{"id":"https://openalex.org/W54775939","doi":"https://doi.org/10.1001/virtualmentor.2014.16.5.ecas1-1405","title":"What Is the Physician's Responsibility to a Patient's Family Caregiver?","display_name":"What Is the Physician's Responsibility to a Patient's Family Caregiver?","publication_year":2014,"publication_date":"2014-05-01","ids":{"openalex":"https://openalex.org/W54775939","doi":"https://doi.org/10.1001/virtualmentor.2014.16.5.ecas1-1405","mag":"54775939","pmid":"https://pubmed.ncbi.nlm.nih.gov/24847702"},"language":"en","primary_location":{"id":"doi:10.1001/virtualmentor.2014.16.5.ecas1-1405","doi":"https://doi.org/10.1001/virtualmentor.2014.16.5.ecas1-1405","is_oa":true,"landing_page_url":"https://doi.org/10.1001/virtualmentor.2014.16.5.ecas1-1405","pdf_url":"https://journalofethics.ama-assn.org/sites/journalofethics.ama-assn.org/files/2018-05/ecas1-1405.pdf","source":{"id":"https://openalex.org/S4210180425","display_name":"The AMA Journal of Ethic","issn_l":"1937-7010","issn":["1937-7010","2376-6980"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","medline","norway-1","poland-40","russia-white-list-2"],"host_organization":"https://openalex.org/P4310320259","host_organization_name":"American Medical Association","host_organization_lineage":["https://openalex.org/P4310320259"],"host_organization_lineage_names":["American Medical Association"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"AMA Journal of Ethics","raw_type":"journal-article"},"volume":null,"type":"article","is_traditional":true,"indexed_in":["crossref","pubmed"],"open_access":{"is_oa":true,"oa_status":"bronze","oa_url":"https://journalofethics.ama-assn.org/sites/journalofethics.ama-assn.org/files/2018-05/ecas1-1405.pdf","any_repository_has_fulltext":false},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5091328885","display_name":"David Barnard","orcid":"https://orcid.org/0000-0003-3391-2084","observed_orcids":["https://orcid.org/0000-0003-3391-2084"]},"institutions":[{"id":"https://openalex.org/I165690674","display_name":"Oregon Health & Science University","ror":"https://ror.org/009avj582","country_code":"US","type":"education","lineage":["https://openalex.org/I165690674"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"David  Barnard","raw_affiliation_strings":["Miles J. Edwards Chair in Professionalism and Comfort Care at the Center for Ethics in Health Care and assistant vice provost for interprofessional education at Oregon Health and Science University in Portland"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Miles J. Edwards Chair in Professionalism and Comfort Care at the Center for Ethics in Health Care and assistant vice provost for interprofessional education at Oregon Health and Science University in Portland","institution_ids":["https://openalex.org/I165690674"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":1,"corresponding_author_ids":["https://openalex.org/A5091328885"],"corresponding_institution_ids":["https://openalex.org/I165690674"],"apc_list":null,"apc_paid":null,"fwci":0.3233,"has_fulltext":true,"cited_by_count":10,"citation_normalized_percentile":{"value":0.65438533,"is_in_top_1_percent":false,"is_in_top_10_percent":false},"cited_by_percentile_year":{"min":88,"max":96},"biblio":{"volume":"16","issue":"5","first_page":"330","last_page":"338"},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T13147","display_name":"Ethics and bioethics in healthcare","score":0.4372999966144562,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T13147","display_name":"Ethics and bioethics in healthcare","score":0.4372999966144562,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T10177","display_name":"Palliative Care and End-of-Life Issues","score":0.20309999585151672,"subfield":{"id":"https://openalex.org/subfields/2739","display_name":"Public Health, Environmental and Occupational Health"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11537","display_name":"Ethics in medical