_lineage_names":["University of Oxford"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Innovation in Aging","raw_type":"journal-article"},"volume":null,"type":"article","indexed_in":["crossref","doaj"],"open_access":{"is_oa":true,"oa_status":"gold","oa_url":"https://academic.oup.com/innovateage/article-pdf/9/Supplement_2/igaf122.3568/66249262/igaf122.3568.pdf","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5062967998","display_name":"Jacquelyn J. Benson","orcid":"https://orcid.org/0000-0001-8428-508X","observed_orcids":["https://orcid.org/0000-0001-8428-508X"]},"institutions":[{"id":"https://openalex.org/I204465549","display_name":"Washington University in St. Louis","ror":"https://ror.org/01yc7t268","country_code":"US","type":"education","lineage":["https://openalex.org/I204465549"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Jacquelyn Benson","raw_affiliation_strings":["Washington University in St. Louis, St. Louis, Missouri ,"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Washington University in St. Louis, St. Louis, Missouri ,","institution_ids":["https://openalex.org/I204465549"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5020290385","display_name":"Christi Lero","orcid":"https://orcid.org/0009-0005-9086-1131","observed_orcids":["https://orcid.org/0009-0005-9086-1131"]},"institutions":[{"id":"https://openalex.org/I204465549","display_name":"Washington University in St. Louis","ror":"https://ror.org/01yc7t268","country_code":"US","type":"education","lineage":["https://openalex.org/I204465549"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Christi Lero","raw_affiliation_strings":["Washington University in St. Louis, St. Louis, Missouri ,"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Washington University in St. Louis, St. Louis, Missouri ,","institution_ids":["https://openalex.org/I204465549"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5116692243","display_name":"Junlachak Peter Siriprakorn","orcid":"https://orcid.org/0009-0007-6909-0664","observed_orcids":["https://orcid.org/0009-0007-6909-0664"]},"institutions":[{"id":"https://openalex.org/I204465549","display_name":"Washington University in St. Louis","ror":"https://ror.org/01yc7t268","country_code":"US","type":"education","lineage":["https://openalex.org/I204465549"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"J Peter Siriprakorn","raw_affiliation_strings":["Washington University in St. Louis, Saint Louis, Missouri ,"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Washington University in St. Louis, Saint Louis, Missouri ,","institution_ids":["https://openalex.org/I204465549"]}]},{"author_position":"middle","author":{"id":"https://openalex.org/A5121844287","display_name":"Anaika Bedi","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I204465549","display_name":"Washington University in St. Louis","ror":"https://ror.org/01yc7t268","country_code":"US","type":"education","lineage":["https://openalex.org/I204465549"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Anaika Bedi","raw_affiliation_strings":["Washington University in St. Louis, St. Louis, Missouri ,"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Washington University in St. Louis, St. Louis, Missouri ,","institution_ids":["https://openalex.org/I204465549"]}]},{"author_position":"last","author":{"id":"https://openalex.org/A5121853026","display_name":"Nashua Haque","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I184565670","display_name":"Georgetown University","ror":"https://ror.org/05vzafd60","country_code":"US","type":"education","lineage":["https://openalex.org/I184565670"]}],"countries":["US"],"is_corresponding":false,"raw_author_name":"Nashua Haque","raw_affiliation_strings":["Georgetown University School of Medicine, Washington D.C., District of Columbia ,"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Georgetown University School of Medicine, Washington D.C., District of Columbia ,","institution_ids":["https://openalex.org/I184565670"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":2,"corresponding_author_ids":[],"corresponding_institution_ids":[],"apc_list":{"value":3977,"currency":"USD","value_usd":3977},"apc_paid":{"value":3977,"currency":"USD","value_usd":3977},"fwci":0.0,"has_fulltext":false,"cited_by_count":0,"citation_normalized_percentile":{"value":0.55940594,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":null,"biblio":{"volume":"9","issue":"Supplement_2","first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11537","display_name":"Ethics in medical practice","score":0.875,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T11537","display_name":"Ethics in medical practice","score":0.875,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.058800000697374344,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T13340","display_name":"Palliative and Oncologic Care","score":0.024299999698996544,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/family-caregivers","display_name":"family caregivers","score":0.8669999837875366},{"id":"https://openalex.org/keywords/cancer-caregiving","display_name":"cancer caregiving","score":0.9300000071525574},{"id":"https://openalex.org/keywords/ethical-dilemmas","display_name":"ethical dilemmas","score":0.9940000176429749},{"id":"https://openalex.org/keywords/end-of-life-care","display_name":"end-of-life care","score":0.8489999771118164},{"id":"https://openalex.org/keywords/best-interests","display_name":"best interests","score":0.5770000219345093},{"id":"https://openalex.org/keywords/caregiver-identity","display_name":"caregiver identity","score":0.7170000076293945},{"id":"https://openalex.org/keywords/advance-care-planning","display_name":"advance care planning","score":0.8100000023841858},{"id":"https://openalex.org/keywords/crisis-management-planning","display_name":"crisis planning","score":0.765999972820282}],"concepts":[{"id":"https://openalex.org/C2994541713","wikidata":"https://www.wikidata.org/wiki/Q192568","display_name":"Moral dilemma","level":2,"score":0.7336000204086304},{"id":"https://openalex.org/C13200473","wikidata":"https://www.wikidata.org/wiki/Q2747831","display_name":"Reflexivity","level":2,"score":0.6728000044822693},{"id":"https://openalex.org/C74196892","wikidata":"https://www.wikidata.org/wiki/Q7781188","display_name":"Thematic analysis","level":3,"score":0.6628999710083008},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.657800018787384},{"id":"https://openalex.org/C75795011","wikidata":"https://www.wikidata.org/wiki/Q917904","display_name":"Typology","level":2,"score":0.6373000144958496},{"id":"https://openalex.org/C65414064","wikidata":"https://www.wikidata.org/wiki/Q484105","display_name":"Autonomy","level":2,"score":0.5914999842643738},{"id":"https://openalex.org/C77805123","wikidata":"https://www.wikidata.org/wiki/Q161272","display_name":"Social psychology","level":1,"score":0.5073000192642212},{"id":"https://openalex.org/C2777293324","wikidata":"https://www.wikidata.org/wiki/Q337349","display_name":"Honesty","level":2,"score":0.4239000082015991},{"id":"https://openalex.org/C199033989","wikidata":"https://www.wikidata.org/wiki/Q1318295","display_name":"Narrative","level":2,"score":0.38440001010894775},{"id":"https://openalex.org/C2777950569","wikidata":"https://www.wikidata.org/wiki/Q17021836","display_name":"Stewardship (theology)","level":3,"score":0.37880000472068787},{"id":"https://openalex.org/C2779304628","wikidata":"https://www.wikidata.org/wiki/Q3503480","display_name":"Face (sociological concept)","level":2,"score":0.3573000133037567},{"id":"https://openalex.org/C2776291640","wikidata":"https://www.wikidata.org/wiki/Q2912517","display_name":"Value (mathematics)","level":2,"score":0.35659998655319214},{"id":"https://openalex.org/C190248442","wikidata":"https://www.wikidata.org/wiki/Q839486","display_name":"Qualitative