{"id":"https://openalex.org/W70085544","doi":"https://doi.org/10.25916/sut.26291119","title":"The needs and experiences of family members and friends of someone with Borderline Personality Disorder","display_name":"The needs and experiences of family members and friends of someone with Borderline Personality Disorder","publication_year":2024,"publication_date":"2024-01-01","ids":{"openalex":"https://openalex.org/W70085544","doi":"https://doi.org/10.25916/sut.26291119","mag":"70085544"},"language":"en","primary_location":{"id":"pmh:oai:researchbank.swinburne.edu.au:3d27312b-71bf-49bd-95e4-b370042a2af2/1","doi":null,"is_oa":false,"landing_page_url":"http://hdl.handle.net/1959.3/215972","pdf_url":null,"source":{"id":"https://openalex.org/S4306401157","display_name":"Swinburne figshare (Swinburne University of Technology)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I57093077","host_organization_name":"Swinburne University of Technology","host_organization_lineage":["https://openalex.org/I57093077"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"acceptedVersion","is_accepted":true,"is_published":false,"raw_source_name":"","raw_type":null},"volume":null,"type":"article","indexed_in":["datacite"],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"https://doi.org/10.25916/sut.26291119","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5073719840","display_name":"Wenda McPherson","orcid":null,"observed_orcids":[]},"institutions":[],"countries":[],"is_corresponding":true,"raw_author_name":"McPherson, Wenda","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]}],"institutions":[],"countries_distinct_count":0,"institutions_distinct_count":0,"corresponding_author_ids":["https://openalex.org/A5073719840"],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":0.0,"has_fulltext":false,"cited_by_count":0,"citation_normalized_percentile":{"value":5.416e-05,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":null,"biblio":{"volume":null,"issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T12980","display_name":"Family Caregiving in Mental Illness","score":0.635699987411499,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T12980","display_name":"Family Caregiving in Mental Illness","score":0.635699987411499,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T11093","display_name":"Personality Disorders and Psychopathology","score":0.3391000032424927,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T13111","display_name":"Nursing care and research","score":0.004000000189989805,"subfield":{"id":"https://openalex.org/subfields/3611","display_name":"Pharmacy"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/borderline-personality-disorder","display_name":"borderline personality disorder","score":0.9480000138282776},{"id":"https://openalex.org/keywords/family-caregivers","display_name":"family caregivers","score":0.8080000281333923},{"id":"https://openalex.org/keywords/caregiver-experiences","display_name":"caregiver experiences","score":0.5149999856948853},{"id":"https://openalex.org/keywords/coping-strategies","display_name":"coping strategies","score":0.9679999947547913},{"id":"https://openalex.org/keywords/avoidance-coping","display_name":"avoidance coping","score":0.921999990940094},{"id":"https://openalex.org/keywords/emotion-focused-coping","display_name":"emotion-focused coping","score":0.8949999809265137},{"id":"https://openalex.org/keywords/problem-focused-coping","display_name":"problem-focused coping","score":0.9509999752044678},{"id":"https://openalex.org/keywords/caregiver-distress","display_name":"caregiver distress","score":0.4560000002384186},{"id":"https://openalex.org/keywords/post-traumatic-stress-symptoms","display_name":"posttraumatic stress symptoms","score":0.5329999923706055},{"id":"https://openalex.org/keywords/caregiver-social-isolation","display_name":"caregiver isolation","score":0.5230000019073486},{"id":"https://openalex.org/keywords/quality-of-life","display_name":"quality of life","score":0.7419999837875366},{"id":"https://openalex.org/keywords/personal-growth","display_name":"personal growth","score":0.7379999756813049},{"id":"https://openalex.org/keywords/substance-use-coping","display_name":"substance