{"id":"https://openalex.org/W46119796","doi":null,"title":"HIV Infection: Solitary Work, Silent Suffering Beliefs about Responsibility for Health and the Ability to Impact Disease Progression","display_name":"HIV Infection: Solitary Work, Silent Suffering Beliefs about Responsibility for Health and the Ability to Impact Disease Progression","publication_year":2014,"publication_date":"2014-01-01","ids":{"openalex":"https://openalex.org/W46119796","mag":"46119796"},"language":"en","primary_location":{"id":"pmh:oai:opencommons.uconn.edu:dissertations-6578","doi":null,"is_oa":true,"landing_page_url":"https://opencommons.uconn.edu/dissertations/338","pdf_url":"https://opencommons.uconn.edu/cgi/viewcontent.cgi?article=6578&context=dissertations","source":{"id":"https://openalex.org/S4306401180","display_name":"OpenCommons at University of Connecticut (University of Connecticut)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I140172145","host_organization_name":"University of Connecticut","host_organization_lineage":["https://openalex.org/I140172145"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Doctoral Dissertations","raw_type":"text"},"volume":null,"type":"dissertation","is_traditional":true,"indexed_in":[],"open_access":{"is_oa":true,"oa_status":"green","oa_url":"https://opencommons.uconn.edu/cgi/viewcontent.cgi?article=6578&context=dissertations","any_repository_has_fulltext":true},"authorships":[{"author_position":"first","author":{"id":"https://openalex.org/A5114141830","display_name":"Cynthia A. Frank","orcid":null,"observed_orcids":[]},"institutions":[{"id":"https://openalex.org/I32971472","display_name":"Yale University","ror":"https://ror.org/03v76x132","country_code":"US","type":"education","lineage":["https://openalex.org/I32971472"]}],"countries":["US"],"is_corresponding":true,"raw_author_name":"Cynthia Frank","raw_affiliation_strings":["Yale University  ;"],"raw_orcid":null,"affiliations":[{"raw_affiliation_string":"Yale University  ;","institution_ids":["https://openalex.org/I32971472"]}]}],"institutions":[],"countries_distinct_count":1,"institutions_distinct_count":1,"corresponding_author_ids":["https://openalex.org/A5114141830"],"corresponding_institution_ids":["https://openalex.org/I32971472"],"apc_list":null,"apc_paid":null,"fwci":null,"has_fulltext":true,"cited_by_count":0,"citation_normalized_percentile":null,"cited_by_percentile_year":null,"biblio":{"volume":null,"issue":null,"first_page":null,"last_page":null},"is_retracted":false,"is_paratext":false,"is_xpac":false,"primary_topic":{"id":"https://openalex.org/T10082","display_name":"HIV/AIDS Research and Interventions","score":0.9984999895095825,"subfield":{"id":"https://openalex.org/subfields/2725","display_name":"Infectious Diseases"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},"topics":[{"id":"https://openalex.org/T10082","display_name":"HIV/AIDS Research and Interventions","score":0.9984999895095825,"subfield":{"id":"https://openalex.org/subfields/2725","display_name":"Infectious Diseases"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T11860","display_name":"HIV, Drug Use, Sexual Risk","score":0.0006000000284984708,"subfield":{"id":"https://openalex.org/subfields/2713","display_name":"Epidemiology"},"field":{"id":"https://openalex.org/fields/27","display_name":"Medicine"},"domain":{"id":"https://openalex.org/domains/4","display_name":"Health Sciences"}},{"id":"https://openalex.org/T14334","display_name":"HIV/AIDS Impact and Responses","score":9.999999747378752e-05,"subfield":{"id":"https://openalex.org/subfields/2002","display_name":"Economics and Econometrics"},"field":{"id":"https://openalex.org/fields/20","display_name":"Economics, Econometrics and Finance"},"domain":{"id":"https://openalex.org/domains/2","display_name":"Social Sciences"}}],"keywords":[{"id":"https://openalex.org/keywords/hiv-infection","display_name":"HIV infection","score":0.9959999918937683},{"id":"https://openalex.org/keywords/lived-experience","display_name":"lived experience","score":0.671999990940094},{"id":"https://openalex.org/keywords/health-responsibility","display_name":"health