research","level":2,"score":0.31139999628067017},{"id":"https://openalex.org/C2780598303","wikidata":"https://www.wikidata.org/wiki/Q65921492","display_name":"Flexibility (engineering)","level":2,"score":0.28439998626708984},{"id":"https://openalex.org/C2775890777","wikidata":"https://www.wikidata.org/wiki/Q192568","display_name":"Ethical dilemma","level":2,"score":0.27469998598098755},{"id":"https://openalex.org/C76247681","wikidata":"https://www.wikidata.org/wiki/Q6909101","display_name":"Moral development","level":2,"score":0.27160000801086426},{"id":"https://openalex.org/C9114305","wikidata":"https://www.wikidata.org/wiki/Q1428317","display_name":"Situational ethics","level":2,"score":0.2703999876976013},{"id":"https://openalex.org/C98184364","wikidata":"https://www.wikidata.org/wiki/Q1780131","display_name":"Argument (complex analysis)","level":2,"score":0.26989999413490295},{"id":"https://openalex.org/C2778355321","wikidata":"https://www.wikidata.org/wiki/Q17079427","display_name":"Identity (music)","level":2,"score":0.26409998536109924},{"id":"https://openalex.org/C2777745021","wikidata":"https://www.wikidata.org/wiki/Q646102","display_name":"Consequentialism","level":2,"score":0.26190000772476196},{"id":"https://openalex.org/C2779807398","wikidata":"https://www.wikidata.org/wiki/Q206790","display_name":"Moral courage","level":2,"score":0.2535000145435333},{"id":"https://openalex.org/C542102704","wikidata":"https://www.wikidata.org/wiki/Q183257","display_name":"Psychotherapist","level":1,"score":0.25119999051094055},{"id":"https://openalex.org/C117893075","wikidata":"https://www.wikidata.org/wiki/Q6966213","display_name":"Narrative inquiry","level":3,"score":0.2500999867916107}],"mesh":[],"locations_count":2,"locations":[{"id":"doi:10.1093/geroni/igaf122.3568","doi":"https://doi.org/10.1093/geroni/igaf122.3568","is_oa":true,"landing_page_url":"https://doi.org/10.1093/geroni/igaf122.3568","pdf_url":"https://academic.oup.com/innovateage/article-pdf/9/Supplement_2/igaf122.3568/66249262/igaf122.3568.pdf","source":{"id":"https://openalex.org/S2735557189","display_name":"Innovation in Aging","issn_l":"2399-5300","issn":["2399-5300"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","dongbi-c","jufo-1","ki-jl-1","norway-1","poland-20","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310311647","host_organization_name":"University of Oxford","host_organization_lineage":["https://openalex.org/P4310311647"],"host_organization_lineage_names":["University of Oxford"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Innovation in Aging","raw_type":"journal-article"},{"id":"pmh:oai:pubmedcentral.nih.gov:12763362","doi":null,"is_oa":true,"landing_page_url":"https://pmc.ncbi.nlm.nih.gov/articles/PMC12763362/","pdf_url":null,"source":{"id":"https://openalex.org/S2764455111","display_name":"PubMed Central","issn_l":null,"issn":null,"is_oa":true,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Innov Aging","raw_type":"Text"}],"best_oa_location":{"id":"doi:10.1093/geroni/igaf122.3568","doi":"https://doi.org/10.1093/geroni/igaf122.3568","is_oa":true,"landing_page_url":"https://doi.org/10.1093/geroni/igaf122.3568","pdf_url":"https://academic.oup.com/innovateage/article-pdf/9/Supplement_2/igaf122.3568/66249262/igaf122.3568.pdf","source":{"id":"https://openalex.org/S2735557189","display_name":"Innovation in Aging","issn_l":"2399-5300","issn":["2399-5300"],"is_oa":true,"is_in_doaj":true,"is_core":true,"listed_in":["cwts-core","doaj","dongbi-c","jufo-1","ki-jl-1","norway-1","poland-20","russia-white-list-1","vabb-shw"],"host_organization":"https://openalex.org/P4310311647","host_organization_name":"University of Oxford","host_organization_lineage":["https://openalex.org/P4310311647"],"host_organization_lineage_names":["University of Oxford"],"type":"journal"},"license":"cc-by","license_id":"https://openalex.org/licenses/cc-by","version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Innovation in Aging","raw_type":"journal-article"},"sustainable_development_goals":[{"score":0.8371999859809875,"display_name":"Good