{"id":"https://openalex.org/W6996445768","doi":null,"title":"\u201cSome Truths that Were Too Difficult and Frightening to Know\u201d: the Ethics and Affordances of Contemporary Schizophrenia Memoir","display_name":"\u201cSome Truths that Were Too Difficult and Frightening to Know\u201d: the Ethics and Affordances of Contemporary Schizophrenia Memoir","publication_year":2024,"publication_date":"2024-08-21","ids":{"openalex":"https://openalex.org/W6996445768"},"language":"en","primary_location":{"id":"pmh:oai:orbi.ulg.ac.be:2268/321427","doi":null,"is_oa":true,"landing_page_url":"https://orbi.uliege.be/handle/2268/321427","pdf_url":"https://orbi.uliege.be/bitstream/2268/321427/2/What%20Remains_Updated%20Programme.pdf","source":{"id":"https://openalex.org/S4306401300","display_name":"ORBi (University of Li\u00e8ge)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I157674565","host_organization_name":"University of Li\u00e8ge","host_organization_lineage":["https://openalex.org/I157674565"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"What Remains ? Literature and Ethics in a Time of Crisis, Stockholm, Sweden [SE], Du 20 ao\u00fbt 2024 au 22 ao\u00fbt 2024","raw_type":"info:eu-repo/semantics/conferencePaper"},"volume":null,"type":"conference-paper","indexed_in":[],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"https://orbi.uliege.be/bitstream/2268/321427/2/What%20Remains_Updated%20Programme.pdf","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5008164502","display_name":"David Lombard","orcid":"https://orcid.org/0000-0002-7616-0815","observed_orcids":["https://orcid.org/0000-0002-7616-0815"]},"institutions":[],"countries":[],"is_corresponding":true,"raw_author_name":"Lombard, David","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]}],"institutions":[],"countries_distinct_count":0,"institutions_distinct_count":0,"corresponding_author_ids":["https://openalex.org/A5008164502"],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":0.0,"has_fulltext":true,"cited_by_count":0,"citation_normalized_percentile":{"value":0.63117803,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":null,"biblio":{"volume":null,"issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":true,"primary_topic":{"id":"https://openalex.org/T13474","display_name":"Autobiographical and Biographical Writing","score":0.9169999957084656,"subfield":{"id":"https://openalex.org/subfields/1208","display_name":"Literature and Literary Theory"},"field":{"id":"https://openalex.org/fields/12","display_name":"Arts and Humanities"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T13474","display_name":"Autobiographical and Biographical Writing","score":0.9169999957084656,"subfield":{"id":"https://openalex.org/subfields/1208","display_name":"Literature and Literary Theory"},"field":{"id":"https://openalex.org/fields/12","display_name":"Arts and Humanities"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T12461","display_name":"Narrative Theory and Analysis","score":0.03830000013113022,"subfield":{"id":"https://openalex.org/subfields/1208","display_name":"Literature and Literary Theory"},"field":{"id":"https://openalex.org/fields/12","display_name":"Arts and Humanities"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T11983","display_name":"Identity, Memory, and Therapy","score":0.008100000210106373,"subfield":{"id":"https://openalex.org/subfields/3204","display_name":"Developmental and Educational Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/illness-narratives","display_name":"illness narratives","score":0.8679999709129333},{"id":"https://openalex.org/keywords/autopathography","display_name":"autopathography","score":0.7129999995231628},{"id":"https://openalex.org/keywords/health-humanities","display_name":"health humanities","score":0.753000020980835},{"id":"https://openalex.org/keywords/rhetorical-narratology","display_name":"rhetorical