{"id":"https://openalex.org/W642875075","doi":null,"title":"Caregiver Burden and Sibling Relationships in Families Raising Children with Disabilities","display_name":"Caregiver Burden and Sibling Relationships in Families Raising Children with Disabilities","publication_year":2013,"publication_date":"2013-01-01","ids":{"openalex":"https://openalex.org/W642875075","mag":"642875075"},"language":"en","primary_location":{"id":"pmh:oai:scholarsarchive.byu.edu:etd-4770","doi":null,"is_oa":true,"landing_page_url":"https://scholarsarchive.byu.edu/etd/3771","pdf_url":"https://scholarsarchive.byu.edu/etd/3771","source":{"id":"https://openalex.org/S4377196308","display_name":"ScholarsArchive  (Brigham Young University)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I100005738","host_organization_name":"Brigham Young University","host_organization_lineage":["https://openalex.org/I100005738"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Theses and Dissertations","raw_type":"text"},"volume":null,"type":"article","is_traditional":true,"indexed_in":[],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"https://scholarsarchive.byu.edu/etd/3771","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5076395976","display_name":"Diane W. Allred","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I100005738","display_name":"Brigham Young University","ror":"https://ror.org/047rhhm47","country_code":"US","type":"education","lineage":["https://openalex.org/I100005738"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"Diane W. Allred","raw_affiliation_strings":["Brigham Young Univ"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Brigham Young Univ","institution_ids":["https://openalex.org/I100005738"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":1,"corresponding_author_ids":["https://openalex.org/A5076395976"],"corresponding_institution_ids":["https://openalex.org/I100005738"],"apc_list":null,"apc_paid":null,"fwci":0.0,"has_fulltext":true,"cited_by_count":2,"citation_normalized_percentile":{"value":0.0,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":88,"max":93},"biblio":{"volume":null,"issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T11632","display_name":"Family and Disability Support Research","score":0.9994999766349792,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},"topics":[{"id":"https://openalex.org/T11632","display_name":"Family and Disability Support Research","score":0.9994999766349792,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T10585","display_name":"Family Dynamics and Relationships","score":9.999999747378752e-05,"subfield":{"id":"https://openalex.org/subfields/3317","display_name":"Demography"},"field":{"id":"https://openalex.org/fields/33","display_name":"Social Sciences"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}},{"id":"https://openalex.org/T12980","display_name":"Family Caregiving in Mental Illness","score":9.999999747378752e-05,"subfield":{"id":"https://openalex.org/subfields/3203","display_name":"Clinical Psychology"},"field":{"id":"https://openalex.org/fields/32","display_name":"Psychology"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/caregiver-burden","display_name":"caregiver burden","score":0.984000027179718},{"id":"https://openalex.org/keywords/sibling-relationships","display_name":"sibling relationships","score":0.9940000176429749},{"id":"https://openalex.org/keywords/children-with-disabilities","display_name":"children with disabilities","score":0.8830000162124634},{"id":"https://openalex.org/keywords/autism-spectrum-disorder","display_name":"autism spectrum disorder","score":0.6759999990463257},{"id":"https://openalex.org/keywords/down-syndrome","display_name":"Down syndrome","score":1.0},{"id":"https://openalex.org/keywords/multiple-disabilities","display_name":"multiple