responsibility","score":0.7080000042915344},{"id":"https://openalex.org/keywords/disease-concept","display_name":"illness beliefs","score":0.7160000205039978},{"id":"https://openalex.org/keywords/stigma","display_name":"stigma","score":0.6010000109672546},{"id":"https://openalex.org/keywords/social-isolation","display_name":"social isolation","score":0.8399999737739563},{"id":"https://openalex.org/keywords/veterans","display_name":"veterans","score":0.5149999856948853},{"id":"https://openalex.org/keywords/chronic-hiv-infection","display_name":"chronic HIV infection","score":0.5320000052452087},{"id":"https://openalex.org/keywords/treatment-adherence","display_name":"medication adherence","score":0.5830000042915344},{"id":"https://openalex.org/keywords/fear-of-disclosure","display_name":"fear of disclosure","score":0.699999988079071},{"id":"https://openalex.org/keywords/psychiatric-comorbidity","display_name":"psychiatric comorbidity","score":0.7670000195503235},{"id":"https://openalex.org/keywords/social-suffering","display_name":"social suffering","score":0.4410000145435333}],"concepts":[{"id":"https://openalex.org/C2779134260","wikidata":"https://www.wikidata.org/wiki/Q12136","display_name":"Disease","level":2,"score":0.6094948649406433},{"id":"https://openalex.org/C3013748606","wikidata":"https://www.wikidata.org/wiki/Q15787","display_name":"Human immunodeficiency virus (HIV)","level":2,"score":0.5912501215934753},{"id":"https://openalex.org/C18762648","wikidata":"https://www.wikidata.org/wiki/Q42213","display_name":"Work (physics)","level":2,"score":0.5268741250038147},{"id":"https://openalex.org/C15744967","wikidata":"https://www.wikidata.org/wiki/Q9418","display_name":"Psychology","level":0,"score":0.44289225339889526},{"id":"https://openalex.org/C71924100","wikidata":"https://www.wikidata.org/wiki/Q11190","display_name":"Medicine","level":0,"score":0.4359420835971832},{"id":"https://openalex.org/C74909509","wikidata":"https://www.wikidata.org/wiki/Q10387","display_name":"Gerontology","level":1,"score":0.3667294979095459},{"id":"https://openalex.org/C512399662","wikidata":"https://www.wikidata.org/wiki/Q3505712","display_name":"Family medicine","level":1,"score":0.2157745659351349},{"id":"https://openalex.org/C126322002","wikidata":"https://www.wikidata.org/wiki/Q11180","display_name":"Internal medicine","level":1,"score":0.11438208818435669},{"id":"https://openalex.org/C127413603","wikidata":"https://www.wikidata.org/wiki/Q11023","display_name":"Engineering","level":0,"score":0.08383947610855103},{"id":"https://openalex.org/C78519656","wikidata":"https://www.wikidata.org/wiki/Q101333","display_name":"Mechanical engineering","level":1,"score":0.0}],"mesh":[],"locations_count":3,"locations":[{"id":"pmh:oai:opencommons.uconn.edu:dissertations-6578","doi":null,"is_oa":true,"landing_page_url":"https://opencommons.uconn.edu/dissertations/338","pdf_url":"https://opencommons.uconn.edu/cgi/viewcontent.cgi?article=6578&context=dissertations","source":{"id":"https://openalex.org/S4306401180","display_name":"OpenCommons at University of Connecticut (University of Connecticut)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I140172145","host_organization_name":"University of Connecticut","host_organization_lineage":["https://openalex.org/I140172145"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Doctoral Dissertations","raw_type":"text"},{"id":"pmh:oai:digitalcommons.lib.uconn.edu:dissertations-6578","doi":null,"is_oa":false,"landing_page_url":"https://digitalcommons.lib.uconn.edu/dissertations/338","pdf_url":null,"source":{"id":"https://openalex.org/S4306401180","display_name":"OpenCommons at University of Connecticut (University of Connecticut)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I140172145","host_organization_name":"University of Connecticut","host_organization_lineage":["https://openalex.org/I140172145"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Doctoral