practice","score":0.12939999997615814,"subfield":{"id":"https://openalex.org/subfields/3600","display_name":"General Health Professions"},"field":{"id":"https://openalex.org/fields/36","display_name":"Health Professions"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/physician-responsibility","display_name":"physician responsibility","score":0.5249999761581421},{"id":"https://openalex.org/keywords/family-caregivers","display_name":"family caregivers","score":0.9490000009536743},{"id":"https://openalex.org/keywords/respite-care","display_name":"respite care","score":0.847000002861023},{"id":"https://openalex.org/keywords/confidentiality","display_name":"confidentiality","score":0.6010000109672546},{"id":"https://openalex.org/keywords/paternalism","display_name":"paternalism","score":0.9810000061988831},{"id":"https://openalex.org/keywords/caregiver-burden","display_name":"caregiver burden","score":0.6119999885559082},{"id":"https://openalex.org/keywords/long-term-care","display_name":"long-term care","score":0.753000020980835},{"id":"https://openalex.org/keywords/serious-illness","display_name":"serious illness","score":0.46399998664855957},{"id":"https://openalex.org/keywords/disability","display_name":"disability","score":0.5759999752044678},{"id":"https://openalex.org/keywords/primary-care","display_name":"primary care","score":0.3880000114440918},{"id":"https://openalex.org/keywords/patient-family-communication","display_name":"patient-family communication","score":0.38100001215934753}],"concepts":[{"id":"https://openalex.org/C188084074","wikidata":"https://www.wikidata.org/wiki/Q194294","display_name":"Bioethics","level":2,"score":0.6580233573913574},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.6227425336837769},{"id":"https://openalex.org/C126086293","wikidata":"https://www.wikidata.org/wiki/Q237151","display_name":"Medical ethics","level":2,"score":0.5621361136436462},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.5259920954704285},{"id":"https://openalex.org/C159110408","wikidata":"https://www.wikidata.org/wiki/Q121176","display_name":"Nursing","level":1,"score":0.32425862550735474},{"id":"https://openalex.org/C118552586","wikidata":"https://www.wikidata.org/wiki/Q7867","display_name":"Psychiatry","level":1,"score":0.27703189849853516},{"id":"https://openalex.org/C54355233","wikidata":"https://www.wikidata.org/wiki/Q7162","display_name":"Genetics","level":1,"score":0.0},{"id":"https://openalex.org/C86803240","wikidata":"https://www.wikidata.org/wiki/Q420","display_name":"Biology","level":0,"score":0.0}],"mesh":[{"descriptor_ui":"D005190","descriptor_name":"Family","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D005192","descriptor_name":"Family Health","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D006801","descriptor_name":"Humans","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010361","descriptor_name":"Patients","qualifier_ui":null,"qualifier_name":null,"is_major_topic":false},{"descriptor_ui":"D010820","descriptor_name":"Physicians","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D011368","descriptor_name":"Professional-Family Relations","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true},{"descriptor_ui":"D017028","descriptor_name":"Caregivers","qualifier_ui":null,"qualifier_name":null,"is_major_topic":true}],"locations_count":4,"locations":[{"id":"doi:10.1001/virtualmentor.2014.16.5.ecas1-1405","doi":"https://doi.org/10.1001/virtualmentor.2014.16.5.ecas1-1405","is_oa":true,"landing_page_url":"https://doi.org/10.1001/virtualmentor.2014.16.5.ecas1-1405","pdf_url":"https://journalofethics.ama-assn.org/sites/journalofethics.ama-assn.org/files/2018-05/ecas1-1405.pdf","source":{"id":"https://openalex.org/S4210180425","display_name":"The AMA Journal of Ethic","issn_l":"1937-7010","issn":["1937-7010","2376-6980"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","medline","norway-1","poland-40","russia-white-list-2"],"host_organization":"https://openalex.org/P4310320259","host_organization_name":"American