use coping","score":0.46000000834465027},{"id":"https://openalex.org/keywords/behavioral-problems","display_name":"behavioral problems","score":0.3370000123977661},{"id":"https://openalex.org/keywords/caregiver-needs","display_name":"caregiver needs","score":0.3479999899864197},{"id":"https://openalex.org/keywords/caregiver-support-groups","display_name":"caregiver support groups","score":0.3630000054836273}],"concepts":[{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.6585163474082947},{"id":"https://openalex.org/C2780600973","wikidata":"https://www.wikidata.org/wiki/Q2712836","display_name":"Borderline personality disorder","level":2,"score":0.6418251991271973},{"id":"https://openalex.org/C77805123","wikidata":"https://www.wikidata.org/wiki/Q161272","display_name":"Social psychology","level":1,"score":0.5641746520996094},{"id":"https://openalex.org/C187288502","wikidata":"https://www.wikidata.org/wiki/Q641118","display_name":"Personality","level":2,"score":0.49720337986946106},{"id":"https://openalex.org/C138496976","wikidata":"https://www.wikidata.org/wiki/Q175002","display_name":"Developmental psychology","level":1,"score":0.33162665367126465},{"id":"https://openalex.org/C70410870","wikidata":"https://www.wikidata.org/wiki/Q199906","display_name":"Clinical psychology","level":1,"score":0.28849589824676514}],"mesh":[],"locations_count":5,"locations":[{"id":"pmh:oai:researchbank.swinburne.edu.au:3d27312b-71bf-49bd-95e4-b370042a2af2/1","doi":null,"is_oa":false,"landing_page_url":"http://hdl.handle.net/1959.3/215972","pdf_url":null,"source":{"id":"https://openalex.org/S4306401157","display_name":"Swinburne figshare (Swinburne University of Technology)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I57093077","host_organization_name":"Swinburne University of Technology","host_organization_lineage":["https://openalex.org/I57093077"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"acceptedVersion","is_accepted":true,"is_published":false,"raw_source_name":"","raw_type":null},{"id":"pmh:oai:figshare.com:article/26291119","doi":null,"is_oa":false,"landing_page_url":"https://figshare.com/articles/thesis/The_needs_and_experiences_of_family_members_and_friends_of_someone_with_Borderline_Personality_Disorder/26291119","pdf_url":null,"source":{"id":"https://openalex.org/S4377196282","display_name":"Figshare","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I4210132348","host_organization_name":"Figshare (United Kingdom)","host_organization_lineage":["https://openalex.org/I4210132348"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"Thesis"},{"id":"mag:70085544","doi":null,"is_oa":false,"landing_page_url":"https://researchbank.swinburne.edu.au/file/3d27312b-71bf-49bd-95e4-b370042a2af2/1/Wenda McPherson Thesis.pdf","pdf_url":null,"source":null,"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":null},{"id":"doi:10.25916/sut.26291119","doi":"https://doi.org/10.25916/sut.26291119","is_oa":true,"landing_page_url":"https://doi.org/10.25916/sut.26291119","pdf_url":null,"source":{"id":"https://openalex.org/S4306401157","display_name":"Swinburne figshare (Swinburne University of Technology)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I57093077","host_organization_name":"Swinburne University of Technology","host_organization_lineage":["https://openalex.org/I57093077"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"Dissertation"},{"id":"doi:10.25916/sut.26291119.v1","doi":"https://doi.org/10.25916/sut.26291119.v1","is_oa":true,"landing_page_url":"https://doi.org/10.25916/sut.26291119.v1","pdf_url":null,"source":{"id":"https://openalex.org/S4306401157","display_name":"Swinburne figshare (Swinburne University of Technology)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I57093077","host_organization_name":"Swinburne University of Technology","host_organization_lineage":["https://openalex.org/I57093077"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"Dissertation"}],"best_oa_location":{"id":"doi:10.25916/sut.26291119","doi":"https://doi.org/10.25916/sut.26291119","is_oa":true,"landing_page_url":"https://doi.org/10.25916/sut.26291119","pdf_url":null,"source":{"id":"https://openalex.org/S4306401157","display_name":"Swinburne