Dissertations","raw_type":"text"},{"id":"mag:46119796","doi":null,"is_oa":false,"landing_page_url":"http://digitalcommons.uconn.edu/dissertations/338/","pdf_url":null,"source":null,"license":null,"license_id":null,"version":null,"is_accepted":false,"is_published":false,"raw_source_name":null,"raw_type":null}],"best_oa_location":{"id":"pmh:oai:opencommons.uconn.edu:dissertations-6578","doi":null,"is_oa":true,"landing_page_url":"https://opencommons.uconn.edu/dissertations/338","pdf_url":"https://opencommons.uconn.edu/cgi/viewcontent.cgi?article=6578&context=dissertations","source":{"id":"https://openalex.org/S4306401180","display_name":"OpenCommons at University of Connecticut (University of Connecticut)","issn_l":null,"issn":null,"is_oa":false,"is_in_doaj":false,"is_core":false,"listed_in":[],"host_organization":"https://openalex.org/I140172145","host_organization_name":"University of Connecticut","host_organization_lineage":["https://openalex.org/I140172145"],"host_organization_lineage_names":[],"type":"repository"},"license":null,"license_id":null,"version":"submittedVersion","is_accepted":false,"is_published":false,"raw_source_name":"Doctoral Dissertations","raw_type":"text"},"sustainable_development_goals":[{"id":"https://metadata.un.org/sdg/3","score":0.98580002784729,"display_name":"Good health and well-being"}],"study_designs":[],"awards":[],"funders":[],"has_content":{"grobid_xml":true,"pdf":true},"content_urls":{"pdf":"https://content.openalex.org/works/W46119796.pdf","grobid_xml":"https://content.openalex.org/works/W46119796.grobid-xml"},"referenced_works_count":182,"referenced_works":["https://openalex.org/W15737222","https://openalex.org/W21449745","https://openalex.org/W57243186","https://openalex.org/W140031049","https://openalex.org/W140527580","https://openalex.org/W273382462","https://openalex.org/W406907629","https://openalex.org/W412727872","https://openalex.org/W587711229","https://openalex.org/W603472147","https://openalex.org/W607308826","https://openalex.org/W1495964691","https://openalex.org/W1515167663","https://openalex.org/W1515702811","https://openalex.org/W1536715511","https://openalex.org/W1557767722","https://openalex.org/W1686926198","https://openalex.org/W1709255221","https://openalex.org/W1834170879","https://openalex.org/W1905434204","https://openalex.org/W1964008166","https://openalex.org/W1964528140","https://openalex.org/W1965939849","https://openalex.org/W1967140576","https://openalex.org/W1971061593","https://openalex.org/W1976172257","https://openalex.org/W1976435873","https://openalex.org/W1981241521","https://openalex.org/W1981410310","https://openalex.org/W1981929333","https://openalex.org/W1982210139","https://openalex.org/W1985007415","https://openalex.org/W1986470721","https://openalex.org/W1986772826","https://openalex.org/W1989831869","https://openalex.org/W1990154780","https://openalex.org/W1991864115","https://openalex.org/W1992712679","https://openalex.org/W1994691358","https://openalex.org/W1995828496","https://openalex.org/W1995910170","https://openalex.org/W1996083965","https://openalex.org/W1996234704","https://openalex.org/W1996389250","https://openalex.org/W1997585077","https://openalex.org/W1997753689","https://openalex.org/W1997885096","https://openalex.org/W2002851739","https://openalex.org/W2004135989","https://openalex.org/W2006283822","https://openalex.org/W2008105064","https://openalex.org/W2008453835","https://openalex.org/W2008776688","https://openalex.org/W2009275282","https://openalex.org/W2010140255","https://openalex.org/W2012411992","https://openalex.org/W2013231754","https://openalex.org/W2014626500","https://openalex.org/W2014826604","https://openalex.org/W2018757568","https://openalex.org/W2020459799","https://openalex.org/W2022412456","https://openalex.org/W2022768097","https://openalex.org/W2022863092","https://openalex.org/W2023918127","https://openalex.org/W2027729449","https://openalex.org/W2029358670","https://openalex.org/W2030054457","https://openalex.org/W2030708183","https://openalex.org/W2030784291","https://openalex.org/W2030924037","https://openalex.org/W2034477782","https://openalex.org/W2035723071","https://openalex.org/W2037909173","https://openalex.org/W2038066162","https://openalex.org/W2038647285","https://openalex.org/W2042211986","https://openalex.org