disabilities","score":0.7450000047683716},{"id":"https://openalex.org/keywords/gender-differences-in-parenting","display_name":"gender differences in parenting","score":0.8090000152587891},{"id":"https://openalex.org/keywords/caregiver-strain-index","display_name":"Caregiver Strain Index","score":0.8410000205039978},{"id":"https://openalex.org/keywords/respite-care","display_name":"respite care","score":0.875}],"concepts":[{"id":"https://openalex.org/C2776194465","wikidata":"https://www.wikidata.org/wiki/Q31184","display_name":"Sibling","level":2,"score":0.7686389088630676},{"id":"https://openalex.org/C2776120587","wikidata":"https://www.wikidata.org/wiki/Q1518105","display_name":"Sibling relationship","level":3,"score":0.6524840593338013},{"id":"https://openalex.org/C2779878486","wikidata":"https://www.wikidata.org/wiki/Q25053589","display_name":"Caregiver burden","level":4,"score":0.652290940284729},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.6280851364135742},{"id":"https://openalex.org/C551499885","wikidata":"https://www.wikidata.org/wiki/Q183560","display_name":"Intellectual disability","level":2,"score":0.518661379814148},{"id":"https://openalex.org/C70410870","wikidata":"https://www.wikidata.org/wiki/Q199906","display_name":"Clinical psychology","level":1,"score":0.4831192195415497},{"id":"https://openalex.org/C2779885105","wikidata":"https://www.wikidata.org/wiki/Q182263","display_name":"Empathy","level":2,"score":0.455074667930603},{"id":"https://openalex.org/C205778803","wikidata":"https://www.wikidata.org/wiki/Q38404","display_name":"Autism","level":2,"score":0.4472445547580719},{"id":"https://openalex.org/C138496976","wikidata":"https://www.wikidata.org/wiki/Q175002","display_name":"Developmental psychology","level":1,"score":0.4327763617038727},{"id":"https://openalex.org/C2778538070","wikidata":"https://www.wikidata.org/wiki/Q1436063","display_name":"Autism spectrum disorder","level":3,"score":0.4317636489868164},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.2863720655441284},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.2669534683227539},{"id":"https://openalex.org/C2779483572","wikidata":"https://www.wikidata.org/wiki/Q83030","display_name":"Dementia","level":3,"score":0.10794857144355774},{"id":"https://openalex.org/C2779134260","wikidata":"https://www.wikidata.org/wiki/Q12136","display_name":"Disease","level":2,"score":0.0949450433254242},{"id":"https://openalex.org/C142724271","wikidata":"https://www.wikidata.org/wiki/Q7208","display_name":"Pathology","level":1,"score":0.0}],"mesh":[],"locations_count":2,"locations":[{"id":"pmh:oai:scholarsarchive.byu.edu:etd-4770","doi":null,"is_oa":true,"landing_page_url":"https://scholarsarchive.byu.edu/etd/3771","pdf_url":"https://scholarsarchive.byu.edu/etd/3771","source":{"id":"https://openalex.org/S4377196308","display_name":"ScholarsArchive  (Brigham Young University)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I100005738","host_organization_name":"Brigham Young University","host_organization_lineage":["https://openalex.org/I100005738"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Theses and Dissertations","raw_type":"text"},{"id":"mag:642875075","doi":null,"is_oa":false,"landing_page_url":"https://scholarsarchive.byu.edu/cgi/viewcontent.cgi?article=4770&context=etd","pdf_url":null,"source":null,"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":null}],"best_oa_location":{"id":"pmh:oai:scholarsarchive.byu.edu:etd-4770","doi":null,"is_oa":true,"landing_page_url":"https://scholarsarchive.byu.edu/etd/3771","pdf_url":"https://scholarsarchive.byu.edu/etd/3771","source":{"id":"https://openalex.org/S4377196308","display_name":"ScholarsArchive  (Brigham Young University)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I100005738","host_organization_name":"Brigham Young University","host_organization_lineage":["https://openalex.org/I100005738"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Theses