figshare (Swinburne University of Technology)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I57093077","host_organization_name":"Swinburne University of Technology","host_organization_lineage":["https://openalex.org/I57093077"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":"Dissertation"},"sustainable_development_goals":[{"score":0.98580002784729,"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being"}],"sustainable_development_goals_aurora":[],"study_designs":[{"id":"https://openalex.org/study-designs/observational-study","display_name":"Observational Study"}],"awards":[],"funders":[],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":0,"referenced_works":[],"related_works":["https://openalex.org/W2303142520","https://openalex.org/W7204360090","https://openalex.org/W3044972766","https://openalex.org/W6958320570","https://openalex.org/W3167725592","https://openalex.org/W1504680808","https://openalex.org/W3016420351","https://openalex.org/W3182873864","https://openalex.org/W2895386097","https://openalex.org/W2997634749"],"abstract_inverted_index":{"While":[0],"the":[1,13,84,88,102,142,153,181,188,208,329,347,369,401,470,488,511,560,590,617,626,637,650,666,669,726,739],"past":[2],"twenty":[3],"years":[4],"has":[5,30,748],"witnessed":[6],"a":[7,98,257,275,305,337,408,429,522,556,709],"surge":[8],"in":[9,101,124,175,207,222,228,400,407,428,469,521,586,625,636,665,725],"studies":[10,73],"of":[11,17,36,49,87,121,133,149,161,225,238,242,250,263,282,285,294,307,320,336,339,364,381,395,410,412,436,445,452,459,501,537,542,548,569,579,584,620,668,711,728,741],"caregiving,":[12,283],"experiences":[14,216,293,455],"and":[15,20,52,60,81,97,115,130,139,141,155,163,184,204,227,259,271,300,328,341,439,441,456,484,491,539,544,572,582,605,610,622,635,677,720,743,758],"needs":[16],"family":[18,50,90,173,220,269,415,718],"members":[19,91,174,221,270,719],"friends":[21,721],"caring":[22,67,746],"for":[23,68,187,296,414,465,630,690],"someone":[24,69,712],"with":[25,62,70,126,152,180,231,346,525,528,633,682,731],"Borderline":[26],"Personality":[27],"Disorder":[28],"(BPD)":[29],"received":[31],"limited":[32],"attention.":[33],"The":[34,111,137,240,265,323,356,373,386,477,505,562,745],"aim":[35,241],"this":[37,42,176,574,698],"thesis":[38],"was":[39,78,245,475,599,616,654,688,761],"to":[40,165,235,246,256,361,391,497,519,641,648,662,707,736],"fill":[41],"gap.":[43],"It":[44],"provides":[45],"an":[46],"in-depth":[47],"examination":[48],"members'":[51],"friends\u2019":[53],"caregiving":[54,454,461],"experiences,":[55,462],"coping":[56,107,113,123,128,135,182,287,321,344,366,383,397,402],"styles,":[57],"psychological":[58],"consequences,":[59],"interactions":[61],"health":[63,652],"care":[64,627,667,727],"systems":[65],"when":[66],"BPD.":[71],"Two":[72,244],"were":[74,109,178,217,313,468,645,660,684],"conducted.":[75],"Study":[76,243,251],"one":[77],"largely":[79],"exploratory":[80],"focussed":[82],"on":[83,280,316,353,559,738,750],"lived":[85],"experience":[86,224,281],"thirteen":[89],"who":[92,273,713],"participated.":[93],"Using":[94],"semi-structured":[95],"interviews":[96],"phenomenological":[99],"approach":[100],"qualitative":[103],"analysis,":[104],"four":[105],"distinct":[106,311],"groups":[108,145,312,332,350,403,419,467,615],"identified.":[110],"Loving-Active":[112],"group":[114,376,389,509,575],"In-Flux":[116],"participant":[117],"used":[118,146,333],"high":[119,159,334,362,450,618],"levels":[120,132,148,160,335,363,380,394,435,444,451,458,464,547,568,578,583,644,681],"problem":[122,342],"combination":[125,338],"emotion-focused":[127],"strategies":[129,384],"low":[131,352,457],"avoidant":[134,150,354,365],"strategies.":[136,322,398],"Bound":[138,154],"Powerless,":[140],"Distanced":[143],"Managers":[144],"higher":[147,546,557,679],"coping,":[151],"Powerless":[156],"also":[157,351,762],"using":[158],"drugs":[162],"alcohol":[164],"cope.":[166],"Challenging":[167],"behaviours":[168,550],"demonstrated":[169,576],"by":[170,192,219],"their":[171,223,229,297,308,317,498,526,531,597,601,631,729,751],"BPD":[172,298,634,670,715],"study":[177],"associated":[179],"styles":[183],"explanations