Medical Association","host_organization_lineage":["https://openalex.org/P4310320259"],"host_organization_lineage_names":["American Medical Association"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"AMA Journal of Ethics","raw_type":"journal-article"},{"id":"doi:10.1001/virtualmentor.2014.16.05.ecas1-1405","doi":"https://doi.org/10.1001/virtualmentor.2014.16.05.ecas1-1405","is_oa":true,"landing_page_url":"https://doi.org/10.1001/virtualmentor.2014.16.05.ecas1-1405","pdf_url":"https://journalofethics.ama-assn.org/sites/joedb/files/2018-05/ecas1-1405.pdf","source":{"id":"https://openalex.org/S4210180425","display_name":"The AMA Journal of Ethic","issn_l":"1937-7010","issn":["1937-7010","2376-6980"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","medline","norway-1","poland-40","russia-white-list-2"],"host_organization":"https://openalex.org/P4310320259","host_organization_name":"American Medical Association","host_organization_lineage":["https://openalex.org/P4310320259"],"host_organization_lineage_names":["American Medical Association"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"Virtual Mentor","raw_type":"journal-article"},{"id":"pmid:24847702","doi":null,"is_oa":false,"landing_page_url":"https://pubmed.ncbi.nlm.nih.gov/24847702","pdf_url":null,"source":{"id":"https://openalex.org/S4306525036","display_name":"PubMed","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I1299303238","host_organization_name":"National Institutes of Health","host_organization_lineage":["https://openalex.org/I1299303238"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"The virtual mentor : VM","raw_type":"Journal Article"},{"id":"mag:2188316066","doi":null,"is_oa":false,"landing_page_url":"https://journalofethics.ama-assn.org/2014/05/pdf/vm-1405.pdf","pdf_url":null,"source":null,"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":null}],"best_oa_location":{"id":"doi:10.1001/virtualmentor.2014.16.5.ecas1-1405","doi":"https://doi.org/10.1001/virtualmentor.2014.16.5.ecas1-1405","is_oa":true,"landing_page_url":"https://doi.org/10.1001/virtualmentor.2014.16.5.ecas1-1405","pdf_url":"https://journalofethics.ama-assn.org/sites/journalofethics.ama-assn.org/files/2018-05/ecas1-1405.pdf","source":{"id":"https://openalex.org/S4210180425","display_name":"The AMA Journal of Ethic","issn_l":"1937-7010","issn":["1937-7010","2376-6980"],"is_oa":false,"is_in_doaj":false,"is_core":true,"listed_in":["anvur-scientific","cwts-core","medline","norway-1","poland-40","russia-white-list-2"],"host_organization":"https://openalex.org/P4310320259","host_organization_name":"American Medical Association","host_organization_lineage":["https://openalex.org/P4310320259"],"host_organization_lineage_names":["American Medical Association"],"type":"journal"},"license":null,"license_id":null,"version":"publishedVersion","is_accepted":true,"is_published":true,"raw_source_name":"AMA Journal of Ethics","raw_type":"journal-article"},"sustainable_development_goals":[{"display_name":"Good health and well-being","id":"https://metadata.un.org/sdg/3","score":0.9391000270843506}],"study_designs":[],"awards":[],"funders":[],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W54775939.pdf","grobid_xml":"https://content.openalex.org/works/W54775939.grobid-xml"},"referenced_works_count":109,"referenced_works":["https://openalex.org/W12014013","https://openalex.org/W64340968","https://openalex.org/W115172779","https://openalex.org/W124202691","https://openalex.org/W585282550","https://openalex.org/W1004284243","https://openalex.org/W1526104659","https://openalex.org/W1566504007","https://openalex.org/W1586524706","https://openalex.org/W1853045913","https://openalex.org/W1967476485","https://openalex.org/W1968179780","https://openalex.org/W1968234907","https://openalex.org/W1969834859","https://openalex.org/W1971294547","https://openalex.org/W1972299649","https://openalex.org/W1972911781","https://openalex.org/W1978699138","https://openalex.org/W1982121859","