/W2042968902","https://openalex.org/W2043394588","https://openalex.org/W2043413487","https://openalex.org/W2044027365","https://openalex.org/W2046740175","https://openalex.org/W2047127491","https://openalex.org/W2048179962","https://openalex.org/W2048610403","https://openalex.org/W2049920942","https://openalex.org/W2051681392","https://openalex.org/W2053373180","https://openalex.org/W2053491708","https://openalex.org/W2054990837","https://openalex.org/W2056425828","https://openalex.org/W2056882375","https://openalex.org/W2060667176","https://openalex.org/W2060829964","https://openalex.org/W2066690947","https://openalex.org/W2070074805","https://openalex.org/W2072381690","https://openalex.org/W2072910994","https://openalex.org/W2073612721","https://openalex.org/W2074704962","https://openalex.org/W2074826468","https://openalex.org/W2075171892","https://openalex.org/W2076650035","https://openalex.org/W2080481845","https://openalex.org/W2080909299","https://openalex.org/W2082305806","https://openalex.org/W2082540690","https://openalex.org/W2084491316","https://openalex.org/W2089145966","https://openalex.org/W2090137944","https://openalex.org/W2090646713","https://openalex.org/W2091774195","https://openalex.org/W2092894804","https://openalex.org/W2095055241","https://openalex.org/W2096548306","https://openalex.org/W2100826189","https://openalex.org/W2101606743","https://openalex.org/W2101996137","https://openalex.org/W2102050923","https://openalex.org/W2102575997","https://openalex.org/W2105392510","https://openalex.org/W2105441112","https://openalex.org/W2108279170","https://openalex.org/W2108515141","https://openalex.org/W2110157376","https://openalex.org/W2112668640","https://openalex.org/W2113221918","https://openalex.org/W2114126021","https://openalex.org/W2115580539","https://openalex.org/W2115719856","https://openalex.org/W2116621047","https://openalex.org/W2117397322","https://openalex.org/W2118627939","https://openalex.org/W2118979038","https://openalex.org/W2119016591","https://openalex.org/W2125542878","https://openalex.org/W2130003756","https://openalex.org/W2130772663","https://openalex.org/W2130804766","https://openalex.org/W2134049139","https://openalex.org/W2134621022","https://openalex.org/W2134650920","https://openalex.org/W2135734123","https://openalex.org/W2135985011","https://openalex.org/W2136227425","https://openalex.org/W2136882235","https://openalex.org/W2138984022","https://openalex.org/W2139250164","https://openalex.org/W2139740731","https://openalex.org/W2143516902","https://openalex.org/W2148986372","https://openalex.org/W2149409440","https://openalex.org/W2150949374","https://openalex.org/W2155699461","https://openalex.org/W2155886462","https://openalex.org/W2156759043","https://openalex.org/W2158298030","https://openalex.org/W2159471471","https://openalex.org/W2159726017","https://openalex.org/W2163612624","https://openalex.org/W2164099498","https://openalex.org/W2166034721","https://openalex.org/W2166670196","https://openalex.org/W2167953523","https://openalex.org/W2168274334","https://openalex.org/W2171637950","https://openalex.org/W2171810782","https://openalex.org/W2197720483","https://openalex.org/W2249582631","https://openalex.org/W2252501961","https://openalex.org/W2288846089","https://openalex.org/W2314461521","https://openalex.org/W2325732190","https://openalex.org/W2415762915","https://openalex.org/W2417989506","https://openalex.org/W2761699783","https://openalex.org/W2798421819","https://openalex.org/W2798514912","https://openalex.org/W2798837374","https://openalex.org/W2811278729","https://openalex.org/W3005495891","https://openalex.org/W3151856769"],"related_works":["https://openalex.org/W2414680279","https://openalex.org/W2907457200","https://openalex.org/W7132922882","https://openalex.org/W2574943961","https://openalex.org/W2460990770","https://openalex.org/W1508537544","https://openalex.org/W2613268471","https://openalex.org/W4205141020","https://openalex.org/W2059007109","https://openalex.org/W2152105872"],"abstract_inverted_index":{"HIV":[0,56,167,200,248,274,288,320,339],"Infection:":[1],"Solitary":[2],"Work,":[3],"