narratology","score":0.9070000052452087},{"id":"https://openalex.org/keywords/ethics-of-reading","display_name":"ethics of reading","score":0.6769999861717224},{"id":"https://openalex.org/keywords/biopsychosocial-model","display_name":"biopsychosocial model","score":0.746999979019165},{"id":"https://openalex.org/keywords/neurodivergence","display_name":"neurodivergence","score":0.7059999704360962},{"id":"https://openalex.org/keywords/mental-health-stigma","display_name":"mental health stigma","score":0.6539999842643738},{"id":"https://openalex.org/keywords/experiential-knowledge","display_name":"experiential knowledge","score":0.6859999895095825}],"concepts":[{"id":"https://openalex.org/C177897776","wikidata":"https://www.wikidata.org/wiki/Q112983","display_name":"Memoir","level":2,"score":0.7444999814033508},{"id":"https://openalex.org/C192562157","wikidata":"https://www.wikidata.org/wiki/Q316694","display_name":"Rhetorical question","level":2,"score":0.7078999876976013},{"id":"https://openalex.org/C2776674806","wikidata":"https://www.wikidata.org/wiki/Q12135","display_name":"Mental illness","level":3,"score":0.5738999843597412},{"id":"https://openalex.org/C199033989","wikidata":"https://www.wikidata.org/wiki/Q1318295","display_name":"Narrative","level":2,"score":0.5264000296592712},{"id":"https://openalex.org/C158071213","wikidata":"https://www.wikidata.org/wiki/Q7257","display_name":"Ideology","level":3,"score":0.5055999755859375},{"id":"https://openalex.org/C98369314","wikidata":"https://www.wikidata.org/wiki/Q382451","display_name":"Narratology","level":3,"score":0.4934000074863434},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.45719999074935913},{"id":"https://openalex.org/C144024400","wikidata":"https://www.wikidata.org/wiki/Q21201","display_name":"Sociology","level":0,"score":0.45579999685287476},{"id":"https://openalex.org/C2776810005","wikidata":"https://www.wikidata.org/wiki/Q627208","display_name":"Disability studies","level":2,"score":0.43860000371932983},{"id":"https://openalex.org/C11171543","wikidata":"https://www.wikidata.org/wiki/Q41630","display_name":"Psychoanalysis","level":1,"score":0.4113999903202057},{"id":"https://openalex.org/C107038049","wikidata":"https://www.wikidata.org/wiki/Q35986","display_name":"Aesthetics","level":1,"score":0.39089998602867126},{"id":"https://openalex.org/C123353603","wikidata":"https://www.wikidata.org/wiki/Q5421070","display_name":"Experiential knowledge","level":2,"score":0.37400001287460327},{"id":"https://openalex.org/C62291451","wikidata":"https://www.wikidata.org/wiki/Q1762471","display_name":"Rhetorical device","level":3,"score":0.35760000348091125},{"id":"https://openalex.org/C134362201","wikidata":"https://www.wikidata.org/wiki/Q317309","display_name":"Mental health","level":2,"score":0.35179999470710754},{"id":"https://openalex.org/C2779338814","wikidata":"https://www.wikidata.org/wiki/Q5179285","display_name":"Covert","level":2,"score":0.3337000012397766},{"id":"https://openalex.org/C53409545","wikidata":"https://www.wikidata.org/wiki/Q22908314","display_name":"Rhetorical modes","level":2,"score":0.32190001010894775},{"id":"https://openalex.org/C2777704519","wikidata":"https://www.wikidata.org/wiki/Q45732","display_name":"MAGIC (telescope)","level":2,"score":0.3061999976634979},{"id":"https://openalex.org/C111472728","wikidata":"https://www.wikidata.org/wiki/Q9471","display_name":"Epistemology","level":1,"score":0.29829999804496765},{"id":"https://openalex.org/C3557399","wikidata":"https://www.wikidata.org/wiki/Q7552854","display_name":"Sociology of health and illness","level":3,"score":0.29319998621940613},{"id":"https://openalex.org/C9652623","wikidata":"https://www.wikidata.org/wiki/Q190109","display_name":"Field (mathematics)","level":2,"score":0.27160000801086426},{"id":"https://openalex.org/C2778605801","wikidata":"https://www.wikidata.org/wiki/Q17148152","display_name":"Life writing","level":3,"score":0.26829999685287476},{"id":"https://openalex.org/C2776412080","wikidata":"https://www.wikidata.org/wiki/Q7431605","display_name":"Schizophrenia (object-oriented programming)","level":2,"score":0.2662000060081482},{"id":"https://openalex.org/C2778355321","wikidata":"https://www.wikidata.org/wiki/Q17079427","display_name":"Identity (music)","level":2,"score":0.2646999955177307},{"id":"https://openalex.org/C554936623","wikidata":"https://www.wikidata.org/wiki/Q199657","display_name":"Reading (process)","level":2,"score":0.26260000467300415},{"id":"https://openalex.org/C2777601897","wikidata":"https://www.wikidata.org/wiki/Q3409113","display_name":"Presentation (obstetrics)","level":2,"score":0.2619999945163727},{"id":"https://openalex.org/C77805123","wikidata":"https://www.wikidata.org/wiki/Q161272","display_name":"Social psychology","level":1,"score":0.25940001010894775},{"id":"https://openalex.org/C2779234423","wikidata":"https://www.wikidata.org/wiki/Q1042156","display_name":"Close reading","level":2,"score":0.2508000135421753}],"mesh":[],"locations_count":2,"locations":[{"id":"pmh:oai:orbi.ulg.ac.be:2268/321427","doi":null,"is_oa":true,"landing_page_url":"https://orbi.uliege.be/handle/2268/321427","pdf_url":"https://orbi.uliege.be/bitstream/2268/321427/2/What%20Remains_Updated%20Programme.pdf","source":{"id":"https://openalex.org/S4306401300","display_name":"ORBi (University of Li\u00e8ge)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I157674565","host_organization_name":"University of Li\u00e8ge","host_organization_lineage":["https://openalex.org/I157674565"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"What Remains ? Literature and Ethics in a Time of Crisis, Stockholm, Sweden [SE], Du 20 ao\u00fbt 2024 au 22 ao\u00fbt 2024","raw_type":"info:eu-repo/semantics/conferencePaper"},{"id":"pmh:oai:lirias2repo.kuleuven.be:20.500.12942/747458","doi":null,"is_oa":false,"landing_page_url":"https://lirias.kuleuven.be/handle/20.500.12942/747458","pdf_url":null,"source":{"id":"https://openalex.org/S4306401954","display_name":"Lirias (KU Leuven)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I99464096","host_organization_name":"KU Leuven","host_organization_lineage":["https://openalex.org/I99464096"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"What Remains ? Literature and Ethics in a Time of Crisis, Stockholm, Sweden, 20-22 August 2024","raw_type":"info:eu-repo/semantics/publishedVersion"}],"best_oa_location":{"id":"pmh:oai:orbi.ulg.ac.be:2268/321427","doi":null,"is_oa":true,"landing_page_url":"https://orbi.uliege.be/handle/2268/321427","pdf_url":"https://orbi.uliege.be/bitstream/2268/321427/2/What%20Remains_Updated%20Programme.pdf","source":{"id":"https://openalex.org/S4306401300","display_name":"ORBi (University of Li\u00e8ge)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I157674565","host_organization_name":"University of Li\u00e8ge","host_organization_lineage":["https://openalex.org/I157674565"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"What Remains ? Literature and Ethics in a Time of Crisis, Stockholm, Sweden [SE], Du 20 ao\u00fbt 2024 au 22 ao\u00fbt 2024","raw_type":"info:eu-repo/semantics/conferencePaper"},"sustainable_development_goals":[{"score":0.4000000059604645,"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being"}],"sustainable_development_goals_aurora":[{"score":0.4838416278362274,"id":"https://metadata.un.org/sdg/10","display_name":"Reduced