{"id":"https://openalex.org/W7051762962","doi":null,"title":"Perceptions of Burden Among Informal Caregivers of Older Adults in Assisted Living","display_name":"Perceptions of Burden Among Informal Caregivers of Older Adults in Assisted Living","publication_year":2024,"publication_date":"2024-02-09","ids":{"openalex":"https://openalex.org/W7051762962"},"language":"en","primary_location":{"id":"pmh:oai:scholarworks.waldenu.edu:dissertations-16745","doi":null,"is_oa":true,"landing_page_url":"https://scholarworks.waldenu.edu/dissertations/15475","pdf_url":"https://scholarworks.waldenu.edu/context/dissertations/article/16745/viewcontent/1046790.pdf","source":{"id":"https://openalex.org/S4377196507","display_name":"ScholarWorks (Walden University)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I80046288","host_organization_name":"Walden University","host_organization_lineage":["https://openalex.org/I80046288"],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Walden Dissertations and Doctoral Studies","raw_type":"text"},"volume":null,"type":"dissertation","is_traditional":true,"indexed_in":[],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"https://scholarworks.waldenu.edu/context/dissertations/article/16745/viewcontent/1046790.pdf","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":null,"display_name":"Schlegel, G\u00f6sta H W","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I80046288","display_name":"Walden University","ror":"https://ror.org/02qp2hh41","country_code":"US","type":"education","lineage":["https://openalex.org/I80046288"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"Schlegel, G\u00f6sta H W","raw_affiliation_strings":["Walden University"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Walden University","institution_ids":["https://openalex.org/I80046288"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":1,"corresponding_author_ids":[],"corresponding_institution_ids":["https://openalex.org/I80046288"],"apc_list":null,"apc_paid":null,"fwci":null,"has_fulltext":true,"cited_by_count":0,"citation_normalized_percentile":null,"cited_by_percentile_year":null,"biblio":{"volume":null,"issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":true,"primary_topic":{"id":"https://openalex.org/T13111","display_name":"Nursing care and research","score":0.8515999913215637,"subfield":{"id":"https://openalex.org/subfields/2922","display_name":"Research and Theory"},"field":{"id":"https://openalex.org/fields/29","display_name":"Nursing"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T13111","display_name":"Nursing care and research","score":0.8515999913215637,"subfield":{"id":"https://openalex.org/subfields/2922","display_name":"Research and Theory"},"field":{"id":"https://openalex.org/fields/29","display_name":"Nursing"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11712","display_name":"Intergenerational Family Dynamics and Caregiving","score":0.07339999824762344,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T11376","display_name":"Geriatric Care and Nursing Homes","score":0.054099999368190765,"subfield":{"id":"https://openalex.org/subfields/2717","display_name":"Geriatrics and Gerontology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/caregiver-burden","display_name":"caregiver burden","score":0.9520000219345093},{"id":"https://openalex.org/keywords/informal-caregivers","display_name":"informal caregivers","score":0.9779999852180481},{"id":"https://openalex.org/keywords/assisted-living","display_name":"assisted living","score":0.8370000123977661},{"id":"https://openalex.org/keywords/older-adults","display_name":"older adults","score":0.9909999966621399},{"id":"https://openalex.org/keywords/socio-ecological-model","display_name":"socio-ecological model","score":0.8679999709129333},{"id":"https://openalex.org/keywords/caregiver-well-being","display_name":"caregiver well-being","score":0.5920000076293945},{"id":"https://openalex.org/keywords/public-health-practice","display_name":"public health practice","score":0.6069999933242798},{"id":"https://openalex.org/keywords/multilevel-interventions","display_name":"multilevel interventions","score":0.5699999928474426},{"id":"https://openalex.org/keywords/long-term-care","display_name":"long-term care","score":0.7490000128746033}],"concepts":[{"id":"https://openalex.org/C74196892","wikidata":"https://www.wikidata.org/wiki/Q7781188","display_name":"Thematic analysis","level":3,"score":0.6873999834060669},{"id":"https://openalex.org/C26760741","wikidata":"https://www.wikidata.org/wiki/Q160402","display_name":"Perception","level":2,"score":0.609000027179718},{"id":"https://openalex.org/C27415008","wikidata":"https://www.wikidata.org/wiki/Q7256382","display_name":"Psychological