Silent":[4],"Suffering":[5],"\\nBeliefs":[6],"about":[7,148,258,327],"Responsibility":[8],"for":[9,38,45,93,100,260,306],"Health":[10],"\\nand":[11],"the":[12,149,154,159,219,223,239,243,283,316,328,346,353,364],"Ability":[13],"to":[14,50,98,105,112,123,132,182,237,272,293,330,349,363],"Impact":[15],"Disease":[16],"Progression":[17],"\\nCynthia":[18],"Frank,":[19],"PhD\\nUniversity":[20],"of":[21,197,247,287,319],"Connecticut":[22],"2014\\nIn":[23],"contemporary":[24,244],"Western":[25],"society,":[26],"health":[27,265,307],"has":[28,215],"become":[29],"a":[30,90,234,332],"personal":[31],"and":[32,44,52,67,80,108,116,134,142,151,158,195,206,211,226,242,264,267,285,299,303,308,325,357,360],"moral":[33,65],"responsibility.":[34],"People":[35],"are":[36,144],"blamed":[37],"their":[39,184,255,268,301,304],"unhealthy":[40],"or":[41,179],"risky":[42,127],"behavior":[43,128],"acquiring":[46],"certain":[47],"diseases":[48],"according":[49],"socially":[51],"culturally":[53],"constructed":[54],"norms.":[55],"is":[57,62,83,172,278,367],"an":[58,72,84],"infectious":[59],"disease":[60,152,225,262,292,309],"that":[61,129,204,253,276,312,343,351],"imbued":[63],"with":[64,103,166,270,338],"overtones":[66],"stigma,":[68,188],"often":[69,191],"multidimensional,":[70],"creating":[71],"illness":[73,155,302],"in":[74,136,335],"which":[75],"responsibility":[76,99,259,305],"(for":[77],"acquisition,":[78],"transmission,":[79],"viral":[81],"suppression)":[82],"overarching":[85],"theme.":[86],"Thus,":[87],"it":[88],"represents":[89],"unique":[91],"vehicle":[92],"exploring":[94],"belief":[95,256],"systems":[96,257],"related":[97],"health.\\nFor":[101],"those":[102],"access":[104],"medical":[106],"care":[107],"treatment,":[109,157],"opportunities":[110],"exist":[111],"slow":[113],"its":[114],"progression":[115],"improve":[117],"prognosis.":[118],"This":[119],"requires":[120],"strict":[121],"adherence":[122],"medication":[124],"regimens,":[125],"avoiding":[126],"could":[130],"lead":[131],"reinfection,":[133],"engaging":[135],"health-enhancing":[137],"behaviors.":[138],"Yet":[139],"these":[140,230,313],"behaviors":[141],"choices":[143],"mediated":[145],"by":[146,163],"beliefs":[147],"virus":[150],"causation,":[153],"experience,":[156],"associated":[160],"stigma":[161],"experienced":[162],"many":[164],"people":[165,297,337],"infection.":[168],"For":[169],"most,":[170],"this":[171],"solitary":[173],"work;":[174],"they":[175],"do":[176],"not":[177,181],"have,":[178],"choose":[180],"utilize,":[183],"social":[185,189,212,224,358],"networks.":[186],"The":[187],"isolation,":[190],"co-morbid":[192],"mental":[193],"illness,":[194],"fear":[196],"disclosure":[198],"surrounding":[199],"cause":[201],"significant":[202],"suffering":[203,227,359],"affects":[205,295],"constrains":[207],"everyday":[208],"lives,":[209],"opportunities,":[210],"relationships.":[213],"Biomedicine":[214],"focused":[216],"on":[217],"curing":[218],"physical":[220,347],"disease,":[221],"but":[222],"persist.\\nTo":[228],"address":[229],"issues,":[231],"I":[232,280],"utilized":[233],"mixed-methods":[235],"approach":[236],"research":[238],"meaning-centered":[240],"understandings":[241],"lived":[245,317],"experience":[246,300,318],"infection":[249,289,321,340],"among":[250],"U.S.":[251],"Veterans":[252],"encompasses":[254],"both":[261],"management":[263],"optimization,":[266],"agency":[269],"respect":[271],"managing":[273],"now":[275],"treatment":[277],"available.":[279],"explored":[281],"how":[282,296],"relabeling":[284],"reconstruction":[286],"from":[290,341],"\u201cacute\u2019":[291],"\u201cchronic\u201d":[294],"understand":[298],"management.\\nI":[310],"suggest":[311],"insights":[314],"into":[315],"can":[322],"inform":[323],"biomedicine":[324],"society":[326],"need":[329],"take":[331],"new":[333],"direction":[334],"treating":[336],"one":[342,350],"treats":[344],"just":[345],"body":[348],"reduces":[352],"multiple":[354],"physical,":[355],"psychological,":[356],"restores":[361],"dignity":[362],"person":[365],"who":[366],"ill.":[368]},"counts_by_year":[],"updated_date":"2026-11-06T12:05:46.655746","created_date":"2016-06-24T00:00:00"}