and Dissertations","raw_type":"text"},"sustainable_development_goals":[{"score":0.9763000011444092,"id":"https://metadata.un.org/sdg/3","display_name":"Good health and well-being"},{"score":0.5676000118255615,"id":"https://metadata.un.org/sdg/10","display_name":"Reduced inequalities"}],"study_designs":[{"id":"https://openalex.org/study-designs/observational-study","display_name":"Observational Study"}],"awards":[],"funders":[],"has_content":{"pdf":true,"grobid_xml":true},"content_urls":{"pdf":"https://content.openalex.org/works/W642875075.pdf","grobid_xml":"https://content.openalex.org/works/W642875075.grobid-xml"},"referenced_works_count":75,"referenced_works":["https://openalex.org/W121333752","https://openalex.org/W123658710","https://openalex.org/W163533150","https://openalex.org/W1537701711","https://openalex.org/W1635522096","https://openalex.org/W1745755325","https://openalex.org/W1974368462","https://openalex.org/W1978226390","https://openalex.org/W1982208949","https://openalex.org/W1995286519","https://openalex.org/W2003976875","https://openalex.org/W2007959474","https://openalex.org/W2009072129","https://openalex.org/W2009238764","https://openalex.org/W2012329820","https://openalex.org/W2016200541","https://openalex.org/W2024010258","https://openalex.org/W2024922490","https://openalex.org/W2026915779","https://openalex.org/W2027178552","https://openalex.org/W2028284334","https://openalex.org/W2031137512","https://openalex.org/W2031155343","https://openalex.org/W2031591109","https://openalex.org/W2035157513","https://openalex.org/W2041680478","https://openalex.org/W2041934540","https://openalex.org/W2043420870","https://openalex.org/W2044222405","https://openalex.org/W2048022506","https://openalex.org/W2053281658","https://openalex.org/W2056132673","https://openalex.org/W2058373691","https://openalex.org/W2059544482","https://openalex.org/W2059778979","https://openalex.org/W2065114248","https://openalex.org/W2072612579","https://openalex.org/W2073628456","https://openalex.org/W2074654036","https://openalex.org/W2075220980","https://openalex.org/W2077743537","https://openalex.org/W2081238851","https://openalex.org/W2092450552","https://openalex.org/W2095531578","https://openalex.org/W2097639104","https://openalex.org/W2116002530","https://openalex.org/W2116027076","https://openalex.org/W2117837844","https://openalex.org/W2121589271","https://openalex.org/W2125408049","https://openalex.org/W2127035951","https://openalex.org/W2128077231","https://openalex.org/W2135390128","https://openalex.org/W2136447123","https://openalex.org/W2138047627","https://openalex.org/W2139657171","https://openalex.org/W2139757177","https://openalex.org/W2139920818","https://openalex.org/W2140801645","https://openalex.org/W2141977095","https://openalex.org/W2142788651","https://openalex.org/W2145610206","https://openalex.org/W2151020421","https://openalex.org/W2152044953","https://openalex.org/W2153990047","https://openalex.org/W2154865829","https://openalex.org/W2156204418","https://openalex.org/W2159050134","https://openalex.org/W2160140301","https://openalex.org/W2166019323","https://openalex.org/W2167670743","https://openalex.org/W2169919028","https://openalex.org/W2170571362","https://openalex.org/W2413137866","https://openalex.org/W4246968379"],"related_works":["https://openalex.org/W1982670252","https://openalex.org/W1517452635","https://openalex.org/W822264405","https://openalex.org/W1970757556","https://openalex.org/W7066706596","https://openalex.org/W7168336953","https://openalex.org/W6991789392","https://openalex.org/W2251231995","https://openalex.org/W7133944332","https://openalex.org/W2184507849"],"abstract_inverted_index":{"The":[0,256],"purpose":[1],"of":[2,37,52,77,141,159,170,202,212,216,242,252,264,275,299,312,361,376,387],"this":[3],"study":[4],"was":[5,172,284,308],"to":[6,22,32,47,150,326