intervention","level":2,"score":0.5922999978065491},{"id":"https://openalex.org/C2779878486","wikidata":"https://www.wikidata.org/wiki/Q25053589","display_name":"Caregiver burden","level":4,"score":0.5778999924659729},{"id":"https://openalex.org/C2776035688","wikidata":"https://www.wikidata.org/wiki/Q1606558","display_name":"Affect (linguistics)","level":2,"score":0.5037000179290771},{"id":"https://openalex.org/C2778900529","wikidata":"https://www.wikidata.org/wiki/Q2827779","display_name":"Family caregivers","level":2,"score":0.4684999883174896},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.46799999475479126},{"id":"https://openalex.org/C190248442","wikidata":"https://www.wikidata.org/wiki/Q839486","display_name":"Qualitative research","level":2,"score":0.45489999651908875},{"id":"https://openalex.org/C98147612","wikidata":"https://www.wikidata.org/wiki/Q215599","display_name":"Promotion (chess)","level":3,"score":0.45410001277923584},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.4489000141620636},{"id":"https://openalex.org/C74909509","wikidata":"https://www.wikidata.org/wiki/Q10387","display_name":"Gerontology","level":1,"score":0.44449999928474426},{"id":"https://openalex.org/C138816342","wikidata":"https://www.wikidata.org/wiki/Q189603","display_name":"Public health","level":2,"score":0.39660000801086426},{"id":"https://openalex.org/C185618831","wikidata":"https://www.wikidata.org/wiki/Q1851928","display_name":"Health promotion","level":3,"score":0.3752000033855438},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.3702000081539154},{"id":"https://openalex.org/C56995899","wikidata":"https://www.wikidata.org/wiki/Q1126687","display_name":"Focus group","level":2,"score":0.3621000051498413},{"id":"https://openalex.org/C134362201","wikidata":"https://www.wikidata.org/wiki/Q317309","display_name":"Mental health","level":2,"score":0.35370001196861267},{"id":"https://openalex.org/C79544238","wikidata":"https://www.wikidata.org/wiki/Q423243","display_name":"Activities of daily living","level":2,"score":0.3433000147342682},{"id":"https://openalex.org/C160735492","wikidata":"https://www.wikidata.org/wiki/Q31207","display_name":"Health care","level":2,"score":0.33219999074935913},{"id":"https://openalex.org/C110131835","wikidata":"https://www.wikidata.org/wiki/Q1153659","display_name":"Self-efficacy","level":2,"score":0.3050999939441681},{"id":"https://openalex.org/C2778087770","wikidata":"https://www.wikidata.org/wiki/Q2297111","display_name":"Social support","level":2,"score":0.29899999499320984},{"id":"https://openalex.org/C2777495918","wikidata":"https://www.wikidata.org/wiki/Q1196129","display_name":"Spouse","level":2,"score":0.28290000557899475},{"id":"https://openalex.org/C87156501","wikidata":"https://www.wikidata.org/wiki/Q7268708","display_name":"Qualitative property","level":2,"score":0.27950000762939453},{"id":"https://openalex.org/C3018552312","wikidata":"https://www.wikidata.org/wiki/Q315412","display_name":"Assisted living","level":2,"score":0.2782999873161316},{"id":"https://openalex.org/C2780665704","wikidata":"https://www.wikidata.org/wiki/Q959298","display_name":"Intervention (counseling)","level":2,"score":0.26989999413490295},{"id":"https://openalex.org/C109986646","wikidata":"https://www.wikidata.org/wiki/Q546113","display_name":"Public policy","level":2,"score":0.26109999418258667},{"id":"https://openalex.org/C2779483572","wikidata":"https://www.wikidata.org/wiki/Q83030","display_name":"Dementia","level":3,"score":0.24210000038146973},{"id":"https://openalex.org/C2780700307","wikidata":"https://www.wikidata.org/wiki/Q1373709","display_name":"Independent living","level":2,"score":0.23579999804496765},{"id":"https://openalex.org/C2780233487","wikidata":"https://www.wikidata.org/wiki/Q6672123","display_name":"Long-term care","level":2,"score":0.2257000058889389},{"id":"https://openalex.org/C83864248","wikidata":"https://www.wikidata.org/wiki/Q177323","display_name":"Developing country","level":2,"score":0.22529999911785126},{"id":"https://openalex.org/C2779473830","wikidata":"https://www.wikidata.org/wiki/Q1540899","display_name":"MEDLINE","level":2,"score":0.22450000047683716},{"id":"https://openalex.org/C3019221131","wikidata":"https://www.wikidata.org/wiki/Q55621107","display_name":"Lived experience","level":2,"score":0.22030000388622284},{"id":"https://openalex.org/C533584247","wikidata":"https://www.wikidata.org/wiki/Q6532502","display_name":"Public