{"id":"https://openalex.org/W6989098328","doi":null,"title":"Adolescents with cerebral palsy in rural Bangladesh: Health-related quality of life, mental health and sexual and reproductive health","display_name":"Adolescents with cerebral palsy in rural Bangladesh: Health-related quality of life, mental health and sexual and reproductive health","publication_year":2021,"publication_date":"2021-01-01","ids":{"openalex":"https://openalex.org/W6989098328"},"language":"en","primary_location":{"id":"pmh:oai:ses.library.usyd.edu.au:2123/24560","doi":null,"is_oa":false,"landing_page_url":"https://hdl.handle.net/2123/24560","pdf_url":null,"source":{"id":"https://openalex.org/S4306402414","display_name":"The Sydney eScholarship Repository (The University of Sydney)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I129604602","host_organization_name":"The University of Sydney","host_organization_lineage":["https://openalex.org/I129604602"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"Thesis"},"volume":null,"type":"dissertation","is_traditional":true,"indexed_in":[],"open_access":{"is_oa":false,"oa_status":"closed","oa_url":null,"any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5024000225","display_name":"Rosalie Power","orcid":"https://orcid.org/0000-0001-9434-3941","observed_orcids":["https://orcid.org/0000-0001-9434-3941"]},"institutions":[],"countries":[],"is_corresponding":true,"raw_author_name":"Power, Rosalie","raw_affiliation_strings":[],"raw_orcid":null,"affiliations":[]}],"institutions":[],"countries_distinct_count":0,"institutions_distinct_count":0,"corresponding_author_ids":["https://openalex.org/A5024000225"],"corresponding_institution_ids":[],"apc_list":null,"apc_paid":null,"fwci":null,"has_fulltext":false,"cited_by_count":0,"citation_normalized_percentile":null,"cited_by_percentile_year":null,"biblio":{"volume":null,"issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":true,"primary_topic":{"id":"https://openalex.org/T11097","display_name":"Cerebral Palsy and Movement Disorders","score":0.9868000149726868,"subfield":{"id":"https://openalex.org/subfields/2742","display_name":"Rehabilitation"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T11097","display_name":"Cerebral Palsy and Movement Disorders","score":0.9868000149726868,"subfield":{"id":"https://openalex.org/subfields/2742","display_name":"Rehabilitation"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11632","display_name":"Family and Disability Support Research","score":0.009399999864399433,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T11003","display_name":"Disability Rights and Representation","score":0.0019000000320374966,"subfield":{"id":"https://openalex.org/subfields/3312","display_name":"Sociology and Political Science"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/cerebral-palsy","display_name":"cerebral palsy","score":0.9869999885559082},{"id":"https://openalex.org/keywords/adolescents","display_name":"adolescents","score":0.7749999761581421},{"id":"https://openalex.org/keywords/health-related-quality-of-life","display_name":"health-related quality of life","score":0.9900000095367432},{"id":"https://openalex.org/keywords/mental-health","display_name":"mental health","score":0.9890000224113464},{"id":"https://openalex.org/keywords/sexual-and-reproductive-health","display_name":"sexual and reproductive health","score":0.9990000128746033},{"id":"https://openalex.org/keywords/parental-mental-health","display_name":"parental mental health","score":0.847000002861023},{"id":"https://openalex.org/keywords/well-being","display_name":"well-being","score":0.46700000762939453},{"id":"https://openalex.org/keywords/critical-disability-theory","display_name":"critical disability theory","score":0.7879999876022339},{"id":"https://openalex.org/keywords/biopsychosocial-model-of-disability","display_name":"biopsychosocial model of