health and well-being","id":"https://metadata.un.org/sdg/3"}],"sustainable_development_goals_aurora":[{"score":0.721535325050354,"display_name":"Peace, justice, and strong institutions","id":"https://metadata.un.org/sdg/16"}],"study_designs":[],"awards":[],"funders":[],"has_content":{"grobid_xml":false,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W7118069865.pdf"},"referenced_works_count":0,"referenced_works":[],"related_works":[],"abstract_inverted_index":{"Abstract":[0],"Family":[1],"caregivers":[2,47,243],"are":[3],"central":[4],"to":[5,16,107,150],"cancer":[6,66],"care,":[7],"yet":[8],"many":[9],"difficulties":[10],"extend":[11],"beyond":[12],"logistics":[13],"of":[14,60,78,83,146,241],"caregiving":[15],"dilemmas":[17,26,45,64,215,245],"marked":[18],"by":[19,101],"moral":[20,61,111,129,201],"uncertainty":[21,171],"and":[22,62,98,168,186,200,236,246],"ethical":[23,63,113,177],"tension.":[24],"Such":[25],"require":[27],"value":[28],"trade-offs":[29],"rather":[30],"than":[31],"straightforward":[32],"problem":[33],"solving.":[34],"U.S.":[35],"research":[36],"richly":[37],"documents":[38],"caregiver":[39,211],"challenges":[40,117],"but":[41,124],"seldom":[42],"characterizes":[43],"moral/ethical":[44,214],"as":[46,110],"themselves":[48],"experience":[49],"them.":[50],"We":[51],"report":[52],"preliminary":[53],"descriptive":[54],"findings":[55,209],"toward":[56],"a":[57,96],"caregiver-informed":[58,221],"typology":[59,222],"in":[65],"caregiving.":[67],"Within":[68],"an":[69],"ongoing":[70],"qualitative":[71],"study,":[72],"we":[73],"conducted":[74],"inductive":[75],"thematic":[76],"analysis":[77,104],"the":[79],"initial":[80],"interviews":[81],"(20%":[82],"total":[84],"sample).":[85],"Two":[86,176],"coders":[87],"independently":[88],"reviewed":[89],"transcripts,":[90],"wrote":[91],"reflexive":[92],"memos,":[93],"iteratively":[94],"refined":[95],"codebook,":[97],"resolved":[99],"differences":[100],"consensus.":[102],"This":[103],"was":[105],"restricted":[106],"segments":[108],"coded":[109],"or":[112,153],"dilemmas;":[114],"purely":[115],"practical":[116],"without":[118],"explicit":[119],"value/principle":[120],"conflict":[121],"were":[122,174,179,198],"noted":[123],"not":[125],"analyzed":[126],"here.":[127],"Four":[128],"themes":[130],"emerged:":[131],"(1)":[132],"truth-hope":[133],"stewardship":[134],"(balancing":[135],"honesty":[136],"with":[137],"preserving":[138],"hope);":[139],"(2)":[140],"rescue":[141],"vs":[142],"acceptance":[143],"near":[144],"end":[145],"life":[147],"(e.g.,":[148,227],"whether":[149],"call":[151],"911":[152],"escalate":[154],"care);":[155],"(3)":[156],"good-caregiver":[157],"identity":[158],"vs.":[159,183],"self-protection":[160],"(managing":[161],"others\u2019":[162],"judgements":[163],"while":[164],"guarding":[165],"emotional":[166],"limits);":[167],"(4)":[169],"goal-concordance":[170],"when":[172],"preferences":[173],"unknown.":[175],"tensions":[178],"prominent:":[180],"surrogate":[181],"autonomy":[182],"best":[184],"interest":[185],"decisional":[187],"capacity/understanding":[188],"at":[189],"treatment":[190],"turning":[191],"points.":[192],"Hybrid":[193],"cases":[194],"(moral":[195],"+":[196],"ethical)":[197],"common,":[199],"residue":[202],"(\u201cwhat":[203],"ifs\u201d)":[204],"frequently":[205],"followed":[206],"decisions.":[207],"Preliminary":[208],"indicate":[210],"routinely":[212],"face":[213],"distinct":[216],"from":[217],"logistical":[218],"barriers.":[219],"A":[220],"can":[223],"guide":[224],"targeted":[225],"supports":[226],"disclosure":[228],"coaching,":[229],"crisis":[230],"planning,":[231],"advance-care-planning":[232],"prompts,":[233],"post-decision":[234],"debriefing)":[235],"sets":[237],"up":[238],"subsequent":[239],"analyses":[240],"how":[242],"navigate":[244],"what":[247],"impedes":[248],"coping.":[249]},"counts_by_year":[],"updated_date":"2026-10-13T10:08:12.033832","created_date":"2026-01-03T00:00:00"}