housing","level":2,"score":0.21969999372959137},{"id":"https://openalex.org/C133462117","wikidata":"https://www.wikidata.org/wiki/Q4929239","display_name":"Data collection","level":2,"score":0.2168000042438507},{"id":"https://openalex.org/C82479568","wikidata":"https://www.wikidata.org/wiki/Q7315937","display_name":"Respite care","level":2,"score":0.21660000085830688},{"id":"https://openalex.org/C53059260","wikidata":"https://www.wikidata.org/wiki/Q374758","display_name":"Multilevel model","level":2,"score":0.21610000729560852},{"id":"https://openalex.org/C129484327","wikidata":"https://www.wikidata.org/wiki/Q177603","display_name":"Social perception","level":3,"score":0.21570000052452087},{"id":"https://openalex.org/C2779951463","wikidata":"https://www.wikidata.org/wiki/Q7268788","display_name":"Quality of life (healthcare)","level":2,"score":0.21539999544620514},{"id":"https://openalex.org/C2775860198","wikidata":"https://www.wikidata.org/wiki/Q7257872","display_name":"Public hospital","level":2,"score":0.20640000700950623},{"id":"https://openalex.org/C3020759390","wikidata":"https://www.wikidata.org/wiki/Q4880694","display_name":"Behaviour change","level":3,"score":0.20170000195503235},{"id":"https://openalex.org/C130064352","wikidata":"https://www.wikidata.org/wiki/Q853725","display_name":"Social relation","level":2,"score":0.19979999959468842}],"mesh":[],"locations_count":1,"locations":[{"id":"pmh:oai:scholarworks.waldenu.edu:dissertations-16745","doi":null,"is_oa":true,"landing_page_url":"https://scholarworks.waldenu.edu/dissertations/15475","pdf_url":"https://scholarworks.waldenu.edu/context/dissertations/article/16745/viewcontent/1046790.pdf","source":{"id":"https://openalex.org/S4377196507","display_name":"ScholarWorks (Walden University)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I80046288","host_organization_name":"Walden University","host_organization_lineage":["https://openalex.org/I80046288"],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Walden Dissertations and Doctoral Studies","raw_type":"text"}],"best_oa_location":{"id":"pmh:oai:scholarworks.waldenu.edu:dissertations-16745","doi":null,"is_oa":true,"landing_page_url":"https://scholarworks.waldenu.edu/dissertations/15475","pdf_url":"https://scholarworks.waldenu.edu/context/dissertations/article/16745/viewcontent/1046790.pdf","source":{"id":"https://openalex.org/S4377196507","display_name":"ScholarWorks (Walden University)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I80046288","host_organization_name":"Walden University","host_organization_lineage":["https://openalex.org/I80046288"],"host_organization_lineage_names":[],"type":"repository"},"license":"other-oa","license_id":"https://openalex.org/licenses/other-oa","version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Walden Dissertations and Doctoral Studies","raw_type":"text"},"sustainable_development_goals":[{"display_name":"Good health and well-being","score":0.9763000011444092,"id":"https://metadata.un.org/sdg/3"}],"study_designs":[],"awards":[],"funders":[],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W7051762962.pdf","grobid_xml":"https://content.openalex.org/works/W7051762962.grobid-xml"},"referenced_works_count":86,"referenced_works":["https://openalex.org/W1220198054","https://openalex.org/W1537519806","https://openalex.org/W1771093246","https://openalex.org/W1878209793","https://openalex.org/W1972432542","https://openalex.org/W1975859141","https://openalex.org/W1984813552","https://openalex.org/W2013564668","https://openalex.org/W2017725588","https://openalex.org/W2036294951","https://openalex.org/W2054442862","https://openalex.org/W2054933831","https://openalex.org/W2059333866","https://openalex.org/W2067290452","https://openalex.org/W2102107172","https://openalex.org/W2119801905","https://openalex.org/W2131120339","https://openalex.org/W2135245135","https://openalex.org/W2139016462","https://openalex.org/W2146405208","https://openalex.org/W2154835470","https://openalex.org/W2156411844","https://openalex.org/W2166915758","https://openalex.org/W2300113531","https://openalex.org/W2305278139","https://openalex.org/W2343866036","https://openalex.org/W2502840125","https://openalex.org/W2510409366","https://openalex.org/W2520106311","https://openalex.org/W2520560270","https://openalex.org/W2528373834","https://openalex.org/W2548152793","https://openalex.org/W2552653643","https://openalex.org/W2582534361","https://openalex.org/W2588369522","https://openalex.org/W2614088678","https://openalex.org/W2730480896","https://openalex.org/W2738252449","https://openalex.org/W2738875982","https://openalex.org/W2740049063","https