disability","score":0.9290000200271606},{"id":"https://openalex.org/keywords/bullying","display_name":"bullying","score":0.6840000152587891},{"id":"https://openalex.org/keywords/infantilization","display_name":"infantilization","score":0.7369999885559082},{"id":"https://openalex.org/keywords/caregiving","display_name":"caregiving","score":0.6859999895095825},{"id":"https://openalex.org/keywords/pain","display_name":"pain","score":0.5230000019073486},{"id":"https://openalex.org/keywords/rural-bangladesh","display_name":"rural Bangladesh","score":0.7200000286102295}],"concepts":[{"id":"https://openalex.org/C2779421357","wikidata":"https://www.wikidata.org/wiki/Q210427","display_name":"Cerebral palsy","level":2,"score":0.7451000213623047},{"id":"https://openalex.org/C134362201","wikidata":"https://www.wikidata.org/wiki/Q317309","display_name":"Mental health","level":2,"score":0.7391999959945679},{"id":"https://openalex.org/C137886200","wikidata":"https://www.wikidata.org/wiki/Q2725568","display_name":"Biopsychosocial model","level":2,"score":0.6912000179290771},{"id":"https://openalex.org/C150966472","wikidata":"https://www.wikidata.org/wiki/Q3410145","display_name":"Psychosocial","level":2,"score":0.6273999810218811},{"id":"https://openalex.org/C121752807","wikidata":"https://www.wikidata.org/wiki/Q1981388","display_name":"Reproductive health","level":3,"score":0.6025000214576721},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.49309998750686646},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.4814999997615814},{"id":"https://openalex.org/C2779951463","wikidata":"https://www.wikidata.org/wiki/Q7268788","display_name":"Quality of life (healthcare)","level":2,"score":0.4666000008583069},{"id":"https://openalex.org/C558461103","wikidata":"https://www.wikidata.org/wiki/Q154430","display_name":"Anxiety","level":2,"score":0.4593000113964081},{"id":"https://openalex.org/C56995899","wikidata":"https://www.wikidata.org/wiki/Q1126687","display_name":"Focus group","level":2,"score":0.439300000667572},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.4133000075817108},{"id":"https://openalex.org/C70410870","wikidata":"https://www.wikidata.org/wiki/Q199906","display_name":"Clinical psychology","level":1,"score":0.40630000829696655},{"id":"https://openalex.org/C138816342","wikidata":"https://www.wikidata.org/wiki/Q189603","display_name":"Public health","level":2,"score":0.39469999074935913},{"id":"https://openalex.org/C74909509","wikidata":"https://www.wikidata.org/wiki/Q10387","display_name":"Gerontology","level":1,"score":0.32760000228881836},{"id":"https://openalex.org/C138496976","wikidata":"https://www.wikidata.org/wiki/Q175002","display_name":"Developmental psychology","level":1,"score":0.3255999982357025},{"id":"https://openalex.org/C27415008","wikidata":"https://www.wikidata.org/wiki/Q7256382","display_name":"Psychological intervention","level":2,"score":0.2791000008583069},{"id":"https://openalex.org/C129047720","wikidata":"https://www.wikidata.org/wiki/Q175185","display_name":"Rural area","level":2,"score":0.27639999985694885},{"id":"https://openalex.org/C2779958979","wikidata":"https://www.wikidata.org/wiki/Q3473027","display_name":"Rural health","level":3,"score":0.27639999985694885},{"id":"https://openalex.org/C2908647359","wikidata":"https://www.wikidata.org/wiki/Q2625603","display_name":"Population","level":2,"score":0.26170000433921814},{"id":"https://openalex.org/C2779671885","wikidata":"https://www.wikidata.org/wiki/Q189125","display_name":"Transgender","level":2,"score":0.2556000053882599},{"id":"https://openalex.org/C78491826","wikidata":"https://www.wikidata.org/wiki/Q3045352","display_name":"Social determinants of health","level":3,"score":0.2522999942302704}],"mesh":[],"locations_count":1,"locations":[{"id":"pmh:oai:ses.library.usyd.edu.au:2123/24560","doi":null,"is_oa":false,"landing_page_url":"https://hdl.handle.net/2123/24560","pdf_url":null,"source":{"id":"https://openalex.org/S4306402414","display_name":"The Sydney eScholarship Repository (The University of Sydney)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I129604602","host_organization_name":"The University of Sydney","host_organization_lineage":["https://openalex.org/I129604602"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"","raw_type":"Thesis"}],"best_oa_location":null,"sustainable_development_goals":[{"display_name":"Good