,339,348,359,367],"examine":[7],"sibling":[8,44,64,71,146,258,300],"relationships":[9,45,65,287,391],"and":[10,35,50,54,63,70,73,75,88,119,127,168,186,210,214,233,272,294,303,314,317,354,395],"caregiver":[11,29,61,289,320],"burden":[12,30,62,171,194,290,321,371,388],"in":[13,28,43,85,148,230,266,277,337,365],"families":[14,83,267,278],"raising":[15,89,268,279],"children":[16,92,203,217,243,253,269,280,362],"with":[17,204,218,244,254,270,281,363],"disabilities":[18,105,121],"(CWD).":[19],"In":[20],"order":[21,338,366],"determine":[23],"(a)":[24],"are":[25,40],"there":[26,41,57],"differences":[27,42],"according":[31,46],"parent":[33,48],"gender":[34,49,72],"types":[36],"disability":[38,53,199,336],"(b)":[39],"type":[51,76],"(c)":[55],"is":[56],"a":[58,95,156,176,183,285,334],"relationship":[59,259,307],"between":[60,288,295,310,392],"after":[66],"controlling":[67],"for":[68,197,291],"CWD":[69,96,377],"age,":[74],"disability?":[78],"After":[79,130],"IRB":[80],"approval,":[81],"166":[82],"living":[84],"the":[86,136,160,207,221,370,383,393],"west":[87],"typically":[90],"developing":[91],"(TDC)":[93],"or":[94,114],"participated.":[97],"Disabilities":[98],"included":[99,108,124,180],"autism;":[100],"Down":[101],"syndrome":[102],"(DS);":[103],"other":[104,355],"(OD),":[106],"which":[107,123],"orthopedic":[109],"impairment,":[110],"intellectual":[111,128],"disabilities,":[112,116],"emotional":[113],"physical":[115,126],"health":[117],"impairment;":[118],"multiple":[120,187],"(MD),":[122],"both":[125,132,292,296],"disabilities.":[129],"consenting,":[131],"parents":[133,293,360,375],"independently":[134],"completed":[135,175],"28-item":[137],"Schaefer":[138],"Sibling":[139],"Inventory":[140],"Behavior.":[142],"This":[143],"inventory":[144],"ranked":[145],"behaviors":[147],"relation":[149],"kindness,":[151,231,302],"involvement,":[152,232],"empathy,and":[153],"avoidance.":[154,327],"Additionally":[155],"revised":[157],"version":[158],"Caregiver":[161],"Strain":[162],"Index":[163],"(Robinson,":[164],"1983)":[165],"measuring":[166],"hassle":[167],"frequency":[169],"utilized.":[173],"Mothers":[174,225],"demographic":[177],"questionnaire.":[178],"Analyses":[179],"descriptive":[181],"statistics,":[182],"MANOVA,":[184],"correlations,":[185],"regressions.":[188],"Results":[189],"indicated":[190],"mothers":[191,211,251],"perceived":[192,206,220],"more":[193],"than":[195,235],"fathers":[196,215,239],"all":[198],"types.":[200],"Parents":[201],"autism":[205,364],"highest":[208,257],"burden,":[209],"TDC":[213],"DS":[219,271],"least":[222,247],"amount":[223],"burden.":[224],"rated":[226,240],"female":[227],"siblings":[228,241],"higher":[229],"empathy":[234,265,276],"male":[236],"siblings.":[237,396],"Whereas,":[238],"OD":[245],"as":[246,249],"avoidant;":[248],"did":[250],"DS.":[255],"scores":[260],"were":[261,323],"fathers'":[262],"rating":[263,274],"mothers'":[273],"MD.":[282],"There":[283],"positive":[286],"parent's":[297],"ratings":[298],"empathy,":[301,315],"involvement.":[304,318],"A":[305],"negative":[306],"found":[309],"parents'ratings":[311],"avoidance":[313,341],"kindness":[316],"All":[319],"variables":[322],"positively":[324],"related":[325],"Siblings":[328],"may":[329,378],"benefit":[330,379],"from":[331,380],"information":[332,381],"regarding":[333,382],"child's":[335],"decrease":[340,369],"behavior.":[342],"It":[343],"would":[344],"also":[345],"be":[346],"important":[347],"provide":[349],"interventions/information":[350],"about":[351],"respite":[352],"care":[353],"appropriate":[356],"community":[357],"resources":[358],"help":[368],"they":[372],"experience.":[373],"Finally,":[374],"effect":[384],"their":[385],"perception":[386],"has":[389],"on":[390],"child":[394]},"counts_by_year":[{"year":2024,"cited_by_count":1},{"year":2020,"cited_by_count":1}],"updated_date":"2026-11-07T11:25:07.637180","created_date":"2016-06-24T00:00:00"}