":[185],"given":[186],"trauma":[189],"symptoms":[190,571],"experienced":[191,433,566],"all":[193,396,418,614],"caregivers.":[194],"Despite":[195,448],"these":[196],"challenges,":[197],"most":[198,466,494,512],"participants":[199],"talked":[200],"about":[201],"experiencing":[202,422,534],"turning-points":[203],"positive":[205,215,460],"outcomes":[206],"longer":[209],"term.":[210],"Many":[211],"more":[212,260,425,517,535,603,607,672],"negative":[213,453],"than":[214,487,674],"recalled":[218],"services":[226,295],"contacts":[230],"professionals":[232,621,742],"that":[233,596],"contributed":[234],"caregivers\u2019":[236],"feelings":[237],"isolation.":[239],"examine":[247],"whether":[248,649],"findings":[249],"One":[252],"could":[253],"be":[254,520,663,708],"generalized":[255],"larger":[258],"varied":[261],"sample":[262,266],"carers.":[264,642],"comprised":[267],"175":[268],"friends,":[272],"completed":[274],"paper":[276],"or":[277,424,656],"internet":[278],"survey":[279],"quality":[284],"life,":[286],"strategies,":[288,345],"distress":[289],"levels,":[290],"possible":[291,301],"trauma,":[292],"relative,":[299],"personal":[302],"growth":[303,486,760],"as":[304,367,533,589],"result":[306],"experiences.":[309],"Five":[310],"identified":[314],"based":[315],"differing":[318],"use":[319,392,500],"Calmer":[324,489],"Positive,":[325,327],"Reactive":[326,492],"Mixed":[330,357,370,374,478,506,563],"Extreme":[331,507],"emotion":[340],"focused":[343],"first":[348],"two":[349],"coping.":[355,504],"Extremes,":[358],"however,":[359,377],"resorted":[360],"did":[368],"Coping":[371,375,508],"group.":[372],"showed":[378],"lower":[379,393,482,499],"effective":[382,502],"overall.":[385],"Less":[387],"Challenged":[388],"tended":[390],"Differences":[399],"translated":[404],"into":[405,703],"differences":[406],"number":[409],"areas":[411,588],"impact":[413,558],"members/friends.":[416],"Across":[417],"carers":[420],"reported":[421,530,661,689],"six":[423],"crisis":[426],"times":[427],"year":[430],"wherein":[431],"they":[432,594,628,639],"severe":[434],"depression,":[437],"anxiety":[438],"stress":[440],"subsequent":[442],"clinical":[443],"PTSD":[446,570],"symptoms.":[447],"overall":[449],"well-being":[463,483,585],"average":[471],"range.":[472],"But":[473],"there":[474],"variation.":[476],"Copers":[479],"had":[480,555],"considerably":[481],"posttraumatic":[485,580,759],"Positive":[490],"Copers,":[493],"likely":[495,518],"due":[496],"problem-solving":[503],"presented":[510],"complex":[513],"picture.":[514],"This":[515],"group,":[516],"spousal":[523],"relationship":[524],"person":[527,532,671,730],"BPD,":[529,732],"periods":[536,541],"crises":[538],"fewer":[540],"calm,":[543],"displaying":[545],"difficult":[549],"including":[551],"uncontrolled":[552],"anger,":[553],"which":[554],"family.":[561],"Extremes":[564],"themselves,":[565],"unmatched":[567],"although":[573],"comparable":[577],"growth,":[581],"some":[587,701],"better":[591],"functioning":[592],"groups,":[593],"felt":[595,606],"environment":[598],"beyond":[600],"control":[602],"often,":[604],"personally":[608],"challenged":[609],"selfdoubting.":[611],"Common":[612],"across":[613],"dissatisfaction":[619],"services,":[623],"both":[624],"provided":[629,640],"family/friend":[632],"support":[638,740],"Dissatisfaction":[643],"not":[646],"related":[647],"mental":[651,753],"sector":[653],"private":[655],"public.":[657],"General":[658],"practitioners":[659],"involved":[664],"often":[673],"other":[675],"professional":[676],"marginally":[678],"satisfaction":[680,687],"GPs":[683],"conveyed.":[685],"Lowest":[686],"Crisis":[691],"Assessment":[692],"Teams":[693],"(CAT":[694],"Teams).":[695],"In":[696],"conclusion,":[697],"research":[699],"offers":[700],"insight":[702],"what":[704],"it":[705],"is":[706],"carer":[710],"displays":[714],"behaviours.":[716],"Typically":[717],"bear":[722],"immense":[723],"responsibility":[724],"without":[733],"being":[734],"able":[735],"rely":[737],"services.":[744],"role":[747],"costs":[749],"own":[752],"health.":[754],"However,":[755],"turning":[756],"points":[757],"experienced.":[763]},"counts_by_year":[],"updated_date":"2026-10-01T08:54:57.152042","created_date":"2016-06-24T00:00:00"}