health and well-being","id":"https://metadata.un.org/sdg/3","score":1.0},{"display_name":"Reduced inequalities","id":"https://metadata.un.org/sdg/10","score":0.7578999996185303}],"study_designs":[{"display_name":"Observational Study","id":"https://openalex.org/study-designs/observational-study"}],"awards":[],"funders":[],"has_content":{"grobid_xml":false,"pdf":false},"content_urls":null,"referenced_works_count":0,"referenced_works":[],"related_works":["https://openalex.org/W2951930138","https://openalex.org/W2999115709","https://openalex.org/W3159045348","https://openalex.org/W4238401403","https://openalex.org/W4408245054","https://openalex.org/W2996456197","https://openalex.org/W2118297775","https://openalex.org/W4293686608","https://openalex.org/W2061565297","https://openalex.org/W4214736627"],"abstract_inverted_index":{"Adolescents":[0],"with":[1,71,123,172,175,194,255,282],"cerebral":[2],"palsy":[3],"(CP)":[4],"in":[5,73,189,196,206,284],"the":[6,23,55,108,115,139,162,190,238,264],"global":[7],"South":[8],"are":[9],"purported":[10],"to":[11,49,127,221,266,271],"experience":[12],"adverse":[13],"health":[14,42,62,67,78,119,155,248,277],"and":[15,43,63,65,76,95,117,132,148,150,165,177,199,218,235,249,259,278],"wellbeing.":[16,44,242],"For":[17,215,225],"too":[18],"long,":[19],"however,":[20],"focus":[21,169],"on":[22,91],"material":[24],"aspects":[25,275],"of":[26,39,58,69,79,100,120,129,145,156,192,202,276],"impairments":[27],"have":[28],"dominated":[29],"research":[30,104],"priorities;":[31],"little":[32],"is":[33],"known":[34],"about":[35,237],"adolescents\u2019":[36,181],"subjective":[37,274],"experiences":[38],"their":[40,80,157,210,253],"own":[41],"The":[45,153,261],"present":[46],"thesis":[47],"begins":[48],"address":[50],"this":[51],"gap":[52],"by":[53],"investigating":[54],"health-related":[56],"quality":[57],"life":[59],"(HRQoL),":[60],"mental":[61,77,118,154,247],"sexual":[64],"reproductive":[66],"(SRH)":[68],"adolescents":[70,122,174,193,208,281],"CP":[72,124,176,195,256,283],"rural":[74,197,285],"Bangladesh,":[75],"parents.":[81],"These":[82],"topics":[83],"were":[84,212],"examined":[85],"through":[86],"a":[87,97,222],"wellbeing":[88,279],"lens,":[89],"drawing":[90],"critical":[92],"disability":[93,137],"theory":[94],"alongside":[96,204],"biopsychosocial":[98],"understanding":[99],"disability.":[101],"\\n":[102,183],"\\nThe":[103,184],"was":[105,125,159],"conducted":[106],"using":[107,138,161],"Bangladesh":[109,198],"Cerebral":[110,142],"Palsy":[111,143],"Register":[112],"(BCPR).":[113],"Initially":[114],"HRQoL":[116],"154":[121],"compared":[126,160],"that":[128],"173":[130],"age":[131],"sex":[133],"matched":[134],"peers":[135],"without":[136],"Bengali":[140],"validated":[141],"Quality":[144],"Life-Teenagers,":[146],"Kidscreen-27":[147],"Strengths":[149],"Difficulties":[151],"Questionnaires.":[152],"parents":[158,179,244],"Depression,":[163],"Anxiety":[164],"Stress":[166],"Scale-21.":[167],"Finally,":[168],"group":[170],"interviews":[171],"24":[173],"77":[178],"explored":[180],"SRH.":[182],"findings":[185,262],"affirmed":[186],"significant":[187],"inequality":[188],"lives":[191,211],"documented":[200],"impacts":[201],"oppressions":[203],"areas":[205],"which":[207],"felt":[209],"going":[213],"well.":[214],"some,":[216],"school":[217],"friendships":[219],"contributed":[220],"positive":[223],"outlook.":[224],"others,":[226],"unmanaged":[227],"pain,":[228],"psychosocial":[229],"issues":[230],"including":[231],"being":[232],"bullied,":[233],"infantilised,":[234],"fears":[236],"future":[239],"negatively":[240],"impacted":[241],"Furthermore,":[243],"reported":[245],"poor":[246],"described":[250],"caregiving":[251],"for":[252],"adolescent":[254],"as":[257],"\u2018painful\u2019":[258],"\u2018shameful\u2019.":[260],"suggest":[263],"need":[265],"look":[267],"beyond":[268],"biomedical":[269],"needs":[270],"also":[272],"consider":[273],"among":[280],"Bangladesh.":[286]},"counts_by_year":[],"updated_date":"2026-10-27T15:51:10.671819","created_date":"2025-10-10T00:00:00"}