://openalex.org/W2755961427","https://openalex.org/W2773780281","https://openalex.org/W2790858144","https://openalex.org/W2804879425","https://openalex.org/W2805920596","https://openalex.org/W2809048856","https://openalex.org/W2887992202","https://openalex.org/W2888225994","https://openalex.org/W2900745305","https://openalex.org/W2901041647","https://openalex.org/W2905117128","https://openalex.org/W2916952087","https://openalex.org/W2923093213","https://openalex.org/W2945098351","https://openalex.org/W2969328027","https://openalex.org/W2973162978","https://openalex.org/W2982736123","https://openalex.org/W2995897878","https://openalex.org/W2996597775","https://openalex.org/W2997432093","https://openalex.org/W2997582259","https://openalex.org/W2998522736","https://openalex.org/W3000561469","https://openalex.org/W3005406260","https://openalex.org/W3007172259","https://openalex.org/W3025953209","https://openalex.org/W3038883000","https://openalex.org/W3042970004","https://openalex.org/W3044770873","https://openalex.org/W3081528681","https://openalex.org/W3082957677","https://openalex.org/W3099027442","https://openalex.org/W3099032480","https://openalex.org/W3110289720","https://openalex.org/W3112675540","https://openalex.org/W3116882520","https://openalex.org/W3121355158","https://openalex.org/W3138956713","https://openalex.org/W3158878612","https://openalex.org/W3161206647","https://openalex.org/W3183927114","https://openalex.org/W3198662538","https://openalex.org/W3215138775","https://openalex.org/W4200301324","https://openalex.org/W4210308573","https://openalex.org/W4232583353"],"related_works":["https://openalex.org/W7118075164","https://openalex.org/W7116829187","https://openalex.org/W4383484150","https://openalex.org/W4322627842","https://openalex.org/W4292878183","https://openalex.org/W2805920596","https://openalex.org/W2726468116","https://openalex.org/W2313020030","https://openalex.org/W2772961978","https://openalex.org/W3111174068"],"abstract_inverted_index":{"Few":[0],"studies":[1],"have":[2,158],"focused":[3],"on":[4,40,90],"the":[5,41,84,91,101,141,153,163,190,215],"lived":[6],"experiences":[7],"of":[8,11,13,21,63,72,129,135,143,152,161,167,192,196,217],"informal":[9,59,70,127,156,197],"caregivers":[10,71,128,157,198],"residents":[12,74,131],"assisted":[14],"living":[15],"facilities":[16],"(ALFs)":[17],"and":[18,31,37,48,83,93,155,165,184,194,199,212,224],"their":[19,22,80,94,171,200],"perceptions":[20,160],"caregiver":[23,81,87,92,136,144,168,210],"burden,":[24,137,211],"which":[25],"can":[26],"lead":[27],"to":[28,58,67,187,220],"decreased":[29,34],"physical":[30],"mental":[32],"health,":[33],"economic":[35],"status,":[36],"negative":[38],"effects":[39],"care":[42,172,202],"recipient\u2019s":[43],"wellbeing.":[44],"A":[45],"considerable":[46],"knowledge":[47,218],"practice":[49],"gap":[50],"remains":[51],"regarding":[52],"how":[53,162],"public":[54,181],"health":[55,182,193],"practitioners":[56],"relate":[57],"caregiving.":[60],"The":[61,97],"purpose":[62],"this":[64,105],"study":[65],"was":[66],"understand":[68],"what":[69],"ALF":[73,130,185],"perceive":[75],"as":[76],"factors":[77,138],"that":[78,139],"affect":[79],"burden":[82,88,145,169],"perceived":[85],"impact":[86],"has":[89],"eldercare":[95],"recipient.":[96],"social-ecological":[98],"model":[99],"provided":[100],"organizational":[102],"framework":[103],"for":[104,175],"qualitative":[106],"study.":[107],"Semi-structured":[108],"interviews":[109],"were":[110],"conducted":[111],"with":[112],"10":[113],"participants":[114],"recruited":[115],"through":[116],"convenience":[117],"sampling.":[118],"Thematic":[119],"data":[120],"analysis":[121],"resulted":[122],"in":[123,208],"three":[124],"significant":[125],"findings:":[126],"experience":[132],"varying":[133],"degrees":[134],"influence":[140],"perception":[142],"are":[146],"represented":[147],"at":[148],"all":[149],"five":[150],"levels":[151],"SEM,":[154],"varied":[159],"presence":[164],"degree":[166],"impacts":[170],"recipients.":[173],"Implications":[174],"positive":[176],"social":[177],"change":[178],"include":[179],"assisting":[180],"professionals":[183],"staff":[186],"better":[188],"address":[189],"promotion":[191],"wellness":[195],"ALF-dwelling":[201],"recipients,":[203],"encouraging":[204],"greater":[205],"multilevel":[206],"involvement":[207],"addressing":[209],"further":[213],"developing":[214],"foundation":[216],"needed":[219],"inform":[221],"evidence-based":[222],"interventions":[223],"policy":[225],"development.":[226]},"counts_by_year":[],"updated_date":"2026-11-07T11:25:07.637180","created_date":"2025-10-10T00:00:00"}