https://openalex.org/W1983647064","https://openalex.org/W1995039629","https://openalex.org/W1996068508","https://openalex.org/W1998617460","https://openalex.org/W2000505772","https://openalex.org/W2002525635","https://openalex.org/W2003475020","https://openalex.org/W2005100569","https://openalex.org/W2010693919","https://openalex.org/W2011772588","https://openalex.org/W2025211665","https://openalex.org/W2025942095","https://openalex.org/W2036294951","https://openalex.org/W2037681171","https://openalex.org/W2038432647","https://openalex.org/W2040939895","https://openalex.org/W2042104538","https://openalex.org/W2045833544","https://openalex.org/W2047579512","https://openalex.org/W2054371281","https://openalex.org/W2055297351","https://openalex.org/W2057165977","https://openalex.org/W2060521891","https://openalex.org/W2061238756","https://openalex.org/W2061469354","https://openalex.org/W2062655384","https://openalex.org/W2062797692","https://openalex.org/W2064457640","https://openalex.org/W2068765209","https://openalex.org/W2074192941","https://openalex.org/W2079038983","https://openalex.org/W2079261966","https://openalex.org/W2079737423","https://openalex.org/W2083251195","https://openalex.org/W2083570002","https://openalex.org/W2083696536","https://openalex.org/W2083751137","https://openalex.org/W2084014806","https://openalex.org/W2092264431","https://openalex.org/W2092881775","https://openalex.org/W2094377001","https://openalex.org/W2099108133","https://openalex.org/W2115581813","https://openalex.org/W2116685625","https://openalex.org/W2120185501","https://openalex.org/W2121859696","https://openalex.org/W2126121874","https://openalex.org/W2126359055","https://openalex.org/W2135440119","https://openalex.org/W2138234252","https://openalex.org/W2140213424","https://openalex.org/W2145259564","https://openalex.org/W2148506894","https://openalex.org/W2149539145","https://openalex.org/W2151519999","https://openalex.org/W2166135857","https://openalex.org/W2167232113","https://openalex.org/W2167530919","https://openalex.org/W2168361806","https://openalex.org/W2168496527","https://openalex.org/W2175144554","https://openalex.org/W2176965193","https://openalex.org/W2217816480","https://openalex.org/W2310909914","https://openalex.org/W2319166863","https://openalex.org/W2329878351","https://openalex.org/W2346778697","https://openalex.org/W2399038708","https://openalex.org/W2411169051","https://openalex.org/W2414105529","https://openalex.org/W2417500563","https://openalex.org/W2482013186","https://openalex.org/W2489468393","https://openalex.org/W2599429981","https://openalex.org/W2623419045","https://openalex.org/W2749906910","https://openalex.org/W2774194614","https://openalex.org/W2905518258","https://openalex.org/W2993638752","https://openalex.org/W3023542962","https://openalex.org/W3110191396","https://openalex.org/W3123025172","https://openalex.org/W3209981852","https://openalex.org/W4241310895","https://openalex.org/W4243693606","https://openalex.org/W4252615120","https://openalex.org/W4253760112","https://openalex.org/W4312734032","https://openalex.org/W4319691053","https://openalex.org/W4383369224"],"related_works":["https://openalex.org/W2336220488","https://openalex.org/W2408546519","https://openalex.org/W4302439724","https://openalex.org/W7096110211","https://openalex.org/W1571115833","https://openalex.org/W4300436986","https://openalex.org/W2188316066","https://openalex.org/W278909581","https://openalex.org/W4230943675","https://openalex.org/W234990289"],"abstract_inverted_index":{"McGuire":[0,119,140,267,309],"lives":[1],"at":[2],"home":[3,151,338],"with":[4,185,200,295,317,380],"his":[5,33,39,42,61,76,106,121,142,150,201,333],"only":[6],"child,":[7],"Jennifer.He":[8],"is":[9,36,110,212,262,288,324,353],"75,":[10],"has":[11,74,83,138,310],"severe":[12,34],"rheumatoid":[13],"arthritis":[14],"and":[15,55,58,72,82,92,125,198,203,217,319,364],"a":[16,101,160,164,257,354],"history":[17],"of":[18,45,60,64,133,148,172,237,283,302,349,366,