inequalities"}],"study_designs":[],"awards":[],"funders":[],"has_content":{"pdf":true,"grobid_xml":true},"content_urls":{"pdf":"https://content.openalex.org/works/W6996445768.pdf","grobid_xml":"https://content.openalex.org/works/W6996445768.grobid-xml"},"referenced_works_count":0,"referenced_works":[],"related_works":[],"abstract_inverted_index":{"Since":[0,180],"the":[1,28,31,43,71,75,141,192,219,230,236,277,286],"early":[2],"twenty-first":[3],"century,":[4],"there":[5],"has":[6],"been":[7],"a":[8,12,19,197,222],"gradual":[9],"shift":[10],"from":[11,131],"biomedical":[13],"approach":[14],"to":[15,18,27,86,218],"mental":[16,90,103,271],"illness":[17,83,104],"bio-psycho-social-existential":[20,193],"and":[21,47,56,64,79,97,114,148,171,190,235,259,279,285,293,297],"interculturally":[22],"sensitive":[23],"model":[24,38,194],"that":[25,117,191,225,250],"led":[26],"rise":[29],"of":[30,34,45,82,157,176,200,221,289],"interdisciplinary":[32,87],"field":[33],"health":[35,72],"humanities.":[36],"This":[37],"has,":[39],"for":[40,50,196],"example,":[41],"emphasized":[42],"existence":[44],"visible":[46],"invisible":[48],"disabilities":[49],"neurominorities":[51],"coping":[52],"with":[53,270],"structural,":[54],"social,":[55],"often":[57],"racialized":[58],"injustices":[59],"(Kapp":[60],"2020;":[61],"Rosqvist,":[62],"Chown,":[63],"Stenning":[65],"2020).":[66],"For":[67],"literary":[68],"scholars":[69],"in":[70,155,229,254,295],"humanities,":[73],"studying":[74],"forms,":[76],"rhetorical":[77,132,223,247],"functions":[78],"institutional":[80],"dimensions":[81],"narratives":[84,207],"contributes":[85],"knowledge":[88,278,292],"about":[89],"illnesses":[91],"(e.g.,":[92],"see":[93],"Van":[94],"Goidsenhoven":[95],"2017":[96],"Vermeulen":[98],"2023).":[99],"Life":[100],"writing":[101],"on":[102,129],"(\u201cautopathographies\u201d":[105],"[Couser":[106],"1997,":[107],"5\u201312]),":[108],"more":[109,262],"specifically,":[110],"provides":[111],"\u201cfirst":[112],"person":[113],"experiential":[115],"knowledge\u201d":[116],"can":[118,260],"help":[119],"destigmatize":[120],"neurodivergent":[121],"people":[122,186],"(Beresford":[123],"2021,":[124],"7).":[125],"By":[126],"mainly":[127],"building":[128],"insights":[130],"narratology":[133],"(Phelan":[134,151],"2017;":[135],"2022),":[136],"this":[137,273],"paper":[138,274],"will":[139,215,275],"analyze":[140],"\u201cthematic":[142],"components,\u201d":[143],"namely":[144],"\u201cthe":[145,239],"ideational,":[146],"ethical,":[147],"ideological":[149],"dimensions\u201d":[150],"2022,":[152],"29,":[153],"emphasis":[154],"original)":[156],"twenty-first-century":[158],"schizophrenia":[159,189,283],"memoirs":[160,182,284],"such":[161,291],"as":[162],"Elyn":[163],"R.":[164],"Saks\u2019":[165],"The":[166,174],"Center":[167],"Cannot":[168],"Hold":[169],"(2007)":[170],"Marin":[172],"Sardy\u2019s":[173],"Edge":[175],"Every":[177],"Day":[178],"(2019).":[179],"these":[181,255],"were":[183],"written":[184],"by":[185,282],"suffering":[187],"through":[188],"calls":[195],"deeper":[198],"understanding":[199],"psychotic":[201],"people\u2019s":[202],"struggles":[203],"when":[204,268],"investigating":[205],"their":[206],"(Van":[208],"Sambeek":[209],"et":[210],"al.":[211],"2023),":[212],"special":[213],"attention":[214],"be":[216,261],"given":[217],"ethics":[220],"reading":[224],"is":[226],"engaged":[227],"both":[228],"actual":[231],"or":[232,238,263],"\u201cflesh-and-bone\u201d":[233],"audience":[234],"authorial":[237],"author\u2019s":[240],"hypothetical":[241],"audience\u201d":[242],"(Rabinowitz":[243],"1977,":[244],"126).":[245],"Following":[246],"narratology\u2019s":[248],"postulate":[249],"not":[251],"all":[252],"positions":[253],"audiences":[256],"are":[257],"equal":[258],"less":[264],"ethically":[265],"acceptable":[266],"(especially":[267],"dealing":[269],"illnesses),":[272],"assess":[276],"values":[280,294],"communicated":[281],"ethical":[287],"stakes":[288],"(re)using":[290],"clinical":[296],"cultural":[298],"discourses.":[299]},"counts_by_year":[],"updated_date":"2026-10-13T10:08:12.033832","created_date":"2025-10-10T00:00:00"}