375],"atrial":[19],"fibrillation,":[20],"for":[21,41,79,246,378],"which":[22,261],"he":[23,115,137,205,208,248],"takes":[24],"anticoagulation":[25],"medication.He":[26],"can":[27],"no":[28],"longer":[29,242],"drive":[30],"and,":[31],"given":[32],"arthritis,":[35],"dependent":[37],"on":[38,88,100,346],"daughter":[40,296],"instrumental":[43],"activities":[44,63],"daily":[46,65],"living":[47,66,123],"(IADLs),":[48],"things":[49,68],"like":[50,69],"grocery":[51],"shopping,":[52],"paying":[53],"bills,":[54],"managing":[56],"medications,":[57],"some":[59,228],"basic":[62],"(ADLs),":[67],"bathing,":[70],"dressing,":[71],"walking.Jennifer":[73],"been":[75],"primary":[77,107],"caregiver":[78],"two":[80],"years":[81],"had":[84],"to":[85,103,145,156,181,234,290,313,331,335],"cut":[86],"back":[87],"her":[89,98,238],"work":[90],"hours":[91],"significantly":[93],"decrease":[94],"social":[95],"outings.Jennifer":[96],"accompanies":[97],"dad":[99,239],"visit":[102],"Dr.":[104,111,128,178,190],"Peterson,":[105],"care":[108,236,245,259,339,377],"doctor.As":[109],"Peterson's":[112],"standard":[113],"policy,":[114],"initially":[116],"interviews":[117],"Mr.":[118,253,266,303,308],"alone.Knowing":[120],"patient's":[122],"situation":[124],"ever-increasing":[126],"needs,":[127,306],"Peterson":[129,179,191,220],"raises":[130,280],"the":[131,146,168,187,195,241,276,299,315,344,362,373],"issue":[132,316],"respite":[134,244],"care,":[135],"as":[136,159],"before.Mr.":[139],"reaffirms":[141],"absolute":[143],"opposition":[144],"idea":[147],"leaving":[149],"or":[152,383],"having":[153],"others":[154],"come":[155],"help,":[157],"even":[158,182],"temporary":[161],"measure,":[162],"despite":[163],"long":[165],"discussion":[166,294],"about":[167,298],"potential":[169],"long-term":[170,258,328,376],"benefits":[171],"such":[173],"an":[174,292],"approach.He":[175],"also":[176],"asks":[177],"not":[180,264],"discuss":[183],"this":[184,278],"Jennifer.After":[186],"initial":[188],"interview,":[189],"invites":[192],"Jennifer":[193,211,225,297],"into":[194],"exam":[196],"room":[197],"continues":[199],"interview":[202],"exam.As":[204],"probes":[206],"deeper,":[207],"realizes":[209],"that":[210,341],"more":[213],"tired":[214],"than":[215],"ever":[216],"perhaps":[218],"depressed.Dr.":[219],"strongly":[221],"believes":[222,286,322],"that,":[223],"if":[224],"doesn't":[226],"get":[227],"relief,":[229],"she":[230],"may":[231],"be":[232],"unable":[233],"take":[235],"in":[240,252,256,325],"term.Forgoing":[243],"Jennifer,":[247],"believes,":[249],"could":[250],"result":[251],"McGuire's":[254,304],"placement":[255],"facility,":[260],"definitely":[263],"what":[265],"desires.Commentary":[268],"1":[269],"by":[270],"David":[271],"Barnard,":[272],"PhD,":[273],"JD":[274],"On":[275],"surface":[277],"case":[279],"ethical":[281],"questions":[282],"confidentiality":[284],"(Dr.Peterson":[285,321],"it":[287,323],"important":[289],"have":[291],"open":[293],"growing":[300],"burdens":[301,374],"caregiving":[305],"but":[307],"forbidden":[311],"him":[312],"raise":[314],"her),":[318],"paternalism":[320],"Mr.McGuire's":[326],"own":[327],"best":[329],"interest":[330],"override":[332],"refusal":[334],"consider":[336],"additional":[337],"services":[340],"would":[342],"lessen":[343],"burden":[345],"Jennifer).Underlying":[347],"both":[348],"these":[350],"issues,":[351],"however,":[352],"deeper":[355],"question:":[356],"How":[357],"should":[358],"health":[359],"professionals":[360],"view":[361],"interests":[363],"concerns":[365],"their":[367],"patients'":[368],"family":[369],"members":[370],"who":[371],"bear":[372],"patients":[379],"serious":[381],"illness":[382],"disability?":[384]},"counts_by_year":[{"year":2025,"cited_by_count":1},{"year":2024,"cited_by_count":1},{"year":2022,"cited_by_count":1},{"year":2020,"cited_by_count":2},{"year":2019,"cited_by_count":2},{"year":2018,"cited_by_count":2},{"year":2016,"cited_by_count":1}],"updated_date":"2026-11-08T12:12:28.789561","created_date":"2016-06-24T00:00:00"}